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LONG TERM CONDITIONS E-NEWS JANUARY 2015LOCAL NEWSIW Community DirectoryThe IW Community is now live. See Information includes signposting to support and advice, adult services, education and learning, mind and body, sports and fun and activities. St Mary’s Hospital Medicines HelplineA new dedicated telephone helpline service is now operational from within the integrated care hub at St Marys Hospital. An experienced pharmacy team are available to answer questions from patients or their carers who may have questions or concerns about their medicines after discharge from St. Marys Hospital or after a visit to the Hospital. Opening times: 9am-12 noon (excluding bank holidays). For more information phone 01983 824860The Bobby SchemeThe Bobby Scheme, operated by the Blue Lamp Trust, is being launched on the Island in collaboration with the police and the Island’s fire and rescue service. The Bobby scheme is a practical service providing home security, long-life smoke alarms and peace of mind for needy, elderly and vulnerable victims of burglary. The Bobby Scheme operates throughout Hampshire (including Southampton and Portsmouth) and takes client referrals from a wide range of agencies. At the earliest opportunity, a visit from one of our trained fitters is arranged and he carries out a full crime-prevention survey, fitting appropriate locks, spy-holes, door chains and, where practical, making good the damage caused on entry by the burglar. As well as safety and security surveys, the Bobby Scheme will provide associated works if required, Among the security measures the service will be able to help with are door and window locks, door chains and smoke detectors. The scheme does not carry out electrical work, installation of CCTV, glazing, or other repairs.The Bobby Fitters are uniformed and carry ID cards to reassure our clients and the service is free of charge. The scheme also fits ‘Key Safes’ but usually seek a ?40 donation. The Fitter spends time with each victim, giving both general reassurance to help them come to terms with the experience and also specific crime-prevention advice to improve the safety of their homes. Referrals are usually made via one of a number of agencies, or by contacting the Bobby Scheme directly. Referrals can now be made online, using the online referral form available via the web page below. The scheme started on the Island from 1 August and will initially operate as a pilot project for two days a week. The scheme on the Island may be extended to full-time in due course.To find out more about the trust, please visit the Bobby Scheme web page or call 0300 777 0157 or by e mail on bobby@.uk SingAbout for breathingSingAbout for breathing is a social singing activity based on a recognised music therapy. It can help to improve your breathing, movement, speech and confidence. It’s fun and an opportunity to get out and meet people. No musical background is necessary. Sessions happened every Thursday, 11am — 1pm in The Respiratory Gym, St Marys’ Hospital, Newport, Isle of Wight. Sessions are FREE and refreshments are provided. Everyone is welcome and we encourage carers and family to attend. If you would like to be referred to SingAbout: Singing for Breathing, please call 552190POLICYNHS England publishes action plan for end of life careNHS England has published ‘Actions for End of Life Care: 2014-16’ which sets out what the organisation intends to do over the next two years to improve end-of-life care for adults and children. It is one component of a wider ambition to develop a vision for end of life care beyond 2015, which can only be achieved in partnership with all those in health and social care. See the document at New food allergen rules for consumersThe 2 million people in the UK who live with food allergies will be able to buy food and eat out with more confidence because of new EU rules coming into effect from December 2014. The Food Standards Agency carried out research with the national charity Allergy UK and found 70% of people with allergies avoid buying takeaways due to concern about allergens and a lack of trust in information they are given.From 13 December 2014, restaurants and takeaways will be required by law to tell customers if any of the main 14 food allergen ingredients are in the food they serve. These changes will mean consumers can feel more confident to ask about allergenic ingredients when eating out. The 14 allergens range from widely known ingredients such as peanuts and milk, to less widely recognised allergens including mustard and lupin seeds, which are often used in flour. It’s hoped the new laws will reduce the number of reactions caused by people accidentally eating food they are allergic to. On average, 10 people die and about 5,000 are hospitalised per year due to allergic reactions. The majority of these avoidable deaths and hospitalisations are caused by incorrect information being given about allergenic ingredients in foods when eating out. This is a growing issue in the UK, with hospital admissions relating to allergies rising by 87% between 2002 and 2014. Food businesses such as restaurants and cafes have been given flexibility on how they provide allergen information. This can be communicated through explanations by staff or signposted to where or how more information can be found in writing (for example, on menus or in additional leaflets) or verbally. The new EU Food Information for Consumers Regulations will also change the way allergy information appears on labelling for pre-packed foods bought in shops and supermarkets. For more information see You can see the infographic about food allergens from the FSA on our project Pinterest Board for Nutrition and healthy Eating board linked here RESOURCESGuide to help “overwhelmed” dementia carersBerkshire Healthcare and the University of Reading have teamed up to produce a new clear and accessible guide to support people who care for those with dementia.The design and content of the Dementia Handbook for Carers is based on direct feedback from those affected. This means for the first time carers have all the information they need in one place, including contact information, coping strategies, legal advice and medication information.?The Dementia handbook is also available online here - MyNHS launches as a driver for performance improvementMyNHS, a new site on NHS Choices, launched this week. The site enables patients and professionals to compare the performance of their local hospital, care services and their local authority.Users can search consultant outcome data as part of a world-leading transparency drive. MyNHS also includes searchable data on food quality, staffing, patient safety and mental health, along with many other areas of care. From early December patients will be able to see the Care Quality Commission’s individual risk rating for GP practices on the site.The publication of consultant data completes the first phase of the site. Over time, the data will allow the NHS and patients to better see and measure progress in health outcomes and will become an increasingly powerful resource for patients, doctors and local NHS commissioners of these services. More data will be added in future. See the website at Taking ChargeTaking Charge is a practical guide to living with a disability or health condition produced by Disability Rights UK. It is now available for pre-order. Do you want to live the life you choose?Do you want to find out about how to do this?Do you want read about people in the same or similar situations?If you have a physical or mental health condition, have just been given a life-changing diagnosis or your health is starting to worsen in later life. 'Taking Charge' is the publication for you. This publication pulls together in one place your 'rights' to a decent life, with choice and control - giving information on 'what you have a right to expect' from services, education and employment. The guide is intended to complement the Disability Rights Handbook.The first part of the book deals with planning and managing your life, for instance after an accident or diagnosis, or as life changes. Then each section deals with an area of life:Personal health and social careTechnology and equipmentAt homeYour familyGetting around: travel and mobilityLeisure, sport, community activitiesLearning, working, contributingThe publication also provides advice for situations when you don’t get what you need or feel you have been subject to discrimination.For more information about ordering see There is a charge for this publication. New guide to support bereaved familiesThe Dying Matters Coalition has produced a new leaflet called ‘Being there’ to support people on handling bereavement, including what to say and do – and what not to say and do – when someone has been bereaved.? Almost half of Britons (47%) say they would feel uncomfortable talking to someone who has been recently bereaved, and many bereaved people have experienced negative reactions to their grief, including others avoiding them, according to a new study released by the Dying Matters CoalitionThe leaflet is part of the Coalition’s new ‘Being there’ campaign to encourage people to support others through the process. The initiative provides information which supports broader work led by many organisations, including NHS England, to improve end of life services for individuals, their families and carers.See the leaflet here Kind DirectIn Kind Direct help you get the things you need to support communities. To do this, they accept donations of products from companies and redistribute them to charities, social enterprises and not-for-profit organisations. All you need to do is make sure you meet their criteria, register with with them, explore their online catalogue, and order the products you need.In Kind Direct work in partnership with both companies and voluntary and community organisations, mainly small organisations working at the grassroots, using products to transform communities and the lives of those in need. Surplus becomes something useful. Companies have a lot of products they no longer need, from over-stocked toiletries to last season’s toys.Items are distributed to charities, social enterprises and not-for-profit organisations.There are the things you need to run an organisation and items you can give to the communities you support. It’s free to join In Kind Direct and explore the collection of products available.Then, you pay a small handling charge for our service, which contributes to running costs and includes delivery. Typically, that’s between 10% and 20% of the retail price you’d usually pay per item. For more information see the website at CAMPAIGNS Public Health England encourages people to sign up to Dry JanuaryThis New Year, take a month off drinking and see the benefits to your waistline, wallet and general health. In the run up to Christmas many people start drinking more than usual as they celebrate the festive season with parties and get-togethers. This is the perfect time to sign up to a holiday from alcohol. Dry January is not about never drinking again. It’s just an opportunity for people to reflect on their drinking patterns and to give their body a break from alcohol after the festive period. Evidence from previous years that people who do Dry January will feel better, lose weight and save money.Professor Kevin Fenton, Director of Health and Wellbeing at Public Health England, says:Over 17,000 people took part in Dry January in 2014 and many reported that taking a month-long break from alcohol acted as a reset button concerning their alcohol use for months afterwards, not only helping people to drink less per drinking day but also to drink less frequently.As with any commitment to a healthier lifestyle change, people need some time to prepare themselves in advance so that they are in the best position possible to successfully achieve their goal. People who sign up to Dry January will receive the tips, ideas and encouragement to stay motivated and make the most of their month off alcohol. To sign up for Alcohol Concern’s Dry January and register for tips and tools to make the most of the month, please visit the website at I’m Still Me: a narrative for coordinated support for older people This report sets out how coordinated – or integrated – care and support looks and feels to older people and is written from their point of view.?The publication, developed by older people working with National Voices,?UCLPartners?and Age UK, challenges health and care services to work together and improve the outcomes older people say are most important to them – things like independence, social interaction and relational support. I’m Still Me outlines five themes that older people say are key to coordinated support: independence, community interactions, decision making, care and support and terminology. I’m Still Me discusses implications for health and social care services and asks professionals, at all levels, to reflect on whether they are truly addressing the issues identified as being important to older people. The publication also calls for a national debate on the use of the word ‘frail’. This word is often used to define groups of older people who could be vulnerable to a crisis, however it is emphatically rejected by older people themselves because they don’t see themselves in this way. ? The older people involved in the development of I’m Still Me did not want their lives to be defined by their health conditions and consistently disliked the terms ‘frail’ and ‘frailty’. Health and social care services have the challenge of identifying people at risk of ‘frailty’ to ensure that they get the right support, but this needs to be in a way that is acceptable to the very population they are trying to support. ?It is hoped that this publication will generate such debate, and that this conversation continues to be led by the views of older people. I’m Still Me is based on interviews with 74 older people about what matters most to them in their lives and about the support and care they receive as well as focus groups and a literature review. ? See the report at Health IssuesNew report shows planning for epilepsy care still poor in most areasEpilepsy Action’s report Epilepsy in England: The Local Picture draws on information from health and wellbeing boards and clinical commissioning groups. The report reveals that: Just three out of 140 health and wellbeing boards in England provided evidence of making local plans for people with epilepsy, Only 10 per cent of CCGs have a written needs assessment in place for people with epilepsy, Of the CCGs surveyed 78 per cent have not developed, and do not intend to develop, a written needs assessment for people with epilepsy in their area. Use?their interactive maps to find out what information was provided from your local CCG and Health & Wellbeing Board. For more information see the website at lives: diabetes, hypertension and NHS Health CheckThis tool shows mapped variation for local authorities, CCGs and GP surgeries for diabetes, hypertension and the NHS Health Check and reveals large variation in the prevalence and treatment of diabetes and high blood pressure, and in the provision of the NHS Health Check across the country. See the tool at guide to help improve patients’ cancer experienceNHS Improving Quality and Macmillan Cancer Support have joined forces to launch a hands-on guide to help trusts improve their patients' experience of cancer care and boost their overall performance.?The guide builds on the results of the 2014 Cancer Patient Experience Survey (CPES), which showed continued variation in how patients rate their experience of care.?Good patient experience has been linked to improved patient outcomes and high staff morale as well as lower costs and has a major contribution to make to organisations' overall reputation. The guide is intended primarily for cancer nurses and multidisciplinary teams and gives them the practical tools and advice they need to deliver successful change programmes and continually improve cancer services. It will also be relevant to commissioners.?Jagtar Dhanda, Head of Inclusion at Macmillan Cancer Support said: "This year's Cancer Patient Experience Survey shows us that there is still too much variation in the quality of care across the NHS, with around 1 in 5 (19%) cancer patients saying they feel treated as a set of symptoms rather than a human being. "Yet Macmillan's own research shows that for the majority of cancer patients being treated with dignity and compassion by NHS staff is as important as getting the best medical treatment. "We're positive that this new guide will be an essential step towards ensuring that all staff are equipped and supported to treat every cancer patient with the highest levels of dignity and respect."?See the report at Improving outcomes: a strategy for cancer - fourth annual report This report outlines the progress made against the national cancer strategy. It details progress against the ambition to save an additional 5,000 lives per year by 2015; progress in screening programmes; progress in ensuring better access for all to the best possible treatment, particularly radiotherapy; and?developments in the collection and reporting of new datasets and the analysis of information, particularly accurate stage at diagnosis data for England. See the report at TRAININGTraining courses for the sector CAIW have got a range of interesting courses to support the Island’s voluntary and community sector that might be of interest to you. More information about each of these courses can be found here.One Day Emergency First Aid09:30 – 16:00, 09:30 - 16:00 - Thursday 23rd April 2015 - Unit 18 NHS Supplies Depot, Barry Way, Newport PO30 5GY. (Please note this is an upstairs unit and does not have disabled access)Cost ?45 per personKnowing your governing document & policies / procedures10:00 – 12:30, Friday 27th February 2015Hunnyhill Room, Riverside Centre, The Quay, Newport, Isle of Wight, PO30 2QRCost ?30 per person. This session will help you know and understand your governing document and ensure that your actions and practices comply with it.A booking form for courses which need to be completed and returned to hello@.uk to secure your places. These can be found at our website at Living with EpilepsyThis free event is hosted by Claire Howard, Partner and Health of Serious Injury at the Southampton Offices of Irwin Mitchell. The session takes place on Thursday 29 January 2015, at Irwin Mitchell, Tagus House, 9 Ocean Village, Southampton, SO14 3TJ. The sessions runs from 10 - and lunch will be provided. The speaker will be Trevor Hutton, the Regional manager of the Epilepsy Society. If you would like to attend contact Claire at Claire.howard@ to reserve a place. OTHER NEWSLETTERSSee the latest newsletter from My Life a Full Life at Pinterest Board for the LTC projectThere is a Pinterest Board for the Community Action LTC project available via this link The Board is a virtual resource library for local LTC groups and it will grow over time as I find more useful resources that I can signpost groups to. If you haven’t used Pinterest before, it is a virtual “pinboard”. It enables you to “pin” links to your different boards to build a reference of resources for yourself in all sorts of interest areas. Once you pin a link, it links you back to the original website where you can see the source of the information. You do not need to be a member of Pinterest to view the LTC project Pinterest boards or find the original web links which are linked on each individual “pin”. If you want to set up your own boards you will need to register for Pinterest yourself. You will see that a number of the resources mentioned in these newsletters feature as pins on the project Pinterest boards. This bulletin will be produced on a regular basis each month as part of the Long term Condition Self Help Group development programme co-ordinated by Community Action IW. For more information contact Elaine Garrett, Project Co-ordinator on egarrett@.uk ................
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