The University of Alabama at Birmingham | UAB



HEALTHCARE TRANSITION RESOURCES Adolescent Health Transition Project (AHTP): A resource for teens and young adults with special health care needs, chronic illness, physical or developmental disabilities – Process:Learning about health: WellnessMental healthOral healthVision/hearingEquipment/technologyReproductive/sexual healthDiagnosis specific health informationPreparing for transition: Becoming aware of what is involved in health transition for your situationStarting and keeping a health historyLearning skills related to health and health careMaintaining health insurance coverageTaking over more control of self-care and self-advocacyPlanning for emergencies or unexpected eventsUsing the adult systemTransition Resources:Tools:FormsChecklistsGuidesBookletsWebsites:HealthTransitionHealth transitionDiagnosis specificSupport and advocacy groups:TeensYoung adultsFamiliesPDF’s on Website:Being a Healthy Adult: How to Advocate for Your Health and Health CareTeenagers: How to Stay HealthyWellness Resources from CDCEmergency Preparedness at Home for People with Disabilities: GuidelinesMental Health Issues for Adolescents and Young AdultsTips for Coping with Stress after A TragedyFactsheet: Depression and Suicide in TeensQuestions and Answers on Mental Health DisordersNavigating Tunnels and Cliffs: Empowering Families and Caregivers to Assist Your with Mental Health Needs in Preparing for WorkTreatments for DepressionOral Health: Overview and ResourcesVision ConcernsHearing ConcernsCaring for Your WheelchairWhat you need to Know about Assistive TechnologyThoughts on Relationships and SexualityThe Need for Relationships and Sexuality EducationTalking About Relationships and SexualitySexuality Education: Some Thoughts and Tips for ParentsSexual Abuse and Disability with Resource ListPeople with Intellectual Disabilities and Sexual ViolenceResources on Sexuality and RelationshipsKnowing About your Special Health Care NeedTransitions: A Guide to Getting Older and Changing Health Care ProvidersHealth History SummaryHow to Use the Health History SummaryHealth Care Tools and ChecklistsHealth Care Skills ChecklistHealth Insurance ResourcesParent-Child Shared ManagementTeen Seizure Action PlanEmergency Preparedness at Home for People with Disabilities: GuidelinesMaking the Most of a Health Care AppointmentFinding and Using Adult Health CareQuestions Many Teens AskCommunicating with Doctor and Other Health Care ProvidersWhat is a Health Advocate?Health History FormsHealth Skills ChecklistJaxHATS Transition Readiness ToolTransition Developmental ChecklistHealth Care Transition Planning Guides in Three AgesTransition Health Care Checklist: Preparing for Life as an AdultTransition Health Care Checklist: Transition to Adult Living in PennsylvaniaTransition to Adult Health Care: A Training Guide in Three PartsTransition Timelines for Chronic Illness/Physical Disability and Developmental DisabilitiesTips Brochures for Teens and Parents/FamiliesParent-Child Shared ManagementAutism Speaks Transition ToolkitAutism, Epilepsy and SeizuresCerebral Palsy Transition ToolkitAdditional Websites Mentioned:Teens Health-Diseases and Conditions Website: of Health Transition: This is Health Care Transition Video: ichp.ufl.edu/videos/tihctTalking with Your Doctor: You Can Ask Your Doctor: from the National Network of Libraries of Medicine to help decide if information found is right for you:English-How to decide if the information you are looking at is trustworthy: : Como puede saber si la informacion le sirve? Center for Children with Special Needs (at Seattle Children’s Hospital): Care Transition Initiative: Health and Transition Services (HATS): Healthy Transitions: Moving from Pediatric to Adult Health Care: Resources and Staying Healthy Resources: Transition? Royal Children’s Hospital Melborne: .au/transition/index.cfm?doc_id=8143Bloorview Kids Rehabilitation Hospital in Toronto: hollandbloorview.ca/resourcecentre/transitions/adultservices.phpTeens Health: State Medical Home: The Health Care Transition Initiative at the University of Florida: Improving the transitioning process from pediatric to adult health care Available Products:PDF’s (All are available in both English and Spanish):Since You’re Not a Kid AnymoreNow that You’re in High SchoolWhen You’re 18Envisioning My Future: a Young Person’s Guide to Health Care TransitionHealth Care Transition Planning Guides (12-14; 15-17; 18+)Videos:Talking With Your DoctorThis is Health Care TransitionHealth Care Transition: College and BeyondHealth Care Transition: Jim’s StoryOnline Training:Health Care Transition Training Program for Professionals-Training curriculum providing information to professionals to help prepare youth with chronic health conditions and disabilities to transition to adult care: with Your Doctor and Other Healthcare Professions-Includes videos, tips and strategies to help youth and young adults communicate more effectively with health care providers: Care Transition Training Program for Families and Youth-Designed to help young people and their families with the process of planning for and successfully completing a transition: Healthy Transitions: Moving from Pediatric to Adult Health Care: Provides pdfs, audiobooks, videos, and guides in both English and Spanish for topics involving healthcare transition, many of them overlooked.’s/Audiobook Topics:Scheduling an AppointmentScheduling TransportationPaperwork at the Sign-in DeskSpeaking Up at the Doctor’s OfficeCalling in a Prescription RefillSetting Health GoalsHealthy Transition Videos-Moderator GuideVideos:Scheduling an Appointment:Scheduling a medical appointmentScheduling transportationPaperwork at the sign-in deskIs the doctor’s office accessible?Preparing for an IV or blood drawPreparing for an operationOn the day of surgeryGetting Health Insurance:Are therapies covered?Beware of timetablesInsurance options before age 18Deciding About Guardianship:Decision-making with circle of supportAlternatives to guardianshipGuardianship, a parent’s perspective17-A surrogate court procedure actSpeaking Up at Doctor’s Office:Using a dynamic display deviceRole of aides at medical appointmentsAcknowledge circle of supportGLADDSpeak upAskme3Understanding my Disability:The pre-employment physicalKeeping a health diaryManaging Medications:Brown bag medicationsMy med Prescription labels and organizersKeeping a Health Summary:Keeping a health summaryThe transition information formLooking into Service Coordination:Meeting with your service coordinatorFinding an effective service coordinatorDeveloping a safety planCreating an individualized service planSetting Health Goals: My health, my choice, my responsibilitySelf determination and healthHow to use the transition checklistFinding Community Resources (NY):Summer campVESID and job placementCircle of supportOMRDD part IOMRDD part IIIndependent living centersOverlooked Topics/Documents:Transition Information FormVisit PlannerAppointment SchedulerThings We Can Do to Make Visits EasierGoal SetterTransportation SchedulerInsurance ChecklistGuardianship ChecklistOur Requests for Doctors, Dentists, and Office StaffService Coordination FlowsheetEquipment Order FlowsheetMy Health, My Choice, My ResponsibilityMy MedschedulePlanning for the FutureHealth Information Document The Center for Children with Special Needs, Seattle Children’s Hospital: Provides planning and record keeping documents for teens and parents’s/Forms Available:Teen Care Notebook:Entire notebook can be downloadedSpecific pages are available for downloadingHospital information listMedical/dental care providers listHome care providers listTherapists listPharmacy listSpecial transportation listTeen family information listInsurance/funding sources listCare scheduleAppointment logMedical/surgical highlistsLab work/tests/procedures listsEquipment and supplies listMedications listDiet tracking formHospital stay tracking formMedical bill trackingMaking a calendarNotesCare Plans for Teens:Getting to know meWhat’s the plan?In case of emergency Got Transition? MCHB funded project, currently still in the development stage, containing resources for youth, families, and providers, as well as other state innovations regarding health care transition. Transitions- Care Transitions- and Read to Work- for Youth- with Your Doctor (PDFs and audio files in both English & Spanish)- forYourHealthandHealthCarePDF’s:Communicating with Doctors and Other Health Care ProvidersFinding Adult Health CareBeing a Healthy Adult: How to Advocate for Your Health and Health CareIt’s Time to TransitionState Innovative Websites:Florida-FloridaHATS- Transitioning Youth- York-Healthy Transitions- Carolina-MAHEC CHAT Project- Health Transition Project- Health Care Transition Resources-the CHAT Project: Provides guides and toolkits for providers, youth, and parents to help youth transition from pediatric to adult health care. Provider BrochureCHAT Teen BrochureCHAT Health Care Provider’s Guidelines and ToolkitProvided in toolkit:Core knowledge and skills for pediatric practicesTransition checklist and timelinesChanging role for youthChanging role for familiesUNC STARx self-assessment toolTRANSITION scale (provider administered)Transition information formHRTW portable medical record formEmergency information for children with special needsTransition action care planHealth care skills checklistCHAT Youth GuideCHAT Youth ToolkitCHAT Family, Parent, Caregiver’s GuideCHAT Family ToolkitDD Fact SheetPatient Centered Medical Home Fact SheetAllied Health Fact SheetVideos:Family Perspectives Transition Video Series for FamiliesCommunity support groupsFinding an adult providerMedication managementHealth literacySuccess stories Health Services Training Project, UCP of Greater Birmingham: Six video training modules for individuals with disabilities and health care providers. Persons with Disabilities:Preparing to Visit Your Healthcare ProviderStaying Healthy Between Doctor VisitsUsing the InternetFor Health Care Providers:Preparing to TreatPractice AccommodationsDisability EtiquetteGood 2 Go Transition Program, The Hospital for Sick Children. health passport is a customized, wallet-sized card to give instant access to medical information.State of Washington, Department of Health. from Teen to TweenYour Life, Your Health, Your WayYoung Adults Transition Plan: Your Future/Your LifePlanning for Healthy Transition: A Family Transition Plan ................
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