PDF HISTORICAL CURRENT FUTURE - Minnesota

CASE MANAGEMENT:

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HISTORICAL

CURRENT & FUTURE

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PERSPECTIVES

Edited by Mary Hubbard Linz,

Patricia McAnally, and Colleen Wieck

Foreword by Professor Robert Bruininks, Director, Minnesota University Affiliated Program

on Developmental Disabilities

?BROOKLiNE BOOKS

January 1, 1989

Copyright ? 1989 by Mary Hubbard Linz, Patricia McAnally, and Colleen Wieck

All rights reserved. The contents of this book may not be reproduced without written permission of the publisher.

Library of Congress Cataloging-in-Publication Data

Case management: historical, current, and future perspectives/

edited by Mary Hubbard Linz, Patricia McAnally, Colleen Wieck.

p. cm.

Papers Presented at a Conference co-sponsored by the Minnesota

University Affiliated Program on Developmental Disabilities and the

Minnesota Dept. of Human Service, held in 1986.

Includes bibliographical references.

ISBN 0-914797-65-4 : $24.95

1. Developmentally disabled--Service for--United States-

-Management--Congress. 2. Social case work--United States-

-Management--Congress. I. Linz, Mary Hubbard. II. McAnally,

Patricia L., 1927- . III. Wieck, Colleen A. (Colleen Ann)

IV. Minnesota University Affiliated Program on Developmental

Disabilities. v. Minnesota. Dept. of Human Services.

HV1570.5.U65C37 1989

362.1'968--dc20

89-23917

CIP

Published by Brookline Books, Inc. POBox 1046 Cambridge, MA 02238-1046

Printed in the United States ofAmerica

January 1, 1989

II

Preface

II

When we try to pick out anything by itself, we find it hitched to everything else in the universe.

John Muir

Aproxima~ly no~d 25 years ago, a

attorney titled a perceptive

article on the challenges facing society and contemporary educational

institutions, "Everything Nailed Down is Coming Up Loose" (Fishwick,

1963). This expression, taken from a different context, aptly describes much

of the current condition of services today for citizens with disabilities and

their families. Despite enormous gains in funding and more enlightened

attitudes in many countries, services to citizens with disabilities are still

managed through an incredibly complex maze oflegal guidelines and archaic

management strategies at every level of government. Recognition of this

longstanding problem has consumed the attention ofnumerous conferences

and the pages of extensive reports for much of the past 20 years. Yet, many

ofour structures and strategies in providing human services have changed

little during this period. In fact, they continue to function with little

coordination, efficiency, or effectiveness at a time when integration of

purpose and action are urgently required to address the service needs of

people with disabilities and their family members.

It is true that life experiences of most people with disabilities have

changed in the past few decades. These changes reflect increased concern in

many countries for expanding opportunity, integration, and equity for all

citizens. For citizens with disabilities and their families, social advances

have been reflected in a changing, more progressive philosophy toward

integration in education, residential living, employment, and community

participation. Such changes have increased recognition and extension of

their legal rights and substantially increased public support for education,

residential living, income maintenance, training, and other essential serv-

ices in communities as opposed to segregated institutional service models.

Progressive social changes are often attended by unintended problems

and consequences. Despite positive growth in opportunity and acceptance

ofcitizens with disabilities, difficult problems are still evident in programs

and supports available to them. With the decentralization of services from

more segregated service models, attempts to increase the social integration

January 1, 1989

iv

Case Management

and family support for people with disabilities have been thwarted by increasing fragmentation of responsibility among many varied agencies. The profound changes in service programs, through decentralization, reduced size, and other changes clearly have not been matched by improved access or in the quality and effectiveness of interventions. Progress of the past few decades, moreover, has not been without the intense conflict over purpose and strategy which invariably accompanies any dramatic social change or change in public policy and practices.

There are still many important challenges ahead in improving access, appropriateness, efficiency, coordination and accountability ofservices, and supports for people with disabilities. Much ofthe success ofpast and current reform in services and programs of support will depend upon the success of case management strategies, particularly in local communities. This important book addresses this essential, but too often ignored, ingredient to assuring full opportunity, inclusion, and citizenship for persons with disabilities.

The term case management enjoys many different defmitions and interpretations. As community-centered services and support programs have evolved, however, the concept has clearly expanded to address a wide range ofissues including strategies necessary to ensure access and equity; planning involving persons with disabilities, family members, providers, and others; coordination of effort and resources; and assurance of appropriateness, efficiency, and quality in services and programs of support. Sound case management practices should produce better planning and coordination of programs, but it should also be concerned with increasing the quality oflife for people with disabilities in the communities in which they live, learn, and work.

In an area with limited literature and research, Case Management: Historical, Current, and Future Perspectives, explores this important issue from multiple perspectives. It emphasizes major historical, functional, and con-

ceptual issues, the life cycle needs of persons with disabilities and their

families, the essential importance of organizing the natural strengths of communities, the creative roles of parents and other family members, new

and creative case management models, the implications of critical life

transitions in early childhood and later adolescence, and important challenges in philosophy, law, regulation, and management practices in providing support through case management. Above all, this book is about improving the connections of people with needed support and services with their friends and with their communities.

This book contains essential material and concepts for addressing the role ofcase management in the many and varied challenges ofproviding full opportunity for citizens with disabilities in our homes, schools, and communities. Effective case management strategies increasingly serve as the catalyst and guarantor of reform in practices. They help to assure greater effectiveness in services and programs of support in local communities.

This book addresses the many challenging aspects ofcase management,

January 1, 1989

Preface v

arguing for a perspective on community living and integration in which service coordination is a broadly shared responsibility and process involving the coordination and participation offamilies, persons with disabilities, local and state government organizations, and service providers. Written with a multidisciplinary perspective, this book is an important source for students, policy makers, researchers, local managers, providers, and family members. It is essential reading for anyone who cares about the direction and success ofstrategies to assure a better quality oflife and opportunity for persons with disabilities.

ROBERT H. BRUININKS, PH.D. Institute on Community Integration University of Minnesota Minneapolis, Minnesota March,1990

January 1, 1989

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