Who Are We - Mental Health America
2009
Annual Report
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Who Are We?
Mental Health America (formerly the National Mental Health Association) is the country’s leading nonprofit dedicated to helping all people live mentally healthier lives. With more than 300 affiliates nationwide, we represent a growing movement of Americans who promote mental wellness for the health and well-being of the nation—every day and in times of crisis.
Mental Health America Vision
Mental Health America envisions a just, humane and healthy society in which all people are accorded the respect, dignity and the opportunity to achieve their full potential free from stigma and prejudice.
Mental Health America Mission
Mental Health America is dedicated to promoting mental health, preventing mental disorders and achieving victory over mental illnesses through advocacy, education, research and service.
2009 Summary of Activities
Advocacy
Mental Health Parity Regulations
Mental Health America praised the parity regulations released after the passage of parity legislation in October 2008. Mental Health America’s strong grassroots movement was a key factor in the passage of the parity legislation. Mental Health America staff and advocates provided feedback to the government as it developed the parity regulations, fighting for the strongest possible implementation when the regulations went into effect in July of 2010. Seventy three Representatives and 26 Senators signed on to a letter that Mental Health America sent to federal agencies regarding parity.
Healthcare Reform
Mental Health America staff and advocates pushed for the inclusion of strong mental health provisions in the healthcare reform bill. The bill included provisions to improve care coordination that specifically incorporate mental health and behavioral health and important workforce development proposals that seek to address shortages of behavioral health providers.
Mental Health America was actively engaged in advocacy to influence the health care reform legislation, including efforts to keep the affiliates updated on the legislation and engage its grassroots advocacy network through legislative alerts and regular updates on status and contents of the bills. During the Finance Committee mark-up, Senator Debbie Stabenow (D-MI) successfully offered an amendment, which we advocated for and helped to develop, that would ensure that the Wellstone-Domenici Mental Health Parity Law would apply to individual and small business plans offered through the new health insurance exchanges.
We have participated in several briefings on Capitol Hill regarding health care reform including one sponsored by the Whole Health Campaign on September 9th, where Kirsten Beronio, vice president of public policy and advocacy, presented on the mental health and substance use condition case for health care reform and another briefing sponsored by the Campaign for Mental Health Reform, where she presented on the implications of the various bills for children’s mental health services. We have also participated in several conference calls and meetings with SAMHSA officials to discuss progress and issues in this legislation. Kirsten also spoke to a group of SAMHSA officials regarding the implications of the health care reform bills for children’s mental health. During deliberations in the House over passage of their bill, we sent a letter of support and issued a press release as well as issuing an alert to our grassroots network.
Medicare Part D
We continue to actively work to ensure comprehensive coverage of mental health medications within the Medicare Part D program, focusing particularly on securing the policy put in place under the Bush Administration requiring coverage of substantially all medications in six clinically sensitive classes including anti-depressants, anti-psychotics, and anti-convulsants. Most recently, the Obama administration issued a set of proposed changes to how they would proceed with determining which classes should continue to receive this special protection under Part D in the future. We, along with representatives of the National Council for Behavioral Health Care and NAMI, met with officials at the Centers for Medicare and Medicaid Services (CMS) to discuss our concerns with these proposed regulations. In addition, we advocated for a provision included in the Senate Finance Committee’s health care reform bill that we hope would help CMS to maintain the current policy ensuring comprehensive coverage of these medications.
IOM Prevention Report
MHA remains very interested and engaged in advancing the recommendations of Institute of Medicine’s (IOM’s) report on Preventing Mental, Emotional, and Behavioral Disorders Among Young People: Progress and Possibilities issued in February 2009. In August, MHA worked with the IOM to organize about a dozen meetings with Congressional health leaders to follow-up about the accessibility and utility of the report. Given all the attention dedicated to health care reform, it has not been the highest priority to advance the IOM report, but staff will focus on it in 2010.
Regional Policy Council
Mental Health America convened a Regional Policy Council in June to strengthen the coordination between state and federal policy. The Regional Policy Council comprises of 10 representatives from different geographic areas around the country who work together on major advocacy initiatives.
The Regional Policy Council (RPC) Representatives have completed the resource mapping of affiliates working on policy issues. The results of the mapping exercise found several common issue areas to be addressed by the RPC in 2010 activities. Notably, almost all regions showed a desire for more information on federal health care reform, parity implementation, access to medications, criminal justice, and state budgets. Second tier issues include mental health and primary care integration, peer support, and Medicaid.
In addition to guiding activities for 2010, the resource mapping exercise also helped bridge communication and sharing between National and affiliates and among affiliates. The response from affiliates about the RPC and its plans has been overwhelmingly positive.
In the fall, the RPC held monthly conference calls to engage affiliates around the country. In September, two conference calls were held on Federal Health Care Reform, featuring an overview by Kirsten Beronio. In October, each region held a call to discuss the results of the resource mapping and discuss ways the region can work together and ideas for nationwide RPC activities. On November 24th, Robin Rudowitz from the Kaiser Family Foundation reported on what the health care reform legislation might mean for states.
Other Legislation
Mental Health America supported several other legislative initiatives. Mental Health America focus included the Positive Behavior for Safe and Effective Schools Act; Youth Prison Reduction Through Opportunities, Mentoring, Intervention, Support and Education (PROMISE) Act; and The Recidivism Reduction Act.
Public Education
Mental Health America Resource Center
Mental Health America’s Resource Center was central to the public education and service mission of Mental Health America for many years. The Resource Center touched the lives of thousands of people each year by providing accurate, timely and free mental health information and referral assistance. Operated by experienced, professionally trained staff, the Resource Center responded to requests from the public in English and Spanish through Mental Health America’s toll-free line, e-mail and online resources. As the years went on, the requests to the Resource Center grew increasingly more complicated, and the staff who responded changed lives.
The Resource Center provided an invaluable service to people with mental health conditions, and Mental Health America is proud of the support it provided over the years. Unfortunately, due to funding, MHA closed the Resource Center.
Campaign for America’s Mental Health
Through the campaign, Mental Health America’s affiliates met to discuss what issues they face in public education, and what issues the national office needs to address. They also influence the theme decision for May is Mental Health Month.
Highlights of MHA activities for 2009 include:
• Educated more than 1.5 million people at over 1,000 events.
• Screened more than 10,000 people locally.
• Referred more than 20,000 people to treatment and services.
FundaMENTAL Health
Mental Health America has undertaken a significant initiative aimed at addressing the impact of mental health conditions on the U.S. workforce. The centerpiece of this initiative is a dynamic, multi-media slide presentation that examines the prevalence and disability of mental health conditions and demonstrates that an investment in behavioral health services and mental health promotion is critical to employee health and productivity, as well as cost containment. Mental Health America president, Dr. David Shern, Ph.D., has given this presentation before audiences of local business leaders in communities around the country.
Mental Health America held its third and fourth FundaMENTAL Health events in Houston, TX on February 25 and Newark, OH on March 11. Mental Health America held its fifth and sixth FundaMENTAL Health events in Wilmington, DE on May 1 and Atlanta, GA on May 12. Mental Health America held its seventh and eighth FundaMENTAL Health events in Milwaukee, WI on August 4 and San Diego, CA on October 8.
FundaMENTAL Health, Bottomline Sense was featured as a breakout session during Mental Health America’s 2009 Annual Meeting. The breakout provided an overview of the program, how it is used in the business community, and brief presentations from affiliates that held events.
Mental Health America has begun developing the FundaMENTAL Health toolkit to assist affiliates in implementing the program and building partnerships with business leaders in their communities. Initial plans for the toolkit are to create an online portal where affiliates login and access the PowerPoint presentation, program materials, and other useful documents.
Dialogue for Recovery
Through the Dialogue for Recovery educational initiative, Mental Health America seeks to enhance recovery, health and quality-of-life for individuals with severe mental illness. The program works to improve communication between mental health consumers, their healthcare providers, family members and others to support an individual’s empowerment and recovery.
Between August 2009 and December 2009, Mental Health America continued efforts to develop materials covering topics in recovery, including medications, bipolar disorder, and an in-depth brochure on schizophrenia.
Two brochures on medications were completed. They have been reviewed by experts and are currently in the production stage, using the same design template as the recovery brochure. One medication brochure covers potential uses and side effects of medications; the other discusses medications’ role in recovery, making medication decisions and working with one’s provider on these issues.
Production of the brochures for people with bipolar disorder and schizophrenia were completed. The brochures provided an overview of major areas that support recovery for this population, including assistance with work and housing, self-care, peer supports and developing tools for overall wellness.
Live Your Life Well
Mental Health America launched the “Live Your Life Well” program in April to help people everywhere cope with stress and improve their mental well-being. The heart of the program is the Live Your Life Well Website, , which provides 10 evidence-based tools to bolster mental health. "Research is clear that good mental health is essential for overall health and well-being," said Sonja Lyubomirsky, Ph.D., noted author of The How of Happiness: A Scientific Approach for Getting the Life You Want and a psychologist at University of California Riverside. "There are actions that people can take that can improve their mental health and increase their well-being, and even modest changes can make a real difference." The program suggested ways for people to remain active, eat healthy, connect with others, give back to the community and seek professional help when needed. Mental Health America partnered with Signal Patterns to release a “Live Happy” application for the iPhone.
Back to Campus
Mental Health America developed a Back to Campus toolkit to support communities in their efforts to help students recognize the symptoms of stress and get help when needed. The toolkit was a comprehensive resource that included public education and media materials to help promote mental wellness and counter misunderstandings associated with mental health conditions on campuses and in the community. College students benefited from understanding that stress is normal, but that too much stress can also be unhealthy. Knowing the signs of stress, understanding what can cause stress, and learning ways to positively cope with stress can help students through these tough times
Mental Health Month
Mental Health America celebrated May as Mental Health month with its “Live Your Life Well” initiative as a cornerstone.
Outreach
Operation: Healthy Reunions and Fort Hood
In November, Mental Health America mourned the victims of the Fort Hood shooting. Mental Health America continued to support Operation: Healthy Reunions, a website dedicated to military veterans and their family members.
Centennial Celebration
On February 19, Mental Health America celebrated a century of achievements and looked ahead to future victories at a special event held at the McClendon Center in Washington, D.C. The event featured speakers from the most prominent areas of the mental health movement, who highlighted past accomplishments and the challenges that lie ahead.
That sentiment was echoed by speakers representing diverse areas of the mental health movement. They included Jason Forrester, director of policy, Veterans for America; Richard Nakamura, Ph.D., scientific director, National Institute of Mental Health; Anna Marsh, Ph.D., deputy director, Center for Mental Health Services; Richard Davis, executive director of the McClendon Center; Dorothy Adams, executive director, Consumer Leadership Forum; and Michelle Sese-Khalid, realLives consumer advocate.
Centennial Gala
On a beautiful June evening in Washington, D.C., Mental Health America, in conjunction with our Centennial Conference, celebrated in style with a fundraising Gala to honor the organization’s Founder Clifford Beers and bring together past Board Chairs, Committee members, supporters, mental health advocates and mental health consumers, all of whom dedicated their time, talents, leadership and passion to bettering the lives of individuals with mental health conditions.
Joining in the celebration were Mrs. Tipper Gore, Honorary Chair of the Centennial Conference and Gala Celebration, and Mrs. Rosalynn Carter. Both have been staunch supporters of Mental Health America for many decades. During the Centennial Gala Senators Edward M. Kennedy and Pete Domenici were honored for their legendary work on behalf of individuals with mental health conditions. Kennedy, who could not be in attendance, and Domenici were presented the Paul Wellstone Legacy Awards for their lifelong work and commitment to mental health and their leadership in winning passage of the Paul Wellstone and Pete Domenici Mental Health Parity and Addiction Equity Act. The act was signed into law last year. The award is named after the late Senator Paul Wellstone, who championed this issue of mental health parity during his time in the Senate.
Emmy Award-winning actress Glenn Close also attended as an honorary guest. Close, known primarily for her talents as an actress, is a strong mental health advocate. She has recently begun speaking about two members of her own family, both of whom have mental health conditions. At the Centennial Gala, Close announced her plans for a PSA campaign that will launch in 2009 and that is designed to reduce stigma and offer hope and support to mental health consumers and their families.
Grammy-nominated artist Vanessa Carlton and singer-songwriter Dwight Yoakam entertained the Gala gatherers. Carlton sang several of her hit songs, including “A Thousand Miles” and “Home.”
One of the most touching moments of the Gala Celebration came when Yoakam read a poem from a soldier, Sgt. John Daniel Eubanks, who he had met while at the Gala dinner. Sgt. Eubanks had written a touching poem about his struggles both physically and mentally upon returning to the United States following several tours of duty in Iraq.
The ultimate crowd pleaser and show stopper, however, was the Clifford Beers Award winner Sharon Jenkins Tucker. Tucker spoke eloquently, and with humor and passion, of her life-long struggle with depression and how as a peer-specialist, she has fulfilled a mission to help others. Tucker also spoke of her respect for Clifford Beers and it was through her own struggles that she aspired to become more of an advocate out of her respect for Beers’ work.
Research
Impact of the Recession on Mental Health
Mental Health America and the National Alliance on Mental Illness conducted a nationwide survey on the recession’s impact on American mental health as part of the Depression Is Real Program. The survey found that:
• Thirteen percent of unemployed individuals report that they have thought of harming themselves, which is four times more than the percent of persons with full time work who report such thoughts.
• People who are unemployed are approximately six times as likely to have difficulty meeting household expenses—22 percent report great difficulty paying their utilities and almost half have significant difficulty in obtaining health care, further compounding their situation.
• People who are unemployed are also twice as likely to report concern with their mental health or use of alcohol or drugs within the last six months as individuals working full time.
• Of those who have not spoken to a health professional about these concerns, 42 percent cited cost or lack of insurance coverage as the main reason.
• Nearly 20 percent of the sample reported that they had experienced a forced change (e.g. pay cuts, reduced hours) in their employment during the last year.
• Although most of these individuals are employed, individuals with a forced change in employment are twice as likely to report symptoms consistent with severe mental illness than would be expected. They are also five times more likely to report feeling hopeless most or all of the time than individuals who hadn't experienced a forced change.
• Americans who experienced involuntary changes in their employment status, such as pay cuts or reduced hours, also are twice as likely to have these symptoms, even though they are employed full time.
Disparities among minorities
In April, MHA national staff met with the project’s Advisory Council to discuss organizational and administrative issues including hiring Mellisa Logg to spearhead the Eliminating Disparities project to be based in the Shiprock, NM area. MHA staff and Advisory Council leadership began the process to address New Mexico’s new regulations on the certification of peers for Medicaid reimbursement with state officials and past project consultant. Project team members have attended the required new training and are awaiting certification by the state board as trainers for CPS. Training will be conducted in July, and the end of August is the time scheduled for a two-day retreat for all involved in the project. Additionally, New Mexico’s team is collaborating with MHA national staff in an application to conduct a workshop at the Alternatives 2009 conference.
Leadership
National Staff Institute and Class of 2009
The National Staff Institute brings together affiliate leaders for the purposes of strengthening relationships between affiliate offices, shared learning and developing strong management practices. At regional meetings which take place at affiliate host sites, leaders of state and local offices focus on issues around management as well as critical concerns of unmet needs throughout the affiliate field to determine how as a network, they can become more effective in service delivery and fortify organizational sustainability. Since its inception in 2007, meetings have concentrated on issues such as eliminating disparities in mental health among regional and frontier communities, and addressing the needs of America’s service members/veterans and their families.
Mental Health America also trained new affiliate executive directors through its Class of 2009 series, which focuses on management tools to help affiliates run better organizations.
The National Working Group on Evidence Based Health Care
Mental Health America (MHA) continued its work with the National Working Group on Evidence-based Health Care (The Working Group) to help ensure greater patient-focused, consumer knowledge, and involvement in national and state-focused initiatives seeking to promote a better quality of care. MHA convened The Working Group, which represents consumers, caregivers, practitioners and researchers committed to promoting accurate and appropriate evidence-based policies and practices that improve the quality of health care services in the United States. In addition to Mental Health America, Working Group members include more than 40 patient and disease advocacy groups including The Epilepsy Foundation, Breast Cancer Network of Strength, American Psychiatric Association, and the Asthma and Allergy Foundation of America.
The Working Group has continued to meet monthly. In order to distinguish ourselves from the many other groups working on these issues, we have positioned ourselves as the group most concerned with ensuring the patient perspective in research and educating and mobilizing the grassroots on EBH issues. In order to do this, we have begun an effort to involve more affiliates with the Working Group, and have had a good turnout on the last two calls. We are identifying ways the Working Group can work with other groups to add the patient voice. For example, the Center for Medical Technology Policy presented on the Working Group’s November call, and we plan to follow up with to determine partnership opportunities.
Consumer Advocacy
Consumer Advocacy
During September, Patrick Hendry, the senior director of advocacy services was the keynote speaker for the Magellan Recovery Conference in Des Moines, Iowa. His presentation, Peer Inclusion in the Mental Health System, provided an overview of the history of the Consumer Movement and the trend towards including peers in every phase of mental health services. The speech was well received and has generated several additional requests for us to speak at a variety of events.
Mental Health America partnered with Policy Research Associates and the National Alliance on Mental Illness to provide a technical assistance center for the Statewide Families and Consumer Network.
National Consumer Supporter Technical Assistance Center (NCSTAC)
In September, NCSTAC received a supplemental grant from SAMHSA to assist in the development of statewide consumer-run organizations in New Mexico and Utah. Kate Gaston and Patrick Hendry traveled to both states in November to begin the process of connecting with consumer leaders and other stakeholders. Each state presents very different challenges to building a statewide network. Mr. Hendry also made trips to Las Vegas and Reno to work with the newly formed steering committee for developing a network in Nevada. Plans have been established to have a statewide meeting via the state’s video conferencing system in early December.
Following the meetings in Nevada, Patrick traveled to Helena, Montana for a two day roundtable meeting with CALM4us. New Board officers were chosen and plans are underway to develop a newsletter and begin a membership drive. CALM4us was awarded two grants from NCSTAC in September to hold facilitator training for the Wellness Recovery Action Plan (WRAP) program. One grant was for capacity building and totaled $5000.00, the other was for Recovery projects and totaled $20,000.00
In October, MHA began a new series of webinars, Organizational Development And Business Management for Peer-Run Organizations. The first in the series, Consumer-Run Nonprofit Basics was presented by Melinda Davis, the executive director of the Advocacy Initiative Network of Maine. The training was run twice and we were able to present it to over 140 people.
2009 Financials
| | |Temporarily |Permanently |2009 Total |
| |Unrestricted |Restricted |Restricted | |
|REVENUE AND SUPPORT | | | | |
|Grants, contracts and contributions |$592,713 |$2,400,742 |$- |$2,993,455 |
|Conference registrations |169,683 | | |169,683 |
|Affiliate support |360,087 | | |360,087 |
|In-kind contributions |153,241 | | |153,241 |
|Combined federal campaign |56,709 | | |56,709 |
|Sales |68,178 | | |68,178 |
|Rental income |36,310 | | |36,310 |
|Interest and dividend income |107,168 |4,122 | |111,290 |
|Realized gains (losses) on investments |(582,469) | | |(582,469) |
|Net assets released from restrictions |3,561,790 |(3,561,790) |- |0 |
|TOTAL |4,523,410 |(1,156,926) |- |$3,366,484 |
|EXPENSES | | | | |
|Program Services | | | | |
| Education |1,851,240 |- |- |1,851,240 |
| Advocacy |1,567,607 |- |- |1,567,607 |
| Constituency services |1,175,004 |- |- |1,175,004 |
| Research |352,393 |- |- |352,393 |
|Total Program Services |4,946,244 |- |- |4,946,244 |
| | | | | |
| Management and General |579,862 |- |- |579,862 |
| Fundraising |471,904 |- |- |471,904 |
| | | | | |
|TOTAL EXPENSES |5,998,010 |- |- |5,998,010 |
|CHANGE IN NET ASSETS |(1,474,600) |(1,156,926 |- |(2,631,526) |
|(before unrealized gains (losses) on investments) | | | | |
|UNREALIZED GAINS (LOSSES) ON INVESTMENTS | | | |1,441,044 |
| |1,416,739 |24,305 |- | |
|CHANGE IN NET ASSETS |(57,861) |(1,132,621) |- |(1,190,482) |
| | | | | |
|NET ASSETS, BEGINNING OF YEAR |2,878,488 |4,081,315 |288,971 |7,248,774 |
| | | | | |
|NET ASSETS, END OF YEAR |$2,820,627 |$2,948,694 |$288,971 |$6,058,292 |
2009 Board Members
John A. Morris
Chair of the Board
Sergio Aguilar-Gaxiola, MD, Ph.D.
Immediate Past Chair of the Board
Jack Akester
Eric Ashton
William Beardslee
Vice Chair, Prevention and Children’s Mental Health Services
Ann Boughtin
Vice Chair, Strategic Planning
Charlotte Brown, PhD
Jacki Brownstein
Vice Chair, Affiliate Relations
Elaine Crider
Joseph de Raismes, III
Executive Committee Member At Large
David Fassler, MD
Larry Fricks
Vice Chair, Prevention and Adults’ Mental Health Services
Faye Gary, ED.D
Vice Chair, Cultural & Linguistic Competency
Gregg Graham
Vice Chair, Public Affairs
Jerry R. Grammer
Robert Hendrickson, Ph.D.
Mark Heyrman, JD
Vice Chair, Public Policy
Joel Hornberger
Secretary/Treasurer
DJ Ida, Ph.D.
Vice Chair, Cultural and Linguistic Competency
Anisha Imhoff-Kerr
Paddy Kutz
Brenda Lee
Sherri Luthe
Pender McElroy
Chair Elect
Jacki McKinney
Monty Moeller
Vice Chair, Public Affairs
Marley Prunty-Lara
Clint Rayner
Julian Rivera
Jeanne Rohner
Roomana Sheikh, MD
Gail Stuart
Joseph Swinford
Richard Van Horn
Vice Chair, Affiliate Relations
Molly Van Ort
Karl Wilson
Vice Chair, Resource Development
Cynthia Wainscott
THANK YOU
S U P P O R T E R S
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