ALZBRAIN



Site

As of June 20, 2006

Home Page

*would like to move “link” tab on top to an area on the side. And replace with “link” tab “Prevention”. Also on the side of page, would like to add “Dementia Prevention Library (section L)”.

1 Home

1. Do You think you have Alzheimer’s? Click here (take to section J)

2. How to prevent dementia. Click here. (take to section K) (consumer section)

3. Are you a family caregiver” Click here (take to section F)

4. Are you a healthcare professional? Click here. (take to section H)

5. Summary – Welcome to Alzbrain! (TBD)

Welcome to . This learning resource contains information for caregivers of persons with dementia and individuals who worry about memory problems. The web-site is sponsored by the Dementia Education & Training Program through support from the Alabama Department of Mental Health and Mental Retardation. This program was initiated by the Alabama State Legislature and the family caregivers throughout Alabama.

6. DETA

A6a. What is DETA?

A6b. About the DETA website

The DETA Web site is provided as a service to the citizens of Alabama through support from the Alabama State Legislature. The DETA program is based in the Alabama Department of Mental Health and Mental Retardation, an organization that provides extensive support to family caregivers and professionals. The offices for the DETA program are located on the grounds of Bryce Hospital in Tuscaloosa, AL. DETA materials are composed by Dr. Richard E. Powers and his staff. Information provided in the DETA Web site is based on peer-reviewed, published scientific reports and descriptions. Ms. Phillis Hairston Myers prepares, edits, and formats all published materials originating from the DETA program.

A6c. Materials available from the DETA Program

DETA produces printed, videotaped, and computer-based materials including the DETA Brain Series for unlicensed professionals, the DETA Family Series for family caregivers, the School Series for teachers, and DETA Mental Health Series for psychiatric professionals. All DETA materials comply with federal or state regulations that govern care of persons with dementia in long-term care facilities. The DETA audiovisual programs are produced by the Center for Public Television. The staff of the Center offers these programs at subsidized rates to dementia residents of Alabama and below market rates to individuals outside our state.

2 Contact Us

3 DETA Store

1. Whatever is in current store with be the same. Would like to add 1-minute video clips of segments so people can preview the shows.

4 Recommend Us

5 Links to various sites (located on right side of home page)

7.

8.

6 Family Caregiver

F1. Family Caregiver Packet (pdf file)

This packet of information is designed to provide you with pointers in caring for Alzheimer’s patients, as well as to acquaint you with several new services designed to help both professional and family caregivers manage Alzheimer’s and other dementia patients. Click the following link to view the complete 43 page caregiver packet: Family Caregiver Packet.

Links to each section of the caregiver packet are listed below:

Letter to Caregiver

  DETA Speakers' Service

  Caregiver Bill of Rights

  Fact Sheet on Mental Health in the Elderly

  Fact Sheet on Dementia

  Alzheimer's Support Groups in Alabama

  Popular Handouts, Fact Sheets, and Videotapes

  Alzheimer's/Dementia Helpline

  Tips for the Caregiver

  Fact Sheet on Driving and Dementia

  Activity Ideas

  Fact Sheet on End-of-Life Issues

  Tips on Medical Visits for your Dementia Patient

  Fact Sheet on Delirium in the Elderly

  Fact Sheet on Dementia for Dentist

  Fact Sheet on Depression in the Elderly

  Fact Sheet on Alcoholic Dementia

  Medical Causes of Bruising and Skin Tears in the Elderly

  Fact Sheet on Frontotemporal Dementia (FTD)

  Fact Sheet on Vascular Dementia

  Fact Sheet on Diffuse Lewy Body Disease (DLBD)

  Fact Sheet on Psychosis

  Fact Sheet on Falls

F2. Information for Family Caregivers

A. Welcome to the DETA care family site. Families are the backbone of our nation’s caregiver system. Everyone who participates in family life may become a caregiver. This site includes a broad-range of information to assist family caregivers in this journey of love and commitment. Thank you for caring for these valuable human beings. Whatever your spiritual belief, someone is recording your many unwitnessed acts of kindness and devotion to the person with dementia.

 

A1. Just the Facts for Family Caregivers

A2. Types of Dementia

A3. Learn More about Dementia

A4. Legal Issues for Dementia

A5. Help from Your Pastor

A6. Finding an Appropriate Nursing Home

A7. Basic Behavioral Management Techniques

A8. Research Issues

A9. Alzheimer's and Dementia Resources

B. List of Fact Sheets (at end of each fact sheet link should say “more information” – this link will take them to handouts (b).

Activity Ideas - 2055

Aggression- 2008

Aging and Mental Retardation-

Agitation - 2006

Alcohol Abuse in the Elderly - 6001

Alcoholic Dementia - 6001

Behavioral Checklist for Dementia Patients - 2009

Caregiver Bill of Rights -

Communication Tips When Interacting with Dementia Patients

Delirium in the Elderly - 11001

Dementia and Driving – 2002, 2007, 2018

Dementia Fact Sheet - 2003

Dementia for Dentists - 2050

Dementia for Probate Judges and Attorneys

Depression in the Elderly – 8000,8001,8004,2043

Diffuse Lewy Body Disease - 4001

Dementia for Pastors - 2051

End-of-Life Issues for Dementia Patients – 2046, 2047, 2044

Falls - 2017

Family Communication – 2059

Frontotemporal Dementia - 14000

Hydration - 2035

Medical Causes of Bruising and Skin Tears in the Elderly-2020

Nutrition - 2033

Pain Management - 2049

Prescription Drug Abuse in the Elderly – 6000,6007

Psychosis in the Elderly

Substance Abuse in the Elderly - 6000

Tips on Medical Visits for Dementia Patients -

Transfers of Dementia Residents -

Vascular Dementia - 3003

Wandering - 2022

Weight Loss- 2023, 2004

C. Handouts

|6001. Alcohol-Induced Dementia | | | | | |

|2007. Asking a Patient to stop driving | | | | | |

|11001. Assessment and Management of Delirium | | | | |

|2006. Assessment of Agitation in the Nursing Home Patient | | |

|2056. Caregiver Packet | | |

|2059. Communication tips for dementia patients | | |

|2004. Comprehensive Multidisciplinary assessment of the demented nursing home resident with weight loss |

|2003. Dementia | | | | | | |

|2002. Dementia and Driving | | | | | |

|2050. Dental Care and the Dementia Patient | | | | | |

|4001. Diffuse Lewy body Disease | | | | | |

|2046. End of Life Issues | | | | | | |

|2047. Financial Decisions and Dementia | | | | | |

|14000. Frontotemporol Dementia | | | | | |

|6000. Geriatric Substance Abuse | | | | | |

|2033. Hydration Fact Sheet | | | | | |

|8004. Important Facts About Common Antidepressants Prescribed for Elders |

|2043. Medications Advisory for Patients with Alzheimer's Disease |

|2044. Legal Definitions |

|2049. Management of Pain in Persons with Dementia |

|2009. Managing Behavioral Symptoms of Dementia-handbook | | |

|2035. Nutrition Fact Sheet | | | | | |

|2051. Pastoral Care and Dementia | | | | | |

|2008. Pharmacological Mgt. for Aggression in the Nursing Home |

|8000. Pharmacological Treatment of Depression in the Elderly |

|8001. Pharmacological Treatment of Depression in the Elderly Nursing Home Resident |

|2017. Prevention of Falls in the Dementia Resident | | | | |

|2055. Recreational Activity for the Dementia Patient |

|6007. Substance Abuse Fact Sheet | | | | | |

|1000. Successful Aging for Persons over age 65 | | | | | |

|2018. Ten Questions that police and family should ask about driving and dementia |

|2020. The Use of Restraints with Demented Patients |

|3003. Vascular Dementia | | | | | |

|2022. Wandering and the Dementia Patient | | | | | |

|2023. Weight Loss in the Dementia Patient | | | | | |

F3. Picture Gallery

a. list of pictures (already on site)

Welcome to the DETA picture gallery. A picture is worth a thousand words, especially for persons with dementia. This section contains pictures that show the types of damage seen in common forms of dementia at both the gross and microscopic level. Additional pictures are available through the DETA picture books by calling 1-800-457-5679.

Brains are removed from patients at autopsy to confirm a clinical diagnosis and assist scientist in discovering the causes of dementia. The brains are examined intact and then sliced into sections for internal inspection. Pieces of brain are sent for examination with the microscope. The pathological diagnosis of dementia requires both the gross and microscopic examination of brain tissue. This picture gallery contains samples of both kinds of examinations.

F4. Prevention – (take to section K).

F5. Sub-Specialty Care (changing name of this section) – need paragraph describing content of this section and listing sections a-d.

b. Hospice

c. Home Health

d. Hospital Care

e. ALF Care

f. Nursing Home

F6. Support Groups

a. Resources

• Alabama Services by County

A county-by-county listing of support groups, adult day care centers, nursing and special care facilities, and other services for caregivers and patients with Alzheimer's or other dementia.

 

• Alabama Support Groups

Listings of Alzheimer's and mental illness support groups and consumer advocacy organizations in Alabama, meeting places, days, times, and contact persons or call the Dementia Education & Training Program at 1-800-457-5679.

 

• Associations and Organizations in Alabama

Information on Alzheimer's and mental health associations and organizations in Alabama.

 

• Community Resources

Information on adult day care centers and community mental health centers in Alabama.

 

• Family Caregiver Packet

The Family Caregiver Packet is a resource provided by Dr. Richard Powers, Director of the Bureau of Geriatric Psychiatry, and the Dementia Education and Training Program.

 

• Governmental Resources

Information on services and programs available through the Alabama Dept. of Human Resources, Dept. of Mental Health, and Dept. of Senior Services.

 

• Residential/In-Patient Services

Listings of dementia units in skilled nursing facilities, geriatric in-patient psychiatric units/programs, and specialty care assisted living facilities (SCALFs).

g. Links

7 DETA Trainer - this section has a username a password. Available in this section will be daily uploads of information, contact information for trainers only, trainer pictures and files, chat room thread.

Summary: The DETA program includes a network of trainers throughout Alabama who can provide local training programs to all interested groups. The DETA trainers are professionals who have extensive past history experience in the care of persons with dementia. The trainers have undergone rigorous training through the DETA program and passed a DETA certification test. These persons are equipped with the DETA training materials and provide accurate up-to-date information about dementia and associated problems.

8 Healthcare Professional

H1. DETA Doc

Welcome to the DETA Web site for professional healthcare workers. This site contains information for licensed healthcare professionals as well as healthcare workers who provide direct care to persons with dementia. The advanced tract is appropriate for persons with extensive healthcare backgrounds, including registered nurses, social workers, etc. The basic tract includes information for certified nursing assistants, resident care assistants, and home health aids.

a. Just the Facts for Health Care Professionals

b. A Short Practical Guide to Psychotrpic Mediactions for Dementia Patients

This booklet contains general principles of psychoactive medication prescription for elders with dementia.

c. Dementia Learning Module:Workforce Competency in Dementia Management

This manual is broken down into six educational modules for the education and training of nursing home staff caring for dementia patients.

d. Managing Behavioral Symptoms

Welcome to the behavioral management site for persons with dementia. Many dementia victims exhibit behavioral problems in the middle or later stages of the disease. Proper assessment is the first step. Management strategies begin with behavioral intervention and may include medications. Information is provided for basic management or advanced treatment strategies.

  d1. Just the Facts for Behavioral Management

d2. Basic Behavior Management

d3. Advanced Behavioral Management

d4. Managing Behavioral Symptoms Handbook

e. Prevention (take to section K)

f. Screening

g. Dementia Other than Alzheimer’s

h. Safe Hospitals

H2. Mental Health

Welcome to the DETA Mental Health site for older persons. Mental health, i.e., psychiatric problems, are common in persons over the age of 65. Many medical problems produce psychiatric problems in the older patient. This site discusses common mental illnesses such as schizophrenia, mania, and substance abuse in persons over 65.

 

H2a. Just the Facts for Mental Health

H2b. Disorder Specific Information

H2c. Facts for Community Providers

H3. Licensed Professional –

Click on your profession below have basic knowledge about dementia from school, from training or from professional school.

 

H3a. Administrators

H3b. Dietician

H3c. Nurses

a. RN

b. CPN

H3d. Nurse Practitioner

H3e. Pastors

H3f. Pharmacist

H3g. Physical Therapist

H3h. Recreational Therapist

H3i. Social Workers

H4. Un-licensed Professional

H4a. sitters

H4b. personal care attendant

H4c. CNA

J. DO YOU THINK YOU HAVE ALZHEIMER’S? (Handout J)

2 Do you think you have Alzheimer’s?

Welcome to our resource for people who may have a memory problem or want to avoid developing dementia. There is hope for the prevention or treatment of memory loss. No cures exist for Alzheimer’s disease but many treatments slow the loss of intellectual functions.

JUST THE FACTS:

1. Memory complaints are common in people over age 65.

2. Health problems can cause memory disorders.

3. Dementia is the loss of multiple intellectual functions.

4. Many diseases cause dementia.

5. Don’t conclude that you have dementia unless you undergo a careful evaluation.

6. Some dementias get worse and others do not.

7. Alzheimer’s disease is the most common type of dementia in persons over age 65.

8. New treatments exist that slow memory loss in Alzheimer’s disease.

9. Prevention and preparation are the keys to helping memory problems.

10. There is hope for people with memory disorders.

WHAT CAN I DO IF I BELIEVE I MIGHT HAVE ALZHEIMER’S DISEASE?

1. Seek an evaluation from a trained specialist.

2. Complete all tests requested by your specialist.

3. Follow the instructions of your specialist.

4. Stay intellectually active.

5. Avoid excess alcohol, i.e., more than 1 oz. per day.

6. Control heart disease, high blood pressure, and diabetes.

7. Exercise on a regular basis.

8. Return for follow-up exams.

9. Stay positive. Although 10% of people over age 65 develop dementia, 90% of people over age 65 are intellectually intact.

10. Practice physical, mental, and spiritual wellness.

3 Educators

The DETA program and Alabama’s caregiving families welcome all teachers who want to learn about dementia and successful aging. Educators play an important role in preparing our country for the aging of America. This web-site contains detailed information about teaching courses on successful aging and caregiving, as well as background information on a wide range of issues associated with dementia or mental illness in the elderly. The teaching programs are provided free to Alabama’s citizens and at cost to individuals outside our state.

 

Ja, Just the Facts for Teachers/Educators

 

Jb. Programs for Middle Schools

 

Jc. Programs for High Schools

Jd. Programs for Technical/Vocational Schools

1 Prevention

K1. Consumer – welcome summary

Welcome to the dementia prevention website. This resource contains information on ways to reduce your risk for intellectual decline as you grow older. A parallel site is available for your doctor that explains our recommendations on preventing dementia. The doctor’s website (DETA.DOC) contains detailed information and scientific resources for your physician. (CLICK HERE TO SEE MORE INFORMATION ON PREVENTING DEMENTIA)

K1a. Ten Commandments of Dementia Prevention

K1b. Successful Aging

K1c. Understanding Your Genes and Dementia

K1d. Dementia Risk Checklist

K1e. Consumer Guides to Preventing Dementia (take to section L)

K1f. Dementia Prevention Library (take to section L)

K2. Physician – welcome summary

K2a, Dementia Prevention Library (take to section L)

K2b. Theories of Neurological Aging and Dementia

K2c. Physician Checklist on Dementia Risk Factors

K2d. Physician Dementia Prevention Guide

K3. Do you want to know more about Dementia in African Americans? – welcome summary

K3a. Understanding Dementia in African Americans

K3a1. Health Professionals

K3a2. Consumers

K3b. Medical Issues on Prevention of Dementia in African Americans

K3b1. Risk Inventory

K3b2. Facts Sheets

K3b3. Physician Dementia Prevention Guide

K3c. Other Prevention Information

K3c1. Ten Commandments

K3c2. Successful Aging

K3c3. Checklist

K3c4. Quick Facts for Dementia in African Americans

2 Dementia Prevention Library (located on right side of home page) – Welcome

L1. Consumer Guides

L1a. Keep a Healthy Body for a Healthy Mind

L1b. Life Choices for Good Brain Health

L1c. Drinking and Thinking

L1d. Minding Your Doctor

L2. Physician Guides

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