MC
TYA Board – Minutes of Meeting
|24th February 2016 |
|Location: Christie Trust Administration, meeting room 3. |
|Time: 2-4pm |
|Attendance |Representation |
|Michael Leahy |Pathway Director |
|Deborah Sullivan |Lead Cancer Nurse, ELTH |
|Wiebke Appel |LTHTR Lead TYA clinician |
|Margaret Rokicka |TYA Lead Clinician ELTH |
|Maggie Parkman |Lead Cancer Nurse Stockport |
|Charlene Jones |Clinical liaison nurse specialist, TYA. Christie Hospital |
|Apologies | |
|Jonathan Vickers |Lead Clinician, SRFT |
|Julie Orford |TYA Lead Nurse UHSM |
|Rick Brough |TYA Lead Clinician SFT |
|Mark Grey |TYA Lead Clinician BFW |
|David Fyfe |Morecambe |
|Deborah Loftus |Lead Nurse End of Life Care BFW |
|Michelle Eden-Yates |TYA Lead Clinician SRFT |
|Jessica Jones |BFW TYA Lead Nurse |
|Angela Dixon |CLIC Sargent Social Work Team Leader |
|Kerrie Waterhouse |TYA MDT Coordinator Christie |
|Anne Tomlinson |LTHR |
|Paul Hickey |CNS SRFT |
|Sally Lees |Pennine Acute Lead TYA Nurse |
|Sarah Burns |TYA Lead Clinician CMFT |
|Louise Pennington |TYA CNS Manchester |
|David Wright |CHRISTIE TYA Lead Nurse |
|Satarupa Choudhri |TYA Lead Clinician Pennine |
In Attendance:
James Leighton, Acting Associate Director Manchester Cancer
Hodan Noor, Pathway Manager, Manchester Cancer
Tanya Humphreys, Macmillan User Involvement Lead, Manchester Cancer
Janet Thomas, SCN
|Agenda Item |Action |
|Apologies | |
|Apologies were noted | |
|Minutes from the last meeting and matters arising | |
|Minutes could not be agreed as accurate as the meeting was not quorate | |
|ToR – Identify leads | |
|Early diagnosis – HN introduced Dr Choudhuri to the Vanguard programme and Manchester Cancer Managers responsible for the | |
|development of the early diagnosis agenda. | |
|Objective 1- Improving outcomes/survival rates | |
|Draft TYA development of annual plan 2015/16 | |
|Members discussed the draft annual plan, it was agreed to include Education and to roll out TYA master class and general role of | |
|TYA. | |
|TH proposed to include user involvement; the focus group held identify key areas that would be relevant for the group to take | |
|forward. | |
|Due to the low numbers members felt Health and Wellbeing clinics are not useful to run solely in each area however there is an | |
|opportunity to include PTC services survivorship course residential to be hosted in Preston. | |
| | |
|Reports from TYA Leads | |
|WP update in Lancashire; The peer review is compliant regarding representation of the key members, there is better contact with | |
|patients and the support they get from the team have been positive. There are some challenges with the Nero team but with the | |
|improved links with CNS should build a better referral and communications. CJ job role has changed, her role is currently being | |
|advertised with possible gaps 2 to 3 months service provision in Lancashire and south Cumbria however there is a care co-ordinator | |
|who will capture those young people and DW and CJ can provide telephone service. However the one2one at diagnosis and face to face | |
|support will not be available, the youth worker and social workers will still remain in contact. | |
|MP update in Stockport; notifications are improving neuro-endocrine notifications are still an issue particularly colorectal. | |
|Update; Pennine raised concerns in relation to not receiving notifications from the PTC however it has been identified only 4 | |
|patients have been referred by Pennine last year this could be due to the low number of referrals. | |
|Objective 2- Improve Patient Experience | |
|Manchester Cancer User Involvement | |
|TH informed members there are engaged young people who could nominate a representative to attend this board and the group can work | |
|as a small community to discuss issues affecting them. ML raised concerns with regards to lack of engagement and low attendance can | |
|demotivate however on reflection the members felts it would be useful to have representatives in this group at the net meeting. | |
|Objective 3- Research and clinical innovation | |
|Clinical Trials report | |
|Quarter 3 report was discussed and was identified the numbers being low as Some of the studies are not open in the Manchester Cancer| |
|and some are individually open in different areas, also the research activity in Mid Cheshire is recorded under Liverpool. | |
|Objective 4- Improving and standardising high quality care across the whole service | |
|Peer review: Member to begin planning and share the draft annual plan and report of the board. | |
|TYA quality standards update – Members agreed there are no further standards ti include other than what is nationally mandated, | |
|identifying new standards will also require resource to move forward. | |
|Review of operational policy update of TYA Directory: DL leave in March from Blackpool, CJ moved from Lancashire to Manchester area.| |
|Manchester Cancer Vanguard update |[pic] |
|HN provided an overview of Cancer Vanguard detail presentation attached . | |
| | |
|The proposal for a Cancer vanguard initiative was developed through Manchester Cancer Provider Board, The Christie and Trafford CCG | |
|( as lead cancer commissioner). This was fully supported and submitted () and was announced as| |
|being successful in September 2015. Approval of the vanguard was dependent on the GM team working in partnership with 2 similar | |
|scale applications covering all of Greater London, and this has now been formally agreed. | |
| | |
|There is now a single national cancer vanguard to explore new models of delivering care to cancer patients: the London partners are| |
|The Royal Marsden NHS Foundation Trust and University College Hospitals London NHS Foundation Trust (UCLH), who lead South London | |
|and North London collaborations respectively. Since the GM proposal covers 3 million people, the vanguard provides additional scale | |
|taking the total combined population to over 10 million residents. The national vanguard approach provides opportunities to share | |
|learning and expertise in piloting changes to the cancer healthcare system, but still allows for GM to develop a local approach to | |
|transformation. | |
| | |
|The vanguard provides Greater Manchester with the opportunity to radically restructure both the commissioning and provision of | |
|cancer care across the entire patient pathway in order to realise fundamental improvements in clinical outcomes and patient | |
|experience and to also secure long term financial and clinical sustainability. This work will form a key transformational work | |
|stream in the Devolution Manchester programme and will complement the new organisational forms and functions currently being | |
|considered. | |
| | |
|The cancer vanguard is a two year programme and includes Living with and beyond/supportive care and palliative care as part of the 6| |
|work streams described below. The work streams will include commissioners, providers, professionals and people affected by cancer. | |
|A.O.B | |
|Date and time for the next meeting to be confirmed | |
|25th May – possible date for the next meeting | |
| | |
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