Disability and the Life Course Global Perspectives

[Pages:18]Disability and the Life Course Global Perspectives

Edited by Mark Priestley

published by the press syndicate of the university of cambridge The Pitt Building, Trumpington Street, Cambridge, United Kingdom

cambridge university press The Edinburgh Building, Cambridge CB2 2RU, UK 40 West 20th Street, New York, NY 10011?4211, USA 10 Stamford Road, Oakleigh, Melbourne 3166, Australia Ruiz de Alarco? n 13, 28014 Madrid, Spain Dock House, The Waterfront, Cape Town 8001, South Africa



# Cambridge University Press 2001

The book is in copyright. Subject to statutory exception and to the provisions of relevant collective licensing agreements, no reproduction of any part may take place without the written permission of Cambridge University Press.

First published 2001

Printed in the United Kingdom at the University Press, Cambridge

Typeset in Plantin 10/12pt System 3b2 [c e ]

A catalogue record for this book is available from the British Library

Library of Congress Cataloguing in Publication data Disability and the Life Course: Global Perspectives / edited by Mark Priestley.

p. cm. Includes bibliographical references and index. ISBN 0 521 79340 8 (hardback) ? ISBN 0 521 79734 9 (paperback) 1. Handicapped. 2. Handicapped ? Social conditions. 3. Handicapped ? Cross-cultural studies. I. Priestley, Mark, 1963? HV1568.D5673 2001 305.9'0816?dc21 00?065156

ISBN 0 521 79340 8 hardback ISBN 0 521 79734 9 paperback

Contents

List of ?gures List of tables Notes on contributors Preface Acknowledgements A brief note on terminology

page ix x xi xv

xvi xvii

I Concepts

1 Introduction: the global context of disability

3

mark priestley

2 Repositioning disability and the life course: a social claiming

perspective

15

sarah irwin

3 Marginalisation and disability: experiences from the

Third World

26

anita ghai

4 Where do we draw the line?: surviving eugenics in a

technological world

38

gregor wolbring

5 A complicated struggle: disability, survival and social change

in the majority world

50

emma stone

II Methods and stories

6 Life event histories and the US independent living movement 67 devva kasnitz

7 A journey of discovery

79

swapna mcneil

vii

viii

Contents

8 Using life story narratives to understand disability and

identity in South Africa r u t h m o r g a n

89

9 Social change and self-empowerment: stories of disabled

people in Russia

101

elena iarskia-smirnova

10 Lifting the Iron Curtain k a i d o k i k k a s

113

11 Revisiting deaf transitions

123

mairian corker

12 The hidden injuries of `a slight limp'

136

devorah kalekin-fishman

III The politics of transition

13 Disabled children: an emergency submerged

151

s u e p h i l p o t t and w a s h e i l a s a i t

14 Failing to make the transition? Theorising the `transition to

adulthood' for young disabled people

167

kay tisdall

15 Breaking my head in the prime of my life: acquired

disability in young adulthood

179

allison rowlands

16 Work and adulthood: economic survival in the majority

world m aj id tu r m u s a ni

192

17 The possibility of choice: women with intellectual

disabilities talk about having children

206

k e l l e y j o h n s o n , r a n n v e i g t r a u s t a d o? t t i r ,

l y n h ar r i s o n , l y n n e h i l l i e r and

h a n n a b j o? r g s i g urj o? n sd o? tt i r

18 Ageing with disability in Japan

219

miho iwakuma

19 Ageing with intellectual disabilities; discovering disability

with old age: same or different?

231

nancy breitenbach

20 Epilogue m ar k p r i e s tl e y

240

Index

249

Figures

5.1 Revised version of the `deprivation trap'

page 53

6.1 Life course event history model

69

6.2 Multiple linear life course model

70

6.3 Model Key

72

6.4 Barbara's life event history

72

6.5 Annette's life event history

73

6.6 John's life event history

73

13.1 Signi?cant factors to be addressed if the rights of disabled

children are to be protected, and their full potential realised 159

13.2 Felicity's picture

162

13.3 Langalihle's picture

163

15.1 Competing discourses of human services

187

ix

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