2020 eport Caregiving in the U.S. - AARP
RESEARCH REPORT
2020 Report
Caregiving
in the U.S.
Conducted by
MAY 2020
Bottom left cover photo courtesy of Mediteraneo/stock..
Acknowledgments
The National Alliance for Caregiving (NAC) and AARP are proud to present Caregiving in the U.S. 2020.
Many people played important roles throughout the research process, including:
C. Grace Whiting, JD, President and Chief Executive Susan Reinhard, PhD, Senior Vice President
Officer, National Alliance for Caregiving
and Director, AARP Public Policy Institute
Patrice A. Heinz, Vice President, Strategy &
Operations, National Alliance for Caregiving
Lynn Friss Feinberg, MSW, Senior Strategic
Policy Advisor, AARP Public Policy Institute
Gabriela Prudencio, MBA, Hunt Research Director,
National Alliance for Caregiving
Laura Skufca, MA, Senior Research Advisor,
AARP
Michael R. Wittke, BSW, MPA, Senior Director,
Robert Stephen, MBA, Vice President, Health
Public Policy and Advocacy, National Alliance for
& Caregiving, AARP Programs
Caregiving
Rita Choula, MA, Director, Caregiving Projects,
AARP Public Policy Institute
ADVISORY PANEL
Mar¨ªa P. Aranda, PhD, Associate Professor and Executive Director, USC Edward R. Roybal Institute
on Aging, USC Suzanne Dworak-Peck School of Social Work
Joseph E. Gaugler, PhD, Robert L. Kane Endowed Chair in Long-Term Care and Aging and Professor,
School of Public Health, University of Minnesota
Carol Levine, MA, Senior Fellow, United Hospital Fund, New York City (former Director of UHF
Families and Health Care Project)
Feylyn Lewis, PhD, Research Fellow, University of Sussex
David Lindeman, PhD, Director Health, Center for Information Technology Research in the Interest
of Society (CITRIS), UC Berkeley; Director, Center for Technology and Aging (CTA)
Nancy E. Lundebjerg, MPA, Chief Executive Officer, American Geriatrics Society
Steve Schwab, CEO, Elizabeth Dole Foundation (with special thanks to Laurel Rodewald)
Regina A. Shih, PhD, Senior Policy Researcher, RAND Corporation
The research was conducted by Greenwald & Associates with study direction by Lisa Weber-Raley,
Senior Vice President, and project support from Karina Haggerty, Rashanda McLaurin, and Christina
Baydaline. ()
This research was made possible through generous sponsorship from:
AARP
Best Buy Health Inc. d/b/a GreatCall
EMD Serono Inc.
Home Instead Senior Care?
TechWerks
The Gordon and Betty Moore Foundation
The John A. Hartford Foundation
Transamerica Institute
UnitedHealthcare
(c) 2020 NAC and AARP
Reprinting with permission
CAREGIVING IN THE U.S. 2020
i
ii
CAREGIVING IN THE U.S. 2020
Table of Contents
ACKNOWLEDGMENTS...............................................................................................................................................i
Advisory Panel........................................................................................................................................................i
I. INTRODUCTION........................................................................................................................................................ 1
Overview of Methodology.................................................................................................................................. 1
Reading This Report............................................................................................................................................3
II. EXECUTIVE SUMMARY......................................................................................................................................4
III. DETAILED FINDINGS..........................................................................................................................................9
A. Prevalence of Caregiving...............................................................................................................................9
B. Basics of the Caregiving Situation.............................................................................................................10
C. Care Recipient Living Situation..................................................................................................................21
D. Care Recipient¡¯s Condition.......................................................................................................................... 24
E. Caregiving Activities and Level of Care.................................................................................................. 30
F. Presence of Other Help..................................................................................................................................41
G. Well-Being of Caregivers............................................................................................................................. 47
H. The Financial Situation of Caregivers..................................................................................................... 56
I. Impact of Caregiving on Work................................................................................................................... 62
J. Services, Support, and Information ..........................................................................................................71
K. Technology .................................................................................................................................................... 82
L. Long-Range Planning .................................................................................................................................. 86
M. Respondent Profile ..................................................................................................................................... 89
Figures
Figure 1.
Figure 2.
Figure 3.
Figure 4.
Figure 5.
Figure 6.
Figure 7.
Figure 8.
Figure 9.
Figure 10.
Figure 11.
Figure 12.
Figure 13.
Figure 14.
Figure 15.
Figure 16.
Figure 17.
Prevalence of Caregiving by Age of Care Recipient, 2020 Compared to 2015..............................4
Estimates of Population Prevalence by Age of Recipient...................................................................9
Caregiver Age..............................................................................................................................................10
Caregiver Gender........................................................................................................................................ 11
Percentage of Caregivers of Adults Who Are in Each Generation, 2020 vs. 2015...................... 11
Current Versus Past Care..........................................................................................................................12
Number of Care Recipients......................................................................................................................12
Percentage Caring for Two or More Adults, by Caregiver Age....................................................... 13
Gender of Care Recipient.......................................................................................................................... 13
Care Recipient Age.....................................................................................................................................14
Care Recipient Generation........................................................................................................................14
Age of Main Care Recipient by Age of Caregiver.............................................................................. 15
Care Recipient Relation to Caregiver.....................................................................................................16
Care Recipient Relation to Caregiver by Caregiver Age................................................................... 17
Duration of Care.........................................................................................................................................18
Choice in Taking on Caregiver Role......................................................................................................19
Care Recipient Living Alone....................................................................................................................21
CAREGIVING IN THE U.S. 2020
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