«Name» - TS Alliance
Derek Bauer Health Care Professional Home:
409 Pickett Lane Adult with TSC Home Fax:
Potomac, MD 20854 Email: derekandcoreybauer@
Cell: (901) 289-3956
Assistant Professor of Neurology
University of Virginia Business: (434) 924-7134
PO Box 800394 Business Fax: (434) 982-1726
Charlottesville, VA 22908 Business Email: db2mr@virginia.edu
Julie Blum Parent Home: (301) 765-2148
7828 Stable Way Home Fax:
Potomac, MD 20854 Email: blumlinsin@
Cell: (301) 938-7602
Lawyer
Hollingsworth LLP Business: (202) 898-5829
1350 I Street NW Business Fax:
Washington, DC 20005 Business Email: jblum@
Matt Bolger Parent Home: (517) 749-0959
3420 Donamere Drive Home Fax:
Lansing, MI 48906 Email: BolgerM1@
Michigan State Police Business: (517) 284-3699
Human Resource Division Business Fax: (517) 336-3336
7150 S. Harris Drive Business Email: BolgerM@
Dimondale, MI 48821
Edward “Chip” Burkhalter Parent Home: (571) 218-2191
4108 N. Garland Street Home Fax:
Lansing, MI 48906 Email: cburkhal@
Head of Government Relations
Shield AI
Mark Carroll Parent Home: (408) 718-6625
12414 Ted Ave Home Fax:
Saratoga, CA 95070 Email: carrollx@
Project Kuiper
Amazon
Sara Chieffo Parent Home: (202) 413-9125
207 9th St SE Home Fax:
Washington, DC 20003-2112 Email: sarachieffo@
Cell: (202) 413-9125
Vice President, Government Affairs Business: (202) 454-4581
League of Conservation Voters Business Fax: (202) 835-0491
1920 L St NW, Suite 800 Business Email: sara_chieffo@
Washington, DC 20036
David Coit Relative Home: (207) 799-3731
30 Reef Rd Home Fax:
Cape Eliz, ME 04107-2822 Email: dcoit@
Founder & President Business: (207) 772-4470
North Atlantic Capital Corporation Business Fax: (207) 772-3257
Two City Center Business Email: dcoit@
Portland, ME 04101
Margaret Cox Parent Home: (504) 858-8229
4918 Reynolds Ln Home Fax:
Vestavia, AL 35242-7417 Email: margaretgcox@
Peter Crino MD, PhD Health Care Professional Home: (215) 908-9288
(Chair)
743 Lippincott Ave Home Fax:
Moorestown, NJ 08057-1907 Email: pcrino@som.umaryland.edu
Professor and Chair, Department of Neurology Business: (410) 328-2172
University of Maryland School of Medicine Business Fax:
110 South Paca St Business Email: pcrino@som.umaryland.edu
Baltimore, MD 21201
Tim Dills Parent Home: (703) 444-9512
11548 Tralee Drive Home Fax: (703) 444-9534
Great Falls, VA 22066 Email: tim.dills@
President/CEO Business: (703) 581-6260
LinQuest Corporation
15059 Conference Center D
Suite 150 Chantilly, VA 20151
Andrew Duffy Parent Home: (416) 626-7720
(International Partner Member)
272 Markland Dr
Toronto, ON M9C 1R7 Canada
Consultant Business: (416) 868-7978
Mercer Business Fax: (416) 868-9634
120 Bremner Boulevard, Suite 800 Business Email: Andrew.Duffy@
Toronto, ON M5J 0A8 Canada
Bonnie Hogue Duffy Friend Home: (301) 657-4464
3707 Village Park Drive Home Fax:
Chevy Chase, MD 20815 Email: Bonnie.H.Duffy@
Cell: (202) 615-5122
Senior Advisor
NVG, LLC Business:
1150 17th Street NW, #400 Business Fax:
Washington, DC 20016 Business Email:
Tanjala Gipson Health Care Professional Home: (410) 382-1580
8706 Sandy Hill Cv E Home Fax:
Cordova, TN 38018 Email:
Cell:
Associate Professor
University of TN Health Sciences Center Business: (901) 287-7337
711 Jefferson Ave Business Fax:
Memphis, TN 38105 Business Email: tpipson@uthsc.edu
Steven Goldstein Relative Home: (203) 222-9377
4 Lakeview Road Home Fax: (203) 341-0127
Westport, CT 06880 Email: sjgoldy88@
Cell: 917-658-6056
Chief Financial Officer.
Structure Tech NY Business: 914-297-4914
500 Seventh Ave. Floor 10B Business Fax:
New York, NY 10018 Business Email: sgoldstein@
Rob Grandia Adult with TSC, Parent Home: (951) 697-8851
8754 Flatiron Ct Cell: (714) 514-3111
Riverside, CA 92508-3289 Email: robgrandia@
Dana Holinka Parent Home: (303) 255-7093
11871 McCrumb Dr Cell: (303) 907-8097
Northglenn, CO 80233-1296 Email: emme01@
Direct Service Provider Business: (303) 233-3122
P.A.S.C.O. Business Fax:
9197 W 6th Ave, Suite 1000 Business Email:
Lakewood, CO 80215
Bill Joseph (Vice Chair) Parent, Grandparent Home: (814) 933-2069
911 Lillian Circle Cell: (814) 933-2069
State College, PA 16801 Email: bill.joseph57@
First National Bank of Pennsylvania Business: (814) 235-5305
Regional Manager, Senior Vice President Business Fax:
Commercial Banking Business Email: joseph@fnb-
117 S. Allen Street
State College, PA 16801
Jessica Krefting Health Care Professional Home: (205) 563-4791
157 Equestrian Lane Home Fax:
Mason, OH 45040 Email: jessicakrefting@
RN, TSC Clinic Coordinator & Research Nurse Coordinator
UAB Epilepsy Center Business: (256) 533-0833
1720 7th Ave S, Suite 350E Business Fax: (205) 996-0450
Birmingham, AL 35233 Business Email: jessicakrefting@uabmc.edu
Darcy A. Krueger Health Care Professional Home: (513) 509-3522
6236 Socialville Foster Road Home Fax:
Mason, OH 45040 Email: darcy@
Cell:
Director, Tuberous Sclerosis Clinic
Cincinatti Children’s Hospital Medical Center Business: (513) 636-4222
3333 Burnet Ave., ML#2015 Business Fax: (513) 636-1888
Cincinnati, OH 45229 Business Email: darcy.krueger@
Heather Lens Parent Home: (941) 416-2250
67589 S. 4730 Home Fax:
Westville, OK 74965 Email: heather.lens@
Cell:
Self-Employed; Sales Business: (918) 205-8863
2121 S. Columbia Ave Business Fax:
Tulsa, OK 74132 Business Email: heather@
Jim Maginn Grandparent Home:
739 31st Street Home Fax:
Manhattan Beach, CA 90266 Email: jmaginn7@
Cell: (310) 874-4047
Laura Marks (Secretary) Parent Home: (347) 808-0784
67-66 108th St. Apt D36 Home Fax:
Forest Hills, NY 11375 Email: ljmarks@
Cell:
Executive Director
Louis and Nancy Dupree Foundation
Afghanistan Centre at Kabul University Business: (917) 546-9369
954 Lexington Avenue, #118 Business Fax:
New York, NY 10021 Business Email: lmarks@
Diane McSwain Grandparent Home: (815) 455-1022
213 Shipland Dr Home Fax:
Crystal Lake, IL 60012 Email: dianemcswain@
Cell: (815) 382-8551
Chris Russell (Immediate Chair) Parent Home (cell): (972) 533-0898
623 Canemount Lane Home Fax: 972-471-5522 (call first)
Coppell, TX 75019-2590 Email: chris.russell@
CEO, Spire Hospitality Business Cell: (972) 533-0898
129 S Main St, Suite 260 Business Fax:
Grapevine, TX 76051 Business Email:(Preferred) crussell@
Mustafa Sahin Healthcare Professional Home: (781) 449-8663
47 Hemlock St. Home Fax:
Needham, MA 02492 Email: mustafa.sahin@childrens.harvard.edu
Professor of Neurology, Harvard Medical Business: (703) 413-1100
School, Director of Translational Neuroscience Business Fax:
Center, Boston Children’s Hospital (BCH) Business Email: mustafa.sahin@childrens.harvard.edu
300 Longwood Avenue, CLS 14073
Boston, MA 02115
Sean Shillinger Parent Home: (240) 315-5201
5905 Union Ridge Dr. Home Fax:
Adamstown, MD 21710 Email: sshillinger@
Frederick Memorial Hospital Business: (240) 379-6066
Population Health IT Supervisor Business Fax: (240) 379-6070
Business Center Business Email: sshillinger@
700 Toll House Ave
Frederick, MD 21701
Matthew Simonian Corporate Partner Home: (832) 517-1995
12703 Kinkaid Meadows Ln Home Fax:
Humble, TX 77346-8263 Email: matthewsimonian@
Head of Epilepsy Portfolio Evaluation
UCB Business:
Business Fax:
Business Email: matthew.simonian@
Vanessa Vazquez Parent Home: (305) 498-2366
12249 SW 121 Terrace Home Fax:
Miami, FL 33186 Email: vazquezv@fiu.edu
Assistant Director
State of FL, Florida International University Business: (305) 498-2366
11200 SW 8th St Business Fax:
Miami, FL 33199 Business Email:
Paul Waxlax (Treasurer) Relative Home: (508) 596-3526
1549 S. Grant St. Home Fax:
Denver, CO 80210 Email: paulwaxlax@
Tara Zimmerman Parent Home: (775) 530-1210
7343 Ulysses Drive Home Fax:
Sparks, NV (972) 368-3098 Email: taraczimmerman@
Program Director Business:
Community Services Agency Business Fax:
Business Email:
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