«Name» - TS Alliance



Derek Bauer Health Care Professional Home:

409 Pickett Lane Adult with TSC Home Fax:

Potomac, MD 20854 Email: derekandcoreybauer@

Cell: (901) 289-3956

Assistant Professor of Neurology

University of Virginia Business: (434) 924-7134

PO Box 800394 Business Fax: (434) 982-1726

Charlottesville, VA 22908 Business Email: db2mr@virginia.edu

Julie Blum Parent Home: (301) 765-2148

7828 Stable Way Home Fax:

Potomac, MD 20854 Email: blumlinsin@

Cell: (301) 938-7602

Lawyer

Hollingsworth LLP Business: (202) 898-5829

1350 I Street NW Business Fax:

Washington, DC 20005 Business Email: jblum@

Matt Bolger Parent Home: (517) 749-0959

3420 Donamere Drive Home Fax:

Lansing, MI 48906 Email: BolgerM1@

Michigan State Police Business: (517) 284-3699

Human Resource Division Business Fax: (517) 336-3336

7150 S. Harris Drive Business Email: BolgerM@

Dimondale, MI 48821

Edward “Chip” Burkhalter Parent Home: (571) 218-2191

4108 N. Garland Street Home Fax:

Lansing, MI 48906 Email: cburkhal@

Head of Government Relations

Shield AI

Mark Carroll Parent Home: (408) 718-6625

12414 Ted Ave Home Fax:

Saratoga, CA 95070 Email: carrollx@

Project Kuiper

Amazon

Sara Chieffo Parent Home: (202) 413-9125

207 9th St SE Home Fax:

Washington, DC 20003-2112 Email: sarachieffo@

Cell: (202) 413-9125

Vice President, Government Affairs Business: (202) 454-4581

League of Conservation Voters Business Fax: (202) 835-0491

1920 L St NW, Suite 800 Business Email: sara_chieffo@

Washington, DC 20036

David Coit Relative Home: (207) 799-3731

30 Reef Rd Home Fax:

Cape Eliz, ME 04107-2822 Email: dcoit@

Founder & President Business: (207) 772-4470

North Atlantic Capital Corporation Business Fax: (207) 772-3257

Two City Center Business Email: dcoit@

Portland, ME 04101

Margaret Cox Parent Home: (504) 858-8229

4918 Reynolds Ln Home Fax:

Vestavia, AL 35242-7417 Email: margaretgcox@

Peter Crino MD, PhD Health Care Professional Home: (215) 908-9288

(Chair)

743 Lippincott Ave Home Fax:

Moorestown, NJ 08057-1907 Email: pcrino@som.umaryland.edu

Professor and Chair, Department of Neurology Business: (410) 328-2172

University of Maryland School of Medicine Business Fax:

110 South Paca St Business Email: pcrino@som.umaryland.edu

Baltimore, MD 21201

Tim Dills Parent Home: (703) 444-9512

11548 Tralee Drive Home Fax: (703) 444-9534

Great Falls, VA 22066 Email: tim.dills@

President/CEO Business: (703) 581-6260

LinQuest Corporation

15059 Conference Center D

Suite 150 Chantilly, VA 20151

Andrew Duffy Parent Home: (416) 626-7720

(International Partner Member)

272 Markland Dr

Toronto, ON M9C 1R7 Canada

Consultant Business: (416) 868-7978

Mercer Business Fax: (416) 868-9634

120 Bremner Boulevard, Suite 800 Business Email: Andrew.Duffy@

Toronto, ON M5J 0A8 Canada

Bonnie Hogue Duffy Friend Home: (301) 657-4464

3707 Village Park Drive Home Fax:

Chevy Chase, MD 20815 Email: Bonnie.H.Duffy@

Cell: (202) 615-5122

Senior Advisor

NVG, LLC Business:

1150 17th Street NW, #400 Business Fax:

Washington, DC 20016 Business Email:

Tanjala Gipson Health Care Professional Home: (410) 382-1580

8706 Sandy Hill Cv E Home Fax:

Cordova, TN 38018 Email:

Cell:

Associate Professor

University of TN Health Sciences Center Business: (901) 287-7337

711 Jefferson Ave Business Fax:

Memphis, TN 38105 Business Email: tpipson@uthsc.edu

Steven Goldstein Relative Home: (203) 222-9377

4 Lakeview Road Home Fax: (203) 341-0127

Westport, CT 06880 Email: sjgoldy88@

Cell: 917-658-6056

Chief Financial Officer.

Structure Tech NY Business: 914-297-4914

500 Seventh Ave. Floor 10B Business Fax:

New York, NY 10018 Business Email: sgoldstein@

Rob Grandia Adult with TSC, Parent Home: (951) 697-8851

8754 Flatiron Ct Cell: (714) 514-3111

Riverside, CA 92508-3289 Email: robgrandia@

Dana Holinka Parent Home: (303) 255-7093

11871 McCrumb Dr Cell: (303) 907-8097

Northglenn, CO 80233-1296 Email: emme01@

Direct Service Provider Business: (303) 233-3122

P.A.S.C.O. Business Fax:

9197 W 6th Ave, Suite 1000 Business Email:

Lakewood, CO 80215

Bill Joseph (Vice Chair) Parent, Grandparent Home: (814) 933-2069

911 Lillian Circle Cell: (814) 933-2069

State College, PA 16801 Email: bill.joseph57@

First National Bank of Pennsylvania Business: (814) 235-5305

Regional Manager, Senior Vice President Business Fax:

Commercial Banking Business Email: joseph@fnb-

117 S. Allen Street

State College, PA 16801

Jessica Krefting Health Care Professional Home: (205) 563-4791

157 Equestrian Lane Home Fax:

Mason, OH 45040 Email: jessicakrefting@

RN, TSC Clinic Coordinator & Research Nurse Coordinator

UAB Epilepsy Center Business: (256) 533-0833

1720 7th Ave S, Suite 350E Business Fax: (205) 996-0450

Birmingham, AL 35233 Business Email: jessicakrefting@uabmc.edu

Darcy A. Krueger Health Care Professional Home: (513) 509-3522

6236 Socialville Foster Road Home Fax:

Mason, OH 45040 Email: darcy@

Cell:

Director, Tuberous Sclerosis Clinic

Cincinatti Children’s Hospital Medical Center Business: (513) 636-4222

3333 Burnet Ave., ML#2015 Business Fax: (513) 636-1888

Cincinnati, OH 45229 Business Email: darcy.krueger@

Heather Lens Parent Home: (941) 416-2250

67589 S. 4730 Home Fax:

Westville, OK 74965 Email: heather.lens@

Cell:

Self-Employed; Sales Business: (918) 205-8863

2121 S. Columbia Ave Business Fax:

Tulsa, OK 74132 Business Email: heather@

Jim Maginn Grandparent Home:

739 31st Street Home Fax:

Manhattan Beach, CA 90266 Email: jmaginn7@

Cell: (310) 874-4047

Laura Marks (Secretary) Parent Home: (347) 808-0784

67-66 108th St. Apt D36 Home Fax:

Forest Hills, NY 11375 Email: ljmarks@

Cell:

Executive Director

Louis and Nancy Dupree Foundation

Afghanistan Centre at Kabul University Business: (917) 546-9369

954 Lexington Avenue, #118 Business Fax:

New York, NY 10021 Business Email: lmarks@

Diane McSwain Grandparent Home: (815) 455-1022

213 Shipland Dr Home Fax:

Crystal Lake, IL 60012 Email: dianemcswain@

Cell: (815) 382-8551

Chris Russell (Immediate Chair) Parent Home (cell): (972) 533-0898

623 Canemount Lane Home Fax: 972-471-5522 (call first)

Coppell, TX 75019-2590 Email: chris.russell@

CEO, Spire Hospitality Business Cell: (972) 533-0898

129 S Main St, Suite 260 Business Fax:

Grapevine, TX 76051 Business Email:(Preferred) crussell@

Mustafa Sahin Healthcare Professional Home: (781) 449-8663

47 Hemlock St. Home Fax:

Needham, MA 02492 Email: mustafa.sahin@childrens.harvard.edu

Professor of Neurology, Harvard Medical Business: (703) 413-1100

School, Director of Translational Neuroscience Business Fax:

Center, Boston Children’s Hospital (BCH) Business Email: mustafa.sahin@childrens.harvard.edu

300 Longwood Avenue, CLS 14073

Boston, MA 02115

Sean Shillinger Parent Home: (240) 315-5201

5905 Union Ridge Dr. Home Fax:

Adamstown, MD 21710 Email: sshillinger@

Frederick Memorial Hospital Business: (240) 379-6066

Population Health IT Supervisor Business Fax: (240) 379-6070

Business Center Business Email: sshillinger@

700 Toll House Ave

Frederick, MD 21701

Matthew Simonian Corporate Partner Home: (832) 517-1995

12703 Kinkaid Meadows Ln Home Fax:

Humble, TX 77346-8263 Email: matthewsimonian@

Head of Epilepsy Portfolio Evaluation

UCB Business:

Business Fax:

Business Email: matthew.simonian@

Vanessa Vazquez Parent Home: (305) 498-2366

12249 SW 121 Terrace Home Fax:

Miami, FL 33186 Email: vazquezv@fiu.edu

Assistant Director

State of FL, Florida International University Business: (305) 498-2366

11200 SW 8th St Business Fax:

Miami, FL 33199 Business Email:

Paul Waxlax (Treasurer) Relative Home: (508) 596-3526

1549 S. Grant St. Home Fax:

Denver, CO 80210 Email: paulwaxlax@

Tara Zimmerman Parent Home: (775) 530-1210

7343 Ulysses Drive Home Fax:

Sparks, NV (972) 368-3098 Email: taraczimmerman@

Program Director Business:

Community Services Agency Business Fax:

Business Email:

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