Metastatic Breast Cancer - Amazon Web Services

Metastatic Breast Cancer

RESOURCE GUIDE

A collection of websites that provide information and support for patients with metastatic breast cancer and

the oncology professionals who treat them.

Oncology with soul

At Eisai, human health care is our goal. We give our first thoughts to patients and their families, and helping to increase the benefits healthcare provides. Our therapies and diverse oncology pipeline are designed to help make a difference and have an impact on patients' lives. We are Eisai, where oncology is more than just our business--it's our passion.

CORP82R1 ?2012 Eisai Inc. All rights reserved. April 2012 us

Patient Introduction

Trusting Instincts and Advocating For Survivorship

My name is Kimberly Jewett, and I'm a 36-year-old metastatic breast cancer patient. After several months of fatigue, frequent migraines, and a dull pain in my left breast, I performed a self-exam and found a lump directly underneath my left armpit. This was the beginning of my initial diagnosis of Stage 2 ER+/PR+/ HER2- breast cancer, which rapidly changed my life forever in 2008. Additional diagnostic exams confirmed that the cancer had spread to my lymph nodes.

Since my initial diagnosis, I have had an opportunity to learn what it feels like to experience survivorship, as well as deal with the emotions during a recent recurrence that surprised me earlier this year. Through all of my experiences, I have learned to pay attention to what my body is telling me.

Had I not performed a self-exam, trusted the negative results of blood tests, or demanded a mammogram when my obstetrician/gynecologist suggested that I may be over-reacting due to my young age, I'm not sure which path cancer may have led me down. From the moment I became a breast cancer patient, I began researching my diagnosis over the internet which has helped me make some of my most important treatment decisions.

Being a young woman with breast cancer presents many huge challenges. In my case, my cancer is hormone receptor positive, which means any estrogen in my body can cause cancer to grow. Estrogen is an important

Kim Jewett is a young, recurring patient, and loving mother. Involving herself and her children in local

part of a woman's health for many reasons.

advocacy programs encourages her to

look forward.

I also had to cope with losing my breasts. There is an option to

reconstruct, which I took advantage of during my initial journey.

However, this time I feel more comfortable having no implants so that I can better evaluate any lumps

I might feel.

Another challenge women face when diagnosed is child bearing. I was so blessed and grateful that I had 2 children prior to my original diagnosis. However, now that I recurred, I have the fear, lack of control, and uncertainty of what this recurrence can bring. Will I be here to watch my children grow?

Cancer has given me so many challenges to overcome. Some, that myself, my family, and friends never could have imagined. However, cancer has taught me the strength I never knew I had, the courage to fight every day, the hope to watch new drugs continue to develop, and the ability for me to be an inspiration to other women fighting metastatic breast cancer by sharing my story.

My hope for this resource guide is to give you the hope, strength, and courage to arm yourself with the information necessary to become your own best advocate. Knowledge is power, and advocating for your health can help you fight this disease.

To download a PDF of this Resource Guide, visit .

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The Eisai Assistance Program SUPPORT WITHIN REACH

The Eisai Assistance Program (EAP) offers information about both insurance coverage and nancial support to patients and caregivers for Eisai products and medicines. The EAP can help you: ? Understand how your therapy may be covered by your insurance ? Understand your out of pocket cost responsibility for your therapy ? Identify sources of potential coverage if you do not have insurance, including eligibility for the Eisai Patient Assistance Program (PAP) Eisai's commitment to innovative solutions in disease prevention, and care for the health and well being of people worldwide is embodied in our human health care (hhc) mission. Human health care means we give rst thoughts to patients and their families by helping to ensure access to necessary medicines.

For more information about the EAP and PAP, call 1-866-61-EISAI (1-866-613-4724) Monday through Friday, 8:00 AM to 8:00 PM, E T, or visit

Eisai cannot guarantee coverage or payment of any claim.



President

Jack Lepping

Editorial & Production

Senior Vice President, Clinical and Scientific Affairs Jeff D. Prescott, PharmD, RPh

Project Director Donna Bonura

Project Manager Jaclyn Pallotti-Latham

Assistant Editor Jeanne Linke

Quality Assurance Editor David Allikas

Art Director Ray Pelesko

Sales & Marketing

Vice President, Integrated Special Projects Group David Lepping Associate Publisher Erik Lohrmann Director of Sales Mike Hennessy, Jr National Accounts Managers Robert Goldsmith Albert Tierney National Accounts Representative Nicole Jussen Sales & Marketing Coordinator Megan O'Connell

Digital Media

Vice President, Digital Media Jung Kim Web Editor Silas Inman

Operations & Finance

Group Director, Circulation and Production John Burke Director of Operations Thomas J. Kanzler Controller Jonathan Fisher, CPA Assistant Controller Leah Babitz, CPA

Corporate

Chairman/Chief Executive Officer Mike Hennessy Chief Operating Officer Tighe Blazier Chief Financial Officer Neil Glasser, CPA/CFE Executive Vice President, Executive Director of Education Judy V. Lum, MPA Vice President, New Business Development John C. Maglione Vice President, Group Creative Director Jeff Brown

Office Center at Princeton Meadows Bldg. 300 ? Plainsboro, NJ 08536 (609) 716-7777 Copyright ? 2013 Intellisphere, LLC. All rights reserved.

Table of Contents

Resources for Metastatic Breast Cancer

6 METAvivor Research and Support 8 Metastatic Breast Cancer Network 9 CancerCare 10 Cancer Support Community 11 Living Beyond Breast Cancer 12 13 Young Survival Coalition 14 Cancer Foundation 15 National Coalition for Cancer Survivorship

Bringing the Oncology Community Together

METAvivor Research and Support



ADDRESS: 1783 Forest Drive #184 Annapolis, MD 21401 CONTACT INFO: Phone: 410-353-3733 E-mail: info@

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HISTORY & MISSION METAvivor is a non-profit organization run entirely by volunteers, including those who are, or have been, impacted by metastatic breast cancer. Since 2009, METAvivor's mission has been to end death caused by metastatic breast cancer.

The organization provides support options to those impacted by the disease while they continue working to increase awareness and funding toward current and future research. Ultimately, this organization hopes research will help transition metastatic breast cancer from a terminal disease to a controlled, permanently survivable condition offering a decent quality of life for patients.

PROGRAMS & ACHIEVEMENTS METAvivor believes that 30% of breast cancer research funds should go directly toward metastatic breast cancer research because 30% of breast cancer patients metastasize. Their 30% for 30% Campaign is an effort to emphasize that the present 2% of funding toward this specific disease is not enough and encourages the public to push for an increase in funding.

In memory of those who have passed on, METAvivor launched its In Memoriam awareness program in 2011. This program allows family and friends to submit photographs and stories of their loved ones to be included in the online memorial. Visitors may donate to an individual's memorial to help support METAvivor.

Providing local support through activities around Annapolis, MD, the organization invites women and men with metastatic breast cancer the opportunity for face-to-face support.

Each year, the METAvivor organization awards metastatic breast cancer research grants to potentially transition this fatal disease to a permanently survivable condition.

METAvivor also placed first in the Patient Advocate Category at the Advanced Breast Cancer First Consensus Conference in Lisbon, Portugal, for its study on support and lifestyle needs of the metastatic breast cancer patient.

The new METAvivor BLOG, written by metastatic breast cancer patients, patients who have not metastasized, doctors, and social workers, discusses issues related to metastatic breast cancer. The BLOG also features a special section devoted to young adults with metastatic breast cancer.

NAVIGATION & USEFUL LINKS The METAvivor website includes Get Involved, Awareness, Support, and Research links on the navigation bar across the top of its home page. These links provide further information and insight to encourage public involvement in the fight toward a cure for metastatic breast cancer.

Viewers who select the Support link will find links to the METAvivor BLOG and patient stories about their recent diagnosis with metastatic breast cancer.

METAvivor also generates awareness and funding for metastatic breast cancer research through 3 annual fundraisers including a special Adventure Race. The race is held in the historic waterfront city of Annapolis, MD. This triathlon includes 2 miles of kayaking, 15 miles of biking, and finishes with a 3.1-mile run. An Authors Luncheon and Silent Auction in September, and a Holiday Home Tour in December, are also held annually.

The organization further assists others in organizing support programs specifically for metastatic breast cancer by offering suggestions and advice.

Enforcing public involvement, the home page includes recent News & Information, and features a link on the bottom of the page for the 30% for 30% Campaign. The updated Calendar of Events includes Fundraisers as well as information about upcoming face-to-face opportunities to hear guest speakers discuss metastatic breast cancer information.

Visitors may scroll to the bottom of the home page to submit or donate to the In Memoriam wall, or select the Store link in the navigation bar which offers merchandise to help support the organization's cause.

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Metastatic Breast Cancer Network



ADDRESS: P.O. Box 1449 New York, NY 10159

CONTACT INFO: Phone: 1-888-500-0370 E-mail: mbcn@

HISTORY & MISSION Metastatic Breast Cancer Network (MBCN) is a national, independent, non-profit advocacy group dedicated to helping men and women with metastatic breast cancer.

MBCN was founded in 2004 by Jane Soyer and Nina Schulman. These 2 women were advanced breast cancer patients who felt isolated from their support groups. Feeling emotions of failure, they created this advocacy group with a mission to develop awareness and education to push patients to be their own best advocates. Currently, MBCN has over 1800 members in the United States and Canada. The group has members in 22 countries across the world.

PROGRAMS & ACHIEVEMENTS The MBCN advocacy group feels that the focus of breast cancer should not be on the pink ribbon. The group argues that there is not enough specific emphasis on awareness of metastatic breast cancer and those living with it.

Each year, MBCN hosts a national conference. The 2012 MBCN 6th National Conference "Moving Forward with Metastatic Breast Cancer" took place in Chicago, IL, and offered video presentations and guest presentations discussing the latest information about treatments, coping strategies, and the future for metastatic breast cancer patients.

On September 10, 2010, MBCN participated in the entertainment industry's Stand Up 2 Cancer telethon. Stand Up 2 Cancer encourages collaboration by bringing together the best and brightest in the cancer community with the entertainment community to help create awareness and build public support. In 2010, the telethon raised $80 million in funds for innovative cancer research.

In 2009, the MBCN's legislative team visited Washington, DC, and succeeded in establishing MBC Awareness Day, October 13, by obtaining House Resolution 787 and Senate Resolution 295. MBC Awareness Day encourages people to become more informed about and aware of metastatic breast cancer.

NAVIGATION & USEFUL LINKS Emphasizing advocacy, MBCN's home page invites viewers to volunteer with MBCN by selecting the Get Involved: Volunteer with Us link directly on the home page underneath the navigation bar.

By selecting Order Brochures in the drop-down section for Education, viewers may order and read information directly related to metastatic breast cancer. Pages can also be read over the website, and pages of interest can be printed out.

By selecting Support-Resources at the top of the home page, viewers may become familiar with the different types of support groups, websites, and Retreats available to patients and caregivers. Resources including clinical trials, financial assistance, and legal resources are also available in this section.

For those interested in becoming more vocal about metastatic breast cancer, a Special Events section on the home page lists Upcoming Events and discusses past conferences and programs where MBCN was involved and helped make a difference. Viewers may also Get Involved simply by volunteering, fund-raising, or donating to the organization.

Underneath the Get Involved drop-down, viewers may also select Inspirational Stories. This section offers those affected by metastatic breast cancer the opportunity to share their personal stories, or simply read others'.

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