Survivorship Care Planning - Leukemia & Lymphoma Society
Survivorship Care Planning
Susan Leigh, BSN, RN
Cancer Survivorship Consultant
Tucson, Arizona
From Cancer Patient to Cancer Survivor: Lost in Transition (IOM)
• Cancer is often a chronic condition, but is not treated as one.
• When treatment ends, most cancer survivors do not have a follow-up care plan or treatment summary.
• Surviving cancer is something to celebrate, but it is not the end of the road.
• Cancer changes your life forever, and it also changes your healthcare needs forever.
Types of Care Planning
1. Treatment Plan What is happening NOW.
2. Treatment Summary Historical document. PAST
■ Diagnosis
■ Reports
■ Treatments
3. Follow-Up Care Plan Living document. FUTURE
■ Surveillance
■ Health maintenance
Care Planning Templates
▪ American Society of Clinical Oncology (ASCO) patient/survivorship
(Breast, Colon, Lung)
▪ Journey Forward (Breast, Colon, General)
▪ Lance Armstrong care plan with Oncolife
▪ Oncolife oncolife
(Survivorship care planning for ALL cancers)
▪ Bag It
(General summary template)
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