Survivorship Care Planning - Leukemia & Lymphoma Society



Survivorship Care Planning

Susan Leigh, BSN, RN

Cancer Survivorship Consultant

Tucson, Arizona

From Cancer Patient to Cancer Survivor: Lost in Transition (IOM)

• Cancer is often a chronic condition, but is not treated as one.

• When treatment ends, most cancer survivors do not have a follow-up care plan or treatment summary.

• Surviving cancer is something to celebrate, but it is not the end of the road.

• Cancer changes your life forever, and it also changes your healthcare needs forever.

Types of Care Planning

1. Treatment Plan What is happening NOW.

2. Treatment Summary Historical document. PAST

■ Diagnosis

■ Reports

■ Treatments

3. Follow-Up Care Plan Living document. FUTURE

■ Surveillance

■ Health maintenance

Care Planning Templates

▪ American Society of Clinical Oncology (ASCO) patient/survivorship

(Breast, Colon, Lung)

▪ Journey Forward (Breast, Colon, General)

▪ Lance Armstrong care plan with Oncolife

▪ Oncolife oncolife

(Survivorship care planning for ALL cancers)

▪ Bag It

(General summary template)

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