PDF Developing Meaningful Connections with People with Dementia

Developing Meaningful Connections with People with Dementia

A Training Manual

Editors:

Beth Spencer Anne Robinson Chris Curtin

Contributors:

Roxanne Chang Lynn LaRue Chenoweth Regina McClurg Shelly E. Weaverdyck Laurie White Jayne Yatczak Jitka Zgola

Jo Campbell, Gwyn Gardner, Barbara Kendall, Anne Remley, Jim Wealton

Cover Photos: Silver Club Staff Members Patricia Hall and Beth Carlson with Silver Club Members, University of Michigan, Ann Arbor, Michigan

Table of Contents

Editors and Contributors ........................................................................................... 3

Acknowledgements ..................................................................................................... 5

How to Use This Manual ............................................................................................. 6

Training Staff: Issues to Consider .............................................................................. 7 Beth Spencer and Regina McClurg

Session 1: Introducing Alzheimer's Disease and Related Dementias ............. 17 Anne Robinson, Beth Spencer, and Chris Curtin

Disease Summary Sheets ......................................................................................... 33 Shelly E. Weaverdyck

Session 2: Understanding Brain Changes in Dementia .................................. 47 Lynn LaRue Chenoweth and Beth Spencer

Caring Sheets ........................................................................................................... 63 Shelly E. Weaverdyck

Session 3: Respecting the Humanity of the Person ........................................ 87 Anne Robinson and Beth Spencer

Session 4: Adapting Our Methods of Communication .................................. 107 Beth Spencer and Anne Robinson

Session 5: Rethinking Our Approach to Activities of Daily Living ............... 123 Anne Robinson and Jayne Yatczak

Designing Therapeutic Activity Programmes for People with Dementia ............... 146 Jitka Zgola

Session 6: Understanding Why Challenging Behaviors Occur ...................... 157 Anne Robinson and Beth Spencer

Session 7: Teaching Staff Effective Problem-Solving Strategies ................... 177 Roxanne Chang and Jayne Yatczak

Session 8: Helping Staff Understand and Respond to Families .................... 205 Beth Spencer and Laurie White

Session 9: Caring for Yourself So You Can Care for Others ......................... 225 Chris Curtin

Audio-Visual Resources ......................................................................................... 239

Reference List ........................................................................................................ 240

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Editors

Beth Spencer, LMSW, MA, has worked in the dementia care field for more than 25 years in a variety of capacities, including care management, counseling, teaching, and training. As a trainer and educator, Beth has worked in many settings from universities to long-term care and has been a keynote speaker at many Alzheimer's Association annual conferences. She is currently director of Silver Club Programs for adults with memory loss at the University of Michigan Health System. She is co-author of the handbook, Understanding Difficult Behaviors, with Anne Robinson and Laurie White and also of Moving a Relative with Memory Loss with Laurie White. elizspen@umich.edu

Anne Robinson, MA, has worked in the field of dementia care for more than 25 years as an educator, trainer, consultant, and group work specialist in residential and community-based programs. She founded and directed the Alzheimer's Education Program at Eastern Michigan University for 16 years. Currently she is Executive Director of Optimal Life Designs in Dementia Care, a non-profit organization that specializes in providing cutting-edge quality education and resource materials in dementia care for healthcare professionals. Her organization sponsors the Annual Edna Gates Conference on Dementia Care and the Lillian & James Portman Conference for Direct Care Workers. Contact Information: Optimal Life Designs in Dementia Care, P.O. Box 128, Hamburg, Michigan 48139 Telephone: 810.231.2723 Fax: 810.231.2743 E-mail: annerobinson2@

Chris Curtin, B.A. RN,C a Certified Gerontological Nurse is an independent consultant and trainer. She has been training direct care workers for 20 years. Chris is the President of Community Services Network (CSN) in Traverse City, MI. CSN is a 501(c)3 organization

that trains direct care workers in all settings. Chris can be reached by email ccurtin@ or by phone 231-5360483.

Contributors

Roxanne J. Chang, JD, MS LLP, elder law attorney and limited licensed psychologist in Plymouth, Michigan, with a focus on issues regarding individuals with dementia, as well as a consultant for Optimal Life Designs in Dementia Care. roxjchang@

Lynn LaRue Chenoweth, MT-BC, NMT Fellow, is a board certified music therapist specializing in dementia care and aphasia and gait rehabilitation. Director of Music Therapy, Rehabilitation Services, Ann Arbor, MI.

Regina McClurg, LMSW, Director, Apogee Training and Consultation Services and a trainer for Gerontology Network Services, Grand Rapids, Michigan.

Shelly E. Weaverdyck, PhD, Director Eastern Michigan University's Alzheimer's Education and Research Program, and Private Consultant in Ann Arbor, Michigan. sweaverd@umich.edu.

Laurie White, MSW, owner of Dementia Care Consulting in Santa Rosa, California, providing clinical services to families and conducting dementia care training programs around the country. Laurie@.

Jane Yatczak, M.S., OTR/L, Botsford Hospital, Geropsychiatric Services; Eastern Michigan University, Gerontology Program.

Jitka Zgola, OT(C), occupational, therapist, educator, and advisor to caregivers of people with dementia. As an author of two well-received books in dementia care, she is a much sought after speaker in Canada, the US, and Europe.

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