1. Can you tell me what you are here for today? [Let’s ...
“Developing Diversity-Oriented Qualitative Research in Community Health Care Settings”
Kell Julliard, MA, Lutheran Medical Center, 150 55th St., Brooklyn, NY.
email kjulliard@, phone 718-630-6332
First section of interview guide for “What Latina patients don't tell their doctors: A qualitative study”
What language do you prefer to be interviewed in?
1. Do you Speak English?
2. In what year were you born? 19
3. What’s your marital status?
( married
( divorced
( separated
( widowed
( single Are you living with someone (cohabiting)? a. ( Yes b. (No
4. How would you describe your ethnicity?
5. Were you born in the United States?
a. ( YES b. ( NO 6. What country are you from?
7. How long have you been in the United States? months, years
How long have you lived in the neighborhood? Which neighborhood do you live in?
8. Were you raised in a particular religious tradition?
a. ( NO b. ( YES What religion was it?
9. Do you consider yourself to be a religious person now?
a. ( NO b. ( YES 10. Do you have a religious affiliation?
11. How many years of education do you have?
( grade school
( some high school
( high school graduate
( some college
( college graduate
( graduate degree(s):
12. What do you do? ( student in
( working in
( unemployed, last worked in
( retired, worked in
13. How many times have you visited a doctor or nurse over the last 12 months (excluding eye/dental visits)?
( 0
( 1-5
( 6-10
( 11 or more
In how many visits has a translator helped you communicate with your doctor or nurse?
( 0 In what situations:
( 1-5 ( with doctor
( 6-10 ( with nurse
( 11 or more ( other:
PART 2: GENERAL SENSE OF MEDICAL CONFIDENTIALITY AND PRIVACY ISSUES
“In this section, we’re going to talk about what kinds of concerns you think people generally have about their medical information, and what kinds of actions you think people take to protect their privacy. In the next section, we’re going to talk about what you’ve experienced in particular.
“Throughout most of this interview, I’m concerned with health care in a general setting -- like a family doctor, for example. Family doctors or general practitioners ask lots of questions about all kinds of health issues, like:
• SUBSTANCE USE: like smoking, alcohol, drug use or addiction
• MENTAL HEALTH: like mental illness, violence in the home, eating disorders
• REPRODUCTIVE HEALTH: like infertility, abortion, family planning, miscarriage
• DISEASES & CONDITIONS: like cancer, endometriosis, hemorrhoids, sexually transmitted diseases
• FAMILY MEDICAL HISTORY: like family health history, genetic testing
• SEXUAL ORIENTATION
• PLASTIC SURGERY
… so please think about what people have to do when they are in a general health care setting, too.”
14. DIFFICULT TO TELL: Do you think that there are things that are hard for people to tell to their doctor or nurse?
a. (YES b. (NO
Can you tell me why you think that?
15. SORT OF INFO: What sort of information do you think is hard for people to tell their doctor or nurse?
15a. Why is it hard for people to tell their doctor or nurse this information?
16. DECIDING?: What do you think people do in this situation?
16a. Given what people do, what could happen as a result of that?
17. GROUPS?: Do you think that there are certain kinds of people who have to worry more than others about telling or not telling their medical information to a doctor or nurse (like women or people with certain diseases or people of a certain age)?
a. (NO b. (YES
18. Which groups, and why do they have special concerns?
18a. Are there any other groups?
-----------------------
KEY ELEMENTS:
1. types of concerns which characterize each group
2. in their relationship with who or what?
KEY ELEMENTS:
- methods of concealment OR alteration
- beliefs about how much latitude patients have to tell or not tell
DISCUSS:
- personal embarrassment
- lack of compliance
- concern over who else might find out
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