Adult Palliative & End of Life Care Plan

Adult Palliative & End of Life Care Plan

This plan has been developed in partnership with Lippen Care

Published June 2019 1

"How we die remains in the memory of those who live on"

(Dame Cicely Saunders)

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Contents

Foreword

5

Executive Summary

6

Introduction

7

What people told us

9

People's experience of palliative

and end of life care in Angus

11

Where we want to get to

14

1. Compassionate and person centred care 14

2. Compassionate communication

and conversations

15

3. Care closer to home

15

4. Getting it right for the family

16

5. Education and development

for the workforce

16

6. Public health approaches to palliative

and end of life care

17

What is the data telling us?

18

References

19

Appendix 1: Steering Group Membership

20

Appendix 2: How we support people with palliative and end of life care needs in Angus 21

ACKNOWLEDGEMENTS

Thank you to the Steering Group members (Appendix 1) who contributed to the development of this plan and to the Tayside Palliative and End of Life Care Network Data Sub-group for sharing the Regional Mortality Data Analysis information.

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Adult Palliative & End of Life Care Plan

Foreword

Palliative and end of life care and support is everybody's business. All of us at some point will have a friend, a colleague or a family member who will have a progressive and/or advanced condition that is life limiting or life shortening. Everyone can help make a difference to the way people experience palliative and end of life care. Declining health, death, dying and bereavement are profound and universal human experiences. Though we have become very good at prolonging life, we still cannot prevent death. However, there are many ways we can improve people's experience of death, dying and bereavement [1]. Angus Health and Social Care Partnership and Lippen Care are committed to delivering the best palliative and end of life care and support that we can. We are delighted to be able to introduce this Plan which sets out our shared ambitions for the next three years and covers all aspects of palliative and end of life care provided to adults in Angus. Palliative and end of life care and support is not exclusively for people with cancer and can be appropriate for people living with chronic long term conditions. We recognise that everyone with palliative and end of life care needs regardless of their diagnosis is entitled to high quality care and support tailored towards their particular needs and preferences. We have recognised this in the Angus Health and Social Care Partnership Strategic Commissioning Plan (2019-22) by focusing support on the development of communities that actively care; compassionate communities that recognise and support people at the end of life and in bereavement. This plan reflects some of what is already delivered or underway in Angus and helps us to concentrate on areas we need to develop further. The plan will ensure that all people with palliative and end of life care needs, irrespective of their diagnosis, together with their close family and carers, are able to voice their wishes and preferences; and, as far as clinically appropriate and practically possible, these wishes and preferences are met. In addition staff supporting people with palliative and end of life care needs will have the necessary skills, knowledge and compassionate approach to care for people and those closest to them. We would like to thank all those who have contributed to the development of this plan. This includes members of the public, people who provide care and support, and most importantly people with lived experience of palliative and end of life care.

Vicky Irons - Chief Officer, Angus Health and Social Care Partnership Moira Nicoll - Chairperson, Lippen Care, Whitehills Health & Community Care Centre

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