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Consultation In-Person Feedback CollectionDate: March 11, 2014Group: Feedback received via email and regular mailLocation: N/ANumber of Attendees: N/APlease note that personal identifiers, such as personal and company names, have been removed from the comments below to protect the privacy of individuals submitting feedback to the Disability White Paper.Note: all the information and feedback gathered at this session will be inputted into the overall collection of data and feedback for consideration of the development of the Disability White Paper.Feedback:In 2008 I suffered a massive stroke when I was only 20 yrs old. I lost my entire right side and all of my speech. With extensive rehabilitation and a lot of strength and determination I am better but with few issues. But in the mean time I had a daughter by my self. She is now 2 yrs old.What I can't seem to do is get an education and back into the work force because the federal government won't allow me to apply for the opportunities fund to get a education and off of income assistance. I have spend every last penny I have under the direction of one of your workers at WorkBC trying to get this funding. I am exhausted and fed up with her. I have done everything that she has asked me to do including taking what little money the province of bc gives me off of the table and put it into applying for school so I can get this OPPs funding. Now that is about to expire, and I have already put a deposit down for my child's daycare... I have gotten more help from the lady at the school that I am going to attend then from WorkBC. I am very disappointed in her work. Also, all I want to do is go to school get my degree and become an active part in society rather than sitting on my bum and soaking up what the province gives me. For doing nothing.We recently met with Minister Mc Rae and as follow up he encouraged us to participate in this consultation. So, we are encouraging dietitians provide input, in particular related to nutrition and food security.At first glance, I don't think nutrition or food security fits well in any of the 6 options. A conversation stream on Health Promotion or Healthy Living might be of interest to many. Is there a possibility of adding a conversation on that topic, or including it as a topic in one of the existing categories such as under Innovation? I find it very interesting that there is no topic that simply and straight forwardly addresses the fact that the amount of government assistance to those on disability is pathetically inadequate unless you qualify for some special need such as increased food allowance for a disease such as AIDS. ??There are many who cannot for various reasons work to earn any extra money and for all of the numerous reasons out there cannot access any additional help.? It is pretty much impossible for anyone to live on just over $900 per month.? I think as a province we should be ashamed of the conditions that we allow the disabled to live in. I am currently receiving CPP disability; I do not qualify for BC disability as I am married. I was told by my MLA's the only way I could is if I were to get divorced. I have no extended health benefits and have to pay for my medicines as they do not go towards my deductible for fair PharmaCare. I would benefit greatly if I had access to medical care such as physio and chiropractic. My husband made about 31000 this year and my benefit is approx $9700 per year. We have two kids under 18 and a mortgage. We do not qualify for help as we are above the poverty level, so I am told. We average between $2700 and $3200 a month in income, my medications at one time were almost 600 per month, our mortgage is 1200 per month so we are better off staying in this house as rent elsewhere is too high. I want to understand why I am not able to benefit from extended benefits etc, as I understand the financial bit. I am also first nations off reserve and my mom and sister are status, I have tried to get my status for years but Nova Scotia won't send me my long form birth certificate that I paid forI was forwarded this site by WIDHH.I was encouraged to see this happening.I went to your site and realized that once again, the needs of citizens with severe hearing impairment are being ignored.DID IT NOT OCCUR TO ANYONE TO CAPTION THIE VIDEO?I started out with enthusiasm and now am left feeling very discouraged that the group that purports to make the world and inparticular, BC, accessible to all!I have no explanation for it, but the second time I visited your site, captions came up immediately on the youtube video greeting.I apologizeI am sending?this emails out to all the disability associations that I think should have a copy of these emails. I am a disabled indigenous woman, who has been having such a hard time, trying to get an electric scooter from the Ministry of?Social Services of British Columbia. At every turn, I have been running into road blocks, as there is so much racism and discrimination within the social services system of this province. Both my husband and I are very disabled, and we have?been on the disability assistance for close to ten years or so.?We have been evicted from the [location removed] Welfare office since [date removed], and since that time, we have?been denied everything that we are entitled to. WE were evicted for asking for an electric scooter for me. We are being denied?emergency food assistance, clothing allowance of which we are entitled to once a year, we have been denied nutritional?supplements, and I am a very disabled woman in need of an electric?scooter, and I have been denied this electric scooter,?now for over four years. Now I have reapplied once again for this electric scooter, and it will be my fourth time trying to apply for one. Today,?my Occupational Therapist, [name removed], came to my home, and finally did an assessment, of me. Which he hasn't done in the past four years. After finishing the assessment, he told me outright, that he doesn't think that the Ministry of Social?Services would be giving me an electric scooter, at all. I am not disabled enough. How disabled would I have to be, in order to get an electric scooter, of which I am entitled to? I think he was very rude toward?my husband, as my husband was defending my disability. The OT said that the?Ministry only wanted to give me a manual wheel chair. How am I going to get myself around on a manual wheel chair? I do not have the strength, to push myself around. My husband has been very sickly also, and I am sure he cannot push me around on a manual wheelchair too.?The OT also said, that he had a very hard time over the years, getting any electric scooters for anyone else. AS over the past five years or so, he has only gotten two electric scooters for disabled people in the [location removed] area. The ministry does not give anyone wheelchairs anymore, and that it is very hard to get one. I had spoken to a person, who helps to give out?electric wheel chairs, in?the [location removed]?BC area, and he said that there?has been no problem in the lower mainland, for disabled people to get?electric scooters. That everyone he knows, that wanted an electric?wheelchair, got one, with no problems. That they get a new electric?wheelchair every five years, as that what they are entitled to, under the disability act. Disabled people should not have to go through hoops, as I have to. Under international laws, disabled people have rights, which are protected. It seems as though, we as severely disabled indigenous people of British Columbia, have no rights,? ?what so ever. My disability was not my doing, the car accident of July 2000, was not my fault. An RCMP cruiser was the cause of that car accident, as?he had rammed us off the main highway. We also had witnesses to that car accident. Just recently, [date removed], I was also severely beaten up and assaulted by a [location removed] BC, RCMP police officer.?This officer also had charged me for?'assaulting a police officer'.?These charges were dropped against me,?four months down the road. Now, it’s as if, this?police?brutality against me had never?happened. The court case?had just disappeared, from the court house. But my body was so severely damaged, and I was bed ridden for a few months after the police beating. Imagine, severely disabled indigenous women, severely beaten?up by a huge burley, muscled police officer of the?[location removed] BC, detachment of RCMP. Now I am told, my Occupational Therapist, which I am not disabled enough, to get an electric scooter from the?[location removed] Ministry of Social Services. Is this racism and discrimination? My God, a dog that is beaten close to death has more rights?than I do, as a human being. I have rights, and my rights have been?violated, namely disability rights, human rights, indigenous rights, rights to live free and in dignity and without poverty. The treatment I am?getting right now, from all of the above, is inhumane treatment. Someone should step up to the plate, as I cannot step up to the plate, myself, to protect my own dignity. ??I just saw a poster in the Rec Center here as I was sitting down for your disability conversation and my gut reaction was "oh come on!”And then I caught myself and realized that my own lack of connection to the issue was keeping me from seeing the importance to the issue. I thought I would give you my incredibly apathetic view point as embarrassed as I am to share it because You've taken the time to ask.Here goes.As a family raising three kids who are healthy and "non-disabled" they lack any sort of way to have empathy for disabled people because they don’t personally connect with anyone who has such challenges. As a home mom I would love to offer a respite, or "adopt a family" similar to big brother big sister for a family we could grow to love and help with simple challenges. Maybe for a couple hours twice a week. I think this would really help me and my children connect to the issues and empathize more with the challenges at hand.I know some sort of programs exist because a friend with a son with autism gets help, but I haven't the foggiest clue how to connect to one. In my experience, awareness and empathy are always the first step. Our children are taught never to stare or point out differences. They are embarrassed to be blind to such things. So they look away. If they could know someone and trust them enough to ask their questions and feel the injustices more closely I'm certain it would brighten the long term prospects for all people with disabilities.The program would have to be easy. Sadly with three kids I am terrified of getting into a situation where I'm filling out tons of paperwork and having a rotation of people with clip boards visiting my home. I don't know what the end result would be but if I could call a number, get hooked up with a family in need of respite that had needs that weren't terribly overwhelming, and be of some service, I would be very interested in such a program.If it exists, possibly some money into awareness of the program would help too.Barriers people with disabilities face in the East Kootenay’s – a couple observations:Lack of public transportation (buses) – public transportation is not available, not accessible or limited Unclear sidewalks and walkways during winter make it difficult, dangerous and sometime impossible for people with disabilities to get from A to B?? i have a suggestion.? perhaps you could put on the " notice of deposit "? that all disabled people receive on " check day ".???That? you would like their input on how best to serve your constituents ( people with disabilities who are receiving assistance).??Perhaps you could put a website? or an email address or both? on the notice of deposit slip and a small blurb on how you are requesting input and constructive advice on how they think they could be better served.? ?I found out about your endeavor completely by accident.??I can guarantee that you will be receiving more feed back from me.?perhaps you could send out the word to all the canadian mental health branches in bc, all the branches of interior mental health in bc.? Then they could work with their clients on giving feed back and constructive advice to the ministry.Would love to put input in but the closest place is 3 hours away I live in [location removed] there is a few of us that would probly like to do this but it is too far.This is in regards to the disability white paper. I live in [location removed] B.C. I am trying to set up a accessibility program here. There is a Building Code Handbook for 2006 for building requirements for the disabled. This code is no good. The private sector does not have go by it if they were in business before 2006. So here we are trying to help the disabled and can't get anywhere. So why have meetings etc. if the present code is effective from 2007 on.I have lived in [location removed] for three years and do some traveling for work and pleasure. I was shocked the first time (and every time) I utilized our local airport. The long term parking lot is at a lower level and requires you to march up a set of stairs to get to the terminal, requiring you to haul your luggage and belongings with you. I asked about accessibility and was told this has been a problem for a long time and to make a complaint on a 2x4 card and deposit it in the complaint box, which I did. Although I can manage my luggage with wheels, I am unable to carry my luggage up or down the stairs. I now pull up to the terminal, park in a short term parking space and drop off my luggage, check in and then proceed to park in the long term parking lot. I still have to carry my carry-on bag up the stairs. When I come back from my destination, I have to go to my car pull up to a short term parking space and go back in the terminal and pick up my luggage, which sometimes is not on the turn style due to the length of time it took me to get my car. If the luggage is not there, I have to go to the airline counter ( if someone is there) and ask for assistance to find my luggage. Luckily, this is a small safe community and I am not worried about someone taking off with my luggage. I am a relatively healthy 60 year-old and can't imagine how difficult and frustrating this would be for independent people with disabilities. What a unwelcoming signal this is for visitors and a road block for the community and people with disabilities. Will you please add this to your disabilities assessment for The [location removed]community?The following are my comments on disability shortcomings in B.C.?First I would point out that a number of years ago a former B.C. Minister, Stan Hagen, said that disabled tourism in North America was worth 14 Billion dollars. That figure is quite likely considerably today. ?With that in mind some of our efforts must be based on capturing a large percentage of those dollars in addition to making life easier and better for disabled British Columbians.?We need:? All stores and government buildings be wheelchair accessible and that would include building that house businesses open to the public. All toilet facilities to be handicapped accessible with high toilets and grab bars accessible for either side of the toilet.? Most I have seen in [location removed] have right handed grab bars and stroke victims with mobility being mostly right handed have their right side damaged, so right handed grab bars do not help in standing up or sitting down. All public meeting places, arenas, gymnasiums and other such athletic facilities be handicapped accessible not just to get in and out, but to be able to have hand rails that allow a more open seating choice for those who can walk with or without canes or crutches. ie hand rails in all arenas and theatres. All venues such as parks, day use areas, highway rest stops, campgrounds or forestry backcountry rustic campsites and day use areas, whether government or private ownership be equipped with fully handicapped accessible toilet facilities. All levels of government work to provide handicapped recreational use venues for the use of the disabled. ie wheelchair basketball, curling, sledge hockey facilities along with other sports activities that allow for disabled participation besides watching. Make major changes to the Wildlife Act and Hunting Regulations that allows for more and better opportunities for disabled hunters. The only way we can get changes is by Appealing wildlife decisions to the Environmental Appeal Board or to the BC Human Rights Tribunal, effective , but tedious and time consuming. Legislate the requirement that a given number of fishing areas be developed for handicapped accessible fishing. Montana has a great program that is slight years ahead called Crossing the Barriers. Make a requirement that more people be required to take mandatory sensitivity training to learn about handicapped people and their limitations and how we can help the disabled.We must also recognize that about 400,000 people in B.C. have some form of disability.??Thank You for considering my points.Hello; I was informed by Human Resources that if and when I sell my home that I purchased before going back on disability I was on it for 3 years or so. Then the government after years of me bitching bought me new leg braces, and voila, I could walk again, so I joined the work force. Now I've been on disability for 7 or 8 years, maybe longer. Anyway they told me that I have to purchase another home within 90 days of the sale or lose my disability..Is this true?I was on a [location removed] Municipal Council for seven years and I headed up the interests of the disabilities, as one of my portfolios. During that effort, our community received the Federal 5 star award for Recreation.I'm now on the other end of these concerns, as I'm going to have my right foot amputated on [date removed] as a result of a MVA on [date removed]. Since that time, I've been over a year on crutches, wheel chairs and assisted by many caring people.Recently, I was trying to get out of our vehicle to go into our home and nearly fell on the ice. Prior to this occasion our neighbour, had done an excellent job of shovelling the snow off the driveway and the public sidewalk. Within a few days and one that was a little warm the city came along and plowed all the snow and slush from the street onto the public sidewalks and it froze there. Well, as you can imagine streets are wonderful for people driving and should you decide to risk your life, then you can walk and guess what...you must walk on the road, because the public sidewalks have all the snow on them from the roads.Should you then be brave enough to contact the City offices you will be given the quick answer that first off this is how we always take care of snow removal and that is totally correct, year after year. You will also be told, that we don't have money in the budget, which again is correct because first off when they are in the budget process THEY don't care or walk and secondly, there usually isn't an advocate for the interests of the disabled or if there is one, that person is only doing a token job as one of the assignments accepted from the mayor.Unfortunately you folks that designed this process of engagement are city folks who have a stereotypical version of disability. How can I tell? You have addressed nothing in the wilderness outdoor experience in people's comments to you. I have been fighting the Wildlife Branch for over 10years for better hunting opportunities and any success in changing their policies has been judgements in favour of the disabled hunter by the Environmental Appeal Board and The B.C. Human Rights Tribunal. I asked the Premier of B.C. To come up with a plan to have handicapped accessible toilets in all our provincial parks and in our forest recreation camping and picnic sites. All I got for a reply was a bunch of junk comments that did not alter the fact that government did not care that disabled people cannot use our backcountry because they have no place to go to the bathroom other than in their pants.Fishing sites for the disabled is nonexistent and needs to be addressed.You folks need to address the recreational aspects of disabled life as much as the disabled accessing a store.Thank You!Hi there, I am mother to a nineteen year old young man who has [information removed]. I also have my BSW and work in the field of developmental disabilities.?We live in Northern BC. There is a scarcity of adequate and appropriate support. Often, parents?must make a choice between poverty and giving up the care of their adult?child. This often means hospitalization or other emergency care,?sending them out of the community,?and experiencing a great deal?of other trauma in the process. I believe that in certain situations where it is in the best interest of the individual, parents should be paid as caregivers would. They could undergo the same screening process as all other care providers do, with CLBC, so that this would be a regulated process. It would be of great benefit to some individuals. They could have loving, quality?continuity of care and stability, and a better quality of life.I also am disappointed in the severe lack of funding currently available for day programs. My son is only receiving 11.5 hours per week. It makes life harder on everyone concerned. We need more. Our provincial government is doing a dismal job taking care of its most vulnerable citizens.I am registered for the community consultation in [location removed] in February but because I must take care of my son and am very financially stressed I will unfortunately not be able to attend. I hope the points gathered will be taken seriously by?our government.Thank you, sincerely,Please read, forward, tweet my Beacon News Op-Ed "Disabled need consumer choice, good lawyer" am a 34 year old disabled man living in [location removed] on Vancouver Island living with a disability income of around $900 per month, Finding housing that I can afford and that is suitable for my disability has been a challenge since day one....Renting a place by myself is too expensive!Finding a part time job can be an expensive frustrating experience, trying to find a job when you don’t have your own place can’t afford food or internet is very frustrating.Having roomates, renting a room is not the best for people on disability because of washroom needs and safety concerns....Some kind of housing allowance per month should be available so that every person on disability can afford a place to live by themselves...$1000 per month for housing would be better.Having a love in your life is next to impossible because I have no money to eat or date or have any type of normal relationship.... Its impossible to cook a healthy meal off food bank rotten vegetables and old bread....Food stamps or gift cards for local grocery stores should be included every month for people with disability.....We want to buy our own healthy food and not have to live off unhealthy expired food from food banks.I am asking for $1200 -$1500 per month for people on disability $900 is like being in a prison cell renting a room from someone with basic rations of unhealthy food.$1200 -$1500 would allow people on disability to have a almost normal life and maybe be able to get a relationship eat healthy have your own place or find love in life.If two people on welfare or disability have a relationship than they take money away, saying that your income is combined and then the two of you have to live off of less money together instead of just letting them combine there low incomes of $900 each per month and Share $1800 which if they shared $1800 they would almost have a happy life together...My elderly mother wears behind-the-ear devices to improve her hearing.During visits I have observed her fumbling with a hearing device, with her arthritic fingers, to replace the tiny battery that powers the unit. The swing-out battery compartment also acts as the on-off switch. She routinely forgets or is unable to turn off the unit so the battery runs out sooner than necessary.The hearing aid has three modes for different sound environments. My mother can’t remember which mode to use and, in any case, the switch is too small to manipulate easily, and the mode symbols are too small to read.Finally, the device is so small that it is easily misplaced and lost.At $3,000 per ear replacing a lost hearing device would be a major financial burden to many elderly people on fixed pension incomes.Health insurance has limits on how frequently replacements will be allowed.Here is a device that poses physical and psychological challenges on the hierarchy of the human-tech interface. The hearing device enables the user to lessen personal isolation by facilitating aural communications. The device is intentionally made as small as possible in order to be inconspicuous to conceal the user’s hearing impediment; and not detract from her beauty. But its small size makes it awkward to use and easy to lose. Is it possible to come up with a better compromise?Decades ago, as I recall, the microphone, battery and on-off switch made up a unit about 7cm H x 5cm W x 1.5cm D. The base unit was worn in the shirt pocket or clipped on a dress front or belt. A pair of twisted wires ran from the unit to an in-the-ear speaker. The on-off switch and the batteries were larger. But the wire and earpiece were awkward and were frequently caught by a finger or object and pulled off.Could Bluetooth technology offer a solution to eliminate the hard-wire link but enable a return to a base unit? A generic Bluetooth behind-the-ear receiver would pick up a wireless transmission of sound from the base unit. The receiver might have a voice-activated “sleep” mode; and plug into a charger for its “permanent” rechargeable battery. The generic earpiece would be ‘inexpensive’ to replace.A conveniently-sized base unit would clip on the user’s belt or shirt pocket. Facing forward it would be in a better position to pick up the sounds in front of the wearer that they most often want to hear. The base unit would have a microphone and the Bluetooth transmitter. A thumbwheel on the side of the unit would enable to user to toggle through the operating modes. The current operating mode would be meaningfully-described on a small LCD screen. Using a rechargeable battery (as for a digital camera), the base unit would plug into a charger for overnight re-energizing.Can’t find the earpiece? The base unit would have a recessed “locator” button (like a wireless phone set) that, when pressed using a ballpoint pen, would set off a brief beeper in the earpiece to disclose its location.My son is 26 years old, he has [information removed] and the last thing he needs is freedom and autonomy!Let me explain: [information removed], among other things, makes people want to eat constantly. My son thinks about food, ways and/or means to get food all the time. He will go through the garbage if he thinks there is something eatable in it. He will pick up any food left behind in a waiting room, on top of a table at the Food Court or any public places where food is available or where someone brought food and left some uneaten. Even if it is frozen, he will eat it. People with [information removed] never feel full and cannot throw up if they eat too much. They can literally eat themselves to death (their stomach ruptures).You see where I’m going with this? In our society, food is everywhere and is offered as a courtesy…..There is no escaping it, which is why he can never go anywhere on his own or be left home or anywhere unattended. This particular need of his [information removed] makes everything you have to offer unsuitable for him. He still lives at home because there are no [information removed] group home settings available in BC as there are in Ontario and in the States. It is estimated that I in every 15,000 people have this [information removed]. There is an urgent need for a home with a system and measures in place to keep these individuals safe and protected. As my husband and I get older we worry and agonize about his future. We cannot see where the future will take him because there is nowhere safe for him to go at the moment.There are many examples of successful [information removed] group homes that you can draw from to get something started. There are also a lot of parents, including myself, who would gladly help with the process of such a place. If anyone is interested, I've had a vision for many years of the perfect setting for such a place.The Ministry of Social Development is required by its own policy to determine whether an applicant has an immediate need for food and shelter. However, this apparently does not apply to aboriginal clients, who are treated rudely and arbitrarily denied benefits based on their ethnicity. My client has been without food and shelter for over two weeks. He was abused at Residential School and is now abused by racist employees at MSD. He is designated as a Person With Disabilities, but because he is homeless, he gets nothing. The [location removed] office routinely refuses to follow statutory law and regulations with the result that disabled people routinely are wrongly denied assistance for no legitimate reason. Several times this client and others have asked for reconsideration, but the workers just ignore them. If you want disability benefits in northern BC, you'd better be white or you won't get anything. All the native-haters at the [location removed] office of MSD should be put in jail, or, better yet, thrown into the street with no food or shelter.When I first learned about the consultation a couple of weeks ago, I immediately passed along the toolkit link to some people I knew who would be interested. I have also asked the [location removed] Disability Resource Centre, where I volunteer, about hosting discussions so we can give more people the opportunity for input. I am very concerned about the timeline for consultation given the importance of the topic. Significant improvements are needed in order for citizens with disabilities to have a decent standard of living and to participate more fully in all aspects of society. Beyond policy changes, I believe that strong legislation is needed to guarantee their rights.??? Thank you for the reply. I look forward to more updates.About eight years ago, my 85-year old mobility-impaired mother rolled over in her new bed to answer the phone. She tumbled off the edge of the TALL mattress set and fell in a heap on the floor. She broke both of her lower legs!Tall mattresses are heavily advertised currently. The fact that the height is excessive is illustrated by a recent advertisement in a home furnishing store’s flyer for a step-stair to be used by small pets to get on and off a tall mattress without breaking its neck. What hazard does this style of tall mattress pose for small children too?I am communicating to draw attention to this hazard; and to request an investigation into whether there is a mushrooming history of fall injury accidents associated with the “Hummer-sized” top quilt/mattress/box spring set. Have there been any lawsuits, perhaps in the United States, for compensation for a concussion or broken bone after a tumble from a tall mattress?There may be a need for the Canadian Standards Association to establish a maximum (and minimum) height for a bed frame, box spring and mattress combination (such as 23” – 28”/580-710mm). I would think that it is sensible for the best height of the top of a mattress above the floor to be about the typical seating height. Ones’ feet would just touch the floor when turning out of bed.My 90-year old polio-disabled mother repeatedly experienced unexpected acceleration of her van equipped with the “Sure-Grip” H.V.L.hand-control mechanism.In October 2008 I got to understand the problem when I experienced unexpected acceleration of her 1995 Plymouth Grand Voyageur van while driving it. I was driving the van in a shopping mall parking lot, with my mother on her power chair in the rear, when it began to accelerate unexpectedly. It continued to accelerate after I removed my foot from the accelerator pedal. I was not using the hand-controls. I was able to slow the van by pressing the brake pedal. In a few hair-raising minutes I was able to drive the van the few blocks back to my mother’s residence while the van continued to try to accelerate.As I turned off the ignition and withdrew the key, I noticed that the magnetic wand, used to deploy and stow the van’s wheelchair ramp, was fouled in the hand-control accelerator linkage.The exposed cam and plate linkage in the hand-control accelerator mechanism is directly beneath the ignition switch on the steering column. The magnetic wand was on a key chain looped, in turn, through the key ring for the ignition key. The end of the wand dangled about 8cm below the ignition switch. As the van lurched over a speed bump in the mall’s parking lot, I suspect that the wand was jostled into the open linkage mechanism. As a result, the hand-control accelerator was jammed in the “on” mode. A lucky rabbit’s foot dangling from her key chain might have jammed just as easily too.I solved the problem by putting the magnetic wand directly onto the key ring for the ignition key. This raised the wand away from the hand-control mechanism to prevent a recurrence.A real solution for “Sure-Grip”, the manufacturer, might be to enclose the mechanism so that keys and other objects hanging from the ignition key would be shielded from fouling the hand-control mechanism.My elderly, mobility-impaired mother’s Pride Mobility “Quantum 600” power chair with a Q-Logic controller has a decal that warns that it is NOT WATERPROOF.My mother uses the power chair with her ramp-equipped van parked in an outdoor parking stall; to travel around the local community on the sidewalks; to go to the dining room where there are drinks; and to access the bathroom for bathing and hand-washing. Thus, I was upset when I observed the sticker that cautions users that the Q-Logic controller is not waterproof. The unit cannot be used outdoors with assurance that it will not malfunction in wet conditions.I met a fellow on his electric scooter at Science World in Vancouver who told me that he had to send it to the repair shop three times due to water infiltrating the controls. On another occasion at a shopping mall I observed a woman on an electric scooter with a plastic bag inverted over the handlebar controls to protect it from rain.I find this situation incomprehensible as I am wearing an inexpensive digital watch that claims to be waterproof to a depth of 100m using simple rubber O-ring gaskets.Why is the B.C. Ministry of Health permitting the use of mobility devices that are poorly designed, impractical for the West Coast environment, and simply dangerous?In July 2009, my mobility-impaired, elderly mother took delivery of a new Pride Mobility “Quantum 600” power chair with a Q-Logic controller partially paid for by a province.The Q-Logic controller has an on-off toggle switch on the left-hand side; a speed control wheel on the right-hand side; a green mode select button in the lower centre; and a direction-speed control joy stick at the bottom.Let’s consider the physical design of this device. Imagine the typical right-handed user with her hand placed on this device. The user’s fingers drape up the right side of the device convenient to the speed control wheel. The on-off toggle switch may be pressed with the tip of the thumb but is generally out-of-the-way.But 7%-15% of users will be left-handed – such as my mother. With her left hand on the Q-Logic controller her fingers inadvertently touch the on-off toggle switch. When this happens the power chair STOPS. When she wraps her arthritic hand around the joy stick and presses it forward, her knuckles press on the mode select button. When the mode select button is pressed the power chair STOPS. The speed control wheel is awkward to turn because she can only jab at it with her left thumb; and the back of her hand blocks her view of the speed graph in the LCD screen.Some of these inadvertent stops have occurred in the middle of intersections; and while entering or leaving an elevator. My mother’s life and limb has been endangered by this inadequately designed controller.This situation is simply poor design by Pride Mobility! This controller should bear a fourth decal warning: Dangerous for left-handed operation!View the Q-Logic drive control at: am the mother of an adult son with disabilities, who is using an electric wheelchair to get around and who has severe speech difficulties since birth and I have tried for years to increase my son's access to more (un-paid) people in his life and to increase his social networks.And we have had some great people in his life, who for short periods have spent time with him or at least have gotten to know him. But it is very time consuming for the family to always try to recruit, teach and work on establishing new relationships, it never seems to happen from the other end, where a non-disabled person actually wants to spend time with a disabled peer, mostly due to feeling strange and helpless around people with disabilities.So after observing how most non-disabled peers, at any age in my son's life, would not choose to approach or spend time with disabled people, I came to the conclusion that people absolutely have to learn to get close to a more needy peer. If a society wants their less fortunate members to be respected and included, the effort has to come from the healthy section of that society, not be the responsibility only of the disadvantaged person or their already stressed family. Interestingly, the siblings of our disabled children have learned at a very early age to appreciate the personalities, humor, worth and contribution their brothers and sisters are making to their family, along of course with the frustration of realizing that no-one else wants to share the burden of spending time with them. It is my belief, that if we all agree that disabled children are valued members of our society, then all of society has to help raise them. It is simply too hard for any individual family to carry the burden alone of constantly trying to get regular people to get involved and spend time with them.I would propose that there should be a program in school, where each child has to be a 'volunteer friend" to a disabled child in their neighbourhood for at least one school year and must spend a designated (age-appropriate) amount of time with that peer. I would even suggest that such contact should happen at least once in elementary school and once in High school. Hopefully a friendship will develop and the contact will remain for longer, but at the very least each child will have an opportunity to get to know a disabled child and their particular circumstances and familiarize them with the reality of life for some more unfortunate members of their society. The contact with a disabled child at a very early age will open discussions, foster deeper understanding of differences, and may lead to more tolerance for diversity which will have numerous positive long-lasting results.It may also lead to starting to think of creative solutions to environmental obstacles, societal barriers and existing negative attitudes. But above all, it will instill in each child a sense of responsibility to see life from a different perspective and be part of the solution instead of hoping that someone else will deal with the disabled children in their midst.I would like to point out a rule that may not be a barrier but definitely not an incentive for a person with disability to go out and work.? If one works and earns enough to only be on medical and not have a monthly allowance from the gov., then they are denied a bus pass.? That person needs this transportation to get to work and yet is denied the pass; this does not make sense. I think this should be looked into.? It’s not only about the money, but it’s the principle that this person is willing enough to put in a day’s work to feed herself and yet is definitely not encouraged by the gov.? She is saving them over $900 a month and yet they can’t supply the bus pass for her to get to work.? And yet the one sitting at home, waiting for the cheque, has a bus pass! They need it also but so does the one who works.The Province of BC. gives a grant to cities which reduces peoples property taxes when caring for disabled persons in there homes. I found it very unfair that when a person reaches age sixty five and becomes eligible? for the seniors grant that they are no longer able to receive the disability grant. Would you kindly submit this for consideration in the White paper talks on this subject.RE:Input of Budget 2014 re Increased PDW Benefit FundingOn October 7th, 2013, [name removed] requested office assistance to submit his suggestions to the Select Standing Committee on Finance and Government Services. He thanks you for the opportunity to provide this input.[name removed] is hopeful that some increases in funding for PWD status might be forthcoming as it will be 9 years this January since the support rate was increased by $70, and as he is quick to point out, his cost of living, despite careful money management, has increased by well over that amount. It will be 7 years since the shelter rate was increased by $50 yet every year landlords are able to increase the rent. Where he asks, will he find the funding to cover the 2.2% increase in rent approved by the Residential Tenancy Branch for 2014?In Alberta a single person with disability status receives over $1500 per month through the Assured Income for the Severely Handicapped (AISH) program. This is in sharp contrast to the $905 he receives at PWD. He has been told that the AISH eligibility requirements are much stricter than in BC and consequently fewer people receive disability benefits in Alberta than in BC and therefore the funding level can be higher.[name removed] respectfully suggest that:BC reconsider eligibility requirements for PWD status thus reducing the number of people eligible overall so that funding can increase, orBC consider establishing various levels of PWD disability where the level of funding increases with the severity of the disability.[name removed] appreciates for example the increase in exempt earned income from $500 to $800 that government implemented recently. However as someone with severe [information removed], he has been deemed medically incapable of working even on a part time basis. He feels his funding should be increased to reflect that fact.[name removed] thanks you in advance for your time and careful attention that he knows you will spend in thoughtful review of his suggestions.I have been in disability for some time or for more than 3 years. I come from [location removed] and this last year I had to travel due to my fisical problems and trying to get something better for my health and now because I was hit by a truck I have more problems than before. So I want to know if can sponsor somebody who is my girlfriend and who I know for more than 15 years to have her to come to Canada. I need somebody to take care of me or each others she is a nurse and her work is to take care of women in her country because she was trained by the new political system of [location removed].I will be waiting for an answer from the Ministry of social development and social innovation of B.C.Please accept the following as my personal thoughts regarding the BC White Paper Consultations aimed at increasing participation for people with disabilities living in the Province of British Columbia. *Note: When I use the words “persons with disabilities (PWD)” I intend that all residents of BC be included, not merely those in receipt of Provincial Income Assistance or other disability pension benefits. I include those who are retired due to age or disability, as well as those actively engaged in the labour market as full or part-time paid and/or volunteer workers. Summary:I believe in my rights and responsibilities as a person with a disability (I’m totally blind), as well as all PWD to engage in community life to the degree we’re able and desire to. I further maintain that only through the adherence to the “Participation Model” for personal supports will meaningful programs be developed that will actually support us in the achievement of our individual participation goals. A strong and person centered Assistive Devices Program is critically needed to support PWD in our quest for full inclusion in community life. The built environment must at every turn be guided by strong legislation framed under the principles of Universal Design. I don’t support Human Rights legislation that forces marginalized persons to undertake complex and expensive legal action in order to enforce adherence to laws already on the books. We need the return of an adequately funded Legal Aid mechanism, as well as strong penalties for those who fail to provide that which is already written in law, and finally, where meaningful penalties are lacking existing legislation must be strengthened. I firmly believe in the need to educate our citizens, service providers and legislators with a focus on inclusion and compassion so that future generations will finally receive the support needed in order to live with dignity. Although there is a great need for health and rehabilitation professionals to be involved in our lives, all of us learn so much more at the feet of those who have come before us, therefore I think that far more is needed in terms of funding programs that bring people together to learn and teach through participation, mutual respect and mentoring. 1.InnovationParticipation, I firmly believe that the model put forth by the Provincial Equipment and Assistive Devices Committee (PEADC) in the mid 90’s called, “The Participation Model” must become the framework under which all services and supports to persons with disabilities is delivered. This model places the person at the centre with the rights and responsibilities to make all choices and decisions impacting our lives. Included in this is the responsibility for the risks our decisions will subject us to. Nothing for us without us must become the rallying cry. Solutions, all solutions must be viewed from the perspective of the individual based on our own unique knowledge, skills and abilities, while taking into account the limitations faced by each of us individually. . No two of us with the same diagnosis is faced with the same limitations, skill levels, supports, opportunities or desires, so solutions based on a “one size fits all” premise is not a solution, but it sometimes functions as a band aid. No more band aids please, only meaningful, comprehensive solutions based on individual needs. Choices, the words “nothing for us without us” says that all choices regarding supports made must be with the person with a disability at the centre of the decision making circle. Keeping in mind the power differentiation between the service provider and the person/organization delivering the solution. Only once the Participation Model is established in BC will the word “Innovation” have a place in the text or on the billboard. 2. Personal supportsAssistive technology, the Province of BC must establish a comprehensive Assistive Devices Program designed to ensure full inclusion of all persons living with limitations caused by disabilities. As a blind person who uses a great many types of low-tech and high-tech assistive devices, software and supports I can speak to the degree of need that exists. For example, the computer used by the sighted citizens of BC to stay in touch, conduct research, manage businesses, compile information and a myriad of other vital functions today requires the expenditure of an additional cost exceeding $2,000 for me and others with vision disabilities. Also, that $2,000 price tag only provides basic access to the text on the screen and the ability to scan and read printed text using synthesized speech output, and Braille users require an additional $3,000 at minimum beyond my needs. Now, consider the current supports available through Work BC Employment Programs whereby if eligible I might receive funding for such assistive devices once I have secured paid employment, a set of supports little likely to lead to success as I might not have the skills necessary to operate said assistive devices, nor am I likely to secure the position if those skills aren’t present and up to the employer’s immediate needs at the time of application. Personal supports must be in place with sufficient time to prepare for the labour market, not once we’ve entered it. aids and devices, if the devices needed in order to find success on the job are not in place with sufficient training and supports to ensure their successful integration, none of us who live with the limitations of our disabilities will find the level of success we desire, or the community’s wish for the successful achievement of our goals and aspirations. 3. Work and contributionEmployment, most residents of this Province have a desire to work and contribute, and there exists as many reasons for our successes and failures as there are people involved. For that reason only person centered, individualized supports and services will stand a chance at increasing the level of participation and ultimate success in our forays into the labour market. Chief among them is the attitudes of employers and the general public. I recall when vision loss had closed the door to my job in the Pulp and Paper Industry talking over a beer with my father and a former Shift Supervisor, and one of the topics of discussion was my intention to return to school and eventually back to some form of gainful employment. Without missing a beat they both strongly urged me to remain on Long Term Disability negotiated by the Pulp and Paper Unions until age 65 when I would receive the full entitlements to the industry retirement benefits. They were talking to a 34 year old young man who should have had a life-time of future ahead of him, however to strive for it would mean doing without the support and blessing of a huge segment of society, which their attitudes represented. Inclusion, to me means that my dreams for involvement in community life and/or the labour market ought to be at the top of any agenda where discussions are undertaken for my inclusion therein. Only those solutions that are right for me will actually lead to my successful involvement in society and/or the labour market. Employers, must have access to training and tax relief where including PWD employees in their work places are concerned. Training must include sensitivity training for current workers and management, as well as for the person with the disability who will enter that work place. Tax relief, or some other type of financial support must be provided where alterations to the work place, the tools or equipment is required in order that the worker be successful. Volunteer, as many paid jobs are secured once sufficient knowledge, skills and abilities are learned and demonstrated, volunteerism is one of the most often used strategies for getting those needs met. Labour market participation supports and services must view volunteerism as an important component to the road to gainful employment for PWD. 4. Housing and accessibilityAccessibility must be viewed through the lens of “Universal Design” for all public buildings, services and infrastructure. For that matter, all homes must begin to include a built environment designed to be inclusive of all phases of life from ability to disability. The City of Vancouver is to be commended for their Bylaw on levered door handles. My only question is, why wasn’t that done 100 years ago by the Provincial Legislators. Who does such a Bylaw inconvenience anyway? Universal design must become the only way to view anything that is constructed for the use of people. If we build it for all we’ll never have to retrofit it. Built environment, must always include access for all without individual citizens having to engage the support of the Province’s Human Rights Commission. The Charter of Rights and Freedoms already provide that Canadians believe in such a premise, as does the ratified United Nations Convention on the Rights of Persons with Disabilities. Why then are these not taken into account when our Provincial Legislature debates and enacts new legislation, and why are they not held to account when failing to provide such basic needs as accessible housing, services and infrastructure? 5. Social networksCommunity, involvement/participation is crucial to finding good health and happiness. Disability and the often resulting poverty create more isolation. I even see the current move to encourage PWD who want to engage in the labour market to find work they can do from home as a potential contributor to loneliness and isolation. Support services for more peer activities, peer run training services, and support for some accessible exercise and alternative healing programs like Yoga, Tai Chi etc are also critical to developing increased participation. Inclusion, accessibility is key to ensuring inclusion, as are the attitudes of service providers. Family is the first place where social interaction happens, and that will only be developed in healthy ways through education and support services. Once again, listen to the stories told by persons with disabilities who are told on a daily basis by their families what they are capable and deserving of and it’s easy to understand why success isn’t automatic for those who want to try. Too many roadblocks are placed in front of PWD, and too few support mechanisms are provided to families who hope to support their growth and involvement. 6.Asset accumulation /RDSPs (Registered Disability Savings Plan) RDSP, why is this question even on this discussion paper? It’s a Federal Program that has failed in ways even its greatest skeptics couldn’t have imagined. The only families who have any hope of accessing this type of program likely didn’t need it anyway because they are among the 2% who merely do so for the tax relief they don’t actually need anyway. The people who need this type of support will never be able to realize the promises made when this distraction was unveiled. Security only comes to PWD when we have access to good paying jobs through prior training and assistive technology that can make us ready to engage in meaningful ways. Barring having access to the paid labour market, disability pensions sufficient to ensure that good food, adequate housing and assistive technology designed to provide true independence can be provided. Sadly, in today’s economy good food is only financially available to middle and higher income earners, leaving low income earners to eat inexpensive processed and chemical laden foods in quantities insufficient to maintain good health. Ghetto housing like that which is provided in this Province concentrates poverty and all that it attracts into complexes that in turn leads to spiraling ill-health, isolation, fear and loneliness. Please establish pension rates that will provide for reasonable rental accommodations and good healthy food, with enough left over to engage in social activities that support the maintenance of good mental and spiritual health. Financial literacy, please do teach PWD how to manage money. I dare say you’ll not find any among you who will have a clue how to live on the budget provided by the current disability pensions or part-time minimum wage jobs, especially given the high cost of unfunded medical equipment, drugs, treatments and assistive technology needed to achieve independence, good health and happiness. I used the system to gain an education in operating a small business with the aid of a computer, and eventually owned and operated [information removed] in [location removed] on Vancouver Island. One of my constant bugaboos was the fact that I had to pay people more than I was paying myself to do jobs I would do if I was able. These include replacing tubes in my lighting system, repairing roofs, freezers, pumping gas, shoveling sidewalks, etc. I did all the accounting, payroll, financial statements, tax preparation, etc myself, but figure it cost at least 25 - 35 thousand dollars a year for labour I could have done had I been able. There is no incentive other than pride to encourage business independence in the disabled world. I could go on, but I picked the job so you pay the price for independence and not working for someone else.There is a need for disabled individuals like myself who are engaged in/have had a successful career for support to purchase necessary medical equipment.Take me for example. I have enjoyed a successful career in the technology sector, and have prepared financially as much as was possible for retirement. I recently 'graduated' to a power chair with a lift and tilt capability. It cost $25,000.00, which I would have had to pay myself but, luckily my current employer has a substantial health plan which reimbursed me 80% of the expense. When I retire, the health plan expires and I will return to paying full price (minus the federal disability tax deduction) for the chairs and other medical equipment that I need. Purchasing new chairs and additional equipment will greatly impact my retirement savings.I was told the life of the power chair is 7-10 years. If I live till my mid-90’s, it means that I will have to replace the chair 3-4 times. There goes 2 to 3 years of my retirement! And that is just for the power chair.Although I have yet to verify this, It is my understanding that I would not qualify for additional disability support because I will likely be drawing more than minimum income. I do not mind paying a portion of the cost of the chair... in fact I would want to do so... but not where it depletes my retirement fund to the point where I have to depend on the province for supplementary income and other housing supports.I realize that I am one a few 'disabled boomers' who have been able to have a successful business career (I know this because I was always the only one in a wheelchair in my various work environments), but with the recent government endeavors to encourage employment for the disabled, I am sure that there will be a growing number of individuals who will be facing the same financial challenge.I think the province should initiate a cost/benefit analysis to determine if such a scheme is viable. Even augmenting one's TSFA to allow the disabled to put away an additional lump sum each year for equipment would be a start. I am sure that the province of the future would want me and others like me to be as productive as possible as long as possible, living as much as possible from one’s own earnings and savings.In 2011-12, I was a volunteer member of the City of [location removed] Community Care Committee. One objective of this Committee is to foster accessibility. While inspecting a location near the intersection of [location removed], in response to a complaint, I found that the traffic island on the northwest corner may pose accessibility issues. The devil is in the details! First, this “humped” island presents steep grades that have to be surmounted. The pole, with the pedestrian press buttons, at the curb threatens to cause an eastbound wheelchair user or baby buggy to run off the island onto the road while trying to reach the press button. Also, a southbound scooter driver has to approach the pole to press the button and then execute a reverse turning movement to return to the curb letdown for the southbound crosswalk. After I observed this example of poor design, I looked for an example of a better intersection island. I found this example at the intersection of [location removed]. The noses of the island are standard height but the interior of the island is low. The island should have sufficient area to accommodate refuge and turning movements. The BC Ministry of Transportation & Infrastructure has a manual for signalized intersection design with specific guidelines for wheelchair ramps. It appears that these guidelines have a low priority. I hope that the Disability White Paper Consultation will raise awareness of these design deficiencies and press for greater compliance. The same disabled resident remarked that a sidewalk letdown near Fire Hall #1, in [location removed], was difficult to use by an unassisted person in a wheelchair. This letdown and segment of sidewalk would be difficult for an eastbound wheelchair user. The letdown rises steeply while the person has to maneuver a 90- degree turn as the sidewalk continues to climb moderately for a short distance. This location is more risky for a westbound user. As the wheelchair user approaches this corner the sidewalk inclines to follow the grade of the driveway. It also curves to the right. The wheelchair user has to brake with both hands to avoid running away; and to simultaneously steer to the right. The user is too preoccupied to watch over her/his left shoulder for turningvehicles. As the wheelchair user reaches the bottom of this inclined sidewalk, s/he has to quickly transition from a right- to left-hand turn; and come to a halt on the steeply inclined letdown into the roadway gutter. There is a high risk that the wheelchair will runaway into the driveway. Standard access ramps start and end with level landings (as detailed in the BC Building Access Handbook. Landings must be spacious enough (1.5m x 1.5m) to execute turns (if required). The devil is in the details! This sketch suggests a modification to the sidewalk that would make it easier and less risky to use by self-propelled people in wheelchairs and parents pushing strollers. A 4.5m long by 2 m wide section of the existing sidewalk would be replaced by a short ramp discharging to a spacious ‘level’ area for stopping and turning. I hope that the B.C. Disabled White Paper Consultation will recommend the creation of better design guides for municipal transportation engineers for intersections.I am writing to draw your attention to a design challenge with the “Sure-Grip” H.V.L. hand-control mechanism. After safely operating a wheelchair ramp-equipped 1995 Plymouth Grand Voyageur van for a decade, around 2006, myelderly, mobility-impaired mother began to complain about frightening vehicle behavior that she couldn’t explain well over the phone. At that time hand-controls had been installed due to the progressive deterioration of her condition from[information removed]. In one incident she was so terrified that she turned off the engine in the middle of a busy arterial road; and had to be rescued by staff of her long-term care facility who she called by cell phone. None of her children who visited could pinpoint the source of the problem! In October 2008 I got to understand the transient problem with the van. I was driving the van in a shopping mall parking lot, with my mother on her power chair in the rear, when the van began to accelerate unexpectedly. It continued to accelerate after I removed my foot from the accelerator pedal. I was not using the hand-controls. I was able to slow the van by pressing the brake pedal. In a few hair-raising minutes I was able to steer the van the few blocks back to my mother’s residence while the van continued to try to accelerate. As I turned off the ignition and withdrew the key, I noticed that the magnetic wand, used to deploy and stow the van’s wheelchair ramp, was fouled in the hand-control accelerator linkage. The linkage in the hand-control accelerator mechanism is directly beneath the ignition switch on the steering column. The magnetic wand was on a key chain1 looped, in turn, through the key ring for the ignition key. The end of the wand dangled about 8cm below the ignition switch. As the van lurched over a speed bump in the mall’s parking lot, I suspect that the wand was jostled into the open linkage mechanism. As a result, the hand-control accelerator was jammed in the “on” mode. A lucky rabbit’s foot or garage door “clicker” dangling from her key chain might have jammed just as easily too! I solved the problem by putting the magnetic wand directly onto the key ring for the ignition key (as shown above). This raised the wand away from the hand-control mechanism to prevent a recurrence. A real solution for “Sure-Grip”, the manufacturer, might be to enclose this simple and robust mechanism so that keys and other objects hanging from the ignition key would be shielded from fouling the hand control mechanism. Or to relocate the linkage away from the ignition switch. Or to use a bicycle-style cable-in-sleeve connection between the handle and the accelerator pedal. By featuring this hazard in the Disability White Paper Consultation you may help to spread the word to other disabled motorists who are terrorized by the same unexpected acceleration.I am writing with an example of the poor design of an assistive device for disabled people. My late, mobility-impaired, elderly mother lived in a long-term care facility in Ontario. In July 2009, she took delivery of a new Pride Mobility “Quantum 600” power chair with a Q-Logic controller: The Q-Logic controller, shown in the photo to the upper right, has an on-off toggle switch on the left-hand side; a speed control wheel on the right-hand side; a green mode select button in the lower centre; and a direction-speed control joy stick at the bottom. First, let’s consider the physical design of this device. Imagine the typical right-handed user with her hand placed on this device. The user’s fingers drape up the right side of the device convenient to the speed control wheel. The on-off toggle switch may be pressed with the tip of the thumb but is generally out-of the- way. But 7%-15% of users will be left-handed – such as my mother. With her left hand on the Q-Logic controller her fingers inadvertently touch the on-off toggle switch. When this happens the power chair stops. When she wraps her arthritic hand around the joy stick and presses it forward, her knuckles press on the mode select button. When the mode select button is pressed the power chair stops. The speed control wheel is awkward to turn because she can only jab at it with her left thumb; and the back of her hand blocks her view of the speed graph in the LCD screen.My mobility-impaired mother relied completely on her power chair for her “freedom”. During phone conversations, she had complained repeatedly that the chair stops unexpectedly. During visits one observes her power chair unexpectedly stopping; and her poking at the controls to restore operation. She is worried because the chair may stop in dangerous situations such as when ascending the sloping ramp into her van; when entering an elevator; or in the crosswalk at an intersection. I phoned Pride Mobility, in St. Catherines, ON, to ask whether the Q-Logic controller could have the positions of the speed control wheel and the on-off toggle switch exchanged for the convenience of a left-handeduser. They said “no”. They suggested that we try to find a third party to custom-make shields for the on-off switch and the menu button. This situation is simply poor design by Pride Mobility! This controller should bear a fourth decal warning: Dangerous for left-handed operation!But unfortunately that’s not all that’s wrong with this ‘assistive’ device. Now let’s look at the “psychological” features of this device. Many disabled users of this mobility device will have vision impairment. Yet the black speed knob and the black on-off toggle switch are indistinguishable from the black housing of the controller. It would make more sense for the on-off toggle switch to be red plastic and the speed knob to be bright green plastic. Red for “stop”. Green for “go”. This “top of the line” controller is capable of being programmed with five pre-defined operating modes, P1 through P5. The LCD screen displays the current mode as a letter and number. My mother can’t remember the purpose of mode P1 or any of the other modes. Her common operating requirements are: slow, fast, up ramp, and rough terrain. In the age of the graphical user interface, why not display icons for each mode? A turtle symbol for “slow”. A greyhound or cheetah image for “fast”. A wedge shape or monkey image for “ramp” mode. A jagged mountain symbol for “rough terrain”. Etc.? This product has many poor design features that are a pain-in-the-ass to disabled users. A malfunction of a mobility device, for instance while crossing a road, puts the user at risk of injury or death. A malfunction of a mobility device necessitates the temporary loss of use and loss of freedom for the user affecting their physical and mental well-being. An unnecessary all function and repair, or custom modification, are expenses that bear heavily on users – many of whom are low income. Finally, there are the “organizational” and “political” barriers to righting this problem. I have complained to Ontario Health, Transport Canada, and Health Canada. All claim that their legislation does not cover these issues in spite of the fact that they contributed thousands of dollars to help my mother buy this aggravating machine; and countless hours of staff time is needlessly taken up in the long-term care facility responding to my mother’s complaints. How can ULC and CSA certify this problematic device? This device should be de-certified until the manufacturer offers an all-weather product. I hope that this example will be communicated through the White Paper so the word will spread in the disabled community to avoid this “controller from Hell”.My late, mobility-impaired, elderly mother used a Pride Mobility “Quantum 600” power chair with a Q-Logic controller: She used this power chair with her ramp equipped van kept in an outdoor parking stall; to travel around the local community on the sidewalks; to go to thedining room where there are drinks; and to access the bathroom for bathing and hand-washing at a long-term care facility. Thus, I was upset when I observed the sticker on the Q-Logic controller (see photo above) that cautions users that the device is not waterproof. The unit cannot be used anywhere with assurance that it will not malfunction in wet conditions. I contacted Pride Mobility to ask whether another model ofcontroller was available that was waterproof. They said “no”. I find this incomprehensible as I am wearing an inexpensive Timex digital watch that claims to be waterproof to a depth of 100m using simple rubber O-ring gaskets (see photo). I met a fellow on his electric scooter in Vancouver who told me that he had to send it to the repair shop three times due to water infiltrating the controls. On another occasion at ashopping mall I observed a woman on an electric scooter with a plastic bag inverted over the handlebar controls to protect it from rain.This product has many poor design features that are a pain-in-the-ass to disabled users. A malfunction of a mobility device, for instance while crossing a road, puts the user at risk of injury or death. A malfunction of a mobility device necessitates the temporary loss of use and loss offreedom for the user affecting their physical and mental well-being. An unnecessary malfunction and repair, or custom modification, are expenses that bear heavily on users – many of whom are low income. Finally, there are the “organizational” and “political” barriers to eliminating this problem. I have complained to Ontario Health, Transport Canada, and Health Canada. All claim that their legislation does not cover these issues in spite of the fact that they contributed thousands of dollars to help my mother buy this aggravating machine; and countless hours of staff time is needlessly taken up in the long-term care facility responding to my mother’s complaints. How can ULC and CSA certify this problematic device? This device should be de-certified until the manufacturer offers an all-weather product. I hope that this example will be communicated through the White Paper so the word will spread in the disabled community to avoid mobility devices that are not waterproof.In 2009 I was given a "terminal cancer diagnosis" - -two months to live. A surgical intervention was proposed, --removal of my tongue, vocal chords jaw, left side of my face and neck. -- not a viable option with only 2 months to live.My Partner and I chose instead an intensive regime of radiation and chemotherapy ... that saved my life, my tongue, my jaw, my face and my neck.A side effect of the radiation was that my teeth were left prone to infection.Being unable to work and having undergone a joint personal bankruptcy we have no savings left and no disposable income. While being assisted by Social Services in BC, we were eligible for some Extended Medical coverage and some Dentistry coverage.As soon as we were removed from BC Assistance and placed on Federal CPP and CPP-Disability, we lost all access to Extended Medical and Dental Assistance.I am now facing potentially lethal Dental Infections due to the radiation damage, with no disposable income and no dental coverage in any form.Healthy Teeth are critical to general health, survival rates and quality of life.How many other Seniors in British Columbia are faced by similar 'dental challenges'? ... and what is the solution?I am writing as a resident of BC to express my views for the White Paper regarding Increasing Accessibility for People with Disabilities.?To ensure proper dignity and basic living conditions for people with disabilities, the following steps need to be taken.?1) Raise PWD benefits to $1200, index it to inflation, and establish a shelter allowance like the seniors SAFER program. BC's current disability benefit rate of $906/month (in red on the graph below) is completely inadequate and falls short of all poverty measures, including the most stringent possible. In comparison, Alberta's PWD rate is now $1588.?2) End the claw back of child support payments from PWD benefits. Currently, child support is taken off dollar for dollar from the income assistance benefit. The provincial government is depriving children of their right to child support by taking that money away from children who live in lone-parent families on assistance – some of the most vulnerable children in the province.?3) Commit to a poverty reduction plan for BC that would include these important measures and more.?Please do the right thing for People with Disabilities and implement these important steps.I STRONGLY support raising the Disability pension. $906 per month is in my opinion shameful. I don't know how people live on that. Alberta gives $1588 per month to a person with a disability. Surely BC can do as well or better. To live with one thing: in poverty, or suffer a painful chronic disease is hard enough but to live with both is extremely hard. I know, I have lived with [information removed] for 25 years. At times you wonder if life is worth living at all.I realize that funding for research is not a provincial matter but research into diseases such as auto-immune diseases is woefully underfunded. If there is anyway the Provincial Government could put pressure on the Federal Government for more research funding and raising the CPP it would be much appreciated.I have worked with?children and adults?with developmental disabilities for close to twenty years and have a few ideas to share in regards to how best to support people with disabilities. People would be much better served if there was only one Ministry relating to their service. Having one Ministry for children and one for adults is confusing, causes stress and does not make for good transitioning. Parents and families already experience a lot of stress so limiting this as much as possible is important and having one Ministry would do this, having one Social Worker would be even better. Another source of stress for families is having to find their own respite. This system does not work, people are already burnt out and this just adds more stress so they end up not using their respite dollars. Lastly I think people need to be provided with real choices for housing. Closing group homes and basically giving?people home share as their only option is not providing choice especially in small towns where sometimes a home share can't even be found in their own community.??Thank you for giving me the opportunity to share my thoughts and I look forward to seeing changes in the way support is provided to people with disabilities in BC.I will contribute my experience with Work BC.?I work with students with low incident special needs. ?One of the things I try and do is build vocational skills. ?The students I work with are quite high functioning and capable of working and living independently. ?From my experience, the services provided to help young people with special needs transition into the world after high school are very limited, especially since the amalgamation of employment services into Work BC. ?I took a 19 year old young man to Work BC in [location removed] and was shocked that they seemed to be unprepared to receive us. ?They were confused by this young man's disability because they couldn’t see it and they seemed to discourage us by suggesting that they had very little resources to provide any service to someone with a disability. ?They wanted us to fill out forms and gave us a long speech, all of which confused this young man and turned him off of this service entirely. ?To me this makes no sense. ?My suggestion is that there be a consultant from the special needs community assigned to advise Work BC as to their vocational needs.?I think your government needs to stop clawing back child support payments from single parents on income assistance. I agree with First Call that BC's child poverty rates are inexcusable. Their suggestion of a $300 exemption is worth implementing.I was also dismayed to learn that BC's poverty rate for children living in families headed by single mums was 49.8% in 2011, worse than all other families. This situation is rotten and your government can and must do something more than your current policies.As you missed Children’s Day to begin the provision of the exemption, Family Day would be an appropriate day to announce it.Thank you for providing an opportunity to voice concerns/offer hopefully helpful suggestions for improvements.My name is [name removed] and I work as a Support Worker, for a woman with developmental disabilities, for [location removed] Community Services.There are two areas that are consistently challenging to find successful connections in- Employment and Safe Social groups.Smart Options in [location removed] would be ideal to access, however, due to areas {we're in [location removed]} we are unable to access.Open Door's Garden Gate program is wonderful but understandably very specific in eligibility criteria and program length.Ultimately, an employment/social program like Garden Gate, staffed by Support Workers, that would be long term and without disqualifying admission requirements and would meet two very significant and important needs; to be in a place where there is acceptability and companionship and to have the opportunity to discover/develop the strengths that you have and find value in those abilities.This could be modelled as a community service/industry, like Gardengate, which again provides multiple viable functions.When you work directly with people, who face the challenges that persons with disabilities face, you realize the importance of the opportunities that they are not necessarily able to create for themselves. Thank you for the opportunity to present both the concern and the suggestion.ISSUE: There is a Barrier that needs to be removed for individuals with the Person with a Disability (PWD) designation who may choose to move from one province to another for family or work reasons. This Barrier to mobility should be seriously considered as it appears to be an infringement of the Canadian Charter of Rights and Freedoms.BACKGROUND: The Canadian Charter of Rights and Freedoms protects fundamental freedoms, democratic rights, the right to move from one province or territory to another in Canada, legal, equality and language rights, and Aboriginal rights.Mobility rights - Canadian Citizens and permanent residents have the constitutional right to live or seek work anywhere in Canada, including the right to live in one province and work in another. The Charter stops provinces and territories from discriminating against newcomers. For example, if a person is a qualified professional, such as an accountant, in one province, another province cannot prevent him or her from working there because that person does not live there.However, provinces can make a residency requirement for certain social and welfare benefits. However, delivered by 13 governments—the ten provinces and three territories—social benefit programs varies from one jurisdiction to another in terms of eligibility for assistance, the amount of basic assistance, types and amounts of special assistance, enforcement policies and provisions governing the appeal process.The core of all provincial/territorial social benefit systems is the 'needs test.' A detailed and intrusive investigation into claimants' medical and needs circumstances. The needs test is used to determine eligibility for and type and amount of benefits from the provincial social program.Currently if a PWD wants to move from one province to another they are required to withdraw from their home provincial system (e.g. BC) before they can apply to the new residency province (e.g. Ontario).This causes undue hardship because:1.They first need to meet the residency requirement of the newprovince and cannot apply for PWD unless they have actually moved provinces. They also need to have proof of not receiving any more their home PWD benefits. 2.To reapply for a new PWD requires the individual to re-establishtheir eligibility and needs. This requires them to fill in all forms and provide all supporting medical documentation and needs etc. Such documentation and proof may be impossible to readily obtain in a timely and cost effective manner if one has already left the home province and only will serve to delay the process. 3.While this process of reapplying is going on, the only access todisability supports for the individual will be to apply to the “social welfare” system of the new province.SUMMARYThere are problems regarding the availability and responsiveness of interprovincial disability supports. There is no Canada wide (federal) system to speak of, but rather Provinces and territories are responsible for the provision of these supports. The services to which individuals have access are a function of where they live and the social programs for which they are eligible. Canadians with a PWD designation looking to move from one province to another and access similar disability supports will find there is simply no transferable or interprovincial agreement system. RECOMMENDATIONS:If cost is an issue, then is it not far better to have a “national register” of persons with PWD, so that retesting is not required and applications can be expedited. Inevitably, any proposal for a new federal program/register like this will run up against the charge of interference in an area of 'provincial jurisdiction.' My understanding is that income security programs funded from general revenue today are co-jurisdictional, with either provinces or the federal government able to set up programs.Much more complex than dealing with jurisdictional issues is the challenge of coordinating the initiatives of the federal and provincial/territorial governments to permit implementation of the new programs to meet the needs of persons with disabilities. My main point is to demonstrate that the missing ingredient is dialogue between provinces and a political will to address this form of barrier. What is needed is the will to make these reforms.Many people have been submitting their concerns or their ideas about BC or Canada being the best place to live if you have a disability. We have made strides but remain with themes that reoccur:Professional training of teachers, doctors, pharmacists, dentists, police etc. must include how to serve the public who live with a disability or how to train a professional who lives with a disabilityCommunity Intentional inclusion: Businesses, government services same skill development on including, hiring, supporting persons with various disabilitiesEmployment: WORK BC redesign to actually meet the employment support needs of the range of persons with disabilitiesMinistry of Social Development: Rethink PWD (note this is underway) Again serving pwd with respect…MINISTRIES of Education and Advanced Education: inclusion in these experiences can lead to employment with universal designSerious concerns when the only financial comment is about RDSP when some people live without enough funds to eat a healthy breakfast to learn or work etc. The reality of waiting to 50 years of age – does not feed the person today. Poverty and disability are too often together.I am so glad to hear that the government is at least listening or pretending to. I have been disabled for about 16 years. I don't drink or use drugs and I still can't make it a month without the soup kitchen or food bank. I do drive which really costs a lot, but I cannot do without it as I also transport my roommates that are also disabled to the doctor and food shopping. We should not have to suffer like this, I really feel low about myself, so many people look down on us, like we are a burden on society. We are a very rich country there is no need for this and I really wish people would have more of a heart and quit knocking us. We are not all druggies or drunks, I don't know how they can afford to do drugs or drink. We have a really hard time and we don't even abuse our income.As a parent with a son with [information removed] and the amount of therapies/treatments, etc., that are needed the one thing that has been frustrating is having to re-submit the same paperwork every six months, ?and then going approximately 4 - 6 weeks without being covered by the "At Home Program" while the application process takes place. ? Living with [information removed] doesn't change every six months, therefore this seems like a process that is a costly one and a waste of time for the therapists involved and the government agency. ? I am hoping that this could be looked at and something that could change in the near future. ?It is a shame for my son’s therapy to be altered due to a delay in the approval process. ??Here is a letter from our SLP through communication with a [name removed] from the "At Home" program.? ?As you will see she was clearly frustrated with the process and lack of information she needed:This child’s family applied for and received funding for the At Home program with the assistance of a social worker. ?Prior to this client I have never dealt with the At Home Program or School Age Extended therapy program before.?Given that I have never dealt with your?program?before, how would you recommend a new service provider be expected to learn about the?medical?benefits program service requirements and deadlines??The only information I have ever received from your office was the copy of the authorization letter that was sent to the child's parents. In that letter it refers to a link on writing functional outcomes. ?I did refer to the information on writing functional outcomes. I also called the office for more information as there was a requirement that I was in communication with his community team yet he was not yet in kindergarten at the time the funding was approved. The first time I received comprehensive information about the At Home require and School Age extended therapies was in the attached documents you included in your email.?I think if your office is involved in payment to service providers?there also an onus of responsibility on your part to ensure service providers have the necessary information required to meet the service. New service providers should be sent a package ( such as the documents ?you provided in the email earlier today ) that outlines the service contract and outlines where to find necessary forms to abide by program requirements.?My point being that given the scarcity of specialized, trained professionals, ?I believe your office does need to also ?'do your part' to ensure families are able to retain their skilled therapists by ensuring your requirements for service providers ?are transparent and therapists are treatment with respect.As a manager at [location removed], I am responsible for setting up and coordinating services for newborn babies with hearing loss?throughout the province. I am intimately aware of setting up service contracts with service providers throughout this Province. When we set up a service contract with a new therapist, we offer an in-service outlying our required procedures and we refer them to the website designed specifically for?therapists?related to standards and?guidelines?and?timelines for documentation.?I trust future my dealings with your office will?courteous?and respectful. I encourage you to?reflect?upon my comments related to your dealings with professional new to the AT Home service provider requirements. I encourage you to share my feedback with your?supervisor. I would also encourage your office to do more to ensure that service providers; particularly new service providers, are provided with more information about required policies and procedure.To find out who said that read my latest Beacon News Op-Ed: BC's current disability benefit rate of $906 is completely inadequate and falls short of all poverty measures, including the most stringent possible. In comparison, Alberta's PWD rate is now $1588.? Along with my colleagues, our clients and their advocates, I would like to see the current rate in BC be raised, immediately, to $1200.My spouse left me shortly after I was diagnosed with [information removed] and am debilitated with extreme fatigue and am unable to walk without assistance for more than 20~30 meters.I live with my caregiver who no longer works; as at times I am unable to attend to daily activities safely by myself; such as, driving to appointments, yoga class, bathing, cooking etc.We both feel I am not yet ready for a full time care facility.We both exist on my paltry disability pensions and I think it would be good if in cases such as mine; the caregiver receives some government funded financial support.I am a lucky soul to have full time care provided by a person who cares so much for me.It's a shame this person only receives housing and food for a job that would otherwise cost government a lot of money to provide the needed care.B.C. would look like the most progressive place in Canada for people and families living with disabilities!I am a single income parent with no family or spousal support and have been affected by the recent cut of 5 hour/week support of a Child & Youth worker through NSDRC for my 8 year old son with [information removed]. As I understand this was done so that more families come of the waitlist.The service is now offered for 6 month only and working on specific goals. First of all, offering the service for 6 months only doesn't make sense since one of the most important things for kids with [information removed] is relationship building, also goals cannot be achieved sometimes in 6 months. My experience has also been that in the 1? years I have had the service through NSDRC we have had 5 different support workers and sometimes leaving a gap of weeks without any support. In my opinion a lot of money is wasted on administrative cost. What most parents with special needs children need is more respite. It is my experience that support workers are often sick, getting burned out and for most it is just a learning experience, not a real job. More direct funding options would be a much more beneficial option for most parents.Nevertheless, NSDRC is a great support and I wish parents with special needs children would have been involved in the decision making. Perhaps the weekly hours could have been cut from 5 to 4 hours a week in order to serve more families. What has happened now is just a shuffling of resources which helps one family and takes the help away from another, nothing gained. The decision to cut the hours has added a tremendous stress level on our family. I appreciate this opportunity to voice my opinion and trust that you will do your best to support the vulnerable community like myself.It never ceases to amaze me how thousands of dollars can jump seemingly out of a hat somewhere to provide for an injured animal, but when human beings are suffering and going without every day, there is no money. [name removed] was a proud and kind working man with a family, until on a certain day at his job; he was ordered by a supervisor to go into a grey area to clean up. At his particular place of work, grey areas were not to be entered. [name removed] brought this to the supervisor’s attention, but the supervisor told him to get the clean up done. [name removed] obeyed the supervisor, for fear of possibly losing his job. He proceeded to clean up in the grey area. On that particular day, [name removed] almost lost his life and was injured quite badly. Following over six months of fighting with WCB, cheques finally started to come. Approximately six months later [name removed] was attending a social function, at which a fellow he got to chatting with suggested they go outside for a smoke. Hours later [name removed] had not arrived home. [name removed] had been beaten and thrown over a bank and left for dead. [name removed] literally crawled home in the wee hours of the morning. He was in a lot of pain. He had no knowledge of who had done this to him. He did remember getting hit from behind, with a large piece of wood, possibly a two by four. [name removed] tolerated the pain as long as he could because he was afraid that if WCB. got information that he had been further injured outside of work that they would cut him off. With two young children at home [name removed] could not risk being penalized for something he did not cause, or have any say in. The pain became too much for [name removed], so he gave in and went to the Doc. His neck was broken in three places and his sternum had been crushed causing damage to his heart. Sure enough WCB, cut [name removed] off. [name removed] found himself poverty stricken and in pain. While waiting for surgery [name removed] was put on Tylenol with codeine by his doctor. [name removed] wore one of those halos for quite some time. The surgery never alleviated the pain. No further surgery could be done because [name removed]s heart was damaged. [name removed] did not ask for any of this pain.The emotional pain he has suffered due to being flat butt broke all the time and to add to that he lives every day with Chronic pain and sometimes acute pain. [name removed] is on certain painkillers, that only shorten his life further each and every day, because of his damaged heart. [name removed] suffers every day because of the thoughtlessness of a supervisor and some slime ball coward that took a notion to beat someone senseless. Does [name removed] deserve to suffer this way? Not! [name removed] was once a hardworking family man that would give the shirt off his back. [name removed] has tried to get employment, but because of his Chronic pain, he is neither able to sit or stand for any length of time. I spoke to [name removed] the other day and it took him over a year to be able to have cable tv.He was pleased, though he still has no phone because he cannot afford it. With his very bad heart a phone is an absolute must that he goes without. [name removed] has been scrutinized and judged, because at first glance you would never know how much pain he is in. How deceiving first appearances can be????He puts on a brave face. In spite of all the negativity [name removed] insists on helping others that have physical and mental challenges, that live in the same building he lives in. [name removed] lives well below the poverty line, not even able to afford the necessities of life let alone having a few dollars left to enjoy some type of entertainment. [name removed] did not deserve this, just as so many others that have physical and mental challenges did not deserve what they got.Many obtained these injuries due to another person’s cruelty or thoughtlessness. Many days [name removed] feels like he does not want to go on, WITH HIS LIFE THE WAY IT IS, but [name removed] says winners never quit! and quitters never win! [name removed] DESERVES SO MUCH MORE! He deserves respect and dignity at the least and this will never be a reality for him if he does not get help soon. [name removed] has been told he needs a heart transplant, and without one he does not have long to live. It would just be nice if [name removed] could spend what life he has left without worrying about how he is going to eat or if he can afford to buy toilet paper this month. He is now a diabetic and gets a whole fifteen dollars extra for his so called special diet. So Sad!!! [name removed] often reminisces about his work days and how much he enjoyed working. When you listen to him talk about it, its as though he is right there doing what he loved to do. Thank you for reading [name removed]s Story.These comments are from my 30 year-old daughter who has learning and developmental disabilities; her email use is sporadic and she has requested that I send her thoughts to you via my email.With regard to employment, there are very few openings for people with barriers. The few courses offered?for further education are limited to 3 or 4 areas of interest.Employers need to be open-minded with respect to hiring challenged employees. As with the story in the newspaper of the Tim Hortons franchise owner in Ontario who has hired one out of four people with disabilities in his stores, it can work. From her own experience, [name removed] is a high school grad (modified program) who has been looking for work for over a decade, on her own and with assistance from government programs. She is currently volunteering and enjoying it, but would desperately love to have a "real" job that pays a bit. As with anyone's life, there is a need to feel valued, useful and productive.Thank you for taking the time to listen.I appreciate this opportunity to thank the amazing professional and private people of [location removed], BC., who have continually supported, encouraged and cared for me during my [information removed]. The Child Development Centre, [information removed] Special Needs Staff, AimHi and [information removed] have enabled me to live independently, supported by my Gain Pension, AimHi and my parents.There are some places in [location removed] with only stair/step access – [information removed] Lanes Bowling Centre and The Dairy Queen on [location removed] for example - and if there were more funds available to build ramps or provide mobile built-in chairs for businesses that would really help.As Directors on the Board of the [information removed] Society of [location removed], my Mother and I are working to partner with "Stop-Gap"to construct mini-ramps with wood, built by the [information removed] These would be individually measured and made to fit against one-step Business front doors from Spring-Fall and brought inside and stored until the Spring again.If the Government could give funding to this project, this would help many more businesses provide disabled persons' access. Money: It is the foundation and cornerstone of every issue we face today.It seems all governments are strapped for funding for the many needs of the day. There is no doubt they are limited. It is however a problem of their own making. All governments presently follow the “trickle-down economic theory.” It says that the more money that goes to the top, the more jobs will be created. Facts and figures prove it to be a false theory. Why do they persist in tax breaks for business and increases for its citizens?We need to examine the problem in-depth. Present governments continue to give tax reduction to business while passing on government shortfall to the backs of the population. Hurting lower incomes the most, in particular those with disabilities. It is time to take back democracy and make business pay a fair share of government taxes, a tax that is income based and progressive for all. That is the only solution to address all social problems.Transportation: Transit workers are the only source of business success.If workers were unable to get to work business would fail. TransLink figures reveal the thousands of users of the public transit. A high percent are workers. The number that are disabled is not known to us but is mentioned in the UN –TRANSPORT CENTRAL TO SUSTAINABLE DEVELOPMENT, SECRETARY-[UN] GENERAL SAYS, TRANSPORTATION COULD BE FUNDED THROUGHT A BUSINESS TAX TO COVER ITS COST. FOR EXAMPLE, “DENMARK ANNOUNCES 61% TAX ON OIL COMPANIES TO FUND CLEAN RAIL PROJECT. DECEMBER 8, 2013?Canada is a signatory of the UN Convention On The Rights Of People With Disabilities as far as we know. Article 20 says: “Government should do everything possible, including by; ensuring people can travel when they want at a price they can afford.?What does this mean? When planning for a transport infrastructure, public authorities should think about how disabled people are affected, particularly those who rely on one type of transport.” Selected quotes.?We therefore respectfully ask that this information be included in the white paper with a recommendation: All governments must halt following the trickle down theory and introduce a fair tax system based on income (including profits) that is progressive for both income tax and business tax.?Increase the amounts that can be earned by Annualized Earnings Exemptions participants without having money taken off their cheques. For instance, one PWD with a partner?without a disability is allowed to make $12,000 per year without benefits being clawed back. I would like to see this amount increased to at?least $18,000 per year. This would not cost the government a thing, but would give more earning freedom and self esteem?to Persons with Disabilities.In December 2013 Canada Post Corporation (CPC) announced its intention, over the next five years, to discontinue mail delivery to homes in urban areas and to substitute with mail delivery to new community mail boxes. A high priority for these community mail box installations in established residential neighborhoods is that the sites and facilities must be accessible. The late British architect Selwyn Goldsmith established an eight level hierarchy of mobility-impairment. His hierarchy is shaped like a pyramid with the largest segment of the population at the bottom level with no mobility impairment to the smallest group of our population at the top with extreme mobility impairment.The focus of attention is often on the people in levels 5 to 8 but this White Paper must assure that the broader needs of the people at levels 3 and 4 are facilitated also. Parents encumbered with slow walking and distracted youngsters, a parent guiding a stroller with an infant, and people temporarily or permanently encumbered by the use of a cane, crutches or walker. As well as mobility encumbrances, users of community mail boxes may have visual, cognitive, and dexterity impairments. For instance, the standard community superbox has from nineto fifteen individual mail boxes without (generic) identifying marks. Several gray super boxes may be mounted side-by-side in order to provide sufficient mail boxes to serve a neighborhood. A person with a visual or cognitive impairment may have difficulty identifying their mail box among the tens of identical boxes. CPC should provide superboxes in a rainbow of colors; and each mail box should have a raised/tactile number or letter to distinguish it. People with dexterity limitations may be challenged by the standard mail box key with a head (bow) the size, shape and texture of a quarter. This standard key may be difficult to hold and turn. It may be difficult to insert into the small lock. 1 Universal design : a manual of practical guidance for architects / Selwyn Goldsmith with PRP Architects, Architectural Press, 2000 – Vancouver Public Library 720.87 G62u Page 2 of 2 This photo illustrates many challenges for the disabled user of a super mailbox. The installation is exposed to the elements especially rain and snow (most mobility scooters are not waterproof). There is no illumination for access at night. The solid base of each unit does not offer any “kick space” to accommodate the footrest of a wheelchair or the close approach of a walker. There is no on-street designated parking with a curb cut and paved path between the road and the sidewalk to facilitate access from a parked vehicle (the best arrangement would be an extra-deep pullout). Finally, any mailbox higher than 1.2m above the sidewalk is inaccessible to a person in a wheelchair. Better community mail box installations may be provided in conjunction with new residential developments. The challenge for CPC and municipalities will be shoehorning new superbox installations into old neighborhoods in a careful way that provides excellent access for all. The community mail box installation shown in this photo provides shelter from rain and snow; and illumination for access at night. The level paved surface in front of the boxes offers a 1.5m turning circle for wheelchairs. The boxes are unobstructed below to provide kick space. A shelf is provided for holding the key and mail.I live in a rural area 45 minutes from town.? There is no bus service where I live.? I get no assistance for vehicle insurance, gas, or buying a vehicle.? The least the government could do is help with gas and insurance.There is no HandyDART where I live.I don't qualify for any assistance because I am not missing a limb.? I did try to apply for assistance but because I don't qualify I get no assistance.I live in a rural area with no bus service. I don't receive any assistance for transportation. How does the government expect me to get around? I live 45 minutes from town one ics include housing, employment, or volunteer services, and funding for necessities of life. Create a shelter subsidy for any Family who spends over 50% of the family income for rent and basic utilities. Basic utilities include, but are not limited to, hydro, basic telephone service, alternate heating sources, water, and garbage expenses.HOUSING COSTSIdeally no person should have to pay more than 30% of their income on shelter. We know, however, that for the poor this is a pipe dream, unless they are in subsidized housing. For someone who pays 72% of her income on basic shelter costs, those include basic hydro, telephone service, alternate heating sources, water, garbage, and rent expenses.This also includes laundry costs for rental washer and dryer. I wonder how I manage. One way I manage is my decision to give up Cable TV and Internet services. Furthermore, I have not heated my apartment for the last two winters. As I live on Vancouver Island this is a minor hardship. We all know, however, that a greater part of the province has cold winters, lasting between four and six months of the year and extra heat is required. People who work on the front lines with income assistance recipients are aware that rent and hydro costs alone prevent many people from having an adequate source of nutritional food. INCOME ALTERNATIVESMy concern deals with people who are not able to work, not even 10 hours a week or month. Are there people like these? YES. These people have medical conditions that proh8ibit any type of volunteer or paid employment. Furthermore, some of these people have been diagnosed with severe illiteracy issues. In my practice I have ten such people. For at least some of the people I work for I would like to see something similar to the Community Volunteer Supplement.A specific group of Persons With Disabilities have an income through another source. These people receive Canada Pension Plan payments through early retirement. Consider the amount $85.00$85 represents the cost of my basic utilities, basic telephone and hydro. $85 is the amount I receive from CPP. I believe in working for welfare. I work hard as a volunteer non-legal advocate, clocking between 20 and 30 hours a month. I assist people to apply for the PWD application. I receive the Community Volunteer Supplement. Due to medical conditions, together with caring for the needs of the people who require my assistance, I cannot be otherwise employed. At one time I was gainfully employed and contributed to CPP. I would appreciate not having the CPP amounts clawed back.Keeping the full $85, would be similar to $85 in wages, which I would be able to keep without claw back.I read a statement written by Mayor Dean Fortin of Victoria. He was upset to see that despite increased housing for the hard to house there still remained poverty in Victoria. Housing is only one plank towards ending severe poverty. I wrote to him and he responded. He informed me that the Mayor of Vancouver, together with councillors, had approached Premier Christy Clark, about increasing welfare rates.He was also willing to take that idea to the Mayor's Council. I believe he was thinking of seeking different ideas outside the box.The following are some thoughts for the White Paper Panel to consider.1. Increase shelter rates to better reflect the market cost of rental and basic utilities. Basic utilities are defined as hydro, land line telephone, water, garbage, alternate heat, as well as rent and laundry machine rent costs. Shelter rates must be increased to reflect increase cost for basic utilities, especially hydro. Furthermore, consideration must be given to men and women who are unable to be gainfully employed or able to volunteer for a subsidy to cover basic Cable and/or Internet hook-ups.2. In place of wage benefits of $800 per Persons With Disabilities, part of that $800 should also include any CPP benefits for people between the ages of 60 to 65. CPP is a fund where both employer and employee have made contributions. It is similar to tax rebates on income tax. 3. Support rates must keep pace with genuine cost of living increases.This includes, but is not limited to, increase cost of basic nutritional food. These exist enough studies that inform governments what the average cost of a healthy, basic diet is for different sized families. These are my thoughts. I would sincerely appreciate hearing of different ideas to increase money for men and women of BC who are not able, for whatever reason, to be gainfully employed and must survive on income assistance rates.My name is [name removed], I am a [information removed] confined to an electric wheelchair for the past 30 years. I am currently a director In [information removed] I am also the recipient of technology for independent living supplies for the handicapped and technology.Firstly, I want to say that TIL is doing a super job making my quality of life better with the technology that is currently available. I am also the recipient of EATI in the form of a new electric wheelchair and an electric door opener. These two items greatly improve my quality of life and safety and independence. It would be a great disservice to the disabled community if any of this funding for these very important and essential programs was cut or in any way decreased. I believe they are both running currently on shoestring budgets. I appeal to as a director of two disabled organizations, who all share my views, to increase any funds available to these two very important programs.I really enjoyed the meeting last night in Prince George. I think that for the most part everyone was open and willing to suggest their input to the conversation. I would hope that there is a long term plan behind this method of listing to the people who contribute to the discussion? What is the plan for the government to act on after this is all done?First I would like to thank you for this form and giving us a voice.? Dealing with the Ministry is very difficult as we are often treated as second class.? I would like a separation between PWD and regular income people.We are paid both through CPP and the ministry once a month even if that month has 4 or 5 weeks.? To be paid for the extra week would give usone extra months pay.? That extra month would be very helpful.? When we worked we were paid every two weeks.A few extra chiro, massage, or physo appoints would be great.? Even having to pay the user fees can be a hardship for most of us.? Thank you for your time and consideration.? Hi, I have worked with persons with disabilities for some 40 years.? I am currently taking a Directed Study course with York University that covers topics on disability and disability theology. My present job is an an educational assistant in a Learning Center in a? High School. For the past several years I have immersed myself in readings on Disability Theology to answer an ongoing question that would not go away. "Why aren't there more people with visible disabilities in Church?. "My reading tells me that even with accessible washrooms, elevators, electric doors and specialized seating there has not been this big influx of persons with disabilities into churches. Much of it is tradition but one of the reasons is the role models that are set in place. There are very few ramps to altar areas or speaking /preaching areas in churches. As a community support worker taking my clients to a variety of churches over the years I really started to notice this. Along with this same kind of few token wheelchair attendees or one or two or less persons in fairly large churches . Way back in Leviticus there was this whole thing about people with disabilities not being able to approach the holy places of God. It set them up a few millenia later for things like T4 Nazi extermination. ?? When we don't ramp the altar areas in a church it says. "You can't come up here. You are unfit. "The church has traditionally been the role model (well it was) or is supposed to be for how we treat people. I know there are things we cannot change. We may not be able to change attitudes over night. But from what I understand about the access codes it says that ramps are to be put where there is a reasonable expectation that people will work there . Does that mean that no persons with disabilities will be working in the altar areas of the lets say in Abbotsford alone the 45 churches....Well I did find one exception. Interesting. The former pastor there had a son with a disability and there altar area was ramped at Highland Mennonite. No big deal, nice long low gradual ramp side entry off the seating area. It can be done. There are for instance some new churches...and churches in Vancouver and Abbotsford that have schools attached or close by that do not have ramps to the altar areas .The schools are having seismic upgrading and some of the buildings but I am pretty sure when they finish they will still have missed that their altars aren't ramped and that is a not a good modeling tool for acceptance of persons with disabilities. Some of them? are being built brand new still without altar ramps. I did ask...I was told if the need arose we could use a wooden board.? I don't think this really nice man which he is really thought about power wheelchairs and what they would do to his little wooden board...So please could you include something on disability awareness departments or facilitators in churches and structural designs that all members of the congregation in participating in worship in any area of the church that they are capable of participating in. People in wheelchairs can read a Bible from a podium , or pray or do anything else an able bodied person does if things are adjusted. The idea they can't and they have in this day and age barriers to places where only the able bodied can go is well its? ....unholy. if not downright discriminatory and rude....My name is [name removed] and I am a 67 year old Canadian male. I am a [information removed] and have been since my accident in Calgary in November 1966. ?I moved to BC in 1985. ?In 2002 my wife and I lived in New Zealand for 18 months. We then lived in Tuscon Arizona for 13 months. We returned to Canada and have resided in [location removed] since 2004.I have lived a very full life.After my accident in 1966 and then the subsequent hospital/rehabilitation process I got on with my life. ? For the most part I never saw another person in a wheelchair for many years. ?I seemed to be alone in that regard. ?I did not covet or seek out other disabled persons, my family, my friends, my work mates were all able bodied. ?Services for disabled people were nonexistent. ?Over time things have improved, but much is still to be done. ?Again, I have lived a full life, many experiences.This last December my wife and I made a date with some friends who live in [location removed]. Their home is not conducive to a person in a wheelchair and I made a reservation at a Hotel in [location removed]. I was assured that it was a room designed for a person in a wheelchair, a disabled access room. ?We arrived and checked in to find another ridiculous room. This happens constantly. And, in fact, access to an appropriate room is not as good today as it was 15-20 years ago in BC.I make purchases at the Signature BC Liquor store in [location removed]. Access to the store from the parking lot is poor. ?When I leave the store with a flat of beer on my lap for instance, because the ramp was not built to the BC building code standard, it is a perilous trip down the ramp backward into oncoming parking lot traffic. ?A ridiculous and unsafe experience.The issuance of disabled access parking stickers does not meet any reasonable standard of need.These three concerns are important to me and I am sure important to other disabled people. I will not be able to make a presentation in Abbotsford, but I would very much like to share my life and my experiences with the BC government. I have 47 years of experience, a lot of knowledge, I would be willing to share it and help craft new access models for people with disabilities in British Columbia. ?My extensive “living”, and the perspectives I have learned may be valuable.In Prince George the bus stops were inaccessible due to ice and snow banks left in front of stops; there are several lower rent apartment buildings with no wheelchair access or elevator; when sidewalks were cleared (not regularly) they were not sanded becoming glare ice, pedestrians chose to walk on streets (even in high traffic areas) for safety;Persons with disabilities' focus is to take care of their health and reduce stress so they can live with dignity.What can the Province of British Columbia do to facilitate a life of healthy, stress free, dignity for the disabled?Financial:There needs to be a significant raise in the PWD benefit to bring us up to date with the current financial reality. Everything keeps going up while the maximum pension amount stays the same. Nutritious food, housing and heat are often out of financial reach.Immediately after the increase adjustment, the PWD benefit must be indexed to the rate of inflation and go up accordingly every year so that we can maintain our standard of living.The dietary supplement also must go up and be indexed. The price of healthy food and needed supplements is on a constant upward spiral.The housing portion of the PWD benefit needs serious readjustment. Who can find a suitable place to rent for $375.00 per month, especially if you have specific health related needs?PWD benefits must be income tax exempt.Ministry Access:The administration of the PWD benefit needs to be separated from Welfare administration. They can share the same staff and location, but there are major differences between the needs of these two programs.PWDs need to have access to the SAME counsellor each visit so that they can establish a bond of trust and the worker can become intimately familiar with the health status and needs of the client.The client needs to be able to make an appointment with their counsellor at a convenient time for the client. (If a client has issues that happen to coincide with the cheque issue date, they are not able/capable of standing in line for hours to see someone about their issues – especially outside in the elements which is common in Kelowna.)There is a culture of suspicion and mistrust at the Ministry which is very stressful. Clients are treated as if they are dishonest and that they are somehow trying to get money out of the counsellors' own pockets. Even with copious amounts of paperwork completed by Doctors and Specialists, this does not seem to allay the suspicion which can engender feelings of guilt and stress in the clients. Clients should not have to 'prove' their income when the Ministry already has access to these records electronically. More stress, wasted time and gasoline/money. This culture has to change! Why do we have to beg? We need help and understanding. Counsellors are supposed to be there to provide assistance, not a guilt trip.Once a person qualifies for PWD they should be advised of ALL the other benefits and programs that they could be eligible for. Most people are given no information about supporting programs and are expected to somehow find out about them through osmosis. Once again, the culture of 'keeping the money in the Ministry'. These supports are not a gift, we are all paying for them with our tax dollars.Cheque stubs need to be filed over the internet. Countless hours and wasted gasoline dollars could be saved.Medical and Dental:Dental issues need to be addressed realistically. The allowance for dental (if you qualify) is far too low and does not provide for any crown and bridge work. The Ministry's solution seems to be extraction and dentures. This is not an acceptable option. Is the Ministry aware that, when someone with PWD dental benefits goes to the dentist, they are still charged a co-pay fee for each procedure? This can run into the hundreds of dollars – we can't afford this. The only place to 'find' money in a PWD budget is the food money. Often the choice facing PWDs is between necessary health services or food. This should not be so!Prescriptions also need to be looked at. Often there is nothing suitable for prescription in the formulary – which is covered under PWD medical. Clients must go outside the formulary to find relief and pay large prescription costs. Efforts should be made to get new drugs into the formulary more quickly, or cover the costs through a PWD formulary exemption.Work and Dignity:The paid volunteer program needs to be reinstated and the compensation amount raised. PWDs can often work at their own pace and ability level within these programs, get some additional funding and often find increased self-esteem and are able to make friendships and develop personal ethics while helping out a worthy cause. Win-win!A Culture of Compassion:It is my firm belief that all the staff at the Ministry could take advantage of some sensitivity and compassion training. These programs should be repeated for all staff at least every two years. Staff need to remember that they are only one or two pay cheques or an illness/injury away from needing help themselves. They must learn to 'walk around in our skin' and see things from our perspective.Disabled bathrooms:Assume that a disabled person is by self so the bathroom needs to help accommodate wheelchair so that the door can be closed by the disabled person then have the ability to stand to access the toilet.?Airplanes need to ensure access to stand is there.I will keep my comments brief.? I believe that PWD benefits should be increased and that people receiving PWD benefits should be able to earn more than they are currently allowed.? Working gives people a sense of purpose and self-worth.? It contributes to their well-being and the income increases their independence, so they rely less on government services.Submission to the white paper on disability issues with particular attention to EmploymentWhat follow is mainly my observations, thoughts and opinions gathered through my years in the labor force. I have [information removed], which results in mobility difficulties. At nearly 64 years old, I am no longer a contender for a serious job, but nonetheless, I feel my experiences have developed some ideas and opinions for improvement.Unfortunately, employment problems that the disabled face are part of a much larger problem. A globally based economy has changed many realities, as has the massive changes we have seen as the result of technological advances. I nonetheless feel that many of our problems have their roots and solutions at the national level.Arguably we live in one of the best places and countries in the world. We enjoy freedoms, comforts and conveniences that many can only dream of. However, I strongly feel that we are doing a terrible job of looking after our own interests, particularly when it comes to a successful and secure future for our citizens. Few would argue against the idea that the country owes no one a living. That is something that must be worked for. Nonetheless, with that in mind, I feel that the country does owe its people is a good strong opportunity to obtain a good job and a secure future.With the above in mind, I feel it is absolutely criminal the way we have allowed jobs and industry out of this country. I am quite certain that our forefathers did not put the work they did into developing this country for future generations just to see it given away. The same sentiment will doubtless be shared by our veterans who fought so hard for the freedoms this country enjoys. Yes, labour is expensive here, and it should be so. We have worked very hard for our standard of living, and need to tenaciously hang on to it and fight for it. The argument is that we can’t compete with foreign labour. Of course we can’t if we don’t try! We truly need to work smarter.It can be argued that new technology has opened up opportunities for many disabled that never existed before. There is no dispute here, given the assistive devices that have been developed. Talking books and voice recognition being but two. Certainly life for many is much easier physically with available conveniences. Nonetheless, on the employment front, the above realities have left in their wake a huge gap in available opportunities. Not everyone is cut out to spend their working days sitting behind a screen, pushing a pen, or filling an administrative position, and just because a person faces a disability does not, and should not change that reality.Environment is also cited as a factor here, and it certainly has had a huge impact on our actions and policies. The media is full of baffle gab from all forms of special interest groups, all championing their own little concern. Action is often taken from there, largely based on popular opinion before it faces the test of anything scientifically proven.We then let our industry go elsewhere, when we are all on the same planet!My recommendations would be as follows:Although no reasonable person is going to argue against public safety, the role of Work Safe BC, needs a thorough examination. Here we have an institution with far too much power, and that power unreasonably limits the opportunities of those with disabilities.If changes were implemented in the above, our unions could then have more of a role in disabled employment. As it is, the hands of both unions and management are unreasonably tied, and opportunities for employment for the disabled that represent anything more than an existence, as opposed to a living are abysmal.Many European countries offer tax exemptions to companies who offer on the job training. This can be a powerful incentive to offer training provided it is set up properly.Municipalities could receive a lot more encouragement than they do to set up clean industries which provide good solid jobs. Of course public perception is often a problem here. NIMBY people worry about their own immediate surroundings rather than the future of their children.Environmental policy needs to be under much stronger reasonable scientific scrutinyEmployers in general need to be educated about the realities the disabled face. It surprises many to learn that significant disabilities in Canada account for an equal proportion of our population to that of seniors. How much larger does our group need to become before we are heard and our realities seen?Finally, in general, much more attention and effort needs to go toward dealing with our current economic realities. Canada has both the resources and the available manpower to become untouchable. I also believe we have the knowledge within the country to do so. What we lack is the political will.I have a few comments about disability trusts for your consideration:There does not seem to be any benefit to distinguish between Non-discretionary trusts and discretionary trusts merely based on who the trustee is.? If a person has the ability to manage their own trust, then there should not be a dollar limit on this trust.? The government should be seen to be promoting empowerment of individuals, not forcing them to get assistance from a third party trustee.While I appreciate that the limits for expenditures from a disability trust were increased recently, most people could really improve the quality of their lives by a doubling of the current annual expenditure limit.There should be some small cash amount (say $200 per month) allowed to be paid out of a trust to the individual for their own personal use (for example, for buying Christmas or birthday presents, buying cigarettes, a special dinner occasion, etc.) without reducing their B.C. benefits dollar for dollar.? The government should be seen to try to improve the dignity of individuals receiving benefits. This may also alleviate the need to increase the benefit amounts across the board at this time.I look forward to reviewing the White Paper in due course.Through my personal experience and from my contacts with other disabled persons I recognize there is a large gap between our expectations and the reality of disabled persons obtaining the disability insurance to which they should be entitled.? This can create an overwhelming barrier for many of our disabled.? To understand the barrier it is necessary to relate my personal experiences.In 2006 I [information removed] while playing hockey.? I continued to work as a forensic accountant and security consultant for a month, however, the severity of the pain and the complications of medication rendered me incapable of working productively.? I was forced to stop working 31 days after the [information removed].? Approximately five months later a six inch long [information removed] was found and [information removed].? When I asked the neurosurgeon when I would be able to return to work he advised me that due to residual and permanent pain I would be lucky to get back to living.? I have been fortunate to be a well-educated person with financial resources, albeit much reduced, and the additional support of a working wife.? Unfortunately, the insurance company who managed the disability insurance which provides me with wage-loss replacement arbitrarily cut-off my payments.? This was done without the insurance company providing any rationale and without having obtained any current medical from my physicians. ?As a result, my family and I have been experiencing significant financial and emotional stress.? I found no alternative to making $5000 of legal and medical expenditures to force the insurance company re-instate the payments.? Unfortunately, we are still expending money in ongoing legal proceedings regarding the insurance company improperly reducing my income by twice the amount of payments I receive from CPP for being disabled. At the recommendation of my physician, I attended a [information removed] in Vancouver.? During the program I met with other patients disabled by pain to various degrees.? Some people have experienced similar issues with their insurance providers.? One of the patients at the [information removed] told me of some of the difficulties she had with her insurance provider cutting off her payments and forcing her to take jobs that she despite numerous attempts she was not able to perform.? She had neither the financial or emotional resources to allow her to oppose her insurance company.? I asked my physician, who has a number of chronic pain patients, what most people do in similar circumstances.? She told me that most people just give up and go on welfare. While this may not be what most people think of as a barrier to the disabled, it is both real and profound.? I have not found any government, private or charitable agency to provide me with substantial direction or advocacy.? While I have the experience, education, familial, and hopefully, financial resources to access justice through the courts, there may be many disabled who face insurmountable barriers to obtaining insurance assistance to which they are entitled.? It would be beneficial if disabled persons had someone to provide substantive information, direction and advocacy to assist them in obtaining insurance payments and benefits to which they are entitled.? Such assistance could move some of the costs of disability from the public purse to insurance companies where it belongs.Hearing loss is the largest disability in Canada. Because this disability is hidden, most people do not realize how many are affected. Government has not yet taken the necessary action to improving accessibility in public places for people who wear hearing aids.Most people with moderate to severe hearing loss who wear hearing aids can no longer attend public functions (government meeting rooms, churches, senior centre meeting rooms, movies, other public events). Hearing aids work well in small rooms and quiet settings. The problem is, they do not work well in public areas. In large, open spaces, sound bounces off high ceilings and distant walls; the echoes produced are picked up by hearing aids. People with serious hearing loss wearing hearing aids feel socially isolated at public events because background noise prevents them from hearing what they came to hear. Telecoil loop installations are the solution to that problem. Telecoil loops can be installed around a counter, a meeting room or even an entire stadium. Loops connect microphones directly to the t-coil setting in each person’s hearing aid and background noise is reduced. In Europe, hearing loop systems are common everywhere--customer service counters, theatres, churches, all levels of government meeting rooms, even airports. In the U.K., where access for the hearing disabled is required by law, most post offices and 11,500 taxis are looped. We are way behind in Canada. The Provincial government should install telecoil hearing loops in major meeting rooms in the Legislature. Just as we provide ramp and elevator access for those in wheelchairs, we must install telecoil hearing loops in public places for those with hearing aids. In both cases, removal of barriers increases accessibility in public areas for people with disabilities. Professional advice and information on loop systems is available at the Island Deaf and Hard of Hearing Centre (office in downtown Victoria at 754 Broughton St.) The not-for-profit society’s Spring 2013 Newsletter explains how telecoil works and mentions the B.C. sound installation company who installed hearing loops at all 56 Van City branches: The Province should set an example by installing hearing loops at the Legislature as well as launch a campaign and establish a grant system to encourage businesses and other levels of government to loop customer service counters, meeting rooms and other public venues. These are the specific and affordable actions we should take throughout the Province to make public places more accessible for those who are hard-of-hearing.This is ridiculous! I want to come, but am unable to get a ride with HandyDART! Typical! Every one of the last 6 requests I have made to get them, has been denied! So I guess what it comes down to is this....IF you are disabled, good luck! Here in B.C. you are treated like a second class citizen! We really want to have your input (but we really don't) so sure, sign up, and don't worry, we WILL not be able to get you there! That's how much our Government cares about YOU and YOUR opinion!Please work with [name removed] and community living bc management to get 2 different kinds of contracts. One for support workers, one for only people with special needs to work in the field too. Then it would be an inclusive disability field. Don’t exclude people with disabilities from this kind of workforce. Make all workplaces inclusive from clbc, developmental disability service providers, retail and other services too thanks.And equal employment is wonderful in any field even in the disability field working alongside other professionals. we have a right to work wherever we want too, without the government telling us where to work. Please don't discriminate just because we have a disability. we want contracts like anyone else can from community living bc. And I am looking forward to the new contracts for people with special needs, not just support contracts.Hi My Name is [name removed] and please work with clbc, [name removed] she works for the province of bc, she is a self advocate adviser with community living bc. please work with [name removed] and clbc management closely to develop contracts for people with developmental disabilities to work with people with developmental disabilities for example the [location removed] self advocate newsletters and the business for the newsletter needs contracts to hire staff thanks. The newsletter is started but not the business yet. [Names removed] is talking with community futures about this, and I am upset right now that the government of bc discriminates against people with disabilities by working with people with disabilities. we have the right to make choices where we work. The newsletter is called the [location removed] self advocate newsletter we promote service providers and people with diverse abilities. Please get on this thanks. and make my dream of working in the disability field come true thanks. I have a passion for working with them and the service providers and need help badly thanks. I can relate to them as I live with developmental disabilities myself. I wrote this under innovation in disability services, now I am e-mailing it to you guys thanks. Please do something about this madness.bc has a law to protect workers with disabilities from discrimination. And contracts are a form of employment. So there needs to be two different kinds of contracts one for support workers like respite workers, community living workers etc and the other one is only for people with disabilities and mental disabilities to have their dream come true if they wish to work in the disability field. And have small business grants with clbc to get people with disabilities and mental disabilities to start a business helping people with disabilities. I am glad and happy that the disability white paper is getting input and ideas and thoughts from people with disabilities and this is an important thought and comments about it. I looked up human rights in bc and it said bc protects against disability discrimination, please step up and show it thanks. Because I had a dream of working with them since I was 13 years old. I want?contracts for my staff and to hire a human resources director to hire staff and give pay roll to them for the newsletter work. I need it badly because we work helping service providers and people with disabilities out. But I don't have a business yet. The business is coming though soon. Please fix the clbc system thanks.Thanks for all your help people at the disability white paper.? and also advertisers are not enoiugh for me. we need contracts as well.Home Support:Folks requiring extensive Home Support would benefit tremendously emotionally (reduce stress) and logistically (arrangements /finances) if Home Support workers were allowed to provide basic cleaning, laundry and shopping services when the client is incapable of doing their own. If workers were provided more education on the medical condition of clients (i.e. MS, Alzheimer's, diabetes) it would also enhance empathy and quality of their munity Involvement/Contributions:Encouragement to participate in community activities within a person's capabilities is beneficial to the person and society. Kudos to the changes in CPP disability (federal) that allow people to volunteer, go to school, and work part time while on a disability pension. It encourages them to live to their full potential and contribute to society. Thank you for accepting these comments. It just got confusing trying to figure out how to navigate your site by topic etc. Not sure where these fit. Good luck with this task of enhancing disability programs to benefit clients and munity living bc only offers supports not other kinds of services for people with developmental disabilities for example the [location removed] self advocate newsletter that I want a contract for. I want contracts to hire staff and to start the business designed for them to work in the disability field. and people with disabilities have a right to work in the disability field or in retail and other services too. please get contracts designed for people with disabilities to work with people with disabilities, and its against the law by united nations to say where they are allowed to work. its discrimination. I want you to have a better understanding disability white paper that I can't apply for the support contracts so there needs to be contracts designed for people with special needs.Dear Disability White Paper Committee,Please find my thoughts on the questions and concerns being raised. I have been a designated PWD since 1999. More access to employment ready training. Such as; customer service, cashier, hotel maid, inventory, driver's license, etc.Training beyond resume, job search and interviews. Classes on stress management, dealing with other employees, proper conduct and conversation for the workplace.More perks for employers to hire a PWD. Free assistance in applying for the disability tax credits. Access to clothing and transportation for employment.Access to holistic services because most PWD have tried?to resolve their physical and mental health issues with prescription medications.And have become addicted to the medication which only creates?a more complex and long term barrier to employment.Hypnotherapy has been proven to resolve addictions and, increase productivity through stress and pain management. If it were proven that after only 6 treatments,?a PWD was more productive, that would be a very cost effective treatment plan.Thank you for asking us how we see a better BC for everyone!I attended the [location removed] workshop as an observer from the community. I had seen the small blurb in the local paper and wanted to learn more - assumed it was a drop-in open house, but found out it was a workshop. I stayed and listened that night.Since then, I have the following suggestions and comments regarding disabilities:1. Since there are a variety of disabilities and these people are spread throughout the different systems and ministries, it seems apparent that one ministry to deal with all would streamline the benefits, information and bureaucracy that people with disabilities must go through to obtain services they deserve. They need to feel more valued in our society, and being lumped in with the welfare system does not appear to accomplish that.2. Drug addiction and disability. There are distinct divisions within drug addiction:?People who are genuinely mentally ill and are self-medicating themselves with drugs just to survive their inner turmoil and tormentPeople who are damaged in the brain due to over-use of chemical drugs ?(i.e. meth addicts)People who are brought up in that lifestyle or enter it and chose to remain in it and milk the system/society for all it is worth (i.e. ‘welfare bums” to be quite honest). These people have no desire or motivation to “get better"I recommend that drug addicts be classified by healthcare professionals within this grid and treated appropriately by the system. They should not be put on disability just because they are addicted - this is just going to make it more of a stigma that "disability system equals welfare system”.Also it’s against the law in Canada and worldwide to discriminate against people with disabilities and special needs in employment law and contracts is a form of employment. I really want a contract CLBC and social development ministry and children and family development but these contracts are specialized for people with special needs while the other contracts that CLBC gives is for other people who can do supports and services. Please get it up and running really quick thanks. I am disappointed in the BC government for discriminating against us. I am upset and unhappy with the system. Please do me a favor and get the contracts specialized then more people with disabilities can have their dream coming true? Because we can relate to them. And it’s against the law everywhere.?It’s a wonderful idea! ?Thanks for including my comments. And for doing something about this discrimination thanks.Thanks. Its discrimination to not allow people with disabilities like developmental disabilities to work with them. We have the right to work with whoever we want to work with. And that's a barrier. Please look into giving contracts to people with special needs thanks at CLBC and at the children and family development as well. I also e-mailed Christy Clark about this matter as well. I am a self advocate. Have a wonderful day! Thanks for including my comments.Please get a different contract set up for people with special needs thanks. The government and society needs to have more people with diverse abilities starting businesses for people with diverse abilities working in the disability field. Most jobs in the disability field we can't do. And this needs urgent attention to this matter thanks. Work with CLBC getting more diverse ability people working in the field because we can?relate to them and I am one of the people who have a dream of working in the field, and most contracts with CLBC are for supports and services not for newsletters and other businesses that helps people with diverse abilities and service providers. I am upset and unhappy that I might not be able to get a contract working?with people with diverse abilities. That’s employment inclusion. And the disability white paper focuses on employment inclusion for people with disabilities. Please help me out here government and tax payers. I always had a dream of working with them since I was 13 years old. And I don't think its fair and its discrimination that people with disabilities can't work with them. I need help badly. I am disappointed. ?My name is [name removed]. I am retired and on CPP Disability due to a chronic medical illness, [information removed]. Up until 2011 I was also on the provincial PWD (People With Disabilities) program. Each month I would get my CPP Disability and then receive a top-up to my income from PWD, up to their maximum of $906 per month. A small cost of living in 2011 from CPP put me just over the PWD monthly maximum by about $15 or $20. I knew I wouldn’t receive a monthly top-up as my monthly income was just over the $906, however, I didn’t realize I would also lose my monthly bus pass. This is a huge benefit ($170 per month or $2,040 annually). I have been on disability since 2005 and have always benefitted from the annual bus pass program. I barely make ends meet each month and that is with a bus pass. Without it, I would be lost! I am able to walk, but, not supposed to lift heavy items. I am also supposed to avoid steep hills when walking. In short, I am not to have any physical or mental stress in my life. This has been, and still is, very traumatic to me. How do I choose when or where I can afford togo out each month! I have tried to fight this as best as I can. I sent a letter to Premier Christy Clark and while she was very empathetic, she said she had to pass it on to the appropriate ministry and have them deal with it. This was the Ministry of Social Development. Their response was considerably less empathetic. The response was a somewhat computer generated letter stating who qualified for the bus pass program, which I already knew. I do a lot of volunteering. I am a chef by trade and help out at [information removed] with community kitchen and community gardens programs. I also am involved in other areas of the city as well. I have a community garden plot at [location removed] and I am part of DIGA (Disabled Independent Gardening Association). I initially was a member, but, now I assist others as I am a little more independent than some there. Through DIGA I met [name removed] who is the food security co-ordinator for the [location removed] area. I have done some volunteering with him as well as benefitted from some of his programs. CNH introduced me to Quest which is a non-profit store where people on a lower income can shop. This has helped me out immensely. Unfortunately without a bus pass these things I am involved in will be lost or at best severely limited as I said I barely make ends meet now. In December 2011 I was taking a night school course on Community Capacity Building. One of my instructors knew of a reporter at the Vancouver Sun newspaper, [name removed]. She wrote an excellent article about my situation. I had a great response from readers and (5) of them offered to buy me a (1) month bus pass. I also received a phone call from a fellow high school graduate who had seen the article and unbeknownst to me had contacted fellow graduates to help me with my problem. Together, with the assistance of CNH and the local community, I was able to get enough assistance to get my bus pass for all of 2012. I continued my fight in 2012 and nothing happened until Global TV did a feature on me during the annual Senior’s Christmas Luncheon at CNH in December 2012. The story appeared on the news with Global TV that night. I had a great response from a couple that saw the story and was touched by it. They offered to buy me my bus pass for the year. This offer moved me and brought me to tears with their generosity! This year the same couple have been very supportive of my fight and have offered to pay for my bus for 2014. Unfortunately, I am still in the same position again. At the end of this year I will have to try to obtain a bus pass for 2015 and beyond. This is something I have lost through no fault of my own and is totally unfair! I am still on a disability making less than $1,000 per month and my condition is not curable. Nothing has changed with me. Last year I was tired and at first I thought I didn’t feel like continuing my fight. It is very hard and frustrating fighting something that seems so unjust! Nothing has changed for me so why am I excluded? My friends helped convince me that I have to continue the fight for me and others who are in, or will be in, the same position. Although I have no way of knowing the numbers, this affects many others and will continue to do so each year. This wouldn’t be a problem if both CPP Disability and PWD offered a cost of living or neither did. I can’t return the cost of living to get my bus pass back. I would do this in a heartbeat. In closing, I hope this will help bring attention to a law that is totally unjust and will certainly affect you or others you know in the future. Thank you very much for your time and consideration.Hi My Name is [name removed]. I am thinking about starting my own business with support from [name removed] at community companion program/New Horizons professional support services and [name removed] from Community living BC office in [location removed], she works for the community action employment plan. I am wondering if the tax payers, government could get a fund set up for contracts at community living bc for services that don't fit under supports for people with diverse abilities, because people might want to start a business for people with diverse abilities to work in the disability field but they don't offer support services, they do other kinds of services for people with developmental disabilities but not support. I am promoting service providers that work with CLBC and people with diverse abilities like mental health anti-stigma and other issues that affect people with special needs but it’s not support. So please look into getting a different contract for this reason and purpose thanks. I want an inclusive workplace. I have a dream of working in the field because I can relate to them. and hire non disability people with support as well. I want a contract from CLBC, but they might not offer it unless the business gives supports and services for example community living agencies. And also I would get advertisers as well to promote their business. I am upset that there is a good chance I can't get a contract by CLBC. And the social development ministry gives money to people that offer supports and services only right now. That’s employment inclusion. Get more people with diverse abilities working in the field for people with diverse abilities? I always had a dream of working with people like me. But there are no contracts for my kind of work. I have started a newsletter in September of 2013 for self advocates called the [location removed] self advocate newsletter and I drop it off to different service providers in [location removed]. More people with diverse abilities that can relate to them needs to be working with people with diverse abilities. Please e-mail me back. I am looking forward to hearing your reply thanks.Work and ContributionWe believe that all people with disabilities should have the opportunity to work and contribute to the workforce in a meaningful and productive manner. Our experience working in employment services and vocational rehabilitation indicates that this is not always possible. From this perspective, it needs to be recognized that many people living with disabilities may be unable to work competitively but are forced to try to find paid work because of extreme financial hardship. For these people, it would make more sense to increase their income benefits rather than putting them through costly employment service programs that will likely not lead to sustainable employment. Further, the extremely low income support provided by the government contributes to additional health risks and disability brought on by unsafe, substandard housing, poor nutrition, and other difficulties meeting basic needs.For people with disabilities who want to find employment to supplement their income benefits or determine their employability, the process to access employment and skills development services is cumbersome, difficult, and confusing. The reason for this appears to be largely due to different criteria based on income source. For example, individuals receiving private disability insurance may be able to access therapeutic counselling or work conditioning programs to prepare for return to work. These same services are not available to individuals accessing provincially funded employment services. We have observed that employment services tend to focus on short-term return-to-work solutions. For people living with disabilities, this often leads to low wage, low skill, and unstable jobs. With a longer term focus that includes a multi-year investment in skills development/training, many individuals would have significantly increased chances to compete for employment. Personal Supports, Aids and DevicesThe ability to obtain personal supports, aids, and devices is extremely difficult and complicated. There is often a dispute as to which service provider is the “first payer.” This often requires people to demonstrate they have exhausted public and private options prior to accessing a particular source of funding. When people are clearly low income and require support or a device, this process can be extremely stressful and delay receipt of essential disability supports. To streamline access to funding for disability supports, it would be helpful to simplify the application process and eliminate the need to apply to multiple funding sources. Other suggestions to improve access to disability supports include bringing back a loan program for people to try assistive equipment/technology before a purchase is made and considering an equipment exchange for items that are still usable. Housing and Accessibility in the Broader Built EnvironmentThe government can continue to demonstrate its commitment to developing decent, affordable and accessible housing for people with disabilities. Investing in housing has a positive economic benefit for mental and physical well-being that reduces healthcare costs. That said, the process for accessing affordable housing is complicated and people are waiting far too long (e.g., a year or more) to obtain housing through the registry. Asset Accumulation through Registered Disability Savings PlanThere is no question that asset accumulation through such programs as the Registered Disability Savings Plan is highly beneficial for people with disabilities. Unfortunately, many people with disabilities do not have the financial resources to contribute to such a program. If government income benefits were increased to meet basic needs, people able to work to earn some additional income would then have the capacity to build their personal assets.Social Networks to Support People in CommunitySocial network development is created by being involved in activities in the community. This can be facilitated by paid or volunteer work. By renewing its commitment to the Community Volunteer Supplement, the government can foster social opportunities. Continuing supports such as the LEAP program also help to facilitate recreation and social interaction. Unfortunately, transportation is frequently a barrier to community participation. While people who have PWD status can obtain a subsidized annual bus pass, there are many other people who have disabilities and low income who do not qualify for this program (e.g., CPP-D recipients). InnovationOne of the best ways for the BC government to encourage the inclusion of people with disabilities in all aspects of society is to lead by example. This can be achieved by re-examining the government’s hiring practices and HR policies. Specifically, the government’s current employment practices and systems present barriers to many capable people who require accommodation. For instance, there is no hiring provision or flexibility to modify job postings to allow people with disabilities to work within the government in a meaningful way, such as job sharing, flexible work schedules, or altering full-time positions to become part-time. Also, the implementation of the Integrated Case Management system meant that professionals with disabilities (e.g., those with vision impairments) were no longer able to carry out their job duties as this software is not user friendly/accessible. This has also eliminated an employment opportunity for people with these disabilities to work in the employment field. Furthermore, BC lacks strong legislation beyond the Human Rights Code that supports equal opportunities for people with disabilities in employment and society in general. Legislation needs to emulate the Americans with Disabilities Act (ADA) which ensures inclusion and a societal obligation for accommodation. The issue is people lose one PWD if we can't work with disabilities, and they can't live together because of that. That’s a big barrier. I am concerned and worried.I just wanted to clear it up. And make it clearer. I have started a newsletter in September of 2013 for people with diverse abilities issues and successes like mental health anti-stigma and much more. And I might bring this up to the MLAS in Kamloops Like Terry Lake and Todd Stone in Kamloops. And also talk about the white Paper, I get help from [name removed] from the community companion program at New Horizons professional support services in [location removed] that helps people with developmental disabilities, and I am a client of them and also [name removed] liked my idea and is an editor of the newsletter and our advisor. The community companion program is a peer mentoring program. Thanks for recording my concerns.Thanks. I am upset and mad at the government Because of PWD AND Some people I know want to get married but just can't because of your guys policies. I just wanted to e-mail you guys back and tell you the reasons why I think it’s not right. Please include the reasons also thanks. Have a wonderful day! I also might be meeting with our MLAS About this. More pressure the better.To Whom it may concern.Did you get my e-mail about its not fair when people without disabilities can have a 2 person income but we can't. People with disabilities have a right to get married and live as a couple, even people with special needs/developmental disabilities, people with disabilities can have a back problem so they can't work or other disabilities that could prevent them from working or owning a business. It’s not fair. Please change the policy. I am a client of community living BC and am a self advocate. And people need rights and freedoms to get married or live as a couple. I know some people with special needs can't get married or have a girlfriend and boyfriend because they can't handle it. But most people can handle relationships. And I am concerned when people don't have rights or freedoms on PWD. Please look into this matter thanks. Some people are frustrated at the government policies on PWD who have special needs of some short.I also work on the editorial board at [information removed] and it’s a cool and fun job, but it’s not fair when people can't live together if they want it’s their choice. Not the government’s choice.Its tax payers that pay the PWD AND the governments wages. Please take this into account, its urgent. Some people with special needs parents handle the choices for their sons and daughters because they can't handle relationships.?I am a disabled stakeholder. I would like to participate, in person, in the June 24th, 2014 summit on Innovation in Disability Services and More Accessibility for Persons Living with Disabilities. Where is the summit going to take place? Is the summit going to travel to different communities? I live in [location removed], BC. I suppose the summit will not take place in [location removed]. If the summit takes place somewhere in Metro Vancouver I will be able to attend. I think it is important to allow some disabled stakeholders to attend the summit because I believe it is crucial to put a face and a voice to the topic.??I read many of the comments and ideas that people sent in; however, most people did not stick to the topic. Most people wrote about the inadequate shelter allowance, the puny $906.42 disability pension, and $ 800 discriminatory earnings exemption. So, are the prior comments going to be included in the summit??I intend to stick to the topic. However, what I would like to do is write about the topic and write about the inadequate shelter allowance, the puny $906.42 disability pension, and the $800 per month, discriminatory earnings exemption. Is that okay? When is the deadline for comments and ideas to be submitted, so as to be included in the Whitepaper???I have a considerable amount of knowledge regarding accessibility for disabled persons because I have been to the BC Human Rights Tribunal numerous times, as most stores, companies, businesses et cetera have inaccessible front doors. I have [information removed] in my left great toe, knees, hips, elbows, and right hand. I also have a bone spur in my left foot, carpal tunnel syndrome in my left hand, and [information removed], which is [information removed] of my right jaw. I am in constant chronic pain, and sometimes acute pain. Consequently, I am unable to open many inaccessible fronts because the doors are too heavy and lack the proper disability opening mechanism. ?Regarding the BC Human Rights Tribunal I have accepted early settlement agreements because I didn't want to sue in the first place. All I ever want to do is get in the front door by myself, which is my right via section 8 (a) and 8 (b) of the BC Human Rights Code, and via section 15 (equality) of the Charter of Rights and Freedoms.Besides suing, in the BC Human Rights Tribunal, companies, stores, business et cetera for having inaccessible front doors. I am also suing the former Human Resources and Skills Development Canada and the defunct Office of the Umpire for not providing me with a microphone [information removed], as the fixed, antiquated microphone in the Federal Court of Canada did not reach me. I was forced to yell for six hours because the Federal Court of Canada, Vancouver Registry did not have portable and/or wireless microphones. ? As a result, I had laryngitis for six weeks. I lost my voice completely. ?Also, my [information removed] was in remission, but it returned with a vengeance because I was forced to yell for six hours. Besides losing my voice I was unable to chew, as it hurt too much. For six long weeks I was only able to eat soft food. Since I was unable to chew, ?I had to swallow all of my food. ?I missed out on eating some of ?my favorite foods like steak, pork chops hamburgers ,French fries. Onion rings, et cetera.I was forced to yell for six hours because I initiated a constitutional challenge (on someone else's behalf) regarding section 12 (3) (c) of the Employment Insurance Act, and section 93 (1) of the Employment Insurance Regulations. I wrote a very lengthy, complex, and complicated constitutional challenge. Finally, I went in the Federal Court of Canada, Vancouver Registry as a legal representative, and I came out as a complainant. ?I am not able to attend your event in [location removed] but I wanted to provide some information to you about myself and what I’ve been able to do with my disability over the past few years.? I’d also like to provide a few suggestions on how I see accessibility improving.I want to provide my history and how this affects me on a daily basis specifically with accessibility community safety and mobility.In the fall of 2008 I was diagnosed with [information removed].? My left leg ended up having to be removed to save my life.? At the time of my diagnosis I was a 26 year old construction superintendent working on a large municipal arena project; I was doing what I enjoyed. I definitely went through quite a life change in a short period of time, specifically with mobility and with dealing with the reality that I’d likely never be able to get back into the construction industry on the same level. However,?I had decided very early on that I was going to do everything in my power to get back to where I was before I and lost my leg.? I tried working to get a prosthetic leg but it was very tough to operate with the location of my amputation.? I ended up working towards everyday mobility using crutches.? 3 years later I was back in the construction industry working as a construction project manager/site superintendant using custom made crutches for my everyday mobility.? It’s been just over 5 years and I’ve found many challenges that I never could have imagined if I hadn’t lived through certain circumstances.? It’s amazing the difference that the past 5 years has made, I’ve seen accessibility being a hot topic, especially on a municipal level which has been encouraging.Here are some of the answers that you had asked specifically in the ‘housing and accessibility in broader built environment’ category.Why do you think it’s important that we reduce barriers and increase accessibility for people living with disabilities in bc?? :? my opinion:? It’s tough for a person who doesn’t live with a disability on a daily basis to understand the real challenges that people face.? In my case its mobility.? I think it’s important for barriers to be removed to show the rest of the world that we are a trend setter, that those with disabilities can make just as make positive contributions to the community life as an ‘able bodied’ person.? There seems to be a mind set with some that people with challenges (disabilities) are a burden on day to day life.? Building for a more accessible future is just one way to help change this perception.What can British Columbians do to welcome the contributions of people with Disabilities and what barriers can we remove? :? my opinion: Speaking directly from the challenges I see on a daily basis while keeping in mind there are many different challenges for accessibility I wanted to point out the biggest challenge I have on a daily basis is getting around.? This is not during the entire year though.? During summer months when I find few slipping hazards where winter is quite obviously the opposite.? The challenge in my specific industry whether it be doing business in government buildings or entering a commercial space (retailer where I purchase materials) is always finding the flooring choices to be slippery.? Although I try my best to work around it I can tell you at times it’s a barrier that is extremely tough to work around.? I think by recognizing these challenges for everyone with disabilities by addressing them in the BC building code mandating public/commercial space to have non-slip flooring is just a start but it would make a significant step in the right direction.? I’d be willing to bet that asking those who see these day to day challenges that slip hazards are one of the biggest challenges and will deter them from going into certain areas.? What would me it easier for people with disabilities to make contributions to the community?? What needs to be in place? : my opinion:? I’ll tie this opinion in with #2.? I believe that seeing a significant improvement in accessible space in the general public whether it be government, retail or commercial space you’d see a lot of people with challenges be able to access areas that they had a very tough time in doing so before.? Making areas safer for people will encourage people to get out and make contributions to the community, whether it be by supporting local events, shopping locally or getting into sectors where prior to this time was nearly impossible.? I say nearly impossible because it’s not only the person with the disability who may or may not believe they can’t do a job, it’s those hiring.? Making these work areas safer will certainly help bring a significant amount of people into the work force.? I’m not saying that those with disabilities don’t contribute, because they do.? I believe they’re often limited to how they can contribute because of hazards and road blocks.What would BC look like as the most progressive place in Canada for people and families living with disabilities?? Opinion:? This is a tough question to answer.? I recognize the different levels of disabilities, but I also recognize there is a severe need to see progression in accessibility.? I truly believe by changing a mindset and starting with the BC building code, municipalities and provincial government recognizing the problems and working towards viable solutions.? For example; there is a program run by the Safer Home Society () that recognizes the need for upgrades in new homes to build for the future.? Our company used this program on a 12 unit complex in Fort St John and we had a few new home owners that recognized the value it added. This is an optional program that has a cost attached; it’s possible the BC government could work to getting some of these issues addressed not only in residential but commercial space.? I see a very bright future with those with disabilities and have in the course of my current position hired those with daily challenges.? I’d like to see this starting from the top and working its way through government and down to the local businesses.? I completely acknowledge this will take time but it is possible.? BC is a world leader in energy savings, environmental and other areas.? The question is why can’t it be in accessibility?? It certainly can, it will take time.? This call for public input suggests there is hope and it’s exciting.I did not submit this email to be anonymous but found it easier than the online form I found.? If anyone wanted to get further information I’d be happy to be contacted. Thanks for taking the time to read through my submission.I don't think it's fair when 2 people on disabilities can't live together as a couple or get married because one of them will lose their PWD pension. One's without disabilities get to enjoy a 2 income family but we can't. It's too hard to live on just one income today. I wish this policy could be changed so we have more choices in life like other people do. most people with disabilities have a hard time working so it’s not fair.Hi I'm [name removed], deaf and I live in [location removed]. I have trouble with my job me more frustrated lots. I went to [location removed] to look office employer job. Hard time more trouble me. Please I can talk on [location removed] in hospital video camera me good ASL. I not good writer and not good language writer lousy. Please help me I not want stress or sad etc. And I have my own busies but sad slow down for 3 year and I get mad from tax too much bills from tax. Hard time my money. I can’t find job people and boss not want work me I’m deaf I not understand and more frustrated. Me stay home no work for 6 month now I'm broke money. Please I need help me please let me know thank you.Many people with disabilities are at significant disadvantage during their daily lives as a result of their health problems, and struggle financially as well. Society's most vulnerable people deserve as much dignity and support as we can possibly provide.I am writing in support of a recommendation that has been made recently with respect to modifications to the Registered Disability Savings Plan (RDSP). Under current Person With Disability (PWD) benefit rules, a person with a disability is only allowed to earn $800 per month before his or her PWD benefits are clawed back. The recommendation is to allowing people to contribute to their RDSP, over and above the $800 limit and not lose any PWD benefits. This would:Alleviate the financial burden that most people with disabilities face, help break the cycle of poverty, and allow people to better contribute to their own long-term financial security. Eliminate a disincentive for people with disabilities’ to earn more than $800 per month.Strengthen the safety net to provide dignity for people with disabilities at no cost to the provincial government.Thank you in advance for considering this and related initiatives to support our most vulnerable citizens. Please do keep me up to date on all your programs to help people with special needs fully participate in society.She has a friend with disabilities, a PWD assistance recipient, whom she assists from time to time with administrative matters. She said that her friend’s annual bus pass was lost and so she was helping them to replace the pass. She said that she found that the Ministry’s website listed inadequate information on what to do if a bus pass is lost, and that it was not very easy to find. She says that she then called the Bus Pass Info Line, whereupon the telephone agent referred her back to the website to download the consent form required for a third party to make a request on a PWD recipient’s behalf. She says that when she tried to download the consent form, it was not available to her without downloading and installing a new version of Adobe reader. She says that she completed this process and tried again, but then could not proceed further without also downloading and installing Internet Explorer updates. She says that she found it very frustrating that the form was not available in a simpler format and found that this process was not very accessible. She pointed out that many people who would need this form or other forms might not have access to the very latest in software, might be using older computer systems that would have trouble supporting this software, and might be deterred from completing necessary tasks. She asked this information should be passed on to whoever is responsible for designing the MSD/PWD information website, so that they can be aware that this may present barriers to people who are trying to complete relatively simple administrative items. She says that she asked to be put in contact with a designer so that this feedback could be passed on directly but that she was told this wasn’t possible. I am submitting suggestions concerning the Disability White Paper. I am a parent of a special needs child and have worked with adults with special needs. It is a confusing maze to go through the services to find what fits for my child.1. Develop a call center and a website:This should be a one stop resource to get the information to access government funding, grants or to contact various agencies concerning disabilities. A model to use could be like the nursing help line where an individual's information is taken in and then the computer best matches the individual needs and give that individual the links to contact these agencies. Once it was set up then every new agency or contractor could put their name on the data base with a brief description of their services. This should include local agencies, provincial agencies, taxes, trust funds, affordable housing or technology available to the person with disabilities.2. Housing: Create housing that is based on the retirement community concept.In the retirement housing were there are individual living quarters with a common eating area. This would give the person with disabilities independence with their own space while assuring them access to socialization and proper nutrition. In [location removed] there is a condo complex that uses one floor for special needs housing, one floor for low income rentals and another for senior housing. In future planning of senior low income housing provides incentives for building to create space for persons with disabilities.3. Housing: Create tax incentives for renting to persons with disabilities.Provide tax incentives for landlords to rent to people with disabilities, such as renovation incentives, rent kickbacks or tax deductions.4. Work and Contribution: Create flexible funding or grant for business owners to hire people with disabilities.Many people with disabilities want and need to work, however they cannot handle the pressures of a regular work place or a full-time job. If the hours could be flexible where the person could work up to 12 hours a week with their worker. In addition allow their support worker to come with them. A small business owner may not want to take the risk of hiring a special needs person because of safety, etc. One client I worked with wanted to work in a junk yard. When I approached the owner, he told me because of safety regulations and lack of manpower to watch this person; he could not hire this person.Thank you for the opportunity to share my ideas. Of all my ideas I feel the call center would be the most utilized. In the Kamloops meeting, several tables express frustration over the lack of connection between service providers. One agency explained that they get dozens of calls each year they have no idea where to refer the individuals. One father expressed a desire to have everyone under one roof.HI my Name Is [name removed]I am a self advocate. I don't think the PWD System is far. Because people can't live together on PWD IF they both can't work. People can have back problems and other disabilities that might prevent them from working, the policies need to be changed for people who can't work thanks. People with disabilities that I hear from are scared of the policies and of The Pwd not being fair for us. Record this as well thanks.Allow me to address the issue of improving access for the handicapped. Access for the handicapped currently suffers from a lack of enforcement of the rules. We can make great strides on making buildings more accessible but if there is no enforcement of the standards or the rules then little will change. I would like to comment on the one issue of Handicapped Parking. It is the most visible component in any community. Much has been written about Handicapped Parking. There are many pages on the internet commenting on their purpose, the ease at which they can be obtained, the abuse of the privilege of permit holders and the abuse of non-permit holders. The abuse by non-permit holder can be dealt with by proper, consistent enforcement where a fine acts as deterrent. If a vehicle does not show a Handicapped Parking Permit when the space is adequately showing that it’s a handicapped spot no “officer discretion” should be allowed unless the person can show that their use was a serious emergency that warranted stopping closer to the entrance of the establishment. The enforcement personnel must be aware of the rules, must be able to ensure that the person whose name is on the valid permit is actually benefitting from its use. “Drive-by” enforcement is meaningless. I have found a lot of confusion even among those who have a permit or those who provide transportation for someone who does. Violations I have seen involve some persons with disabilities as well as many able and perfectly healthy citizens. There have been cases of people using stolen, found, or “doctored” permits as well and just looking to determine that a permit is hanging in the windshield or lying on the dashboard is half-hazard and almost useless unless serious checking is done on fairly frequent and irregular basis. Division 38 of the Motor Vehicle Act has all the rules and they are clearly stated on the permit to be displayed. SPARC (Social Planning and Research Council) issues a temporary permit for one year and a permanent disability permit for three years. The cost is $20 for three years and the fee is waived in hardship cases. All permits have an expiry date. The biggest problem is the confusion over who has jurisdiction or who has the responsibility of enforcement. Some people think it is the City, some the police and others the business owner or the parking lot. Inadequate enforcement eventually leads to a complete disregard for the real purpose of handicapped parking. Section 38.07 on the “Transitional Provisions” reads: Permits issued on behalf of municipalities that are unexpired on January 1, 1991, shall be recognized and considered to be valid permits under this Division until they expire or, where no expiry date is given, until January 1, 1994. [en. B.C. Reg. 472/90.] One would think from the Section above that the enforcement is the responsibility of the police. The City of [location removed] does not enforce the rules and either has not requested the RCMP to enforce this provision or the RCMP has determined that violations are not serious enough. It might even be because the police are not aware of their role in enforcing all sections of The Motor Vehicle Act.One reason for abuse of permits and spaces might be public cynicism about handicapped parking. The perception is that too many people are getting permits. Eligibility requires that the individual must be certified by a registered medical doctor as having one or more of the following conditions: The applicant requires the use of a mobility aid in order to travel any distance Applicant has a disability that affects mobility and the ability to walk specifically Applicant can NOT walk 100 metres without risk to health and safety Consider a recent study in Surrey and the debate following. One doctor commented: “The sole criterion on the application for handicapped parking permits is that patients be unable to walk 100 metres. I usually take the word of the patient on this. If Goble has a better suggestion on how we can ensure that all applicants "genuinely need" these permits, I would like to hear it”. Eugene Leduc, MD. Victoria. This was responded to by the following comment: “Physicians are authorizing parking permits for the disabled to many individuals who, according to SPARC’s criteria, cannot walk a distance greater than 100 metres yet may be observed walking around a shopping mall (complaints expressed by people with disabilities at a Showcase of Human Rights held by the BC Human Rights Commission at Robson Square Media Centre, September 1999). Thus when filling in the application, many well-meaning physicians are, similar to Dr. Leduc, “usually” taking “the word of the patient on this” rather than giving a diagnosis or referring the individual to someone who can.These applications may not seem an important medical document but “the fundamental principle upon which the parking policy is based is the right of every individual to have access to the community.” Limiting the number of permits issued is the only way to protect those with the greatest need.” R. Patterson - Surrey Access for All CommitteeHow can a doctor simply take the word of the patient that they are unable to walk 100 meters without a mobility aid? The doctor would know if a health condition prevented them from walking too far, but taking the word of a patient who after making the claim they cannot walk 100 meters promptly walks the length of Wal-Mart or takes his dog out for a walk in the neighborhood and you can imagine the reaction from normally considerate citizens? Most shopping in a large retail outlet requires more than a 100 meters of walking. So the public cynicism will be a factor in the degree of abuse. While there are some built-in weaknesses of the handicapped designation process that will make some people skeptical about their use and maybe nothing can be done about the designation, too much abuse is the result of too little enforcement which is the result of what? Somebody not doing their job?SPARC claims they will take action against those who misuse the permit. In order to do so, they suggest that you politely ask to see the person's wallet card, which is issued to all who have a permanent disability. Of course the person is not obligated to show you the card, but should they refuse, you are to contact SPARC at (604)718-7744 with your explanation and the parking permit number. They will take appropriate action with regard to the permit days, maybe weeks later. But you do that and you risk verbal abuse or more. That is not good enough. Is it fair to ask a handicapped person to confront a violator, get close enough to the vehicle to read the number and do all that along with struggling with the day-to-day challenges of being handicapped just because it is a lower priority for a property owner or the Police? Furthermore why would any non-handicapped person risk more than glance contemptuously at the offender? The same document claims that Police action is also a possibility. A traffic ticket may be issued to those who park in a disabled zone when not handicapped and to those who loan the permit to another person, disabled or not. The vehicle may also be towed. The problem is that the word “may” is used. Division 38 makes it clear but tickets are very rare and in a place like Terrace I have never heard of one being issued because the Police don’t like enforcing parking. It is not a serious enough “crime” To make matters worse I discovered recently a police constable was not aware of the content of Division 38 of the MVA and not sure of the police role in enforcement did not look to see if the permit was expired and generally seems to have taken the word of the individual.Businesses may claim they monitor and confront violators but the employees know that it never happens and if a few retail outlets use the same parking lot at the local Mall, who is going to do the monitoring of parking. You don’t risk alienating customers.In my little more than two years of being physically handicapped – because of a condition that is progressive - I have seen shopping carts abandoned in handicapped parking spots, vehicles without permits parked in a handicapped spot, a second vehicle squeezed into a spot for one parked over the line into the next spot and company vehicles parked in spots reserved for the handicapped. Some of these violations occur because the only evidence that there is a spot is the painting on the pavement that is covered with snow. Some spots are no wider than the normal parking space, some are in water when it rains and have a large icy patch when it freezes after a rain.The city does nothing as parking is all private property. The Police won’t or they make a joke out of the rules by using “officer discretion” and the business owner won’t do anything for fear of alienating a customer. Enforcement would be a good place to start.I am a self employed worker who was injured [date removed]. WorkSafeBC accepted my claim and I received wage loss of $1500 up until the injury was declared permanent. Back in [date removed] WSBC phoned me to ask when i was retiring. I had no idea but?they indicated i was only going to receive wage loss until [date removed]. I disagreed. In [date removed received?a second call and even more pressure to give them a date. I could not and would not as i became self employed so i could work as long as i wanted.? WSBC selected their own date [date removed], and i disagreed. One would think the date was for wage loss benefit but it is not it is for the end of the disability pension. In [date removed] and i could not return to my regular work i continued to receive the $1500 in wage loss but because they wanted try and retrain me it came out of the Rehab account. At the end of the retraining and job search?it was obvious i would have problems finding a job.?[date removed] all financial assistance came to an end except for a?$ 56?disability pension that ends [date removed], a little over $900 in total.?I am [information removed] years old and in excellent health except for the injury to my right knee and walk with a cane or use crutches. Every day the injury deteriorates more and a wheel chair is not far off. My life style has been completely?upset as i have worked in mining and forestry all my life. My hobbies were all out doors, hunting, fishing, snowshoeing, hiking etc.. My cost of living has gone up as minor maintenance around the?house i can’t do. I can’t use ladders, walk on uneven ground, walk on slopes, stand very long,?kneel, lift more than?a few pounds, drive a standard vehicle etc. I still maintain WSBC coverage and have to even though the person i will have to hire is much older than I am. If I don’t could be fined many thousands of Dollars. The injury is PERMANENT, the disability is permanent financial assistance that I purchased is not. Totally unfair.?Why do you think it’s important that we reduce barriers and increase accessibility for people living with disabilities in B.C.?Almost without exception, each individual wants to make a contribution to society, to feel valued and included. Too often, people with disabilities (PWD), who face barriers to full participation, face prejudice, stereotyping and marginalization. Whether each individual's contribution is through mainstream paid employment, sheltered work places or volunteerism, their contribution must be recognized, supported and valued. The sense of self-worth, pride and confidence that comes from being a valued member of the community cannot (must not) be underestimated. It is extremely important to understand that many individuals who face specific barriers to full participation in society do not see themselves as “less than” or “disabled” or “handicapped”. They see themselves as unique individuals with strengths and weaknesses no different from the “mainstream” population. They may need additional supports, tools and accommodations, but they can and will make meaningful contributions if properly supported and valued.This latter circumstance is particularly relevant to the Deaf Community and Deaf Culture, where there is tremendous pride, resilience and independence. However, access to full participation in a hearing world must be supported, just as those with physical barriers have buildings modified for full access, so the Deaf and hard of hearing must have communication supports which are recognised as the societal norm, not a aberration or add-on.It is important to note that a repeated theme in these “consultations”, to date, has been the strong desire for PWDs to not be lumped in with the social welfare system, but to be supported through an alternate program that recognizes and can respond to their unique needs. Regardless of the source of the barrier to full participation, whether it is hearing, sight, mobility, cognitive development or social/emotional issues, programs of support should exist within a dedicated service framework. Support for PWDs is not charity, it is a legal and social obligation. A core belief identified in the Ontario Disability Support Program Act states: The Act provides a separate income and employment support program for eligible persons with disabilities. It removes persons with disabilities from the welfare system and provides them with assistance that recognizes their unique needs. What can British Columbians do to welcome the contributions of people with disabilities, and what barriers can we remove?There are many accommodations already in place that recognize the specific needs of individuals with barriers to full participation in society. From tapered sidewalks, stair ramps, TTY phone services, intersection signals for the blind and American Sign Language interpretive services for the Deaf, society recognizes and is willing to pay the additional costs of providing accommodations that will allow meaningful participation – a full and robust life experience, regardless of barriers that have not been asked for but must be accepted. The key to full inclusion is education within the broader society. We are doing a good job at the public education level, but so much more needs to be done with adult populations, employers, and governments. Individuals such as Michelle Stilwell (MLA Parksville-Qualicum) stand out as exceptional examples of what can be accomplished with courage and community support. Whether the barriers to participation are related to mobility, communication or cognitive/emotional challenges – they must be addressed and the cost borne by society at large. It is not appropriate to withhold access to participation because of cost. The cost of denying full participation in society is far higher, both for individuals and community. Research shows that the cost of poverty and social marginalization is huge and must be borne by society through increased medical, judicial and social service costs. (Loss to Canada has been estimated to range from $72 to $86 billion annually – ). It makes infinite economic sense to support meaningful inclusion that allows individuals to be full, tax-paying participants in ernment must support the participation of persons with disabilities in the full range of opportunities available in BC and ensure effective programs are in place to support transportation, employment, including access to training and education programs.What would make it easier for people with disabilities to work or contribute to the community? What needs to be in place?The spectrum of challenges facing individuals who, through no fault of their own, face significant challenges to full and equitable access to society is extremely wide ….. Communication tools, mobility support, medication, housing … just to name a few. Of course, these supports cost money, but they cannot and should not be denied because “times are tough”. For the general population to withhold accommodation services solely on the basis of cost is counter-productive to society's economic interests.In terms of the Deaf and hard of hearing, there is already acknowledgement of society's obligation to provide interpretive and captioning services that support access to medical, judicial and education services. Employers must also be encouraged, perhaps required, and rewarded, to provide workplace accommodations that support meaningful employment for those facing barriers to full employment. Also, persons with disabilities should have full access to post-secondary training to support employment outcomes. In light of the BC Jobs Plan's forecast of up to one million job openings over the next decade, post-secondary training is required to succeed in today’s job market. Effective funding for persons with disabilities to access training and employment opportunities is an essential component of this “Plan”.What would B.C. look like as the most progressive place in Canada for people and families living with disabilities?BC would become a place where being born with, or acquiring, a disability did not sentence one to a life of poverty and exclusion. Persons with disabilities would have full access to education to support employment outcomes and would benefit from available opportunities in post secondary training. Most importantly, persons with disabilities would have access to services and support programs in all regions of the province. BC would be a society of openness and inclusion. Individual difference would be valued, not ignored, or worse, stigmatized or punished. Government would embrace its obligation and commitment to supporting inclusion for all citizens. Whether the support came in the form of affordable housing, tax incentives to employers, widely available communication tools, physical modifications to our environment, support for family care-givers …. we would be the envy of the world. Ironically, the model BC should be looking at exists right here, in Canada. The government of Ontario enacted the Accessibility for Ontarians with Disabilities Act in 2005. This act lays the framework for the development of province-wide mandatory standards on accessibility in all areas of daily life. Ontario now has accessibility standards in five areas: customer service; employment; information and communications; transportation; design of public spaces. The legislation can be found here: Unfortunately I was not available to attend the live sessions in [information removed] but would like to share a few points. As a facility that provides all types of assistive devices, I would like to stress that not only do these supports “enable people with disabilities to carry out the activities of daily living and fully participate in the life of their community”, but they also play the following important roles:Alleviate painPrevent further decline in physical abilityReduce the risk of falls and injuryAssist physical activity and therefore improve overall health and fitnessSince assistive devices are a “fee for service” branch of health care, financial support for this population is crucial. The time sensitive nature of obtaining assistive devices also means that funding requests should be expedited as much as possible. Delays put these patients at risk and jeopardize their ability to reach desired goals. Thank you for considering these thoughts.My feeling is there that there needs to be more low income housing in the province of Bc. Second of all there needs to be better dental care for people on disability through the provincial government. Also the need to start explaining what will happen to people on disability through the province when they turn 65.The final thing would be that there should be an increase to the amount that people get on disability through the province, some people cannot go to work.Firstly, let me thank you for this opportunity to contribute to the conversation on persons with disabilities in this province.I wish here to make just two comments on this topic, and add a simple suggestion for your consideration.Please acknowledge receipt of this email via return email.Personal InformationI am a person with a disability under the definition of the provincial Persons With Disability [PWD] Act, which I am sure you are familiar with, and have been receiving monthly PWD allowance since 1997. I am currently [information removed] years of age and live alone in [location removed], BC. My personal disability is mental in nature and I have been receiving psychiatric treatment at the [information removed] since [information removed]. The nature of my illness prevents me from obtaining steady employment and I have depended almost exclusively upon my monthly PWD allowance to live on since 2012.As you are probably aware, the current monthly PWD allowance is $604.30. Since the age of 60 I have been receiving CPP payments along with my PWD. However, as you are probably aware, the CPP portion is subtracted from the $604.30 monthly and, so, my PWD allowance for February 2014 was $467.96 [the CPP portion was $136.44].Comment 1As you may be aware, the monthly PWD payments have not been increased since 2002. In 2002 the BC Government increased basic monthly PWD payments by $70/ month. Not only has the cost-of-living in [information removed]increased by more than $70/mo. since 2002, but during that period certain medical benefits such as dental and emergency transportation have been cut back.During that period [2002 - 2014] the monthly limit of additional money which we can earn without penalty has been increased from $500/mo. to $800/mo. However, since eligibility for PWD in BC requires that one be "unemployable", the actual increase is meaningless to most of us on PWD, who are unable [not unwilling] to hold down a job that would pay that much.For those of us who are unable to hold a job, the options are either not to pay our bills in full [BC Hydro, telephone - required], [food and clothing, miscellaneous], to panhandle, beg, borrow, depend on handouts, or starve. Despite the mandate of the Premier, not all persons with disabilities are able to hold a job and support themselves financially by other means. Statistically, persons like me with severe mental illness face a 25 year reduction in their average life expectancy. The main reasons for this are poorer health- due to poorer diet, poorer health care, poorer living conditions, excessive stress, chronic unemployment, financial poverty, and other social and health factors.It warms the heart of the public when stories of disabled people who are able to handle full employment and enjoy financial independence are blasted across the mass media, but the fact is that most of us with severe disabilities are unable to handle the stresses or rigors of full-time employment - even when special allowances are given to the disabled.?It's a nice myth, but it doesn't stand up to the stark reality hidden in the numbers ment 2The categories that define this white paper are: Innovation, Personal Supports, Work & Contribution, Housing Accessibility, Social Networks, Asset Accumulation. Each has specified sub-categories. That is the defined perimeters of the paper.Sifting through these categories and sub-categories I noticed one thing which we, the disabled, realize all too well and, perhaps, accept much too readily. The observation is this.The BC government is soliciting ideas on how best to distribute limited funds to aid the disabled. Distribution of those funds to each and every category and sub-category would involve the transfer of money only to various professional and bureaucratic services that directly or indirectly function to aid and support the disabled.?As usual, not one penny of those funds will go directly into the pockets of the disabled themselves. It is not even a topic for discussion.The disabled of this province are used to this scenario, because we have seen it repeated year after year after year. It seems to matter not one wit to the professionals who are entrusted with nurturing and caring for us that we are, in fact, literally starving right in front of their noses.?I personally have never heard even one of these nurturing and caring professionals even mention that, perhaps, an increase in PWD payments directly to the disabled might be immediately beneficial to all of them, to their better physical and mental health.And I don't expect you, the reader, to be any different.The thought that the most needy among us - who are actually most protective of their health - would be best served by benefiting all of them DIRECTLY, with an increase in basic monthly PWD payments - to levels comparable to most other provinces - just doesn't fit anywhere into any of the existing perimeters or discussions of this Paper.SuggestionI will make only 1 suggestion - which I know is a non starter from the start since it is not even listed as an item for discussion here.The function of this White Paper is, obviously, to divvy up the available funds to the professionals and bureaucrats only. No disabled people allowed.Nevertheless, the neediest among us - the ones among us who are truly "unemployable" - after 12 years of waiting - deserve a break.As I mentioned, people with severe disabilities are very protective of their health. Despite public perceptions, if their financial assistance were to be raised above its current sub-starvation level, the extra money would not be spent on illegal drugs and booze. [ I say this because I have heard this told to me countless times already.]My suggestion is to raise the basic monthly PWD payments by $200/mo. - starting before 2015.? If this sounds excessive it is only because BC has fallen so far behind comparable payments made to persons with disabilities in many other provinces - even while BC's cost-of-living is higher than others.In short, my suggestion falls under the sub-category of "Financial Independence" for the disabled. This is a sub-category which does not currently exist under the perimeters of this White Paper.Maybe it should - before we the disabled of BC are all eating dog food.People On PWD?Should get Raise In Our Pay $906.42 Is Just Not Enough, Food, Clothes, and Rent Is going Up! And For People Who could Work That’s Good For What The Gov. Did For Them, But? What About Me? I Can’t Work We Need More Money .I Get 375.00 For Shelter CAN YOU FIND A PLACE FOR $375.00? ?I Hope This Will Not Fall On Deaf Ears My name is [name removed], [information removed] years old man. I have been living with disability by myself for many years now, because of stroked, blood clouded and surgery my head, then i have lived with disability until now. Over 3 years a go I talked to one of the IMMIGRATION CANADA agent, about sponsoring my relationship from [information removed]. After i told him everything about situation then he said, of course i can, because of my disability. I have sponsored my wife almost 3 years now the immigration visa still not approve yet. In Oct 2013 I got a letter from the High Commission of CANADA in [information removed] said. I didn't have any saving so after [date removed] they will let me about the final decision until now I didn't get anything. I don't know you can help me or give me an advice or not. Thanks a lot Anyway. For more information please contact me at[number removed].The best regardI would like to add to the contributions we made last night. ?It would be nice if all stores and businesses had a deaf person or someone who is fluent in sign language who I can ask for information about products in the store. ?Right now, using my iPad in stores seems a cumbersome project with a clerk who is hearing and sometimes impatient. ?So, I now no longer bother to ask for information and sometimes I just won't buy something. I would LOVE it if all apartment buildings, condo buildings whatever, high rises, to have a ramp, instead of a stair well. We are all getting older and stairs will pose a problem for those older people who also use a wheelchair, scooter, or walker. I've never understood why the provincial government claws back/steals my CPP money. ?If I had that $500,I could do physic therapy. ?I would be able to go out with friends. ?I would be able to contribute to my own RDSP. ?I would also love it if equipment, like computers, iPads,?cell phones, were free. ?Same for the wifi, that needs to be free. ?I had to cut my tv cable service, cut my phone service, cut my pet insurance, and cut other expenses so I can eat. ?InnovationIf math is so fundamental to having and achieving a career, then I wonder if a chip should be transplanted in my skull. I have been told for decades that someday a switch will suddenly?turn on-yeah like I'll ever be capable of trig and algebra. I know myself better than others know?me and often my best isn't good enough. [information removed] is a life fraught with frustration. Personal supports, aids and devices I remember struggling with math even from grade 1.It would help, if I could get the formulas during each test to finish my apprenticeship in carpentry. They give me more time-that is?worthless, if I always complete it in the time of my peers. If math is that important, then a chip?should be implanted in my skull. From kindergarten to grade 12, I was in special classes and had a lot of support. At age 18, I?was on my own. Only when I jumped off and hung from the [information removed] at 42, did I get?re-assessed and qualify for a disability bus pass, which is a good deal, but that and disability?Assistance cheques are all I get. I had no income for 6 mos in the midst of constant -48C temperatures everyday in [information removed]in the winter of 89-90, my EI was in a very long almost 18 mo limbo. I went on a rampage and spent 6 mos in prison. In the Great Depression that began for me in Dec 2009, I had no income for 10 mos, despite 16 welfare applications. I punched out an alcoholic in a soup kitchen, jumped off and hung from the [information removed], became a drifter, became estranged from half my family, wrestled with 6 cops at my EI appeal and had a couple of?overnights in jail. I have tried repeatedly to get pardon over 24 yrs. It's not easy, very expensive, too?complicated for the layman, perhaps it doesn't matter because given another few mos of no? income, I will re-offend. In the first case, the probability of freezing to death was very real, if I?stayed in a homeless shelter, I would get swarmed. In the 2nd case, I feared, having studied? the great Depression of the 1930s, that the possibility of having no income for a decade, was?a certitude. I wish they would streamline the pardon process. Twice policemen's benevolent associations?have asked me to give. I said I would cut you a cheque for $1,000 for a pardon, otherwise I?hate cops and can't give them a red cent, since they have hindered my career. I feel?condemned for life.?Work and Contribution?I am[information removed], which is to say [information removed]. After grade 4, I shouldn't have been forced to attend a math class-let's have more open education. Schools should have given me the?choice to pursue music, arts or communications instead. I am fluent in Spanish, I played?trumpet for 10 yrs in the Air cadets, [information removed]. I taught English and Spanish abroad for 3.5 yrs. I have never been able to master or remember any calculation involving more than 3 steps and nothing more than simple 4?function math.Aside from 5 of 30 yrs of adult life, I have earned half the poverty line. I am hard working and punctual, but stupid-I can't help it, I was born that way 2 mos premature after 72 hrs of labour,?first 18 mos in an incubator. I am always the last hired, first fired. It is hard to compete, hard for?employers to have the patience to work with my learning disabilities and inabilities. I have? seen falling down drunks promoted ahead of me in construction who showed up with a?hangover most days. [information removed]aren't social butterflies. My life is exponentially more frustrating?than the avg person's. I wish I could continue to go to college and get a BA.I am a third of the way towards that?goal. If I could get a BA, I could secure 2 yr contracts abroad to teach English. I have done it?before in 3rd world countries, but it's getting almost impossible to do now. Housing and accessibility in the broader built environmentHousing is the hardest thing for me to carry, since my income hasn't increased in 30 yrs, but inflation is relentless. In 1986, I could rent a full sized 3 bdr trailer, now I pay $582 a mo for a?bachelor suite that is so small, I sleep on a recliner I bolted to an aluminum plate on wheels?so it won't tip over. My bldg has no security, my beloved electric scooter was vandalized 4X and stolen from the?parkade before I could give it away to family and friends. Being poor, I have no housing?choices, I must live in the inner city, in a smoking bldg. I have been cutting my own hair for 28 yrs, the Great Depression gave me a stark?choice-make your own booze or go abstinent, have been making my own for 4 yrs, also in?fear for my very own food security, 4 yrs ago, I rented a 1,000 sq ft garden lot, it can't meet?much of my food needs, but it does help. I miss the non-smoking 1 bdr apt I lived in on [location removed] for the 5 yr pre-Olympic?construction boom. It was 650 sq ft, with a big storage locker in the basement. Now I live in a?bachelor suite which is 6X smaller, with no storage-there's lots of room for storage, only a?dozen cars use the 400 unit unsecure parkade. In the 1bdr apt, there was complete security. In? this bachelor suite, [location removed], in [information removed], [information removed], there are always junkies and addicts living in the parkade and stairwells. T he bldg has improved somewhat?since 2010.I remember that the stairs were black with urine-I had to run down 4 flights of?stairs everyday holding my breathe. There is a large vacant lot on the busy [information removed] side of the?bldg that I wish they would convert to a community garden, grow tall trees to shield traffic?noise, or develop with 4 storey office towers to shield noise. It just sits idle, they have dreamed of twinning the tower for over 40 yrs-don't think it will ever happen. Mgt is in Edmonton.Social Networks to Support People in CommunityThere doesn't seem to be an autistic club or drop in ctr. There was [information removed], but I found them useless and they folded several mos ago. Given that most?autistics are condemned to a life of solitude, a place for them to meet might be helpful. Asset Accumulation through Registered Disability Savings Plan This is a good idea-welfare always demands that you exhaust all assets and avings. Only?when you are homeless or at risk of homelessness, can you qualify for help, by then it may be?too late because your desperate circumstances may force you into incarceration. When the Great Depression hit Dec 2009 for me, I was without income for 10 mos. I enrolled?in college at BCIT to finish my apprenticeship in carpentry. I was deemed ineligible for EI, so I?dropped out. I jumped off and hung from the [information removed]. I spent a few weeks in the?psyche ward at [information removed].I went to my EI appeal angry, I was wrestled to the ground by 6 cops? and pepper sprayed. I tried a shared living arrangement with another laid off co-worker, his dad?died and he drank his face off. I moved to [location removed], only to find out 4 sawmills and the?pulp mill just closed. My female cousin is in the adult business, she could make up to $60K/hr 90% of it untraceable and untaxable, and ridiculously I was recently audited by the Misery of Social Services loss prevention. She wanted me to work on her houses-for nothing as it turned out, we are now?permanently estranged. Then my late aunt got me to share an apt with a male cousin, he?turned out to be an extremely messy garbage hoarder. After 4.5 mos of living in a place that?smelled like a morgue every 4 days as I struggled to keep up with the cleanup, I threatened to?punch his lights out and spent the night in jail and moved out. My aunt died without forgiving?me.I moved to[information removed]. Good place to go to school, if you can afford it, but there is a great dearth?of work here. I regret leaving [information removed], but what could I do given all the instability and?panic. We need 2nd amendment rights in Canada, because there is no way I want to live through another Great Depression in my lifetime, but every winter is a Great Depression. In? winter, you could go to the labour pimps everyday and get sent out as little as 2 day/mo .You?get taxed at the rate of 60% and sent to do max work in scab construction where guys are?dropping like flies everydayMy problem is common to many people. Dealing with glitches that are not covered in ‘the book.’ A lot of mental illness stems from broken families. I was lost. No one to turn to for advice. Hence, I made some bad choices. I’m okay now, but I know more guidance councilors are needed. I’m a firm believer in education as well.?Thank you for letting me get this off of my mind.As a senior person with a medical disability and also a pensioner with no benefit from his pension for the last four years, it is impossible to survive with any dignity at all on these abysmal income supports which are at least fifteen years behind the times, so perhaps you should think about bringing these rates up to a dignified level before thinking about anything else.My husband And I are both on disability and we have 3 kids at home.I'm concerned about how certain issues are now dealt with. I applied for funding for new shoes at the same time I was being funded for orthotic inserts. Until I had new shoes, my feet would get wet on all bad weather days, and I had to dry my shoes over a heat register each night. The Medical branch of the government gave themselves a 6 month deadline of [date removed] to have an answer for me. That deadline was not reached, I didn't receive my voucher until [date removed]. After waiting too long for shoes I needed when I applied for them, and having my doctor price check them at $160, I was given a voucher for $125. So I was expected to pull $35 + the tax on $160 out of my food budget! Not easy. As if that wasn't a slap in the face enough, I then went to the shoe store where I left feeling completely humiliated when the clerk had no idea what the voucher was. I believe that a lot of this B.S. could be dealt with in a much more respectful and productive manner. Why not send a check or give my local office clearance to print a check in my name for said shoes? I'd be happy to show my receipt too, but don't I have the right to purchase my shoes with cash rather than a damn voucher? Please work harder to ensure that ALL Canadians are treated equally.When are the disabled going to get an increase in actual dollars and cents?????Allowing more money to be made or income averaging over the year does not help those who are unemployable?How much has the cost of living gone up since the last increase? How has this affected the health and welfare of recipients??All these feel-good, touchy-feely things between organizations and government dance around the real problem which is immediate financial relief and get the disabled in this province at or above the poverty lineWhy do you think it’s?important that we reduce barriers and increase accessibility for people living?with disabilities in B.C.??It is important for all British Columbians with disabilities?to attain full citizenship so that they too may have the?opportunity to contribute?to our vibrant communities and help shape our future.?People with disabilities represent B.C.’s largest untapped?resource and nowhere is this more evident than in?the employment sector. All?the reports tell us that job opportunities will soon outpace qualified?applicants?throughout our economy, a reality that will cause many B.C.?employers to lose sleep if they adhere to?conventional wisdom.?Conventional wisdom dictates that employers will have to?look elsewhere to fill new positions, and compete?with countless other?countries for this elusive talent. However, if we make the workforce more?accessible to?British Columbians with disabilities, we may be able to solve the?impending talent gap from within.?What can British?Columbians do to welcome the contributions of people with disabilities, and?what?barriers can we remove??We need to recognize that everyone can contribute to the?vitality of our province if equipped with the right set?of tools. To this end, CanAssist?would like British Columbia to invest in long-term, community-based?employment?and assistive technology solutions for people with disabilities.?What personal?supports, aids or devices would make it easier for people with?disabilities to make?contributions to the community? What needs to be?in place??There are a number of innovations that would make life?easier for people with disabilities. One area of?innovation should be the?development of?ability-enhancing Smartphone?apps, especially for people with?executive function deficits caused by?brain injury, dementia or other cognitive impairments. Executive?function is?necessary for time management and task sequencing—important life and employment?skills.?Another focus area should involve?ambient activity sensors, ones that don’t require users to modify?their?daily routine in any way. People shouldn’t have to fork out a ton of?extra money or remember to wear a?special pendant every day. Technology?shouldn’t intrude, it should remain in the background until it needs to?come to?the forefront and support you.?A third type of innovation that would make life easier for?people with disabilities would be the widespread?deployment of?tech-savvy employment facilitators?that?could equip disabled job seekers with the?technology and skills necessary to?obtain and maintain employment.?What would B.C.?look like as the most progressive place in Canada for people and families?living with?disabilities??People with disabilities would get the support they needed?when, where, and how they needed it so that they?could live their lives the way?everyone else did, with things to do, people to see and experiences to?remember. Hello, my name is [name removed]. ?I'm a profound deaf Canadian who grew up in [information removed]. ?In 2000, I married a hearing Englishman and immigrated to England and lived there for 13 years. ?We have 3 boys. ?Last year (2013) we moved back to [information removed]and I must say how greatly disappointed I am with the cost of the internet for cell phones in BC. ?I am aware of the cell phone service providers' costs in Europe and when I compare the BC service providers to Europe, ?BC costs are so vertiginous that it does really make me more incapable of communication.Of course I cannot speak over the cell phone in England but my monthly payment of ?10 ($18.53) allowed me to use wi-fi with unlimited texts that I was able to email or text anyone when I was away from home. ?When I was lost, I didn't have to ask anyone because I used Google map to navigate me, whether I was driving or walking. ?Looking up bus schedules online was trouble-free than asking a hearing person verbally. ?I could email to my elderly families and friends who have computers where they find owning a cell phone problematic. ?If I was late, I could email to a doctor's appointment, an interpreter, school or any other significant appointments and meetings. ?I was quite capable of communicating and I was impressed with the English's and Europe's technology. ?I was happy.Since I moved back to Canada, I feel so less independent. ?The cost of wi-fi is overpriced. ?I could only do $27 monthly for unlimited texts only, no wi-fi. ?If I would like to use a wi-fi deal ($85.00), it would have to come with talking time which is pointless. ?I asked in the deaf community what is the best deal and to my dismay, no one could match the Europe service rate and many said to engage personally and demand cell phone service providers to reduce their costs though few providers would only offer an inadequate discount in the end. ?This is where I see many deaf people endure the accessibility barrier.Since my arrival in BC I can only communicate from home and when I'm out, I am increasingly asking my hearing husband via texts to make phone calls and that makes me so incapable, angry and unhappy. ?A good example is when I came home to find an email from the school that my boy was sick and was expecting to be picked up. ?It was an hour late and in the meantime, I received a text message from my husband who received a phone call from school. ?They tried to contact him at work in a very noisy environment (a workshop) that he doesn't always answer the phone calls. ?He finally got their call and passed me the message, the same time when I read the email.I am asking you to consider to change the service providers' policy for the deaf people only and that they all make an exception for the deaf to use unlimited texts and wi-fi the same price as the hearing people use for their talking time. ?I believe this will empower the independence among deaf people who are struggling for easy communication.I am a person with a disability and I'm on PWD. So is my boyfriend. I don't think it's fair that we can't live together or get married if we choose to because one of us would lose our PWD. I feel if 2 people on PWD want to live together, they should be able to keep both?their checks. Today, people can't live without 2 incomes and a disability is something we have no control over so we should be able to live with 2 incomes as well as others without disabilities can do. Not everyone with a disability can work so the only thing they can fall back on is their PWD checks. Please change these policies so we can live our lives to fulfill. At age 15 I became pregnant with my first son. My parent’s home was abusive; I didn't want to go into the foster system. I applied for the youth living allowance. Was accepted. I finished school. And 1 yr college. Suffered cut off of welfare for going to school. Worked full time once. Got pregnant again. My disabilities became when I was abused. Life was much easier before then. The issue, my spouse at the time used meth he was receiving disability. We had no help for his addiction. he hid the truth from so many people. He didn't stop using until he was arrested and found himself being charged with spousal assault. The beginning towards a now sober working life he has, 8 yrs later. We had another son and then parted ways. We stay in good communication. Me on the other hand, have a whole life of spinal problems and hip pain, I turn 30 in June. Also my 2 younger children have behavioural disorders; my youngest is 5 and very aggressive. I lived in [location removed] and the doctors that I seen there were not able to see any behaviour problems within my 2 children, we moved to [location removed] and within one year they were diagnosed. I recently started receiving child disability tax for them. I am currently applying for disability for myself.during the years and experience on income assistance I come to notice a few key things:(1)- we need to place more people into long term drug and alcohol rehabilitation to find a more healthy way of life.(2)- life today is very much more costly then 20-50 years ago. Food and clothing for growing children and foot wear and outdoor gear, utilities are on the rise... financially we are starving, literally starving to feed our families is dreadfully expensive. (3)- also family maintenance, is supposed to help support the child to provide the necessities of everyday life? Well it doesn't when the money received from the other parent is deducted from cheques! my children's father feels he's not really helping much when I am still struggling with the same amount of money each month, the same financial boat I was in before I collected. Not of any assistance at all. $1200 minus $500(received in previous month) = $700 this month?not knowing the day of receipt nor the amount through FMEP, really makes it hard to budget. Also the money deduction system works a month behind.(4)- skills development workers to help people in their homes learn to organize, budget, teach food health, teach cooking skills.(5)- families need in home guidance, a person who can come into home and guide the adults with ways to handle their situations with children, to help the parents see and fix problems and actively have someone working with them on an everyday basis for a period of time having a direct goal (this would be good position for retired yet active elders, or a student position program earning them practicumhours)(6)- I have noticed a lot of people discussing the quality of care their aged doctor provides. When I think of health I also think of the date, 2014. I also think of the hundreds of studies over the years and wonder if doctors are up to date or out dated on information about disabilities, adult and child/youth? I suggest all medical physicians required to do an upgrade/update program on all things especially disabilities behavioural/mental and physical every 7 years of practice, and an extensive knowledge test to be sure they are still able to provide quality care.Start by informing your staff, wheel chairs are not the only sign for disabilities it could be a head injury, brain injury, or another part of the human body that is not visible let along the amount of pay we live on. You all dream on and have a great day.Access for emergency respondersIt is of fundamental importance that buildings with multiple residents provide unlimited access for ambulances personnel at all hours, whether or not management staff is on duty. This should? be a matter of building codes. At my request the City of [information removed] has been examining the issue with no result after two years.My personal experience is that in the early morning hours. I had a gastric hemorrhage witch ultimately required three units of blood transfusion. I could not immediately reach a phone but used Lifeline to call an ambulance. When the paramedics reached the d<building they could not enter. I was only just able to reach the phone from the floor and press number 9 which is a code to open the door.? If I had not been able to do that I would now be dead since I only just reached the hospital in time.Residential bui9lding accessMany good office buildings and department stores? have special access for persons in wheelchairs or those with other disabilities.? Paradoxically this does not apply to residences such as condo towers. My building has two entrances.? One can only be accessed through steps with no ramp. The other has an extremely heavy door which can be unlocked – but not automatically opened – with a special fob or by pressing a button a considerable distance away.? A person in a wheelchair has to perform gymnastics to get the door open and in some instances could not possibly do it without getting out of the wheelchair and using body strength which he or she is unlikely to have.Cross walk indicatorsPersons with eyesight disability cannot see the white and red lights at crosswalks easily, depending on their placement.? The chirping sounds are confusing since they do not clearly indicate which direction they control.? I often have to wait until I notice people crossing in the direction I want. Furthermore the system does not apply to ALL crosswalks (as it does in Auckland New Zealand).? Crosswalk pedestrian lights should be twice their present size and care should be taken that they are clearly positioned – sometimes they can be confused with another adjacent light.I participated in the public consultation meeting at the [location removed] on the evening of [date removed].The issue of the adequacy of the provincial disability benefit did not come up with the group at my table, perhaps, because three caregivers were supporting family members with disabilities.? That is the disabled person was not solely dependent on the monthly disability benefit.But the three caregivers were deeply concerned about how their disabled family member would cope when they were no longer around to provide support – financial and otherwise.A better-than-poverty level monthly disability benefit should be a top priority recommendation of the White Paper .To find out why, read my latest Op-Ed in the Beacon News: Please forward my Op-Ed to your contacts.PS Civil Rights Now's Radical Rags fashion show fund raiser was entertaining, enlightening & enriching. CRN raised $13,000.PPS The attachments are pictures from the event, one of one of the model, the other evidence that being an Executive Director is a terrible burden.Please change the rules on PWD and if the system doesn't change by government its decimation. Because people on pwd have back problems and other disabilities that can prevent them from working. And it’s not right. Self advocates that I? hear from? wrote to the government over the years and they never had successes. Hi, my name is [name removed]. I have suffered from "cluster headaches" since I was 17. I have worked my entire life, even through this painful condition (otherwise known as "suicide headaches and the worst pain known to man). I have always worked at least one job. When I divorced my husband and moved to [information removed] with two young daughters I went back to school. Needless to say, I have never been one to sit on my laurels do nothing.In the last few years (I really couldn't tell you how many as my memory is not well) the headaches have become chronic, I am an insomniac and about 5 years ago I started having seizures that have yet to become under control. About 1.5 years ago I was diagnosed with breast cancer.I don't know how anyone can support themselves on the amount we are given to live on. $375 for rent? Really? It's impossible to find somewhere to rent for that amount. I live with my mother (I am 47 years old) and I pay $500 plus all my other expenses. Due to all the medication I am on and the seizures I have had my dental problems are astronomical and disability does not pay for a lot of the things that need or should have been done. I have had at least 4 teeth pulled because I can't afford things like root canals. I have spent a lot of money on alternative medicines to try to improve my health but could never complete treatments because of lack of money. I feel that if the government can give millions to other countries to help them out why can't they help their own first? If government officials can spend thousands of dollars on business trips (i.e. Private jets, business class seats, expensive 5 stars hotel rooms) why can’t some of that money put back into us - the people on disability. I am willing to bet that 70% of those collecting "Disability" (such as myself) can't even work enough to make the extra $800 that you allow us to make. Trust me, if I could work I would. This is all around an extremely frustrating subject. I would definitely like to see any of you (government officials) live on what we have to.I can tell you, it's not easy. We don't ask to be in this position. This was a last resort for me.... the very last resort. Then you walk into the Ministry Office to apply they treat you like the scum on the bottom of their shoes. We are not bad people for being in the predicament we are in, we are on disability not taking advantage of the system, or I would think most people aren't. It is all very degrading! I just feel that a lot of the government's money is being put in all the wrong places.I have been diagnosed with [information removed] since about 1983.Much older now. Have achieved two BA degrees (Psychology and Political Science) since being diagnosed. Do not wish to try a job and then crash (end up in hospital) so I need a transition to a decent job (i.e., not too much stress and fair pay). Not as easily motivated by incentives or fears so that I am motivated by a sense of doing the right thing the right way. Are there jobs that use such constructive motivation readily available?I have a passion and dream to work in the disability field and start a business for the newsletter the [location removed] self advocate. Please let me achieve my dream of working in the field because I can relate. and I am sorry that I was disrespectful to the disability white paper about discrimination and being unfair in my e-mails from [email removed]. I am ready, willing and able to work in the field like the inclusion BC campaign for ready, willing and able. Please have jobs designed for people with disabilities and let them start their own business and dream for example the [location removed] self advocate newsletter. I really want to work in the field until I retire and I really want contracts for my staff thanks. It’s a service for people with diverse abilities. you may record in the disability white paper for example the [location removed] self advocate newsletter. you have my permission. People can have dreams for example being an actor, music artist, being famous or working with people with diverse abilities like me. I can relate better then support workers can.Sorry for acting bad I just was mad. And upset. I am going to say it in a better tone thanks now on. I think the disability field needs to be inclusive with people with disabilities and non disabilities and give those contracts thanks.I am sorry editorial board for upsetting you and social development and government. Please understand I am cool now. I cooled down. it was my fault for sounding mad and upset. ?I have the drive and dream to work in the field because I can relate to people with disabilities and I understand its the social development money not CLBC’s money.there is a Criteria for contracts at CLBC that sucks they only give contracts right now to disability support services not other services for people with developmental disabilities like the Kamloops self advocate newsletter. Did you get all my e-mails from [email removed] and recorded them all??Hi My Name is [name removed]. And I have been e-mailing you from [email removed] about this. I am the founder and coordinator of the newsletter in [location removed]. But there are no contracts for people who have a dream and passion and abilities like I have with CLBC because there is only contracts for support and that’d it. please believe in what I am doing thanks. I want to make this a better world for people with developmental disabilities. And I want contracts for my staff thanks. [name removed] from the community action employment plan at clbc is talking to people at community futures in [location removed] and [name removed] from New Horizons professional support services for the community companion program that is a peer mentoring program for people with developmental disabilities. And I am disappointed that we can't work with people who can relate. Professionals can't really relate they are not in our shoes. Please get this set up thanks for contracts for different services designed for people with disabilities. And we have civil rights. There are laws in Canada and worldwide about not discriminating against people with disabilities. Let us do jobs that are designed for people with disabilities to work in the field thanks. We have advertisers lined up but not contracts. it sucks that social development only gives it to people who have the skills to do supports. Did you Disability white paper record all my comments about this important and urgent thought? It needs to be an inclusive field.[Name removed] thinks it won't change anything she told me about contracts from social development and CLBC because they only offer it to support services not other services for people with diverse abilities. She talked to me on the phone and said we will focus on advertisers, no way wrong. The CLBC people like [name removed] said they listen to us and social development listens to us. About what self advocates want they e-mailed her. Regarding employment and contracts is a form of employment so that's included/ [name removed] is her name she works for New Horizons community companion program in [location removed]. It’s a peer mentoring program that she works for and she helps for free with the newsletter. and she would be surprised if it did happen because she is not sure yet.[name removed]is a nice lady though but?she is not sure if there will be any changes.But I want changes with social development thanks.Please get on these thanks.?All services need to be?inclusive from CLBC, disability service providers and retail and other services. There is people working at CLBC who have special needs but they can't work with service providers wrong. or start a service for people with diverse abilities. It’s a double standard. We should be able to get contracts like anyone else who wants to work in the field.David said we will bring this up to the editorial board as well.Equal contracts and employment is wonderful. People with disabilities can work with community living bc but not service providers or starting a business designed for them, this is a double standard. We need to also work with service providers or starting our own business for example the Kamloops self advocate newsletter with support. Please give me contracts for the staff thanks social development. I am unhappy that there is not enough being done to put us to work.We can relate better other professionals can't relate even though they are trained. They don't live with developmental disabilities so they can't really relate. But they can offer support services while the disability people do other kinds of jobs thanks bye.Please get this in effect for more people with diverse abilities can get contracts for example the [location removed] self advocate newsletter.Please give emergency nurses better training to deal with people with developmental disabilities/mental illness because they often stigmatize people with mental illness. please give training to them as they are the first contact for mentally ill patients. And I lost a friend because of my mental illness and his parents and sister is a nurse with interior health/ IHA. His parents are not nurses but his sister is and they approved of the relationship for being friends and when I got sick I lost him. Please train the nurses better and teach them mental health anti-stigma education because they are the first contact for patients. Please look into these thanks. Work with ministry of health please. My name is [name removed], resident of [location removed] B.C. Please find attached?re: Disability Whitepaper input from my few years?of experience as unpaid caregiver for two family members having two different permanent disabilities.??Cut down cost/overhead of operation:There are several umbrella organizations and agencies work towards health concern under donations or government grants. Bring them under one roof, renovate & implement overhead cost cutting measures and look how it’s possible to $ goes direct to consumers development rather than operational expense with chain of commands.Discuss with families or consumer: direct one on one since each case may be different or unique @ age, mobility, kind of disability whether it’s physical, visual or brain disorder, income asset level, cultural difference, geographical area, transportation existence, ability, education level. Trust family and care-givers, cut down privacy barriers, and treat with dignity and sympathetically.Use of mentorship: One on one mentorship would be help full and trustworthy with consumer & family and easy to navigate regarding education, employment, volunteering, independent living, homecare & hygiene, and day to day requirements.Use of spirituality, exercise, sports, arts, discipline, yoga, mind control: This will help focus to achieve establish short and long term goals through concentration. Study & Research: How different approach and ideas may help to encourage PWD into main stream with positive outlook. Explore other countries development and successful integration.Local Government: has a big role to play since there is close face to face ties with family & consumers. All other government, agencies and organizations need to work one direction to improve living standard of PWD and to reduce the gap of rich & poor. Stigma: Some governmental rules and red tapes with stigma attached and keep PWD and family with distance. The “not in my backyard” still norm in many places and community.The accommodation needs (no jail): are different with PWD with brain disorder (bipolar, depression, schizophrenia) than physical or visual PWD and are yet to be establish and recognized into community. The many counter staff including VCH, condo managers, strata members, custodians, inspectors, some police force, store keepers, license holders dealing with public are not properly train to deal with PWD with psychiatric situation and effective communication to handle the situation. Mentally ill PWD often oppose family, caregivers, friends while experiencing symptoms of paranoia and delusions and therefore become isolated and helpless. The call for help from mentally ill are often treated as disturbance, aggression, misbehaviour and usually results in police intervention and criminalization of an illness. These situations may filled with many police interventions, criminal files, court cases and stress may adversely affect health condition of PWD and family for long term and make rehabilitation impossible. Policy change: In involuntary mental illness cases impose medication is not only requirement when certified but involuntary day program, talk therapy, continuous symptoms observation, family involvement without as much privacy retractions and outreach intervention to legislate & follow up is as much needed.Technical E support: computer, internet, phone, iPads entertainment.PWD have to choose and accommodate their needs what’s available and adjust with surroundings. Many electronic gadgets helps PWD achieve independence includes entertainment, education, social get-together; attend appointment, seminars, contacts and safety in place. The government, business or educational institutions should cover cost of equipment and training for PWD with low income. Many PWD cases it’s not a luxury to have certain equipment but it’s a necessary. For example: PWD who hears voices finds comfort in loud music or earphones, heat sensitive or taking certain medication may helps use of air-conditioner, light sensitive may need sun-glasses, certain PWD may need to occupy empty minds with different electronic equipment, games, internet and exercise equipment.Physician, peer, and therapist, mentor support: for treatment, education, guidance, employment, self employment, volunteer, character, exercise, social, emotional, symptom/reality checks.Family/care-giver support: Health service provider, social worker, benefits coordinator need to team together with family/care-giver to help navigate PWD on several instances. Many times privacy restrictions makes communication harder and broken link.Especially mental illness case whole family affects. The family run around to find support & receive benefits for PWD relative, file paper works, give up employment, modify future plans and doing all this their own health deteriorates. Some cases one has to care-give two disable family members without respite or financial assistance.Please cut red tape bureaucracy, easy navigation to receive benefits, reduce case load on Health Service Providers, family need their own case worker, educational module re: mental illness and stigma need to add into school and licensing institutions. River view hospital area: Modify this area into mental health research, residential treatment & vocational training centre:All in one umbrella with focus toward independent living, personal development, employment or self employment same time it’s much easier research on individual cases & causes with treatment.Mental health, drug addicted or anxiety patient may not fit into regular hospital or emergency or reception area, or general public ward or educational institutions. These people need secure observation, monitor treatment with reality check, ongoing training with discipline and counseling etc. Mental health, drug addicted or similar patient can be admitted as many years until they are qualified to live independently with confidence.The training facility would include & encourage individual interested field focusing toward independent living. These people comfortable working with:Computers & electronic components build & repairs. Work with all sort of animals (since animals are most trustworthy) & product: breeding, dog training, bird sanctuaries etc.Farming, gardening, landscaping, flower & fish farming.Various artistic developments.Entrepreneurship.Fitness.Cooking.Auto repair.Construction & building renovation.Janitorial.Land-scapping and development.Toy, jewelry making.AdministrativeSeamstress Food industry. Etc. This facility will save repeated hospital intake, homelessness, criminal behavior, drug addiction, police involvement, court cases, family care & guidance ( family will be more productive & would happily volunteer with the facility). Understand the barriers case by case, age, gender and match employer, position, geographical area and requirement.The PWD have lack of confidence, low self esteem and need lot of encouragement and one-on-one mentorship.Entrepreneurship training & start up fund where possible. Encourage home base business.The Mental illness and Addiction: The psychiatric medicines have terrible side effects and to avoid those mentally ill PWD try medicating with hazardous street drugs, alcohol or advice from internet pharmacies. The research needed to reduce side effects and train PWD with discipline. The stigma of schizophrenia and the common “not in my backyard” societal attitude make it harder for mentally ill and the many others PWD to live independently in the community. The majority of general public do not understand mental illness, symptoms and unique situation of the sufferer. The way to accommodate and accept a mentally ill person in the community is different than that of a physically disabled person. Such accommodations are not well recognized or established. The call for help from a mentally ill person is often treated as disturbance, aggression, misbehaviour and paranoia and usually results in police intervention and criminalization of an illness. Often Building Managers, Strata Members, Custodians and other tenants do not understand accommodation needs or do not engage in appropriate communication with a mentally ill resident, creating a negative situation. Mentally ill persons often oppose parents, caregivers and friends while experiencing symptoms of paranoia and delusions, and therefore become isolated and helpless.The mentally ill need to fight against all these negatives while trying to live independently with a terrible illness. It is a frustrating and punishing existence, without support in the community and terrible stigma. It is as though the brain is broken, there is no cure, it is hard to find the right medication and the side effects are dreadful. Unless PWD with mental illness receives proper involuntary medical attention and rehabilitation, assisted living, continuous support, cognitive therapy, educational/vocational guidance, he undoubtedly has a future filled with many criminal files and police interventions. This is a health issue. In a custodial environment mentally ill persons are vulnerable to victimization by other inmates and falling into further psychosis.Housing difficulties:The Building Managers, building maintenance staff, tenants, and strata members do not understand mental illness and symptoms, sometimes unusual behavior (talking, smiling to themselves, staring, body odor etc.) nor do they know how to effectively communicate with ill person. Some simply ignore them, while others or speak to them in an irritated or angry manner. Many offer little or no sympathy or tolerance in regards to their medical condition. Maintaining suitable accommodations and meeting basic housing needs is a veritable challenge in this kind of intolerant environment for PWD with mental illness.Solution: add basic mental health training material into Building Managers, Strata members, Custodians, Tenants, Shop Keepers, Schools& Universities, licensing institutions. Make aware of different needs of accommodation for mentally ill person & may require rule or policy change. Insurance company declines home insurance coverageFrom a psychotic episode or misbehaviour which results sometimes in minor property damage. When insurance claim was file the insurance company subsequently declines to renew the house insurance coverage. The insurance company did not offer a higher premium or deductible; the company simply denies any future coverage or renewal once knowledge of medical condition. It is very stressful to carry a huge liability without insurance coverage while concurrently caring for family member. Lack of support and servicesMental health case workers do not provide enough support services or navigation to families or caregivers or consumers. The family-member and caregiver receive little to no assistance identifying or obtaining subsidies, grants, or programs for family or PWD. The family devotes a substantial amount of time and energy in gathering information about and obtaining such services. The family also relies on networks of other caregivers who are usually far more willing to assist despite their own challenges. Problems with rental subsidyBehavioral problems are very often part of mental illness or side effects of the medication or the result of ineffective medication. It also noticed that other people’s misunderstanding or intolerance of mental illness may result in aggravation of behavioral problems from mentally ill. The problem is that behavioral difficulties, which are often part and parcel with mental illness, can negatively affect a person’s eligibility for a rental subsidy. The rental subsidy currently offer is subject to a severe clause: that the subsidy may be terminated due to the recipient’s behavior. The strata attempted to address this issue by sending terse notices. But mentally ill resident struggles with paranoid delusions, interprets these notices as threatening, and refuses to answer. Rather than terminating benefit, it suffices for strata or the rental subsidy authority to have a conversation with family/caregiver or case worker. Further, the subsidy waiting list adversely creates a homelessness situation. The housing problem falls to caregivers to remedy, whether they are prepared and willing to or not. Solution: Behavioral problems need to be addressed with patience and ongoing skills training, not sudden cancellation of necessary benefits that a mentally ill person is otherwise entitled to. There is a lack of home care availability or supervised/assisted living. Home care would encourage people with mental problems who are living independently to maintain a basic standard of health and hygiene. Home care would also help identify a person in need of medical attention early. Not all areas SIL program is available from VCH.The disability income is very low. It is practically impossible for PWD to maintain healthy living with a disability income alone. Again, it falls to family members to financially support their ill relative whether they are able to or not. Accommodation provided by family: The family needs assistance where they provide accommodation for their disable family member in regard to property/utility taxes, subsidy, paper work and problem solving. It is tough to build social network for PWD with mentally ill since stigmatization for several years in past. Also “not in my backyard” makes it’s harder for acceptance as a social contact.With negative symptoms like aggressive behavior, paranoia, results close friends, family members, siblings runs in opposite direction from mentally ill. The situation also makes ill PWD learn to live alone, secluded life. Mentally ill PWD need affordable fitness, recreation, exercise, entertain program, employment/volunteer activities, buddy encouragement.PWD is to provide with affordable computer, music, internet, phone for social contact and in emergencies as call for help. The government discriminates between workable and non workable PWD. The workable PWD receives more moneys and PWD who unable to work at all suffers financially.The family/care-giver that supports PWD need guidance in planning set up trust or RDSP. The private trusts are expensive and some time impossible arrange. The RDSP are not user friendly for PWD with mentally ill or for family care-giver. The conditions and rules re: withdrawal, repayment, filing income tax papers, tangled with T2201 DTC is impossible in some situation with mental illness. During psychiatric episode mentally ill with PWD may not follow all these rules and paper works. In these cases family needed sole authority to administer RDSP or trust plans. Also require are 10+ years locking up provision for RDSP. The housing accommodation from family/care-giver also accepts as RDSP investment or RDSP fund can be use for housing for PWD. The government pays foster parents generously but ignores unpaid real parent care-givers and their financial hardship, health.The financial assistance from family should be exempt from asset accumulation for PWD’s future care. Contracts need to be made up for support workers, and the other contracts are only for people with disabilities to work in the disability field with community living BC who has developmental disabilities. I want a contract for staff for my [location removed] self advocate newsletter, and we might be starting a business for the newsletter. And its discrimination by telling us where to work. If we have the passion and drive and abilities we should be able to do jobs that we can do with our disabilities. We should not be excluded from our passion and dream and drive to work in the field. There needs to be 2 different kinds of contract for different services not just support services for people with developmental disabilities. if it’s a service for them we should be able to apply for a contract.The first e-mail I wrote on the topic is a little bit confusing and I don't want you guys to be confused either. Disability white paper.First, I would like to compliment our Provincial Government on taking initiatives such as a disability to the community and allow those that are affected to provide direct input into this process. Most of the time someone writes a whitepaper and says here it is and it becomes a mountain to try to turn the process around. Good on you for going this route.?Secondly I thought the sessions were well advertised and very well organized and run. Thanks to the people involved in the process.?I believe it was former Minister Stan Hagan that said the disabled tourism in North America is a 14 Billion dollar a year industry.?To make BC the most attractive place for disabled to visit will aid this province to attract a large portion of this tourism.?Making places accessible not only does it allow tourist to use the facilities it allow disabled British Columbians to work in those facilities. How neat would that be for a disabled tourist to be waited on by a disabled store worker??Sport facilities, communities and schools need to promote disabled sports. Children who are non-disabled are standing around talking about their exploits in the hockey world and a disabled child starts to talk about his experience as a hockey player. The other children may be taken back at first questioning how this person could be a hockey player. They then find out that the child (boy or girl) plays sledge hockey. Now the children have a common bond they are all hockey players. The same can be said about wheel chair basketball, disabled curling and skiing sports. We need to help bond the disabled community to the non-disabled community through sports and the kids level and break down the barriers.?Outdoor wilderness sports such as hunting, fishing, wildlife viewing, scenery viewing are all important parts of the non-disabled community and now it is time to broaden the access to the disabled. Changes in hunting and fishing laws and regulations are needed. Backcountry toilet facilities are a must. People in Wheel chairs cannot hang a moon over a log and get it done.?Improved access to indoor facilities of all types are needed. Many disabled toilet facilities that are designed for people with a good right arm and leg. Most people with stokes are right handed and the dominate side is the most affected; therefore their left hand is now the strong hand. Bathroom doors at our recreation facility are not designed to allow for a wheel chair person to open the door.?Handicapped parking where the abuse of using those spots by more and more non-disabled requires severe penalties whether in a mall or on city streets.?Help is needed by the disabled to fight organizations like WorkSafeBC BC who have achieved dictatorial powers and run over the little guy who cannot afford a lawyer.?The disabled savings plan. How can a person living on a disability income afford to save??An organization to help the disabled stickhandle through the maze of Government Bureaucracy id desperately needed. This organization must be placed to fight for the disabled not side with government or business.I am a caregiver and family member of someone who is in a full time care home in BC.?Some ideas i have to make things better for all involved are .?More funding to allow more staff at these facilities so the poor staff are not over worked and the residents get better quality of care . I witness this first hand at two locations? that i have been at . The place is short staffed leaving residents in an awful and cruel place .Their dignity has to be upheld and really is not due to not enough staff . Left in soiled diapers missed meals? missed appointments are just a few that i have witnessed firsthand . ?80%? of their income does not leave enough for anyone to survive . You try living on 200 a month . That barley buys toothpaste or clothes or birthday gifts for family members. There is a lot more they need on a monthly basis but can not afford due to the high percentage of rent .They cant even if possible make extra money because your ceiling is 200 dollars after that it is income and up goes their rent for a year .?HandyDART service is really good? but the hours of operation are a huge barrier for people in wheelchairs and others . Handi dart needs to run longer hours and on weekends when most people want to get out . How can these people get out into the community when the very first step has barriers???A service of transport from town to town so they can visit their family's would be a huge? step for them to feel more independent and a part of the community . Right now there is none ! ?Changing town bylaws and municipal rules to make everything accessible to wheelchairs would be a huge step forward. ie? wide sidewalks with letdowns. wide doorways with automatic door openers , less congested isle ways in stores and shops ..They seem to set up displays which hinder movement through the isles and block a lot of the stuff on the shelves behind and this also is a hazard for any fire situation. ?Really all they want is equality and the ability to move freely with out feeling like people always have to help them . Changing these things in our community's in BC is not hard and it would make this province more? a better place to live for all cause don't forget we will all be in this position at one point .1 , Life is hard enough with a disability and even harder when running into barriers that discourage participants.? ?2 , Town to town transport so we can visit family. Handi dart is really good but the hours are very restricting . It needs to run longer and on weekends .?3 , Remove earnings ceiling so we don't get penalized for making a little extra money . Stop taking 80 %? that leaves us with very little money and when we do make money our rent goes up . This doesn't seem fair?? it is a hard struggle as it is .? ?We need to change bylaws and building codes to accommodate people in wheelchairs . Example 1, all the displays they put in shopping isles congest the isles so we cant get through or even reach the product we are after. In case of a fire this is an extreme hazard. This solution seems as simple as a bylaw passed stopping the set up of displays in isle ways . # 2 All stores should have automatic doors with the handicap button to open . Countless times i struggle to get in and most of the time have to give up and that makes me feel far from equal . ?Access on streets is difficult because of the barriers of width of sidewalk and congestion . Letdowns from the sidewalk to road should also be in a bylaw in every town as well as doorway width and be automatic.?More funding for activities would get more people out and more inclined to join or help in the community. ?We really want to feel and be independent but there are a lot of barriers? in our way some of which seem so small and easy to fix .?I do live in a full time care facility and these are some of the things if changed could make BC a great place to live with these challenges.? What B.C. would look like if it was the most progressive province for people living with disabilities?InnovationInnovation in Action is actually inspiration. What inspires people who are disabled often inspires those who are not. The Term “Disabled” Person - Extraordinary PersonWhat B.C. would look like if it was the most progressive province for people living with disabilities?You wouldn’t be able to tell a disabled person from an able bodied person. So all would be in motorized chairs, for example.We would stop using the tag “disabled”. As someone once said, “Take the “dis” out of “disable” and make them “able”. Stop dissing us and make us “able”.This has to change. Not handi-capped. We are all challenged. Some more than others. Some are more fortunate than others. We don’t need to lump them all into one pigeon hole and call it by one name.If you look deeply enough, every one of us is disabled in some way or other. Whether it be a bad knee, a speech impediment, ADD, incontinence, diabetes, but not all disabled people are in wheelchairs. That is my point. Some have mental disabilities but are not recognized as having a disability. If you put everyone (healthy or not) in motorized wheelchairs and treated everyone with the same respect, life would be different for a lot of people.If I don’t happen to carry my cane one day, people treat me like there is nothing wrong with me. When I carry my cane, they get up and offer me their bus seat. There are still able-bodied people sitting in the handicapped seats that see the cane and do not move. They wait until you have to ask them. When you do ask them, some are rude and behave as if they are put out. Some people need to be taught to respect that others might be in terrible pain but they still need to go out to the grocery store, or the bank, or the pharmacy. Some people don’t have any family to help them with anything. People need to be educated about those with disabilities.Storage of personal effects/Warehouse Lien Acts Foreclosure IssueSpeak to Housing issues re storage and waiting list. Losing everything I own. I’m sure I’m not the only one who has fallen victim to these types of circumstances. Working, No Savings, or small Savings, Injured, three years and still waiting, arrears, now I will lose everything I own.Distinguishing the Difference Between Basic Welfare and Disability Income AssistanceThere should be a clear distinction between the basic Income Assistance and the Disability Assistance cheques. It doesn’t matter all the cheques are still printed on the same day and are still all pulled from the same account or what the Minister does from the accounting end, but when it comes to the disabled person, I don’t want to hear that I am on welfare. Am I, or am I not on a disability income? As an injured disabled person, I had to go on income assistance, then to PPMB, then to PWD. It would be much better if my Disability Issues were no longer handled by the same people who handle welfare cases. The welfare office environment is stressful, unpleasant, people are rude, vulgar, and violent in the city and I feel very threatened and vulnerable with spinal injuries going into a place like that with anxiety and post traumatic stress. It would be better if there was a separate counter like they have in Banks for Business customers, only in this case to fast track Disabled clients because often they have conditions that are embarrassing and private, such as incontinence, or they cannot stand for long periods of time, or they have mental health issues. None of them want to be there long. In that case, handling these persons with special care would be appropriate and appreciated. Set up a Disability Service Counter designated for Disability Clients only at IA offices that only deals with Disability clients, queries and issues.?When I do my taxes at the end of the year, I am receiving Disability Income not welfare or income assistance. There is a stigma attached to “welfare” and changing the name from welfare to income assistance doesn’t make the stigma go away. There is still shame and humility associated with it. What we receive is long term Disability support income from the provincial government and should be identified as such. Central Disability Resource Centers called “Access Ability”There could be a central Disability resource centers called “Access Ability” like the BC Coalition for People with Disabilities where people with disabilities can go to pick up forms to apply for long or short term disability income and be fast tracked to Disability Income depending on their situation and need; where they can apply for all their handicap parking permits, bus passes, fishing licenses, support approvals, speak to agents about alternatives if they are not eligible for provincial Disability for example, CPP and OAS Pensions; there could be a fast lane for people suffering from acute pain issues who can not sit or stand for long periods of time; there could be employment resources there or separate employment centers for the disabled, or they could be incorporated into regular existing employment centers. Integration is key in my opinion, not segregation. But this should be both Federally and provincially funded and should be Canada wide and should not be a program cut every time a new government is elected. Disabled persons are a fixture in our society and are not going away. It could be part of Service Canada where you get your Passports etc.Personal Supports RequestsTakes too long to get my cane replaced. My doctor wrote a prescription for a replacement walking cane when I had inadvertently left mine on the bus, having many grocery packages with me. After checking with lost and found and having nothing turn up, I had to get a new one. It took two months. I am unable to walk properly without that support. By the time I had gotten off the bus, the bus had pulled away and my cane was on the bus. There was a constant volley of telephone calls and paperwork back and forth. First the prescription that clearly stated “walking cane”. It was faxed along with a quote for a cane at a local Pharmacy. I waited and called two weeks later. They could not locate the fax. It was re-faxed. I had to wait until someone reviewed the fax. Then I called again and was told they needed to know what it was for. It was a walking cane. Clearly, it was required for walking. It took twenty minutes talking to the person on the phone before the person finally told me I was required to supply a doctor’s diagnosis with the prescription. That was faxed. Somehow two months had gone by before I finally got the approval sent to the pharmacy so that I could go ahead and go pick up the cane. In the meantime, I could not go anywhere without my cane. I can prove all of this. It was horrendous to be mistreated like this. Disability supports need to be provided in a timely manner. I should not have to prove why the replacement cane was needed or justify why it was needed, when I had been approved for a cane in the first place. That was simply ridiculous!?Also when people are injured and suffer incontinence as a result of those injuries like I did. Those supplies that are needed should be supplied without question. A person should not have to suffer the humiliation of having to deal with that kind of degradation all alone, like I did. I did not even have enough money to do laundry, if you can imagine it. I suffered spinal injuries and could hardly move and had no assistance from anyone. God help anyone who becomes injured and has to rely on the provincial government for assistance. It is a real challenge to survive. I can attest to that. I am barely surviving.All Medical and Dental Expenses Should Be Covered and ReimbursedExample I have $200 to $300 paid out of pocket that put me in extreme hardship to have that come out of my monthly living allowance/disability cheque. I thought I would get that all back at the end of the year through my taxes. We should be getting all of that reimbursed. We should not have to pay for any medical expenses. I had to pay for the sedative to have my two impacted wisdom teeth extracted. That is not covered. There is no way that anyone, at 53 years of age, or any age for that matter could take that amount of pain with just regular freezing. When the wisdom teeth are way back in the corner of your jaw hinge in a difficult hard to reach place, your jaw is apt to break during the procedure of extraction. No amount of freezing with a needle is going to suffice. There is no reason why poor people should have to suffer that kind of pain. I had to wait 3 months in horrible pain until I saved up enough money to be able to afford the $150 conscious sedation money. That is so unnecessary, cruel and inhumane. ?Then I had to starve and do without because that was money I would never get back. I couldn’t borrow it because I had no way of paying it back. I thought I would get it back at the end of the year with my taxes when I claimed my medical expenses, but I didn’t have enough medical expenses. If you have less than $300 dollars worth of Medical Expenses, you can forget about ever seeing that again. All of the money I spend on over the counter medical supplies, hot and cold patches, liniments for my back muscles, Tylenol for the pain, sleeping aids, anti-diarrhea medication, anti-nausea medication, anti-histamines, all things that I need with severe allergies, and health conditions that I have to manage and treatments that are not covered, I don’t get reimbursed for and have to do without eating. I wonder how many disabled people in this province are malnourished.Any out of pocket expense for health that is not covered takes food out of a disabled person’s diet, if we were able to keep receipts for these and itemize them, it would be a huge difference to our survival.?Change legislation at Federal level so that all medical expenses are coveredOr give tax credits at provincial level for medical expenses for up to $400. Raise the Disability Rates According to InflationIn 2001, the Disability rate was $1,200 or so per month and the Liberal party was voted in. I voted for the Liberal Party. Even though I was not on a Disability at the time, I remember reading that the government made everyone on a PWD or at the time it was called something else Stage II Disability re-apply for Disability, to see if they were still eligible under the new legislation. Then the new rates came in and were reduced to $906.00. They should have been left alone. They should be much more than $1,200.00 by now, if the rates were calculated using inflation. How is a single person supposed to be able to afford housing on their own without having to live in a substandard place that is filled with mold and rodents and other vermin? Most social housing is over run with bedbugs. (See ) I have, since my [information removed]injury, lost my beautiful apartment because I could no longer afford my rent, ran out of savings, had to put my belongings in storage and rent a single room in a horrible run down house with 8 other women, a shared kitchen and bath. There is mold in the basement room that I live in. It is so cold and damp. I have asthma. I have been waiting for BC Housing. Living here causes me further injury and makes me sicker every day.?I’ve been sexually harassed by my landlord for the last 4 years; I’ve fallen in the yard more than six times and reinjured my[information removed] on the wet grass. I’ve told BC Housing that this house is causing me further illness and injury and still women who have drug addictions and alcohol addictions are moving out of here faster than me. I am still waiting. Meanwhile I have to pay $400/month on my storage and about the same for rent. How am I supposed to live after I pay $83.00 to Shaw for my phone and internet? I barely eat. My storage fees are so high because I went into arrears waiting to go through the process of welfare to PPMB to PWD. I didn’t expect to be injured in the spine permanently. Now I have to find some kind of part time work and I’m not supposed to be doing any work because it is causing further damage to [information removed]. But I don’t want to lose everything I worked so hard for all of my life. I’ve got [information removed]and many other [information removed]conditions and injuries. I can barely walk four blocks. And I have no family or spouse to help me.?I’ve heard of so many people who become accidentally injured and by the time they get their PWD, they’ve lost their apartment, the storage company has enforced the warehouse lien act on them, selling/auctioning off everything that they own, and they’ve ended up in a homeless shelter. I don’t know how many times I’ve heard that story. Why should I have to lose everything I own? This is everything I’ve worked so hard all my life for. Nobody bought this for me but me. I was never married. I worked for it. I earned it. Now because I was a passenger in a vehicle that got T-boned in 2001 and then my feet went out from under me on the back deck and I fell out onto the staircase on the sharp wooden edges of the stairs and bounced [information removed]all the way down a storey and a half helping friends move in 2010. No compensation. Now I have to lose everything I own? There should be some way I should be able to keep my belongings. I’ve suffered enough. We should be able to be fast-tracked to PWD when it is evident that injuries or medical conditions prevail that prevent a person from being able to continue working in any capacity.?????????? Reduce the time to go from debilitated to PWD.Work and ContributionDisability Business Development ProgramTo help Disabled business owners, those who want to start up businessesTo be able to compete for government service contracts. Show disabled persons what kinds of services are required by the government how to bid for the services and give them an opportunity to be self employed contractor.On The Topic of EmploymentNot all persons on Disability Income Assistance are able to work physically and should not be made to work if they are not able and if it causes them further injury or pain. Entrepreneurial programs, working incentive programs should be there to encourage and inspire persons with disabilities, but not to something that is forced or enforced. The best way to do this is through award programs, recognition, and mentorship programs, educational programs that teach persons with disabilities how to plan, set, and develop their goals and aspirations.Housing & AccessibilityIncrease Disability Rates / HousingIt is understood that there is insufficient housing being built or provided to meet the demand in Vancouver. That can be solved by giving disabled people the same equal rights as anyone else. Allow them enough money to be able to go out and find market rental accommodation. If we are to be treated fairly and with equal rights then, increase the rates according to inflation. Persons on Disability are markedly different from those on basic Welfare. We are unable to work. The rates are so low that we are starving.????????? Increase the rates so that Disabled Persons can choose their own housing like normal people.????????? Increasing the rates is the only way that PWD can experience and improved quality of life for themselves, their families, and their caregivers.Raise the rates so that those on PWD can choose market rate apartments like anyone else. That would solve your subsidized housing shortage issue. If people have to live in bachelor, government-selected apartments, they are not free to choose where they want to live. Alberta rates are at approximately $1,588.00/month. We could sure learn a lot by following their example. I don’t understand how one province can be so vastly different from another in this our beautiful Canada.?When the new legislation lowered the welfare and disability rates in 2001, and changed legislation to make it tougher for people to get welfare, one didn’t need to be an economist to see what that would do to Vancouver society. I knew right away that the homeless number was going to increase, crime was going to increase, drug use was going to increase and things were going to get really bad. I said to myself, Oh no!. Now look at our city. People are without hope. They’ve turned to drug use by the hundreds, they are broke, unemployed, hungry, turn to crime, stealing, turn to drugs because they are hopeless, lose their jobs, can’t get welfare, or get welfare, but it’s not enough to survive, they turn to drugs, needle injection centers pop up, rehab facilities grown in numbers, or they get UI and try to make it on that and it’s not enough either, the economy crashes, people lose hope, they struggle and watch their friends turn to drugs, it’s a crazy world. We have a lot of work to do to restore hope.?The thing is, I was working at the time and part of a group that provided feedback to the government just like now. Our opinions went to the government and it resulted in those changes to the EI and IA rates. The very thing I am talking about.?So I am saying to be careful ye policy makers, I was once one too, for the policies you set in place today, you may find yourself having to live by yourself one day. Make sure they are good policies for your future sons and daughters and their grandchildren too because if they are good enough for you, they are good enough for the rest of us.?We need incentives and strategies that restore hope and self-worth in all individuals in society not just in the disabled. Nothing does that better than able-bodied people helping extraordinary people, making us all extraordinary people. It is a win-win situation for both parties.????????? Social supports need to be put in place for people with Disabilities arising out of an injury.????????? BC Housing needs to have the authority to fast track PWD into housing when there is a threat to health at the current residence.????????? BC Housing needs to be overhauled and have more authority in deciding who gets housing first. Some have been on the wait list 10 years whereas others get housing faster by fraudulently getting an eviction notice and playing the system. There is a potential to abuse the system and it is currently in play.????????? Solution to provide PWDs with sufficient income to locate their own market accommodation. This builds a stronger economy. Social InnovationAward for Social Investment in Entrepreneurship InitiativesThe BC Provincial Government can support companies and organizations by launching an Award for Social Investment in Entrepreneurship Initiatives.The aim of this award is to promote a social investment that focuses on the improvement of human capital and the promotion of social cohesion. The award pursues two of the objectives brought up by the Europe 2020 growth strategy: Promoting entrepreneurial initiatives that create employment.Promoting social cohesion by means of the inclusion of disability in entrepreneurship, as well as recognizing entrepreneurial initiatives led by people with a disability.In Europe, people with disabilities represent 16% of the population and are a source of talent and consumption. In BC the percentage of the population of persons with disabilities is approximately 11.2% and in all of Canada it was approximately 14.8% in 2006. It becomes especially rewarding to support initiatives that promote self-sufficiency so that persons with disabilities are able to become a cohesive part of the community.Awards for the Disabled AlsoDisabled persons can be recognized for their innovations in entrepreneurial fields, basic living adaptations, inventions, coping and overcoming challenges, etc. in order to inspire others into similar action.?Also see attached word document Social Entrepreneurship and Innovation? containing refererence and resource information on what Europe is doing in order to study their innovations in the hopes of gaining insight on what we might try for BC. There are a lot of links to downloadable documents and World Reports on Persons With Disabilities.?Thank you very much for this opportunity to voice some suggestions on behalf of persons with disabilities and in defence of my own cause.This email is coming to you based on the experience of the Advisory Committee on Disability issues from the City of [location removed]. It has come to the attention of the committee increasingly over the past 10 years that cuts in advocacy for the disabled are leaving many people in desperate straits.??????? People with cognitive disabilities, mental health issues, invisible and learning disabilities are often unable to navigate the complicated systems presently in place. There is misunderstanding and anger about the criteria applicable for some and not others. People who are not computer literate are at a loss as to how to gain access to grants or assistance for which they would be eligible.??????? Those with physical disabilities are often times isolated, unable to access the services that are there, are living in poverty and cannot afford to pay for assistance for which there are no apparent grants.It came to the attention of our committee over last summer, of the plight of a man in his 20’s with a young family. In brief, without warning, in 2011 he suffered a series of catastrophic seizures as a result of unsuspected cancer, leaving him in a wheelchair. He had to undergo a number of surgeries which has left him very incapacitated. He still suffers multiple seizures at night.Federally, it took him seven months to access Employment Insurance Sickness Benefits, but that did not last long. He was eventually denied CPP because his disability wasn't 'severe or prolonged.'His wife was able to work on a part time basis as long as friends or family could help him care for the children.? They have had to borrow money and are in debt with no end in sight.Provincially, we would ask1.????? That the Disability Benefit be raised to equal the Low Income Seniors Benefit of $12002.????? That Advocates be restored, perhaps through the Provincial Constituency offices, where they would be paid and there would be oversight. Advocates could at least guide these lost and desperate people toward assistance for which they do qualify, improving the lives of themselves and their families.In your review of existing policy and supports for people with disabilities in BC, please note this additional concern about the invisibility of children with disabilities in BC’s current public policy:The definition of persons with a disability in the Employment and Assistance for Persons with Disabilities Act does not include those who are under 18. Current BC policy recognizes that adults with disabilities who are unable to work can qualify for a higher rate of income assistance than those who are classified as expected to work.? Yet parents, especially single parents, who are raising children with disabilities are often unable to work or are under-employed as a direct result of their caregiving responsibilities for a special needs child.? The additional medical and therapeutic costs for raising children with disabilities are not recognized in the income assistance rates, as they are for adults with a disabilities. ?Neither is there an exemption for these necessary medical or therapeutic expenses from income, when a parent receives money for them from a non-custodial parent or other third party. ?This is discriminatory and undermines the health and development of children with disabilities whose parents are in receipt of income assistance.Thank you the opportunity to have input into the disability white paper and your consideration of these concerns.The amount people are getting on their cheques is not enough for anyone to survive on, let alone those who are even on less. It costs more to live than it did years ago, and rates have not kept up with the rate of inflation. More than once I received a notice about the Federal Disability Tax Credit, so that I could open a savings account, but unless you are completely blind, or in a wheelchair you can't get it. When living on a disability pension, you're damned if you do, and damned if you don't.The first step to take is to increase the welfare rates right across the board.The rates are so out of date, that it is getting more and more dangerous. If you don't believe me, go visit one of the "affordable rent" places, and spend a few nights there. The majority of places to rent are either more than 50% of the income, or even completely out of range. I just hope it will not be like when BC Ferries said they would listen to the islanders, but had already made their decision, completely ignoring the concerns of the citizens.I have been on disability since Sept 2012. The amount aloted for Rent is unrealistic.. and puts a severe hardship on Support, and on my health. In 2013 I lost over 30lbs. On Oct. 9th I attempted suicide. I truly believe Disability is a Death sentence for many people in BC. I struggle every month.. I have no phone, no internet, no tv. I cannot afford none of those luxuries. "Increasing Accessibilty" uumm... how about accessibity to "Fair Rental Amounts" so we can afford a phone.In a Medical Emergency I would be dead!!!! I am disabled do to a brain injury recieved in a auto accident.Finding any help in this country is near impossible, i can not find an advocate to help me with my batttle with the ministry of social assistance in british columbia. almost 5 years since my accident i am still fighting for dissability thru welfare. I need an advocate to apply , but do not have one so i am denied. any help would be greatly appreciated.i wasn't even informed about any of this until last cheque issue date. Feb26 2013 ,well after any consultation visits could be made in the [location removed] area. It would have been VERY difficult to attend a session for several reasons, but I would have tried anyhow. I have crippling arthritis throughout my spine and a recent diagnosis shows severe osteoarthritis in both my hips. My sacrum is also damaged and causes massive muscle spasms as well as affecting my bowel movements. This is on top of all the other damage to my spine that was caused by a construction injury many years ago. My doctor truly believes that I should have full disability classification. We have applied several times only to be rejected. Now I live in the constant fear of losing my place to live here in [location removed]. There is no support system to help me in any way. Never has been , I guess the government just figures I will learn how to survive on $650 a month???? Meanwhile food prices have risen over 30% . Telephone and BC Hyrdo bills have risen substantially. The cost of living in the apartment has risen steadily every year. Naturally, I am all stressed out over this. So ,this is what the government does to people who are in considerable pain and suffering????I learned about the Disability White Paper and I knew I wanted to be involved. I’ve attached my completed Disability White Paper Conversation Toolkit and articles for consideration and review. I am confident you will find something that aligns with you goals to make BC the most accessible place to live. I’ve seen some great ideas in the forums and just giving people the platform to express their concerns and ideas is a huge step in right direction to making BC accessible and inclusive. If there is anything more I can do to contribute and further this important message please do not hesitate to contact me. Thank you for your time and consideration- I would like to see a panel or board of people with disabilities available to consult on policies, building codes for publicly accessible buildings, transfer safety for air travel, accessible travel accommodations, etc.- Public Service Hub: > role models (more exposure--I've been watching 'Push Girls', very inspirational) > support services (ex. peer support, life skills, vocational training) > job placement and resources (volunteers, employees, employers) > travel (accommodation, transportation, domestic & international) > newspaper column (invite questions and participation to share challenges, resources, ideas)- Recycle program for equipment*** I've recently written and submitted a series of articles to our local paper--waiting to hear if they are going to run them--called 'Breaking Barriers' to promote inclusivity of people with disabilities and to include the rest of the community as well. I discuss my experiences and struggles to share what know and ultimately inspire change for the future.Breaking Barriers topics: Heath & Well-Being (Pt 1-4), Support Services, Housing, Equipment, Accommodations & Transportation, Accessible Design (Pt 1-2,...)- How about a remote to signal crosswalks? I use an electric wheelchair and with the base on the post I can’t reach the button, some buttons are rounded and rigid making a reacher difficult to push it right in the middle. With a remote I wouldn’t need help to cross the street, I think this would benefit a wide range of people with different needs.- I tend to get cold very easily, I would love to see electric wheelchair and/or scooter batteries with a plug in for a heater pad or blanket so I could get away from the wall and even participate more in outdoor activities. I can only add so many layers before my mobility is hindered by bulky garments.(Is a portable/detachable battery possible for non-electric wheelchair or walker users?)Public Service Hub: > job placement and resources (volunteers, employees, employers)- I use the CSIL Program and I have now hired two students while they were enrolled in the Nursing program at the [location removed]. This is win-win for both of us as my AM shift ends before classes start and dinner is after classes are out. I work full-time myself so I only have a few hours here and there to distribute amongst my staff, which works nicely with a school/study workload. This allows them to work in their chosen field and gain valuable hands-on experience before they’ve started the practicum phase of their course.I would be interested in working with the college to see if these students could receive credit towards their course or recognition of an internship/work experience program. I wonder if more community members would be interested in working with theses students if this option was available to them.- I owe my current 10 year career to my high school CAPP Work Experience program, I've worked right from graduation with the front runners of the industry for our region including an engineering firm, the city, the pulp mill and now a custom home builder--all without a post-secondary education.*** I have a full-time job now, but as my LGMD progresses I'll have to change...what's next, do I have to go back on disability and start from scratch again?- Social Housing/Assisted Living in smaller communities, [location removed] has 3 wheelchair accessible stratas that are subsidized. I have no room to grow in the one-room half duplex, the assisted living we have is large-scale senior's facilities; there is nothing for young active working people. My next option is buying a house which will require major renovation for accessibility.Creating a community of people that have the need for support, understanding and accessibility. We all worry about things in our lives: things we have to do, things we plan to do, things we cannot control... One thing we shouldn’t have to worry about is the care of our loved ones who have special needs. We carry this worry our whole lives, their whole lives and we may have to trust that strangers will care as much for them when we can no longer manage on our own. It is not only my dream to build my own home but I would also like to build a home for my community that includes private accessible suites with shared common areas on the main floor and privates suites upstairs for live-in care aids. I want this to be a home not a facility. I’d like to take away the burden of worry by creating an environment to grow old in your home—this model can also work for hospice care and/or accessible travel accommodations.- mortgage program- pet acceptance in rental properties, a companion is an important connectionPublic Service Hub: > role models (more exposure--I've been watching 'Push Girls', very inspirational) > support services (ex. peer support, life skills, vocational training) > travel (accommodation, transportation, domestic & international) > newspaper column (invite questions and participation to share challenges, resources, ideas)- Mortgage program, I could manage the payments as I do with non-subsidized rent but it's harder to save a decent down payment when I have other priorities like equipment and medical supplies. It would be great to invest in a home I can adapt instead of throwing the money away on rent.- Transition program for life after PWD pension, when I was on the program there was no encouragement to becoming financially independent, I had to find a job that paid double my PWD income to make a clean break. I still qualified to received PWD pension but I could only work so much before the employment income would exceed and then be deducted from the following month's pension, I needed to be financially independent.Overall there needs to be a constructive, simplified approach encompassing welcoming and an introduction to better facilitate the new PWD client. This needs to be followed up with continuing and supportive education and leads. Currently, the workers at the various SDSID locations throughout the province are so grossly limited.Pardon, the oxymoron: nonetheless, it is fact. A total overhaul of the department and system needs to occur and in conjunction with the BCCPD and the like. And recipients like me who would have done better receiving news about the White Paper sooner than later -- NOW I have only 8 days to make a worthy contribution to a system that directly concerns me.Overall there needs to be a constructive, simplified approach encompassing, welcoming:? an introduction to better facilitate the new PWD client.? This needs to be followed up with continuing and supportive education and leads.? Currently, the workers at the various SDSID locations throughout the province are so grossly limited.? Pardon, the oxymoron:? nonetheless, it is fact.? A total overhaul of the department and system needs to occur and in conjunction with the BCCPD and the like:? Social Department and Initiative equates to uniting together and valuing one another for the betterment of all concerned and whatever the project-task at hand.? And recipients like me who would have done better receiving news about the White Paper sooner than later -- NOW I have only 8 days to make a worthy contribution to a system that directly concerns me.? I was just notified about?The White Paper Consultation?late February, 2014, from a writ on a report card?sent to me from the BC SDSID.???Is your interest, intent and determination sincere or is this a mere snow job?? How am I suppose to take this all seriously?? I feel so frustrated and toyed with.? Why can't?there be honesty and frankness for a change.??Is nothing credible anymore?I really think we need to get an increase on the amount of money we get each month, even if it is only 100 dollars extra. We also need better dental coverage, we get 1000 dollars every two years, but if someone has a root canal, than all the money is gone in one shot.There really needs to be more low income housing everywhere, especially in [information removed] our MLA is Coarlee Oakes. If people on disability have to live in market value housing there should be a way the government could subtize, that. Lots of people on disability need help paying there hydro bill because that is so high. Food is expensive, and the cost of living does not go up for people on disability. How are people on disability going to survive when they retire, has the government thought of that. The government should also look at covering to get your ears and eyes checked. My finale thing is you should look at some of your stuff working in the ministry office they sometimes can be very rude and mean, it is not my fault I am on disability I did not ask to be disabled. Also the government says we can make up to an extra800 dollars a month, but for some of us that is not at all possible due to our health. I appreciate the process and asking us our thought, I look forward to the outcomeThank you for your confirmation.? Well, I have exactly 8 days remaining to peruse the?White?Paper?site:? featuring new facts, stats and links as well as making a worthwhile contribution, especially in light of the fact that I am a PWD recipient and former employee of the Department of Social Development and Social Innovation.? "Social:? of or?having to do with human beings in their living together".???-- genuinely, skeptical, deeply scorned and rightfully upset --??PWD Status. CPP rises annually, British Columbia provincial support declines annually -- fixed income for life: adversity, shame, economic inflation, isolation. I am not a label or a categorization. But I do understand that in order for "the system" to function - a definition must in place to accommodate the so-called "abled" to manage, operate the government service. Frightening and true. WHY DO I, AS A RECIPIENT, ONLY LEARN ABOUT THE WHILE PAPER NOW (last week February, 2014) ON A MONTHLY REPORT CARD MAILED TO ME?As a direct recipient of the department of ****??? whatever the millionth renaming of the social services provincial governing department is recognized as today -- and how many tax dollars has that cost BC residents over the many politically correct re-naming instances? Outrageous! I am dismayed, truly dismayed. Constructively, the Department - which I worked for prior to my illness - should have instigated a more timely, direct, collaborative and all encompassing approach directed at the clientele of the service(s) provided. Yes, we are clients, we are people of value and insight gleaned from great anguish, suffering and pain. And we, those directly affected by the effect of this so-called White Paper, are the last to know about it! Shameful, utterly shameful.......I have been on disability for the past 15 years. The last raise in payment was in 2001. The cost of living in B.C. is the highest in Canada and yet we get almost the lowest amount to live on. After paying my portion of the rent, I have approximately $550.00 remaining to purchase food, clothing etc. I'm finding it harder and harder to buy nutritious foods that aren't GMO laden or sprayed with toxic anic fruit and vegetables cost 10% to 25% more than the regular. Even B.C. grown fruit like blueberries, raspberries and peaches are getting expensive.A 20% increase in disability payment wouldn't be enough, I'm thinking a 50% increase in disability payment just to catch up to the rest of Canada.I'm thankful some one is asking in the Government it is very important all the work that is being establish from all the people and specially that keeps developing.The best Idea is to be a friend "undercover volunteer or social worker" if the person feels there is some one who had chosen him because it believes in his talent and needs his work, this person will feel empowered and worth it. Charity takes away the dignity of the person, and creates a pity consciously or un-consciously to live from.Mental Illness can be recover with mediation, exercise and oxygen to connect the cells for understanding.If in we create a net of people helping others create their website from a blog, and business cards. They will learn how to do it, what is necessarily to make their business role.This is very basic, and in the best forms of psychology for the way the mind works, is only treat it by asking systematic questions, the person is designing their own job out their own accords. Is not being helped or being put ideas, perhaps is being estimated and manipulated in an undercover way allowing the others intelligence to take form, to reach the best image onto the world. Many of this have lost it from many years of being aside from society creating more dis-attachment.From choosing colours, pages, photography, video, how easy is interconnecting in the net media, meet friends and spaces, how to make it legal, how to promote it, how to start with zero budget and see as much money the more investment and more quality for your creation.Little by little, having fun patiently. ANY ONE WHO DOES NOT WORK, WILL HAVE MENTAL ILLNESS, STARTING FROM DEPRESSION AND THINKING TOO MUCH IN NEVER ENDING CIRCLES. ITS PROVING AND STATED BY ALL DOCTORS. I really wish my project or organization is taken more seriously and I'm willing to give it to the Government. There is many people with disabilities living in the streets and ending up or start it the drug abuse. Is danger, is attacking the young people too.Other disabilities can form their own career too through a blog and website, they can think. We need more people to encourage, if the left over Canadians have feel complete, then is time to start helping other countries. Canada is in the top, but is still has a last issue. And this also delivers to small crimes. There are also many artist and sensitive people who can't cope because they don't have the centring to establish their own, too sensitive or hurt form past wounds.My most appreciation for people who are working for a better world, locally, for a better environment, for one an other. I hope out this pandora box form my deepest that this letter is being considered.I have being working for free and will continue for this cause out of all my studies and works and appreciate for others the best as they teach me too a better way. Thank you for bringing space for this.I'm a mother alone who had to face the mental Illness of the father of my children and wish greater and faster results for all those to never feel left over or suffer form the stigma of the families and even social workers. He does not talk alone now, he does many things now with out medication, we are still working thanks of the help of the social workers but it is not the way they work I would certainly approach towards. (judgements, cuts, they way the family court and laws for mental illness, the big labyrinth, the violence to push some one in an institute till is aggressive by force or by its free will, when they have no will, the dissolution of a family helper who is judged and abandoned, even threaten to stop caring or your children will be removed. The luck of humanity, when Cancer and other sickness are taken with more understanding.) The Importance of the history in the DNA of the family to be re-composed and aligned, healed. Not being cut out form society.Thank you very much, I really know there is much people out there working, I do believe other wise my work would not insist. I have an issues I would like to share. It concerns doctor's offices and the accommodation of disabled patients who cannot sit up. I suffer from a disability that leaves me with extreme weakness and chronic pain. When the disease suddenly flared in 2005, I could not walk or even sit up. I could not go to the doctor because I could not sit in a car, or sit up in a chair in a waiting room without danger of passing out, so I went by ambulance to the hospital. At the hospital, I was told they could not do anything for me because my condition was a chronic one and to "go see my doctor." But they did not understand that I could not go to my doctor because I needed to go by ambulance and ambulances do not go anywhere but to the hospital. And doctor's offices do not accommodate patients who are unable to sit up. When I called my doctor's office and told them I could not sit up in a waiting room and needed to lie down, they seemed irritable and put-out at having to arrange some type of situation to accommodate my disease.I asked if they could let me lie down on an examining table while I waited for the doctor but they said that was inconvenient because the exam rooms are always full. At that time, if I were to attempt to sit up for any length of time, the pain quickly became unbearable and I could risk passing out from the weakness I had. I live 30 minutes out of town and would not be able to get a house call, so my only option to get help was the hospital (which did not want me and would not help me) or the doctor's office, which was too difficult to attend. I know there are a lot of other people in my shoes who cannot get the care they need because they cannot sit up long enough to attend a doctor's office. (see, for instance ) As a result, it was a long time before I could get the care I needed.(Weeks to months until I felt strong enough to attempt to sit up in a wheelchair.) Why is it so hard for doctors to imagine that some patients are so ill that they need to remain supine or prone? Could not every doctor's office have a discrete space set aside for just such a patient? Or at least teach medical staff that some patients will require additional support due to a "sitting disability" and that the patient has a real dilemma and is not simply whining or seeking special treatment. Thank-you for taking time to read this.My teenage daughter has Cerebral Palsy. She walks using forearm crutches. Over the years we've been focused on making sure she doesn't lose her abilities. Now, however, as she's in the final years of high school, I worry about how she will get by in the real world. Simple things like opening shop doors that don't have a handicap access are something that we will have to actively work on with her. That is a simple barrier. How will she be able to take public transit when she needs help on/off a bus? I even worry about post-secondary education; how will she get around carrying a load of books? And then there's the employment barriers. So many struggles are ahead for her as she becomes an adult. How do we address this to make sure she has a happy and productive life? Also, it always seems we have to fight for assistance whether it is for an SEA at school (which she is funded for but for which we still had to fight to maintain), or for funding for the At-Home program which she is also funded for but we had to apply twice before being accepted. The point is, her disability is for life but we are made to feel that we have to prove how disabled she is.Hi there. I'm [name removed], and I've wanted to write about my views for a long time, so here they are: (Plz don't take as "hostile" they're just my views =) -I don't think POD's should be treated the same way as able-bodied ppl on welfare. Why should we suffer financially just b/c we're sick?And I have felt condescension on phone calls so much that I never even call anymore. I think it's been about 14 or 15 months, and my landlady didn't even get her damage deposit in all that time (that's $300) and I don't even want to call for That. But I still think she Should Get That, I have damaged the wall in here... -These "5 week months" should not apply to POD's, we should get paid every 2 weeks just like everyone else, and get a lot more money. My check has gone down, down, down, and I have no idea why. They told me Years ago, I was done paying the $20 a month they take, and my check used to be $988 a month, now it's $946.42. Idk why that even changed in the first place... -After my rent and bills, I have 2 non covered medications I have to buy every month, (that comes to about $200 w/ both) and that's why I can't even afford to eat right. I'm left with $126 after that for 4-5 weeks. I get all my groceries from Wallmart, b/c that's all I can afford. But it's all Junk, and my body is suffering for it with all this sugar intake. I plan to grow my own vegetables in the spring, but I'm still So poor. -The 2 meds I'm talking about, (PLZ no judgement?) are, 1) medicinal marijuana (prescribed, and I pick up at the Compassion club. I smoke it Medicinally, 3-4 pipe bowls per day (and night) Tops. And 2) I was able to quit smoking, it was 2 years ago Jan, but only with my vapes."Vapes" are "vaporizers" (or e-cigs) and nicotine juice, and that runs me about $70-$100 a month, (depending if I need new batteries and other accessories you need to vape, besides the much needed juice and cartomizers every month) I think I should get some help with those, I have for the whole time I've been vaping, but didn't know of a place to write my views. Believe me, No One wants to call that awful operator on the 1-866 number to talk to, she's the worst. (Of course, that may well have changed in the past 2 years) But ppl get all Kinds of help to quit smoking with nicorette products, and since this is the Only thing keeping me from smoking, shouldn't I get some help too?PLEASE? -My health has gotten much worse over the past year and since I live in a little cabin w/a loft, I could sure use some help cleaning and bathing. I have 2 doctor's notes, one from when I lived in [information removed], which I gave to B.C. housing, who just lead me on and on, with no results, so I've been paying ppl to do my housework for 3 years. And another doctor, just a month ago here in [information removed], gave me another note saying I need help with shopping, cleaning and laundry. -My tub is so small, and lifted up off the floor with legs (you know those kind? Porcelain?) so I can barely get Into it, let alone Out of it. (I'm 5'3 and it's hip high on me) If I had the money, I would put in a walk in shower. I already have a chair in the tub, but It's lifted up too, b/c the legs are too wide to fit. My health is worse b/c of this too, sometimes I don't shower for days b/c it's So Much Work and that leads to staff infections, even though I take antibiotics daily. -I have trouble standing for more than a few minutes and I Really want a scooter, but I want the 2 wheel kind, not the 4 wheel. I didn't do my taxes last year on purpose so I'd get a big check, (retro-activeGST's) all at once, so maybe I can afford a second hand one, but is there Any Way I could get help with That? I depend on my family for Everything and I know they're getting sick of it, b/c they All work, and they just want to relax when they get home, not come help me. Even my 68 year old mother, who has been a nurse, and working with the elderly and disabled for 30+ years, is still doing "home support" to this day. Just one more, I promise ;) -It would be so much better, for myself in particular, if you would send me my whole check. That would allow me to put the rent money into my landlady's hands, and she would appreciate it more. Right now, she thinks of it as just part of her income and has (accidentally) called me a mooch (denied it later) but I know what she's thinking. She thinks this is her tax money anyway, so I'm not contributing At All.If I could put her rent money into her hands, she would learn to appreciate me being here more, and I Really need that right now. Thank-you SOOO much for giving me a way to get my views across, I apologize for my ramblings, I guess I had a Lot to say, huh? lol Thanks again for "listening" Hopefully this will help Everyone, and maybe even me... =) A constituent who is blind asked me to send you her comments, to be considered for the white paper consultations.She would like better HandiDart service.? She says she can’t get service past 3:30, but often her doctor’s appointments go until 4 or 4:30.? She would like service from handiDart until at least 4:30 or 5 p.m.Also, she would like more traffic signal “beeps” at busy intersections.I wish to make the following recommendations as it relates to people with mental disabilities (I have a daughter who has a bi-polar disorder):?She receives a cheque every 4 or?5 weeks from B.C. Employment and Assistance in the amount of $906.42. This amount has remained unchanged for many years while the rate of inflation has increased. This means that the purchasing power of her $906.42 is reduced each year. I believe that the amount she (and others in similar situations)?receives should be increased to correct the loss of purchasing power and that after that has been done, the amounts paid should be linked to inflation in a manner similar to Old Age and Canada Pension payments.??She lives in [location removed], B.C. There are a number of housing facilities for people suffering from mental illness, I believe these are run by B.C. Housing. There a quite a few and I likely don't know all the various types. In our area there are the following facilities available:?[information removed], 25 individual units ?[name removed] Housing where housing is shared by up to six people[name removed] where housing is shared by up to 30 peopleTertiary mental health housing?I have ranked these in the order of severity of illness. Those functioning at the higher levels would be at Rainbow Lodge while those suffering the most would be in tertiary housing.?More people?need these places than there are places available. Increase the funding so that the amount of spaces available equals the number of people who need them.?If a person needs to be admitted to the psychiatric ward in a hospital there is always a shortage of beds. Increase the funding so that the number of beds available is equal to the number of people that need them.?I live with multiple disabilities some progressive and some developmental and untreatable depression. They claim that the untreatable bit is related to my autism and I have no reason for doubting it but that puts me in several disability groups overall.There are several barriers which exist which do not need to which I feel has prevented me as a citizen with a fairly broad skill set from every achieving my dream of being a tax payer.While the amount of support I need is somewhat variable the need for consistent support throughout my lifespan at some minimal level to do the things I simply cannot do has always been there, When I have not had any way to access formal support that has left me vulnerable to exploitation. As one of the things I cannot do that adults are expected to be able to do is communicate by phone with strangers it is shockingly easy to fall from having high levels of support to being invisible. No one really seems to follow outcomes in a way that would consider this sudden invisibility to be a problem. Although many of my disabilities other than my autism became apparent in university I went on to get my degree. That my persistence in doing so was an inconvenience to a system that was prepared to place me in a group home where I could live out my life on a comically low comforts allowance with people nothing like me.Oddly this as a solution has come up again.I worked for 24 years as a respite care provider. Because for 14 years I lived where I worked well I am easy person to exploit. I wanted to do valuable work and on some levels this is but I was becoming increasingly physically disabled. I was paid for slightly more than 4 days a month and notions that it would balance out so if in theory at the beginning my severely disabled client’s parent wanted to go to Mexico for a few weeks I would have months where I would not need to work. As a vulnerable citizen myself I feel like there should be some employment watchdog as may British Columbians pushed to the sides by disability do feel the same need to have meaning and work for adults provides that.I am skilled. I have a degree which I got with close to a perfect graduating average. When I went in for employment consultation the few times I tried that I was better educated than the people doing the intake was often the end of the issue. Support accessing more education would have helped. As the best jobs for the fully physically disabled person I will become and one in need of stability and structure are really in higher education.? As a person with multiple disabilities you sort of expect as how disabled you are increases it would become easier to access needed community supports. The opposite is actually the case. When I was younger despite there not being any support services for people with autism without an intellectual delay a turf war broke out? as far as what was primary. While I had frequently been I the mental health system at the point where I was offered psychosurgery (I wish I was kidding) of a kind so severe that it shocked me with the premise my genes and crappy childhood coupled with my development disability had doomed me so I may as well live out my life as a happier but much stupider person.This was an actual consult paid for with tax dollars at UBC. I had at the time an IQ they were unable to measure on one scale. This was BC’s solution where warehousing me was easier. Now there is more of a war around physical versus mental health but as access to services by pushing the mental health button is faster and if you are not elderly the service you can get even when you are completely bedridden as I have been for a few of the past few months are really frighteningly low. Under Gordon Campbell we saw some improvement when being able to earn money and keep increasing amounts of it occurred.? We also saw some of the first increases to the disability pension. Ever so briefly a person like myself able to earn some money enjoyed the ability to have shelter, eat and even set aside some money to in my case save for a dog or a computer.Although the letter that gets sent out about being a Person With a Disability has not changed what a disability income buys you has. Most people with more severe disabilities especially if they have that have a degenerative component or medical complications can really only live in major population centres. The shelter allowance ignores that fact completely.I currently live in a substandard below code place. My dog who is necessary for my life makes it impossible to get on most wait lists for subsidized housing. The cost of shelter alone is so high that even with a grandfathered subsidy almost all of my pension income goes to paying the rent and phone and internet. What is left won’t feed and clothe me. I had briefly worked in an entirely accidental career in computer games. I have always had a knack with them and despite my age there is some level of weird skill set that proves useful in some games. I had been volunteering in the wake of? my finding out that positive change is not easier to deal with than negative change for a much larger company to keep my skills active.Again I feel employment consultations and oversight would help as with the developmental disability I have had I feel someone should have been looking out for this very fact. Someone other than me as when it seems like your life might suddenly change for the better the first time that has even seemed possible well you don’t plan for that to be a problem even though everything I know about autism should have told me it would be people often lack insight into their own life especially in the situation I was in then which would have seen me own a part of a game and go from a life well below the poverty line to earning close to 10,000 Cdn a month.While the lack of support seems like a loss for me it is a loss for my province too. The company I was volunteering with for years stepped up when I was no longer able to do respite. It did not make sense to take on different clients with my own medical needs being so high. It didn’t do much for BC perception that without employment I would not be able to eat but again a German company was willing to hire me.They had never hired someone? without meeting them.. They had never had an external worker who wasn’t a short trip from the office and unfortunately my boss had outdated information on what I could earn when I was hired. Still? I do good work when I am well enough.? Germans are very health oriented and in contrast to my experience here where people focus on my deficits almost completely focused on what I do well.The sort of incentives that are available to BC employers are not as far as I know open to them so if they wanted to give me a more responsible position and a salary that would go with that they could not have the cost of it subsidized.A portion of the disabled population in BC must be like me in that they possess by accident of birth multiple languages and thus in a global economy may indeed be more employable to a foreign company. I am in bed a lot so a non-technological job makes no sense.? In North America games roll out in English period. While the same things I am good at that don’t relate to a facility with language would be useful to local employers I would be a much harder sell to them.Whether it is even possible to get skills training that would increase the odds of being able to transition out of BC (mainly increasing my oral productive skills in German) isn’t entirely clear. That there are languages that would increase my earning potential from here is also the case. Localization work being easier to get from a distance. I love Canada. It feels tragic to me on some level that right now to remain here means a life well below the poverty line, without work that challenges me, and a miserable old age with no savings to cushion that and no pension plan.That is not the dream you are carried to this land for.? My father has gone from having a hard time accepting I might if not actually go?“home”? have to reverse immigrate. I do not want that even but?having spent my youth going from being viewed as mentally retarded to super gifted, getting a degree despite all odds and outright resistance by?“the system” , getting substandard community support always at 45 I am quite exhausted by it all.Currently having flunked another assessment so that one day in the far distance future CLBC will likely reject me from their program because while finally having one? for adults with autism and at least a normal IQ is progress they are not apparently good at seeing longitudinal autism so as far as anyone can tell they have accepted very few people and those were transitioning from youth services.With the assessments they did it is a bit unethical to leave me unsupported and impossible for support to rise to levels that would be considered appropriate. If you need intensive support you get crammed into whatever box seems likely to supply it. Period. Thanks to the blending of mental health with addiction I am currently getting the intensive support it is felt I need not so intensively be a team that mainly serves addicts and homeless people. They came into being to deal with the intersection of crime and mental health but had their mandate broadened. Problem is very few people are like me in being as untreatable. It is not an appropriate agency to support me. They have failed at it quite catastrophically. I am probably only alive right now because by chance (albeit bad chance) I had a complication from a surgery that meant Community Nursing has been involved. That I was not eating which was one of the things that team that is supposed to provide support was supposed to attend to was clear to them.? This failure to remember and then follow to was one of the reasons I score so low but??the contrast between my issues and those of every one else they support is too much of a leap.If I reject this support completely I will without question wind up in a group home where I can have neither my dog nor my work (you cannot do secure work from an internet connection you do not control completely) I cannot live without my dog period. While I could live without my work in theory it would be a bit of a hollow existence. Well right now I couldn’t but if I wound up in a group home with a bunch of chronically psychotic women (there are always vacancies in this gender segregated home so however different they are from me no longer seems to matter. My quality of life clearly not being very relevant now)So I have gotten sicker in the two months I have in theory had more intensive support largely because they completely refuse to take my autism and how that shapes what I can cope with into account. They claimed they could. They claimed they would do many things they arbitrarily stopped doing. If I were slightly more socially isolated I could also have died as the degree of my issues with eating was such that it took close to 3 months in hospital to bring my blood levels up to where they needed to be on multiple counts to make a surgery I needed happen.For the strictly physical end of things? the process of getting things approved needs to happen faster.? I waited 13 months for approval for orthotics. So long that while my shoes had seemed okay at the time that they would make the orthotics useless by the time I got them was clear. Proper supportive footgear is not optional when your mobility is going downhill but for most of my life because I get no support to deal with red tape I have paid for my own and until I developed a new issue of the foot had long since given up on even trying to get orthotics.I had an OT tell me this week it would be hard to make a case for both a walker and bilateral canes. While a walker is essential outdoors right now very few of my friends have houses where one makes any sense at all. I don’t currently live in a dwelling where I can move around with a walker which is the only hope they have of getting both. Reality check please. When I cannot walk at all both a manual and electric wheelchair is usually provided in a regular rotation realizing that the heavier more useful electric chair is a barrier to inclusion at times. With all the barriers I have to inclusion that I only know two people who have a home I could move around in well as many decisions this year came close to making me cry.When I needed surgery what kind of insurance I have came up. I had to tell my surgeon who knew I would have a better outcome with a very specific kind of brace that if he started the paperwork then we might or might not have it funded by the time the operation came around. That’s unacceptable. I had my surgery in August. It was entirely pointless as the foam stabilizer they could provide bent when it shouldn’t. We couldn’t do a longer time in a better brace to give the surgery the best chance so at this point although the other knee needs doing as well since the left one needs redoing because of this needless and wasteful issue is such a false economy.The next surgery I have he will have to use cadaver tissue which means an even longer recovery. For want of a brace a much heftier hospital bill will be had. Maybe he will get like my dentist and eventually realize he can save my teeth or be paid but not both. I am dental phobic so I am not even going to encourage you to look at what thing actually cost now. I will leave that one to someone else to complain about.I imagine a brace however fancy would have cost a few hundred dollars. 5 days in hospital, specialist surgery, physio that is pointless, increased home support… Well you can do the math. Some pain killers are no longer covered that were when I had my first knee replacement. You can’t even get special authority for them now. Why? For that matter access to anything remotely 21st century when it comes to arthritis treatment forget it. I have without a doubt become more disabled faster because the options I would have had if I had made it into the fully paid workforce even briefly do not exist for a person with some level of disability all along.There is a protocol for access to some meds. Does the government do any oversight into if doctors are willing to follow it. My last rheumatologist saw me an average of 30 seconds a visit. My ride called him Dr. Thief. He said on the first visit when enquiring into my income and insurance that it was not his problem I was poor so he would not be willing to even try to obtain a special authority. We progressed through oral and injectable methotrexate at which point having reached the maximum does he could have. Heck with more willing doctors in the face of such debilitating conditions sometimes you can go straight to the drug company to have more compassion than your government (again not a nice image for BC but something some doctors I have had were willing to do) .Do you have any idea what it is like to have to accept treatment for a condition that is removing your? mobility painful week by week from a doctor who feels he can express total contempt for your income level? The complaints process for the College of Physicians and Surgeons is such a nightmare I doubt many disabled people can make it through it even when urged to do so. I don’t think by virtue of being disabled my access to health care should be so compromised. It means little that we have the Canada Health Act when access to medical equipment, medication and so on is so difficult. Years ago when I was disabled but still a student and before UVic got health care I had to leave a hospital without a prescription for antibiotics. I had cried merely contemplating the cost as it was impossible for me. Of course if you cannot afford antibiotics you wind up in a much more expensive hospital bed some of the time.The same has gone for when I could not afford food or adequate housing. These basic rights to security of access to those things is still spelled out by whatever the people who don’t meet those needs is currently calling themselves. It is unacceptable.??It’s also such a false economy. There is no time travel so if I envision having been in a country with true health equality that supported my needs and saw I could be a productive citizen well it is painful. I have a friend who moved to the UK. When she was here although she was less severely disabled by far and only in one area of course our economic reality was the same. In the UK she gets 60 hours of paid support per week! Here she couldn’t even make it through a college course. There she earned her Masters. When she is actively a student that amount actually goes up by 20 hours (when she isn’t it is 40 of home support and 20 of paper work support) I don’t propose anything close to that as being needed for most people. When I had 7,5 hours of home support and those supports were allowed to actually do more that was about right. There is so much to do I don’t think BC has a hope of being the most progressive place for disabled Canadians although since many other provinces are also failing maybe you do. One thing all Premiers should get put back on the table is something that the Federal government raised briefly years ago but it never made it into legislation. If you are on provincial disability you do not have the right that is a Charter right of movement within Canada. When I was younger I sometimes considered going to where I would have better family support but there is no easy transfer of your disability status. The same sort of solutions that have worked for other province paid for but guaranteed as a right of being Canadian during a transition could work but they never even come up. Is it okay that I am denied rights I legally have? These are not idealistic rights dreamed up by the UN (although yes we fail on multiple fronts there too) but Canadian Charter Rights. I love BC whether I would move or not is hypothetical as I am far more likely to just leave Canada but earlier in my life returning to where I had family support would have made sense. It simply wasn’t possible. For me right now it really boils down to the cold hard reality that even the supports needed to keep me alive are not being provided let alone to slow the progression of the degenerative disabilities. Stress and autism don’t play well together so they all interact and mean the young person who made it through university and only wanted to be a productive citizen never got the chance. Don’t make it so this plays out over and over again. Disabled people have skills, they have dreams. We are like everyone else in those respects.The first lesson you learn in BC as you emerge into adulthood with multiple disabilities is right now you better dream smaller dreams no matter what your gifts are as your health will be denied nearly everything people take for granted while getting new pieces of paper in the mal every year that say this isn’t the case. People always seem surprised when I recite that overall the NDP did far worse by the disabled population than the Liberals have. As that is not the image they have but as most of the improvements to quality of life happened in the first term of the Campbell government it’s slid a lot since. I am not politically stupid. I know that in fact right winged governments are more often than left better for the disabled as pretty well everyone has a relative or two like me and treating the disabled well converts nicely at the polls. While I cried when the Liberals were first elected I would never vote NDP unless they would guarantee they would not be the party of the unions.I cried while reassuring myself that this point had come up at a national seminar I had attended with a non-profit but I didn’t believe it and with the huge rise in the cost of living coupled with the increased times to get anything approved well it’s a good thing if you are hoping to make the kind of changes that do lead to votes that you started this process now.I will congratulate you on making an email option available. A survey might have been easier for people who wanted input but cannot attend in real life or use the phone. For me it was okay but maybe not for the person who has to wade through it.I hope you actually act.? Politics was once a great passion of mine. As it does most people I suspect in the end it crushed my heart and so I stepped aside beyond voting and not being able to help encouraging people to vote and correcting them on errors. Unlike citizens without a disability while I can engage or not engage in politics ultimately much of my life is at the mercy of the government. An ethical government would keep that in mind and measure outcomes and the results of? delisting some medications, and making access to health altering devices so painfully long doctors won’t even enter the fray. Please do better. Thank you for reading a rather long email. If I had ever managed my childhood dream of being Prime Minister I probably would have bored the country to death.My name is [name removed]. I am 33 years old and? I have several mental and one physical disability which I live with on a daily basis which impedes partially my ability to gain? employment and? go about some routine tasks on a daily basis.? I live in [information removed]and rent a single room in a house for $475.00 a month. The conditions in which I live in are very cramped and little privacy due to the amount rent is for most please in [location removed] and? the limited amount I get for? PWD. Aside from this fact I go to school part time and? have been actively seeking meaningful employment for over a year to assist in supplementing my income? in order to make ends meet and be able to feed and cloth myself which is a challenge? at its best of times.?I outline my current situation in life for one main reason to make? my first main point. And that point is that even though all the conversation ideas on enhancing the success of people with disabilities in BC is? all well and goo d but means absolutely nothing to the person it is targeted for? if we are? preoccupied with? just surviving? and wondering where we will be in a months time either? having enough to eat of if we will be out on the street due rising rent prices, food prices and when we can get to the food bank etc.? With this in mind? how are we able to think about enhancing our quality of life in BC in the long run and what not if we are so preoccupied with? worrying about? surviving day to day. For example the RDSP touted as a significant? achievement meant to help people with disabilities save for the future is a wonderful idea indeed but? it is pointless from a person in my situation because? I have no funds to contributes to such a plan if I cannot even make ends meet with the funds I get for living day to day. If I ask anyone for funds? it will be to help me day to day right now and not to save in an RDSP unless I am able to know? I can adequately cloth feed myself and have a reliable roof over my head.? The $906.00 a month people on PWD get from the BC government is simply not even close to what is needed to provide for the immediate needs for people with a disability in this province in most cases. Until this is rectified with increased funding? and adequate housing? most people ij my position will continue to worry about day to day and not really see the benefit of such a conversation .?So my input is this. Increased funding for PWD and? housing options so we can? stop worrying about our survival needs then we can worry about truly living life to its fullest as people with disabilities in this province. One such way this can be done is to change the regulation of having CPP disability benefits? taken off? dollar for dollar from the main PWD amount and having it? count as income? to the monthly limit, however I am not sure this? will help everyone as only some PWD? clients? are capable of getting CPP benefits but it does? offer some relief to some in this situation. As a PWD there are several things I find very frustrating. I get that people on government benefits are not supposed to live lives of luxury, yet, the amount of money that people are given is not enough to live on and maintain ones dignity at the same time. As a single person $906 a month does not pay rent, food, and medical bills. The government lets us earn up to $800 a month in addition to this…sorry I am not jumping up and down with a big ‘whooopppeee’ because this is paltry. If we bring in anything over $800 a month it is immediately deducted from the next months PWD check. But will the government cover my physio and dental appointments? Nope. Does going to the physio help my condition – a resounding YES. Does dental cleaning every 3 months help my condition, A resounding YES – just ask any dentist who specializes in the autoimmune disease I have. How often do I actually go to the physiotherapist – only when critical because I have to pay $70 out of pocket. There is no recognition that my treatments are not covered. How often do I have my teeth cleaned - I don’t. I can’t afford to pay for physio and dental treatments even though the impact of both on my health and well being are profound.Here’s the thing, previously upstanding citizens of moderate means who have lived by themselves all their lives are forced to live in substandard accommodation or share with others. Tell me where in Metro Vancouver will one find safe and adequate accommodation for $375 a month which is the housing portion of the PWD allowance? Add hydro to that and you can say goodbye to much of the food allowance of the $906.When one also has medical expenses that are not covered by MSP, but necessary for quality of life, (as an example physiotherapy sessions that get you off walking sticks and back on your feet) why are they not covered? When one’s medical condition is such that a Dr. wants to prescribe a specific medication that is not covered by MSP, why is there no exclusion clause that allows it to be covered for a PWD? I can’t afford $80 a month on medication yet my Dr. has three times wanted to put me on a specific medication to help my condition but it is not covered….and my Dr. says it is the best and the generic medications are either not available or don’t work in the same way.In order to cover medical expenses for treatments and medications recommended by Drs. and not covered by MSP I put my fragile health to the test to make the $800 a month. Yet, in 2012 my out-of-pocket medical expenses were $2500. Yet is I make $840 one month the government snaps back the ‘extra’ $40 as if I am cheating the system. My out-of-pocket medical expenses for 2013 will be approx $1800 only because I simply can not afford to attend physio as often as I should. And so the circle goes around and around. By not being able to afford treatment I don’t go as often as I should ergo I am not able to manage as well as I could if I was able to have the necessary medical care. Of course, a standard response is that one should just find a medical practitioner who provides coverage under MSP. This might be fine if you live in a neighbourhood with an abundance of medical practitioners, but most of us don’t live in those areas. And I certainly don’t.Another issue, why is dental treatment not covered for PWDs? I have a chronic condition and an autoimmune disease that results in my gums attacking my teeth. I need frequent teeth cleaning in order to reduce the impacts of my condition…but…it’s not covered. Instead I have to go to the dental hospital for regular monitoring (though they don’t do teeth cleaning unfortunately). They simply tell me if my condition is the same or worse….there is no cure for what I have but it is debilitating.Being able to make $800 over and above my PWD payment does not cover the medical expenses, medical treatments and dental treatment that I need. These are not superfluous treatments, nor are they luxuries. They are treatments that help my various ailments and also treatments that keep my condition in check so that it is manageable. It seems that the government thinks we are all just wanting to live a life of luxury. I would like nothing better than to recover from my medical conditions and get back in the workforce. Having access to dental treatment – necessary due to my condition, and physiotherapy, again, necessary to my condition, would help me get back on that road much quicker than is presently projected.I'm trying to get back into the workplace and will soon be finding out what help is available to me in the tri-cities area. I am not in a wheelchair or don't use a scooter but I have arthritis.I found it awkward to have to go to my dr. to get a referral to my podiatrist just to get orthotics made for me when I needed a new pair.It was easier the last time I got a pr. made by just having to go to my podiatrist, make it easier to access what I need. Also, I needed some fillings done and all my dental money was used up last year and I need some work done this year but now need to pay 100% as all the money was used up, there should be money I can access so I don't need to pay 100%. If the amt. I received was more than $906 each month, I could afford what I needed.Thank you for the opportunity to provide input with respect to this very important area of my life, my mother's life and the lives of so many others, who have long been left out of the process. This is an enormous topic/issue and the ways in which a person with disability are affected and the impact upon their family is immense. When the government makes budgets, rather than people a priority, cutting health care and many of the services and programs once available to people with disabilities, the resulting deficits in services fall directly upon the shoulders of the disabled person and their family, who, in the case of serious, chronic disability, are already stressed to the maximum limits of any and all of the resources they already possess. In the areas in which they do not possess a wealth of resources, these cuts make it infinitely more difficult to cope and enable the person with the disability, not only to participate fully in society, but to access the necessary health care and services to live a humane and healthy existence. It seriously grieves family members to see the health and living standards of their loved one decline significantly. No one should have to live without proper medical treatment or live in substandard, extremely poor and dirty and unsafe living conditions, vulnerable to the abuse and victimization of others. Cuts also mean significant changes to the way programs and services are accessed and how changes to these programs and services are communicated to the very people who need them. When I have made calls, because I have a phone and "can" pay for telephone service, I am always told to go on the government or health care website for that service or area. This means we must have a working computer and pay for web service, which is very expensive, limited budgets, where there is never enough money for everything a person with disabilities needs.Wading through the sites on the web, and then wading through the information on one's own, without being sure that we understand this information or how it really applies to us and our ever, changing situation, is very, very stressful. There is often no one to contact by phone who can answer our questions. We must go step by step, blindly, and only learn from our mistakes, often with severe consequences, as we go along. This is also terribly wearing and stressful.. I understand that the government has a huge job of providing services for people with disabilities when there are so many ways people become disabled, however, not everyone fits into neat categories, and like in our situation, with my mother, also a senior, whose health status was declining in so many ways, which led to multiple disabilities that we had to respond to so quickly, one after another after another, without help. It was daunting and even with three family members working cooperatively, it was extremely difficult to keep up. The travel requirements and scheduling of different health care appointments and procedures was immense. Finally, what I would also like to say is that without the proper information and support, the disabled and their families are put in an impossible situation. On top of all of the things we needed to do for my mother, we had to try to find out about Representation Agreements and the specific details that affected her or applied to her. We called lawyers, and everywhere we could think to call and we could not get any assistance anywhere, in time. Nidus, a nonprofit, only has one paid position, an executive director, who was on extended leave and her position was not covered in her absence. Their registry and email was not active. We had no idea, in time, that there were two kinds of agreements, what they meant, or anything about why this was being presented to my mother. We were told that it was a private, civil agreement so the hospitals and facility had no place in providing information or assistance in the matter. Any issues or questions or information would have to be obtained through the courts, which, when dealing with the care of a disabled person, was incredibly emotionally painful and an incredible barrier to obtaining assistance and care for a disabled person.Further, the existence of this agreement meant that, to the health care system, no other family members could be included in my mother's care, in any way. We were all immediately excluded from my mother's care. We could no longer help her as no one would listen to us. If my mother, herself, or anyone else had any idea that this was to be the end result of such a document, she, had she been well, and the rest of our family would have done more to prevent its creation. Just because a person signs such a document, it does not mean they initiated the process or understood its full legal ramifications and consequences in terms of their health care and effect on the roles of family members in their care... From then on, it was automatically assumed by every government service we tried to access for information, that we had "family issues," which still had no meaning for us, as we had no idea what this agreement was or what it was for. No information was forthcoming and we were then not eligible to ask the government/health care system to review the situation, as our names were not on the agreement! A perfect catch-22 situation. People need to know what and how such tools can effect them, and unintended consequences must be accounted for. Thank you.I have been on Disability Pension since 1998 until today. I wish to contribute my story to the Government of BC a few word : I was diagnosed with [information removed] since 1989 and received support from the Government of Canada and BC since then. I have ?old aged parents to support (they are approaching the age of 100), they are still alive. Three of us living together and helping each other to live therefore I think I still need support from the Government of BC to live through the hard time. I really appreciate your help and would like to say my THANK YOU to the Government of BC for your support. We will never forget your help and support .As a person with [information removed]who wants to work fulltime and be able to be self-sufficient financially. I know that each individual on PWD has different needs. I want to see the PWD benefits increased to $1,640.00 per month which amounts to someone working fulltime at minimum wage.The rent price for a decent place to live fluctuates between $625 to $900. The shelter portion is too low.A provincial and federal law need to be written and passed that will mandate a percentage increase every two years to keep up with the cost of living.A PWD union that will represent disabled people in the work force. All businesses, organizations, corporations should have accessibility.There should be apprenticeship programs that are customized for PWD so they can get training and work experience. Businesses and organizations that only hire people with disabilitiesBC Housing has a major shortage of adequate housing availability and waitlists that are too long for PWD. All housing need to have accessibility for PWD.There should age of majority in Canada at 18. Once a person turns 18, they can apply for a PWD medical card for people with permanent disabilities so they do not have to go to their physician to get a prescription or note for new mobility aids or equipment such as new crutches, etc. The card should cover of medical needs and medical forms. The wait time for new equipment needs to be faster and less red tape BS.Study Grants increased to cover post-secondary costs. Secondary students with PWD have career workshop that will help them focus on careers dealing with strengths and interests.PWD should be involved in the design of new innovated mobility aids, medical equipment, and, school, home and workplace accommodations.There should be a PWD Committee that other PWD can contact about their concerns. The PWD committee should meet MLAs, Premiers and other government officials annually to discuss the progress and concerns of PWD.Please consider the points brought up in the attachment. I am voicing on behalf of my 9 year old deaf child who has a cochlear implant to allow him to hear. He still struggles with language everyday.We are struggling financially to be able to hire him Speech and Language Services to help build his language. It costs upward of $120/hr.Innovation that can reduce barriers are as follows; My son is deaf. Unlike most of the deaf population who sign as their main form of communication, my son hears and speaks with the help of his Cochlear Implant. He is 9 but consistently struggles with the english language. There should be a BC disabilities Act to give rights to individuals with a disabiltiy. The act needs to include ALL disabilities including hearing loss, autism and any other physical or developmental disabilties. There should be funding available for children who are deaf but have been implanted with a Cochlear Implant to hear and speak with access Speech and Language services and Hearing devices. There has never been funding for these children but only for the first pair of free hearing aids or implant as a child. This deaf population is growing as Implants are getting more and more accessible due to the current technology. The Cochlear Implant allows one to hear and speak but with much needed support in Speech and Language services. Having a good knowledge of English will help them succeed in school and in the future job market. Most families cannot afford to pay for these services. Speech and Language services cost upwards of $120/hour. Having to forgo these services is detrimental to the individuals future. More programs for deaf individuals such as Trending Technology based programs should be available in small class sizes could help these individuals have an advantage when they are looking for jobs. This is an incentive for employers to hire deaf individuals.My son is deaf. Unlike most of the deaf population who sign as their main form of communication, my son hears and speaks with the help of his Cochlear Implant. He is 9 but consistently struggles with the english language. Funding should be given to children who are implanted with a Cochlear Implant because they need ongoing Speech and Language services. Although they can hear only in quiet environments there are still alot of challenges to learn language. They need a good command of english to be able to function and do well in school. Unlike deaf individuals who sign. They can communicate well in ASL. Cochlear Implant users don't usually sign their focus is on using Speech. Funding should also be given for hearing devices. Children are given their first pair of hearing aids or Cochlear Implants by the province. No funding for these devices exist there after. Cochlear Implants cost upwards of $8000/implant. Hearing Aids cost upwards of $900/hearing aid. These devices only have a few years lifespan. They break and need repair.My son is deaf. Unlike most of the deaf population who sign as their main form of communication, my son hears and speaks with the help of his Cochlear Implant. He is 9 but consistently struggles with the english language. Programs for deaf individuals such as Trending Technology based programs should be available in small class sizes could help these individuals have an advantage when they are looking for jobs. This is an incentive for employers to hire deaf individuals. Transition into workplace programs should be available to deaf individuals so they can learn and familiarize before entering the workforce. There should be a work coach as some don't have the social skills before entering the work force.My son is deaf. Unlike most of the deaf population who sign as their main form of communication, my son hears and speaks with the help of his Cochlear Implant. He is 9 but consistently struggles with the english language.My son is deaf. Unlike most of the deaf population who sign as their main form of communication, my son hears and speaks with the help of his Cochlear Implant. He is 9 but consistently struggles with the english language. There should be mentor programs for children who are deaf. Deaf and speaking teenagers to mentor young deaf kids.More information is needed to allow for more understanding of RDSP.Hello, my name is [name removed] and I am deaf. I have recently participated at the Vancouver Deaf and Hard of Hearing Session (Feb 25th) [] and Abilities in Mind 2014 Conference (Mar 5th-6th) [ HYPERLINK "" ] .1) establish BC Deaf Office (DO) on provincial level and to be funded/operated by at least 51% deaf staffs and president. The DO focus solely on addressing the needs of the Deaf community and to support their re-integration into society.As an example, the Russian government have already established their own Deaf Office and is quite effective. I have a few deaf Russian friends living in BC who will be more than happy to share their experience with our BC government.Having our own Deaf Office will be of great service to the BC government for reason as being a single point of contact, that focus mainly on deaf issues and to propose solutions.The DO needs to be established as an independent entity and not to be under another office (e.g. Disability Office) because the communication barrier is great enough to cause the Deaf community to develop their own culture and language; much like an Office for Aboriginals. We are a unique group separate from PWD.2) the BC Disability Assistance program needs to be revamp. The program should be made available to all PWD regardless of income and status. The current system should not require PWD to apply for welfare assistance *before* applying for disability assistance (DA). Generally speaking, living with disability is expensive financially (both tangible and intangible) and governments around the world are typically providing help on the tangible.The barrier(s) that a PWD typically have to face on a daily basis can be restrictive enough that the intangible cost involve are far greater than what a normal person will need to spend to live a normal life. The financial insecurities that the PWD generally experience are causing unnecessary stress and health-related issues, which makes it harder for them to actually accomplish anything. In short, it makes more sense to provide the needed financial backing so that PWD can actually have the opportunity to make their contributions to society.Deafs should receive financial backing for the rest of their life starting on the day they were born. People who have lost their hearing (or deafened in later stage of life), belongs to a different category in terms of financial assistance. This is because they usually had the opportunity to succeed where Deafs usually couldn't and still can clearly communicate their thoughts to a normal hearing person. Deaf are speech-impaired on day one and we're force to memorize our pronunciation for each word so we can be understood. In addition we need to rely on interpreter to translate. The interpreter cost money and we don't have any money. It is silly thinking that our government refund us our money back (either in the form of credit or cash) at the end of each year. We simply cannot afford to pay interpreters. Imagine going to a $400 seminar for a day and Deaf are required to hire a team of two interpreters. Most businesses hosting the seminar won't or couldn't pay for the interpreter, which effectively shut the deaf person out. Some business offer half price admission but I don't think this is enough because we simply have a hard time following what was said at the seminar. In short, I rarely go to seminars due to the barrier described. If the interpreter will be provided, this opens up the opportunity for us to actually participate in whatever topic we choose.We don't have enough interpreters as they're always in demand. The school are not training enough interpreters to keep up with the demand, which is also another issue that needs to be resolve. Add more funding to hire more interpreter and to make these interpreters accessible is the solution. Interpreter should be provided for whatever reason, be it personal, work, medical, etc.The Jericho incident [ HYPERLINK "" ] is a terrible service to the deaf community in general. We should be receiving quality education and be treat with respect and dignity. Deafs living in Russia are quite successful in all area which puts countries around the world to shame. Russia send their deafs to private school, train them how to speak orally, while our country does not do enough to encourage this practice. This cause deaf Canadian to be alienated from the hearing community in general, simply because they couldn't communicate the same ways as a normal person could.I think it will be beneficial to both our community and government that we start by opening the Deaf Office in BC. I can start by helping to bring together the influential deaf people and discuss ways to move forward.Firstly, thank you for making this opportunity available to provide feedback. I am delighted to present a few of my thoughts regarding the subject. I am writing based solely on my experience raising a young deaf man, [name removed] – now aged 26. I am “[name removed]’s Mom”.I have been involved in a number of deaf-related areas for more than 25 years. I’ve created many events, coached deaf sports teams, sat on boards related to educating deaf children and spoken on parent panels. I’ve been involved with creating the first Deaf Little Baseball League team in Canada in the early 2000’s, coached a deaf basketball team, created and organized the first Deaf Grad (still happening today – the first was in 2004). I still manage Canada’s Deaf Beach Volleyball program, BC’s deaf men’s indoor volleyball team and have organized many fundraising/media events related to deaf sports. I’ve also sat on the board for Family Network for Deaf Children and BC Family Hearing Resource Centre. My professional area of expertise is communications (primarily government) – because of my professional expertise, I’ve created media events with the hope of raising the profile of deaf athletes.I’d like to focus on three very important areas in our family’s life:Access to sports. My husband and I have always been self-employed. This allowed us to ensure our deaf son [name removed] was NEVER without an interpreter at sports or other extracurricular activities (he gets his information primarily thru sign) – especially in the early years (aged 6 – 14). This allowed him to learn and excel athletically as he was mastering the rules and details of the sport at a young age – similar to hearing children. He played soccer, baseball, basketball, volleyball, beach volleyball, karate, and rugby and was also once even a participant in Beavers (young Boy Scouts). His chosen sport became volleyball and he has gone on to win gold at the BC Summer Games, four provincial titles in beach volleyball (always hearing partners); provincial indoor volleyball titles and awards, and he was recruited for a post secondary volleyball team – as an adult he has recently competed for Canada in the Deaf World Beach Volleyball (2012) and two Deaflympics in the sport of Beach Volleyball (2009 & 2013). He was one of 20 Canadians in 2005 to receive the Terry Fox Humanitarian Scholarship and attended four years of post secondary at no cost to us. [name removed] ISN’T SPECIAL – he has the same athletic ability as MANY other young deaf men, the difference was [name removed] was given the opportunity to learn and master a sport at a young age – he had access in his first language to all that pertained to the sport, and then went on to compete on an equal playing field in hearing sports during high school, therefore going far with his talent and being recognized at a much broader level. He could NOT have done this without thousands of hours of interpreting by my husband and I. Sadly, many of his friends, who are equally athletically-talented, never got that opportunity, because involvement in hearing sports wasn’t possible – their parents worked full time, or didn’t feel confident interpreting, and then they couldn’t be involved when other youth are learning the sport. When the competition becomes intense and at a higher level, it is imperative the athlete understands the coach and this wouldn’t have been possible if we weren’t there to facilitate communication. When [name removed] was around 12 years old and a good baseball player, my husband and I created the first deaf Canadian little league baseball team – the Deaf White Sox. We had to go thru many barriers to create this team of deaf youth, from various geographically jurisdictions, different ages and sexes. We began with a group of athletically unskilled deaf kids, some never having had played the game before, and three years later we were on equal footing with the other teams in our league – because our players were able to access the sport in their first language. The undertaking of this team was pretty enormous, but the results were HUGE and its legendary today and a great memory for all those kids – and for many of them, the only time they every played on a sports team and the only deaf sporting event they’ve ever accessed. What is ironic is all the years at public school, sign language interpreters are NOT provided for after school activities, but once [name removed] finally made a university volleyball team, they were provided! The issue is, unless interpreting is provided for all the young years to learn a sport, and then master it during your teen years, a person would NEVER have gone on to play university and then have access to the free interpreting! So I would recommend the government consider funding interpreters so more deaf children and youth could participate in sports – ensuring young deaf youth have similar opportunities as all youth – and even if they don’t excel they learn all the other aspects involved in playing sports such as fair play, teamwork, cooperation etc.Sign Language Interpreters ON STAGE/ON CAMERA for Major Media announcements/events.In the past few years, you may have noticed how whenever there is a major internationall event in the media such as Super Storm Sandy or Nelson Mandela’s funeral (those are two that the sign language interpreters received a great deal of mass media attention) other governments prominently display a sign language interpreter on stage so that deaf can receive the important message in their first language. I live in horror that should an earthquake or some disaster happen in BC we would have NOTHING available for our deaf to understand the situation. I’ve organized many high level media events (with Premiers and Ministers) and sign language interpreters are NEVER hired – it wasn’t even open for discussion when the event is being planned. If the government is thinking that the news stations close caption important announcements, it doesn’t happen! Also sadly captioning is often so badly screwed up when its live, you have no idea of what is being said. In addition, the emergency services of 911 are not accessible to deaf as we don’t have a VRS service in Canada and most deaf only have cell phones (no land line and no telus relay service for tty’s for cell phones) (sadly deaf have to pay voice plans, when they never use them, for but that is another issue).If we had a big disaster in BC, and they certainly say an earthquake is immanent, we have such horrible services and communication services for our deaf -- it honestly scares me!Please ensure that for major announcements a sign language interpreter is present and on screen!Funding for interpreters for employment or benefits for employers to hire interpreters or write-off the cost[name removed] has gone on to became a web designer. The company he now works for, [name removed], has been extremely GENEROUS with hiring interpreters AT THEIR OWN EXPENSE. This is the second company he has worked for since graduating - the first was a young start-up and they weren’t as generous – as they were investing primarily in their company’s future (totally understandable). When [name removed] was first hired after graduating from BCIT my husband and I HIRED AND PAID personally for an interpreter to go into his work on a weekly basis - so he was able to fully understand at least once a week what was being communicated at a meeting. We were so sure that once they got to know our son and know how important something like this was to his contribution to the company, they would invest in him and do the same. We believed a young start-up company would not be able to see this potential and also invest if they hadn’t experienced its value. Hiring and personally paying for interpreters, isn’t possible for many deaf young employees (or their families) and is a HUGE barrier for employers as its an added expense.The first company [name removed] worked for didn’t “start-up” and he was laid off a year later. Thankfully, another very successful web company called [name removed] snapped him up immediately. They have invested in interpreters twice weekly – once for Lunch and Learn (to continually educated and stimulate their workforce) and another for a weekly update meeting with all employees. This is EXTREMELY GENEROUS and VERY APPRECIATED as right now there is no write-off for this expense. It is the two opportunities each week for [name removed] to gain full access to what is being communicated at no burden to anyone (except the company’s bottom line), he gets to know his fellow employees and develop relationships, a few have since started to learn to sign, [name removed] is able to communicate fully his ideas and thoughts. Twice a week – just twice a week- he is fully participating in the company and that is HUGE and makes an enormous difference to [name removed]’s sense of belonging in that company! We hope the company knows that by investing a bit more in [name removed] he will deliver a bit more and be a very, very loyal employee. However, again, this shouldn’t be a rarity amongst his group of friends, it should be something that is given to employers so that they invest in deaf employees, make them full contributing members of the staff and include them fully without a large financial burden --compared to their hearing counterparts. By doing this, deaf individuals would be less likely to be unemployed and costing the government money thru benefits such as welfare and would contribute greatly to their sense of self worth and mental health. Given two possible individuals seeking employment, one hearing and one deaf, equally talented but the deaf will cost an employer more thru hiring of interpreters for meetings/training/orientation, it is extremely likely the employer would pick the simple and less costly option of hiring a hearing person, leaving the deaf unemployed! If the government helped out and removed this barrier, a deaf person would be equally attractive and more likely to be a member of the tax paying public instead of unemployed.Please consider providing funding so deaf people would hire interpreters for the first 3 months of a job at no expense to the company– maybe 4 – 6 hours a week. Or better yet, provide a tax incentive to companies to write off a designated amount of interpreting when they have a deaf employee. If we want employment to be less restrictive to the employer, we make it so that they don’t have to pay a lot more to hire and train a deaf employee.Thank you for allowing British Columbians to contribute to raising the bar in BC with regards to fully involving all individuals in our province on a more equal footing.Just to say the RDSP is kinda a joke, as i have no money left in a month to contribute and take advantage of it (only those who work seem to and even then the PWD cheque is clawed back) ….have had 4- 5 years and Never contributed.this makes no sense. also we get when we are 59 ??? I have to wait that long??It should be reexamined and tweaked.Deaf individuals and especially Deaf parents in subsidized housing need design accommodation where there are clear sight lines from the front door to the back door through the kitchen, eating and seating areas. Also, be prioritized for smaller complexes where neighbours interact with deaf parents and are rewarded for learning sign language and deaf culture.Once simply identified as Deaf by a medical doctor and audiologist, a Deaf person is automatically eligible for PWD and is guaranteed a basic living allowance whether employed or not. Does not have to re apply.Deaf persons may apply for a smart phone, the purchase and usage cost to be subsidized by government. Training on how to use smart phone features will be provided in ASL. Video relay services to replace TTD/Tty.I have a lady friend in [location removed] age approx 30 yrs ,living with type 1 diabetes , wearing an insulin pump ; she is also a designated?by the Government??PWD.??As off April 1 2014 insulin pumps will be covered by Pharmacare up to age 25 .When her ?insulin pumps retires next year ( usually lasting about 5 years ) she does not have the finances to purchase another one . ?What will our Government do to assist this person , to continue her life?with the help of a pump ? Her overall blood sugars have been better since she started pumping , she had 3 rd party coverage .?Her circumstances have changed?. I would like to have my comments included and considered. Please forgive awkward wordings and typos.Also, I'm not sure which categories best fit my comments, so perhaps I'll submit my thoughts and someone could fit them into whichever the places they fit best for your work. Please feel free to cut & paste points into the category /topic / under the headings where the comments are best suited. Thanks so much!1. There is a great and unjust inequity in the social and political status and value between children with Down syndrome (hereafter Ds) and those with the "Autism Spectrum Disorder" label so highly and richly supported through the "Autism Funding Unity". The degree of social injustice displayed by the government in this regard is appalling and brings outrage to those of us parents (& practitioners, but the greatest burden is on the highest stakeholders, the parents) struggling to adequately support our children with Ds. Based on the commonly accepted knowledge of "you put your money where your mouth is" and that where you spend your money directly and undeniably reflects your highest priorities and values.-- well, have a look at funding for families with children w/Ds and compare this to funding for families w/children with "high functioning autism" -- AND THEN, look at needs, functioning and the value of early intervention for both, and you will, I hope and believe, be as aghast and outraged at the current status quo as we, the parents of children with Ds. are.2. "The autism court case that started the Autism Mushroom". Early Intervention works for all children. So, why is it that the mushrooming population of children with "Autism" are the special and privileged recipients of endless truckloads of support money? "Autism" is such a lucrative "label" to have -- and it's so handy a wide "spectrum" -- so what is/has been happening is (beyond parents buying or aggressively seeking a diagnosis of "high-functioning autism") is many, many children with higher/greater needs are NOT getting the support, respite, funding, parent workshops, retreats, training, staffing etc... for their children who are much more needy (e.g. Ds) that their peers with "high-functioning autism". This MUST be changed! Obviously, there is so much money in the "Autism Funding Unit" etc... and many careers and jobs and people have specialized and work in this field because there's so much government money to be had there (among other higher motivations) that a much needed and more just & equitable way of "handing out money" to special needs families to support their children -- well, there will be a HUGE backlash -- no doubt, something that's grown so rich and powerful won't take kindly to "cuts" or reduction in money of any kind -- however, beyond unsustainable, the status quo is so unjust it MUST change.So, have your legal teams re-look at that court case that created the high status jump of "Autism Spectrum Disorder" -- find the latest and best evidence and best practices of early intervention for all disabled children and please, PLEASE -- LEVEL THE PLAYING FIELD (and the paying field!). 3. Access. it would be helpful to have some sort of a grassroots "clearing house" type source for information when we parents are working hard for our children and don't know the best way, how to get the access our children need and what others have done to achieve success. I'd love to know how to do better to support my daughter's access (e.g. in school) and I always want to know/find/hear "success stories" and find out "what worked". And I don't know how to get that access wisdom. e.g. what solutions have been presented to schools and work for the problem of access for my DHH daughter at school when her Educational Interpreter is on her breaks/lunch... I've met w/school and District and there are no access solutions -- though the duty to provide my daughter w/access doesn't disappear at break time/lunch time... etc... (FSI family support institute is there but rather hit & miss, random, if you can happen to find a parent with a similarly complex situation w/advice that can help... I've wasted too much time w/social "relationship building" of possible parent support people -- lots of chit chat BUT never found the expert advice I needed).3. At Home, system, like many bureaucracies, has come to be lacking in common sense. Some costs covered, other, necessary, not... books of rules can never do a good job, clerks, just following the words in their manuals ... there is a need for authority to make common sense decisions without greater headache, bureaucracies, trouble, paperwork, phone calls, meetings which further burden struggling parents... it's crazy.4. Therapy funding ... wildly inequitable in application. If you have Autism, no problem, you can hire for free, highly paid after school care take your child w/High Functioning Autism to Captain Kids Fun Centre for "sensory stimulation" or "behavioural work" while you shop -- while much more needy children's families could never even manage to get there at all (let alone the respite of the $30+/hr "behavioural support worker" to help out with the outing! 5. WORK -- I don't want my disabled daughter picking up trash in a work party along the freeway. Or sorting sticky recycling beverage containers, or mindlessly stuffing envelopes for hours! SO, "work" must be meaningful, valuable, social ... how can this be? Her working with people who know her, like her, value her, genuinely see her as someone who can make valuable contributions -- which she can --NOT just a "I've got my token disabled employee and collected my government incentives thank you very much"! Have some safeguard against this PLEASE! (It's about relationships I think)6. Education / access. I'm constantly amazed how schools have videos, presentations etc. that do not have captioning! How can this be? Or, its available but not turned on ... a staff awareness for access -- how does this come to be second nature? That when you put on the DVD or visual, you get one with captioning and turn it on to make it more accessible for the people/students who are DHH or would be better supported by text. 7. Society/stores' payment touch pads. This is a big one. you'd need to see what other provinces/countries do. Most bank machines were historically somewhat similar. Now, every store I go in to seems to have a different style, model, keypad... It’s very confusing, years ago, things like this seemed more standardized (perhaps by lack of options when the technology was new?) Anyway, whatever the historical reasons, These wildly different (and sometimes challenging) little payment systems are a big part of daily monetary transactions for most people functioning in the province... BUT, for our children & adults with disabilities, they are NOW extremely unpredictable, challenging & confusing! Have someone take a look at "what's out there" and what it's like trying to figure them out and use them! IT IS A BARRIER to access to society and ease of functioning! Find which are the top 3 most safe, easy to use and make recommendations, set some accessibility standards ... you've got "handicapped" washrooms, but dozens of difficult keypads when our disabled citizens try to buy something!8. George Pearson Centre -- REALLY! how could this even be considered! Institutionalizing our most vulnerable, weakest, most disabled citizens is NOT acceptable. Are there no safeguards to prevent creating more of the horror stories from the past decades of institutionalization and the lives they have devalued and abused and the minds they have destroyed? People are intended to live in relationship with other people who love and care for them -- that's why we have families -- that's "best practice". So, help needy/disabled people find loving families and then support those families in supporting our most vulnerable/needy citizens -- that's a good idea.9. Respite -- consider a different PHILOSOPHY of respite please! Yes, sometimes caregivers need a break from care providing for their child w/special needs, BUT if you work instead, from a more modern, better, more inclusive, "family centred" approach, then you could see and find better ways to support respite for families.AS a NEW and stellar example, look at Here's their respite philosophy (pasted from website) it’s beautiful and refreshing --- LOOK AT THIS! "A respite lodge for the entire familyRespite is what Abilitas is about. And family. Often when you hear talk about respite and disability, the term is used to mean ‘taking a break from’ a person with a disability. But what we’ve learned from talking with many families is that they want to spend time together, with the family as a whole. Time to rest and recharge, but also time to reconnect, to strengthen their bonds, and to create positive memories together.The Cold Water Ranch Lodge was built with the understanding of respite as a short period of rest for the entire family. Time for a child or adult with a disability and their loved ones to get away from it all for a few days. "How wonderful is this !!!! Government of BC, take note! -- grassroots, someone doing something fabulous to bless us!Respite like this will strengthen and refresh our families with additional challenges. We need support, yes, we need money, yes, but we want it to be FAMILY-CENTRED -- please "get" that -- we love our kids. Support us like this (there is, of course, a provision for a non-family caregiver to come .. and no charge.10. RESPITE FUNDING. At Home funding level of +/- $200. doesn't stretch far now that min. wage is $10+/hr ..WHAT was the min. wage when THAT funding amount was set!? 11. TREO -- this is insanity -- I am constantly making trips for my disabled child across that bridge ... so my Dr. & I fill out the form, of course we quality for the disability sticker.... NO! INSANITY!-- the disabled person must OWN the vehicle -- as if our most disabled citizens have the wherewithal to own and operate vehicles --- UNBELIEVABLE -- please fix this and get back to me!!! (email below)12. Barrier -- organizational fees -- some of us with special needs are not wage earners, and some are single parents -- the cumulative impact of the annual fees for the organizations that would be our support networks are such that we/I cannot access local organizations! e.g. $20-30/year from many like [information removed] FIT organization ... there are so many with my child's complex needs that I'd be paying around $200/year EVERY YEAR in membership fees to be a part of our local & provincial special needs organization -- so I'm not a "member in good standing" with [information removed]fit and don't get invitations for our family to local special needs Christmas parties, summer picnics, family camps at Zajac etc.... INCLUSION ... HA, we feel excluded FROM THE SPECIAL NEEDS COMMUNITY, let alone society at large -- fees and attitudes are barriers.13. FAMILY-CENTRED PHILOSOPHY -- by and large, early intervention is GREAT with this -- though not always, but then you hit the school system and beyond, and it breaks down. Our children w/Special Needs are part of the loyal family that takes care of them 24/7 .... think of this always and make all systems, programs, supports, events etc... welcome the immediate family --- ESPECIALLY SIBLINGS wherever possible -- this is a way of thinking "family-centred" and should be at the centre of all special need support and philosophy!14. BIG PICTURE / GOV. STAFFING / family decision-making. It is caring and wise individuals who can exercise common sense and make good decisions in the benefit of individuals and families and NOT bureaucratic government systems! Please keep this reality in mind as you re-think and reshape service models and systems. you CANNOT LEGISLATE COMPASSION AND COMMON SENSE. The answer often lies in individual people who are "solid gold". So, BC Provincial government ... reduce your bureaucracy, offices packed with secretaries and clerks and paper and expensive machines & cmpt. equipment. GO FIND hose service-minded, thoughtful, compassionate wise individuals your disabled citizenry needs, and give them the power and authority to serve the individuals and FAMLIES of special needs instead of creating yet more committees, staff pods, departments, red tape and bureaucracy! The paid employees must be hired with the meaning of "public servants" in their hearts and consciousness! (hint, special needs parents often "get it".)15. Keep things positive, support a family-centred approach ... This is hard work, raising our precious special needs darlings -- AVOID walking in as a government with a negative or "superior" or "power-wielding child protection services" attitude! And TEACH this to all staff... when parents run into this, it is beyond unsupportive and disrespectful! The whole attitude should be one of SUPPORT not JUDGEMENT -- teach this to all gov. employees! You are to come along side and provide families with the supports they uniquely request and need, NOT "well, we know better" and "we're powerful government employees" too ugly for words.16. Big Picture: We parents / citizens DON'T want a BIGGER and BIGGER government with increased bureaucracy! We don't want taxes raised. Change must/should come, but, NOT BIGGER, just different. Re-think how things are done, how money is managed (mis-managed!). In our comments across the province for change, reduced barriers, better accessibility etc... We don't want MORE departments, clerks, staffs, offices producing more paperwork, forms, endless committees and staff meetings. Bureaucracy tends to grow and grow itself. This must be avoided. In restructuring to better meet the great and real needs of our provinces' disabled citizens, please re-evaluate and CHANGE instead of just growing & creating a bigger government. 17. USE WHAT IS ALREADY KNOWN -- please keep in mind that the government doesn't need to create more committees to study more things" much of the time. Don't spend our tax dollars "re-inventing the wheel". The research and the studies have already been done -- largely -- on what is "best practice". So don't waste more time and money on that. 18. Expanding Bureaucracy. Please consider in "all of this" that governments must be responsible for creating "balanced budgets" in every regard. Reduce staff wherever possible whenever "throwing money at a problem". e.g. in seeking to please the disabled community, be very aware that government naturally tends to increase and not decrease itself -- this is not the best use of money that could improve the lives of typically poor disabled citizens -- Staffs are well paid, those they provide service for are living in poverty. Essentially service providers are living off the money that could improve the quality of lives for our disabled citizens. More paid staff and bigger government does not often "solve the problem".!!!! (this may apply widely!)?19. Government waste is irresponsible! Find ways to reduce waste -- INCLUDING moneys wasted to create the appearance of accessibility! e.g. 1. The general citizenry is largely ignorant of the tremendous wastefulness of government ... it's sometimes the clerks, office staff and gov. employees that see the degree of wastefulness, "flushed" money and rich expense accounts... but when working in gov. you accept and expect and don't speak up or fix it.... How can this be changed? e.g. 2. for accessibility, ASL interpreters were available for community sessions ... 2 very highly paid and unneeded individuals -- this is waste! The sessions were registered, so those running them could know ahead if ASL interpreters were needed -- and they weren't -- but 2 interpreters were there anyway. There must be some change in the thinking of gov. employees across the board -- to think as if it was their own money being spent ... some common sense responsibility of stewarding wisely public funds -- if this went as a wave across gov. from lowest to highest level gov. employees (WHAT is the number of gov. employees on the provincial payroll? ...) -- tax moneys would be MANAGED differently, and the money to support our disabled citizens as suggested by parents/self-advocates throughout this process -- well the money would be there to better support our disabled citizens WITHOUT the tremendous waste now (from masses of fattening sweets and gallons of coffee offered on public tab to paying unneeded staff, from clerks to ASL interpreters!)?20.? Watch out for labels ... e.g. "Autism Spectum" look at needs... dismantle "Autism Funding Unit" -- take care of our kids with Down syndrome just as well ... show them some value too!?I look forward to hearing back from you and receiving confirmation that my input has been received and will be read and considered in the drafting of the Disability White Paper! Thank you.As a person with a disability (PWD) living in BC, I have several suggestions to make, and they are primarily reponses to these three questions:? What can British Columbians do to welcome the contributions of people with?disabilities, and what barriers can we remove??? What would make it easier for people with disabilities to make contributions to the?community, and what needs to be in place??? What would B.C. be like as the most progressive place in Canada for people and families?living with disabilities??1. Technology supports: I have benefited from the EATI program, which provides technology and equipment to PWDs who face barriers to employment because of their disabilities. This program has been of great benefit to me, and continues to help me work toward my career goals as a writer/editor/researcher. I now have a laptop I'm able to use, ergonomic set-ups for different work positions, and a software that allows me to dictate to my computer. I was alarmed to hear that EATI is being shut down, and would appreciate it if this program could continue, as it is a simple and straightforward way to help PWDs pursue actual careers and remove barriers to doing so.2. Personal supports and funding: As a PWD with a primarily physical disability, I have trouble doing basic household tasks, and am unable to do my own laundry or carry my own groceries. It is very difficult for me to afford to hire someone to do those things for me, and I already ask so much from my friends/family. Supports -- or funding to pay for this kind of help -- would be of great benefit to many of us, especially those of us who are on income assistance.3. Volunteer networks: It would be helpful to have a roster of screened volunteers in each community to help PWDs with these sorts of things (as described in #2.)4. Employment programs: It would be wonderful to have specific programs in place to help PWDs to build their skills and knowledge, and also to have programs in place to help us find placements in the workforce that take our very specific special needs into account. Funding for technology and equipment in the workplace would help, as would consulting with the worker & employers to figure out what other needs are in the picture. In my case, for example, I require a flexible work schedule and various ergonomic supports so that I can work in various positions. I also could benefit from having an assistant so that I could do more physical work (I have worked as an outdoor researcher in the past, but am currently unable to carry my own equipment, for example.).5. Accessibility of public buildings, public transit, etc.: This could always use more improvement! More information about what to expect when going somewhere would be very helpful as well.6. Better Handi-dart service. This service is slow and quite taxing on the individuals using it. Prompter pick-up times and fewer stops along the way would make the Handi-dart service better.7. Taxi-saver program. This is an essential program for seniors and PWDs who are sometimes/always unable to take Handi-dart or public transit. Please keep it going.8. Affordable, clean, safe, accessible housing, including social housing and subsidized co-ops: As a PWD on provincial assistance, I am eligible for subsidized housing. So far, however, I continue to live in extreme poverty, due to the fact that I have been unable to find clean, safe, accessible housing that is subsidized and available. One building I looked at housed drug addicts and had a bed-bug issue, and I didn't feel safe moving in. We could use specifically designated housing for people who have physical disabilities and wish to live in subsidized housing, separately from people with other issues that cause us to feel unsafe. I should also explain that I am not in a wheelchair; so much of "accessible" housing is restricted to people in wheelchairs, and those of us who are on our feet but still disabled aren't able (or eligible) to live in these units. We need wheelchair-accessible units, and also regular units with elevators/ground-floor-entrances reserved for PWDs.9. Nutrition and food programs: The cost of food is very high in [information removed]. As a person on a limited income, it is difficult to eat well, and this, in turn, affects my/our health. Coupons for farmers markets and other local food initiatives would help us out considerably. Healthy, ready-made meals would also benefit many of us who are often/always unable to cook for ourselves.10. Medical benefits for PWDs on provincial assistance: My MSP program covers some of my medications, but a very tiny portion of my physiotherapy costs. I wish that MSP would cover physiotherapy, massage, osteopathy and rehabilitation/strengthnening programs, as these things can help people strengthen up, feel better, and, in the longterm, move out of the system and into the work-force! I am unable to afford the help I actually need, and MSP covers only about $250 total per year for these services. (A single physio appointment costs $80 or more, for example.)I've written this very quickly, so please forgive any small errors in grammar/etc. I wanted to send these ideas in before the deadline.To Whom it may concern c/o Minister McRae, in regards to the 'Join The White Paper Consultation For People With Disability' request on my statement this month, having no computer and not fully aware of access that may be available, I submit this response. 1st The inability of Work BC to assist in post secondary education is a problem, that needs to be addressed. The limited 4th year only assistance is not sufficient. 2nd The current rate of pay for PWD should be more in line with the income security supplement that seniors receive. 3rd Any volunteer supplement that available should reflect minimum wage. In closing I would like to thank the minister for this opportunity.WHITE PAPERI am a person with Multiple Sclerosis where vision, hearing, mobililty of arms and legs have been impacted. Stress and fatigue & heat factor in too. A chronic progressive disease. Jobs for many of us as this disease progresses are absolutely out of the question.With that said how do you wish us to survive on such a small stipend month after month with absolutely no cost of living increase either? What would you like us to do with our time when there are not enough funds to pay for necessities let alone watch tv or use the internet to occupy our time?FoodOne is supposed to eat properly according to the Canada Food Guide with plenty of fresh fruit and vegetables. When you consider the other expenses within the allotted funds how does one go about eating properly?I have asked social assistance to show me an outline of a typical budget when on the permanent disability system. I have never been responded to let alone show a copy of the expectations.Shelter & HouseworkIf you are blessed enough to live in public housing they demand your houses be clean and relatively orderly to safeguard their investment and as a safety issue as well for the health and welfare of other tenants.Yet with no housework what are we to do when we are no longer able to do it? It is ok if we are clean but need to live in filthy hovels due to no housework being done. Plus run the risk of being evicted!The regular monthly bills hydro, telephone, cell phone, house insurance (and cable if one can find it and a lot do not. I am quickly coming to that!) need to be paid from what we are given.We are not given a cost of living increase on a yearly basis and yet they all continue to rise, including transportation which I will get to.ClothingClothing, footwear, outerwear purchases need to be factored in the budget but with what money? Shoes alone are very expensive and what about special needs? Clothing to fit over othotics or in them? Perfumes, chemicals, space, and the need to try things on at home due to safety, ability do not present for second hand shopping. At times they are not handicap accessible. Plus there is not enough money to fritter it away on the possibility that it may fit.TransportationYearly bus pass great, thank you: yet one still needs to find the money to pay for it.One needs to come up with tickets for the Handy Dart.One needs to find money for the Taxi Saver Program. These are very good programs but where does the money come from?HealthcareMedicines that work being prescribed not covered under the system. Money where from? Some meds are natural as opposed to the ones you will pay for that are known to cause more disease or difficulties. This does not make any sense at all.Toenails $60 Money where from?Finger nails for those of us whose hands do not work anymore? Money where from?It was asked at the beginning what would you have us do: those who just plain cannot work. There is not enough money for basics let alone any form of recreation/entertainment/time fill. So would you have us not exercise our brains as well? Then in life there are special days, birthdays and Christmas. There are other expenses in life too that seem to be gone from reach thereby handicappers do not participate. Can you put yourself in that position for life? These are our reality and we are grateful for the help we have but also struggle mightily with it not being enoughNo wonder folks who struggle so financially suffer so much depression!Could you take this amount and live on it day in day out, month after month, year after year? Could you show me a budget please?Is this life or basic survival mode?Should we be penalized due to having diseases we can do nothing about and did not ask for and are powerless to rectify the circumstances?Considering people who are on permanent disability and cannot work, what will be done to allow them to meet the increasing cost of living as outlined above and live a modest life without so much constant stress? There may be more but I am tired and spent with these constant stressors. Thank you for giving us this opportunity to vocalize our needs.To whom it may concern c/o Minister Mcrae, in regards to the 'Join The White Paper Consultation For People With Disability' request on my statement this month, having no computor and not fully aware of access that may be available, I submit this response. 1st The inability of Work BC to assist in post secondary education requests is a problem, that needs to be addressed. The limited 4th yr only assistance is not sufficient. 2nd The current rate of pay for PWD should more in line with the income security supplement that seniors recieve. 3rd Any volunteer Supplement that was available should reflect minimum wage. In closing I would like to thank the minister for this opportunity.Thank you for the opportunity to contribute to discussion focused on increasing the participation of people with disabilities in British Columbia. Our focus is on Work and Contribution.We are Vocational Rehabilitation Counsellors working with people with brain injuries and a wide range of physical disabilities, and we have many years of experience helping clients negotiate employment-related barriers related to their disabilities. We will focus on two of the questions posed in the discussion paper toolkit:Why do you think it’s important that we reduce barriers and increase accessibility for people living with disabilities in BC?; andWhat would make it easier for people with disabilities to work or contribute to the community? What needs to be in place?Why do you think it’s important that we reduce barriers and increase accessibility for people living with disabilities in BC?Work provides many benefits for individuals and their families:The worker role is a central life role. Sustainable employment brings benefits to both the individual and the broader society (Morris, 2011).Productivity and employment are consistently associated with life satisfaction, quality of life, and adjustment to disability. Employment has a “spread effect,” enhancing many areas of adjustment (Ottomanelli & Lind, 2009). Access to sufficient income is essential for quality of life and full participation in society (Human Resources and Skills Development Canada, 2009). Paid work provides not only money, but also a sense of identity and purpose, social contacts and opportunities for personal growth.Unemployment, underemployment, and insecure employment hurt people with disabilitiesInsecure employment, or employment that is a poor fit given a person’s disability, puts workers at risk for secondary disabilities (Mikkonen & Raphael, 2010).Lack of employment is associated with physical and mental health problems. Unemployed people have a reduced life expectancy and suffer significantly more health problems than people who have a job (Federal, Provincial, and Territorial Advisory Committee on Population Health, 1999).Work provides many benefits for societyReducing utilization of hospital and residential care service because employment is related to overall better health (Rueda, Chambers, Wilson, Mustard, Rourke, Bayoumi, Raboud, & Lavis, 2012; Stronks, van de Mheen, van den Bos, & Mackenbach, 1997). Money spent to support employment of people with disabilities is offset by savings in health dollars. Employment is tied to income, and income is the most important social determinant of health (Mikkonen & Raphael, 2010). Unemployment frequently leads to material and social deprivation, psychological stress, and the adoption of health-threatening coping behaviours, all of which costs the taxpayer.What would make it easier for people with disabilities to work or contribute to the community? What needs to be in place?We have a number of recommendations for improving employment services for people with disabilities in BC. WorkBC is the primary service for British Columbian job-seekers. Because job placement is not one of the services offered at GF Strong, we regularly refer our work-ready clients to WorkBC for assistance with job placement. Our clients are from all over BC, and therefore we refer to WorkBC centres throughout BC.In order to facilitate understanding of our concerns we provide some brief background information. Prior to the creation of WorkBC, there were specialized employment programs for people with disabilities (EPPDs). The WorkBC model puts services for all employment groups (youth, immigrants, people with disabilities, etc.) in employment centres located in neighbourhoods. Some WorkBC centres have “disability case managers”, but in our experience, some have questionable preparation for such a role. Further, we are told that all of the WorkBC case managers are expected to be “generalists” with sufficient knowledge to help job-seekers from all categories.Rather than receiving block funding, service providers contracted to operate WorkBC centres are paid as each client reaches specific milestones. This influences the kinds of services offered to clients.The current WorkBC model has been detrimental for job-seekers with disabilities for a number of reasons:Poorly-trained WorkBC case managers who misunderstand the vocational implications of disabilities and chronic health conditions make recommendations that are unhelpful (and potentially harmful) for clients with disabilities. Vocational Rehabilitation Counselling is a para-medical profession that specializes in providing vocational services to people with disabilities. Vocational Rehabilitation Counsellors have master’s degrees, and specific knowledge of the medical basis, and the psychosocial consequences of, disabilities. Vocational Rehabilitation Counsellors hold credentials and belong to the College of Vocational Rehabilitation Professionals. We know of no disability case managers at WorkBC centres in BC who have this level of professional preparation. We find it unacceptable that we have no other option but to send our job-seeking clients to insufficiently-prepared case managers. This is analogous to sending a client with complex disabilities to a fitness trainer at a local gym, rather than sending them to a properly-trained and credentialed physiotherapist who understands the medical basis of the client’s condition. Often clients have difficulty accessing or moving forward with WorkBC. There are a number of reasons for this:Specialized services are not well-advertised. We have had many clients who have gone to a WorkBC Centre prior to meeting with us, and have not realized that there were services that went beyond job boards, computer access, and workshopsClients often have to attend multiple sessions (e.g., for general orientations and completing paperwork) before service actually begins. This can be challenging given difficulties with things like transportation. It communicates a lack of understanding of the challenges faced by people with disabilities, and a lack of respect for a client’s time. Clients sometimes become discouraged and decide not to continue with WorkBC.Clients are sometimes delayed because of eligibility requirements. For example, many of our clients are on medical EI, and are deemed ineligible for services from WorkBC because they are not work-ready. However, preparation for returning to work should begin even before a client is medically ready. Another example involves clients who need medically-necessary equipment to continue in a job they hold, or a business they run. WorkBC refuses to provide assistance until they return home from hospital. But this results in protracted and unnecessary delays post-discharge.We have noticed a very high level of turnover amongst case managers at WorkBC. This results in lack of continuity of service for clients, loss of momentum, and confusion about whom they should be working with. The primary reason that we refer to WorkBC is for assistance with job placement. However, clients are often kept in limbo for months, attending workshops on things like job search and resume writing. We wonder whether the funding model encourages WorkBC centres to keep clients engaged in this way, since service providers are paid when clients are engaged in such activities. Despite the fact that we have referred dozens and dozens of clients to WorkBC in the last two years, we are hard-pressed to think of a single client who obtained employment as a result. Teaching job-search skills to clients with complex disabilities (and often multiple barriers) is inadequate. The problems these clients face go well beyond a lack of job search skills. They often need the services of a job developer, a professional who can use the assessment information provided by a properly-trained Vocational Rehabilitation Counsellor to find opportunities for clients that are consistent with clients’ abilities and medical limitations. ?Sometimes this means developing relationships with potential employers, and creating opportunities that are outside of the competitive job market. At times a client may need a job coach to help them learn the job and ensure that the client is integrating well in the workplace. Although customized employment services are advertised, we have never had a client who has been offered this service, despite their appropriateness for this level of service.?? I do not know much about what going on but i feel that i should be heard.I have been on Social Assistance at the age of nineteen due to arthritis and severe depression.I am now 61 yrs old and things have not changed.I have tried to get disability even with drs note stating i'm unable to work.Why is it that people who have these disabilities have such a difficult time in receiving a check to aid them with living expense and to get help they need to make life more bearable as the age.All the Forms we need to fill for disability is to complicated for us older folks.Why not make it more simple?FOCUS: compassion, de-stress, resources and Help.----------------------------------------------------------------------get rid of deducting cheques for income earned and some other stuff (trusts)get incentives out to employers to hire and accommodate PWD. (tax breaks)make payments on same day each month, I along with others struggle deeply on that 5th week which happens way too often.have positive messages (ads ) on Tv reinforcing people with disabilities are not criminals and have value and gifts and most importantly a great attitude towards working.get the police much needed training if they are to remain the front line, give respect to disabled, not shoot and handcuff, don't treat horribly.get a Mentorship program where people pitch in their efforts either volunteer or stipend and mentor those struggling to figure out how to live within or eventually strive to live without the system. (like big brothers)make a welcome package of papers and lists of what is available and how to access it with a central resource centre as a base for it to phone/visit ?and help you.centralized resource centre who is kind welcoming , compassionate and friendly towards these mental health suffers would be extremely beneficial.hit the streets giving homeless people resources to be reached out to.stigma has to disappear- I notice this very strong aspect, to do, need ads, education, sending out to employers a list of benefits and possibly tax breaks to those who hire, allow flexibility and short pt work for those who wish to work.don’t monitor people ?and their earnings to stress them out and make them more paranoid.get rid of security guard at ministry offices, is horrible esp for such innocent people who walk in. compassion seminars every 6 months for these highly paid workers at the ministry would help and go a long ways. They treat you like an imposter and criminal there.Reopen/revamp Riverview for the desperate handful who just can’t make it and need a place to live, make it a place they want to go to too.shorten the list of people on disability who can collect, I know of plenty esp. with slight mobility issues but can think and show up to a desk job, who abuse and are on the system, (I’ve witnessed immigrants who collect and dance when they come out of the office from receiving their cheque)... when you shorten list to those deserving of the benefits, then give them MORE and allow them to WORK and SAVE Without being penalized or paranoid or do math. it must cost a lot to monitor people. give a raise of 500 /month to those deserving, say with severe mental handicaps for whom work is nearly impossible. Alberta has shorter list but treats them better and special.follow alberta and austrlalia, they are always ahead.have 'work centre' formed just for mental consumers so they may get help with resumes with gaps and seek out work (jobs).make sure people can access programs like housing(MPA & BC housing) and support easily, it was luck and chance I got these supports, also accessing funds avail to help in re-training, trades are good skills to get.I for instance accessed (special situ) about 50,000 to train as cardiac tech from CFA. there are many others sources out there too.make like cancer where people can donate to this education fund.present as many ideas to the govt as possible like a smorgasbord so they may fill their plate with ones they can implement. don’t give 3 top ones, they will likely then just pick one.have special postings on crags list for those who can only work a little and are disabled, have this known to employers they can list jobs here, specifically tailored to the disabled.give workshops to disabled in budgeting and managing money and getting RDSP in place for them. let them grow assets. Take away age 59 to collect RDSP, make 50.the INCENTIVE to work and get money for oneself and be independent does not exist, there exists dis-incentive to work, WAY too difficult to give back money earned and why work then?….people already have low self esteem.make teams kinder towards mental and not treat like a number or with disrespect, I gained a lot by leaving mental health teams and going to private GP. they are overwhelmed and overloaded and stressed out.HOUSING: big problem accessing and gregor should be pushed more and helped more by province to provide housing to those in great need. Just not immigrants who need a hand up or hand down.FOOD: food bank hardly give you any food, just supplement, people starve esp the last week or two of income support, is BIG stress and very hard to eat in vancouver. Have more access and food avail to mental people vs, low income people. I live on 5,000 / year. can you do that or can gregor or the ministry of social development? make 10,000 but paying bank 5,000 in interest cause I went to school and got into debt over 10 years while sick and impossible to work.don’t deduct sick EI or WCB insurance if deserving of. real crisis time. Is not double dipping. very few take advantage of the system, you will always have the small few that do, but don’t take out on the many who need help and compassion and ease.Make more incentives to work and be recognized as contributors to society, give incentives to mobility issues people, wheelchairs, they CAN work nowadays with Computers and such, much more difficult for mental person to show up for work.get people, homeless off the streets, very bad image for disabled, badly portrayed.?NEW Law we need: ?Don’t allow media to disclose personal, private medical information anymore like mental illness, …..that will help make stigma go away too.When travelling to Vancouver I am only able to get skytrain passes for 3 days and I am required to get a pass each time I go there.Toronto & Vancouver are the only places that do this.Why am I not able to get a pass for all the time.People in Vancouver don't have to do this.I don't understand why my CNIB card is not sufficient to use any where.I appreciate your looking into this for me.Thanks [name removed] ps I am legally blindWhite paper No 2 Issue on personal care experiences.Why I struggle on my own?The quality of care that is willing to be provided to me is less than stellar.I am told I can get so many hours to my face and then when the nurse goes back to her office all is rearranged and the time allotted to me is markedly different in that is less. Easier to do on the phone than in person. Now I need to do things in their time slot for shower, dress and feed.Quality care, change of workers. I appreciate the volume and the workers available but I should not have to eat my breakfast marathon style. While a worker stands there with nothing to do, hands on hips other than to wait for me to gulp or swallow my breakfast fast so she can wash the dishes and take her leave. This is not conducive to a healthy eating situation. In my case and I am sure others it could lead to choking on quick intake of food.From there if the workers show up and there are a few dishes on the counter from the night before, it is not their job to wash them as they did not make them. Well if the client cannot do them who’s job is it?I know it is not a maid service and there are limits but there is no consistency/sameness in your worker either. How would you feel being naked in front of a different worker day in and day out? Could you do it especially for older women? Due to our handicapped situation we are to throw all modesty out the window and deal with different workers all the time. Isn’t it bad enough we have all these difficulties and then need to deal with this ‘stuff’ too.I personally struggle with this so go and attempt to deal with things the best I can on my own for as long as I possibly can. It limits my quality of life but it also removes the disgust I feel in my stomach at the end of the frustrating experience.It irks me they can stand around and do nothing when so much could be done.Rules, regulations. Turns out many of the workers are in it for the money not for the love of the job and it shows in the care provided. Also, our the clients standards apparently need to be lowered due to workers work ethics whether that is their bosses orders, where they come from or their personal standard I do not know. Sometimes the problem is better than the cure.Some workers I have had did not even know how to cook an egg or how to make a sandwich. I believe the idea was a client should buy a ready made dinner or such. As explained in the previous submission there is not enough money for such luxuries as pre cooked, made dinners and lunches.It is my opinion the area I am served with is from [name removed] which is a behemoth/giant and out of proportion trying to cover too much and too many with too much juggling. It is also my opinion or belief that they [name removed] do not wish us to have the same worker all the time. Just my opinion and it could be wrong but it is up to you to do the footwork, aye?As far as standards go how is that we are told if one has Alzhiemer’s you get homemaking help and yet us who really struggle there is nothing? In my first submission I spoke of no homecare help.Now onto an issue that perturbs me with Social Services or whatever you call it now.I have been a recipient for a long time. Lately I tried to get hold of the social service office and hit a brick wall. I needed to literally go to my MP in my riding who then found out that the telephone tree had been changed and us clients needed a personal ID along with a password. So were any of us forewarned, told or advised of this? No! Subsequently I had one sent to me but only after I sought an elected representative for help. This ought not to have happened.On to the subject of Trusts. legitimate trusts created for clients in the system. Work needs to be put in where the use of the trust is clear of confusion or differing opinions from worker to worker especially under the furthering of independent living section. In closing here is hoping my thoughts are a help in the discussion on helping those with disabilities. These thoughts both on a collective and a personal level are put down knowing full well that the services we get are with the best of intentions and the whole gamut of finances etc etc.I just wanted to add another issue that I forgot last week.? My name is [name removed], single mum and 50 years old.? I'm on disability 2.? I'm the lady who lives in [location removed] and is recovering from my battle with Hep C.? I'm still very sick with other issues the Hep C caused plus all the stress I have been going through.? What I wanted to add is that to be able to access the services I need, I have to pay out of my own pocket, so I just have to put the appointment off until another time when hopefully I'm able to pay to the bill.? The first one is about my dentist and having to pay the difference regarding teeth cleaning, fillings, etc.? I owe my dentist $60.00 and they keep sending me these bills which I'm unable to pay.? My first priority is food and gas and other expenses for my daughter in highschool.? I was supposed to get some fillings put in a few weeks ago and had to cancel because I can't afford the difference.? I don't understand why we have to pay a portion for the work they do and maybe only have to go in for a few visits only wherein our allowance for our dental work isn't all used up.?? I don't understand why we don't get full coverage?? I don't have to pay any difference for my daughter which is covered by the Healthy Kids Program which is great.? I need work done on my teeth but we are barely scraping by so my hands are tied.? Also,? I'm very due for my eye appts and had to cancel because [name removed] eye care requires us to pay $30.00 for our eye exams and I had to cancel that appt a week ago because I don't have it.? Even $30.00 is a large chunk for me to pay.? I need glasses to drive and read, so what do I do?? The lack of funds stresses me out and I'm stuck.? In order for me to heal, I have to have a stress free live or cut down on all my stresses as much as I can.? I usually use up my 10 visits by March because I see Dr. [name removed], ND and Dr. [name removed], ND for services that [name removed] doesn't provide.? I can only speak for myself but I believe a lot of us have the same dilemma which makes life more difficult for us.? Anyway, I seriously hope we can get more help in these areas so we are living more comfortably and not have to worry so much.? If I could physically work right now, I would be doing that in a heartbeat.? Before I caught this Hep C, I was working full-time downtown Vancouver as a legal secretary and supporting myself.? Right now, my adrenal exhaustion, severely painful neuropathy and fibromyalgia is what I have to deal with and I believe I can heal all of this but in time and I was expecting to go back to work part-time after completing my Hep C treatment because we have been living in poverty for a few years.? Thanks for your attention to this matter.? I pray that something changes for us because a lot of us don't have any family to turn to regarding our financial issues.?Enclosed/attached is my feedback on the questions outlined in your DWP Conversation Toolkit. Below is a brief overview of my personal experience.I am not representing a group; I am an adult person with a disability who lives alone. I was diagnosed with [information removed] in 2004 (at age 45) after 5 months of frightening and painful symptoms that were not at all helped with the first line of medications doctors tried, but instead kept getting worse and more frequent. My elderly mother had to care for me as if I were once again an infant. In January 2005 aggressive drug therapy was finally given – methotrexate (a chemotherapy drug) and prednisone. My symptoms began settling down around March but I had no idea how limited my abilities would become over the next decade. The smallest amount of physical excursion or stress on joints landed me in bed for days at a time. I slowly realized my body no longer functioned properly; the pace and parameters of my life had drastically shrunk. I could no longer participate in anything I had been used to. Most of the healthy busy people in my life left me behind and moved on. I was given PWD status (Person With Disability) in 2005 and in the same year I was fortunate enough to get into subsidized affordable housing. Isolation has been my lifestyle for the most part, for the past 9 years. Despite the valiant efforts and expertise of the excellent but overworked doctors in my life, during this time I’ve lived what I call half-a-life. If it wasn’t for my 85 year old mother and my life-long best friend who lives in Victoria and connects with me by phone every few days, I’m not sure I wouldn’t have committed suicide due to depression and loneliness.I don’t blame anyone; friendships change when common ground is lost, and I used to live a busy, work-oriented, physically active lifestyle. Especially in my age group, each person has to pursue their own dreams, and most people have barely enough energy and time to fit in their own needs and their family’s needs. Most people just don’t know how to support or adjust to a friend with a disability on a low income, and it’s easy for them to simply drift away. I honestly can’t say I wouldn’t have done the same thing if a friend of mine had been the one to acquire a disability and I was the healthy active one going after my late-in-life dreams. For adults with disabilities I see the primary flaw (or barrier) as being access to practical, useful, broad-range helpful information and networking regarding the wide variety of resources and supports that are out there. Currently these resources are scattered all over the place, throughout zillions of different departments, some governmental and some non-profit and some corporate – all are extremely difficult to find out about and often difficult to physically get to. Each city, town or village should have a CENTRAL HUB where ALL resources and information regarding living with a disability is funneled through and made easily accessible to everyone. A nice big centre should be set up in each community to include a wide range of services, as well as friendly social areas where people can have a cup of tea or coffee, connect and develop new friendships. Someone like me could phone to set up a meeting with an information agent who could assess my needs and then give me a print out of appropriate options, and also be able to set me up with a counsellor who could help me deal with the emotional trauma of the sudden change in my life, and what to expect going forward, and how to cope in a healthy way.A centre like this in any community would be highly utilized and would streamline disability services which would result in less paperwork and more effective assistance so that people with disabilities could remain in a capacity of being able to contribute their skills and expertise back into the system to further its effectiveness over time, having less of a financial drain on the social system overall.A centre like this would create jobs, improve community morale, and save monies over time.A centre like this would be a leading edge example of forward-thinking in the face of our society’s upcoming challenges in the decades ahead.Yes, social program dollars cannot keep getting cut from our governments’ budgets. The dollars simply need to be spent more wisely. Problems and challenges surrounding populations dealing with disabilities are bound to get worse not better, with the aging population expanding as fast as it is, unless big changes are made very soon. Social program cuts only end up costing everyone far more over time, and always results in an increase in crime on top of it, adding still more to our society’s economic deficits. I’m afraid I’ve run out of time… thank you for listening to and considering my input.RE: DISABILITY WHITE PAPER PROJECTFirst of all, I feel angry that I was not notified of this project sooner. I am living with a physical disability, have had PWD status thru BC govt since 2005, and still I received NO NOTIFICATION from ANYONE about The Disability White Paper project until a friend of mine told me about it after she heard a CBC radio program about it!!! THAT should embarrass you – talk about dropping the ball folks. Do you really want feedback from the people who are living with disabilities? Find a way to COMMUNICATE with them!Suggestion: It wouldn’t be that hard to send a mailout thru the PWD status list from the BC govt’s Ministry of Social Services.Secondly, I am currently recovering from a 5-month severe relapse of [information removed] symptoms. Both my hands and both my feet (as well as almost every other joint in my body) were severely inflamed and in constant pain so I could not feed myself, dress myself, brush my own teeth, etc, nor could I walk, for several weeks during this time. I live alone, have no kids, no boyfriend, no family, etc. Homecare nurses came in to help me with basics but their job did not include typing or writing for me or even making phonecalls for me. After many blood tests, medication adjustments, and physical supports, I am gradually regaining moderate use of my joints including my hands and feet, but I’ve a ways to go yet.Now you tell me… how would I be able to participate in contributing my experience to the Disability White Paper project if I hadn’t begun recovering barely in time to submit even this small bit of information now???!!!Suggestion: (after making sure you notify People With Disabilities) Allow for at least 6 (six) months of public input prior to enstating a cut-off date for submissions.Thirdly, I am deeply grateful that you have put together a team who is going after these issues. I need you to know that I am not angry with you, just angry at the situation as a whole because it should never have gotten this bad for people in situations like mine – and much worse. Please know that I am extremely grateful for many services and supports I have finally received, but the process for accessing these services and supports is wrought full of gaps and barriers and holes.. most of them I did not know anything about until I was in a state of full-blown crisis. And there are still huge gaps and barriers in the way of my regaining any quality of life. Proactive and preventive measures would cost govts and tax payers FAR LESS, in all ways – monetarily, economically, mentally, emotionally, spiritually, socially, culturally, generationally, etc etc. than waiting for someone to be in such a dire situation where crisis intervention is necessary response.I want to be part of the solution, rather than being stuck as part of the problem.So, THANK YOU FROM THE BOTTOM OF MY HEART for this opportunity to be heard.Disability White Paper Discussion Questions:? Why do you think it’s important that we reduce barriers and increase accessibility for people living with disabilities in B.C.? Because people living with disabilities are still PEOPLE – each one of us has something of value to contribute. The human family as a whole – united – is stronger than divided or segregated. History has most certainly taught us this over and over. It’s extremely important to every human being to feel useful and able to contribute back into society in a truly constructive way. People with disabilities have all kinds of skills and insights – there is a vastly broad range and wealth of largely untapped talents and unique experiential perspectives in this population. It’s also important for every person to feel appreciated for their contributions. These are basic human needs. These aspects help prevent anxiety, depression and suicide, help strengthen self-worth and a sense of purpose, help develop and re-develop social and communication skills, to name a few.Society as a whole can only be strengthened and enriched as we find ways to integrate the value of all people into a thriving and diverse Canadian culture.? What can British Columbians do to welcome the contributions of people with disabilities, and what barriers can we remove?LISTEN to them. Ask them questions. Every situation is different. ASSESS each situation thoroughly! Give them opportunities to make contributions, even small ones. Create THINK TANKS in each community. ADVERTISE these Think Tanks! Visit them if they live alone; listen to their stories. Help them investigate local resources. Consult with their Occupational Therapist (and if they don’t have one help them get one). Help carry their groceries. Bring them flowers. Do their dishes or wash their floor. Cook someone a meal and drop it off. Drive them around for a day. Little things go a long way, and mean a lot.One of the biggest barriers I’ve experienced is access to information about resources for supports. There is no handbook that provides a comprehensive list of where and how to get different kinds of help and support, especially as preventive proactive measures. There is no designated one-stop resource system for people with disabilities. This seems like a no-brainer. Have a centralized system so a person can call a number and be directed to the appropriate resource directly from there. Consulting and working with BC Health Authority Occupational Therapists would provide realistic and practical insights about how this kind of system could work effectively. These are some of the most valuable people in the healthcare system at this time. They are often bound only by the red-tape paper adventure that the govt processes limits them to. If the social services department of the provincial and federal govts got together with these healthcare case workers and actually brainstormed some new methods, I believe they could come up with a remarkably successful system!I cant emphasize it enough: PREVENTION and PROACTION is the key to transforming the system into something that costs less and is more effective and productive for all levels and aspects involved – the individual, the taxpayer base, the govts, the healthcare providers, the healthcare system, reducing crime rates and costs, etc.? What personal supports, aids or innovative devices would make it easier for people with disabilities to make contributions to the community, and what needs to be in place? 1. The big one is HOUSING. Healthy affordable housing for people with physical disabilities. My personal example is finding housing for one, that falls into my very low income bracket, in a non-smoking building that has either level-entry or an elevator, where the suites have a bathtub (for the purposes of hydratherapy).I see a lot of movement in the affordable housing area already, but it is far too slow. Once again, the response is reactive (vs. proactive/preventive) and the situation has already been at crisis level for too long. Measures have to be caught up quickly or the crisis is going to graduate into ‘disaster’ across all aspects of our society. A SIMPLE and IMPORTANT idea would be to offer rental subsidies to either tenants or home owners to allow people to rent legal suites in houses. The infrastructure is already 80% in place. All that is necessary is a comprehensive guideline and approval process to be created and implemented. This would provide jobs (for inspectors, etc) and housing for millions of people.Drawing on solution-based ideas from other countries, like Denmark for example, would be wise and useful, if not crucial, to finding feasible solutions.Looking at environment-based resources such as “earth houses” that utilize low-energy-cost designs is another important consideration to incorporate. Consider using building materials like mud and recycled tires to cut costs. Building housing complexes with community greenhouses attached to help people feed themselves during winter months, and utilize recycled heat from the greenhouse to off-set winter heating costs.2. The next thing I think of is housekeeping support. I was extremely grateful to get into subsidized housing after my employability dropped so suddenly and drastically. But more reality sunk in when I realized I couldn’t even do my own dishes or wash my own floors. 70% of the time I could barely make my own meals and the other 30% I had to improvise. Housekeeping is the one area that I have struggled with most often.. DAILY – even hourly – for the past 9 years! Simple assistance with regular light housekeeping and meal preparation would alleviate an immense challenge which has continually stressed my joints into repeated flares (pain & inflammation) which in turn furthers permanent joint damage which in turn reduces my chances of enough recovery for me to be ABLE to return to work or to contribute my skills back into society in other ways.To have a skilled worker come in ONCE A WEEK to catch up the dishes, do the floors and bathroom, and prepare some simple meals for the coming week would make it possible for THOUSANDS of people to remain living happily in their own homes and familiar communities.Or hey – provide dishwashers for people who have disabilities that affect their hands or arms! Even a countertop dishwasher would have prevented serious joint damage to my hands the past 9 years.There could be a training program offered for family and friends and volunteers who could learn more effective ways of contributing basic skills to help alleviate the struggles of those living with disabilities.3. Another extremely helpful and simple support would be transportation assistance, in the form of either a volunteer driver service (for example, I have an insured car but could not drive it for about 4 months) or another option besides handi-dart that could accommodate shorter trips and shorter notice at less or no cost to those with low incomes.4. Another example would be to provide free or affordable, easy-access to voice activated software for people who cannot easily use their hands to utilize computer keyboard technology. My personal situation: due to being unable to work for so long – very low income – I cannot afford to upgrade my computer and therefore voice activated software would not run properly on my system.Another helpful aspect would be an ergonomic comfortable chair and desk. Really simple and usually obvious if the situation is simply assessed.? What would B.C. be like as the most progressive place in Canada for people and families living with disabilities? BC could be an example similar to Okinawa (where people live longer healthier lives than anywhere else on the planet per capita). The secret is community living – cross generational, cross-cultural, village-raises-a-child attitude, more cooperative housing projects, wellness centres, community greenhouses and gardens, etc, where citizens do not struggle because they are alone or shut-in or forgotten, where the goal isn’t “making more money” but is “sharing life experiences together”.I’m not talking about places like the senior’s care homes we see all over the place; some of us like having our own place, or we have lived in our own home so many years, all we need is some community CONNECTION and INTERACTION and COMPASSION and practical supports. One thing our world has plenty of is people!!! They just need to remember how to be kind and loving. Everyone benefits from a certain level of prosperity, for example: Studies show that the level of happiness drastically increases for people going from a poverty level of $5,000 or $10,000 a year up to $50,000 a year; but the level of happiness is about the same for people whose income increases from $50,000 a year to $50 million.Hence the Bill and Melinda Gates initiative of giving away a minimum of 50% of their income every year to ts need to foster a better system of spreading the wealth around if they want BC or Canada to be an example of a truly successful society.NOTE:IF I had been informed of this DWP project sooner, I would have responded to more of your questions, ie. work and contribution. I sure hope enough other PWD’s have had a chance to contribute their input. Thank you for your time and consideration of mine.As a mother of a 23 year old son who got hit with serious mental health problems very quickly 4 years ago, I have to tell you that the resources in [location removed] are very sadly lacking.PEZEven getting into the Psychiatric Emergency is very, very difficult. I am not exaggerating even a tiny bit. People always think parents are making a mountain out of a molehill and we definitely are not. I was shocked by the process of trying to get help through this facility, both of the times we had to use it. Picture trying to break down a huge castle gate, trying to get in repeatedly with a battering ram. People, family and their loved ones in trouble with mental health problems, cannot simply go the hospital and request assistance, even when they are in great need of help. No way. I had to call the Crisis Emergency Line and the Police several times before anyone would help us at the Hospital. It was humiliating and incredibly traumatic to have to do this, and have police come to our home. And this was and is completely unnecessary in such circumstances, not to mention a waste of valuable and costly resources. Even calling the Crisis Line here is a humiliating experience, because you have to call the number and the person who answers has to relay what you say to the Mental Health Emergency worker. You are not allowed to speak directly to them. I don't know if you can imagine what this indirect method of relaying critical information feels like, but believe me, it is extremely difficult and frustrating.Then, when you finally get to the facility and are inside, what is waiting for you? Not just hours of waiting as we do on the physical side of Emergency Services, but possibly days, with no bed to sleep in, just a chair. It is a ghastly experience, feels like incarceration, and anyone who tells you otherwise, has either never experienced it, or is unable to comprehend it. I never would have believed it myself, if I had not experienced this first hand with my son.What is desperately needed here is a Crisis Centre, modeled on the new one opened in 2013 in Winnipeg, or one similar. IHA is starting to look into this possibility, but without proper funding, it is years away, in reality. Many more years of horrible suffering for people who find themselves trying to get help? This facility was needed yesterday. I had the opportunity to visit the Winnipeg facility, and believe me, it is wonderful and exactly what is required here.Psychosocial Treatments:These types of treatment are considered by the best doctors to be as important, if not more, as the pharmacological ones. Yet here in [information removed], what is provided is woefully inadequate. There are far too few case managers in the system with huge caseloads, so all they can do is deal with the most acute cases all the time and try to refer the patients elsewhere. But where? If a patient does not respond to the group-style of program available at the Out-Patient facility of [location removed] Mental Health, there is nothing available. Patients can languish for years if they do not have the support of well-trained counsellors in psychosocial rehabilitation - \PSR. Most of these patients are young and lose the best years of their lives. They become psychologically crippled by trauma, stuck, frozen, from their experiences. They are full of fear, stigmatization, suffer extreme lack of self-confidence and low self-worth, and also anxiety and depression. They need and should be getting excellent PSR from the time they are first diagnosed, so they can recover to their own level of independence, back at school, or at employment in which they would like to engage. Instead they are socially isolated, most looked after by their parents, doing next to nothing, often self-medicating with alcohol.What is desperately needed in [location removed], are coaches trained and certified in PSR, enough of them so every young person with a mental health problem has their one-to-one assistance, to help them deal with their psychological paralysis, and get the support to get back on their feet, out of their parents' basements, and back into life. There should be no time limits set on this type of care either. Every person is individual in their recovery process. This would go a very long way to prevent re-hospitalizations, street living and drug addiction.International Clubhouses:Another resource which is critically required here, is a Clubhouse, like the ones they have in [location removed] BC, and Winnipeg. Clubhouse International operates in 33 countries to the tune of almost 350 facilities. These are operated under proven guidelines, and offer critical social opportunities, counselling, employment and education assistance, as well as healthy meals. At present there is nowhere for young people to get the help they need here, except in groups at the Outpatient Clinic at [information removed]. Young people do not want to go [information removed]. There is a climate of despair and dread at the Hospital. Young people and their families are traumatized by the immediate and stereotyping diagnoses there, with the emphasis on pharmacological treatments. Families are told they are critical to the recovery process, but then they are pushed away, accused of "enabling", and blocked by reasons of confidentiality.I hope you will definitely look into all these problems asap, and take steps to correct them. I know there are many parents in [information removed]who would be willing to share their experiences and serious concerns with you. We are all desperate for change, so our children get the help they require, and can heal and recover.I have mild spinia Bifida which means I can use transit, but transit does not go the routes and times I need. I depend on others to drive me places so I can enjoy a social life and be part of the community. Having a service that can take me places without registering ahead would make life easier. I am developing a business in which I will need transportation at during the day but not on a bus route maybe. I feel that work can be created to meet both parties needs the driver and passenger. A Transportation business you can count on for different routes and times so it will be easier to contribute to society and feel you are accomplishing independence financially. I also would like to contribute two programs on your list innovative / support by creating or talking about an energy service to clear emotional blockages so people can look in to find their gifts of talents and skills they can discover their own way of work as an entrepeneur. Some of my related questions and concerns for persons with disabilities here in the [location removed] and especially those with Permanent Disabilities and barriers: Concern regarding the child support deduction for parent on PWD Having to pay for the Dr's forms required for many govt. run supports for person on PWD or CPP Lack of transportation access to reduced rate bus pass for children of parent that is unable to drive due to their disability and on PWD Lack of safe (one level) housing for low income persons on PWD with permanent disability The issue of discontinuance of PWD support due to relationship status for someone with Permanent Disability.The greatest barriers I face as a person using a power chair/scooter are access to many buildings (public ones as well) , safe sidewalk/road conditions to get to and fro with my scooter, doors with no automatic openers, "accessible" washrooms which are mostly too small to safely navigate a power chair, much less a scooter, pay machines set too high to reach, store shelving to mention only a few.. The majority of businesses and public buildings tend to follow the minimal guidelines set in the Building Accessibility handbook for washroom stalls. This does not even begin to meet our needs for safe movement from our chairs to the toilets because often the doors don't even close behind us! i had a stroke which paralyzed my left side in 2007. I couldn't move my left side or speak. I was REFUSED intense physiotherapy when research shows intense therapy works. Mike Harcourt is living proof of it... I went from a $30,000.00/mo hospital room (almost a year) to $7000.00/mo assisted living (3 years) to my own subsidized ($900.00/mo) suite in [location removed]. I've been REFUSED supports. It's really, really depressing. I'm in pain. I don't want drugs, nor smoke pot, I need help in the gym. I'm planning to advocate for staffed fitness facilities for disabled. I've managed to get out of an electric wheelchair after using one for five years. i spent all my savings doing it. My last pair of eyeglasses I paid for myself (progressive lenses costing $500) and this time I can't get anything better than bifocals through the Ministry and I can't see my computer screen! I WANT TO GO BACK TO WORK. I've owned businesses before and employed a staff of 50 as a unionized contractor. I've sponsored three immigrant families...I've paid my dues. Yes, I've exhausted every dime getting through. Is the Ministry serious about helping me out?There needs to be more special considerations given to youth who come in conflict with the law and who have Acquired Fetal Alcohol Spectrum Disorder. Ideal would be a Court designed specifically for youth who have AFASD. This court would have one judge presiding, one crown counsel and the defense counsel of their choice. Bail and sentences would have minimal conditions which are realistic, achievable and in youth friendly language rather than complex orders which are written in incomprehensible court professional language.Please describe what the BC Government plans to do to meet the commitments made by Canada in the UN Convention on the Rights of People With Disabilities. Particularly in providing adequate food, shelter, and clothing, and a continuous increase in the standard of living as per Article 28. Why are BCs disabled living at 50% below the poverty line. This man-made ghetto continues to grow, and conditions continue to worsen. When can we expect relief?I am a single mom and on welfare and cannot make ends meet because they also deduct my family maintenance from my welfare cheq which leaves me with only 350 cheq that goes straight to the landlord - this really has to change and anything that i can do to help change that i will do In this day of loudly voiced concern re sports and head injury and safety I find it appalling that there is no legislation regarding safety helmets and wheel chair and scooter riders some of our most vulnerable members of our society allowed to cruise the streets with no legislated safety gear - it is an accident waiting to happen - to ride without a safety helmet kike cyclists and motorcycle drivers - thanks for your consideration I am a parent of a child with Down Syndrome who would very much like to have more hours of work. Right now she works 3 hours a week! Would like to see employers more open to hiring disabled people. * Recognizing persons with disabilities who have Post-secondary education, and helping them to find employment based on their gifts, experience, skills, and education vs. "what they can not do" because of a physical or other challenge. Everyone has something to offer to their community and has value/gifts that benefit them and others. We can value persons who have exceptionalities, by allowing them to participate in our economy/society in meaningful ways; including work. We need legislation in our B.C. laws recognizing the rights of persons with disability to participate in the same manner, as persons without any disabilities. The public needs more education in treating persons with disabilities, the same as them as, we are all PEOPLE and in doing so, will help dissipate any "misconceptions" about persons with disabilities. Better, concrete financial supports put I place so persons who have "exceptionalities" can equally participate in Society, the Workforce just like persons who are not " disabled." we need more " Back in motion" employment counsellors & programs so, clients can get the supports they need to become employable or contribute in other ways to the community they live in, whether; it be a mental, emotional, developmental, or physical disability. Everyone has value, worth, gifts & talents they all can contribute which will benefit everyone.The BC government needs to create a Disability Act like they have in Ontario so, persons with Disabilities are treated with the same respect & rights as, everyone else. Also, that any psychological, social, or the proper medical supports are put in place so, each person can function @ their maximum potential. I have [information removed], I'm on CPP which is not a very high income. Many times I have to take public transit but find it very hard financially to afford it. Isn't there a way I can get a break.. I hear if your on welfare you can get a yearly bus pass for under $50.00. Why can't I get it on my low income? Also the doctor told me I should go to the pool, it would be the best way for me to get some exercise but I can't afford that either or any other program that could help me.. It's very depressing not having the funds to do what needs to be done. I had a great job until my disabilities prevented me from working, now I'm poor with crap income which makes it hard to get by & makes me feel like a loser. I need help that my boyfriend can't provide.. I want to attend programs that could help me & not sit in a corner & wait to die.. There is no help being on CPP, I have no family & there is equipment I need but can't get help because I live with my boyfriend. I'm the type of person who will keep a smile on her face & try to stay positive but it's getting harder. I have so many questions and concerns. I wish I could still work but I don't know from day to day how bad the pain is going to be. I want help but don't know how to get it. Anyways, I know I'm probably talking to much but I'm hoping there is help for me. Life has not been easy for me & I really don't have anyone to turn to. I'm looking forward to talking to someone and attending a session. Sorry, if I got off track but I didn't know where to start. I am a disabled business owner and I am struggling with mounting financial burdens. I have taken a hit to my credit due to the business being a sole proprietorship and all liability falling on me. It has been a very hard first year and a half and I think we may make it! I need help with accounting and tax info as well as any grants or funding available for a PWD.I have published many books of interest to this community. The Picture Cookbook originally created for people with Autism (sold out and needs to be reprinted). Two books of poetry, Strength of the Human Spirit by a severely disabled person Jade Bell and Somewhere in the night by Renate Thomas who has brain injury. After Brain Injury for Caregivers, The Pocket Guide for people with brain injury by Lynne Mann. A First Nations book about the Bella Bella music and culture by an author who did his PhD thesis on the subject but who is now brain-injured. The Bella Bella people are reviewing his book at present. The Politics of Blindness by Graeme McCreath, a Victoria physiotherapist who is blind and whose main message is that we can do much better in hiring blind people. He should be at your Victoria meeting. He coordinated the publishing of his book in five different media including braille. Several of these titles need financing for printing or reprinting: The Picture Cookbook and To Impersonate the Supernatural, Music Ceremony and Culture of the Bella Bella. In addition, I currently have a disabled person acting as an editor for the book entitled "Road to Recovery, After Your Car Accident". I/we could do with financial assistance in employing disabled people and to assist in publishing one title and reprinting another title and promoting further all the books. Neither the authors or this publisher can afford to carry the entire load. I cannot attend easily any other meeting than this one but would like to know if you would welcome more information and receiving copies of the books.I would like to see discrimination and harassment in the workplace more easily addressed by the individual with a disability without fear of being fired without cause for not being silent. Employers still play the angry disabled person card when not willing to accomodate and allow co-workers to harass and bully without putting a stop to it, in hopoes that the worker with the disability will quit.I have worked in the mental health field for over 30 years, and the last 4 as Case Manager for [name removed]. I assist people with applications for PWD/CPP-D etc... and advocate for appropriate services/medical needs/housing etc to ensure quality of life. In the last year I have dealt with more than 20 audits being conducted by the Ministry of Social Development`s investigators on our vulnerable and disabled members of our society. I have witnessed demands, hang up calls, threats of being cut-off etc... from the Ministry to the disabled during these audits. At one time, I had 5 of my clients on suicide watch because of this. The investigators knew this and continued to audit them. I have spent 100`s of hours on these cases working late into the evening/weekends on my own time. Firstly, if the Ministry decides to do these audits on people with disabilities, why do they not make sure the person has supports in place first to assist the client with the required paperwork/advocacy/direction and assistance and familiarize themselves with the file " before" approaching the person for an audit. A serious lack of awareness of the actual disability and an understanding on how it affects the client is crucial prior to the approach. They ask for information on the client that the actual investigator already has access to and when you fax the information, they say they never received it and do not believe the confirmation paper that shoots itself out directly after a fax and are accused of lying. I can name at least 6 investigators but will not, but can say at least 3 of them were verbally controlling and completely unprofessional. I have taken the Ministry to the Tribunal in [location removed] in one of my cases. During the court-like hearing, the investigator felt she was losing so started yelling "fraud". It was later proven that there was no fraud and I won the case for the client. Prior to and since, I have taken many of our other clients through the "reconsideration" and "appeal" processes. Secondly, why does the Ministry not pay the non-profit society`s for the advocacy/support and endless hours that the worker(s) need to do in order to support the person with disabilities through an audit that the Ministry imposed? I would like to attend the in person session in order to give and receive feedback regarding the services available to the mentally challenged adult community. My mentally challenged adult son is going through a hugely frustrating job search right now and I know he is not alone. He does not qualify for assistance with his job search or even community supports at this point. Aiming him at a job board will get him out there to apply, but won't assist him in presenting himself in a positive light. He needs help with that. It is not simply a matter of "finding a job", it is realizing that a holistic approach is often required and creative measures taken in order to help these individuals find and retain employment over the long term.The Baylo Group is a Group Medical meeting of Acquired Brain Injury Survivors meeting for support and therapy to help us live with our disabilities and discuss the challenges we face in our daily living.I will be commenting on systemic barriers re housing for people with mental illness and that there are no standards for accommodation, even with facilities connected to BC Housing and mandated for people with disabilities.Would like the housing subsidy to be separate from the disability benefits so rent doesn't come off your benefits. How much is the increase going to be for disability? How will it effect the transportation subsidy? Is crisis grants still going to be available? Any improvement to Plan G? Any dietary allowances available still?Why are some medications paid for through the government for some clients and not for other clients with the same amount of disability benefits and needs? Not every disabled person lives in a subsized housing unit. Will rent amount increase on disability benefits or decrease on benefits?I feel so isolated with the struggle of living with a disability and the downward spiral of financial woes and worrying about the future. The only people I speak with are the "case managers" at CPP Disability. I never end a conversation without feeling hopeless and I that just leads to further depression. I do have some simple questions about improving the quality of my life but am I asking the wrong people?For some forty years I have worked with persons with disabilities as either a Community Support Worker or Special Education Teachers Assistant. Later in life I have gone back to school to finish and Adult Education BA a few courses at a time. A year ago I had a serious fall that although I am back to work impacted my whole idea of how temporarily -able bodied we all are. I am currently taking a Directed distance study course from York University on Disability Theology. Primarily I am taking the course because after many years of attending a variety of churches with either clients or family members one question would not go away. Why are there so few people with disabilities in church?. Disability theology discusses these kind of concerns and seeks to re -think our long held hidden biases on disabilities as one part of its approach. The visible consistent structural barrier in many churches,even churches that are otherwise wheelchair accessible is the absence of ramping to altar areas and worship areas that are considered visible ministries up front. Although the most major barrier in churches are social constructs and attitudinal barriers, a physical sign of a churches acceptance of persons with disabilities at all levels would be making the " for ministry only " areas of the church wheelchair and otherwise accessible. I would like to have the opportunity to briefly discuss this at a session. questions regarding residential supports and training for people with FASD and ARND and Developmental delays concerns regarding funding for housing when rates are half the market rent why are there limited education opportunities and hands on help for programs that are almost non-existent for special needs why can't family members be given financial supports to raise and caregive for special needs that grow into adults where does one access grief counselling, anger management etc that is not oral or written communication based and how do you access the dollarsPlease email regarding timing of your meeting in [information removed]and available access for person's with disabilities to be able to attend. Currently the handy dart DOES NOT operate during the time you have proposed for your consultation meeting in [information removed]. In fact, Handydart service stops hours before the start. How can you expect to consult with person's with disabilities if they are unable to get to your meeting? This is one of the biggest problems facing person's with disabilities in our community and I find it baffling that your organizers would not consider this as they planned these events!I am out of town for work at the date for [location removed]. Nevertheless, I would like to have input. There used to be a training for special needs people through the local College in Prince Rupert. It has been cut. This was a course to prepare special needs people for any kind of work-placement. This course covered items like: employer expectations, coming to work clean and on time, preparing basic resume, etc. I found it very useful and I think it should continue again. i am seeking help in attaining a disability transit pass. currently, i receive cpp disability and not income assistance. cpp disability is not much greater than income assistance, but i am being disqualified from attaining a disability pass...Improve for All Surrey Social Services such as NAPS, Native, etc for removing the communication barriers. They will be educated about Deaf Cultures. Also for the employment services, they will need to know about Deaf Cultures and work. I hope to see you there and we will talk about this.I have an adult son with Autism, mild C.P as well as profoundly Deaf. Interestingly his customized employment supports have been cut and apparently the services he receives will be moved under the umbrella of Work B.C on March 31. But I've already been told that the customized supports and the important job coaching aspect, which have been key to the success of the program, will not be offered. Seems to me this white paper will be too little too late for my son.Tax property discount, CC in BC ferries, Bus etc... for information news for DEAF and Hard of Hearing.I would like to know more about RDSP's. Also would like to know if the community is using Speech Recognition caption programs through a software program and not through live stenographers?During most of the past decade, I worked as a [information removed] with Social Development Canada. When I witnessed the number of panel discussions that had gone on between 1996 and 2000 dealing with the "In Unison" project, with little being done with respects to implementation, I personally took the bull by the horns and developed agreements with BCMSD to go out and inform the public about our mutual programs. Together, a BCMSD manager and myself launched a collaborative and cooperative inititiative dealing with disability programming that rapidly gained momentum and expanded out into a broader network of services. At the same time, I worked with other Federal and Provincial departments to improve the level of service by modernizing services for clients, partners and breaking down silos at all levels of government that formerly prevented efficiencies. Together, BC's joint relationship spread through the rest of Canada and onwards to motivate other countries to take a closer look at our model of services. Almost overnight (3-4 years in Govt terms) we developed a joint program that led to a 37% savings and 34% increase in business. Fighting at the Federal Level between ministries in a battle for resourcing in a declining atmosphere severely hampered the abitlity for Federal Departments to work together horizontally between departments, and hampered their ability to work efficiently with Provincial Govts vertically. This created independant Silos that contributed primarily to inefficiencies. Subsequently, the same trend impacted inferior levels of Govt to a point where service delivery became questionable at best.As a parent of a young adult on the autism spectrum I think it is unconscionable that finding for therapy and other interventions cease at 19 Years old. Most if not all of these individuals still need therapeutic support and other health interventions which are poorly provided. Would you stop treating an 18 year old with cancer? Would you force them uto receive substandard treatment just because of their age? It's scandalous.As an advocacy organization for people with disabilities, we see hundreds of cases in which individuals are trying to access supports and having to overcome barriers in order to establish income security. We assist people who are applying for, asking for reconsiderations and tribunals, for PWD designation. We also know that disability supports for employment are not being accessed effectively and this is a major concern for those who do wish to be self supporting.I have there chronic.disabilities and I want to be a part of these discussions! Disability supports in BC are so inadequate that they keep people ill and in severe poverty, The Liberal government has neglected us for too long. We need a livable income, opportunities and respect ... things we do not have and which we need and deserve to have.This is about while I am at work with Forest Lands Natural Resource. here in [location removed]. Once in a while there is a training on line and I cannot hear or understand them because there is no close caption available while they already know and are already ahead of me and for me is way behind is that fair? the answer is not fair I wonder can they set up a close caption / english subtitle? that way I can stay ahead of it, remember it is not just for Deaf or Hard of Hearing but also for those hearing people who have some difficult hear it. Also for teleconference call sometime unexpecting or a day notice it is not likely that I can get an interperter on a short notice so meaning my manager will have to fill me up is that fair for my manager to do extra time to fill me up no. I do hope and look forward to see this barrier to become free barrier for all Deaf and Hard of Hearing to get into any kind of particiaption.I am a person with disabilities and I volunteer as an advocate for people who apply for the Persons with Disabilities Programme. As I am a full-time volunteer I will seek additional funding to help off-set over 70% of my income for basic shelter allowances. Will I be able to give documents that have shown in the past that I have not been accommodated, or talk about government policies improvements to help disabled people, the need for an accessibility act like the one in Ontario or the American Accessibility Act or the British Disability Act. Also, the need for one definition for disability, update the word disability to something other word that the disability community can agree on, and a new definition for disability. A committee for advising the government on disabilities that insures policies are updated with respects to accessibility of buildings, forms books, new technology to insure they are accessible and so on. The need for Change for supports for disabled people transitioning from high school student to a university or college student and better laws to protect students. An in depended committee outside education instututions that a student can appeal an accommodation issue that has a quick turn around so a student does not go into more debt or default on student loans or wast government money when there is an accommodation issue as they can sometimes take months to get worked out. Disabled student drop out due to the stress, and or health problems. Last of all, are there any government committees currently on disability issues that a BC citizen can sit on? I would like to attend both meeting times in Victoria so I can hear what other people have to say. Last of all, the government mite want to change the name of the white paper as it has some historical negative meaning and discrimination with as the Federal government used if you are First Nations.Thank you very much for the enclosed information but due to the worsening of medical issues I will not be able to attend the meeting. I so much wanted to discuss the issues of age discrimination in the ability of obtaining financial help for personal supports which in turn limits accessibility for the disabled. Also the ongoing cutbacks in transportation such as Handy Dart which isolates the disabled. One suggestion I would like to make is that a disabled person be included on planning committees and boards like translink and city planning.?so that the lived knowledge and experience of this population can be expressed.I'm sorry but my work schedule has changed. I am unable to attend the Feb. 12 session. Thank you for the participant package. Upon review, I have many thoughts and comments, but I hope the follow can be considered 'official' feedback from a family member of a person with a permanent disability: I find the following comment from? the package very frustrating: "It is important to recognize that B.C. is committed to balancing its budget and reducing debt for future generations. The White Paper and Summit must include a conversation about how this fiscal ?commitment can be met, while at the same time reduce barriers and improve accessibility" This is a message that the provincial government sends out ad nauseam during any discussion of publicly-funded institutions and services (K-12, post-secondary, health care). The simple fact - that is readily apparent to those of us on the front lines - is that system that is supposed to provide services and protection to those with disabilities is underfunded to the point that it cannot run. I am tired of hearing "there is no money." There IS money. There is just not a will in Victoria to make funding disability services a priority. How do taxpayers know there is money? Well, how much did the Port Mann construction cost? How much did the Olympics cost? The government has money, they are just choosing to spend it elsewhere. I find it extremely insulting that White Paper discussion expects participants to suggest new and innovative ideas, but at the same time ensure that they don't cost anything, or that the costs are born by the client, their families, or caregivers. That is an impossible task. With that said, I will continue to advocate for my family member, and hold CLBC and the BC Disability Office to task. The suggestions I would like to make to this discussion are: 1) properly fund CLBC so it is not forced to contract out services and further distance the client from the protection of the government. 2) improve monitoring of CLBC home shares. An announced annual visit is toothless and a waste of time. Eating establishments are spot checked - why wouldn't a home share be spot checked? Monitoring in my experience is reactionary and complaints-based - so this means that clients will hopefully have advocates who will ensure their safety and that the conditions of the home sharing contract are being met - because CLBC is not. 3) provide clearer language in home share contracts. What is adequate care? Who decides what adequate care is? Currently the contracts do not contain any language the provides clear guidance on expectations.I received your reminder email yesterday for the session tomorrow night, as well as the attached participant package. The confirmation email I received last year when I registered did not include any questions. I was very much looking forward to participating; however, I regret to inform you I will no longer be able to attend because I have been going through an ordeal trying to appeal a decision regarding denial of disability benefits. This has been stressful and exhausting, in addition to the regular challenges I face on a daily basis living with my disability. I am keen to provide my input as I feel much needs to be done to help people navigate life with a disability; however the questions you have included in the package are very in-depth and require a lot more than time than 2 days notice to complete with helpful, relevant and thoughtful answers. This would be a challenge for anyone to complete, but especially for people with disabilities. The short time frame is unreasonable; it makes me wonder if input is actually desired from people with disabilities on this evening, or if this is just for show. I registered for this "round-table" discussion back in early December, which would have been a more appropriate time to include the attached questions. I would go a step further to suggest that in the future, you should provide even more than two months notice for questions of this nature and depth, if you truly wish to get the valuable opinions of those living with disabilities and to effect positive change to assist us. Living with a disability provides numerous daily challenges of all sorts, and the addition of something new (like answering all your questions) requires notice to plan it into our schedules. Lastly, while I understand it might be hard to capture what disability looks like, I find the photos you have included on the consultation package are not representative. I am someone with an invisible disability, and to look at me you would think nothing is wrong. The invisible nature of my disability provides significant challenges and it would be very helpful if you would include a photo of someone who "appears" to be perfectly normal...not just people in wheelchairs, who are deaf, living with down syndrome, or a parent assisting their disabled child. That would help greatly in breaking down stigma. I do hope to provide input in the future, but I feel your approach needs to be revisited in order to get sincere, helpful advice from those of us coping with the challenges of life with a disability. I encourage you to visit painbc.ca and consider inviting someone from their board of directors to provide input for you on this matter. My husband was deaf. I am [name removed] , hard of hearing person with CI. I was worried about BC ferries should add screen get off name of town and make sure time schedule. Our marriage is new and where is benfit for us, also should goverment paid $ 1,000 Dallars support for our deaf disability . we will need to hope our access easy for us. We wil need shaw for relay service.we will need BC ferries as good price as accesss. We will need family/support benfit and marriage benfits. We will need Family doctor as provide for Interpeters. We will need translink diability for the same price and how we can application bus pass. we have a lots frustred many access for us. for example applied Pwd Walfare for diablitiy and my husband and I were trying called hotline but depend on our mother in law helping to us. we have a frustred .. we dont have tty. it is better easy access for used email or skype webcam or somethings VRS back make our easier for access anywhere. My deaf dog was in house , but he's very new life with us. we need our house for special deaf door alarm for apt.I have been waiting 19 Years for Subsides Housing. In the Mean time enorder to live on this Income have had to Rent with my Father just to get by. I do believe that the Government Could Build more Housing so that Senors & People with Disability's Can Afford to Live.It's very frustrating that there are no scoop out curbs for wheelchair parking along [location removed]. The curb makes it very difficult for me to get my daughter out of the car from her wheelchair. And there are no scoop out curbs at [location removed] shopping centre, and they are just newly renovating with no wheelchair accessible access. I find the lack of scoop out curbs and lack of wheelchair parking spots difficult to manage my daughter in her needed on types of disabilities and our needs/concerns, adequate time allowed for people with disabilities NOT MORE for only organizations representing us to speak about our priorities, speaker order and time limit on each question, equal time allotted for people with different disabilities, and request for POSSIBLE SOLUTIONS to problems by people with disabilities/organizations/caregivers, and GOV'T CONSULTANTS, request for WRITTEN SUBMISSIONS BY MAIL AS WELL AS BY EMAIL, before and after for those who do not speak or cannot be present, announcement of WHAT WILL BE DONE WITH FEEDBACK from people with disabilities-what form, amalgamations, recommendations, and availability of results/timeline and WHICH LEVELS OF GOV'T will be RESPONSIBLE for process and WHICH MINISTRIES will be participating. e.g. where are results of previous gov't '`Core Review' process-i.e. ACCOUNTABILITY.. Assurance that feedback will not be placed on a shelf, but ACTED UPON WITH TIMELINE.. Call for local FOLLOW-UP MEETINGS to present and discuss findings with people with disabilities, and no implementation until agreement on solutions. Easy access to papers. Consider TRANSPORT STIPEND for individual PWD's to encourage attendance. Awareness of difficulty and cost to PWD's to attend meetings-remembering that we have other competing commitments and have given of our time and money to attend. wE DO NOT WANT TO WASTE OUR TIME, FUNDS AND ENERGY. I heard the video after writing the above, and a few of my questions have been answered thank you.Accessibility to the community - I find it very difficult to go out and see a movie or go out in the evening, when there is no accessible taxis and the handydart stops running at 5 pm on weekdays. its sad to say, but I could use some money. how about one of those $800/month jobs? how about giving me some asset's , so I can contribute to my disability savings account? who are these people, that your giving tax breaks too? since age 14 , I worked hard all of my life. when my body gave-out on me, that was the end of my working life! tell me more about these fanaticises you have ( me getting a job and ect. and how do I supply the "VALUE for the dollars my boss spends on a person who CAN-NOT WORKthank you, we work for this cause in , we wish to share our volunteering work ideals to provide a friend to do a blog into a website for some one who needs to show their potential and work. Not as a voluteer or social worker, this takes the pride away from the person and or creates a pity acceptance to have help in return. We need to work together, we are all need it in different ways, we can admire one an other. thank you for bringing an open space to let the best ideas come to conclusion is affecting many families and generations. thank you.As there are many people suffering from a disability, it is beneficial to the economy that the government has taken an interest in what is truly happening in our province. I am wanting to contribute by sharing my story and experience, my struggles and some ideas. Making BC the most progressive region for people with disabilities in Canada will take much communication and a great deal of reform.It was 1975, at age[information removed], and I was in the hospital for weeks. I underwent surgery to remove a brain-stem astrocytoma and that was followed by six weeks of extensive radiation to the back of my head. The facial nerve was damaged leaving a facial bells-palsy and I was left with a left-sided weakness. That’s where it all started. As a determined young [information removed], I did well; graduated from high-school with honors, went to college, and worked for several years. It was in the early 90s when everything started to fall apart for me physically. Even back then I myself knew that my physical ailments and growing health problems were the result of the extensive radiation. Not finding or receiving any help from doctors or medical specialists, I did my own research. I was even told by two individuals working in a Cancer Center library that I would not receive any help or acknowledgement due to liability. That in itself is criminal!Here (sic) my voice as I cry out to you the urgency for the government of BC and the ministry of health to stop denying the facts! We are talking about human beings here, Canadian citizens that as children were over-radiated and then discarded when they reached adulthood. We have been left to struggle with chronic pain and serious undiagnosed health problems. The unknown for us as individuals, our families, and even our doctors is a form of torture. Yes, the government and health system did what they thought was right back then and we are grateful for the surgeons and for the gift of life. I think I can speak for the majority of us survivors then I say that we were not and are not looking to sue anybody but needing medical help and support. The secrecy and/or denial has been detrimental to us as individuals, to our families, and to the BC system itself. What has been done is done and I’m okay with that. But it is unjust to ignore the fact that there are thousands of childhood cancer survivors now suffering as adults with chronic health conditions and late effects that are a result from the therapy that was used on us; our doctors do not know the facts or how to helps us because of the silence and ignorance. Thank you to the thousands of children that were used as guinea pigs and to the science that shows that the medical treatments needed to be seriously changed. Yes, we as adults paved the way for the children of today.There are no cures for what we now live with daily. But there is action that can and needs to be taken so that we as childhood cancer survivors receive the acknowledgement and medical assistance that is well overdue. In the province of BC as a Canadian citizen I should not have to fight for the health coverage I need, for the understanding and acknowledge that is due, or for the education of what is happening and could happen physically. Preventative health is crucial. In the past I and many others have been treated as hypochondriacs, some even disowned by their families. I’ve been given the silent treatment, and I’ve been tossed around from specialist to specialist waiting months at a time in-between.Now [information removed] years old, I have fought long and hard looking for help, for understanding, and even some compassion as to what is happening to my body and why I am in so much pain and why I have such little energy. Just this year, in my own research, I found a group of people in [information removed] who are interested in the well-being of the thousands of BC citizens who are pediatric cancer survivors and are suffering from late effects. Being connected to the Pediatric Cancer Survivorship Society of BC and being understood has helped but there is a long way to go. For instance, intervention is needed to promote healthy aging. And this society is advocating for improved quality of life with one main essential being a multi-disciplinary wellness and holistic clinic. Such a clinic would not only help thousands of people but would also save the people and the government a great amount of money, not to mention a great amount of stress. Right now doctors are unaware of the many late effects resulting from our childhood treatment. We have specific needs and we require medical staff that are aware of these late effects and medical flags to watch out for. The importance of ongoing health monitoring of adults who survived childhood cancer is lacking at this time.* It is only humane for the government of BC do (sic) step up and do what is vital for the thousands of BC pediatric cancer survivors that are suffering from the inappropriate treatment.In regards to the government’s financial assistance I take you back to the mid-90s. I was diagnosed with a repetitive strain injury in my arms as they did not know what else to call it or what was happening to the nerves and muscles in my neck. I was working full time but worker’s compensation would not help me as I was receiving treatment above my elbow. Hello, it’s all connected! In 2001 I began receiving Provincial Disability II. I have continued to live with my mother who is a huge support for me financially and helps physically; I am a highly dependent on her. Even after my father passed away three years ago my disability income or shelter allowance was not changed. Living costs continue to go up substantially. I have been living on $673.31 a month for twelve years and in reading the blogs of others and knowing the system, if I were on my own, I would be living in the slum trying to survive as a single person on disability income.It has been very stressful and degrading living on social services income. Let me give a few examples: the social worker seems to change frequently and a few years ago I was harassed by one who told me I was getting too much money and that it needed to be cut. She ordered me to bring in my bank book and wanted every deposit and every withdrawal noted as to what it was. I am and have always been an honest upright person. Such mistreatment should not be tolerated, what are my rights? Another time I got a notice in the mail saying that I would not be receiving my monthly cheque until I claimed for money for teaching piano. The zero I put in that box meant exactly that, zilch. It has been the same for over a decade and I do not teach piano in the summer months when the kids are on their break. Again, why is my word not taken for truth? I am not a criminal and even they get the benefit of innocent until proven guilty. Such stress and disrespect, a fight that easily could be eliminated with some guidelines and education of those working behind the desk. I am a highly educated single woman and I do not appreciate the continual harassment, being treated like dirt just because I am on disability needing assistance. It is not healthy to clump us all together for not all of us needing financial assistance are lazy or dishonest people; unfortunately there are those who are mentally ill or drug addicts and there are some who take advantage of the system. My record is clean as I am honorable, have never used drugs, do not smoke, and do not drink alcohol yet continually I have found the ministry of social service and the government’s games to be demeaning. I tell you that I was much happier when I was independent and did not have to rely on the system. It is in dire need of being revamped.The first time I became aware of the DTC in 2010 and tried to get it, I was denied. My disability is not visible and apparently my doctor did not use the required lingo. My numerous ailments have only continued to grow and after seeing the oncologist in [information removed], connecting to the PCSSBC, learning the technology of “late effects” I applied again and was accepted. But only back to 2011. Seeing as you can only receive the government grants and bonds into an RDSP at the age of 49 I wrote asking that my DTC be retroactive to 2008. I sent supportive documentation and even had my doctor stamp and sign my letter. Not good enough as I received a letter back saying that “additional medical information” was not submitted and only information from a qualified practitioner can be used. The government offers help but getting any of it is not only frustrating but extremely difficult.Pre-mature aging is significant in adults who survived childhood cancer and extensive radiation, especially to their head. It has been recently documented and studies have shed light into significant problems of treatment related chronic health conditions. Right now I am [information removed]years old but my body is more like 65 on the inside. The RDSP may be good for some but how do you expect me to put money in and kiss it goodbye until I’m 59? I am told that if you withdraw one penny the government revokes all it’s (sic) grants and bonds. I am living at the poverty level in an advanced aging body and fully dependent on my mother who is turning 80. It has been extremely difficult saving any money, let alone putting any aside for a rainy day.The regulations do not offer the incentive to be honest and upright. The AEE is a great idea but somewhat late for me; now that the monthly income limit is $800 it rarely comes into play. Teaching piano is what has enabled me to make a little extra money but in the past it has been very frustrating as my efforts were penalized and money was taken off my small monthly cheque. Another frustration is that I cannot claim any business expenses occurred such as piano tuning or a business licence; (sic) the City of [information removed]requires a licence (sic) even if you only have one student. I can claim expenses on my income tax but not with social services. At one time I was told by the Ministry of Social Development and Social Innovation that if I filled out their forms, opened a separate bank account for the business and maintained $5,000 I could then claim my expenses. How ridiculous is that? Another incident, in 2010 I became severely depressed and had hit rock bottom. My doctor sent me to a psychologist for which for some reason is not medically covered; in some cases it should be. It was very expensive and I was apprehensive, but she was highly recommended and it was proving to be advantageous for me. For that tax year I claimed my medical expenses on my income tax and received over $400 back only to have social services take it off my cheque. OUCH! It feels like tug-of-war and I’m always the one that ends up in the mud.My experience in drugs has been experimental as they have not proved to be help. (sic) There are some drugs that people truly need but who decides that and how? The doctors seem to push the prescription drugs and get rewarded by the companies who make them. My experience is drugs cover up the problem but don’t get to the root and they usually cause side effects and create more problems. Yes, some people are dependence and needing medication, but there are a lot of natural remedies which are less expensive and yet helpful and more beneficial in the long run. When I can, I choose natural medication but the ministry will not cover it nor can one claim it on their income tax (ie. magnesium bisglycerate and Co-Q10 nearly stop my foot and leg cramps). Another therapy that is crucial for me is ongoing physiotherapy and massage. In regards to the radiation necrosis, nerve pain and muscle atrophy there is no cure but studies show that massage therapy or hands-on physiotherapy slows it down. If I go for a massage every two to three weeks I am better able to function physically and accomplish necessary daily tasks. It would help me immensely, and many other survivors like myself, if the medical system would fully pay for 12 massages in a year. The ministry will spend thousands of dollars on one person who takes prescription drugs, but my need is for hands on therapy.There seems to be a fair amount of overkill in the medical system; disconnectedness, lack of communication, thus wasted time and money. Here’s an idea, stop paying doctors/specialists who do not care about the people and the service to the public: if the public is rating them lower than a 3 they are not helping the cause and the patient, as well as the system, suffers. There seems to be a need, an incentive, for these highly paid doctors to truly care for the people. I have experience it many times and I have heard it from several others. For example, the [information removed]oncologist I saw last summer advised me to still see the neurologist at home that I have been waiting months to see. When I got the appointment and went to see him, the first thing he abruptly said was “you already had the MRI why are you here to see me?!” My thoughts were well gee, I didn’t study neurology. Later I looked him up on the internet and he is rated a 2.5 by other patients. Degrading and stressful once again. Everything, survival and endurance of life, is connected and the continuous fight wears one done (sic), leading to depression and despondency which is high in people living with disabilities. A vicious cycle.The government is in place to do what is just and right for the people. Ethics and laws have been put in place in hopes that everyone will get along, do their part. Unfortunately those who are dishonest, those who live for self or their institution/cause, and those who are lazy seem to get the most attention. Before the government can address the need of secure and clean accommodation or increase the monthly income, as the majority of people are asking, it needs to designate that which is more important. For where would the government get the money for the thousands on disability and who will stop inflation? Money spent on criminals, those who break the law, money spent on rescues for those who ignore the signs and go out of bounds, needs to be cut back. Why is it the government’s responsibility to provide treatment and counseling to addicted gamblers? I’m all for a balanced budget and for prevention but people make their own choices. It is not right that offenders get off so easy. Why are our jails so cushy? And why is there so much red tape and penalties for those who try to reach out and help others? (ie. the couple who was fined for moving their elderly parents into a suite they built in their basement so they could keep an eye on them and help them financially).What would really help each and everyone is a change in the network of society. For it’s a domino effect. Everything is connected somehow, and there are just way too many areas to discuss. There are a lot of good people out there who are glad and willing to help (just get yourself on the Global News). There needs to be an awareness in each community of the local needs and incentive for businesses to hire those who are disabled, even if they are slow. Every individual needs to have a purpose, self-worth, and feel good by earning money/contributing to community. Those who don’t want to be called disabled or want the sons taken out of the Canadian Anthem have an identity problem. C.S. Lewis said “we are what we believe we are”. Myself, I am thankful for the financial help from the government as stressful as it has been. And even more so I am grateful for my faith in God for it has been my personal relationship with Jesus Christ that has sustained me. I leave you with Romans 13:1-2 where it says “let every soul be subject to the governing authorities. For there is no authority except from God, and the authorities that exist are appointed by God; therefore whoever resists the authority resists the ordinance of God and those who resist will bring judgment on themselves.” May the Lord God give you wisdom and knowledge in how to truly make BC the most progressive region for people with disabilities in Canada. Thank you for your hard work and dedication in making our province a better place.ForwardThis submission is about the problems encountered by those on disability in the rural areas of British Columbia. It deals with the short comings of the current Persons On Disability in rural BC.2. Current StatusA. CoverageCurrently all the Persons With Disability programs are city oriented none is developed for the rural areas. For example the shelter portion is not developed towards upkeep of residences in the countryside. The bus pass program does not deal with transport in rural areas it is city oriented. Then there is also the fact that current income amounts have not been up graded in 8 years and $941.42 does not cover cost of living today.In regards to estates we live on. In many cases wills are involved. The wills allow those like me to live on the estates. The problem is this. There are no government funding programs to cover all upkeep expenses and as such the estate trustees have the risk of running out of money to cover expenses. The same may be said where disability cases own their homes and have to meet expense costs. In the case of estates that have trustees in whose name the estate is and myself who get to live on them because we are included in a will that we are at risk of losing our homes if the trustee may run out of funding. There is also the problem of neglect. This leads to hardship.Then in regard to transportation. Currently the bus pass program is useless in rural BC it is city oriented. We do not have easy access to transit. We are reliant on vehicles. Currently “The Special Transportation Allowance” is ineffective. The reason is it only valid (sic) in regional districts where there is transit and we have problems accessing transit. It does not cover vehicle fuel, replacement and repair and is only able to cover insurance if we are in a regional district where there is no transit.B. What needs to be doneWhat to be done is this. (sic) Without putting those of us who are on Persons With Disability right now. The whole program needs to be changed to cover us in the rural areas of BC. There must be nothing done to damage or cancel our current level of P.W.D coverage. If our current level were cancelled anarchy will prevail as we need finances to survive.C. Whya) By transforming our situation into one where we can stay in our homes where there is funding to cover and maintain the estates we live on including dealing with estate trustees to guarantee we can stay in our (sic) including if it means overriding the trustee to ensure all the cost of estate operations are met so we can stay in our homes.b) By guaranteeing adequate income we can have a good standard of living, also ensuring that we have coverage for vehicle fuel, insurance, maintenance and replacement.c) That there be a provision for us to guarantee we get to stay in our homes, that have a provision for overriding the trustee so we can stay in our home.d) Adequate income for us on disability. This includes protection so we will not lose our current P.W.D status and the existing program will connect into the new one.e) Problems right now also include lack of funding for vehicle maintenance, insurance and replacement as well as fuel. Lack of funding for travel by ferry rail or plane as those modes also are used by those on disability.3. (missing)4. Problems Re: Upkeep Of Estates And Residencesa) This includes funding, cases where people are included in wills (P.W.D) cases. In this instance where a will is involved the Persons With Disability case may be as in my case been guaranteed the right to live on the estate but the provisions of the Persons With Disability Funding is totally inadequate to cover the upkeep of the estate. It has to change. The reason resources the estates have can be limited as in the case of wills.b) This includes problems where trustees for estates (owners) and Persons With Disability case are two separate cases. This can lead to potential areas of conflict. This is caused by funding shortages at the owners end and the Person With Disability cases end. It can lead to conflict re: upkeep of the estates. For example repairs. The disability case may have to have work done on taps, the estate see otherwise. If for example a breaker test must be done. The trustee may to ignore it but the may be (sic) with the power grid on the estate which is not covered by BC Hydro (they will do a diagnostic of the smart meter and the smart meter if that is the issue or fix the line from the highway to the residence but that is all). Without government funding this can be difficult and in many cases impossible to correct.c) Problems trustee or estate owners and P.W.D cases face regarding estate finances including coverage. Where wills are involved the funds can be limited and leave the trustee or disability case out of pocket for cost. In cases such as where the trustee and disability case both con (sic) experience problems caused by lack of proper funding programs.5. Confirmation That We Need A Program To Cover Those On Disability In Rural AreasYou have seen in this report what the issues are. This report confirms what the issues are. This confirms what the problems are. They include financial upkeep of estates including residences out buildings, property, transportation and also animals (some have pets on estates but there may also livestock (sic) on the estates that have to be kept up). It also includes upkeep and replacement of motor vehicles. It also includes off highway transportation by ferry, rail or airs (sic) as BC is a coastal provinces (sic) and even to get about ones daily affairs travel by transit bus is not possible say for example if one is on the Sunshine Coast and must get to Vancouver or is on the Queen Charlotte Islands (Haida Gwaii) or Vancouver Island and the Gulf Islands and must get from Vancouver Island or the mainland. These need to be corrected as those on disability do have to travel on business or re: family.6. Outline Problems Encountered By Those On P.W.D In Dealing With Estate Trustee or OwnerWhat we on face regarding dealing with estate trustees is that trustees may be hard to deal with. They may also have limited concerns for us. Same time they are relatives. This can make for trouble as we do not always have there (sic) support on issues re: upkeep of the estates and getting funding. The funding has to come from wills or families who are relatives and with funds being limited it is trying, we need action now not six months down the road. We need coverage for the estates so they will not go under. We the ability (sic) to meet the estate expenses even if the trustee does not.7. Outline Problem With Those On Disability In Rural Areas Re: TransportationRight now what there is, is “The Special Transportation Allowance” beyond that nothing. No coverage for vehicle upkeep including vehicle duel, maintenance, insurance and vehicle replacement. Transit is virtually non existent so bus passes are a waste of time. What we need is coverage for vehicle fuel, insurance, maintenance and replacement. We are dependent on vehicles for transportation in rural BC. We are not opposed to environmentally sound vehicles but we need them (vehicles).We also need the cost as do those in the cities for travel by ferry, rail or plane covered.8. Outline What Failure Of Ministry Has Done To Undermine Rehab Re: Protection Of Existing Certificates Of CompetencyThe ministry regulations have failed us in rural BC they are city oriented. What needs to happen is two things. One the P.W.D program must be enhanced to improve our income. Two it must enhanced (sic) so as to cover upkeep of residences and transportation as mentioned above.There is another failure point. Ministry regulations have not done anything to protect existing Certificates of Competency we may have. This includes federally issued certificates of competency. I have Transport Canada issued certificates. The Marine Band Radio license is still valid but no longer a commercial vessel this is due to a need to upgrade the P.W.D program did not for see (sic). I have to undertake a review of my Marine Emergency Certificate within six months of return to work. Then there is the issue of getting a doctor’s medical clearance. I have to have six months back on a job before they will issue the clearance. I cannot get employment through ministry programs and Transport Canada medical requirements require a medical pass first. Every action of the ministry re: rehabilitation has been counter productive. The existing programs are towards getting jobs they do not deal with protecting existing trades skills and certificates and assisting in turn to employment in ones (sic) profession that was there before. They as mentioned are city oriented to (the current programs) they do not deal with the issues in rural British Columbia.Do not take us off the existing program of support. Re: building the existing program right into the new program for those in the rural areas. If you were to take us off the existing program and not restructure us into the new program once the funding from P.W.D ends there will be anarchy and chaos trying to get financial support to cover our expenses. What is also need (sic) were a next of kin has passed we need money to cover grave markers and funeral expenses that a executor (sic) or trustee may not cover. In my case I cannot cover getting a grave marker(s) for my mom and dads grave(s).9. Outline What Failure Of Ministry Has Done Re: Failure To Regain Work Stress That We Must Be Able To Work Until Laws Are Passed That Will Allow Us To Return To Field And More!Right now the ministry regulation deals with just the provision for $800.00 per month that can be earned outside the program. There is no provision for rehab so we can keep up existing certificates of competency and trades time. The current ministry regulations do not allow for return to work with time of injury employer, getting certificates in our chose filed and keeping them. This also includes getting businesses, up and running and maintaining them. Then there has been little done to help those who have been in the military.But this will change. Currently there has been a petition accepted by Ottawa to do just that. They are right not getting on it. There is a provincial petition on the same issues in the hands of my M.L.A he has promised to get it through Victoria covering the same four points fifth one. (sic) To intercede with the other provinces and territories to get them to do the same and to lobby Ottawa to do likewise.10. RecommendationsI recommend that regarding 1 through 8 the changes be made so we can reap the benefits. That regarding 10. The government support the results of the petitions and get the respective bills past. (sic)This includes so we can all benefit from the results including retroactively and when and if we cease to be P.W.D cases the benefits re: up of estate continue on through.That in cases where we on disability need to cover funeral cost for or human family member as is in my case we be given financial help to ensure a grave marker(s). (sic)In my case my parents do not have a grave marker as cost (sic) are prohibitive.11. ResolutionsBe it here by resolved that the ministry should make arrangements with the Canadian Corps. Of Commissionaires to employ us on disability until we are back on with our regular employer or to gain work. They have a (the Commissionaires) (sic) to hire us but no agreements with their clients government included have ever pursued it with them.It is also here by resolved that because the existing Persons With Disabilities Program does not work that action be taken to implement the recommended changes (from this report) right away. This is so those like myself can benefit from it at the same time that the existing P.W.D. funding be kept intact and we be not denied (sic) P.W.D. It would result in anarchy if we were denied P.W.D. We cannot lose our income we have as we are dependent on it for survival.12. Executive SummaryWhat is being asked is we who are on P.W.D in rural BC need protection. The existing funding programs must not be cut even though they are not adequate. To cut them would result in anarchy as we would not be able to make ends meet. What is needed is one guarantee our P.W.D. income not be changed or cancelled as this will as mentioned result in anarchy. Two that you change the P.W.D. program to incorporate all of the changes. This is so that those of us on P.W.D. will not be forced out of our homes in rural areas of BC. It is important that the program be developed without cancelling the existing program as the existing program although dysfunctional is necessary until the new one goes in and is up and running. Your action in support of this is welcome.The Province has identified key questions:1. Why do you think it’s important that we reduce barriers and increase accessibility for people living with disabilities in B.C.?Answer: To give people a livelihood. Create jobs. This creates better mind, spirit, soul, and health. 2. What can British Columbians do to welcome the contributions of people with disabilities, and what barriers can we remove?Answer: 1. Equality to services: To give those who cannot go on to post-secondary education to have somewhere to go, something to do, access to services, and equipment as if enrolled in an Adult Special Education Program. What is the livelihood for those who do not go on to post – secondary education and employment? What is the label or acronym for adults with this dilemma so I may find services for them? 2. Open door policy: Given an array of different disabilities, be open to all cases. Create a charted goal for functioning disabled to less functioning disabled.(Some people need more some less but if their main needs are met all will be satisfied.)3. Listen to the disabled and caregivers: Do not put spectrum of disabled under one umbrella. Create for the all a place to build character, contribute, educate, exercise, & socialize.4. Conveying patience: Mentor or appoint someone, keep an open mind, allow new ideas, notice trouble or bumps in the road and smooth them out with the individual to both get satisfaction, and keep goals realistic.5. Give them the resources: Open up new avenues…everyone is unique. Agencies and non-for-profit organizations collaborate with each other to fulfill the needs of all individuals. Create a media for advertise for employers, employment, caregivers, programs, inclusion, equipment reusing, and communication equipment. 6. Grant government funding: More money is needed for supporting the disabled. The ministry has outlined in “Facts & Stats”, how disabled people compare to the general public in population. Grant full funding between the ages of 18 to 19 where transition from Children with Special Needs gets funded by Community Living British Columbia. Funding from 18 to 19 years old should be as inclusive as 19 years old and thereafter. Raise the amount allowed for the disabled from $900.00 per month. Have government contributions incentives for fundraising 50/50. Give excellent tax incentives to those contributing to “The Registered Disability Savings Plan,” and excellent tax incentives for individuals or families contributing to children in permanent Foster Care or charitable not-for-profit agencies. Why should RRSP be given the most tax incentive over other registered charitable issues? People or corporations who may contribute to such a wonderful human issue should be praised. They could choose to contribute to themselves instead.Lastly, provide families with full funding for the opportunity to stay together and not split up families and rely on Foster Home. As the present system sits families do not receive the funding that a Foster Home would receive.3. What would make it easier for people with disabilities to work or contribute to the community? What needs to be in place?Answer: 1. Technology…my individual needs to be given the means of communication. Ie “Emotiv”Funding and training (with SLP or equivalent) of such a device will greatly increase the livelihood of this individual and have less choices made for him. Disabled individuals are here to give us a message. 4. What would B.C. look like as the most progressive place in Canada for people and families living with disabilities?Answer: 1. We as a family moved here for a program called the “Vela Micro Board,” only available in B.C. We also moved here for the exceptional weather giving him less mobility issues.B.C. was touted from the eastern Canada as having better programs for children than adult’s with disabilities.It would be wonderful if B.C. could be a model for the rest of the provinces and give the meek and most unfortunate a reason to smile. Would it not be wonderful if we could all smile together?Facts & StatsFamily and friend caregivers provide more than 80 per cent of care needed by individuals with ‘long-term conditions’ – estimated at $5 billion in unpaid labour annually to the health care system.Fast, J., Niehaus, L., Eales, J., & Keating, N. 2002a, A profile of Canadian chronic care providersInnovation in Disability Services and More Accessibility for Persons Living with DisabilitiesPosted on November 8, 2013 Innovation is all about exploring a diverse range of new ways to support people with disabilities to live the life they choose, as well as looking at how we design and use existing programs and services.From youth programs, technology, independent living, policy, processes and practices, innovation can lead to greater community inclusion, increased freedoms, and greater choices for people living with disabilities.Here are a few questions for you to consider:? Why do you think it’s important that we reduce barriers and increase accessibility for people living with disabilities in B.C.?Answer:Disabled need more time to get ready, use more hours in transportation, and get more fatigued due to their ability. Keeping all new projects and renovations with disabilities in mind will greatly ease process.?What innovations would make it easier for people with disabilities to make contributions to the community? What needs to be in place?Answer:This is accomplished through more effective products, processes, services, technologies, or ideas that are readily available to markets, governments and society. Endorse universities to have high technology projects to help disabled with communication, mobility, function, and exercise. Make technology affordable for families. Personal Supports, Aids and DevicesPosted on November 13, 2013 Personal supports, aids and devices enable people with disabilities to carry out the activities of daily living and fully participate in the life of their community.Personal supports help to level the playing field for people with disabilities as they are the building blocks for improving access to income, employment and increased freedoms.Here are a few questions for you to consider:?What personal supports, aids or devices would make it easier for people with disabilities to make contributions to the community? What needs to be in place?Answer:1. Technology: my individual needs to be given the means of communication. Ie “Emotiv”Funding and training of such a device will greatly increase the livelihood of this individual and have less choices made for him. Disabled individuals are here to give us a message.2. Adult Special Education: services available for the disabled who are not going on to post-secondary education. My individual could use a personal education mentor and access to special equipment and resources. Fund these exceptionally disabled individuals.Work and ContributionPosted on November 13, 2013 Reducing barriers to employment and increasing community inclusion helps to ensure that people with disabilities have the opportunity to work and contribute as they are able.Fostering diverse workplaces that include employees with disabilities can improve the ability of B.C. businesses to compete in the global economy and can ensure people with disabilities have the opportunity to contribute to the economic growth of the province.Answer:1. Encourage programs to grow, become more developed, and train people to help the disabled succeed. If a disabled person can succeed albeit in a longer period of time is success still not a success? Housing and Accessibility in the Broader Built EnvironmentPosted on November 13, 2013 When we think about the “broader built environment” we are thinking about the world around us — our homes, communities, buildings, transit systems and anything that has been built up in our environment.Creating and improving accessibility in our homes, towns and cities enables people with disabilities to live life as they choose, live where they wish to live, and enjoy the same freedoms as their fellow citizens.Here are a few questions for you to consider:Answer:1. Accessibility is overcome by good choices; therefore those who chose to live in a certain geographic area may find it easier or more difficult to move about. I suggest larger urban centers always plan and execute accessibility issues to the letter. For businesses give a tax break or grant to make their establishment more accessible.Social Networks to Support People in CommunityPosted on November 13, 2013 Having a strong social network is important for every British Columbian.Social networks may include friends, family, co-workers, neighbours or more widely spread contacts within a community. A support network can be made up of people or organizations that you can turn to for help with favours, assistance during challenging times, or for just having fun.Here are a few questions for you to consider:?What would make it easier for people with disabilities to create social networks in your community? What needs to be in place?Answer:1. In my case my individual needs to be given the means of communication. Ie “Emotiv”Funding and training (SLP or equivalent) of such a device will greatly increase the livelihood of this individual and have less choices made for him. Disabled individuals are here to give us a message.2. Transportation funding3. A place to go to do activities either educate themselves, practice daily living functions, practice communication at workshop, exercise on specialized equipment, drop in gym, friendship center, swimming or “smart fit”, singing, bike riding, bible study, Tai Chi, Chair Yoga, fishing , art classes, socialize, and have fun.4. Open a database for volunteers to match up with the disabled for outings and more.Asset Accumulation through the Registered Disability Savings PlanPosted on November 13, 2013 Having the ability to accumulate assets can give people living with a disability and their families comfort, knowing that resources are available for necessary services and supports.The Registered Disability Savings Plan – known to many as the RDSP – is a federal, tax-deferred, long-term savings plan for people with disabilities who want to save for the future, as well as for families who want to help ensure the financial security of their loved ones with a disability.Here are a few questions for you to consider:?What would make it easier for people with disabilities to make contributions to an RDSP? What needs to be in place?Answer:1. Access to the plan less than 10 years and to be penalized is unfair. What if there is a need every year? Some disabled may not live to see the savings accumulate. Is the alternative for individuals to just invest in a savings account for their loved ones? If this is the case then such a contribution should carry fewer restrictions and give some merit with the government in tax incentives.Give excellent tax incentives alternatively to the governments contribution to those contributing to “The Registered Disability Savings Plan.” Have excellent tax incentives for individuals or families contributing to children in permanent Foster Care or charitable not-for-profit agencies. Why should RRSP be given the most tax incentive over other registered charitable issues? People or corporations who may contribute to such a wonderful human issue should be praised. They could choose to contribute to themselves instead.Dear Leadership Team:Thank you for this opportunity to express my view for the disabled. I hope my input can help not only my loved one but others.I met you last night at the disability consultation in [location removed]. Attached is my submission. As an aside, I would be very interested in taking part in future consult5ations of this kind. I would also be interested in working as some form of consultant on disability issues, including, but not limited to going around with people who inspect, approve, and rate tourism facilities, with an eye to accessibility issues in those facilities. Please inform the minister of this if possible. I did meet and talk with him during the evening. I very much enjoyed meeting you both. Submission to the white paper on disability issues with particular attention to EmploymentWhat follows is mainly my observations, thoughts and opinions gathered through my years in the laabor force. I have [information removed], which rersults in mobility dificulties. At nearly 64 years old, I am no longer a contender for a serious job, but nonetheless, I feel my experiences have developed some ideas and opinions for improvement.Unfortunately, employment problems that the disabled face are part of a much larger problem. A globally based economy has changed many realities, as has the massive changes we have seen as the result of technological advances. I nonetheless feel that many of our problems have their roots and solutions at the national level.Arguably we live in one of the best places and countries in the world. We enjoy freedoms, comforts and conveniences that many can only dream of. However, I strongly feel that we are doing a terrible job of looking after our own interests, particularly when it comes to a successful and secure future for our citizens. Few would argue against the idea that the country owes no one a living. That is something that must be worked for. Nonetheless, with that in mind, I feel that the country does owe it’s people is a good strong opportunity to obtain a good job and a secure future.With the above in mind, I feel it is absolutely criminal the way we have allowed jobs and industry out of this country. I am quite certain that our forefathers did not put the work they did into developing this country for future generations just to see it given away. The same sentiment will doubtless be shared by our veterans who fought so hard for the freedoms this country enjoys. Yes, labour is expensive here, and it should be so. We have worked very hard for our standard of living, and need to tenaciously hang on to it and fight for it. The argument is that we can’t compete with foreign labour. Of course we can’t if we don’t try! We truly need to work smarter.It can be argued that new technology has opened up opportunities for many disabled that never existed before. There is no dispute here, given the assistive devices that have been developed. Talking books and voice recognition being but two. Certainly life for many is much easier physically with available conveniences. Nonetheless, on the employment front, the above realities have left in their wake a huge gap in available opportunities. Not everyone is cut out to spend their working days sitting behind a screen, pushing a pen, or filling an administrative position, and just because a person faces a disability does not, and should not change that reality.Environment is also cited as a factor here, and it certainly has had a huge impact on our actions and policies. The media is full of baffle gab from all forms of special interest groups, all championing their own little concern. Action is often taken from there, largely based on popular opinion before it faces the test of anything scientifically proven.We then let our industry go elsewhere, when we are all on the same planet!My recommendations would be as follows:Although no reasonable person is going to argue against public safety, the role of Work Safe BC, needs a thorough examination. Here we have an institution with far too much power, and that power unreasonably limits the opportunities of those with disabilities.If changes were implemented in the above, our unions could then have more of a role in disabled employment. As it is, the hands of both unions and management are unreasonably tied, and opportunities for employment for the disabled that represent anything more than an existence, as opposed to a living are abysmil.Many european countries offer tax exemptions to companies who offer on the job training. This can be a powerful incentive to offer training provided it is set up properly.Municipalities could receive a lot more encouragement than they do to set up clean industries which provide good solid jobs. Of course public perception is often a problem here. NIMBY people worry about their own immediate surroundings rather than the future of their children.Environmental policy needs to be under much stronger reasonable scientific scrutinyEmployers in general need to be educated about the realities the disabled face. It surprises many to learn that significant disabilities in Canada account for an equal proportion of our population to that of seniors. How much larger does our group need to become before we are heard and our realities seen?Finally, in general, much more attention and effort needs to go toward dealing with our current economic realities. Canada has both the resources and the available manpower to become untouchable. I also believe we have the knowledge within the country to do so. What we lack is the political will.Yesterday evening I was in your company during the community consultations with citizens with disabilities. We met at the White Paper consultation convened at the [information removed]. I am an associate of [information removed], however, last night I participated as Citizen [information removed]who manages Daly life through the lens of blindness.As the six topics proposed to stimulate discussion on accessibility and barriers to participation and contribution were discussed, you and other Ministry officials circulated between the tables. I would like to re-visit the topic discussed with you regarding government’s authority and responsibility for being progressive in the management of the BC Building Code. The code challenges the opportunities to universally design inclusive Housing and Built Infra-structure.Quite literally, every day in British Columbia, the BC Building Code is applied as a basis for making land use, architectural and development decisions. These decisions result in social and business investment legacies with returns falling short, meeting or exceeding expectations as a function of the reliability of the data used to make the planning decisions. If it was the BC Building Code of the 1980’s, infrastructure design criteria was developed from a code that was the envy of the rest of Canada. However, the province has slipped concerning leadership in public policy with up-to-date amendments to the provincial building code. Consequently, the failure to make universally beneficial planning decisions (grand children to grandparents, disabled citizens, and the fastest growing sector, aging adults) is contributing to liability from deficiencies in safety in design and re-investment to get built environments designed correctly the second time. This re-investment is avoidable when information was available to design and construct correctly the first time!What to do next? The Canadian Standards Association is an excellent starting place that addresses consistency in design – CSAB 651 Access Code. Leadership in advancing at all opportunities the importance of sustaining articulation between government, design, development, and trade sectors to keep education and information current. i.e. Did you know the “child proof” residential electrical outlet cannot be used by a resident managing restricted or impaired upper body mobility? An opportunity for the Union of BC Municipality’s annual general meeting? Other?There is a rush to be 'Green' and a focus on LEED's priorities in the current planning and design culture. However, it is often overlooked that no project is really sustainable; no matter how green it is, if it does not first support aging-in-place solutions for all users. Sustainability has to be about more than just energy and conservation. True sustainability requires a built environment that sustains people.Social sustainability is fundamentally an outcome needing increased attention by our elected representatives if there is going to be inclusive outcomes and sustaining returns. Returns in public policy and planning for business investment. Furthermore, the social sustainability outcomes are dynamic, it is simply not something that is a one off, simply just done. Social sustainability is about relationships, inter-connectivity, and a continuum. The active and healthy 40 year old today, according to Health Canada tracking, by the age of 55 will be managing an impairment to health (hearing, vision, physical agility, memory, etc.) that will require adjustments to successfully participate and complete daily tasks. What health attributes each of us will acquire as one ages, time only knows. However, the impacts and adjustments required continuing with active and healthy living can be planned for today in terms of land use and planning decision. I.e. housing and amenities in public supported infrastructure through a current Building code and a sustaining dialogue to monitor outcomes. As the Ministers with the authority to exercise leadership in the areas of innovation, technology, citizen services, and the building code, your legacy can be realized through universally designed infra-structure, programs and services. Citizen centered economic participation creates the opportunities for healthy and active living and communities. As cited last night during informal discussions, the government knows there is work to do to be more progressive to successfully achieve universally beneficial outcomes in public policy creation and implementation – informed planning decisions that increases public participation and contribution results in savings on investment and adds to community health, all communities. To borrow from a disabled peer, “Nothing about us without us!” Despite best-laid intentions of my civil service, a percentage of BC Parks now feature “accessible picnic tables”. My understanding is the design criteria featured ergonomically accepted seat backs, arm rests, and cut outs for park guests using mobility aids. However, in the implementation of this universally beneficial park feature, the continuum the inter-connectivity, the relationships between park features was not considered. What was the position of these picnic tables to the parking lot, to the trails to access park features or amenities such as a washroom, to move to get in or out of the shade or sun? My civil servants took their direction from the BC Building Code!As important as pride is to the success in planning outcomes, so is humility. I/we represent the experience in community life. I/we are also the network to the resources and the agencies to draw/build from what is working and contributing to lives resulting in economic participation with positive results in active and healthy lives. Where the BC Building Code is involved, architects are not going to exercise the leadership for they take their orders from the developers. Neither are the developers because they are driven by the bottom line. Land use planning is fiercely economically driven and competitive. However, where the government role comes in is through the design permitting. When all participants standing to benefit from returns from development and re-development opportunities, one piece of paper is common to all - BC Building Code compliance. Social sustainability is a universal concept which is a foundation for positive economic returns for public and private sector investment. My business partner and I can add value to the outcomes you seek.If all public sectors and community partners were honest with each other in successfully achieving progressive leadership in the outcomes for citizens with a disability, the consensus would not surprisingly be, what is needed is more money coordinated through the application of these funds with the intended citizens that the money is intended to benefit. However, a rather large hint can be taken from the Ministry of Social Development and Social Innovation’s own web page introducing the White Paper consultation. Money is not going to be flowing from the results of this consultation. “It is important to recognize that B.C. is committed to balancing its budget and reducing debt for future generations. The White Paper and Summit must include an honest conversation on how this fiscal commitment can be met, while at the same time (working to) reduce barriers and improve accessibility. Discussion of how well existing resources are used and ways we can apply our shared resources will be a very important part of the conversation.”There is no disputing innovation to expand upon success and approaches for re-establishing community partnerships needs to be strategies the government has to have in the summit statement. Individuals, groups and organizations that are the fathers of the solutions addressing the government language of barriers and obstacles, must be in the on-going articulation. The conversation must agree that the program and service quality control measures are that data that tracks not the number of applicants served, but what the outcome was for the applicants. These elements will support the government in work to reduce costs in other areas. For instance, if a certain program increases an individual’s independence and reduces attendant care costs – this is a positive outcome for investment for both the citizen and the public purse.Programs that increase a person’s activity level and improve quality-of-life, result in benefits to overall health and thereby are savings to the public accounts. Improved health means fewer people with disabilities are visiting emergency rooms, doctors’ offices, occupying hospital beds and using fewer pharmaceuticals.British Columbia has an under-utilized resource — citizens with disabilities. British Columbia’s communities are enriched by the gifts of all citizens. Removing challenges for a disabled resident to make valued contributions is the responsibility of all elected officials from all levels of government.If the history of public and community engagement of citizens with disabilities is reviewed, sparked by these series of dialogues, there is a magnificent wealth of information. The data pertains to how the government could enhance meaningful participation and valued contribution by and for disabled citizens. The common thread in looking at the archive from these consultations has been the requirements for collaboration with all levels of government and the business/corporate world. However, when the transcripts are looked at, one cannot help but to note the repeating themes used for consultation are consistent with the current government White Paper on Disability. Is anybody listening? The 2014 BC government White Paper On Disability must be an engagement with community specialists in the topic of disability. Frank discussions are required to address disability concepts, public policy creation, and the implementation, tracking, and evaluation of programs and services if the government moves towards the goal of being “progressive”. Democracy supports fairness and equality. A community directed process for engaging citizens with disabilities, must be adopted as part of the White Paper legacy. Vision: What divides us? The absence of a process for public and community engagement in a sustained dialogue on the core quality of life elements for citizens with a disability. The goal? The same ideal sought by any citizen seeking active and healthy living, to access inclusive and meaningful participation and valued contributions as one is able. This outcome requires an on-going process to design, implement, and monitor the value in end user outcomes from publicly financed programs and services. An on-going process is required for the sharing of the mutual creativity, passion and practical experience and expertise on what accessible and inclusive engagement means for a disabled citizen. Citizens with a disability seek a Province of BC commitment for a platform and a process to capture, expand and carry forward the dialogue on developing and sustaining examples of what works and can be adapted to sustain disabled citizen contribution in BC’s social and economic opportunities. Over time, the process will change, reflecting the growth of shared expertise on inclusivity and accessibility. This is why the government commitment to an on-going community directed process is required to adapt what has been successfully learned for a return on social and capital investment. In 1986, the BC government announced the Provincial Strategy On Persons with a Disability. Consultation was directed from the knowledge and experience of agencies with disability expertise in adjustment to an impairment and vocational rehabilitation, disability advocates, and those disabled citizens recognized for their accomplishments in advancing societal and political attitudes supporting the optics of people first language. The government sought to use this data to strengthen public policies that shaped programs and services intended to increase the quality of lives of citizens living with a disability.The strategy resulted in the creation of the Premier’s Office on Disability Issues (ODI). The vision set out by the Premier was BC was to be established as the most progressive province in Canada for a disabled citizen to live in because of the personal supports and opportunities for independence and citizen/client centered social and economic participation.The ODI was tasked with completing additional cross disability research to complete a strategy for the government and community partners to successfully affect change benefiting the lives of disabled citizens. A report was completed with recommendations directing the government with the methodology in how to effectively take action through public policy in achieving the vision set out by the Premier. That was 1986 and in the minds and hopes of disabled British Columbians, an opportunity for a legacy for the long over due dialogue on quality of life issues was started.The Man In Motion world tour completed by Rick Hansen, in 1992 saw the staging of Independence ’92. This international congress on disability resulted in the single largest gathering ever of experts in the concept of disability, politicians, and disabled guests from all corners of the globe.The congress provided the circumstances for delegates to share and learn in how to create opportunities at the local level for disabled citizens to be more independently engaged in meaningful lives with valued participation and contributions. Analysis developed included health and social, technical and scientific, innovation and personal supports, cultural and social, and spiritual and economic and political perspectives. This event it is suggested, galvanized in the minds of disabled citizens that there was cause for hope. This event it is also suggested, placed the concept higher on the radar of international advocacy bodies such as the United Nation and the subsequent Convention On The Rights Of People With Disabilities. For the governments of BC, twenty plus years have lapsed since the creation of the ODI and the Provincial Strategy On People with Disabilities and Independence ’92. To the Ministers responsible for the White Paper, you may not have been at these and other tables about how to enhance opportunities for my economic participation and healthy and active community engagement, but I have! Is anybody listening? Building on the work of the ODI, Independence ’92 was in the minds and hopes of disabled British Columbians, an opportunity for a legacy for the long over due dialogue on the persistent quality of life issues to be re-visited.Fundamentally, how and what is measured in public programs and services from the perspective of the value to the end users, must be central to the white paper consultation. The Integrated Case Management System (ICMS) I am told, is here to stay, the same words used to talk about Work BC and the programs and services it is alleged to be providing applicants of “special populations”. A question for the Minister responsible for the White Paper consultations, does ICMS analysis illicit end user examples of what is working from a client centered and disability specific lens?Additionally, publicly sponsored programs and services that are created to add value to the lives of disabled citizens, must be the focus of the work from this consultation.… Education, … Vocational, … Employment, … Health, … Leisure and recreation, … Housing and transportation, … Community engagement, … Innovation and technology are opportunities and solutions as tools, … Personal supports… Individualized Funding (CSIL), raising income Assistance Rates, income distribution and systemic issues created by inflexible eligibility requirements in disability pensions, insurance benefits, wage subsidies and income caps. The current mood is the optics of this consultation is analysis on only what is not working and generic to the concept of disability, not solution based, client centered and cross disability. Government programs and services are absent of client centered, disability specific services. To be successful, the service Must Be Flexible. . The most common example cited explaining this current reality is the Work BC program designed to respond to “special populations”. The Starting point for the white paper consultation needs to collect what is working in terms of the end users and make associations with the Competencies in the skills and tools contained in the network of community resources. Confidence is low in the community in that the government’s learning outcomes and direction to take are not going to be embracing the solutions sought through collaboration with external expertise. The knowledge and experience in what works to respond to the challenges and develop the opportunities for social and economic engagement is contained in the lives of those living the experience of a disability. When the City of Vancouver and the Resort Municipality of Whistler were awarded the 2010 Winter Olympic and Paralympic Games, a provincial consultation was completed with citizens with disabilities. The consultation was inspired and subsequently directed from the opportunities created by the two winter games bid values of inclusivity and sustainability. Elected officials and community leaders were galvanized to plan and work together on what the 2010 Winter Games could mean for those citizens that defined the lived experience of accessibility, inclusivity, and sustainability.The Accessible/Inclusive Cities and Communities concept was conceived. The tool grew out of a commitment by the Rick Hansen Foundation, the City of Vancouver, and a broad gathering of disability groups, including the City’s Advisory Committee on Disability Issues. Councilors Sam Sullivan and Tim Louis helped guide the concept through Vancouver City Council. Endorsements continued and the tool was brought forward to the Union of B.C Municipalities.Work was expanded to take the foundation document in the form of a tool and expanding the learning concepts into a practical instructional and motivational tool that communities could use to act on and measure progress towards addressing challenges and enhancing opportunities for people with disabilities— Affordable/accessible housing and transportation, Training and employment, and other services and quality of life issues. By spring 2005 the concept and tool, had become a reality. The completion of this work was timed to be complete for the World Urban Forum in June 2006 in Vancouver. The Accessible and Inclusive Cities and Communities Guide and Tool received provincial, national and international exposure and endorsements. Certainly evident was the resounding support for the document and process that identified the circumstances for those leaders in communities who otherwise did not perceive a function or contribution in advancing work on the social values of accessibility, inclusivity and sustainability. When the dialogues were generated, unlike partners came away embracing how social values was in fact the basis for business agendas. I.e. Health Canada and Census Canada report that two in five Canadians will be over 55 years of age by 2017. This impacts planning for the capturing, retaining, and potentially increasing of a market share in the products and services aging adults want to participate in when ascribing to healthy and active living – the same goals are consistent for a person managing a disability.The guide and tool were significantly underway for future world-class events such as the 2010 Winter Games that BC expected to host. The instruction and motivation tool was formally transferred to 2010 Legacies Now under the name of, "Measuring Up". The tool has made a lasting impact in all communities across the province.Framework To Engage and Sustain the Dialogue:Support ServicesPersonal SupportsFully Accessible and Inclusive Built EnvironmentsTransportationHousing ChoiceSafetyEmergency PreparednessEducationAccess to InformationUniversal Signage and Way-findingPlain LanguageMultiple FormatsMis-perceptions and Mis-conceptions check assumptions, just ask Economic ParticipationEmploymentSkills DevelopmentBusiness DevelopmentMarketing Products and ServicesReliable labour market information, counseling competencies to analyze labour market trends, forecasts, and supporting vocational and employment placement decisionsCommunity ContributionSocial ContributionCultural ContributionRecreation/Sport ContributionEnvironmental Contribution GlossaryThe following definitions are given to terms as they are used in professional references and in conversation on the street. These definitions may be different than those applied in legislation or other sources. Accessible – free of barriers, open to all.Adaptable housing – homes designed to adapt to the needs of inhabitants through all the stages of life. Such homes can easily be modified to accommodate people with a range of needs.Built environment – all buildings, roads, walls, plazas and other spaces or structures created by people.Dialogue – a process of consultation involving people with disabilities.Inclusive – welcoming and enabling participation from everyone.Inclusive skills training – training that is normally available to all members of the public and teaches a marketable skill.Personal education plan – a plan based on competent professional evaluation of a student to guide the learning program for that student and identify any supports that are needed.Individualized funding – funding that is directed by the person who needs it to acquire the products or services that meet their individual needs.Multiple formats – providing information in a variety of communication forms (large print, Braille, American sign language) to make it accessible to people with diverse needs.Personal supports – any supports needed by an individual. Includes the services of attendants or caregivers, equipment such as wheelchairs and assistive devices such as lifts.Plain language – an approach to designing and creating communications that are understandable by the people who will use them.Regionally significant languages – languages that are the first language for a large proportion of people living in a particular area.Universal design – an approach to designing anything (e.g. buildings, products, web sites) that ensures it is useful for anyone.Building on the work of the ODI, Independence ’92 and the most progressive work to date in the research and acceptance of the Measuring Up Tool, was in the minds and hopes of disabled British Columbians, an opportunity for a legacy for the long over due dialogue on the persistent quality of life issues to be re-visited. And put into an action plan. To the Minister responsible for the White Paper On Disability, adopt a community designed process to sustain a dialogue on the democratic participation of disabled citizens in formulating public policy that addresses quality of life.Terrace has a growing population of seniors' and more and more people will have some sort of disability. It does not matter what age you are, anybody can sustain a disability. So it is very important that the City of Terrace & businesses get rid of the barriers and make the city accessible for all so that everyone is included in society. This will improve the quality of life for people with disabilities. That way people with disabilities can participate in shopping, recreation, eating out, have accessible parking, and so on.I have enclosed an article I wrote up on Accessibility last April 2013 that was in the Terrace Standard newspaper. Reading that article will explain the concerns about the barriers Terrace has. I would like to see the City of Terrace enforce and fine people breaking the by-laws.It is very important that people with breathing or lung problems have fresh and clean, air. This is true for everyone. I would like to see Terrace have home owners with fireplace, woodstoves only burn approved wood. As is, people are burning stuff that stinks, and irritates the lungs and breathing problems. I would like to see a by-law and even better yet a Provincial law mandatory that all old and new fireplaces and wood stoves burn only approved wood so it does not stink and cause breathing problems. If people break the law/by-law, fine them.Barriers that need to be removed in Terrace are:(1) NEED ACCESSIBILE ON-STREET PARKING BY MEDICAL BUILDING ON PARK AVEThis issue has been brought up to City Council and they have said no. Some people with a van that has a side ramp for a wheelchair to exit and enter needs the accessible on-street parking. This way the person with the disability is included in the community with a parking space. The space should be painted blue with the wheelchair sign and at the same time a standing up right sign saying that is a disabled parking spot, so that people will see it and during the winter months with the snow, people can still see it is a disabled parking spot. This would have to be enforced. I would like to see it mandatory that all BC communities have some on-street accessible parking for those who need it.Accessible parking spots in private businesses, medical buildings, etc. should be wider than the current BC Building Code. As the code stands right now, the width and length of the parking space needs to be increased so that people can easily go in to the parking space, lower the side ramp and get in and out with no hassles. More accessible parking spots need to be added to private business.(2) ENFORCE NO PARKING AT BUS STOPS/SHELTERS WHERE THE YELLOW CURB IS IN DOWNTOWI\I TERRACEHave upright signage showing that this is a bus zone and there is no parking.(3) MANDATORY THAT ALL BUSTNESS & SERVICES NEW AND OLD HAVE WORKING DOOR OPENERSDoors are too heavy. Having door openers makes life easy for people with a disability to enter and exit.(4) POLLING AND ELECTTON STATIONS MUST BE ACCESSTBLE WITH WORKING DOOR OPENERSSee enclosed letter to the Editor to Terrace Standard titled "Accessible? Not at all" To be accessible and inclusive the door opener must be working, just having the door opener available and it isn't working, this is not accessible.(5) Both public and private washrooms must have wide doors for wheelchairs to enter and exitThe toilet door must open outwards not inwards. This should be made mandatory(6) No music in storesVery distracting and uncomfortable. Unpleasant shopping experience. Too loud, can't hear someone talking. I would like the BC Government make it mandatory no music in stores.(7) BETTER SNOW REMOVAL ON DOWNTOWN STDEWALKS AND AT BUS STOPS & SHELTERSPeople who have mobility issues need safe and clean sidewalks with removal of snow and ice.(8) BC ID CARD FOR PEOPLE WITH PERMANENT DISABILITIESIt is very important that the BC Government make available for those who need an ID Card for whatever reason regarding to their disability. When Premier Christy Clark was in Terrace July 2011 I presented info about the idea of the card. I have enclosed that info letter I wrote. I was told the BC Government will get back to me. To this day, now 2014, I have not heard from her or anyone else. This is a very serious issue. Having the card would help break down barriers that myself and others encounter therefore we will be inclusive.Please find enclosed info on the card.Since the BC Government is having a new BC Services Card, the BC ID Card for people with permanent disabilities can be included with the Services Card by providing info on the back of the Service Card. This would be perfect as it will combine with the Health Services Card. I recommend the BC Government add the ID Card for people with permanent disabilities to the Service Card. The card would improve the quality of life for us, people with permanent disabilities, and break down barriers and help out with the question on Accessibility. The card is voluntary.Please act on my recommendations and the above issues that I have written about please make them Mandatory. Thanks.To sum it up: To be truly accessible and inclusive many issues need to be mandatory and laws and bylaws need to be enforced. Accessibility Issues is (sic) different from summer and winter, therefore the bylaws and laws need to be kept up with enforcement all year round.Thank-you again for doing the Disability White Paper and please act on my info I have provided. It would improve my quality of life and for others.Housing:Shelter amount of $375 – not enoughWhy are there no subsidy programs for persons like myself where all of the following criteria are met?- Cannot work to subsidize income- Under 55- No children, so no family subsidies- No disability or subsidized housing available in the area where we liveWhy can I/we not have our rent subsidized where we currently live?I have lived in my apartment since [date removed] which is 12 years before I was designated “Permanently Disabled” in [date removed]. The building is clean and well maintained with responsible management, has an elevator and I have a support system in place. The only thing that I do not have is in-suite laundry which is an added expense.Moving is something that I could not physically do myself and unpacking will also be a challenge. Then there would be the issues of finding people to depend on if I had problems.Cost of Living:My income is 1,016.42 per monthly (sic) which consists of the basic PWD of $906.42 plus $10 for salt reduced foods due to high blood pressure and $100 Volunteer Subsidy.My rent is currently $688 but will go up to $700 on April 1, 2014 which is almost three quarters of my income. I pay $71 per month for BC Hydro on their Equal Payment Plan and always end up with an amount due on the anniversary date in April each year. I am slowly working on a Bachelor’s Degree through [information removed] and am funded by federal and provincial disability grants once yearly to pay for books, tuition and other costs. I do have outstanding Student Loans that are currently in Interest Relief status because I am still in school and have a low income. Because of this I qualify for a Student Bundle with Shaw for telephone, internet and television = $80 per month approx. My neck is very “fragile” in the words of my specialists and I am not allowed to use public transport like buses or Handydart (sic) as they have no neck support and each stop and start is like a mini whiplash. I have to be very careful as I am in danger of becoming a quadriplegic because of any sudden injury to my neck as I already have two discs that have been replaced by plastic ones. Due to this I do receive the Vehicle Subsidy from the Ministry each April and have to use a portion of it to pay the hydro anniversary payment. My car is now 21 years old and while the mileage is low it still needs services and repairs and fuel. As I need a car I also need to pay care insurance and fuel costs. I also end up using the funds for groceries and things like laundry soap and money for the machines. I have had to use a MasterCard so have that payment each month as well. It has been at its limit for almost 6 years and as quick as I make a payment and the balance goes down, I end up having to use it again and it goes up again.If I am lucky I have enough funds each month for some groceries but fresh fruit and vegetables are definitely luxuries. Many months I have had to use the Food Bank and Salvation Army for food although the Food Bank is now too difficult as I cannot stand in line for the length of time needed to get the early enough to get any produce, which is often bruised and outdated.My bills and commitments are almost more than my income now and with inflation it will only get worse. If something breaks and needs to be replaced I can’t do that. If I need new underwear I can’t afford that either. I haven’t been able to get over to see my sister on the mainland since 2007. My brother passed away last July and I had not seen him since 2005 when my dad passed and he came down for the service. He had been very ill with cancer and could not travel. Worst of all I could not even afford to go to his service. I am going into debt just trying to survive and as I cannot find a job it makes the future very bleak.Health Costs and Supports:It is great that Medical Premiums and most prescriptions are covered but problems happen when my doctor wants to prescribe what is the best and most effective medication and it is not covered by Pharmacare because I cannot afford to pay for it and there is no help through Ministry funds either. He then has to prescribe something that often does not work or I just do without.I have also had issues when I have found out that I needed a colon surgery and needed “non-prescripion” pharmacy items to prepare for the surgery and for immediate care right after. I went to the Ministry office in early September to let them know about my needs for a surgery date of [date removed]. My request was sent to “Health Branch” and I waited and waited. When I still have no reply by early December, and I had checked several times, I went to a local church group who was able to help me even though they were low on funds at the time. I was in the local Ministry office the following March when a worker said to me “Mary, your request for those items was approved.” That would have been great over three months before. Something needs to be done to expedite requests especially when things are needed for a specific date like a surgery.I also suffer from conditions that require me to take several supplements and vitamins for my bones and nerves which of course are not covered and I cannot afford to purchase. Of most concern to me is a condition that I have with my eyes called “[information removed]” that I need Omega or Flax Oil for and eye drops. The eye drops alone are almost $12 per month. None of these expenses are covered and I understands that everything cannot be, but if rent was lower I would have more funds for necessary things like this.Eye exams: a portion of the cost only is covered now and for most of us on PWD it means trying to come up with an additional $80 or so. Where we are to get the funds I don’t know. I also require progressive lenses with three vision strengths, and because my eyes are very reactive to light causing migraines, I also need Transition Lenses to shade for sunlight and light. The cost of these are not covered meaning that added to the additional cost of the eye exam, I need at least $300 when I need to get my eyes checked and glasses too. When you cannot even afford to put away $5 a month where can I come up with this amount? I have had headaches for ever a year which my doctor believes could be at least partially caused by the need for new glasses, and I have not been able to afford an eye exam for over four years.Orthotics and Footwear: due to my spinal condition which affect my legs and feet I need orthotics and shoes that fit them. The cost of orthotics is completely covered which is great. The cost of the shoes used to be covered as well but that was changed and now is only covered up to $125. I have searched for shoes to fit the orthotics and the cheapest I could find at the time was $175. That meant that I needed to come up with the additional $50. I could not and ended up going to the [information removed] for help. Luckily for me they did pay for the difference but I cannot go to them each time I need new shoes. However, when I need another pair this vendor’s prices have increased to $190. That now means that for a lot of us we will have orthotics but no shoes to put them in because we won’t be able to afford to pay the balance.Another thing that has happened is the decrease in massage/physiotherapy visits from 12 to 10 per year. For most of us with disabilities even 12 is not enough. These non-invasive treatments are extremely helpful for pain and mobility and at only 10 per year we don’t even have one per month. If we have a flare up, we sometimes need a couple of visits in a week or to go once a week for a month. Having the ability to access more visits in a year would greatly help a lot of PWD clients. If we could afford to pay the cost of $40 per half hour (average) we could have more visits. Unfortunately that is often my monthly food budget.Swimming would be great therapy but most of us cannot afford even the cheaper passes at local pools and aquatic centers. If the ministry could arrange for PWD clients to get FREE passes with pools and yes even recreational centers for exercising in their communities it would go a long way to helping us stay more active and hopefully improve our physical, mental and emotional health. I firmly believe that in so doing a lot of us would get more active and be able to rejoin the work force because we would feel better.Work:Due to my health issues I have been unable to find a job and I would really love to find one and feel useful. My doctor has said that I can answer phones but most jobs require physical effort to some degree which I can no longer do. Most of my previous work experience is in retail management.I think that it is wonderful that PWD clients can now earn $800 instead of $500 before monies are deducted from their ministry cheques , however for those who cannot work it may as well be a million because it does not help us.I did try to find work with the help of Triumph when they had the ministry contract and found them very helpful. They helped with resumes and copies of it and said they could help with clothing for work and even fuel to get me around to appointments with them and job interviews. I had just stared to work with their job developer who actually went out into the community and talked to employers and did her best to match clients to jobs. When they lost the contract they were all out of work and one of them was disabled as well.VIVRS or Vancouver Island Vocational Rehabilitation Services is not, in my opinion, as good for clients as Triumph. They kept have me (sic) come in to tweak my resume which did not really need it but had no funds to make copies (?) and did not care that I was using fuel I needed to get to medical appointments to come in for things we could have done over the phone. Their job developer told me that she “could not actually help me find a job but would be there to support me.” What good is that? I needed more. They are nice people but I believe that it was a mistake to award the contract to VIVRS then Triumph was more helpful and did more to get clients jobs.Assets:The increase of assets from $5000 from $3000 is also good news but for most PWD clients we were never able to reach the lower amount anyway. Personally I don’t ever even reach $30 in savings. My cheque is direct deposit and after paying bills and buying groceries I have nothing left to save. Any savings I had before going on ministry help were used up before I applied and I cannot put anything away as it needs to be spent each month just to survive. I would love to put away a little each month so that I could have a buffer for emergencies but it almost seems like I go from one financial emergency to anotherI found out about RDSP in late 1999 2000 and that it had to be applied for by the end of the year in which the person turned 49. For me that was that year. Due to a long wait to get approval for the Federal Tax Credit I was almost out of luck, as I was told on December 14 that it would be at least another 4 to 6 months for it to come through. I contacted John Duncan’s office the same day and on December 16, two days later I got approval. I opened the account with $25 which was all I could scrape together at the time. I did receive the grant and bonds for that year but here is nothing available after the account holder turns 50 which of course I did on March 11, 2000. Needless to say my account is not growing because I can no longer make any deposits and I am not eligible for any government contributions. I did contact John Duncan’s office again to protest the age 50 cut-off and was asked to submit an email which I was told would be taken to the federal government along with others. The sad reality is that it will probably be unable to add to the account and it will sit at around $1300 where it is now. That is not a lot to have when I need it later on.Individuals with disabilities who are not in the labour force are faced with the misperception that they are either unable or unwilling to work. Failure to recognize and address these myths and negative stereotypes results in discrimination and the exclusion of individuals with disabilities from the workplace despite their willingness and ability to actively participate in the labour force.Myth: Employees with disabilities have a higher absentee rate than employees without disabilities.Fact: Studies by firms such as DuPont show that employees with disabilities are not absent any more than employees without disabilities. ln fact, these studies show that on the average, individuals with disabilities have better attendance rates than their non-disabled counterparts.Myth: Individuals with disabilities should be placed in jobs where they will not fail.Fact: Everyone has the right to fail as well as to succeed. Be careful not to hold someone back from a position or a promotion because you think that there is a possibility that he or she might fail in the position. lf this person is the best-qualified candidate, give them the same opportunity to try that you would give anyone else.Myth: lndividuals with disabilities are not reliable.Fact: lndividuals with disabilities tend to remain on the job and to maintain better levels of attendance. A US Chamber of Commerce study revealed that workers with disabilities had an 80% lower turnover rate.Myth: Someone will always have to help them.Fact: This is not the case with proper training. lndividuals with disabilities have adjusted to their disability in most cases. lt does not affect their ability to work unaided.Myth: Persons who are deaf make ideal employees for noisy work environments.Fact: Loud noises of a certain vibratory nature can cause further harm to the auditory system. Persons who are deaf should be hired for all jobs that they have the skills and talents to perform. No person with a disability should be prejudged regarding employment opportunities.Myth: Considerable expense is necessary to accommodate workers with disabilities.Fact: ln reality and with proper planning and knowledge, most job accommodations are simple and inexpensive. According to the Job Accommodation Network Canada, 80% of accommodations cost less than $500. ln addition, the 1991 Health and Activity Limitations Survey (HALS) found that fewer than 30,000, or 4% of the 890,000 working Canadians with disabilities required accessible washrooms, ramps or other building modifications. There are government programs which can defer some or all of the cost of the accommodation.Most frequently reported accommodations were changes in job duties and modified hours of work. Accommodations mostly have more to do with creativity, flexibility and sound management practices than expensive structural modifications or specialized technology. Accommodations like ramps, automatic door openers, widened doorways, and wheelchair accessible washrooms make the employer’s workplace more accessible to other potential employees with disabilities. Clients and customers like parents with baby strollers and people making deliveries also enjoy the comforts of a less cumbersome environment. lt is therefore misleading to consider the cost of these changes as the cost of accommodating just one employee.Myth: I can't fire or discipline an employee with a disability.Fact: While there are laws in place, such as the Human Rights Act and the Charter of Rights and Freedoms that serve to protect the rights of individuals with disabilities by providing equal access in the areas of employment, transportation, public accommodations, public services, and telecommunications, there are no special procedures for firing or disciplining employees with disabilities.Establish clear performance expectations from the start. lf a performance problem does occur, follow your company's usual guidelines: discuss the problem with the worker, look for solutions, document the situation and, if necessary, terminate the employment agreement.Myth: An employer's worker's compensation rates rise when they hire individuals with disabilities.Fact: lnsurance rates are based solely on the relative hazards of the operation and the organization's accident experience, not on whether workers have disabilities. A study conducted by the U.S. Chamber of Commerce and the National Association of Manufacturers showed that 90% of the 279 companies surveyed reported no effect on insurance costs as a result of hiring workers with disabilities.Myth: lndividuals with disabilities are more likely to have accidents.Fact: Two studies, one conducted by the Bureau of Labor Statistics during the 1940's and a current study recently completed by the DuPont Company support the findings that workers with disabilities performed significantly higher than their counterparts without disabilities in the area of safety. These studies included people in professional, technical, managerial, operational, labor, clerical, and service areas. lt evaluated individuals with orthopedic, vision, heart, health, and hearing disabilities. Conclusion: Workers with disabilities are often more aware, not less, of safety issues in the workplace.Myth: workers with a disability are a bad influence on other workers.Fact: More often than not, the worker with a disability brings additional diversity into the workplace. For example: Someone who uses a wheelchair may point out ways to make physical access better for all by uncluttering walkways and offices. Someone who has a learning disability may develop a filing system based on colors in addition to words that increases efficiency and ease of use.Myth: lndividuals with disabilities are not able to contribute to society.Fact: More than anything, individuals with disabilities are restricted not by their abilities, but by society. As an employer, do not let a person's disability get in the way of an opportunity for him or her to demonstrate talents. Misconceptions that insurance costs/ rates will go up, and that they have a high rate of absenteeism and low productivity levels should be overcome and an equal opportunity afforded to individuals with disabilities.Myth: lndividuals with disabilities are more sensitive than other people, more courageous, kinder, more creative, more admirable or more conscientious.Fact: lndividuals with disabilities do not possess any special characteristics, they are just like other person you employ.Myth: lt's almost impossible to interview individuals with disabilities because it's so easy to break human rights laws.Fact: lnterviewing is easy. The key is to focus on abilities rather than disabilities. Ask the same job-related questions that you ask other applicants. And once you've hired someone with a disability, there's a good chance they'll stay. Pizza Hut Corporation finds that workers with disabilities are five times more likely to stay than people without disabilities.Myth: lndividuals with disabilities don't have the education I need.Fact: Over half of individuals with disabilities have high school diplomas and over a third have post-secondary diplomas. Human Resources and Skills Development Canada reports that, overall, combining university, college and trades, Canadian adults with disabilities are about two thirds as likely to have a post-secondary education as adults without disabilities.Myth: lt doesn't matter to my customers if I address the disability issue or not.Fact: Canadians with disabilities have access to a combined annual disposable income of $25 billion annually, making this a spending group with significant clout.Myth: Individuals with disabilities are more prone to additional injuries.Fact: Workers with disabilities have average or better safety records on and off the job. The US Department of Labor, through four national studies, has found that individuals with disabilities experience fewer disabling injuries than the average employee exposed to the same hazards.Myth: lndividuals with disabilities are unable to meet performance standards, thus making them a bad employment risk.Fact: ln 1990, DuPont conducted a survey of 811 employees with disabilities and found 90% rated average or better in job performance compared to 95% for employees without disabilities. A similar 1981 DuPont study which involved 2,745 employees with disabilities found that 92% of employees with disabilities rated average or better in job performance compared to 90% of employees without disabilities. The 1981 study results were comparable to DuPont's 1973 job performance study.Myth: lndividuals with disabilities are not as productive or don't work as hard as employees without disabilities.Fact: A 1987 Louis Harris and Associates survey of 920 American employers revealed that employees with disabilities have about the same (57%) or better (20%) productivity levels than employees without disabilities. 90% were rated as average or above average in performance of job duties. 79% of the managers also responded that their disabled employees work 33% as hard or harder than 46% of their employees without a disability.Myth: Employees with a disability are more difficult to supervise than employees without a disabilityFact: The Harris study also revealed that 82% of managers found employees with disabilities no more difficult to supervise than employees without disabilities. Employees with disabilities should be held accountable to the same job standards as any other employee. Managers should be confident that their supervisory skills will work equally well with employees with disabilities.Lack of Advocacy/Support Services For PWD. There is a similar theme to many of these calls:? I’m applying for PWD. I don’t know how to fill out the application. Who can I call to get someone to help me?? I am applying for Canada Pension Plan Disability. Who do I call to help me complete the application; I don’t understand it?? I’ve been declined by Canada Pension Plan Disability or PWD. Who do I call/help me to appeal?? I’m moving and there is no one to help me move; my partner and I have disabilities or I’m in a wheelchair.Significant Barrier for PWD Accessing The Registered Disability Savings Plan for People with DisabilitiesThe Federal Government has an excellent program for people with disabilities. In short, people who have a disability can receive $1000 a year for up to 20 years if they are deemed to have a disability. It is also retroactive so a person would have $5000 put in their plan upon approval. However the approval process is extremely difficult.Presently British Columbia has a rigorous review process when granting the designation of people with disabilities (PWD) (self-assessment; third party assessment and doctor assessment). In order for persons to receive the RDSP they must re-apply to the Federal Government for a Disability Tax Credit. This entails going to the doctor again and having a different application filled out requesting basically the same information. However if something is missed on the form, etc. the designation is turned down even though they have the provincial PWD designation. It also takes months to receive any feedback on the status of the application.Often doctors charge $20 to $50 to complete the DTC form. This is money PWD don’t readily have. Many PWD are dependent on caregivers to take them to the doctor and assist them in applying.Cathy McLeod and Terry Lake need to work together to simplify the process. The Federal Government needs to accept British Columbia’s PWD designation whose application process is more rigorous then (sic) the Federal Governments (sic). This would allow those who have the PWD designation to apply directly for a RDSP.People In Motion as a community service is giving monthly information sessions on RDSP for PWD and their families/caregivers and helping with the difficult application process. We have partnered with [name removed] (Financial Advisor with Edward Jones Investment). This is done on a no charge, volunteer basis.Lack of Low Income Housing & Support Regarding SameCall (sic) are received by our office from PWD being evicted from their residences for various reasons. Usually we refer them to other non-profits who deal more directly in this area. There are obvious mental health or behavior issues related to same; however, there aren’t enough advocates to assist them.Guide Dog Legislation1. I have owned two service dogs over many years that I paid for privately and had certified by the Office of the Solicitor General. They have been in support of my disabilities.My observation over the past few years is that people are buying pseudo-guide dog jackets off the internet, putting them on their dogs and pretending their dogs are working Service Guide dogs in order to enable them to take their dogs into shops, taxis, and onto Buses. Most businesses don’t even know what a genuine Certificate looks like or a genuine Service Dog Jacket.This has at times caused me problems, as restaurant owners and taxis have at times resisted granting me entrance, saying they have had difficulty with "aggressive" dogs. Well -trained Guide dogs would not manifest these traits. If there was an adequate education program regarding the nature and purpose of Service Guide Dogs, as well as a registration numbering system or the Certificates, the validity of the certificate could be verified. There has to be a way to produce a real Service Dog Certificate or Jacket that can't be duplicated easily but can be verified readily.I have been told that there would be up to a $5,000 fine for Guide/Service Dog "impersonation" under the new Act. How is it going to be enforced, and by whom?2. I understand that responsibility for the policies and certification of Service Guide dogs has moved from the Office of the Solicitor General to your Ministry. I also understand the legislation is under review, and a new Act in process, but no timetable has been established.This is posing difficulties for me, as I now have an aging Service Dog and am wishing to have my Trainer assist me to find a new dog and undertake its training over the next few years. The Office of the Solicitor General said a trainer now needs to be a member of some organization if one wants to get ones dogs certified (the woman who trained my last two dogs trained for the Lions Club before she went private). This seems unfair. How can we virtually allow and condone people to use untrained dogs under the guise of a Service Dog but make it more difficult for people who are following the rules to obtain certification for their trained animal?My objection to having to obtain a trained and hence certified dog under the aegis and control of an organization is that in most instances the dog does not belong to the individual being served and hence there is little control of all the things of important (sic) between and individual and his/her dog: diet, health care, lifestyle, etc.I would think your priority should be to get rid of the uncertified dogs and find a way to help the owners of trained and certifiable dogs gain the respect and recognition for their precious, beautifully trained dogs that they deserve.White Paper Consultation NotesInnovation? Support high quality vision rehabilitation services? Universal coverage of quality, essential services in a timely manner? Rehabilitation services for those with vision loss enables confidence and independence and increase likelihood of employment? Support accessible library services? Nearly 10% of British Columbians have a print disability? Only around 7% of printed materials are available in an accessible format? People with vision loss are currently not afforded the same opportunities as sighed British Columbians, and receive most of their access to books and materials through a charity – in comparison signed British Columbians have full access to publicly funded libraries?Personal Supports? Create a sustainable and comprehensive assistive devices program? People with disabilities rely on assistive technology to accomplish many of the tasks of daily living? The relatively small market for assistive devices means that such products are often quite expensive and not affordable to PWD? The EATI is set to expire March 31st? EATI is an excellent program but it is limited to those who are looking for work? Those who wish to volunteer and contribute in ways other than through employment cannot access the assistive technology they need to do this? Many employed PWDs cannot afford the assistive technologies that could enhance their independence and increase their community participation? There are programs in other provinces such as the Assistive Devices Program in Ontario that the government could look to as a model? The government should renew and expand EATI so that it meets the assistive technology needs of all British Columbians with disabilities Work and Contribution? Support appropriate specialized employment service? Approximately 65% of people with vision loss are unemployed? The high unemployment rate costs the government millions in lost taxation revenue? The current employment services aimed at assisting the general population do not understand, address or consider the unique needs of people with vision loss? For some individuals, more a focus on pre-employment skills is needed? The government should invest in specialized employment programs that are tailored to assist people with disabilities, including people with vision loss?Housing? Enact strong, effective and enforceable provincial disability legislation ? The way the environment is designed has a tremendous impact on a person’s mobility? People with vision loss rely on items such as accessible pedestrian signals, tactile strips, braille signage, and sufficient lighting in order to travel more comfortably, safely and independently? Despite the impact of the built environment on accessibility, new developments are being created that are not designed with pedestrians in mind? BC needs provincial disability legislation to set clear standards for making all aspects of the built environment accessible to people with disabilities? Such legislation exists in Ontario and Manitoba? The government should commit to enacting effective and enforceable disability legalisation? Housing should be usable and visit-able by all people ages and abilities? There should be some mechanism to make rental housing affordable and adaptable to PWDs Social Networks? Support social and recreational opportunities for PWDs? The loss of vision can be very isolating for some individuals? Isolation can lead to depression and other health problems? Promoting socialization and recreation can prevent illness and reduce overall health care costs? A lack of transportation options can make it harder to participate? Support no Barriers to Transportation? Transportation for people living with disabilities should be accessible, affordable, which allows for spontaneity and quality of life? Have new legislation implemented governing the use of guide dogs/assistance dogs – Guide/Assistance Dog Act? Social and recreational opportunities – the government should actively support social and recreational programs for PWDs? Private and independent voting options for people in BC? The importance of providing the opportunity for PWDs, vision loss, limited mobility, gross motor problems to have access to independent and private voting in BC – impacts anyone who has to rely on the assistance of others to vote.?Asset Accumulation? Review the Persons with Disabilities benefit? The RDSP is a good program, but to take full advantage of it requires individuals to be able to contribute $1500 per year? Many PWD rely on PWD in BC? Unfortunately increases in costs of living make it difficult to live on the amount provided by PWD? Similar programs in Alberta provide more than 50% more to individuals with disabilities that are unable to work? The government should undertake a full review of the PWD program and ensure that the amount provided can allow a recipient to live with dignity in the community? There are age restrictions for the RDSPInnovationCut down cost/overhead of operations:There are several umbrella organizations and agencies work (sic) towards health concern under donations or government grants. Bring them under one roof, renovate and implement overhead cost cutting measures and look how it’s possible to $ (sic) goes direct to consumers development rather than operational expenses with chain of commands. (sic)Discuss with families or consumer: direct one on one since each case may be different or unique @ age, mobility, kind of disability whether it’s physical, visual or brain disorder, income asset level, cultural difference, geographical area, transportation existence, ability, education level. Trust family and caregivers cut down privacy barriers, and treat with dignity and sympathetically. (sic)Use of mentorship: one on one mentorship would be help full (sic) and trustworthy with consumer & family and easy to navigate regarding education, employment, volunteering, independent living, homecare and hygiene, and day to day requirements.Use of spirituality, exercise, sports, arts, discipline, yoga, mind control: this will help focus to achieve establish (sic) short and long term goals through concentration.Study and Research: how different approach and ideas may help to encourage PWD into main stream with positive outlook. Explore other countries development and successful integration.Local government: has a big role to play since there is close face to face ties with family & consumers. All other government, agencies and organizations need to work one direction to improve living standard of PWD and to reduce the gap of rich & poor.Stigma: some government rules and red tapes with stigma attached and keep PWD and family with distance. (sic) The “not in my backyard” still norm in many places and community.The accommodation needs (no jail): are different with PWD with brain disorder (bipolar, depression, schizophrenia) than physical or visual PWD and yet to be establish (sic) and recognized into community. The many counter staff including VCH, condo managers, strata members, custodians, inspectors, some police force, store keepers, license holders dealing with public are not properly train (sic) to deal with PWD with psychiatric situation and effective communication to handle the situation. Mentally ill PWD often oppose family caregivers, friends while experiencing symptoms of paranoia and delusions and therefore become isolated and helpless. The call for help from mentally ill are often treated as disturbance, aggression, misbehaviour and usually results in policy intervention and criminalization of an illness. These situations may filled (sic) with many police interventions, criminal files, court cases and stress may adversely affect health condition of PWD and family for long term and make rehabilitation impossible.Policy change: in involuntary mental illness cases impose mediation is not only requirement when certified but involuntary day program, talk therapy, continuous symptoms observation, family involvement without as much privacy retractions, and outreach intervention to legislate and follow-up is as much needed.?Personal SupportsTechnical E support: computer, internet, phone, iPad entertainment(sic)PWD have to choose and accommodate their needs what’s available (sic) and adjust with surroundings. Many electronic gadgets helps PWD achieve independence includes entertainment, education, social get-together; attend appointment, seminars, contacts and safety in place. The government, business or educational institutions should cover costs of equipment and training for PWD with low incomeMany PWD cases it’s not a luxury to have certain equipment but it’s a necessary (sic). For example: PWD who hears voices finds comfort in loud music or earphones, heat sensitive or taking certain mediation may helps (sic) use of air-conditioner, light sensitive may need sun-glasses, certain PWD may need to occupy empty minds with different electronic equipment, games, internet and exercise equipment.Physician, peer and therapist, mentor support: for treatment, education guidance, employment, self-employment, volunteer, character, exercise, social, emotional, symptom/reality checksFamily/care giver support: health service provider, social worker, benefits coordinator, need to team together with family/caregiver to help navigate PWD on several instances. Many times privacy restrictions makes communication harder and broken link. Especially mental illness case whole family affects (sic). The family run around to find support receive benefits for PWD relative , file paper works (sic), give up employment, modify future plans and doing all this their own health deteriorates. Some cases one has to care-give two disable family members without respite or financial assistance.Please cut red tape bureaucracy, easy navigation to receive benefits, reduce case load on Health Service providers, family need their own case worker, educational module re: mental illness and stigma need to add into school and licensing institutions. Work and ContributionRiver View (sic) Hospital area: modify this area into mental health research, residential treatment and vocational training center:All in one umbrella with focus toward independent living, personal development, employment or self-employment same time it’s much easier research on individual cases and causes with treatment.Mental health, drug addicted or anxiety patient may not fit into regular hospital or emergency or reception area, or general public ward or educational institutions. These people need secure observation, monitor treatment with reality check, ongoing training with discipline and counselling, etc.Mental health, drug addicted or similar patient can be admitted as many years until they are qualified to live independently with confidence.The training facility would include and encourage individual interested field focusing toward independent living. These people comfortable working with:1. Computers and electronic components build and repairs2. Work with all sort of animals (since animals are most trustworthy) and product: breeding, dog training bird sanctuaries, etc.3. Farming, gardening, landscaping, flower and fish farming4. Various artistic developments5. Entrepreneurship6. Fitness7. Cooking8. Auto repair9. Construction and building renovation10. Janitorial11. Land-scapping( sic) and development12. Toy, jewelry making13. Administrative14. Seamstress15. Food industryEtc.This facility will save repeated hospital intake, homelessness, criminal behaviour, drug addiction, police involvement, court cases, family care and guidance, (family will be more productive and would happily volunteer with the facility).Understand the barriers case by case, age, gender and match employer, position, geographical area and requirementThe PWD have lack of confidence, low self-esteem, and need lot of encouragement (sic) and one-on-one mentorship.Entrepreneurship training and start up fund where possible. Encourage home base business (sic)?HousingThe Mental Illness and Addiction: the psychiatric medicines have terrible side effects and to avoid those mentally ill PWD try medicating with hazardous street drugs, alcohol or advice from internet pharmacies. The research needed to reduce side effects and train PWD with discipline.The stigma of schizophrenia and the common “not in my backyard” societal attitude make it harder for mentally ill and the many others PWD (sic) to live independently in the community. The majority of general public do not understand mental illness, systems and unique situation of the sufferer. The way to accommodate and accept a mentally ill person in the community is different than that of a physically disabled person. Such accommodations are not well recognized or established. The call for help from a mentally ill person is often treated as disturbance, aggression, misbehaviour and paranoia and usually results in policy intervention and criminalization of an illness. Often Building Managers, Strata Members, Custodians, and other tenants do not understand accommodation needs or do not engage in appropriate communication with a mentally ill resident, creating a negative situation. Mentally ill persons often oppose parents, caregivers, and friends while experiencing symptoms of paranoia and delusions, and therefore become isolated and helpless.The mentally ill need to fight against all these negatives while trying to live independently with a terrible illness. It is a frustrating and punishing existence, without support in the community and terrible stigma. It is as though the brain is broken, there is no cure, it is hard to find the right medication and side effects are dreadful.Unless PWD with mental illness receive proper involuntary medical attention and rehabilitation, assisted living, continuous support, cognitive therapy, educational/vocational guidance, he undoubtedly has a future filled with many criminal files and police interventions. This is health issue. In a custodial environment mentally ill persons are vulnerable to victimization by other inmates and falling into further psychosis.Housing difficulties:The Building Manager, building maintenance staff, tenants, strata members do not understand mental illness and symptoms, sometime unusual behavior (talking, smiling to themselves, staring, body odor, etc.) nor do they know how to effectively communicate with ill person. Some simply ignore them, while others or (sic) speak to them in an irritated or angry manner. Many offer little or no sympathy or tolerance in regards to their medical condition. Maintaining suitable accommodations and meeting basic housing needs is a veritable challenge in this kind of intolerant environment for PWD with mental illness.Solution: add basic mental health training material into Building Managers, Strata members, Custodians, Tenants, Shop Keepers, Schools and Universities, licensing institutions. Make aware of different needs of accommodation for mentally ill person and may require rule or policy change.Insurance company declines home insurance coverage:From a psychosis episode or misbehaviour which results sometimes in minor property damage. When insurance claim was file (sic) the insurance company subsequently declines to renew the house insurance coverage. The insurance company did not offer a higher premium or deductible; the company simply denies any future coverage or renewal once knowledge of medical condition. It is very stressful to carry a huge liability without insurance coverage while concurrently caring for family member.Lack of support and services:Mental health case workers do not provide enough support services or navigation to families or caregivers or consumers. The family members and caregiver receive little to no assistance identifying or obtaining subsidies, grants or programs for family or PWD. The family devotes a substantial amount of time and energy in gathering information about and obtaining such services. The family also relies on networks of other caregivers who are usually far more willing to assist despite their own challenges.Problems with rental subsidy:Behavioural problems are very often part of mental illness or side effects of that medication or the result of ineffective medication. It also noticed that other people’s misunderstanding or intolerance of mental illness may result in aggravation of behavioural problems from mentally ill.The problem is that behavioural difficulties, which are often part and parcel with mental illness, can negatively affect a person’s eligibility for a rental subsidy. The rental subsidy currently offer (sic) is subject to a severe clause: that the subsidy may be terminated due to the recipient’s behaviour. The strata attempted to address this issue by sending terse notices. But mentally ill resident struggles with paranoid delusions, interprets these notices as threatening and refuses to answer. Rather than terminating benefit it suffices for strata or the rental subsidy authority to have a conversation with family/caregiver or case worker.Further, the subsidy waiting list adversely creates a homelessness situation. The housing problem falls to caregivers to remedy, whether they are prepared and willing to or not.Solution: behavioural problems need to be addressed with patience and ongoing skills training, not sudden cancellation of necessary benefits that a mentally ill person is otherwise entitled to.There is a lack of home care availability or supervised/assisted living. Home care would encourage people with mental problems who are living independently to maintain a basic standard of health and hygiene. Home car would also help identify a person in need of medical attention early. Not all areas SIL program is available from VCH.The disability income is very low. It is practically impossible for PWD to maintain healthy living with a disability income alone. Again, it falls to family members to financially support their ill relative whether they are able to or not. Accommodation provided by family: the family need assistance where they provide accommodation for their disable (sic) family member in regard to property/utility taxes, subsidy, paper work and problem solving.?Social NetworksIt is tough to build social network for PWD with mentally ill since stigmatization for several years in past. Also “not in my backyard” makes it’s harder (sic) for acceptance as a social contact. With negative symptoms like aggressive behaviour, paranoia, results close friends, family members, siblings runs in opposite direction from mentally ill. The situation also makes ill PWD learn to live alone, secluded life.Mentally ill PWD need affordable fitness, recreation, exercise, entertain program, employment/volunteer activities, buddy encouragement.PWD is to provide with affordable computer, music, internet, phone for social contact and in emergencies as call for help. (sic)?Asset AccumulationThe government discriminates between workable and non workable PWD. The workable PWD receives more moneys (sic) and PWD who unable (sic) to work at all suffers financially.The family/care-giver that supports PWD need guidance in planning set up trust or RDSP. The private trusts are expensive and some time impossible arrange.The RDSP are not user friendly for PWD with mentally ill or for family care-giver. The conditions and rules re: withdrawal, repayment, filing income tax papers, tangled with T2201 DTC is impossible in some situation with mental illness. During psychiatric episode mentally ill with PWD may not follow all these rules and paper works (sic). In these cases family needs sole authority to administer RDSP or trust plans. Also require (sic) are 10+ years locking up provision for RDSP. The housing accommodation from family/care-giver also accepts as RDSP investment or RDSP fund can be use (sic) for housing for PWD.The government pays foster parents generously but ignores unpaid real parent care-givers and their financial hardship, health.The financial assistance from family should be exempt from asset accumulation for PWDs future care.InnovationAccess To Vision Rehabilitation Under The Health Agenda? Supporting high quality vision rehabilitation services into the continuum of care so that every British Columbian has universal coverage of high quality, essential service in a timely manner? CNIB BC – Yukon currently receives only 9% of its funding from the BC government – the lowest level of support from all provincial governments? Rehabilitation services for those with vision loss enables confidence and independence and increased likelihood of employment? People with vision loss have a human right to receive high quality, timely rehabilitation services funded by the Ministry of Health? Government has the responsibility to ensure that people who are blind or partially sighted have success to high quality rehabilitation servicesIntroduce A New BC Guide And Assistance Dog Act? The current BC Guide Animal Act is a very weak piece of legislation and fails to address many of the issues relevant to guide dog handlers and/or training facilities in BC? The current Act is not enforceable by members of law enforcement? Violations under the current Act can only be remedied via a complain to the Human Rights Tribunal? Current Act fails to provide any protection as a result of third party injury or death of a guide or assistance dogRight To Vote Independently And Privately? The Elections Act must be updated to allow a PWD to independently and privately mark his/her ballot and to verify their choice without third party assistance? Employing technology such as the internet, telephone voting or other technologies must be available to votes with disabilities, if not all voters in BCSupporting accessible library services? Nearly 10% of British Columbians have a print disability? Approximately 7% of printed materials are available in an accessible format for people with print disabilities? People with vision loss are currently not afforded the same opportunities as sighted British Columbians, and receive most of their access to books and materials through a charity vs. their public libraries? The BC Government is encouraged to work with the local library community specifically CELA (Centre for Equitable Library Access) and CNIB to ensure that accessible library services are funded by government and fully accessible, just as they are for sighted British Columbians.?Personal Supports? Creating a sustainable and comprehensive assistive devices program? People with disabilities rely on assistive technology to accomplish many of the tasks of daily living? The relatively small market for assistive devices means that they are often quite expensive and not affordable to people with disabilities? The Equipment and Assistive Technology Initiative (EATI) is set to expire in March 2014? EATI is an excellent program, but it is limited to those who are looking for work. It does not support those who are contributing valuable volunteer services which often leads to employment experience and opportunities? Many employed people with disabilities cannot afford the assistive technologies that could enhance their independence and increase their community participation? The government should renew and expand EATI so that it meets the assistive technology needs of all British Columbians with disabilities including seniors Work and Contribution? Supporting appropriate specialized employment services? Approximately 65% of people with vision loss are unemployed? The high unemployment rate costs the government millions in lost taxation revenue? The current employment services aimed at assisting the general population do not understand, address or consider the unique needs of people with vision loss? The government should invest in specialized employment programs that are tailored to assist people with disabilities, including people with vision loss?Housing? Enacting strong, effective and enforceable provincial disability legislation ie. Access for Ontarians with Disabilities Act? The way the environment is designed has tremendous impact a person’s mobility? People with vision loss rely on items such as accessible pedestrian signals, tactile walking surface indicators, braille/tactile signage, and sufficient lighting in order to travel more comfortably, safely and independently? BC needs provincial disability legislation to set clear standards for making all aspects of the build environment accessible to people with disabilities? Such legislation currently exists in Ontario and Manitoba? The government should commit to enacting effective and enforceable disability legislation?Social Networks? Supporting local and recreational opportunities for people with disabilities? The loss of vision can be very isolating for some individuals? Isolation can lead to depressions and other health problems? Promoting socialization and recreation can prevent illness and reduce overall health care costs? The government should actively support social and recreational programs for people with disabilities?Asset Accumulation? Update the Persons With Disabilities benefit inclusive of annual indexing? The RDSP is a good program, but to take full advantage of it requires individuals to be able to contribute $1500 per year not likely based on current PWD benefits? Many people with disabilities rely on PWD in British Columbia? Unfortunately increases in costs of living make it difficult to live on the amount provided by PWD? Similar programs in Alberta provide more than 50% more to individuals with disabilities that are unable to work? The government should undertake a full review of the PWD program and ensure that the amount provided can allow a recipient to live with dignity in the community1. Topic #1Innovation ? Asking for Help: The greater community has to be encouraged to ask, “How can we help you?” It is very difficult for many people to need to ask for help all the time, just to find a system that is built to reject most requests. The onus should not always be on people with disabilities and their families to be innovative and creative in supporting people with disabilities. This is the job of the whole community.? Poverty: People with disabilities often live in poverty. It is difficult to be innovative and creative when you live in poverty. The rates of the Persons with Disability (PWD) benefit must be raised to recognize the high cost of living in our province. In particular the shelter portion, which currently stands at $375/month, is too low. ? Going forward, not backwards: I- Innovation is going forward. The Government should encourage change by funding projects only when the project progresses the inclusion of people with disabilities. For example, creating institutions and isolating people with disabilities from their communities (new Pearson Hospital) is a model from the last century; it is not considered best practice and should not be supported. - Education must be funded adequately so that students with special needs are not confined and restrained because there is no support for them in an inclusive classroom. These educational practices reflect the education system going backwards. Peers of young people with disabilities learn from the actions of the adults around them. The education system is creating a generation of young people who may believe that isolation and restraint are appropriate ways for people with disabilities to be treated – in other words, going backwards.2. Topic #2Personal Supports ? Equipment is very expensive- Equipment to support inclusive employment is expensive as the technology may be specific to a person or their disability. Funding for this type of equipment is hard to come by and the Equipment and Assistive Technology Initiative (EATI) program has run out of funds. The Provincial Government needs to fund an equipment resourcing program to support the employment objectives of people with disabilities.- Equipment to support the health and mobility of people with disabilities is very expensive. The amount of funding for equipment under the PWD program needs to be increased to better reflect the reality of equipment costs. The scope of equipment funded also needs to be increased.? Recreation is very expensive:- People with disabilities need to keep physically fit. Often the types of recreation they can pursue are very specific and require specific equipment to make it accessible. The cost of recreation goes up yearly but PWD rates do not go up to reflect this. Municipal “recreation credit” programs are usually not adequate to provide recreation activities for a whole year. For example, a yearly swimming only drop-in pass in Burnaby is $371. The yearly credit in Burnaby is up to $170 for all recreation programs.? Training of front-line staff :- Even though integration and inclusion of people with disabilities into their community is recognized as a benefit to all, people with disabilities and their families may not be aware of technology that is available to help them access their community. - Front-line staff must be trained first, to be aware that support is available for people with disabilities in their community, second, that specialized equipment is available and finally, how to use this equipment. - Individuals and families would benefit from a community navigator who would know what personal supports are available in their community. 3. Topic #3Work & Contribution ? Supports are required for everyone to work:- Everyone who works, not just people with disabilities require supports for employment. Everyone requires transportation, child care, education, training and rights. - ? Employment is contribution:- With employment comes dignity. People with disabilities want to find and keep meaningful work. They want to contribute.? Employment Agencies:- Agencies that are contracted to support people with disabilities find and hold jobs must have trained staff and a long-term contract. Employment support should not end at finding a job for a person with a disability. There must be a commitment to support the new employee over time as their job evolves. When job support or grants end, people with disabilities can be set up to fail and with failure comes a reduction in self-esteem that will make future employment opportunities less desirable.? Job training:- Support for people in the workplace needs to be on-going. Jobs evolve, technology changes and people change. A person with a disability may encounter a barrier that was not there when they were first hired but do not have the training to know what to do. - Training for employment readiness is important to people with disabilities. They need to be prepared for a working world that may not be similar to any of their previous experiences. Adults with developmental disabilities need to have on-going job training and support delivered in plain language. ? Systemic Barriers:- Systemic barriers to employment include union or contract rules, WCB rules, employment standards and artificial Ministry age limits. For example, a person with a disability may be capable of working a shift in a work place that is shorter than a standard shift. They would be excluded from the job because of an arbitrary rule or policy that is not inclusive. When the government sets out to protect workers they must not at the same time exclude some workers. All programs and policies need to be reviewed with a focus on, “How can we make the workplace more inclusive?” - A program that ends at age 19 instead of transitioning with the youth into adulthood. - Innovative employment will allow for individualized standards of work.- The larger community needs to be welcoming of workers with disabilities. Workers with disabilities encounter a lack of sensitivity from their employers, fellow workers and clients that is not unacceptable. It is not up to individuals with disabilities to change these attitudes alone, it is a systemic change that requires deliberate support by the various government ministries that support children, youth and adults with disabilities.4. Topic # 4Housing and the built environment ? Government Offices and Communication: The built environment includes offices where people with disabilities go to find help. - Parents, in particular older parents, and self-advocates want to talk to people who know them, they do not want to try and navigate a confusing voice-mail system. Inquiries to government offices must be answered by humans who are well-trained in the area they are working in. - Parents and individuals would always like to speak to someone they know and who knows them. Having to retell your “story” over and over again is frustrating and disrespectful. - Front-line staff frequently does not know the policies, procedures or services offered in the ministry they are working in. Parents and individuals often find they are given the wrong information. - Offices where people with disabilities go to find help are often not welcoming. For example, the Ministry of Social Development office in Burnaby on Kingsway has no waiting room and people waiting to hand in forms, speak to their worker, wait for an appointment are forced to wait outside, often for long periods of time. The door is guarded by intimidating hired security personnel.- One parent said, “When my daughter hands in a form through the mail box instead of handing it to a person, the form is usually lost. She soon learned not to put items in the mail box and to wait to hand it in in-person.” ? Housing: - Community Living BC, BC Housing and the Ministry of Social Development need to find better ways to communicate with families who have a family member with a disability or individuals with a disability who are looking for housing. For example, some families would like their family members to live in a larger project that includes a small cluster of people with disabilities so that they can share personal and social supports, but they can find no encouragement or direction from any government helping agency.? BC Building Code:- All new construction should be required to meet a minimum standard for accessibility. This would include public and private office buildings, recreation centres and housing. However, the current building code is totally inadequate to guarantee accessibility. The current building codes must be changed to reflect modern society and the needs of today’s citizens with disabilities who want to contribute but often cannot even get through the door.- The province should lead the way in amending the current building code to meet a higher standard of accessibility by including people with disabilities in the development of these new building codes.? Poverty and the cost of housing: - The current PWD rate for shelter, at $375/month is much too low to allow people with disabilities to find safe, accessible market housing. Families cannot afford to purchase housing for their sons and daughters with a disability in the British Columbia housing market, so their sons and daughters live at home often until the parents are no longer able to care for them.- Affordability = Accessibility. Everyone involved in housing in British Columbia, not just people with disabilities need affordable housing options.- Supportive housing does not make money. It must be recognized that there will be a cost for good supported housing.- The value of a home in BC should have nothing to do with whether or not someone is eligible for a grant like Home Adaptations for Independence (HAFI). People on PWD may have an asset, like their home, that prevents them from accessing grants to renovate their home to make it more accessible. ? Bonus Density:- Many Municipalities allow developers to have increased density on a building site when the builders donate extra monies toward special projects. Municipalities need to be encouraged to use these bonuses from new construction to create fully accessible housing for people with disabilities in their communities.5. Topic #5Social networks ? Life-long Friends:- Most people have friends in their lives who they have known since they were very young. Young children with disabilities do not have the opportunity to make these life-long friendships when their daycares, playgroups and pre-schools do not have the resources to support their special needs. Programs to support the inclusion of young children in their local Early Childhood Education locations need to be adequately funded so that children with disabilities are not isolated in their homes.? Social Skills and the Welcoming Community:- Many parents and family members of people with disabilities spend their whole lives caring for their loved one with a disability. They lose their social connections because they cannot leave their loved one alone, they are ignored by family members who do not want to take on any of the care-giving responsibility and cannot spend money on social events and travel because they give up paid work or work only part time. After years of this social, emotional and economic isolation, the parents are asked to develop a social network for their adult son or daughter, certainly a dilemma for someone who does not even have their own social network.- Social Skills are something people can learn if only they are given a chance. The onus is often put upon the individual with a disability to integrate themselves into a community group when all community groups should be welcoming people with disabilities. - A group that faces a huge barrier to integrating into community is people who are non-verbal. There is no typical community environment that supports people who are non-verbal. Again, the larger community needs to ask, “How can we help you?”? Transitioning Youth:- There needs to be better coordination between the Ministry of Children and Family Development (MCFD) and Community Living BC to fund social support programs that span the ages 14 – 24. Currently MCFD programs end at 19 and CLBC programs start at 19. At 19 programs in place disappear and youth are left without an adult social network in place and no support to develop one.6. Topic #6Asset Accumulation and the RDSP ? Poverty:- The RDSP is an excellent way for people with disabilities to leverage small contributions into long-term savings and security in old age. But the current level of PWD does not allow people with disabilities to save money to contribute to an RDSP. PWD rates must be increased to encourage long-term savings.? RDSP:- Many families and individuals find the rules and red tape surrounding the RDSP program very intimidating. While it is not a provincial program, the provincial government does have a responsibility to be very clear in how they will treat accumulation of funds within an RDSP, future withdrawals from the RDSP as well as encouraging current contributions, all in a plain language, transparent manner.- There is a limit of $800 that a person who is on PWD can earn per month (or $9600/year under Annualized Earnings Exemptions program) before PWD benefits are clawed back. Often people who are eligible for PWD are able to hold jobs for a time and do earn over this yearly amount. To encourage deposits into an RDSP, the claw-back policy must be changed so that individuals on PWD can deposit money directly into their RDSP rather than have it clawed back. It is very difficult to withdraw money deposited into an RDSP and encourages long-term savings.1. What can small business owners do to welcome the contributions of people with disabilities as employees and customers, and what barriers can be removed? BE aware, become educated and recognise diversity as an asset. Understand what makes us all different, and in particular understand the nature of disbilites- demystify what makes us different. We are all unique, learn differently. We are all differently ABLED-it is this prespective that needs to change to be able to recognise and honour the contributions of people with disabilites. Education of existing staff, business leaders. Statistics have shown that when business owners hire employees with disbilites( physical or developmental) the ambience and morale among all employees is increased, and absentism declines. Because these people tend to be very welcoming, and joyfull customers felt better about doing business where people with disabilities are employed. Just recently ( Feb 26th) CBC National did a story that highlighted the economics benefits of hiring disabled employees. Companies who did so were seeing huge returns on the bottom lines. Often they are more hardworking, loyal, have good attiudes and having a higher productivity then non-disabled people. Turnover rates are lower- I really encourage you to watch the CBC video before your conference if you can. Just go online and put in the economic benefits of hiring disabled employees.2. What would make it easier for small business owners to hire people with disabilities and provide goods and services to persons with disabilities and what needs to be in place?-Increased government funding for supports such as job coachs who are able to introduce disabled workers into the workforce and to provide the supports needed for their employment to be a success. Sometimes there is a need for adaptive technology, making sure the workplace, business is accessible and that there be no physical barriers for either employees or customers with disabilities.3. What can be done to increase accessibility and decrease barriers to employment for people living with disabilities in B.C.? What is government doing right and what can be improved? Raising awareness is essential in my opinion....The whole process linked to this White Paper is I believe about educated, raising awareness and changing how we think about disabilities. We need to have conversations like these in the business community so that those who are more caution can hear about the benefits and the success stories. There is still much negative stigma attached to disabilities. People approach this issue often from we need to help these poor-unfortunate individuals- We need to develop the conviction amongst us all that these people with disabilites have something to contribute and that our lives, work places are richer because of their presence and contribution. IT IS NOT A ONE SIDED EQUATION. Yet we also know they need help...supports in form of government funding to be able to break down barriers and long standing unease with disabilities.Aboriginal Small Business Roundtable – Showcasing entrepreneurship in the aboriginal tourism sector to strengthen communities1. Given the context of the Province’s commitment to improve interactions with small businesses, what can we do, to provide the supports needed by Aboriginal Business Entrepreneurs?? There are many programs available to provide support. But gaps and barriers remain. What can we do better?? Tourism is a particular sector of interest in many communities. Do we need to do anything special for Aboriginal Entrepreneurs in tourism?Worksafe BC – Small Business Strategy1. For each of the following areas what suggestions would you have for WorkSafe to simplify the process and improve the overall effectiveness of the Health & Safety programs for employers and workers?? Registration with WorkSafe and making premium payments;? Claims – submitting and employers report of Injury and dealings with WorkSafe Case Managers; and? Prevention- Inspections of Worksites.2. WorkSafe is considering partnering with Small Business BC to help market Health and Safety content and information available but not typically accessed by small employers. Would you support this approach to help extend our reach?Senior Parents ConcernsSenior parents who provide care for their older adult children who have disabilities are generally a pretty independent lot.We do, however, have some limitations as well as serious concerns about the length of our future.The optimism that many young adults who have disabilities demonstrate as they make plans for their lives can be inspiring. Older adults who may still choose to live with their elderly parents have also learned to take steps that have made for a fuller life in the community. They may well have experienced a more gentle transition to supported, independent, or semi-independent living, if that is the case.Unfortunately, a frightening reality appears to be emerging that will have far reaching effects on adults who have disabilities, but who may also have chosen to live with their aging parents. A rapid change in the philosophy of care provision for these adults may fail in too many instances. The expected role of the family has placed too many older parents in a very difficult and stressful position. Changes are having a huge impact on adults who deal with disabilities as well as their very experienced care-giving parents.Older, but dedicated parents were already retired when expectations that families should now provide savings in an RDSP, make provision for a network, or other natural supports which would help address government funding shortages and future needs.The further cuts to agencies, ( pending) who provide needed day programs, failure to support living wages for staff, and the changing role of social workers who provided arms length oversight in the community, has caused much concern. This was evidenced in the 2010 outcry from affected families facing the loss of group homes.It is known that the population of individuals living in the community will require more, not less help, as they age along with their parents. This will place huge demands on home care or health services. These needs obviously cannot be met by all families.Senior families may not have the resources to relocate near a family member. While that may not be the government’s problem, it appears that one has been created through the establishment of a system where parents who have been care-givers for forty or fifty years are now expected to provide a network, as well as financial support, at a time in their lives when resources to do so may no longer exist.Is it not possible to re-evaluate the impact drastic policy changes are having on the families who have advocated, cared, and kept their children out of institutions? While words cannot express the appreciation we feel for the benefits that have been made available for a family member who struggles with a disability, we would certainly like to leave this earth knowing that the broad spectrum of society will fulfil their role of keeping the most vulnerable safe, and freedom of information will keep society informed of pertinent facts.Do you have a RDSP?? NoWhat would prevent you from accessing?? it is a nightmare lo get? need to pay to register for RDSP? My ageDo you think this is important to contribute to? Why?? yes, if you can afford an investment of $42 a month you will receive $1,500 for no taxable savings? Depends, if l was younger, maybeWhat can be done to make it easier to contribute to an RDSP?? marketing PAP system? Having someone to help fill out forms, explanations of how it all works and help to advocate for myself if turned downIs housing available to you with your disability? With a PWD income?? forced to live with a roommate, encounter stigma of every level? unable to afford housing . housing available for people over 55 years, but very inadequate for those younger? pets are important for people, but limited housing that allows them? yes, subsidized - Willowbridge first stage? Yes, I am one of the lucky few that live in o house (duplex) with a small yard (hugely important to my mental health). But, I need 2 roommates to be able to afford it. We are all on PWD and this is the first time that it's been the some? roommates for 2 years (very difficult to find)Why is stable, safe housing important?? maintain wellness & recovery, sustainability? for growth & confidence within a safe social setting? lt is everything concerning my mental and physical health. I have lived out of my vehicle (12 years), with friends and in relatives' homes. Having my own home even if shared gives me security and safety and I know exactly where and when I'll be sleeping and eating, plus it's all my own stuff. ln short, independent.What would make housing more accessible for you?? include utilities, incidentals (phone, internet access)? locate closer to supports? staged housing - acute - supported – independent? housing first approach? make it more affordable? maintaining and improving the structure? more geared to income? disability housing for all ages, not just seniors? Not having to have 2 roommates, maybe I would be okay. Doubling our shelter portion would be a huge difference. lf I had to live in a very small apartment, I'm sure I'd be in [location removed] more often. There is also landlords and building managers that tend to take advantage of people on PWD, falsely accusing people who cannot advocate for themselves.What are other barriers to housing?? stigma, when landlords know you have a mental illness they often don’t return the damage deposit? low vacancy rate of affordable housing? Again, landlords - not willing to rent to PWD recipients (in a shored rental arrangement). Landlords (managers) evicting me under false pretences (Notice of Eviction Forms) for their own personal agenda. ln general, very leery of landlords. Moving in a timely fashion because of physical disabilities. Affordable housing that is within a reasonable distance to downtown or close to shopping, doctors and wellness programs.TransitWhat is your transit experience like?? questioned about what my disability is? guide dog not allowed? HandiDART is often late (30 - 60 minutes)? schedule is not kept to? the high volume of people can make it difficult to deal with when dealing with an anxiety disorder? bus driver hammering on brakes - punching the gas, very hard when a person is dealing with a bad back? Queensway station is dangerous - drug deals, knifings, intimidation? Bus stops in outlying areas can be hard to reach because of distance or terrain? Waits are sometimes very long between buses? The schedule is not being adhered to? Wheelchair ramps not wide enough? Good? Good for the most part. Limited or time consuming access to some ports of the city. I have used city transit to the [locations removed]. I have been riding the bus for 5 years.How could it be better?? More frequent buses, especially on weekends and evenings? Keep to the schedule? Education of drivers re disabilities? Make the cost and process for getting a bus pass easier? Subsidized bus pass for people on social assistance? PPMB need to be able to access the disability bus pass because it is a financial strain to get a pass otherwise? Pre-authorized payment plan? More HandiDART transit? I have assisted a lady in a wheelchair several times and struggled very hard to get her on and off the bus because the ramp was too narrow for the wheelchair. We need buses that run south to north especially [location removed]. Evening buses run every hour instead of 1/2 hour starting of 6:30, 8:30 or 9:00 would be better.“Perfect World” transit for my needs would be…?? schedule available on Google maps? eco-friendly - more ability to carry bikes, disability equipped? anyone with a disability automatically gets a bus pass? Having a personal transit pick-up at my front door, like the HandiDART but in a more timely fashion. I know a little bit on the unrealistic side, but you asked! At the [location removed] station at times I have to wait in all sorts of weather anywhere from 20 minutes to 50 minutes for connecting buses. A 15 minute wait is okay, but to get home from [location removed] is a 45 minute tripAre there any buildings, structures, systems that are difficult to access with your disability?? office of Ministry of Social Development is difficult to find and to get to? no handicapped parking available of some locations? federal tax building? difficult for person with anxiety to wait in busy places to get medication? there may be language barriers? people are not treated respectfully? systems such as ICBC, Shaw, Telus, Greyhound, City of [location removed], Fortis, can be difficult to access? systems can be difficult to manage over the phone when you don't have a credit card or computer? None really, except for maybe emergency at [information removed]. Recent experienced a very busy and crowded emergency waiting room and streamline waiting area. lt was very stressful and added to my daughter’s delusional thinking and fears of what was going to happen to her.What else has been helpful to you with your disability? (Programs, technology etc.)? Designing my own system in collaboration with like-minded people? Peer support work force? Pay those who are the main stakeholders? Computer access? Phone and internet? Knowledge that programs such o s "Let's Talk" from Bell are starting the conversation? Subsidized computer & internet access is essential to becoming independent? Free classes on our disabilities (more)? CMHA programs? BCGS Programs? Information on healthy living? My own research on internet and library? Arthritis Society? John HowardWhat innovations would make it easier for someone with your disability to be a member of your community? Think outside the box...? Drop the labels? Make it easy / automatic? Focus on wellness & recovery with a safety net that isn't constantly under threat of loss? Greater awareness leads to greater acceptance? Softer chairs, better service from Employment Centres. I do consider myself a member of my community as it is.? How about a whole community or town completely run by the disabled. lt will work as long as the whole disabled population is includedWhat types of personal supports/devices/aids to you use for your disability?? n/a - outside of mental health system? "ten step" type of mentor program designed around one-on-one mentors? None needed.Why are these important to you?? Utmost? EssentialWere these difficult to get?? yes, had to go outside social structure? they have never been, and still do not existHow could they be easier to get?? computer database to access information about what is available? collaboration between agencies so everyone is aware of what supports are available? WRAP program is addressingWhat are your main social networks?? Spiritual community? Alternate healers? CMHA - Wellness Development Centre, Peer Support group? Family and friends? Metro? First United? Roommates and support groups and certain people where I volunteer of KGH, CMHA and BCSSHow are social networks important to you?? To encourage inclusion & belonging, purpose and meaning? Socializing is an integral part of Wellness Recovery Action Plan (WRAP)? We are there to help, everyone needs an extra hand, especially if you're sick. I learned l couldn't do without social networking. esp. JobsAre there challenges/barriers to create or find social networks with your disability?? Stigma & discrimination? Funding - no consistency with mental health perspective? marketing / PR is needed? Not for myself because my particular field of volunteer work. However one of the most common remarks I hear is "l didn't know these resources existed".What might help you create or find social networks?? I have done it all on my own? More publicity, advertising and talkingWhat are the best types of social networks or supports to meet your needs?? I would not participate in a ministry social network? Peers with training to be one-to-one 365 days, 24 hours a day mentors? Group supports, one on one counselling, CMHA, BCSS, lHA, youth family counselling, men's groups, women's groups, etc. Mental Health, addictionsWhat is your experience working with your disability?? "a pride swallowing experience that I will always appreciate overcoming"? Negative experience with WorkBC - people who are homeless are only able to access the service for 1 hour a day, if the individual appears "dirty" everything is sprayed down with on antiseptic spray, even before the individual has left? we are only at the edge of accepting mental illness being no different than any other illness? Painful physically from fibromyalgia in arms and legs; however I believe from having bi-polar as well, I found my tolerance to stress and pressure has changed to the point that I have a very difficult time handling both.Are there challenges/barriers to getting to work?? Lack of education, doing physical labour for years, but with disabilities can’t keep working of those jobs? Misunderstanding about mental illness? The risk of relapsing and having no safety net? Stigma around mental illness? Repetitive work affects my fibromyalgia the most, so the hardest barrier for me would be to find a job that I could do with my limitations and includes esp. computers.Are there challenges/barriers to keeping work?? no benefits? no ability to get over the poverty line? cyclical nature of mental illness? gaps in resume - how to explain? stigma around mental illness? yes, when programs like WorkBC discriminate not only against mental illness but also those who are addicted and homeless? education of employers is at the very beginning? Now my work is as a volunteer (sic). Hours are perfect and it doesn't involve any physical challenges. I believe there are no barriers to keeping my present job.What would make it easier to work with your disability?? no ceiling on earnable amount? accommodation from employer to allow for mental health days when needed? compassionate, properly trained work coaches who have a large data base of educated employers who are looking for part-time workers (PWD eligible to earn $800 in addition to benefits)? More jobs that only require little or no real manual labour, or maybe finding/ creating work within the volunteer field, you know workers that border on the professional fieldWhat would “perfect world” jobs look like to fit your needs?? peer support work force? livable wage? FULL benefits for family? Low responsibility part lime hours? Pay for volunteer hours of an income. Moyle others could be in the teaching field. I think that there's a lot of jobs that the disabled could do but what and how do you find out?Individualized funding allows the person with a diversability and his/her family to obtain money from the government for arranging, managing, and buying supports and services for the individual with a diversability.Previously I had applied to live with a caregiver in [location removed]. I feel a caregiver could help feed me healthy meals, help me work out, and help me to become a healthier person (less bad cooking, obesity, diabetes, and high blood pressure, etc.). But l was considered too independent and too high-functioning to live with care. Besides CLBC does not have enough funding to support me living with a caregiver.lndividualized funding however could help me hire a dietitian or fitness trainer. They could help me eat healthier meals and work out better. I could learn how to eat healthier foods.I want to be able to make a valuable contribution to society through obtaining full-time employment and not being a burden to tax payers' money.I have a disabled 26 year old daughter with multiple serious health problems. Raising her was a real struggle for my wife and me (mentally/physically/financially). We received very little community and government support.She managed to complete a drafting course at [information removed] and obtained a job. She was mostly independent for a while (living on her own), but her job has caused her health problems to escalated (sic) in the past year and she is now working less than half time.Her GP has her receiving therapy that is not covered by Medicare. She has also been diagnosed with several food sensitivities, increasing her grocery bill. ln short, her income has gone down while her expenses have gone up. She has taken out a personal line of credit at the bank to help pay for these (she has no savings). We (her parents) have contributed to her new additional costs, but can only afford so much. I have enquired as to whether there are government supports for her but haven't found any. She needs assistance in paying for her treatments and potentially retraining for new employment that can accommodate her disabilities.It seems as though the "system" requires that her health spirals downhill putting her out of work and on income assistance before she qualifies for additional support. She is smart and really sweet. lt's tough to see her lose ground.She needs the province to provide her with a case worker that can analyze her situation, recommend a course of action, and put her in contact with the appropriate organizations while providing temporary financial supports to keep her trained/employed and give her hope for being self-sufficient.I would very much appreciate a reply to this letter.My name is [name removed], and l would like to speak to the Government, about some affordable housing. lt is a big issue in [location removed], BC and I am writing this letter on behalf people with disability. They cannot afford to pay high price rent were they live and it would be nice to have affordable housing with options like rent to own, with no down payment. People with disability struggle to find a home that will fit their budget and pet friendly, security cameras, well insulation, fire alarms, built in sprinkler systems, weather proof, usable bath tub.I am a volunteer at the Salvation Army thrift store in [location removed], and I wonder if the government will change their policy on work compensation for all volunteers. At the SALVATION ARMY THRIFT STORE ONLY THE STAFF MEMBER THAT WORKI( FULL TIME GET $10.25 AN HOUR AND PEOPLE WITH DISABILITY ONLY GET $1O.OO A DAY. THIS POLICY HAS TO CHANGE.I go to the day program that is through [location removed] & District Association for Community Living. They set you up to work with the Salvation Army Thrift Store and you have a contract with them. I have been working there about six years and you feel like you have been treated unfairly, because the volunteer if they get hurt they are not covered through work compensation board at all. We want to see this policy change. (sic)The Government has a policy for RDSP for people under the age of forty-nine and I would like to see the policy change to people under age sixty-nine. Where they have a chance to put money away because people with difference (sic) disability do not get very much on their cheque.I would like to see some increase on our PWD cheque. My disability cheque is $866.40 and my rent is $675.00 and that will leave me total amount of $191.40 for my grocery and other bills. I am on a special diet and l find it hard to eat healthy meals, when your disability cheque is low and I do not have enough money left over to buy some clothes and etc. (sic)I have friend who wants to see more ACT program and venture training across Canada for people with different disability where they can get their education from K- Grade L2. Also to get some job training with some of the benefits like real employment; where they can make extra money for themselves. Why is there a long waiting list for people with difference disabilities?I would like to see BC Transit wear bullet proof vest, because I was watch a TV program that bus driver got shoot at, it scare me so bad to see the bus driver go through this every day and night without any protection for themselves.I would like to see some more shelter for the homeless, where people can get out the cold weather and stay cool in the summer month.Thank-you very much for listen to my problem.The RDSP, grants and bonds are very encouraging. However it is difficult to make contributions when my cheque leaves me with $190 after rent and food. BC’s standards are far behind Alberta’s AISH for example. Not to mention Alberta has only 5% tax. BC Payments aren’t even keeping up with inflation. A raise would be in order. Thank you for listening. My brother and I live with a caregiver who helps us.Mental Health DetentionsUntied (sic) Nations Dec. 19 1991"There shall be no discrimination against people with mental illness or those being treated as such"1. Written police MHA Sec. 28(1) reports to medical staff. Stop the use of "verbal reports".2. Allow detained citizen their Charter call to lawyer to check validity of detention3. Allow detained citizen call to family4. DO NOT drug a citizen detained under the BC MHA sec. 28(1) until they have been afforded their Rights under Sec. 10 of the Charter. To deny their Charter Rights, discriminates against those with mental illness or those being treated as such.5. Police may be acting on misinformation from a caller who was "Acting in Bad Faith"To deny these basic rights builds a mistrust of police and the medical profession.To whom it may concern;First, I participated in one of the dates listed in a group earlier this year but also wanted to email additional thoughts. Second, it is important that I establish something, perhaps very obvious but sometimes I wonder....that ALL people with disabilities deserve, require, need solutions pertaining to their said individual disabilities! I also want to establish that while these discussions are going on and while great, those who have been in the 'world' of advocating for their loved ones, more times than not, haven't seen much change where it matters! This government has an opportunity to give dignity back, not only to the families who have struggles, but the individual who needs to be supported, and will meet their potential if supported rightly.So given that above, these are my thoughts:As a parent I have been in a battle since our child first began this road in 1999. From having no idea if she would live or die, we had to contend with overwhelming expenses that were not funded but learned later they should've been right from the beginning! Being told we didn't qualify for the At Home Program because our child was not deemed medically fragile enough, professional after professional defending us repeatedly & not being heard. Finally receiving Respite after over 10yrs of drowning & dealing with our situation virtually on our own. And yet here we are. We are already preparing for more battles ahead as we move towards transition into adulthood. I will add, that I am very thankful that I not only can read, that I can write & I know how to advocate for my child's rights. Which that cannot be said for everyone who is faced with this prospect! Another item of great importance that I need to address is HEALTH, it is not listed anywhere in the discussion paper. Our entire family sacrificed many things, even our own health at times, to assist & give our child with multiple disabilities a fighting chance. We had zero support from anyone except for the Child Development Center & our local hospital (ironically they are inadequately funded themselves!). We have had to do multiple meds, trips to outside area hospitals for treatment, tests etc costing in excess of thousands of dollars. While our child was fighting for her life at times, we as a family have substantial debt due to meeting much of her needs at the cost of many other household items along with our other child. My husband works 3 jobs, we all work hard, including her twin sister. Why have I heard over the years that if children were in foster care, the families that have them get good money for their care but yet a family who chooses to have their child with disabilities at home, can't get a break for nothing! It makes no sense at all. Support the families properly & you will see change, for example feeling supported, understood, financially stable amongst many other items I'm sure. Honestly I am guessing to a degree what to type as I won't know what we exactly will need come the time for transition but my prayer is, this government will not let my daughter down!!!These are some of my other input pertaining to the headers that were selected:Innovation:?Quality of LIFE...how do we achieve that? By supporting those families & individuals with disabilities to access all necessary to succeed in life & again that will be different for every individual person!?all areas of Health for the adult with disabilities?lessen the paperwork by streamlining it, generally speaking you are dealing with people with disabilities not criminals!?in our area it would be great to offer the JET Program or ones similar, yearly vs bi-yearly, make it Sept-June but offer flexible days per the student/client's ability ie: medical issues, tiredness, mental health issues but not limited to.?more spots in Day Programs as there too many limited spots; make more spots available now and in the future.?reduce barriers where educational opportunities to their skill level & interest...it's amazing what any individual can accomplish when supported?definitely always a Criminal Record Check, that just makes good sense!?change the preconceived ideas of what a person with disabilities can & cannot do.?inclusion on the wholePersonal Supports:?Quality of LIFE...how do we achieve that? By supporting those families & individuals with disabilities to access all necessary to succeed in life & again that will be different for every individual person! ?all areas of Health for the adult with disabilities....ie: Home 02 Program, ongoing Medical Support/Training?lessen the paperwork by streamlining it, generally speaking you are dealing with people with disabilities not criminals!?I wish we had funding to access for After School Programs & BI groups that contribute to socialization but also learning opportunities with peers. For now we pay out of pocket.?a quality CYSN Social worker to assist with transition but not limited to!!! ?some people need full time support 24/7...provide them & their families with it!?proper amount of Respite....again whom decided on the amount in question? Depending on how things are, we need more than 2 days/nights a month off & to how pay for it.?Medical items through Special Authority should be streamlined as visiting the doc already takes up alot of time getting what is required.?better accessibility; if it is clear they were a child with a disability, then an adult with a disability, why make the process so difficult when it's obvious from numerous reports that the disability will not ever change!?gap between 18-19 years of age...it's like this BIG gray zone depending on which level of government you are dealing with..this needs to be streamlined?hope to acquire a bed pad to detect potential night seizures as right now it's essentially prayer to protect her & my ongoing keeping watch with one eye open...in any event, 10yrs ago one of these was in the UK going for $4000pds = $6500US dollars..it could very well save her life! But would the government fund as we don't have the income to buy it??Dental, Optical, OT, PT, Orthotic coverage but not limited to.Work & Contribution:?Quality of LIFE...how do we achieve that? By supporting those families & individuals with disabilities to access all necessary to succeed in life & again that will be different for every individual person!?all areas of Health for the adult with disabilities?lessen the paperwork by streamlining it, generally speaking you are dealing with people with disabilities not criminals!?more funds to the individual vs the organization, which in turn ends up abusing their role if not monitored ie: CLBC ?Again all situations are different, which may require flexibility. And because I'm not in that place yet it's hard to envision how that would look in our particular teen's life at this point. Although, it would be great to know your adult with disabilities could make a wage & it not affect their PWD as to not be facing poverty on a daily basis! Which many are. Housing & Accessibility:?Quality of LIFE...how do we achieve that? By supporting those families & individuals with disabilities to access all necessary to succeed in life & again that will be different for every individual person! ?all areas of Health for the adult with disabilities ?a more straight forward process to deal with funding applications to build an appropriate, safe environment for a family member with special needs?This income testing is a farce for those who truly need it! ie: Giving in Action fund...look at all the steps one must travel through to even find out if they were approved to go to the next step. If there are in fact abuses then deal with the people who are abusing not punish the ones who need help!?flexible timelines as many families have hurdles woven into their daily lives...completion of, let's say a house for a family member with special needs would happen but timelines could get bumped due to hospitalization, illness of guardian/caretaker but not limited to?lessen the paperwork by streamlining it, generally speaking you are dealing with people with disabilities not criminals! Social Networks:?Quality of LIFE...how do we achieve that? By supporting those families & individuals with disabilities to access all necessary to succeed in life & again that will be different for every individual person! ?on going groups for socialization even into adulthood so there isn't isolation.. it could also involve learning how to cook, clean but not limited to.?I wish we had funding to access for After School Programs & BI groups that contribute to socialization but also learning opportunities with peers. For now we pay out of pocket.Asset Accumulation:?Quality of LIFE...how do we achieve that? By supporting those families & individuals with disabilities to access all necessary to succeed in life & again that will be different for every individual person! ?more transparency where the government is concerned. Most items that could benefit people with disabilities is like finding a needle in a haystack!?lessen the paperwork by streamlining it, generally speaking you are dealing with people with disabilities not criminals!?RDSP access...dropped from a 10yr limit access to 5yrs?Less of a burden on society as they could support themselves more?RDSP is one of the best investment opportunities that the FEDERAL government implemented in 2008! More financial support from the Provincial government would be a greater contribution for the adult with disabilities & their families. Better support from the 1-800 numbers that families have to call, sometimes the person who answers on the other end, who works for the government isn't all that friendly, supportive or knowledgeable. At this point I have added all that I can add. Again as a parent of a child with disabilities with dual diagnosis, I would hope as we are preparing for transition, so is this government, their agencies to provide, support & humbly turn the tide to the very vulnerable group they say they support!Without access to assistive tech without red tape this discussion will not help. until the system is fixed so doctors rights are not above patients and I am able to get respectable healthcare (unless I die first which is more likely) so that tech is available without doctors, pills avaialble at thepharamacist unless there is a change, automatic ability to book regular blood tests without doctors, to see specialists without doctors- none of this matters. The system is broken and due to being literally poisoned by a doctor and a number of other things that have harmed, i don't trust Gps anymore and will probably at 49 die due to one of my frequent infections. I have multiple disabilities and serious health problems. We across the country in the worst shape are getting no care, poor care and even abusive treatment. i was refused treatment by a walk in and they used violation against my human rights to do so as they defended the dictor who poisoned me and ruined my life. Can't get tech or to opthamologist without doctor and am mostly hoisebound 98%. The other 2% means I can't get a nurse practitioner to come to me. Becasue I can bathe myself twice a week I can't get HomeCare. I can't even find subsidized wheelchair modfied housing with a tub with grab bars since I am in a power chair and showers are useless plus there is not enough subsidized housing for disabled. No assistance/ guide dig combinations in Canada and due to poisoning I am going blind. Curb cuts can be non existence, not level with paevement or even face oncoming traffic even in [location removed]. No legal aid for malpractice against these arrogant power mongers with doctorates who destroy lives. No legal aid for people for divorce so a poor person gets stuck for 16 years married to someone who could be dead. Cannot move from one orovince to another without reapplying for disabiloty and disabiloty amount should cover market rent. We need at least $2000 a month. I am in unsafe unmodified housing with no caregiver because there is no help and I have fallen theough the cracks. I will die within the year without help.Professional vocational rehabilitation services were available in BC until about ten years ago when they were shut down. Services were cost shared by the federal government under the VRDP act. Workers were qualified with university degrees and experience to help people with disabilities to become trained for suitable work. I had this service in 1967 and paid taxes as a Psychologist (No.598) until I retired in 2006. This is the only service I ever received. Currently BC is contracting these services and some of the staff doing assessments have only a high school diploma. I have been told that payment for university is very difficult to get approved. I am legally blind and know I could not have had the career I had or paid the taxes I did without the Masters level training I had supported by the equivalent of Vocational Rehabilitation Services. I was in the USA at the time and received services through the New Jersey State Commission for the Blind.I sent you my submission some time ago.? I thought you might benefit from a discussion in [information removed] that I am sure will shed some light on the complex nature of the subject. ?After all the access is provided for handicapped persons to enter a building there are still issues that involve getting to these places and finding a convenient parking space.? I have written to the local RCMP and attached the letter as well as their response.? I wonder about the absence of “proactive enforcement” because it is a minor offense, as that seems to be how one provides assurance that permits are not being abused.?You will note that the letter from the RCMP refers to a case where the RCMP first neglected to look carefully at a permit and then had to deal with it a second time after I? expressed concern about the shoddy investigation made.? The particular individual was given the privilege of applying for a permit after using an expired permit for 9 years.? Such leniency will certainly not act as a deterrent.? ?In the comments section of the links below you will find the attitudes of people as well as the problems the handicapped face.? The practise of responding only to complaints is asking the handicapped to report an abuse to one of three agencies still undefined when they know that the penalties involve a light “slap on the wrist” because the police ( the only agency with the power to ticket or fine ) have more serious issues to deal with.? Why would any person, handicapped or not, even bother.? As you can see in the letter the RCMP get few if any complaints.? Why is clear. would like to know what the Terrace RCMP does to monitor the abuse of Handicapped Parking; more specifically what the detachment does to enforce Division 38 of the Motor Vehicle Act? I believe that abuse by non-permit holders can be dealt with by proper, consistent enforcement where a fine acts as deterrent. It was a comment in the local paper where a spokesperson of the local RCMP claimed that “officer discretion” was used, which prompts this letter.There are far too many violations occurring and “Officer Discretion” may well be part of the cause. Unless the person can show that their use was a serious emergency that warranted stopping closer to the door of the establishment it should be an opportunity to deter others from attempting to get away with violating the MVA.. There are also violations that are not obvious even if there is a permit displayed. Division 38 of The Motor Vehicle Act has all the rules. All permits have an expiry date and it is visible on the permit. They are only to be used by the permit holder. A permit may be stolen or perhaps has been lost and found by someone. You cannot determine a permit is valid merely by its presence. If a person claims their permit does not have an expiry date, section 38.07 of the MVA applies. Section 38.07 on the “Transitional Provisions” reads: Permits issued on behalf of municipalities that are unexpired on January 1, 1991, shall be recognized and considered to be valid permits under this Division until they expire or, where no expiry date is given, until January 1, 1994. [en. B.C. Reg. 472/90.] The Terrace municipalities once issued permits at the Public Works Office. They have not issued permits for years nor have they renewed any. They now do no enforcement at all except on city–owned parking lots an only when a complaint is made and with only a part-time enforcement officer it is rare that a complaint is acted on in time. SPARC claims they will take action against those who misuse the permit. The only measure they have to enforce the rules is the threat or revoking a permit. In order to do so, they suggest that you politely ask to see the person's wallet card, which is issued to all who have a permanent disability. Of course the person is not obligated to show you the card, but should they refuse, you are to contact SPARC at (604)718-7744 with your explanation and the parking permit number. They will take appropriate action with regard to the permit days, maybe weeks later. But you do that and you risk verbal abuse or more. That is not good enough. Is it fair to ask a handicapped person to confront a violator, get close enough to the vehicle to read the permit number and do all that along with struggling with the day-to-day challenges of being handicapped just because it is a lower priority for a property owner or the Police? Furthermore why would any non-handicapped person risk more than a contemptuous glance at the offender? Also even if SPARC revoked a permit for violation of the rules, how would they prevent a revoked permit from being used illegally and how would the police know it had been revoked without closer examination of a visible permit and communication with SPARC.SPRAC claims that Police action is a possibility. A traffic ticket may be issued to those who park in a disabled zone when not handicapped without a permit or with another’s permit. The vehicle may also be towed. Division 38 makes it clear what the law is, but tickets are very rare and in a place like Terrace I have never heard of one being issued. Why? I recently reported a case to the police of an individual who had the edge of his permit taped over to hide the expiry date. I had asked him about it and was told that he had a life-time permit issued to him by the city years ago. Being curious, I checked. No such thing exists. I showed him a copy of Section 38.07 of the MVA and after a week or so I phoned the police. A police constable called me back later that day to tell me everything was in order. When I asked if she had checked for the wallet-sized card that is issued and the expiry date she responded everything was in order and her evasiveness along with her lack of awareness of the provisions of The MVA Div. 38 specifically section 38.07 made me skeptical. But she would consult someone on this. She seemed more concerned that the individual and I might have issues beyond his abuse of the permit system. I don’t, and just because I want proper enforcement is no reason to make the outrageous suggestion. I suspect she heard this from the individual just trying to escape his responsibility by giving her a “snow job”. I also don’t know if the police constable even looked at the permit or simply called him on the phone. I was of the understanding that she would call be back with some information but I have heard nothing for two weeks and she has not returned my call as of this day. The individual is still telling people he has a life-time permit when no such thing exists. Division 38 of the MVA is being made meaningless because somebody decided not to enforce it. Enforcement should not, cannot be the job of SPARC alone.I have precipitated a considerable debate on this subject on the internet in the past few weeks and I have written a number of letters to municipal and provincial officials. I have no intention of letting the matter drop without getting proper answers as to why this issue is being left to handicapped folks and SPARC to enforce by confronting individuals who break the law when there is a ticket that can be issued by the police. Perhaps it would be more honest for the RCMP to simply tell the public that this entire section is not considered important. It certainly appears to be the case. Those of us genuinely handicapped and with valid, unexpired permits might then know what we should do about it.Should the duties of getting children with special needs assisted devices be given to a charity (Set BC, Caya)? No. This should be done by gov. Also, the procedure should be easier less paperwork and it is ridicules that when they leave school or turn 19 they have to fill out a whole new set of paper work for the same organization with a name change for older children. Also, there is a point of limbo were students can't get assisted devices; that is, when the student is still in school but is 19. Set BC says they are 19 so we don't deal with them and Caya says "Yes we deal with 19 year olds but not students who are 19 but still in school."There should be more training and help for students and families who have children transitioning out of school. The Navigator program should continue and be expanded to all students with special needs.Teachers of special needs students (BASES) should be able to get training during class time; as, I have children of my own and cannot go to any after school training.We need one teacher in a BASES/lifeskills program/room that does mainly paperwork, like an administrator position in schools that have 10 or more students in the program. I find the large amount of paperwork administrative duties, etc. interferes with my teaching of the students. Thats all for now. I hope this helps.I am a middle-aged, legally blind woman who had to leave my job recently and go on disability benefits due to vision loss. Here are my suggestions on four of your topics:INNOVATIONDevelop television and radio advertising campaign to increase public awareness of people with visual disabilities. Create a series of public service announcements to depict “what a white cane means”.Show visually-impaired person’s point of viewOrganize extensive resource library, online and branch office:providing one location/web site to find info on a wide variety of resources such as BC Guide Dogs, BC Blind Sports, Van Parks Adapted Recreation programs, Taxi Savers, Disability Tax Credit, etcIncrease funding to organizations that support people with visualdisabilities: CNIB, BC Blind Sports, ASIC, BC Guide DogsPERSONAL SUPPORTShopping buddies/assistants should be available in all large stores and malls Create universal, easy-to-read bank card readers, with Braille Designated seats for disabled should be mandatory on all buses and should be enforced by drivers Government organizations should ensure online materials are accessible by screen readers Encourage better selection of audio-described television Encourage more people to volunteer as visual guides and offer in-depth trainingWORK & CONTRIBUTIONCreate more incentives for employers to hire people with disabilities.Develop volunteer opportunities for people with disabilities and provide free training.Enforce employers’ Duty to Accommodate, and support people with disabilities with conflict resolutionHOUSING & ACCESSIBILITYDesign consistent, universal, tactile markings on rapid transit platform floors showing routes to elevators. Elevator buttons consistently at same locations at all stations.All public stairs should be marked with white/yellow edges Subsidized housing for disabled with recreation facilities: pool, gym, garden Enforced bylaws for pedestrian safety by keeping public sidewalks clear of obstacles beside public eating areas. Thank you.Over 20,000 acquired brain injuries occur in BC each year. A large percentage of those are left with permanent disabilities. Most of those are sustained through motor vehicle crashes, falls, strokes, violence, work and sports. Not only is it important to look at the issues facing people with existing disabilities, it is essential to work towards preventing them in the first place as well as preventing subsequent injuries that result in a decreasing level of function. For example, a person with an acquired brain injury is more likely to sustain subsequent brain injuries than the general population due to issues with mobility, poor judgement and impulse control etc. Each subsequent brain injury results in an exponential increase in damage to cognitive and physical function. If the first one is treated properly, a minor injury does not have to be permanently disabling. If preventative measures are put in place on a global scale disabling injuries and subsequent injuries will be reduced. Fund the support services for those who are already disabled to prevent further injury(ie: brain injury association's etc) so that we can support them and minimize risk of re-injury. Educate physicians, ER staff, coaches, parents etc about concussion and return to sport where to direct people who are injured - Early response concussion clinics (Fraser Health, Vancouver Coastal Health).Hi, my name is [name removed] and I have a 14 year old daughter and live on a BC disability pension because I had [information removed] for 17 years and have been very sick from it.? I was working at Walmart part-time to make ends meet until about 11/2 years ago when they got me to quite because I was missing too many days.? I fought to stay there but I had to give it up.? That gave me a lot of stress because the extra money was needed very badly.The rent money that is given to us has stayed the same for years which only provides us with $520.00 for shelter for my daughter and I.? That amount doesn't even get a bachelor suite here in [information removed].? We are living in a small 2 bedroom apt. which costs $695.00 plus we have to pay for all of our utilities.? That is an extra $100.00 plus my Shaw bundle is approximately $100.00 a month.? The money for our rent comes out of our living expenses so that makes it even less money for us to survive on.? By the end of the month after getting the cheque, we are scrimping and have problems getting by because the money is gone and I don't drink alcohol or smoke.? Another thing is that for this clinical trial study, Disability cut me off of travelling expenses after my first appointment and I had to travel back and forth to Vancouver about 9 times to get monitored.? I fought for my rights and ended up appealing it and going to a board conference and explained my plight.? I didn't get any help because the new treatment that I was on wasn't the Standard of Care that the government pays for when a person is in pretty bad shape.? I was very debiliated and was suffering so badly that I signed up for this clinical trial of two drugs that were interferon free.? The clinical study didn't meet the guidelines of the MSP Act and the Hospital Act.? I got denied.The money that I had to use was my daughter's savings money from her deceased father's CPP.? I didn't want to have to do this but the only way I saw it was that I had to get better and cure this virus. After treatment, I was expecting to work part-time but I'm still suffering the after effects from the illness and treatment which is painful [information removed].? The CPP money is almost gone and I'm getting very stressed and worried because we have no extra income coming in and I have been trying to get into low-cost housing for years and there is nothing still.? If there were legitimate jobs that I could do at home, that would be perfect and I would be so grateful because I get these adrenal crashes wherein I'm in intense pain and very sick.? The second thing I have to say is if we could have enough funding to see the alternative health providers such as naturopaths, acupuncturists, chiropractors, massage therapists, etc.? The extra 10 visits that we get only provides us with $23.00 a session which isn't close to covering costs a visit.? Also, all the supplements and vitamins aren't covered and they can be quite expensive for the best ones.? These alternative health providers would be far better at healing a lot of us and for me as well so I can get my feet back on the ground.? We cannot afford any of this help and get our mainstream Western Medicine appts and drugs paid for but drugs don't cure a lot of the ailments we suffer from and some actually cause more harm than good because they are a band-aid and don't get to the root of the problem.? The Supplement form that we are supposed to fill out shouldn't have to be signed my medical doctors.? They don't have much education in the natural health department whereas the naturopaths, etc. are the ones who specialize in these areas and should be given the privilege to sign the supplement forms.? Also, with the supplements, you get turned down because you have to be on your death bed in order to qualify for anything.? For myself, I can heal myself with natural and holistic measures and probably would be able to work again and maybe even get off disability in the near future without the stress of money hanging over my head.? I would like to see a lot more funding going into the healthy treatments, vitamins and supplements.? I'm talking from a place of desperation and we are all struggling.? I'm raising my 14 year old daughter sick and single.? I'm her only parent and I have to be making money on the side somehow.? That puts undue stress on me and doesn't help me to get better and have a better life instead of living in poverty.? Please help us somehow.The World Health Organization defines acquired brain injury as: Damage to the brain, which occurs after birth and is not related to a congenital or a degenerative disease. These impairments may be temporary or permanent and cause partial or functional disability or psychosocial maladjustment. (Geneva 1996)Acquired brain injuries, including concussions, can result in significant long term issues. This is a high-risk population with a strong correlation with low education/employability, poverty, substance use, criminal justice involvement, health/mental health issues (depression, paranoia, schizophrenia) and homelessness.In a study of more than 900 homeless people in Toronto homeless shelters and meal programs it was determined that “the lifetime prevalence among homeless participants was 53% for any traumatic brain injury and 12% for moderate or severe traumatic brain injury. For 70% of respondents, their first traumatic brain injury occurred before the onset of homelessness.” (Hwang, 2008)Early intervention and access to a range of services are essential in aiding recovery, reducing the risk of substance misuse and homelessness. Providing options for support housing that include case management, addictions counselling modified for people with cognitive impairments and life skills development have a higher success rate of getting people back off the street. [Name removed] is a young woman who was homeless on the streets of Langley, BC several years ago as a direct result of the effects of her acquired brain injury.At the age of eight, [name removed] was struck in the head by the side mirror of a vehicle speeding through the school zone as she walked home for the first time with an older sibling. She was in a coma for two weeks and then spent over two months in various hospitals undergoing physical rehabilitation. The rest of her school years were full of frustration and torment, as she felt misunderstood by her teachers and peers. ?[Name removed] was bullied by the other children because of her cognitive difficulties and impaired social skills. They called her ‘brain-dead’ and told their friends not to hang out with her. As a result, she had difficulty forming positive relationships and fell in with the ‘wrong crowd’, the only group of peers that would accept her. Poor decision-making skills, cognitive problems, low self-esteem and loneliness pushed her deeper into drug use as a teenager and she eventually ended up living on the streets of [location removed] for six months. With the support of her committed family, an addictions counsellor and her [information removed] Brain Injury Association case manager, [name removed] found the resources and the strength to get clean and sober. Now in her late twenties, [name removed] is living in her own apartment, works part-time and has the tools she needs to function independently. She is positive, joyful and able to solve issues before they become a crisis.People with brain injuries are seriously marginalized by cognitive, physical, emotional and behavioural issues that affect their ability to work and to obtain and sustain safe, affordable housing without a consistent support system in place. Successful housing models such as the one that City Council just turned down the rezoning for are an essential component of getting homeless people off the streets and keeping them there.My 16 year old son is in the final process of being diagnosed with an extremely rare [information removed] disorder called [information removed]. This is an episodic illness that is extremely debilitating while he is ill for weeks at a time. In between illnesses, he is a perfectly normal child- athletic, bright and attending school. This illness typically lasts for 8-10 years so he will be intermittently disabled until his mid-twenties. My fear for him as he transitions into adulthood is whether he will qualify for PWD because he's not always ill, what are the options for employment for someone who may abruptly have to stop working for several weeks to months at a time, and how he will continue his education? He can't live independently without support when he is ill. Our family will be there for him unconditionally but what about others who are in similar situations (migraines etc) that don't have the same family support. Are there enough supportive housing options? Are there possibilities for supported employment? I am scared for his future.My son has autism and at the time of my move here to BC in [information removed]he was [information removed]years old. He was also 6ft tall, 230lbs and often violent and out of control. We had been living in Winnipeg Manitoba where after another violent episode directed to his younger and much smaller sister I finally was forced to call their social services system and have him placed in a group home. It took 24 hours from the time I called until he was placed in a secure, safe group home with 2 other boys and 24 hr trained staff. Excellent service and had I had any idea how terrible the 'service' in BC was for children with autism I never would've brought him here. In 2007 my marriage broke up under the strain and I moved to my hometown of [location removed], BC to be closer to family. I called BC MCFD to ask about how to transfer my son's care to BC and they told me to just show up in BC and meet with the social worker when we got here. I did that in January 2008. After only a few weeks of being here it was clear that I could not keep my daughter or myself safe from his violence. I called MCFD for assistance and met again with the social worker to request a voluntary placement for my son. She told me that I needed to be working with CLBC as he was disabled. I then went to CLBC and filled out a mountain of paperwork only to be told that I needed to be dealing with MCFD. I called the social worker again and was continually shuttled back and forth between both agencies telling me that there was no place for my son to live. In the meantime, myself and my daughter were subjected to constant physical and verbal abuse from my son. I fianlly had to send my daughter to live with my parents and was essentially locked in my apartment with my out-of-control son who outweighed me by about 100 lbs. Numerous calls, e-mails, pleas to MCFD social worker went unanswered. In complete and utter desperation I finally called his old group home in [information removed]. They said send him back. I booked a direct flight for him, and he was back in the group home within 12 hours. That is what happens in BC if you have a disabled child that you cannot manage in the home. You have only two choices - throw them out on the street or send them thousands of kms away to a province that actually cares about children. If I had known how terrible the services here were for disabled children and their desperate parents I never would've moved back to my hometown and I regret it every day. I could not move back to [information removed] as my daughter was finally settled and happy so I am forced to fly back to [information removed] every year for an all-too-short visit with my son. After the amazing and wonderful care and training he received in the group home in [information removed] he is now living on his own in an apartment after aging out of care. Had he still been living here he would've been on the streets and costing the taxpayers an extraordinary amount of money to keep him there. BC needs group homes for youth with disabilities to keep them safe, to protect families and to train these youth to live independently.I live in the [location removed] riding, there is no low income housing, other cities have it where they pay thirty percent of there income, that would be nice to have in this riding, but because we are small we get forgotten about or no one cares.Also it would be nice to get more coverage on dental as thousand dollars every two years is just not enough.More money a month would be great as 906 just is not enough to survive on.This has been an issue for years I hope all this comes to something that after you get all your information it is not just put in draw some where and forgotten out, because that is how it comes across is that for the five year we just have not been important enough. I hear what my friend gets in Alberta she get like between 1250 a month to1400 a month, but you guys keep saying we have a balanced budget, but I have heard liberal MLA say we do not have enough money to give you guys an increase so what is any different, what has changed?I hope you take to heart what all of us our saying, because it have to say at this point the NDP is still better for me, but you have a chance to show me that the liberal party cares. Thank youI would like to request that raising disability rates AND building/advocating more low-income housing affordable and secure for people on disability be included in the White Paper. I know various people on disability who are struggling to survive on those rates and a serious lack of social housing that could make their lives easier and more dignified. Thank you.There are many ways in which persons with disabilities could be better served in British Columbia and you have probably heard them all.? I would like to focus this submission on an area which is possibly not so well known and may not have been expressed by many to date.?I am a person who is blind.? I have been going blind most of my life and have experienced partial vision and virtual total blindness and all the stages in between.? I have worked for many years, advocating for services and supports for persons who are partially sighted or blind, and I have seen few, if any improvements over the past forty years.?Why is it that we are ignored?? Is it that losing one's eye sight (or not having any to begin with) is not considered a serious impairment?? I don't believe this is the reason.? Blindness is feared as much as cancer.? Most sighted persons cannot imagine how they would cope if they lost their vision.? The Canada Revenue Agency considers blindness a serious and prolonged disability.? ?Is it that the Provincial Government and the population in general, believe the needs of the blind are taken care of by the Canadian National Institute for the Blind (CNIB)?? For those who believe this, the reality is that the CNIB can't and therefore don't.? They rely on donations and consequently are having to let staff go, sell buildings and cut programs.? These programs were often unable to meet the needs of clients when they were better funded and now the support they can offer is minimal.? If you do not qualify for ICBC, Work Safe or the like, you may not receive much service at all.?Is it because the Government does not care about the needs of persons who are blind?? I hope this is not the case but I am beginning to believe this might be, at least in part, the answer.? If not, then why is it that if someone becomes blind from a vision robbing disease such as Retinitis Pigmentosa, there is no Government funding?for rehabilitation.? No funding to teach that person how to live independently as a blind person.? An individual who, on the other hand, loses the capacity to be physically mobile, is entitled to receive government funded rehabilitation to learn to live independently as a person who cannot walk.?Likewise, a Ministry client on PWD who cannot walk, may be entitled to receive a variety of medical health supports such as a wheelchair, mitigating the most serious effects of their disability? ?On the other hand, the most serious result of not being able to see is not being able to acquire information.? A blind person receiving PWD, however, is only entitled to request a white cane.? A white cane does help a blind person get around but does not mitigate the effects of not being able to gather vital information, a most serious impairment in today's information age.?Similarly, anyone receiving social assistance is entitled to prescription glasses.? Obviously optimizing vision is considered important enough to be funded by the Government, yet if an individual happens to have an eye condition which is not helped by prescription lenses, but would be helped by a magnifying device, this device is not funded.?If the Government is serious about being the most progressive province when it comes to disability services and supports, then it needs to stop ignoring persons who are blind.? It needs to stop discriminating against persons who have a sensory disability.? It needs to provide them with the same level of Government funded rehabilitation as it does for those with a physical disability.? It needs to recognize that acquisition of information through assistive devices is just as important to a blind person as getting around is to those with mobility challenges.?For the past four years, British Columbians who are blind, at least those who would like to work (75% are unemployed), have had a chance to catch up through the Equipment and Assistive Technology Initiative (EATI).? EATI has helped to mitigate the most serious effect of vision loss, inability to acquire information.? It has provided them with magnification and speech output devices that make it possible to read print materials, search the Internet, send and receive emails, take and read notes at a meeting and find their way around in their community, all tasks that are essential at home and in the workplace.? ?Minister Don McRae was quoted in the Prince George Citizen on Jan 24, 2014, "Some of the support programs we have here, like the Equipment and Assistive Technology Initiative, and it’s recognized as being a nationally leading program."? The first report on the UN Convention on the Rights of Persons with Disabilities (the Convention), also lists EATI as one of the programs that show how BC is meeting the requirements of the Convention.? ?Minister McRae went on to say, "Some of the social innovation work we’re doing is absolutely phenomenal but the question is can we always be doing a little bit more?"? With the end of EATI on March 31, 2014 I am afraid we will be doing a lot less!!?If the Government is really serious about being progressive then they need to be a little less serious about holding the fiscal line.? BC needs to catch up first before it can become the most progressive province when it comes to programs/supports for persons with disabilities.? It needs to take a serious look at EATI and how it delivered a very cost effective program which directed the majority of its resources (over 80%) to persons with disabilities.? Persons with disabilities received much needed equipment and assistive technology through a program that allowed them the dignity of directing the process; building their self confidence and leaving them with a feeling of empowerment.? Many also went on to acquire employment.? ?Proportionally, blind persons were more likely to apply to EATI and this is not surprising as their needs are great.? For a short time, blind persons could hope for a better life and the possibility of employment and not a life of poverty.? ? Now that EATI is not to be funded federally and the provincial Government does not seem to be willing to step in with funding, will the needs of blind persons once again be ignored?? ? I am 57 years old, been self employed most of my life, was diagnosed with [information removed] in 2002 and had to quit working in 2001 as I couldn't perform my job anymore. I lived in Ontario all my life and moved to BC in 2013 hoping for a better and healthier life. I am on CPP Disability and make $865.00/month. I am currently in a wheelchair. Since my arrival I have actively been searching financial assistance to help make ends meet on a monthly basis. I also bought a house which needs work to make it truly accessible. I have a mortgage. I have a common-law partner but he is not financially well off and has no savings. We applied to BC Housing to get funding for renos only to get turned down because we make too much money!!!!! We met the property assessment guidelines no problem but as a couple we were only allowed to make $25,000.00. How are you supposed to have money to cover the renos and be able to afford a $300,000.00 house on $25,000.00!!!Something is wrong with the system. I am the person with the disability yet my partner's income is always taken into consideration. Also, what about the government's mandate to help make it possible for persons to stay in their homes longer. I looked into applying for PWD status. Not worth the trouble for a paltry $1,270.00. Both of us are penalized if my partner makes more than $1,000.00 a month. That is way below the poverty line. Ontop of that if I have any savings I have to spend money which I don't have to set up a trust and have to spend extra money at tax time to prepare a separate tax return and I don't have control over my own money!If you want to help the disabled stop putting unrealistic conditions on us and offer us a decent monthly income. Not only do we have the usual expenses but we also have extra medical expenses, special diet requests which are expensive and medical equipment which is outrageously expensive. I cannot be treated by traditional medicine and I have found a private doctor who can help me but he charges $150.00/hour and I need to see him once a week. There isn't enough money to go around.The government has to gain a new perspective. They have to see that if they provide us with the financial means to get healthier, that we would be less of a financial burden to society. Instead they want the disabled to get progressively sicker. The government is just making things worse. People with disabilities need a healthy diet, the financial means to get whatever help they need to get healthy ie.physio etc.. plus enough to beable to live a decent life. Right now we are under daily stress wondering how we are going to survive. Stress is not good for individuals with disabilities. If you are fortunate enough to be able to work don't penalize them by clawing back their assistance. You are forcing people to become dishonest. There is too much time wasted having the doctor fill out forms. The government should design a booklet which contains all the benefits that a disabled person is entitled to and one generic form that the doctor needs to fill out. The disabled person can tick off and fill out the forms for the benefits that they want and the doctor needs to fill out only one form. This would be beneficial to both parties because a lot of time is wasted on the computer searching, a lot of disabled can't afford a computer and doctors valuable time would be freed up treating patients. There should be disabled people involved in all aspects of the decision making.They need to trim the fat. Get rid of programs that really don't benefit anyone, streamline the departments so that there is extra money to give to the disabled. We contribute to society and we should be treated like first class citizens. Right now I feel like we are being treated like lowlifes begging for scraps. This does not reflect well on the government. I could keep going on but I feel that the most important concerns have been addressed.Our son has an invisible disabilitly – [information removed]. He has high executive functioning. The support system for an effective recovery in [location removed] is non-existent. There is no Canadian Mental Health representative here. After hospital stay there is a day hospital program and that is it. PSR (psychosocial rehabilitation) is urgently needed in the City of [location removed]. Without supportive recovery models people are at risk to repeat the cycle of their illness with repeated hospitalization etc. Please do not study this and spend money on white papers. There is an effective model in effect already called "The Clubhouse model of PSR). They are located worldwide. In [information removed] B.C. there is one called "Pathways". Please help us - and have one built here ASAP. Families need help with their loved ones. We are quite desperate.Transition to adult services: from the viewpoint of youth with disabilities, their parents, and supports“Transition“ is the journey that a young person with a disability takes as they turn 19 and shift to adult services from those provided to children. On Jan 21, 2014, a panel discussion was held at Sunny Hill Health Centre to examine transition issues from the viewpoint of youth with disabilities, their parents and supports. The panelists were:[Name removed], a young woman with physical challenges who is an advocate[Name removed], a parent of a teen with complex cognitive/physical disabilities who has not yet gone through transition[Name removed], a parent of young adult with developmental disabilities who helps to coordinate a parent-to-parent transition support group in Vancouver.[Name removed], a medical doctor from BC Children’s Hospital who works with the Youth Transitions project[Name removed], a social worker from Sunny Hill Health Centre moderated the presentation and discussionThe following ethical principles shaped our discussion:autonomy – individual makes their own decisions, unless unable to do sothe obligation to provide care in a person’s best interestbenefits are expected to outweigh possible harms; justice/equity? Young person’s perspective:- There weren’t many group homes, services for differently-abled people or even accessible sidewalks in her small BC home town. So as a young adult she decided to move to [location removed]. -She was excited but scared, too, and wondered how she’d cope without her family.-She spoke about adjusting to new housing, learning new routines, going to school and getting established with a church and new friends.- The system’s very challenging to work with: “I think it’s vital for differently abled?people as well as?their parents to get totally assertive and “drive the bus” because otherwise we won’t get our needs met or have a good quality of life!”-One solution may not be best for all differently-abled people.? For example, Representation Agreements governing banking and living arrangements are helpful for some adults with developmental disabilities, but not for people with physical challenges, she feels. If a representative has control over finances the self-esteem of the differently abled person will decrease. As long as the person is mentally capable he/she should be able to manage their finances and other decisions using on-line banking and stamps for signing cheques, etc. Parents’ hopes/fears -Parents want a high quality of life for their children as they become adults.-They wonder how they will negotiate the maze of services and become a knowledgeable advocate for their child. Can all dreams/needs be accommodated by the system?Parent of teen:-One parent said she was reluctant to start as the transition tasks seemed so daunting. Parents are trading information as they rush by each other in parking lots. Is there any central place to find all of the info about services and the transition processes that must be undertaken?-Will there be the same level of service for my child when she becomes an adult? Parents know that many adults don’t get the level of services that they need (day program, respite, physical care assistance, etc). They’ve been warned about the “dark void” where there are fewer services for adults than for children. Parents want the level of services to stay the same.-Families have had the same pediatrician and therapist for many years who knows their child with complex needs well. How can new providers get to know their child in a thorough way? Doctors may be paid by number of patients seen per day, and not on salary as hospital pediatrician. Do they have the same amount of time with our child who has very high care needs?-One doctor advised a parent to ask all service providers she interacts with in the next 2-3 years about transition as there is so much info that needs to be passed on to the adult system.-Can the wheelchair and other equipment my child needs be regularly serviced and replaced when needed?Parent of young adult with developmental disability:-Parent is an organizer with the Vancouver Parents Transition group child is now in the adult system. Transition was a time of big change. School, pediatrician, Sunny Hill Health Centre and BC Children’s Hospital services all come to an end when your child turns 19, in the eyes of government. Young adult may be left with nothing to do all day and with nobody to help the family. “People with developmental disabilities don’t get cured at age 19, so the challenges for family remain”. -Community Living BC: Just because you’re eligible doesn’t mean you’ll get services [because of wait lists and funding shortages]. -You have to be an advocate for your child.-We need housing solutions so our child can live independently of us. We are aware of what happens to a child when the parents are no longer alive to provide for and advocate for them. All parents are mindful of that and worried about it.-In pediatric hospital we could sleep in the same room as our child and the system was so responsive to his needs. This is not possible in the adult system, even though our child still has the same level of need.-Parent to parent support is available. It was good to publicize the work of Vancouver Parent Transition group. Some in the health care system had not heard of this support. This group was started because …”everything comes to an end at age 19. There is no body to help you”.Physician perspective- The ONTRAC program has been established to support transition of adolescents with chronic diseases/conditions from pediatric?health care into adulthood. ?-In this report, Transition is defined as the purposeful, planned movement of adolescents with chronic health conditions from child-centered to adult-oriented health care. It addresses the developmental issues of adolescence while ensuring care is continuous, comprehensive, and coordinated into adulthood and the adult system.-It’s a challenge to transfer info from pediatricians to adult MD’s-About 1700 children per year are transitioning to adult services-There are 34 regional groupings of family practitioners that could be used to share info with doctors serving adults, rather than attempting contact with all GP’s in BC.-Transition begins before age 19 and goes on for many years. -The health care system often doesn’t know about supports that parents need through transition.-Many parents feel that they’re dropping off a cliff -Try to identify an adult doctor 1 year before transition so that he/she can get to know the patient.-Will family doctors have access to ancillary services – ie therapy?-Pediatrician in hospital is often paid on salary. There is different reimbursement for family doctors for adults and therefore they may not be able to spend as much time with the patient. How can a young adult with complex care needs get the level of service they need under this funding model?-Parents have to learn to drive the “advocacy” bus for their child. This takes time. They may have to get their L license and then their N as they learn how to advocate.Children serving agencies should do better to prepare people for autonomy. February 2014I attended the White Paper meeting last week and forgot to mention something: ?there are a number of certification programs that are appealing to me through the community education departments in various post-secondary institutions. ?These programs are ideal for people in recovery as they are part-time and are ?definitely geared for getting back to work and starting a career. ?However, very few of them meet the requirements for funding (part-time study grant/student loan etc.) and it is a shame because I can't fund the training required to start my new career. It would be great if you could extend funding to these programs as they are very suitable for people getting back to work. The problem now is that it's impossible to fund them. (for example, I wanted to take the Lanagra College Copywriting Certification Progam - a part time comprehensive progam for writing in advertising - but was told there were no funding options so I can't now follow my career goals. ?Such a shame! Thank you for considering this in your report.they should include the continuing education certificate programs in the part-time study grants for people with disabilities. Those courses are ideal for those who can't study full time and want to pick up some job/career related skills (very very few of those courses meet the criteria for funding - it's discouraging and a shame). Also one should be allowed 20,000 in savings not just 5,000….sheesh!SEPARATE Welfare and Disability….they are different, and very hard on self esteem to be interpreted and treated like on welfare…..my father always accused me of being on welfare, very unfair and stigma! I am on disability , not welfare!!First let me say that I am thankful for British Columbia's very accessible Transit system; the private-public initiatives in regards to housing people with disabilities; and the RDSP.However, we have far to go...those of us who rely on disability benefits have not had any increase in the provincial amount for many years. ?In fact there been several mean-spirited cuts to services that we really need. Things such as a yearly clothing allowance; a CVP benefit change that now no longer allows new Disability Clients to be able to collect up to ? ? ?$100 per month for volunteering ; if you want to keep the CVP, you best not plan to get ill or need to take time off ! The Pst is still paid by all of us in BC but yet low-income people used to get a GST/PST check 4 X per year, so why was the Pst removed??This would not cost a lot of money as British Colombians are Canadians too and deserve the same amount of concern and responsibility as other Canadians; whether they work or not. This Government has no problem spending money on often rather expensive projects; shouldn't humans come first? Then those of us with disabilities who can work full-or part-time can take advantage of what many have called the most progressive Province in the most progressive Nation !?One question came about as to how to make society more accepting and inclusive of those of us with disabilities: ?It is very hard to charge the beliefs of society; and even laws cannot soften hearts. Those of us with disabilities often learn to deal with those not ready to accept us. But of course, in this society many people with disabilities often find it harder to get work due to discrimination. ?I hope that your White Paper comes up with real solutions for those us with Disabilities; especially financially.Thank you for doing this.?I have the pleasure of working on a [information removed] team.? I have some concerns that I would like to voice here regarding access to care and housing for our I/DD population.?1 – Many of my clients cannot afford healthy food, their disability cheque does not cover the costs of whole, nutritious foods for a month here in BC. To make ends meet they often rely on the food bank which provides less than optimal nutritional choices, or they eat cheap processed foods to make it through the month (example wieners, kraft dinner, white bread/buns). I have many clients who will not access food bank d/t stigma of doing so.2 – Many of my clients are obese, and need specific supports for weight loss/ education around healthy eating/and often assistance with cooking skills. These opportunities are very limited for this population, and for example access to cooking programs is first come first serve. As you can imagine many programs get filled up immediately, and those folks that get into them are often repeat customers, and they are those that have strong advocates. This makes the access unfairly less available for those who really need the program.3 – Contacting the Ministry to get funding for dietary allowance/monthly nutritional supplements is a night mare. I recently had a client in my office who, d/t cell phone costs was unable to access ministry because being on hold for 20 minutes would cost him too much money. This is just one small example of a barrier to access. There are too many different answers from different people who answer the phones. You need a streamlined process. 4 - I am not convinced that the “home share” model of housing is the best choice. I say this because these living situations can mean poor nutritional intake (processed food, PB sandwich +juice box + granola bar + high sugar fruit snack every day at day program is an example of what I see), lack of stimulation, and isolation from peers. There is also often a lack of education on the part of the home share provider on what they are getting into and from my point of view basic health needs.? 5 – It was very disappointing to only find out about the opportunity to participate in this whitepaper from an email circulated via a colleague after the session in my town was already over.? 6 – I am also disappointed at how complex the whole whitepaper web site is. Honestly how many of our folks can navigate it? I had trouble figuring it out, so finally I just decided to put my comment in the form of an email.7 – I work for a health authority and therefore feel that I need to put my comments in from my own personal email, anonymously.Thank you for asking.Over the past year I have been hit with bills from my dentist in regards to my teeth. I am on disability and unable to make ends meet as is. After researching the problem I found out that Ministry has not addressed the fee schedule in many years in regards to what they pay for dental. However, the dental fee's at the dentist offices are done yearly. There is an actual governed committee that decides what these fee's are so that one dentist doesn't charge more than another. The Ministry's fee schedule is years behind the dental fee schedule causing many on disability to let their teeth go to be able to eat properly and pay their regular bills or simply letting something go like proper food to pay for their dental bills. Health is a right of all people specially people on disability that have no other choice but to get the help from the government.I am a mother on disability. My daughter recently became and adult and in need of support as she is unable to work at this time. At first the workers said she was entitled to $485.00 a month but when a review of the file was done (8 months later and caused an over payment and tribunal time etc) they realized that legislation states that because my daughter lives with me she is only entitled to $235.00 a month. My grievance is that the legislation doesn't allow for the parent being on a fixed income or no income at all. It is assumed the parent can afford to support their adult child. The operative word "adult" child.Regardless of where they live the "adult" child should be responsible to support themselves as an adult. Self esteem and self worth are just a few things that would help that adult child progress and find work and stability of their own. $235.00 to live is way below poverty at best. No one can eat, be clothed, have toiletries, and all the basic needs a person has to have to live.Some good suggestions: ( I also attended the group [date removed] on so know a lot covered, just wanted to point out more clearly here)FOCUS: ?Compassion, DE-stress, Resources, Incentives and Help.----------------------------------------------------------------------- ?**(immediate response to problem) get rid of deducting cheques for income earned and some other stuff (trusts)- ?(long term) get incentives out to employers to hire and accommodate PWD. (tax breaks)- ?(short term remedy) make payments on same day each month, I along with others struggle deeply on that 5th week which happens way too often.- ?(very important) have positive messages (ads ) on Tv reinforcing people with disabilities are not criminals and have value and gifts and most importantly a great attitude towards working.- ?get the police much needed training if they are to remain the front line, give respect to disabled, not shoot and handcuff, don't treat horribly.- ?get a Mentorship program where people pitch in their efforts either volunteer or stipend and mentor those struggling to figure out how to live within or eventually strive to live without the system. (like big brothers)- ?make a welcome package of papers and lists of what is available and how to access it with a central resource centre as a base for it to phone/visit ?and help you.- centralized resource centre who is kind welcoming , compassionate and friendly towards these mental health suffers would be extremely beneficial.- hit the streets giving homeless people resources to be reached out to.- stigma has to disappear- I notice this very strong aspect, to do, need ads, education, sending out to employers a list of benefits and possibly tax breaks to those who hire, allow flexibility and short pt work for those who wish to work.- don’t monitor people ?and their earnings to stress them out and make them more paranoid.- get rid of security guard at ministry offices, is horrible esp for such innocent people who walk in. compassion seminars every 6 months for these highly paid workers at the ministry would help and go a long ways. They treat you like an imposter and criminal there.- Reopen/revamp Riverview for the desperate handful who just can’t make it and need a place to live, make it a place they want to go to too.- Shorten the list of people on disability who CAN (QUALIFY) collect, I know of plenty esp. with slight mobility issues but can think and show up to a desk job, who abuse and are on the system, (I’ve witnessed immigrants who collect and dance when they come out of the office from receiving their cheque)... when you shorten list to those deserving of the benefits, then give them MORE and allow them to WORK and SAVE Without being penalized or paranoid or do math. it must cost a lot to monitor people. give a raise of 500 /month to those deserving, say with severe mental handicaps for whom work is nearly impossible. Alberta has shorter list but treats them better and special.follow alberta and austrlalia, they are always ahead.- have 'work centre' formed just for mental consumers so they may get help with resumes with gaps and seek out work (jobs).- make sure people can access programs like housing(MPA & BC housing) and support easily, it was luck and chance I got these supports, also accessing funds avail to help in re-training, trades are good skills to get.I for instance accessed (special situ) about 50,000 to train as cardiac tech from CFA. there are many others sources out there too.make like cancer where people can donate to this education fund.- present as many ideas to the govt as possible like a smorgasbord so they may fill their plate with ones they can implement. don’t give 3 top ones, they will likely then just pick one.- have special postings on crags list for those who can only work a little and are disabled, have this known to employers they can list jobs here, specifically tailored to the disabled.- give workshops to disabled in budgeting and managing money and getting RDSP in place for them. let them grow assets. Take away age 59 to collect RDSP, make 50.- the INCENTIVE to work and get money for oneself and be independent does NOT exist, there exists dis-incentive to work, WAY too difficult to give back money earned and why work then?….people already have low self esteem.- make teams kinder towards mental and not treat like a number or with disrespect, I gained a lot by leaving mental health teams and going to private GP. they are overwhelmed and overloaded and stressed out.- HOUSING: big problem accessing and gregor should be pushed more and helped more by province to provide housing to those in great need. Just not immigrants who need a hand up or hand down.- FOOD: food bank hardly give you any food, just supplement, people starve esp the last week or two of income support, is BIG stress and very hard to eat in [information removed]. Have more access and food avail to mental people vs, low income people. I live on 5,000 / year. can you do that or can gregor or the ministry of social development? make 10,000 but paying bank 5,000 in interest cause I went to school and got into debt over 10 years while sick and impossible to work. Give out gift cards 50/month of ‘shoppers' and also 50-100/month to buy good food (in form of gift card whole foods does lots for communities),vegs, fruits etc.- don’t deduct sick EI or WCB insurance if deserving of. real crisis time. Is not double dipping. very few take advantage of the system, you will always have the small few that do, but don’t take out on the many who need help and compassion and ease.- Make more incentives to work and be recognized as contributors to society, give incentives to mobility issues people, wheelchairs, they CAN work nowadays with Computers and such, much more difficult for mental person to show up for work.- get people, homeless off the streets, very bad image for disabled, badly portrayed.?- (very important law) Don’t allow media to disclose personal, private medical information anymore like mental illness, …..that will help make stigma go away too.thankyou for listening,I have a disabled 26 year old daughter with multiple serious health problems. Raising her was a real struggle for my wife and me (mentally/physically/financially). We received very little community and government support.She managed to complete a drafting course at [school name removed] and obtained a job. She was mostly independent for a while (living on her own), but her job has caused her health problems to escalated in the past year and she is now working less than half time.Her GP has her receiving therapy that is not covered by Medicare. She has also been diagnosed with several food sensitivities, increasing her grocery bill. In short, her income has gone down while her expenses have gone up. She has taken out a personal line of credit at the bank to help pay for these (she has no savings). We (her parents) have contributed to her new additional costs, but can only afford so much. I have enquired as to whether there are government supports for her but haven’t found any. She needs assistance in paying for her treatments and potentially retraining for new employment that can accommodate her disabilities.It seems as though the “system” requires that her health spirals downhill putting her out of work and on income assistance before she qualifies for additional support. She is smart and really sweet.It’s tough to see her lose ground.She needs the province to provide her with a case worker that can analyze her situation, recommend a course of action, and put her in contact with the appropriate organizations while providing temporary financial supports to keep her trained/employed and give her hope for being self-sufficient.I would very much appreciate a reply to this letter.As a parent and grandparent of deaf children, I would like to make a submission to the White Paper on Access for Disabilities. My focus is in regards to education, and therefore, accessibility for Deaf and Hard of Hearing students to a fair and equitable education. My daughter was born deaf in 1983, however I was unaware of her deafness for the first year of her life. Back then, early screening for hearing loss was not available. My introduction to sign language was delayed and therefore, my child’s language development was also delayed and consequently impaired. Her ability to understand her world and the social nuances of our society was a slow and sometimes painful endurance for her. Nevertheless, she has grown to be a wonderful and successful member of the Deaf Community with a college degree and a child of her own. How was she able to struggle through when the odds were against her? She was lucky to have a number of supports on her side. One was a mother and father who were serious about giving their deaf child the language needed to communicate her hopes and dreams. As a preschooler, we were able to receive wonderful, supportive services from Deaf Children’s Society. Also, the Provincial School for the Deaf gave my daughter a school experience that enhanced her learning and her social/emotional development. The school, which understood her need to make connections of everyday experiences that hearing people take for granted, fostered her love of learning, reading, and questioning the world around her. Fast forward twenty-four years to when my granddaughter was born, who is also deaf. The early screening program provided our family with the information that she was deaf when she was 2 days old, rather than the full year it took 24 years earlier. Sign Language is a very important part of who we are as a family, and therefore language delay for our granddaughter was not an issue. She is as fully aware as any other 6 year old hearing child in Kindergarten. She is a beginner reader, who asks thoughtful and insightful questions about the world in which she lives. She can fully participate in discussions of social and emotional issues and give mutual support to her deaf peers as she grows and learns. She attends the Provincial School for the Deaf, where she is able to show her intelligence as a leader in her classroom. She is not seen or labelled as a Special Needs Student as she would be in a regular stream classroom. Her ability to be an active learner is based on receiving instruction in her first language, which is American Sign Language. In a regular stream neighbourhood school she would be paired with an interpreter, who would interpret the information from the teacher, not simultaneously to what the hearing students receive, but up to 15 seconds later. If you have ever taught in a classroom, you will understand that my granddaughter would be at a disadvantage. The other students would be answering questions, or the teacher would be onto the next thought before my grandchild had the opportunity to respond, ask questions, or add to the information. If my granddaughter needed clarification or wanted to add to the conversation, she would be seen as off topic, if not by the teacher, surely by the other students. Often young deaf students in the mainstream classroom are left behind academically or develop frustrations, which lead to acting out behaviour or a loss of motivation to stay focused for learning.For older deaf students, using an interpreter in a mainstream school setting has better academic outcomes; however, issues regarding social identity and self-image becomes a major social dysfunction, much in the same way as Aboriginal youth experience. Education for all deaf and hard of hearing students is paramount to securing success in their later years. We need to continue to educate deaf and hard of hearing children in the least restrictive environment possible. It would be unfortunate if the Provincial Government decided that mainstreaming deaf students is their mandate, as best practice for educating deaf students. My granddaughter would be very lost and rightfully angry to be put into a hearing classroom, which puts barriers up to her receiving an education in her first language. She is not a special needs participant in her classroom at the Provincial School for the Deaf, however at her neighbourhood school that label, and all the stigma that is attached, would be placed upon her. Through consultation and thinking outside the box, let’s brainstorm solutions to the never-ending dilemma of educating deaf and hard of hearing students. Let’s think about increasing not decreasing the enrollment at the Provincial School for the Deaf by working to improve the services it provides. For example, give parents of children with cochlear implants access to services at the school, along with inclusion for their child into a hearing classroom, if applicable. Services such as speech and language therapy, technical support and/or trouble shooting for cochlear devices could be forthcoming. Open the school enrollment to include students who use hearing aids and oral language to access instruction, again in a hearing classroom if applicable. These services would be at one school site and would improve the outcomes of deaf and hard of hearing children who are currently falling through the cracks and in some cases being marginalized throughout mainstreamed B.C. schools.I have heard from many frustrated parents, who have been unsuccessful in accessing the Provincial Outreach Program, that their children are not receiving the appropriate support in mainstream settings. In fact, they are being told that their children are just not listening well enough or have behavioural problems. This criticism of children with hearing loss is offered without taking into account their hearing abilities and levels, or their frustrations within a noisy or crowded classroom. This is not the fault of the teachers, administrators, or resource personnel; since deaf and hard of hearing education/edification is a specialized area of expertise, which requires the facilitator to have a Master’s Degree in Deaf Education. Without this specialization throughout the school day, these children are not receiving a fair and equal education. How does this relate to access for disabilities? My granddaughter and her friends are very interesting and intelligent young students, but they will quickly become jaded, cynical and isolated through their school career if they are placed in a mainstream settings where few, particularly in areas outside of the Lower Mainland, will graduate with a Dogwood Certificate and even fewer will continue on to post-secondary schooling. Their working future could also be problematic, especially for deaf girls, owing to the fact that the service industry is their usual career path. Many of my daughter’s deaf friends, both male and female, work with deaf children as support workers, social workers, or as Teachers of the Deaf within the BCSD and PDHHS. The school and service agencies for children and youth has always been a wonderful career goal, which has allowed the Deaf Community the opportunity to contribute to society and the education and wellbeing of the next generation of deaf individuals. There is a better way to effect change for children who are diagnosed as deaf or hard of hearing, with or without a cochlear implant. Let’s look at developing an environment that uses best practice strategies directed at their strengths, rather than putting them into an environment that illuminates their disability and therefore denies them access. The White Paper is an honourable attempt at breaking down barriers for people with disabilities, whereas closing or restricting entry to the Provincial School for the Deaf, especially for children living outside the Lower Mainland, would be the complete opposite of this, by putting up language barriers for student within our B.C. school system. It would be to the government’s best interest to engage the parents, Deaf Community, and other stake-holders providing services to the deaf and hard of hearing, to come together to effect positive changes within the deaf education arena. Consultation is the best way to ensure that my granddaughter and her peers can develop the same abilities and skills as her hearing counterpart to access a future that will acknowledge her as a contributing member of our society.Thank you for the opportunity to make this submission.Reducing barriers and increasing accessibility for people living with disabilities in British Columbia:Answers to key questions:1) It’s important to reduce barriers and increase accessibility for people living with disabilities in B.C. because any society will be stronger, healthier, wealthier and happier if all members of the society are allowed to participate in their society with an acceptable degree of fairness and dignity. To not allow members of a society to fully participate is to seed, foment and facilitate crime, poverty, illness, resentment and a host of other societal afflictions that are harmful to the society as a whole and to individuals within the society.2) British Columbians can welcome the contributions of people with disabilities by learning to be open to the possibility that they may have to alter what they consider a “contribution” and by actively creating opportunities for people living with disabilities to succeed in. 3) I don’t believe that the private business community (of their own volition) can or will foster opportunities for people living with disabilities because it simply is not their focus or mandate, the “bottom line” is. (Not all people with disabilities are suited to or able to participate in the “service sector”.) Therefore it is incumbent on the government to actively facilitate and create these opportunities. Real, “bottom line” incentives for private companies would remove barriers as would jobs or opportunities specifically created to facilitate success and dignity for people living with disabilities. 4) B.C. would look like the most progressive place in Canada for people and families living with disabilities if there were visible, high profile and meaningful programs in place with targeted goals of increasing opportunities, decreasing poverty and educating the general public about the societal benefits of these efforts. Here are some additional thoughts relating to the six discussion areas of interest:People living with disabilities want to feel like they belong in our society. They want to feel good about themselves and about their place in society. To do so they have to have the resources and the supports to live a life with dignity, free from poverty, illness, hunger, loneliness and homelessness. As a society it is incumbent upon all of us to help this segment of our society reach these goals. It is, however, mandatory for our government to make sure that this is happening and where they see shortfalls to facilitate the needed solutions. Regarding RDSPs (and any other protocol, documentation, regulations, etc.) I would think that there is a very high percentage of people with disabilities missing out on opportunities just because they have no idea how to understand or jump through the required hoops to receive what is available to them. Thank you:My son is 21 and has [information removed].Please find below my comments and suggestions.1. The transition upon reaching age 19 could be greatly improved. The financial, physical, etc supports were not there.Its as if they think these kids are cured when they reach 19.In most cases these are lifelong conditions.2. My son is smart but socially he has many challenges.He has not had one job and he is almost 22.This is depressing for him and stressful on me.He has gone for a number of job interviews but never landed a job.I'm sure his lack of social ques,eye contact,facial expressions etc don't help him during the interview process.These kids need a Break!Perhaps a mentor during the interview process or a subsidy paid to the employer would help attain employment.Once a job is attained having a mentor/coach near would be helpful until they feel comfortable.3. Supports,financially,in the tax system,etc to the families,caregivers of these people.4. More funding into research.5. All information on the web in one location.6. Bring down the walls Government has put up with regards to supports for people with disabilities who have a normal IQ.My son is smart but also has many challenges socially and with his [information removed].As you move towards the White Paper I hope you will bring forward Real improvements to people with disabilities which will benefit us all as a society. Thank you.Some comments and suggestions regarding employment and work environment:Providing increased technology makes good sense. Just as children do not learn well on an empty belly, so it is difficult for people with disabilities to work if they lack the basic tools to make work accessible. EATI is a good start. It would be an even better start if people were taught HOW to access government programs, and HOW to "sell" disabled status to a prospective employer. For example: the adult who is challenged needs to be able to say "There is a program that can be accessed through _ _ _ _ and it will contribute _ _ _ _ (money, equipment, training) if you hire me. It will also fulfill the government mandate that _ _ _(percentage) of people employed must be disabled." The employee must have incentive for hiring AND retaining people with disabilities. The government needs to teach by example.I remember learning at York University that the best way to break stereotypes is to provide a positive role model. I believe the best person for the job is simply that, they are the best fit and the best educated. I also think that you do not have to be disabled to understand disability. Having said that, at some level of government we need people who are competent AND have first hand experience with disability, in positions of authority so that change may be implemented. I remember looking at the new Tsawwassen Ferry Terminal and being astonished that the arcade in this expensive venture was placed directly beside the telephones for the Deaf and Hard of Hearing. It was a "no brainer". Why would you place a phone with volume control in an obviously loud area, or offer teletype, where transmissions might be effected by games in the adjacent room? In addition, televisions on board the ferries themselves voiced directions for safety procedures with closed captioning that was NOT turned on. I complained repeatedly each time I made a ferry trip and finally some of those things changed. This is just ONE example where there is a need for someone to evaluate government services for the disabled. For over ten years at the Courtenay Access Centre, people just yelled or poked at deaf people because the access centre refused to get a simple sign that would light up with the number of the person being served. The manager and staff both told me there was simply no funding. They have implemented those suggestions now, but again, it took almost ten years and threats of going to human rights before changes were made! If an assertive, well educated, disabled person has to fight that hard for simple changes, do you really think that someone who is disabled but not as articulate or assertive, has a remote chance of changing things? Government offices should have a disabled guest speaker in once a month, to educate them on what it is like to be "disabled" and how they specifically can modify their behavior to be more accessible. Perhaps ongoing contact, will promote friendships and changed attitudes. Education must be delivered in a manner that impacts the listeners.I also think there needs to be better accountability in place for hiring practices and safe places for a disabled person to go and vent, to discuss if their grievances are true or not. I think most people who are disabled are not even aware of anyone who might act as an advocate for them. Existing inter-agencies do not seem to communicate well between themselves and are often well intentioned but have little impact because often times there is not a single specialist employed who is really knowledgeable about disabilities in general. Again, the government needs to be hiring disabled people to articulate their own case. We do not need others to speak for us, that is patronizing. We need to learn how to speak for ourselves.I appreciate this opportunity to do exactly that.I am a PWD on the provincial level.My suggestion regarding RDSP is this: All people who qualify for disability on the provincial level should automatically qualify to open an RDSP, rather than having to go through a separate and additional federal process.There is already a process in place provincially for determining disability qualification.? Therefore, it is redundant to have a federal process for RDSP qualification, especially when people with disabilities have limited energy and find filling out forms, taking them to the doctor, etc., stressful.? We have already done it once, and now, to qualify for the RDSP, we have to go through a similar process again.? Why not combine the disability process on the provincial and federal level, make it one and allow all who qualify for disability to automatically qualify for the RDSP?This would make a huge difference in my life as I am currently without an RDSP even though I am on PWD provinicially.I'd like to see Metro-Vancovuer have bylaw for innterection street and residence street have to shovel to clear snow off on their sidewalk for brak barrier to person with disalbity and elder, if they don't do so they would be fined. Because snow on sidewalk are too dangerous for people to walk which it could be easily slip and fall down. I have fallen down once when I stepped on ice and almost injury my back.I also would like to see city crew workers clear snow on each corners and centre line on walkway.Also my residence street are unsidewalk and ditch it is not safe for me to walk up and down. I have asked city hall, they suggested me to write a purpose with signature people who live same street where I live but they obejcted it because of property tax increase. I would like to see city hall should add sidewalk for safety reason rather than increase each property taxes. Please recommend them to do so.It would be nice if Metro Vancvouer established Access Pederian Device with Tactile-vibration for across interection streets/school walkways for Deaf-Blind's safeer rather than audible pederian device. Thank you.I would like to put my two cents into this conversation about increasing the Rate of the PWD.? I have [information removed], and I am on PWD.? I live on a farm with my family seeing that I can’t live on my own.? I do what I can around the farm to help out.? Because I live with my family you clawback $25 per month from my shelter amount which I do not understand why the Gov’t does that.?? Living on only $881 a month and trying to put money away for my old age is very difficult.? I do put money away into my RDSP but it is not enough to max out my grants. Putting the rate up to match the inflationary rate of BC makes a lot of sense seeing the rental rates is a lot more than we are getting.? At least with $1200 and even $1500 to match the rate in Alberta would make our lives better and easier.? We can buy better foods that will help out our health and mind, in turn less time at our doctors.? People in disability needs a better rate than they are getting in BC. Thank youBelow are some thoughts and ideas re accessibility from a group of individuals with late onset profound hearing loss.?Accessibility:?Accessibility for individuals with hearing loss is important. Public places need to be equipped with hearing devices (such as loop systems, infra-red systems, etc) and/or captioning so that people with hearing loss can better participate in their communities (e.g. public gatherings, government meetings, town hall meetings, political meetings) and live as independently as possible. New public buildings need to be built with a view to improving acoustics. Cash registers need to face out so you can see the price.?Funding for hearing aids is needed and a shorter waitlist for cochlear implants:?Individuals requiring assistive technology such as hearing aids need access to financial help so that they can access the technology that helps them participate more fully in their communities.The waitlist for cochlear implants for adults needs to be shortened so that all who qualify for an implant can get one in a timely manner.?Education:?Both the public and individuals with hearing loss need education and support. It is important that we create a society that is sympathetic to those who have hearing loss. That will generate tolerance and greater productivity in society and help reduce barriers. This needs to start when people are young, even among school children. Those with hearing loss need access to supports (such as speechreading groups, support groups, and services that assist with adjusting to and coping with hearing loss) so they can improve access to employment, know increased freedom and feel confident that they can connect with their communities as effectively as possible.A secure funding base for the many small non-profits that exist help people manage their hearing loss is needed.Thank you for allowing us an opportunity to have some input into this process.My name is [name], and I am an impoverished, disabled woman. I wrote an essay entitled "Public Accessibility is a Human Right." I have not sent an e-mail attachment for a long time. So, I hope this works. I "poured" my heart and soul into my paper. I hope this e-mail attachment goes through. I very much so want my paper to be published in the government's Disability White Paper because my paper contains a lot of useful information regarding disabled people's accessible rights.I also wrote a paper (I mailed it to the Disability White Paper) entitled " Impoverished Disabled Women's Intersectional Discrimination. I was able to mail it because I finished it earlier. ?Please publish it because as far as I know no one wrote about intersectional ?discrimination for the Disability White Paper. Intersectional (or multiple discriminations) is different ?from (worse than) single discrimination. All disabled women experience intersectional discrimination because we live in a patriarchal world.I wrote a paper on affordable housing for the District of Maple Ridge. I mailed it along with my paper "Impoverished, Disabled Women's Intersectional Discrimination" because it contains useful information that concerns the disability community.Where and when is the Summit going to take place? In an earlier e-mail I mentioned that I wanted to participate. Moreover, I have an Associate of Arts ?Degree, in Criminology, from Douglas College. I also have Bachelor of Arts Degree, in Political Science, from Simon Fraser University, and a Post ?Baccalaureate ?Diploma, in Women's Studies, from Science Fraser University. In addition, I am certified, professional speaker through Toast Masters International.?Since going on disability: I have become more ill not less.? I have learned helplessness.? I live with constant despair; depression is a huge part of my life.? There is little joy.? I feel powerless to alter my situation although opportunities have presented themselves.? I am hungry.? Maintaining reasonable food habits (as set out by Canada’s Food Guide) is impossible.My shelter costs are $620.00 not $375 (as suggested by the Ministry).Consequently, I am supporting my landlady by paying her mortgage while I cannot afford to eat.? I usually have about $150.00 for monthly expenses, this includes? emergencies. I believe the stress I live under because of the above is what is presently keeping my physical and mental health far below par.If they raise the disability from 900 to 1500 more small business would get business and the economy would grow because of the disability people spend where they are and boost the economy. They don't spend it in the States like working people do.Because of my Dexlexia I could not have an education or even spell without help like now, this limits my job success and life to none, I cannot fill out forms and they don't help me to fill them out. Delexa is were the wire in the brain is not attached and is genetic, so this disease gets worse as life goes on and can turn into altzeimers, etc.I have been disabled since i was 17 and recently i learned that the government offered grants and other benefits to help people with disabled save for the future. However I then also found out that the cut of date for such benefits is 49. Which i just turned 50 in Dec. I think this is not fair being disabled there is no way i can keep up with these things. The federal government basically said your just out of luck an therefore nothing they can do to access me except to then sent me a form letter. Thank you for letting e get this of my chest.Within the Deaf Community, the two things that we hold dearly are Education and American Sign Language (ASL).We the deaf people are frustrated with lack of consultation with Ministry of Education. WE were in the dark where the Education for Deaf, Hard of Hearing and Deaf Blind go? No clear discussion of direction for the Education for students and supports for youth after graduation from High School. Lack of consultation from the stakeholder will cost BC Gov't hugely in other sector of social service. It will be other ministries that will pick up the slack and support the youths and adults. We believed in excellent education that student have, lesser dependency of support services from Gov't of BCOur ASL are under constant attack and are severely neglect. We are asking for official recognition from Gov't of BC as natural language of Deaf people and Deaf Blind. As well as used for instructional language in the education of Deaf children and youths. WE are in constant shortage of properly-trained ASL instructors. We lose the training program due to lack of funds. Thank youEmergency Planning & People with DisabilitiesIt’s wrong, it’s just plain wrong that neither federal nor provincial governments provide funding to local Emergency Programs. It’s wrong in so many ways. For individuals with disabilities in particular it is critical that extra support be provided to ensure equal safety to all. There are umpteen examples of failures of governments to provide adequate emergency planning for individuals, from the very recent tragic deaths of more than 30 individuals in a care home in Quebec and the earlier example of Katrina, to many other examples across the country of individuals left behind because they had a disability. There are also umpteen examples of lawsuits being filed and won by individuals whose rights to equal access and equal safety had been violated, one noteworthy one being the city of Los Angeles being roundly condemned by a judge for its lack of planning for individuals with disabilities despite more than 20 states of emergency being declared over the past 25 years.Emergencies happen, and weather related emergencies will happen more and more with environmental stresses due to climate change, and oil spills and emergencies related to other dangerous goods will also occur more and more due to aging infrastructure combined with increased & more aggressive transportation of hazardous materials. British Columbia, particularly Coastal British Columbia, has many risk factors, from flooding, wildfires, toxic spills, tsunamis. And more.AND BC is overdue for a VERY large earthquake.Here are a few issues and concrete ways to help improve current planning for individuals with disabilities.?TRAINING: With training budgets reduced, volunteers and staff are not kept current of international standards, nor local concerns and developments; moreover, communication can be improved in training and gaps in planning can be found. ?EDUCATION: with no funding to print publications, all those who are without access to computer are left without education material. Printed material is still an excellent way to distribute information. And what percentage of the population does that mean… 30%? 40%? Many of these people are also those who are very vulnerable and can include the poor, the aged, those with disabilities who do not use computers. And with no funding for online or other advertising, education and awareness gaps are huge. It is particularly important to reach these individuals as many would have high needs and would require good support networks in place ahead of time. With no real budget for continuous and vigorous outreach particularly to vulnerable groups, the likelihood of missing people in the event of an emergency is huge.?COMMUNICATION & NETWORKS - I: reaching people in an emergency is critical, and established networks of service providers/agencies for reaching everyone including the most vulnerable and isolated can help fill that need. We need these networks to be established.?COMMUNICATIONS & NETWORKS – II: there are many skilled and dedicated resource people in our communities and many skilled and talented business people who can provide valuable services in an emergency. With no networks in place and protocols for doing call outs to these groups we are also missing opportunities to develop & utilize a data base of resources and skills.?COMMUNICATION & INFORMATION: Technology exists and can easily be implemented to help provide more efficient call outs to all citizens and groups. EXAMPLE: in the Calgary flood the Calgary Police Department provided almost minute by minute tweets of news, road blockages, and where to obtain information and services. All local communities deserve the same opportunities for up to the minute news and the sources for this information need to be advertised. Ahead of time. All the time.?EVACUATIONS: when evacuation is required because of an emergency, particularly evacuation for larger areas and/or larger multi unit dwellings, it is essential to know where wheelchair accessible transportation may be located. And to make plans for when there is inadequate transportation, which is likely most of the time.SUGGESTIONS:?Provide a healthy budget!?Lobby federal government to reestablish its role in emergency planning?Provide printed material and other advertising of all types?Provide and help maintain a local framework of communication & networks for emergency planning, including all service providers in all sectors, volunteer networks, business networks?Explore technology options to assist with local call-outs and emergency alerts?Require all emergency planning programs to include representatives from all sectors of our communities – children/adults/disabilities/health/education/business?Require all emergency plans to be reviewed annually & publically?Require all multiunit dwellings including assisted living, long term care, group homes etc to have emergency plans, to be filed with local fire departments &/or other emergency personnel and reviewed annually?Require all multi-unit dwellings more than one story where there are individuals with mobility and or other disabilities to have the necessary equipment for evacuation, eg assistive devices to allow wheelchairs to be used on stairs etc?Explore the possibility of a data base for emergency personnel whereby persons with disabilities may register?Explore simple but effective standardized systems whereby emergency information is readily available for emergency personnel eg the Manitoba system to have emergency medical & contact information kept on the front of the fridge with a magnet; and advertise and promote such a universal simple plan.These are but a few suggestions. Many are easy to implement and very cost effective. For most of these topics, models exist in other jurisdictions.I work with many individuals and groups and agencies that provide services to a wide range of our citizens who have disabilities. Most work very hard to be independent and that includes in their emergency planning. But it takes more than an individual or a family to provide emergency services. It takes a PROVINCE. It takes a COUNTRY.This material is also attached as a word doc.LETTER TO THE GOVERMENTHears what I think The DISABLED PEOPLE DO NOT HAVE A VIOCE ANY WHERE IN BC OR CANADA. We CAN SAY a person is DISABLED, BUT we DUE NOT give them the RIGHT to change ANY THING in their lifestyle. A person with a Disability try’s their best to fit in to the world around them. We make it hard for them to do this and to live life to the fullest. We make it hard for them to get around and give very little money to live on.THE PROBLEM IS THAT lots of MONEY IS being SPENT ON FINDING out WHAT we need to do to MAKE A DIFFERENCE FOR THEM. I believe that this is not working. WHAT CAN we do to HELP THEM? Stop SPENDING THE MONEY IN THE FIRST PLACE TO FIND OUT WHAT IS WRONG. We need to SPEND the MONEY the right way to Try and TO CORRECT THE PROBLEM. We need to have information on how to apply for and get the different funding to can help give a person with disability a life to look forward to. The GOVERNMENT says they are about helping person with a disability but they make it difficult for the parents or caregiver to find and fill out the forms for the pendon fund... I believe if you do not have a doctor that know the in and outs of these forms the person with the disabithy get denied not once but twice. It seems THE government does NOT CARE. The government MAKEs POLICEYs that doesn’t work .or they creates forms that are hard to understand. The government also gives profession money to create a group where People can go talk about what need to be done to help. Why are they spending money like this? Why are they trying to find out HOW TO CORRECT something that already does not work? The government PAYs these professional lots of MONEY THAT COULD GO TO THE DISSABBLED person. WHAT I AM TRYING TO SAY IS why you are Wasting money needlessly. STOP HIRING PEOPLE TO HELP FIX THE PROBLEM, OR FIND OUT TO HOW FIX THE PROBLEM .That’s all WE NEED is ANOTHER TWENTY People helping TO SOLVE THE PROBLEM. WE CAN T LAY them OFF NOW BECAUSE THEY ARE GOVERNMENT EMPLOYEE. WE CANNNOT FIRE THEM so now WE HAVE SPENT TEN TIMES WHAT WE needed to and that money COULD have been Given TO THE DISSABLED person. SO tell me WHEN IT IS all GOING TO STOP, THE SPENDING TO FIND OUT WHATS WRONG OR JUST CORRECT the government’s mistakes. The parents with a child with disability DO NOT KNOW WHAT TO DO OR WERE TO GO TO FIND help. I am SMART and I DO NOT HAVE a GRADE 12 education but I LEARNED FROM TALKING TO PEOPLE. So please tell me why it is so hard to find the help I need to fill out your Paperwork the right way so my daughter gets the pension fund she has applied for twice and be denied. I believe HAVING A DAUGHTER WHO HAS A DISABILITY is a gift and I would not change her for the world. Help me FIND OUT why THE GOVERNMENT CARES more about giving us the run around then helping us. All I want is for my dauther to have a great life and to feel like she is part of this world.I'll never forget the day, when my health had given out after over 20 years as an R.N and (long-story-short?... ) I finally found myself most reluctantly having to apply for B.C Provincial government "welfare" disability."Oh, don't do that!" executive nursing management, the family lawyer, and friends and family warned - "You'll be treated like nothing more than a second-class citizen!"And they were right.?That was almost?16 years ago and, since then, I've begun to put together over a decade of documentation I saved - thanks to the encouragement of my Mother, also an R.N for many years in B.C, who said?to "record everything!"? So?dates, names, conversations?have been?recorded?for over a decade?and at the urging of many apt to become?a book of it's own.So, you see, I have too much to share in this small forum.??And I'm curious: in 10 years the B.C government hasn't asked for welfare clients' opinions like this so why now?? Isn't this a pre-election ploy just like the N.D.P government did in 1999 when they invited welfare clients to round-table discussions to supposedly discuss policy/procedure and? suggested improvements??If you want to make some simple changes to drastically improve the lot of?all your welfare clients, you may entertain the following:?quit the 5-week months between cheques.?Many?land during the leanest months of the year which just makes ekeing it out doubly-hard.?And why can't government just give clients a direct number to their local officeCommunication with local offices is stymied as clients can't call direct but must go thru the call center in Victoria who must call the local office to have them call the client. Ridulous!?The most important thing I've observed about this 'welfare system'?over the last 15 years is that people who have never taken clients' social histories and essentially know absolutely nothing about them except what their asset-level is, are telling people what they think they should have rather than finding out what people need.It's no wonder the system doesn't work.My education and experience as a nurse tell me that, let alone a welfare client.A general comment I would like to see reflected in the white paper and conversations on increasing accessibility for people with disabilities is the issue of funding for children and youth with special needs.Effective investment in the early years and through school would ensure our youth with disabilities have reached their true potential as they enter adulthood, thus requiring less intensive services and supports as they transition. Unfortunately, inadequate investment in the early years simply ensures more investment will be required on services and supports later. The research is quite clear on this:- Disparities emerge early in life in children’s physical, social/emotional and language/cognitive development that are largely attributable to the interplay of genetic factors and systematic differences in the nurturing qualities of their early environments:nutrition, bonding/attachment, stimulation, and opportunities for participation (Boyden & Levison, 2000; Irwin, 2006; Irwin & Johnson, 2005)- Only 71% of BC children arrive at kindergarten meeting all of the developmental benchmarks they need to thrive both now and into thefuture- 29% are developmentally vulnerable (UBC HELP, 2009)- Day-to-day child rearing in environments characterized by impoverished parent-child interactions, even without dramatic, catastrophic events, may be implicated in adverse outcomes over time (Hart & Risley, 1995; Kishiyama, Boyce, Jimenez, Perry, & Knight,2009)- Some may hold out hope that we can compensate for high early vulnerability by increasing investments in the final years of school, in expanding post-secondary education, or in job skills training for adults. However, human development research warns against this hope because it ignores the genetic and biological reality of the humanspecies: the early years represent the unique window in the human life course during which citizens’ physical, socio-emotional and cognitive potential are especially malleable to the positive effects of strategic human capital investmentsThe Positive Return on Investment- Economic analyses reveal that the 29% of children entering kindergarten developmentally vulnerable will impact the quality of the future labour force and cause BC to forgo 20% in GDP growth over the next 60 years (UBC HELP, 2009)- The early development research is now so compelling that there is a growing consensus among economists, such as Nobel Laureate James Heckman, that the most cost-effective human capital interventions occur among young children- Early interventions targeted toward disadvantaged children have much higher returns than later interventions (Heckman, 2006)- Poor investment now means we will pay more later on special needs education supports and youth justice programs- The returns to society for each dollar invested in early childhood development extend from $1.80 to $17.07 (Rand Corporation, 2005)And yet despite this research, the agencies that provide services to children and youth with special needs have not received any increase in base contract funding from Government since 2008. Let's prepare youth with disabilities for transition to adulthood by effectively investing in programs and services for children and youth with special needs.My name is [name] and my son is a person with disability. We have a microboard for my son so I am a member of that and I am an advocate for people with disabilities as well as a Special Olympics soccer coach for 19 years. I have participated in many working groups, studies, boards, etc. and believe in inclusion.When my son was very young we started down the services path. Fortunately for us he was able to access service but it seemed the door closed behind him. We started with a social worker which was absolutely the right way to start. Within a year that was cut and we waded into the "learn as you go" system that only the bravest of parents survive.We are strong advocates and my son has two parents. I worry how people manage when this is not the case. We were called upon to fight for the very basics and somehow this just isn’t right. Families are at their most vulnerable and it is support that is needed not hoops. Transition - This includes initial transition from family to caregiver/daycare, Transition to elementary school, Transition to high school, Transition out of school, Transition to adult services.These can be very difficult times for the person with disability and with the family/caregivers. I believe that we must do significantly better to help during these transitions. Not only does the ministry not help , it uses these same times to remove people from programming/ funding pushing people /families to a point of breaking. I can remember a meeting with the ministry at the high school transition. My son had been terminated from the development program, from his counseling and we were in the process of losing more. Luckily we were able to get outside support from Vela Microboard, so the meeting in the end was successful but I remember my husband actually breaking down during the meeting.If you knew my husband you would know that this was a point that even though it was over 13 years ago he is still unable to talk about. I don’t know if you can imagine what it is like to have to beg for help. It is hard enough to know your child has a disability, to be in a position where you are unable to meet your Child’s needs without help and then have to fight for that help. I look at places like Sweden and what they do for persons with disabilities and I know that there is so much more possible.Ministry - Services need to be separated. I think it was much better when there was a ministry that handled the payments that wasn’t lumped into other welfare. I will not allow my son into the office as I do not want him negatively influenced. I can’t tell you the number of times I have gone into the offices and been treated poorly. Quite honestly, it is a shame and I think that the government needs to have more workers, more training for their workers and more personalized visits. Phones and less service is the exact opposite of what is needed. When I am in the office and take my number, wait for hours and watch how people are treated it just breaks my heart. Work - I strongly believe that government needs to lead the way in hiring people with disabilities. They must be the model for others. . There are so many people with disabilities that could be contributing. Organizations working with people with disabilities need to have work programs and funding to pay the workers at least minimum wage. The clawback system of earnings – only encourages part-time work or volunteer work. The annual limit was a step in the right direction but it needs to go further. RDSP – a great concept. I am not sure if they have worked out all of the bugs on this but it was difficult initially to set it up. I also have a concern about safety of the money but again that might have been addressed.My experience working while disabled: ? ? ? ? ? ? ? ? ? ? ? ? ? I am disabled and have been since 1999. I eventually got ok on the right meds in around 2006 and instead of sitting on my ass collecting and not surviving (starving is not an incentive) like a lot of people around me on disability, I decided to make something outta myself and try to get OFF disability (try to build a respected life).You must know I am the most disabled a person can get with [information deleted] (worse than being in wheelchair, feels like being a Quadrapalegic with the inability to function). Along with [information deleted].Anyhow off to school I went from 2007 to 2009 to get a diploma in cardiac tech (this was all after getting enough funding to go from CFA- they believed in me- this was very very hard to get). Got my diploma, as matter of fact TOP of class with doctors from china and 20 year olds in my class ( I am in my 40’s).I waited 2 years for a job post grad (and couldn’t even get hired doing coffee because they thought I was over qualified but I did get a coffee job for 2 months) I think it was out in the cardiac community about my illness and much stigma, ….finally a private clinic offered me work 2 days a week, something I could really handle. It was great for about 1 year but this bully was a coworker and she picked on me, this bullying was akin to someone walking with a cane and someone pulling it out from them using it, it hurt my mind a lot, eventually I could not take it anymore and instead of quiting, as I needed at least one years exp under my belt, I disclosed my disability to my boss to get accommodations and help stop the bully from sabotaging me at work. This all while I was working and making good money (as I deserved) and I had to give it ALL to the govt as they deduct your cheque -you could only make so much at that time, still like that. sheesh I was virtually working for free after all my hard, hard work and it was a tough job, driving people to heart attacks and learning to tune out their stress about it (treadmill tests). I was the Best tech they ever had and this was the best cardiologist in town saying this, until I disclosed…then things got different, they were looking for it, they did accommodate me a bit and put it in writing and I talked to them about the bully. We set up some boundaries to try out but meanwhile I was always seen as trouble and the weaker one to fire. This bully wanted me fired too cause I did eventually stand up to her after 6 months when the boss did nothing about it.SO being in a stressful job, hiding the fact you are ill in the head and being under the gun to be fired from work, wow what stress, I thought really is this what it is like for me to work? I am a super person, got great letters of recommendation BEFORE disclosing, none after obviously. So after about 6 months since disclosing they wanted to make me quit so made a day off I came in to do them a favour , just unbearable and contravened my accommodations. I thusly got injured and have been for one year now, became suicidal and sick, EI did not help, I had no savings since working for free and the sick EI I got for working was deducted dollar for dollar from my PWD cheques as well, making my health a real concern, I was very suicidal all thru 2013 (all because I worked), I didn’t deserve this I pondered all the time, I starved many months as they took away my cheque and I had debt since going to school, so was paying banks off. What a predicament and pickle I was in now all because I tried to get OFF disability. Not a good experience and many years since 2007 - 2014 put in all this effort (and debt). I had nothing. Thank god tho I had supports to emotionally help me thru it and my mom to help a bit, can’t imagine where I’d be without these, how do other people struggle and do it? at all. I had one friend who was PWD, slight bipolar who went and married a famous doctor, so she has it made in the shade, she just sat on disability not bettering herself at all and them boom in enters this doctor who then saves her, this is a very rare story that such a thing would happen, yet I felt prouder than she must.So where does this leave me, well broke and devastated and fighting WCB and my employer as they think I am faking it, ?they have no insight into my illness and what I suffer. I guess that is the road taken for most as we cannot SEE the suffering (thus DO NOT BELIEVE). We are a blind society to not know better and behave better.I am struggling to pay off banks under a lot of stress unnecessarily and learned a lot about NOT disclosing and NOT going after school and a job to get off disability. Wow. There is no incentive within the system to help people get a leg up, I should have about 10,000 savings in the bank for working a year, not a big deal to most but to me it would mean the world and that I could get back up on my feet AGAIN, given time and support. I don’t think I’ll ever be a cardiac tech again too as my brain has been further damaged and now I experience panic attacks, not good for my work. I don’t know what I am going to do now, have to figure it out. I know definately tho if the system paid AT LEAST 500 more (like alberta) and ALL the money you make, you keep (like alberta), I would be better off and less stressed and possibly contributing to society still. What a great thing that would be emotionally and health wise.?BTW I have kept myself out of the hospital for a decade now because of all the positive things I do and very hard work looking after my health(even while starving). No one is going to get rich on the system, the odd immigrant perhaps may take advantage but you just have to scrutinize people not born here is all.YOU Must make it much more difficult for people to claim, make the net smaller, I know people who purposely move here to get in the system because it is so easy in BC. and when you have a smaller few(on PWD) ?treat them a lot better and separate from welfare, as I am on disability I feel rather like it is welfare, not like a pension and justifiably so too. MUST SEPARATE THESE AND GIVE ON SAME DAY EACH MONTH!It is very very hard on the self esteem, thus I have none and then how can one move forward or even live besides keep a roof over their head and food in their fridge and maybe a nice pet to love them since no one else does?I am telling you it is very hard to be me and live in one of the most expensive cities in the world, the cold is hard on me too so I must live in this clime.And you know what I am very lucky, one of the lucky ones, I never have had to or wanted to sell my body or get into drugs, etc anything to help or numb the pain. The rampant amount of homeless with mental problems make things entirely worse for those out there trying to carve out a life for themselves with mental illness (DEEP STIGMA). How can one live on just 10,000/yr AND be expected to work, surely they can’t?….I can’t do it anymore and have plans to make money or get resources with my talents but these are only long shots and I just know I cannot tolerate this system anymore, it is all ugly and negative and will kill me (very flawed system), no wonder so many die, but then maybe in the long run this saves taxpayers and govt money ?. I actually became a taxpayer and was proud of it, most people begrudge it. I didn’t.So there you have working and being disabled and I have a lot of supports, more than almost everyone, at least more than 90 % mental people. ?Shutting down river view was a huge mistake and they should reno and reopen and give these homeless a home, as I remain an active advocate ( I gave gregor his platform of homelessness so he then won the election, did you know that?), I was the only one in his office talking to him (he an MLA) about the problem, he listened obviously and I am proud to be the catalyst that has helped so many, he could do more tho instead of these damn bike paths which kill nobody. Most don’t “get" the illness and suffering involved, if they did like I, they would fight for those who are hurting, homeless and jobless much more. By the way looking after myself every day and staying out of the hospital is a full time job, so see I do work and the govt does save money because I work, I just don’t get paid for it, nor is it recognized !Housing eats up a persons whole cheque with nothing left for food, since when is housing 375- the amount allowed???….are we living in the 60’s???I believe making good computer programs available to those with disabilities would assist greatly in people making a little extra money and staying up with the times, current, while many with mental illness cannot show up for work they may be able to work from their homes on a computer but you must also provide these computers too.There exists absolutely no incentive to work and make more money, I think that if we got paid say 100/month more just because we are out there working would be some incentive and justifiably viable to do. People would try more.Why try like I did when you end up where I am, worse off than in 2007? and in more pain. Where is the advantage to me or my family who suffers with me? We should KEEP all we make when on PWD. And treated better by those who work in govt and get paid so well to do what they do, take compassion courses!?Help them don’t hinder or scrutinize them , most painful thing I have been thru is trying to survive this system! (and I have had open heart surgery too- piece of cake in comparison!)It is ?time the govt spend some money on ads that give positive messages about people living and coping with mental illness, they do it for themselves, why not us….we deserve this and if you want contact me I have creative ideas on how the ads should be done.I will end with these thoughts from one who truly suffers (esp with stigma)“I Don’t want to “live” with mental illness, it is not the illness that makes it so hard but rather how people treat you”"Living with mental illness is not living at all, rather it is a slow painful death, a life sentence, why?”“I am not ‘ living' with mental illness instead I am slowly dying inside"Thankyou for listening (hope you gained insights into the flaws),I have been on PWD for several years now.Accessibility is a contentious issue, especially for people with invisible illnesses, such as myself.-Accessibility should mean that I am never taunted by a ministry worker for needing a female worker due to the PTSD I suffer.-Accessibility should mean that the worker is trained to recognize signs of distress, and adjust their attitude/demeanor/body and spoken language accordingly, especially after the client discloses they are having a panic attack due to fear, not tell the client that they are being difficult and to get out.-Accessibility should mean that ALL frontline workers, including the ones who answer the 1-866 telephone line, are trained to answer the variety of questions they may encounter. ie. I have called the number three separate times to inquire about programs for starting a small business or self employment, and have been told each time that no such program exists. -Accessibility should mean that all messages that are left for workers via the 1-866 phone number are given to them, and that there is accountability on both the phone line worker and office worker to make sure that messages/issues are actually dealt with. I have been told by workers in the Richard Street office in Nanaimo that leaving a message via the phone line is actually the worst way to try and get an issue dealt with, that the messages are usually not passed on, and that if I really need help, I should come into the office in person.For some of us, this could literally be a matter of life or death. I have left messages for workers, and never got a call back. As a disabled person, leaving my house is sometimes simply not possible.-Accessibility should mean that EVERY client is treated with respect and dignity. There are signs up in every ministry office that reminds clients of the workers rights to be treated with respect and dignity, but I don't see the signs up for the workers to treat clients the same. I have stood in line for close to an hour on more than one occasion, and listened to workers sighing, seen them roll their eyes, make snide comments to clients, and be incredibly passive aggressive, and if the client says something to the worker, the worker has told them THEY are the issue and to get out of the office before security is called.? Where is the accountability for the staff?-Accessibility should mean that when I drop off papers that are expected, and that I have already spoke with a worker about, that the papers will actually be delivered. I dropped off very important papers at the end of November, and the employee at the desk expected me to wait to speak with someone else about it...I explained that I had just had surgery less than two weeks prior to this, and was still in a cast, and not able to stand. I was cut off my provincial payments because the office is saying they never received the papers, and cannot find any help to have this situation resolved.There have been some super helpful staff that I have spoke with over the years. Sadly, they are far outnumbered by other workers who don't seem to have an ounce of compassion left in their body. The issue of how much money we are allowed to earn is a big issue, but I am sure that you have heard about that from lots of other participants. I don't know if you are aware of how much more? expensive it is to be a disabled person, but I think that should be factored in to the maximum monthly amounts.I really hope that some of the suggestions and issues are honestly looked at, and that change for the better is implemented. I have to say though that after attending the face to face meeting in [location removed] on [date removed], I am not that hopeful. The woman who opened the meeting told us that they had been doing the meetings for awhile now, and they were ready for them to be done, and they were all looking forward to going out for beers that night. Then at the closing, the woman who is next in line to the minister told us that she wasn't ready for beer, she was more than ready for red wine.I don't know if you can comprehend how insulting it was to sit there and listen to that, when I struggle to exist on the meager amount I do, because I am disabled, and there are days when I have to decide if I can afford to eat or if I can afford medicine that I need. It really felt like the entire process was a big pain and disruption for the ministry staff to have endured.The government needs to reinstate part-time work and job-sharing in the public sector to provide persons with a disability the opportunity to work in the civil service. The government also needs to re-examine BC Bid to consider how the process impacts independent contractors with a disability. Prior to the introduction of BC Bid, many of the private contractors working for government were well-qualified, educated, persons with a disability who -?for reasons of disability -?found this type of employment a?better fit. The introduction of BC Bid meant that new red tape and regulations (such as a business license and bidding fees etc) were sufficient to put a number of independent contractors with a disability out of work - many permanently. In addition, a number of the private contractors with a disability who did acquire business licenses and were able to afford the other related?expenses associated with running a small business, nevertheless found themselves involved in a process that favoured corporations and corporate interests - a fact that eventually put these persons out of business as well. A good-sized segment of self-employed professionals with a disability, who'd previously made a living doing contract work for the provincial government, now wrestle daily with unemployment and poverty. At the conference of the International Association of Official Human Rights Agencies (IAOHRA) in Vancouver in 2000, British Columbia was lauded as a leader in the world where disability issues were concerned. One of the ways BC led the world was in the development of the "Disability Lens" which was used by?legislators and policy personnel throughout government to ensure the interests and needs of persons with a disability were addressed from the inception of any new legislation, policy, program or service,?and during any corresponding amendments to the aforesaid. The Liberal government has ceased using this very valuable tool, while other provinces including, but not limited to: Manitoba, Nova Scotia and Prince Edward Island saw the tremendous value in the "Disability Lens" and began - and are still using variations of it?- themselves. ?BC was also praised at the IAOHRA conference for having had a government policy office dedicated to disability issues,? The BC Office for Disability Issues (ODI), served a number of primary functions in government including:? serving as advisors to ministers and policy makers; speaking on behalf of ministers and developing correspondence, briefing notes and talking points for caucus members; acting as a conduit between the community of persons with a disability and government; delivering disability sensitivity training to civil servants throughout the province; educating the disability community about government and the legislative process,?as well as interpreting pertinent?polices and procedures; coordinating policies and services inter-ministerially and inter-governmentally as well as?engaging on disability issues with our?international counterparts; and in-house policy personnel at the ODI?developed and coordinated?disability-related policy in the areas of: k-12 education, post-secondary education, skills and?training, housing, transportation, home support, transitional services and service portability?amongst others. The BC ODI has since been emulated by other provinces including,but not limited to, Saskatchewan and Manitoba?and other?countries including,but not limited to, New Zealand and Great Britain, who have all developed Offices for Disability Issues of their?own.?The BC ODI contributed greatly to the advancement of British Columbians with disabilities and raised the profile of the province and provincial government?around the world.? While it is equally true that the ODI at one point had a very significant personnel problem?-??the office?should NEVER have been eliminated.? There was a small number of people?at the core of the problem?and a reorganization with a change in management, a solid mandate, as well as greater oversight and accountability would have?resolved the problem and allowed for the continued advancement of disability issues in BC.??Had the ODI continued on under new management and mandate, it?is pretty much guaranteed that more persons with a disability would have remained employed and even more would be?employed today.?BC is now trailing the world in disability issues and it is disconcerting to see OUR good ideas working well in other jurisdictions?throughout Canada and around the world. People with a disability by and large do NOT care about politics – we are happy to support whomever it is that supports us. Persons with disabilities have been politically expedient for the Liberal Party and the gains made in the area of disability the 1990’s have vanished.?It's time to put the politics aside – dust off the Disability Lens, Jan Trainor’s Green Paper (on disability), The Pratt Report (a business argument for the employment of persons with a disability) – update them and use them.? And while you’re at it, partner with the feds and contract a web-site developer with a disability to update the BC Government-driven Web Accessibility Guide for mass distribution (particularly to the business sector).? There are many qualified persons with a disability out here just waiting for an opportunity to work!Finally, there have apparently?been?remarks made by a member of one of your steering committees – comments evoking Rick Hansen and Terry Fox as examples of what persons with a disability can accomplish -?faux pas. Rick Hansen and Terry Fox do not represent the disability community anymore than Bill Clinton or Bill Gates represent the able-bodied community. The vast majority of people are never going to be a Rick Hansen or Bill Clinton -- in fact very few have the support, ability, opportunity and privilege to achieve their magnitude of success. Successful social policy isn't built around the elite few; and in?that same vein, successful disability policy, programs, procedures and practices are not built around the likes of Rick Hansen or Terry Fox (which is not to minimize their accomplishments), but are based on the realities and needs of persons far more vulnerable, far less able, far less articulate, with far less support,?with far less opportunity and?with little to?no privilege. Citing Rick and Terry only sets up false expectations, which is the first ingredient for failure.??Disability sensitivity training is in order here...?Also - there should be a Minister Responsible for Disability Issues (or at least a Minister of State).?? This minister should NOT be attached to the welfare ministry ---??not all British Columbians are on welfare and more importantly --? if you want to ensure people stay on welfare and never get ahead in life, surround them by?all things welfare?and remind?them of their station in life at every?opportunity...Thank you.RE: Submission to BC’s Whitepaper ConsultationEnhancing the Quality of life of British Columbians with DisabilitiesI work within the disability community as a financial consultant for people with disabilities. I specialize in the RDSP (Registered Disability Savings Plan). I have had severe arthritis since age one and became totally blind 7 years ago. Over the last 3 decades, I have met hundreds of people who have disability challenges and who have discussed their disability situations with me in detail.The biggest frustration for most people is the restrictive and punitive system of how the benefits are paid by the provincial PWD system. Clearly, there is a large inequity between the CPP Disability Pension and the PWD Income Assistance, and there are many things that need to be changed in the PWD system of income assistance. It is critically important to educate the general public of the restrictive and punitive policies and other issues that so strongly affect those with disabilities.Here is a summary of the more important items resulting from conversations with friends, colleagues and clients:1. Modifications Needed to the BC Persons with Disabilities Income Assistance There are numerous modifications that would need to be made to the BC persons with disabilities assistance program. By enacting these changes people with disabilities will be able to achieve a better quality of life.In almost every case, able-bodied people are shocked when they find out about the differences between the provincial PWD income assistance benefits and the Canada Pension Plan (CPP) benefits. In the PWD system, there are major fundamental hurdles which affect people with disabilities in their pursuit of happiness and fulfillment in life. Except for the Registered Disability Savings Plan, a person with a disability cannot have hardly any assets under their own control nor much extra income - and there are so many restrictions, it prevents people from escaping what I call, the “disability poverty cycle”. Many on PWD do not have enough funds for shelter and basic food. In these cases it is hard to even consider how to accumulate any type of financial assets if they are desperately trying to pay for their next meal. Vancouver is one of the most expensive cities in the world to live. It is also the most expensive city in Canada to live in with regards to shelter and food.Question: why does the federal government provide almost $1300 per month in OAS and GIS benefits to seniors age 65 and older, but the province of BC provides only $906.42 to a person with a disability? The personal support level should be raised from $906.42 up to matching what the Old Age Security and GIS payments are. This should then be indexed just as the Old Age Security, GIS and CPP payments are. As well, increase the shelter allowance or provide a rent subsidy much like the SAFER Program for seniors. Currently, a person on PWD has a shelter allowance of only $375. It can take years to find a place in BC housing or co-op housing and most people with disabilities are paying much more than this and using the funds from their support allowance. In order to pay for their shelter, they are making drastic cut-backs from their food budget. This of course increases the likelihood that they are going to develop more medical conditions due to their lack of proper nutrition.Another major hurdle is, for a person receiving PWD, after earning more than the allowable earning exemption in a month in a part time job, each additional dollar is clawed back on their next Disability Assistance payment on a dollar-for-dollar basis! Most able bodied people are shocked to learn about this dollar-for-dollar claw back because it is a disincentive to work beyond the allowable earning limit. If a PWD person works, at minimum wage, for more than 1? weeks, then the next hours spent working are essentially for free. Ask the question: would any person disabled or able-bodied be willing to do this? Of course not. The system is so punitive, that recipients of PWD assistance are required to disclose any financial support in the form of gifts from family or friends and then reduces the next month assistance payment on a dollar-for-dollar basis as well. Also realize, the fact that many people with disabilities do not have the physical capacity and energy to work a full 40 hour work week, nor able to work full weeks for a full month. This situation effectively eliminates a person’s motivation for trying to get ahead. In addition, low paying full time jobs are less available than part time employment; many low paying jobs do not offer full time employment so that employers need not incur the cost of employee benefits. As well, many employers just simply do not want to hire people with disabilities. There are instances where some people with disabilities cannot even find a volunteer position.Another criticism is, that not only does the PWD system penalize a person with a disability who wants to work themselves out of the poverty cycle, the government effectively penalizes a disabled person for having a long term or live-in relationship. Notwithstanding the difficulty experienced by a person with a disability to attract someone as a life partner, a person with a disability receiving PWD will also risk having their income assistance removed if their able bodied common law partner (or spouse) earns at least $800 per month. How much more punitive could a system possibly be, where the person with a disability would have their assistance removed and would not receive any benefits, and the couple would still be living in financial distress. This forces many disabled people who are fortunate enough to find a partner, to hide their relationship from the government for fear of being stripped of their income assistance. At best, to their friends and family and to the general public, they can only identify themselves as roommates. Still others give up on dating entirely for fear of either losing their benefits and having to be a burden on someone else. In comparison, recipients of the CPP disability pension plan receive a monthly benefit which is not income or asset tested. They can have income from multiple sources. Although there is an earned income restriction as well, they can have income from other sources such as the money received from renting a room in their home, income from rental properties, and income from investments. There is no limit to investment or property income that they are allowed to have nor is there a limit to how much their live-in partner or spouse earns that would trigger a claw back on their monthly payment.I suggest that people with disabilities have the ability to increase their asset level. Below are some of the changes that can be easily made in order for it to happen.Changes to asset levels. Remove or increase the $5000 limit for assets/bank accounts. Increase the amount of a non-discretionary trust.Allow for a greater amount to be taken out of a trust for personal expenses and not counted towards a person’s income level, much like how the withdrawals from an RDSP do not count towards income.Allow family members to give money to someone on PWD without it affecting their Disability Assistance monthly payment.Do not claw back Disability Assistance if someone is receiving child support. Allow people to write off business expenses if they are self-employed.No claw-back of disability assistance due to earnings of their spouse or partner.No claw-back of disability assistance due to renting a room in their home. Question: Why is the province willing to spend hundreds/thousands of dollars per month in medication for the treatment of someone with a disability but not willing to provide them with alternative treatments that could reduce or eliminate the need for these medications?Other recommendations for changes to be made:Provide for alternative treatments such as massage therapy and chiropractic treatments. Many people with disabilities are not able to pay for these treatments on their own. However, a subsidy allowing them to gain access to such treatments may be very beneficial for their medical conditions. These treatments may allow the people to obtain better mobility, thus make it easier to use public transportation, gain employment, or attend post-secondary education. Some people might even be able to reduce or eliminate some of their medications which would save the province money.Increase amount of access and funding for medical equipment and reduce waiting time for approval.Provide subsidy for eyeglass frames suitable for thicker lenses. Currently, a $75 subsidy is provided to buy frames for glasses. However, some people who need bigger lenses or bifocals or the lens is of a particular shape need to have frames that cost more. In some cases they can cost over $200, in which cases the person has to pay out of their personal support allowance. If someone requires a prescription that fits this criteria, then they should be able to get more of a subsidy towards the cost of their frames.Pay for all medication and vitamins as prescribed by a doctor, not just those supplied by Fair Pharmacare.Remove the stringent red tape around receiving the added vitamin and food supplements.Increase the allotment for maintenance of service animals; to include all veterinary costs as well as routine costs. Put all application forms online. Allow the alternative method of submitting employment information online, instead of having to manually complete the forms. Many people have impairments that prevent them from manually completing forms and rely on other people to do this task. Also, at present, some might need to get assistance to buy stamps, go to the post office, or assist them in going to the ministry office every month. Provide announcements about ongoing and new programs as well as available jobs on the cheque stub that the person receives every month, or through a monthly email.2. Recommendations to increase the Uptake of the Registered Disability Savings Plan (RDSP)At present, a person receiving PWD income assistance may only earn an additional $800 per month, after which any income is clawed back from the next month’s assistance payment. The Ministry needs to permit the recipient to earn additional monies if it can be shown that the additional earnings are contributed to their RDSP. This will allow people to have an incentive to work beyond their $800 earnings exemption because they know they will be allowed to “keep” that money by putting it into their RDSP. Information about the RDSP should be provided on the available space on the PWD cheque stub. This would include what it is, information about the grants and bonds, and informing them about the Endowment 150 program. Expand the Vancouver Foundation Endowment 150 program so the eligibility criteria includes all people who open an RDSP who are low income, not just those who have used PWD. Provide an additional grant and bond to people with an RDSP. This program would be similar to the additional grants and bonds to people with an RESP as announced recently by the province. (Alberta and Saskatchewan have already have done so with the RESP). Integrate information about RDSP into all channels of communication including frontline workers and online. Allow employees to make contributions to their RDSP through their employer, just like payroll contributions to an RRSP. As well, allow employers to make direct contributions to an employee’s RDSP, just like they are allowed to do with an RRSP.Make RDSP creditor proof just like the RRSP. Revise the Court Order Enforcement Act to make the RDSP also exempt from being seized in the case of bankruptcy for both a beneficiary and a holder. Allow representation agreements to include RDSP, just like how RRSP are included. 3. Create a British Columbian with Disabilities Act (BCDA) This legislation should be created similar to the American Disabilities Act which is a comprehensive act that prohibits discrimination against people with disabilities and upholds their civil rights.It is important to make a disabilities act of BC created in consultation with key stakeholders in the disability community. This new legislation should be enforceable to ensure that persons with disabilities have their voices heard. As well, the government needs to ensure it is written to have sufficient powers and penalties to uphold the legislation.Included in the act should be a section concerned with new residential housing - to include the creation of wheelchair fully accessible suites.4. Make it Easier to Access Support ServicesThe BC Ministry of people with disabilities/ BC Disability Resource Centre A ministry or Resource centre should be created that handles the issues of people with disabilities. This would cut down on the amount of time it takes for a person to receive benefits and supports; as well, “red tape” should be reduced as much as possible. One comprehensive medical formAfter an individual becomes disabled, they could fill out one form about their medical conditions. This form could be used to access various programs and services for which they might be eligible for. For instance this could be used for PWD assistance, housing and rent subsidy, individualized funding, disability parking placards, and many other programs. The individual would only have to go to the doctor once to complete the form. This would reduce the amount of time that medical professionals spend on filling out numerous forms with redundant information required. Provide Extensive Training to All Frontline Government Services Personnel All too often, those who need assistance are not obtaining it. People with disabilities are receiving misleading information or are being told that they cannot receive help. Too many times, people are given incorrect information, encounter poor attitudes and even told to call back again because they did not want to answer questions. Too often, call centre representatives seem to be untrained and inexperienced. Complaints include not having information available on programs or supports, claiming supports still existed where in fact they had been cancelled (and vice versa), unable or unwilling to look up the information, “guesstimate” amounts and numbers and/or did not know of their own programs or supports within their own department. Without doubt, increased training needs to be given to the call center employees that are providing government support services information.Secondly, the call centre system also is impersonal; each time a person calls, they have to repeat what their particular situations and concerns are to a different (and usually indifferent) person. Thirdly, the call centre representatives demonstrate a lack of accountability; fail to identify themselves, not admitting to not knowing answers to questions, provide misleading information, etc.Provide a Case Manager/Navigator to any disabled personA person with disability would be given a case manager/navigator who would help them to navigate the different types of support they need and work with the people in those departments to get their supports they needed. May I suggest that hiring people with disabilities as assistants in this area would be an asset to the government as they are the ones who know the system best.A person can go months, years, decades, and even an entire lifetime without obtaining the support services that they truly need in order to achieve a fulfilling life. In most cases, people with disabilities are not aware of the available various supports and services that they could be eligible for provincially, or in their local communities. Create an accessible website with all disability resources listedIt is very difficult to find information about the various supports and services available to those with disabilities. Most of the time, people end up finding out information only “through the grapevine”. There should be one Resource Centre focussed on the needs of people with disabilities, where someone can go for help, and there should be a resource website that has appropriate links to all government programs and other organizations of interest to people with disabilities. It would therefore include information about federal, provincial and municipal programs as well as those from other organizations. The website would be made to be accessible for those with vision loss and would be able to be read by screen reader and magnification software.5. Provide Individualized FundingThe Choice of Supports for Independent Living (CSIL) program is a system of direct funding to disabled persons for the purpose of hiring and training their personal care givers. This funding removes the burden of managing caregivers' schedules and staffing by the Ministry of Health for the disabled person.Expand the CSIL program and allow people with disabilities to be able to have this as an option. Everybody should be able to choose when they prefer to have a shower or given the opportunity to run their own lives. When people are given the choice of whom to hire and make their own schedule, this greatly impacts their quality of life and empowers the individual to fulfill their life goals. They are enabled to receive a post secondary education, to find gainful employment or provide volunteering to their community. If persons with disabilities take on the responsibility of hiring, training and scheduling their own assistants, this saves on administration costs. 6. Provide House Cleaning Services for People with DisabilitiesRoutine house cleaning services could greatly help persons with disabilities and with low incomes who may not be able to clean their living accommodations. People who have great difficulty in completing necessary house cleaning will then be living in filthy and unsanitary living environments. 7. Provide Funding for Rehabilitation Services in Home when Somebody Becomes DisabledMore support is needed in providing direct help to show people how to modify their living environment when they first become disabled. A rehabilitation specialist should visit their home to identify any modifications and equipment needed and then instruct the person with a disability how to use the equipment properly. As well, there are many other tips and suggestions that can be shared and are useful around the home. Enlisting the help of other persons with similar disabilities as advisors can be instrumental in helping the person cope in the initial stages of having a disability. 8. Re-enact EATI (The Equipment and Assistive Technology Initiative) programIt is vitally important for persons with disabilities to learn how to manage within the limitations of their disability. Luckily, we are in the age of technology. Many new technologies have already been developed and are being developed to help those people with disabilities. In fact, many new technologies which are made for the general public already include the ability to access additional features for people with disabilities. The EATI program or something similar needs to be re-enacted and expanded to encompass not only those people who want to enter the workforce, but to include all people with disabilities to access the equipment that would help them be more independent and integrated into their community. With the use of technology, people are more likely to get post secondary education, have gainful employment, volunteer for valuable work experience and maintain their social interactions. Many people have already been helped through the EATI program and to see it disappear is disheartening. There are still thousands more people with disabilities in British Columbia who could benefit from this program.9. Provide Funding from the Ministry of Health to Subsidize Dialysis Trips on HandyDARTOriginally, the HandyDART service was started as a means for those who needed to become more inclusive in their community for work and pleasure. A large percentage of trips now made on the HandyDART system are for medical appointments. A portion of these are solely for dialysis patients for treatments three times per week. Transportation had been originally been provided by the Ministry of Health and over time, dialysis patients began using the HandyDART system. By providing funding from the Ministry of Health to the Ministry of Transportation Access Transit Department to cover the cost of these trips, it would permit more funding within the Access Transit Department and make available more rides to those who want to visit their family, friends, work, school or community activities.10. Increase the Allotment Allocated to each Individual on the TaxiSaver ProgramDecrease the amount to be paid by the user from 50% to 25% and increase their monthly allotment from $100 to $300. This would help to solve the problems of denied rides due to unavailable HandyDART buses, rides required after hours, and unscheduled/spontaneous rides. The HandyDART system is a good system except for several issues, one of which is supplying unscheduled transportation. In many situations such as unexpected medical appointments, volunteering or social activities, the TaxiSaver Program provides a valuable means for people with disabilities to access transportation. 11. Implement an Attendant Care Program at UBCCarleton University currently is one of the only post secondary institutions in Canada to have an attendant care program. It truly allows for people with disabilities to pursue post secondary education. At this Ontario university, students with disabilities have access to paid care givers (students working part time) to help them with dressing, preparing food, feeding, washing and if necessary, take them to their classes. Also, for unexpected or unscheduled requirements, these students have the ability to call and request an attendant who would then be dispatched to any location on the campus. BC should become a leader in providing education for students with disabilities and part of this would include having a least one central University such as the University of British Columbia, to have an attendant care program for students with disabilities. It would be based on the program in Carleton University that has been in practice for years.12. Actions for People with Disabilities to Succeed in Achieving Gainful EmploymentNotices of job opportunities on or with the cheque stub of the monthly Disability Assistance payment.Send out emails that include the information about the jobs available or which employers are hiring. Ministry to encourage employers to advise their listings of available jobs on an ongoing basis.Modify any payroll reimbursement program to employers that hire people with disabilities – for at least 2 years so as to improve training and retention.Subsidy for new clothes appropriate for new employment.Employer subsidies for technology/modifications for the work environment. Encourage business schools to provide lectures to their students and to businesses describing the skills and knowledge that people with disabilities have and how to properly accommodate these employees into the work environment. 13. Visitability Many people with disabilities and seniors do not have the “luxury" of even visiting their family and friends. They cannot get up the front steps, use their washrooms, negotiate stairs or other similar obstacles. The barriers for people to visit their family and friends are not just limited to those in wheelchairs. Many arthritics and people with restricted mobility encounter such conditions on a daily basis.Require all municipalities to ensure all new homes are made accessible for an aging population. Rather than people having to move from one home to another several times in their lifetime, have homes designed to accommodate the needs of people as they age. Such designs would include at least one wheelchair entrance, wide hallways, and bathrooms that are accessible or at least designed to be easily modified to be made accessible in the future.14. Suggestions to Increase Social InclusionAll municipalities to model the Richmond Recreation Access Pass which provides a 50% discount to the person with a disability as well as providing free access for their attendant to utilize public recreation facilities.Encourage theatres, museums, cultural and other attractions to offer reduced prices for persons with disabilities and discounts or free entrance for their attendant.Encourage all movie theatres to offer Descriptive Video Services for the sight impaired and other such services for the hearing impaired.15. Accessibility for People with Sight Impairments There are specific barriers that people with sight impairments encounter. By making a few changes, these barriers could be eliminated and permit a person with sight impairments to more easily access those activities and services that most people take for granted:Make all government websites accessible by conforming to accepted standards of website accessibility - to be able to be read with screen readers and magnification software.Audible pedestrian signals should be available in all municipalities.Audio stop announcements should be provided on all buses throughout the province.Accessible voting through the use of the internet or telephone should be used for all provincial and municipal elections.Pharmacies should offer alternative formats when providing prescription information. This would include Braille, large print, or electronic text.Improve accessible library services for those with print disabilities as well as provide audio book electronic readers.Update existing legislation with regard to guide and assistance animals, in consultation with the appropriate stakeholder groups. In conclusion, implementing many of the suggestions above and which were suggested by people with disabilities in British Columbia would greatly help to reduce poverty and improve the health of people with disabilities. In addition, people with disabilities would have the opportunity to increase their quality of life. They would not have to feel that their disability hinders themselves towards pursuing happiness and fulfilling life goals.Instead of making British Columbians with disabilities feel like second-class citizens, the government of the Province of BC should provide the same opportunities for all people, so that we all can enjoy living as first-class citizens in a world class country. And, on a personal note, I would be honoured to be a part of any task force that is created in order to review and make choices about the implementation of any or all of the comments put forth throughout the province during this consultation. I can always be reached at [phone number removed], or through my email address of [email address removed].As a disabled person in receipt of BC Persons with Disabilities Benefits a deadline of March 11, 2014 with notification as only a very small indication on our BC PWD Cheque for March 2014 doesn’t give us much time to make much of a submission for this White Paper Consultation for People with Disabilities in BC. Because I have written many desperate letters of our plight to the powers that be I thought I might just send you copies of some of my correspondence which should explain my situation and a few of my more recent concerns.A most pressing concern is that we don’t get enough money to possibly live on. We barely exist on what we get. It takes all of our energy just to cope with it. We must do without much that is necessary for us specifically because of special needs due to disability, and also without what most people in society take for granted as needed for basic living. The focus by government always seems to be on employment. But what if our disabilities keep us from being employed? Does that mean we shouldn’t be allowed enough to live on? Should we be ashamed? Should we be punished? It sure feels like it to me by the way I am being treated? Especially when considering that to qualify for BC Persons With Disabilities in the first place, we must first prove we are unable to be employed. Then accepting us in this condition we are then treated as if we can only have human dignity if we are employed. Forced to live on a basic benefit that no one could possibly thrive on.I just received my T5007 Statement of Benefits for the year 2013 so I can fill in my income tax forms. In spite of the fact that just in the past year the BC government has downloaded $1200 of additional expenses on to me. In addition, they have also deducted $1705 off my basic benefits. I only received $9,172 in benefits for 2013. Down from the basic benefits of $10,877. We disabled on BC PWD are supposed to be allowed an $800 per month income exemption, however the income that is allowed to be used for the exemption is only allowed if it was earned with our broken bodies. Maintenance income doesn’t count. Not any more. It used to but the BC Liberals took it all away. In my case I am not able to be employed because of my disabilities, my other income, the only other available to me that was ordered in BC Supreme Court to help meet the difference between what I actually needed and what I received on income assistance is now and has been since 2002 completely deducted penny for penny. It’s awful to be so needy and yet anything that I can get that could help me is deducted off my cheque each month. I’ve been told many excuses and reasonings for our inadequate income in letters from the powers that be: On January 4, 2011 Sharon Moysey the Deputy Minister responded to an email letter I wrote to the Honourable Rich Coleman Dated November 30, 2010 who was the Minister of Housing and Social Development at the time. My letter expressed my desperation and I asked why there was so much unfair treatment directed toward me from government? The ministry often unfairly scoops money from my income assistance. I also expressed how hard we struggle and how difficult it is to survive on so much less than what we actually need to live. I was assuming that what they are doing to us must be merely an oversight and felt compelled to let my government know about it.Ms. Sharon Moysey, after going into great detail wrote, “In reviewing its rates, the ministry takes into consideration cost of living studies, inflation, assistance rates in other provinces, the dieticians’ report on the cost of eating and recommendations by the BC Progress Board.” Then Ms. Moysey went on to say something that absolutely astonished me, She wrote, “By keeping increases to benefits separate from the rate of inflation, the provincial government is able to manage its budget over the long term and target increases to those British Columbians most in need.”It appears the disabled are left out in the cold when it comes to the rate of inflation, or the actual cost of living. My guess is they see themselves as more needy than the disabled, as they would never consider such a policy where it came to their own publicly paid salaries.To understand how utterly ridiculous this policy has become, aside from the deprivation being against our rights as human beings, you should be aware that BC Persons with Disability Benefits has been held within $120 of the same low rate for more than two decades, while many necessary expenses that were once covered by our government for the disabled have been downloaded onto us and far exceed those $120.October 3, 2012 Moira Stilwell, MD Minister of Social Development wrote to me in response to another desperate plea for an increase to our disability benefits. Moira Stilwell wrote, “Like many other provinces, British Columbia is not in a financial position to consider increases to income assistance and disability assistance at this time. British Columbia has increased the overall funding for PWDs on income assistance by over 100 percent since 2002. The number of persons with PWD designation receiving income assistance in the province is over 83,000, up 81 percent from 10 years ago. It would cost approximately $300 million to raise the monthly disability assistance rate to the $1200 per month proposed by the Disability without Poverty Network, and $350 to $400 million to raise it to the Old Age Security and Guaranteed Income Supplement level.”?Ms. Stilwell also wrote, “The ministry, however, is interested in ideas that would assist us in improving and providing service to people receiving income assistance.? Ministry staff regularly review developments in other provinces and jurisdictions, and meet with stakeholders to discuss approaches, ideas, and concerns about how we can continue to serve people better apart from a rate increase.”She suggests they’d like to help but will NOT consider an increase. Not for us.I’d like to point out that If I remember correctly there were more than 60,000 of us in 2002 which doesn’t jive well with Ms. Stilwell’s figures. I vividly remember because this government made us all re-apply for benefits and our numbers were all over the news media. To put this somewhat into perspective, this government easily found the money to put a new roof on the BC Place Stadium which cost more than $500 million. Do you know I’ve never been inside that building. I simply cannot afford it.$300 million to give 82,452 disabled people $1200 per month to live, while Alberta gives their disabled nearly $700 per month more to live on than BC does, and it costs more to live here in BC. (numbers as of May 2012)And why is she giving me that sob story anyway that they can’t afford it. It’s against our human rights to single us out as a group to deliberately deprive. $1200 a month would still only give us $14,400 per year. But that would be such an improvement that it would mean the difference between life and death to us.Another of my concerns was how when I felt I was not being treated fairly, At tribunal when I pointed out that I should have protection from such under the Canadian Charter Of Rights and Freedoms. I was then bold faced told that the Charter did not count for me and they need not consider it. Another concern is the arbitrary treatment of clients, In spite of information I pursued and received from the ministry concerning a financial matter, information I followed exactly only to find the ministry treated me opposite to the way they said they would. This was information I received from people within the ministry who were in a supervisory role. Backed up by an advocate from the BC Coalition of People with Disabilities who had also inquired on my behalf. So we were both flummoxed. And I was adversely effected in a way that will continue to effect me for many years to come.Another of my concerns is how Last summer, our government decided it would stop deferring more than $785 worth of a disabled recipient’s property tax bill that a decade ago they told me they would defer instead of giving us a livable amount to live on. After 10 years of deferring it, I now must come up with that amount of extra money and I cannot imagine where it will come from. Another concern of mine is: because of my sensitivities and illness I turned down the smart meter which I fear will harm me even more and make my life even more miserable than it already is, which I explained in detail in a number of letters. Now I have received numerous threatening and coercive letters and phone calls either from or on behalf of our Crown corporation BC Hydro. The most recent demanded that I pay an additional $35 per month for them to read my analogue meter. Even though I have always kept my account up to date, have never missed, they have threatened me with disconnection. If you would like to know more about my story I have included some of my correspondence. Also I can provide you with more documentation if it is required. I have written so many desperate letters over the years to the powers that be that I must wonder if anything we could possibly say would make a difference to people who just won’t hear.I will be presenting a business proposal on [date removed] at the Community Living Of British Columbia board meeting, location will be in Vancouver, time and location to be determined.After 15 years provide support to varies ages and abilities I have done extensive market research and am in the stages of completing a business plan. After graduation from high school and once 19 they require services and funding from CLBC. The services would be provided to age 30 This range is of a young adult who require different supports, have different hobbies and interests then the older population. The first service if my proposal would be a focus on consultation services, that's assessments so you can arrange financing, care plan, goals and objectives as well as behaviour analysis, modification and management techniques.2nd would be to provide day and evening programs this design plan would focus a lot on life skills such as healthy living, meal planning, preparation and cooking of meals, a variety of household tasks, utilizing transportation services. Also shopping for the prepared list of ingredients needed well learning cost saving measures, budgeting and counting of monies. On the social side of things events would take place both day and few hours each week during the evening they'd be things like exercise programs, swimming, therapeutic horseback riding, pet therapy program, theme days, arts and crafts, movie/pizza night, coffee socials, game night, karaoke, spa night, monthly birthday celebrations and a Freaky Friday once a month eg: sock hope dance or interactive games night.3rd Employment or post secondary exploration, design individual career path to help gain focus on their direction. Assist with options and learning of networking and ways to find opportunities in their community. Learning or enhancing computer skills, resume and cover letter building, learning of interview expectations and mock questioning to prepare for success.Finally is Rest-a-bit-ality this is respite opportunity provided to parents, families, caregivers and clients. There would always be qualified 24 hour care staff member on site.After much market research and understanding of financial restraints in this industry I bring forth this unique, fresh service in hopes of providing all of these services out of a large residential small acreage location. Been able to execute this business plan would be beneficial for funding as you only have to pay for one place, one set of utilities, minimal staffing. It offers familiarity to the clients if they come to programs and then for respite it would be a much more easier transition for them. Caregiver and families would not have to drive here, then there and back again as everything the client needs is at a one stop location.Well I hope this falls into the right hands and have given you a little of the wow!! factor.At this time I would like to take this opportunity to either arrange to meet with you and have you and whomever attend my official presentation of this business plan. If that day would not be possible, perhaps you would like to meet on your own terms or even a sooner date? I would be very flexible in meeting with you as I am confident that this 4 year dream may actually make it to a reality.Thank you so much for your time, understanding and consideration. Please feel free to contact me if you require additional information or perhaps be able to arrange a time we could speak further and discuss the possibilities in providing life skills, education or employment opportunities to young adults. Nothing better then supporting those with needs, watching the growth, development, their independence and enjoying their successes as they journey into adulthood.Thank you for the opportunity to take place in the conversation you are having regarding reducing barriers and increasing accessibility for people living with Disabilities in British Columbia.I would have attended one of your community meetings, but only found out about them just today (March 10th) after they had all been concluded.Attached please find some of my comments re: Asset Accumulation for Persons with Disabilities. I would be very interested in being involved in the development of your White Paper and in attending the Summit meeting if that might be possible.Thank you for all that you are doing.Re: Asset Accumulation for Persons with DisabilitiesI have struggled with part-time, casual, and unemployment most of my life. Finally, I was diagnosed with two disabilities in July of 2011, a month before my 57th birthday. I opened an RDSP in August of 2011, and moved into subsidised housing in August of 2012. I will be 60 years old in August of 2015, and I have major concerns over my financial security as an older disabled person. Two areas which I have personally identified as significant barriers to my achieving financial security are:RDSP – The Registered Disability Savings Plan is great for younger disabled persons who may have parents or family members who wish to contribute. It is of little practical benefit to disabled persons who are diagnosed later in life. Not only do I have less time to try to save, because I did not open my RDSP before turning 49, I have not been eligible for any matching government grants or bonds. Additionally, I can only contribute to my RDSP until December 31st of the year I turn 59, which is this year (2014). This means I will only have had three years and four months in which to use the RDSP plan to save for my long term financial security. I have been able to accumulate very little savings in my RDSP while living on Income Assistance. Recommendation: Increase the age 49 cut off receipt of matching grants and bonds to age 65 and change the date of closing the RDSP account to age 65. CPP – As a recipient of PWD benefits with the BC Ministry of Social Development and Innovation, I have been told that I will be required to apply for my CPP pension benefits at my earliest opportunity – that is, when I turn 60 years old - in another year and a half. According to the Ministry, I will not be given as choice as to when to apply for CPP.However, under the new Canada Pension rules, taking my CPP at age 60 will reduce the amount I receive by 31.2% - and that will be reduced each year until ti hits 36%. Under the new rules, there is a 42% increase in CPP benefits if a person waits until age 70 to take CPP. Therefore, the difference between taking CPP at age 70 compared with taking it age 60 means up to 78% more income. It is not fair to penalize disabled persons for taking CPP at age 60 when they are not given a choice – especially as this will result in lower retirement income for persons who are already struggling with limited financial means in old age. Recommendation: PWD recipients should not be penalized for taking CPP at age 60 instead of age 70. Instead, they should receive the same benefit amount at age 60 they would have received had they elected to take their CPP at age 70. Thank you for the opportunity to participate in the conversation on increasing accessibility for people with disabilities in BC."Accessibility means removing barriers to participation in a way that is meaningful — not as an afterthought or something to work around." Vancouver 2010To make BC "the most progressive place in Canada for people living with disabilities", the concept of accessibility must permeate every aspect of life in the province and assure equal opportunity to participate in the mainstream, including education, housing, healthcare, employment, transportation, recreation, tourism, culture, and beyond. To achieve this goal:Establish progressive legislationEstablish progressive provincial legislation that ensures "equal opportunity, full participation, independent living, and financial selfsufficiency"1 for people with disabilities in BC.Set "clear, strong, consistent, and enforceable standards"1 and expectations for accessibility.Establish an agency with the authority to actively enforce the legislation and resolve access concerns through a strong and timely process that uses inspection, education, technical assistance, and fines when required.1 Americans with Disabilities Act of 1990, As Amended, retrieved March 10, 2014 from pubs/adastatute08.htm Update the BC Building Code to address- accessible housing options- accessible parking- actual specifications of current mobility equipment and technologyRevise technical standards to meet current accessibility needs and account for changes in population and mobility equipment. For example:- require that a % units in all new builds of market town homes, apartments, and condos be wheelchair accessible, and that an additional % of units have universal design elements- increase the % of accessible parking spaces required, per spaces available in parking lots, to account for the increased numbers of people that need spaces near entrances- require a % of wheelchair accessible van parking spaces, per spaces available in parking lots, to ensure that parking spaces with the correct specifications are available for the increasing number of residents that use these vans to live and work independentlyCreate innovative and inclusive funding optionsCreate equity in funding models to ensure that people with disabilities who are gainfully or competitively employed have access to funding for the mobility equipment and housing adaptationsrequired to support or maintain that employment. For example, establish cost sharing funding, grants, low interest loans, and forgivable loans.Current provincial and federal funding is not available to people with disabilities who are employed. This funding model is a discriminatory practice. It is a disincentive to seek and maintain employment. It creates a culture in BC in which people with disabilities are better supported if unemployed and/or participating in their community through volunteerism or sport. It places an undue burden on employed individuals with disabilities, and their families, to bridge the funding gaps (that are often disproportionate toincome) for essential equipment that mitigates disability and makes employment possible.Establish incentivesImplement incentive programs that support and encourage innovation from businesses and service providers to remove barriers to accessibility. For example, establish tax credits forrenovating a building, creating a wheelchair accessible van parking space, building an accessible playground, installing a lift to access a hotel pool, operating a tour bus company with wheelchair accessible buses, acquiring an accessibleexamination table for a doctors office, or purchasing equipment that improves access for all.Make the proposed Guide and Assistance Dog Act law.Take action and turn the proposed Guide and Assistance Dog Act into law to further support access for these animals and provide strong avenues for enforcement when access is denied.I look forward to reading the final White Paper on increasing accessibility for people with disabilities in BC and to learning more about the Summit planned for June 2014.Innovation:I have had [information removed] since in my 20's, affecting my hands and feet. I never considered myself disabled, never checked the place on a job application where it asks if you have a disabilility. Forced in the 1980's to quit a job due to a flare up in my hands making it impossible to type, I visited the local unemployment office. The staff person there was the first person EVER to tell me that I was a disabled person, that I was handicapped. I was shocked, appalled. But I did get the opportunity to take training for a different line of work and went on to work 15 years for the government. During that time when my hands gave out again, I was sent to the Neil Squire Foundation for an assessment. They set about to find a way for me to continue typing using special equipment. While there I met a lady in a motorized wheelchair who used the "sip and puff" method of moving the chair where she needed to go. She could only move her head, nothing else. Yet she glowing told me that she worked as well. I learnt that as long as you can breath you CAN work, and be the better for it, gaining a sense of purpose.Personal Supports, Aids and Devices:The Neil Squire Foundation is only one of the many places sprinkled around BC that has a creative and innovative attitude towards helping people continue in their chosen field or train and find employment that they can do. How can employers help? Have their place of employment be accessible. Something as simple as removing doorknobs and replacing them with levers..much easier for persons with poor grip to open a door. Be willing to provide ergonomic keyboards, chairs, lighting. Stairways with strong handrails. Ramps. Some people are naturally driven to ignore their "handicap" and proceed with what they want to do. For those who feel life is over, perhaps they need to be shown the possibilities, the excitement of doing things you would never have imagined you could do. There are creative ways to meet challenges, that information needs to be shared everywhere. BC could shine a light on these solutions, solutions that are already out there, an easy and inexpensive way to help people reach their potential. Work and Contribution:Worldhost is training for persons not just in the tourism industry but in any employment situation that has interactions with people of all ages and disabilities. My neighbour is VERY hard of hearing. She is friendly and kind but simply can't hear. We were in a store and a young clerk said "Good morning, how is your day?" My neighbour walked right past, not acknowledging the clerk. I saw the young woman make a face that to me meant that she thought my neighbour was rude, ignoring her pleasant remark. That was not the case, my neighbour's disability is hidden. I asked our Tourism people about Worldhost and was told there is a component to teach persons how to be aware of and work with persons with disabilities. But this additional training adds a cost, making it unattractive to most businesses. This is important training and would not be anything that needs to be created - it is already there. Perhaps the additional training needs to be included in the basic core training, Housing and accessibility in the Broader Built Environment:Aging in place is an attractive option when considering purchasing or renting a home. SafeHomes has a list of all the criteria necessary if building your dream aging in place home. Wider hallways, appropriate bathrooms, reachable counters, cupboards, easy entranceway. It is also visitable. Friends or relatives visiting who may be in a wheelchair or have difficulty seeing or getting around can easily, comfortably visit. Cheap to do while building, more expensive to change something existing. A little thought before jumping in can save much should it become a crisis. Affordable, accessible housing must be made available, not just for those who are aging but for those with disabilities as well. Living on a fixed income, be it old age pensions or disability pensions, leaves one with few choices. Real Estate Agents, builders, architects all need to get with the program of sustainable housing. I see the push here with large two and even three story houses planted next to each other. A costly horror story. More focus by the people who make laws to care for our environment.Social Networks to Support People in Community:A focus on existing groups. Why reinvent the wheel? The former Measuring up the North, we have now changed to Access Smithers. We continue working for accessibility in our town. We continually push for better streets, safer sidewalks, accessible stores, affordable housing, recreation for all, inclusion for all. Perhaps different Health areas, for example Northern Health that covers our area, could help with programs not only to prevent disabilities but in providing programs to lessen the impact of having a disability. More sharing of information on creative solutions. Can't type anymore? So many different solutions for this. Asset Accumulation through Registered Disability Savings Plan:It would be super to be able to save towards unexpected expenses. Right now it is nearly impossible to save anything if you are on a pension, a fixed income. Perhaps by providing employment opportunities with employers setting up ways to save through wages, like is already done for CPP would be most helpful. BC is a wonderful place to live, I believe the best in all of Canada! There is work to be done to help it be even better. Perhaps by opening this door, through this "conversation" we have ments on the Disability White PaperCare facilities properly staffed with doctor's nurses care aids physiotherapist or whatever equipment needed to have a life of productiveness with the dignity they deserve for the adults up to the age of 65. With funded access to all the modern technology that is available to their individual needs in a prompt and timely manner.Low cost housing for adults with disabilities up to the age of 65.Funded Training for employment to meet the ongoing needs of their disabilities.Access to the recreational activities without a large cost regardless of age.lncrease coverage for wellness and preventative health maintenance.Provide full coverage for alternative visits like physiotherapists, occupational therapists, massage therapists etc.Provide full coverage for all equipment needed with funded training on the equipment so they have a productive life to their best ability to be a contributing part of our society.Provide funded dental plans.Funding to the employers of people with disabilities to help offset the cost of any special equipment or renovations that may be needed as an incentive for them to hire them.lncrease the allowable income these people can earn with revisions so they can work without losing any benefits as their ability may change periodically? So that they know how to help us, so that we are equal in all values.? Need them to talk to you, understand their disability, personally for ones with sight munity support and social activities.The population would be more aware of people with disabilities.? Disability red paper, many British Columbians kill themselves instead of seeking help from doctors – mental health stigma actually kills people? That they know how to help up so we are equal in all values? Need them to talk to you understand their disability, personally for one’s with sight impairment? Community support and social activities? The population would be more aware of PWDs? To start the program from birth and consider contribution from other sources? With the contributions from the RDSP we could have enough money for bus system to reach the destinations? When a person ends up on disability after the age of 55 due to illness, accident and/or unforeseen circumstance, they are NOT able to contribute to RDSP – this is a serious oversight? Also the lack of info and/or advocacy for those totally new to the world of disability adds to the stress being experienced? The “transportation” subsidy is valuable and yet I didn’t’ learn about it until long after I was on disability. I only received it once before I turned 65 and suddenly – I am no longer eligible? Also when I first learned of this subsidy I was living in a remote area where it was essential to drive to get mental health help and yet one has to live where there is bus service and be unable to use it.? People who are enabled, think they are able? Create a program to help people with disabilities from average people? lnvolvement from the local community? Housing and accessibility in the broader environment built? More accessible housing? Safer (see white sheet included)? More apartments like Albert Place, Yin Ho, Belvedere? Relaxation on permits for secondary suites for PWD? incentives to build disability housing ie: wider hallways adapting bathrooms etc...? Provide a rent subsidy similar to the SAFER program for seniors, for people with disabilities on low income including PWD recipients.? Stop the claw back of family maintenance for P.W.D. recipients? To start the program from birth and consider contributions from other sources, with the contributions from the RDSP, we could have enough money for a bus system to reach the destinations? RDSP- Age cut off too soon for Federal Plan? Provincial equivalent no age barrier? Make it easier to get your tax credit? To date people with disabilities are only allowed to have $3000 in their bank account. People who get inherits get penalized for having more. I would like to see people who receive gifts or inheritances of more than $3000 exempt from personalization. The goal we all want is to get ahead and feel like we are living comfortably? lncrease provincial disability benefits to $1200 per month? Make disability benefits indexed linked? People who are viable (?) think they are able? Create a program to help PWDs from average people? Involvement from the local community? You could communicate easier, to create a society of equals supporting equals? we could remove the barrier, such as - that people of disability are stupid? More people to help us, Better transportation, Better know-how of technology? things will develop towards a better living. lt would attract more people here in BC.? Disability Red Paper - Many British Columbians kill themselves instead of seeking help from doctors. Mental Health stigma actually kills people.? We believe in equality to make it easier for people with disabilities? lmportant to increase awareness,? 3 things: stigma lazy, stupid, violent are all false beliefs? *? Mental Health Stats? More education: use of knowledge network? Mental Health Ward - reduce barriers for people going into hospital-improvements to Mental Health Ward? Help them find jobs? Offer tax breaks to businesses who hire PWD? incentives for people who go into the medical field? Flexible work schedule-job sharing? No support for parents with disabilities with children who have disabilities (stigma)? All papers coming from government should be plain language (Grade 7 level)? Direct programs toward 2 branches. One for those who are PWD and eligible to work and one for those who are PWD and can't work at all? You could communicate easier – to create a society of equals supporting equals? Barrier: That people with disabilities are stupid? More people to help us, better transportation, better know how of technology? Thing will be developed around a better living – it would attract more people here in BC? More access to information? We should have assistance when in situations where we need it, (ie. crutches, wheelchairs, etc.)? We will get more of a population and we would be recognized? All areas need to work together, more front line workers? Community support workers – none for parents with children with disabilities=cost of daycare - $7.00 per day per child (look at Quebec model for daycare provincially funded daycare) (sic)? Physical exercise programs have discounts but no trainers, funding for personal training for health reasons ie: diabetes, obesity.? Support group agencies MDABC BCSS, CMHA.? Access to drug rehab for all persons and all ages wanting to get better. Also other programs to deal with the reasons why.? lncrease disability benefits to the equivalent of Alberta or $1200.00 a month.? lncrease housing allowance for shelter? More access to information? We should have assistance when in situations where we need it ie. crutches, wheelchair, etc.? We will get more of a population and we would be recognized? Equal social status.? lt has to start with local community support? Create a social atmosphere through social gatherings, meetings, dances, hobby or book clubs? More respite for community families? Public education eliminates stigma? more home support? Better at home-needed for PWD? Assistance needed for challenging times? Case managers over worked, heavy caseloads, people minimum 2 times a year to maximum 4t?mes a month depending on the individual.? Drop in centre for PWD and low income people, no drugs, no alcohol, games, dances, and a community centre? Transport (van and volunteers/workers) to do activities when persons are in care {hospital) mental health ward. Also funds to do activities, swim, hot tub, garden, movies etc....? Creates people who have equal social status? It has to start with local community support? Create a social atmosphere through social gatherings (meetings) (dances) hobby or book clubTaking down the barriers and we have the opportunity to voice our problems? Job equality, communication; Create an atmosphere of equality for all workers? The book for educating us would create a job incentive program, give tools for us to be part of society, Created a Community atmosphere.? lt would make things easier for access to things (stores) for medical assistance? Adaption-adapting the work environment suitable for people with disabilities? Higher education, more accessible for PWD? Advocate for P.W.D. to have more choices in education and the work place? #1 issue to the above to what AB receives? Taking down the barriers and we have the opportunity to voice our problems? Job equality and communication – create an atmosphere of equality for all workers? Create a job centre program with a community atmosphere – the book for educating us would give tools for us to be part of society? It would make things easier for access to things (stores) for medical assistanceIt would be super to be able to save towards unexpected expenses. Right now it is nearly impossible to save anything if you are on a pension, a fixed income. Perhaps by providing employment opportunities with employers setting up ways to save through wages, like is already done for CPP would be most helpful, BC is a wonderful place to live, I believe the best in all of Canada! There is work to be done to help it be even better. Perhaps by opening this door, through this "conversation" we have started.Aging in place is an attractive option when considering purchasing or renting a home. SafeHomes has a list of all the criteria necessary if building your dream aging in place home. Wider hallways, appropriate bathrooms, reachable counters, cupboards, easy entranceway. It is also visitable. Friends or relatives visiting who may be in a wheelchair or have difficulty seeing or getting around can easily, comfortably visit. Cheap to do while building, more expensive to change something existing. A little thought before jumping in can save much should it become a crisis.Affordable, accessible housing must be made available, not just for those who are aging but those with disabilities as well. Living on a fixed income, be it old age pensions or disability pensions, leaves one with few choices. Real Estate Agents, builders, architects all need to get the program of sustainable housing. I see the push here with large two and even three houses planted next to each other. A costly horror story More focus by the people who make laws to care for our environment.I have had arthritis since in my 20's, affecting my hands and feet. I never considered myself disabled, never checked the place on a job application where it asks if you have a disability. Forced in the 1980's to quit a job due to a flare up in my hands making it impossible to type, I visited the local unemployment office. The staff person there was the first person EVER to tell me that l was a disabled person, that l was handicapped. I was shocked, appalled. But l did the opportunity to take training for a different line of work and went on to work 15 years for government. During that time when my hands gave out again, I was sent to the [information removed] for an assessment. They set about to find a way for me to continue typing using special equipment. While there I met a lady in a motorized wheelchair who used the "sip n puff' method of moving the chair where she needed to go. She could only move her head, nothing else. Yet she glowing told me that she worked as well. I learnt that as long as u can breathe you CAN work, and be the better for it, gaining a sense of purpose.The [information removed] is only one of the many places sprinkled around BC that has a creative and innovative attitude towards helping people continue in their chosen field or train and find employment that they can do. How can employers help? Have their place of employment be accessible. Something as simple as removing doorknobs and replacing them with levers….much easier for persons with poor grip to open a door. Be willing to provide ergonomic keyboards, chairs, lighting. Stairways with strong handrails. Ramps. Some people are naturally driven to ignore their "handicap" and proceed with what they want to do. For those who feel life is over, perhaps they need to be shown the possibilities, the excitement of doing things you would never have imagined you could do. There are creative ways to meet challenges, that information needs to be shared everywhere. BC could shine a light on these solutions, solutions that are already out there, an easy and inexpensive way to help people reach their potential.A focus on existing groups. Why reinvent the wheel? The former Measuring up the North, we have now changed to Access Smithers. We continue working for accessibility in our town. We continually push for better streets, safer sidewalks, accessible stores, affordable housing, recreation for all, inclusion for all. Perhaps different Health areas, for example Northern Health that covers our area, could help with programs not only to prevent disabilities but in providing programs to lessen the impact of having a disability. More sharing of information on creative solutions. Can't type anymore? So many different solutions for this.Worldhost is training for persons not just in the tourism industry, but in any employment situation that has interactions with people of all ages and disabilities. My neighbour is VERY of hearing. She is friendly and kind but simply can't hear. We were in a store and a clerk said "Good morning, how is your day?" My neighbour walked right past, not acknowledging the clerk. I saw the young woman make a face that to me meant that she thought my neighbour was rude, ignoring her pleasant remark. That was not the case, my neighbour's disability is hidden. I asked our Tourism people about Worldhost and was told there is a component to teach persons how to be aware of and work with persons with disabilities. But this additional training adds a cost, making ?t unattractive to most businesses. This is important training and would not be anything that needs to be created - it is already there. Perhaps the additional training needs to be included in the basic core training.I would first like to thank our B.C. Minister of Health Hon. Terry Lake and the government of B.C., for setting up the “Community Consultation on reducing barriers and increasing accessibility for people living with disabilities”. I would also like to thank all the people in charge of the “In-Person Community Consultation” I felt welcomed, and the instructions were easily understood by me. I sat at table #2 with [name removed] (table communications facilitator?) Mr. [name removed] did a terrific job of ensuring that everyone was heard and had equal opportunity to speak. One situation that prevented me from sharing more was the fact that a person from the city of [removed] (I believe he was in planning) was sitting beside me. This made me feel uncomfortable with sharing more on my situation. There is a quote; “Educated men speak because they want to say something, the poor and disadvantage speak because they have to say something.”[name removed] had posted on the recommendations board my one page written suggestions on “Mental Health Detentions” in BC.My story was in Focus Magazine’s Dec. 2013 Issue, written by reporter Rob Wipond titled “An Overabundance of Caution” I was also on the University of Victoria radio program “The Winds of Change” with Janine Bandcroft on Feb 27, 2013 at 11:30 am. I will explain my current situation on the following page or pages regarding seeking assistance and having a lack of confidence with those people who I may have to speak with in order to get help.Once again, thank you for the opportunity for allowing people to express their views, opinions and solutions in this “Consultation”.On [date removed] I was going to seek out assistance for my situation at The Open Door, Social Services etc? I really don’t know where to start. I was out of money with no work. An old friend’s wife works with Social Services which makes it difficult for me to walk into that office asking for help. My ex-common-law has our four children living with her and they are fine, she pays for their needs as she is working. Myself, I have no health or dental coverage. I have no money to see a dentist or doctor. I am only days away from financial ruin and being homeless. I have my lower teeth that are decayed to the point I’m concerned they may be infected. All my top teeth except for the front 4 have been pulled at the free clinic by Dr. [name removed] team of dentist as they were so badly infected they had to be pulled. Now it’s impossible to chew food.There are a few spots in my eye sight I’m not sure why. I have an injured arm and wrist which limits me to what and how much work I can do. Just when my arm feels better I do extra work and my wrist and arm never heal properly. Last [date removed], I had an accident while working for a client in [location removed] when my tall 18’orchard ladder snapped in half, I collapsed to the ground landing on the broken half of the ladder injuring my left side, my arm, wrist and hip so bad I couldn’t work for a long time. I did have private accident insurance and still pay for “Canada Life” accident insurance to cover lost wages instead of Workers compensation, but I could not benefit from accident insurance because I had no medical BC Health Insurance to go to a doctor to have my injuries checked out. My income is so low it wouldn’t have been much anyways. I called the BC Health Inquiry number at the time to inquire about going to ER for assessment without coverage and no money to pay for the visit. I was told I needed insurance or have the ability to pay for the visit or get health coverage otherwise they wouldn’t accept me. So I couldn’t get x-rays or have a doctor do an assessment.Getting BC Health coverage for me is a problem. I would first have to have to file taxes in order for BC Health to be able to assess the rate I would pay for health insurance and or determine if I’m eligible for free coverage under the plan. The last time I filed was for 2007 taxes in 2008 when I had a residence. I couldn’t file taxes since, since I had no residence. The address I use for my license on [information removed] is where I have a small office for my advocacy work which the homeowner provides me with a room with my own outside door for free in exchange for maintaining her lawn and small garden, the room to be used as office only in daytime.My common-law who separated from me in [date removed] lives in a BC Housing complex with our four children. She works night shift, so those nights I stay with my children looking after them. I work doing odd jobs trimming trees and hedges; I can’t afford advertising, not even a business phone for people to call me. My 1983 Ford truck has been broken down for the past 2 weeks. I have no money to fix it, it needs a clutch estimate $1,000.Today I rented a u-haul truck as I was lucky to have 2 people call with work for me to do, with a $100 deposit I was able to rent it, so that will buy me a couple days, I have no money and no savings and no residence so I’m in a tough spot. I never make enough for deposit to rent a place.I have had no medical insurance since 2008 since I was living near London Ontario. Lack of confidence with the Ministry of Social Services, CRA. In 2001 I lived with my common law [name removed] and our 3 young daughters who were all under age six. We were renting a beautiful home in [location removed] in a nice neighborhood overlooking the water. On [date removed] I was promoting my book ‘Canada’s Dishonest Tax Police’. Two [location removed] police officers on the 6th day arrested/detained me and took me to [information removed] hospital for a mental health assessment; they put me in a small locked room. I was calm, respectful as I always am. I asked police and medical staff for call to lawyer and call to family to let them know where I was and who I was being detained by, (I wasn’t told why I was being detained). The police and medical staff refused my request. I refused to speak with a psychiatrist until they allowed me a call to my family and a lawyer to have the validity of my detention checked. I was ordered out of my clothes; a nurse walks into the room with a syringe and advises me I must take this medication. I refused, she stated security will flip me over and I’ll be injected the hard way! I asked for pill form as I didn’t like needles stating it’s against my will and note it on record which it was. The next day I was taken to [location removed] and was detained and drugged for 11 days. On the 11th day I spoke with a psychiatrist and he released me after a 10 minute discussion. Medical records states I had dental pain back then in the [location removed], but that was no concern of theirs. My common-law was advised to separate from me as she had no way to pay rent as the bread winner was locked away in the [location removed]. She sought help from Social Services, we’ve been separated ever since. [information removed] says it’s staying that way until she receives an apology from those who caused us harm.There were 3 [name removed] in [location removed] at the time in [date removed], I had never been to [location removed] hospital in my life, and I’ve never had any mental illness. One other [name removed] had a dispute with Revenue Canada.The ER physician months later in [date removed] wrote an addendum to my medical file which he copied to me, “In my ER Consult report I stated [name removed] was arrested and brought by police from Revenue Canada, it was actually the Law Courts”.The police provided only a subjective verbal report which was false information. I was at the Law Courts seeking an 810-Peace-Bond at the suggestion of the Justice of the Peace to prevent tax agents from entering my home unlawfully. Pg 3 of 4Revenue Canada tax agents had already yanked documents out of my hands in [date removed], and retrieved from my lawyer’s office my documents unlawfully from my lawyer. My lawyer left the firm shortly after without telling me, and failed to advise me he released my documents to tax agents. He was later found guilty by the BC Law Society.On [date removed] a tax agent provided me with a copy of their thank you letter they handed to my lawyer; that letter I showed the Justice of the Peace on [date removed].In [date removed], I worked for [name removed] support services, a call from my supervisor stated I couldn’t work with children anymore as my name has been flagged as the government was doing searches on people’s names who worked with children. I had no problem with that as I had no criminal record. I had to go to the police station and get my finger prints and photo taken which they sent off to Ottawa. Two months later results came back, the Attorney General’s office sent a letter to my work and myself stating “You are not the person with the Criminal Record in question, we are sending your fingerprints back to you”.I’ve always gone to Christ Church to meditate. Mix up of people’s names can come into play when authorities act fast without checking the facts which they are relying upon.I can only hope that my situation will help the BC Ministry of Health with their “Community Consultations”My biggest recommendation which is also recommended in the ‘BC 2005 Mental Health Act Guide Book’ is “for police to provide medical staff with a written MHA report” and stop the use of verbal reports. If police are “Acting in Bad Faith” for personal gain, promotion, or to gain some extra overtime, then it cost the taxpayers huge amounts of money needlessly while eroding the confidence of the people, as well beds may not be available for those with mental illness who need treatment who can’t get it because there is no bed available.I no longer have confidence with police, the law courts or the medical profession. I refuse to call the police for anything. If someone needs medical assistance I’ll offer help, but other than that I won’t call police even if I see something happen.When honest hardworking capable citizens refuse to call police to report what they see, the province of BC will have to spend more money for more officers to help with investigations when the public become silent about things that matter.Some people need more, some less, but if their main needs are met many will be satisfied.Equitable funding across all provinces. If B.C. needs to be the fulcrum then so be it. A law passed for PWD that gives assurance and security to them now and into the future. Raise the PWD monthly allowance. Index income support for PWD’s to the rate of inflation. Match support for PWD’s to the level of income support provided to poor seniors.Funding for Families: provide families with full funding equitable as foster homes giving them the opportunity to stay together and not split up. As the present system sits families do not receive the funding that a Foster Home would receive.Asset Allocation: Registered Disability Savings Plan (RDSP) is for those who have the probability to live longer than 10 years. Too many binding rules for the variable ages of PWD’s. There must be incentives for those who contribute. Be able to withdraw on a yearly basis without penalty. Money in the hands of the bank does not help the PWD now. Why should an RRSP be given the most tax incentive over other registered charitable issues? People or corporations who may contribute to such a wonderful human issue should be praised. They could choose to contribute to themselves instead.Give PWD the resources: Open up new avenues…everyone is unique. Agencies and non-for-profit organizations collaborate with each other to fulfill the needs of all individuals. Create a “central media” for products, processes, services, technologies, or ideas that are readily available to markets, governments and society. Endorse universities to have high technology projects to help disabled with communication, mobility, function, and exercise. Make technology affordable for families. Create a place for all to build character, contribute, educate, exercise, & socialize. PWD’s Post-Secondary Education & Work force: market these optimistic individuals strongly. Give people a livelihood. Create jobs. This creates better mind, body, spirit, and health. Encourage programs to grow, become more developed, and train people to help the disabled succeed. If a disabled person can succeed albeit in a longer period of time is success still not a success? Homes, communities, buildings, transit systems and anything that has been built up in our environment: Accessibility is overcome by good choices; therefore those who chose to live in a certain geographic area may find it easier or more difficult to move about. Therefore legislate new or renovation to accommodate PWD. Always plan and execute accessibility issues to the letter as Canadian Housing Mortgage Corporation (CMHC) outlines. Give a tax break or grant to businesses making their establishment more accessible.Support network can be made up of people or organizations: My individual needs to be given the means of communication. Ie “Emotiv”Funding and training (SLP or equivalent) of such a device will greatly increase the livelihood of this individual and have less choices made for him. Disabled individuals are here to give us a message. They need advocacy to lead a more fulfilled lifestyle. They need out of home services.Transportation funding so PWD can get to their destination.A place to go to do activities, educate themselves, practice daily living functions, practice communication ie: Emotiv Device, workshops, exercise on specialized equipment, ie: vibrational stander, drop in gym, hydrotherapy , swimming, ie: salt water pool, “smart fit”, singing, bike riding, bible study, Tai Chi, Chair Yoga, fishing , art classes, and socialize at a friendship center. A support network can be made up of people or organizations that you can turn to for help with favors, assistance during challenging times, or for just having fun.Inclusive to a central database volunteers can match up with the PWD for outings and much more. How can I create this in my city [location removed] for my child? Does it take assessments to make this happen? How long before answers are available and atrophy are halted?Thank you for this opportunity to express my view for the disabled. I hope my input can help not only my loved one but others.BC Disability White Paper – respecting and reflecting the needs and wants of people living with disabilities in BC – challenges faced daily as a person caregiving or living with a disability in BCBetter Personal Supports – assistive technology, aids and devicesMore universal pricing of aids and devices. Why should the same equipment be <$100 at one business and >$1000 at another. How much research of a topic is enough. As caregivers or persons with disability our energy level is greatly limited, and feeling overwhelmed or stymied by the “not knowing what you don’t know” is mind boggling and exhausting. Increased coverage of the cost of aid needed to make persons more employable for work or volunteerism, would be cost effective.More universal access to information on services available. Be it transportation, aids and devices, funding for needed renovations, or income supplement. Again “we don’t know what we don’t know”.Social services agency set up for persons with disability – with personnel that are excessively well versed in what services, devices, transportation, volunteerism, socializing, and financial options etc. May be helpful for caregivers and persons with disabilityOngoing programs in the area of wheelchair accessibility to all areas of the community.Reduce barriers – to make it easier for people with disabilities to work or contribute to the community – employment, inclusion, employers, volunteer.Ongoing progress I the areas of wheelchair accessibility to all areas of the community. Employer/gov’t cost sharing of medical and dental and sick leave coverage for part-time employees whose contribute to the work force is limited by disability. Agreement of understanding made between the employer and disabled employee of number of hours contributed per week or month, offering a flexible work day or work week outlined by the employees capabilities. An extra room for personnel privacy of care needs or rest breaks.All community transportation/buses should be wheelchair accessible Social services agency set up for persons with disability – with personnel that are excessively well versed in what services, devices, transportation, volunteerism, socializing, and financial options etc. May be helpful for caregivers and persons with disabilityAll and every possibility that will make persons with disability feel equally respected, as those without acknowledged limitations. There is a tremendous amount of “hush hush” “don’t ask don’t tell” re limitations/disabilities, that has nothing to do with sexual preference, to keep employment. Instead we need open discussion re: needs to make a person with limitations more productive in the workplace.Increase accessibility – universal design, built environmentOngoing progress in the area of wheelchair accessibility to all areas of the community. All community transportation/buses should be wheelchair accessible.I have a daughter who is on disability and a also partner.My partner has me for support and assistance while my daughter has no one expect me sometimes.She gets assistance from the federal and province. The harassment she has received every time she has to visit the provincial office is a disgrace. The workers do not treat people with any respect, and this I know from another person who has had to make visits to this office.I think personal contact with case workers would serve people with disabilities as a human being and not just a case number.Being put on hold for up to 2 hours and then having a disgruntled employee treat this disabled person with such disrespect is very, very criminal. They didn't ask to be put in this situation!!!!Being on disability is not a windfall as some may perceive, it's a life sentence with very little options or compassion.Hopefully positive changes can be made so these disabled persons can be treated with the respect and compassion they deserve, just like all of us. ................
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