Method - Lippincott Williams & Wilkins



Appendix

Distribution of Participants by Site

The distribution of participants by site is as follows: Nationwide Children’s Hospital, Columbus, OH, n=134; Texas Children’s Hospital, Houston, TX, n=121; Children’s Hospital Colorado, Aurora, CO, n=118; Boston Children’s Hospital, Boston, MA, n=79; Children’s Medical Center, Dallas, TX, n=61; Cincinnati Children’s Hospital Medical Center, Cincinnati, OH, n=50; Lurie Children’s Hospital of Chicago, Chicago, IL, n=50; Goryeb Children’s Hospital at Morristown Medical Center, Morristown, NJ, n=50; Primary Children’s Medical Center, Salt Lake City, UT, n=26.

Appendix Table 1. PedsQL™ Gastrointestinal Symptoms Module Child Self-Report Item Content for Ages 8-12

|Stomach Pain and Hurt |

|I feel pain or hurt in my stomach |

|I get stomach aches |

|My stomach hurts |

|I wake up at night with stomach aches |

|I feel sick to my stomach |

|I get an upset stomach |

| |

|Stomach Discomfort When Eating |

|When I eat I get sick to my stomach |

|When I eat my stomach feels bad |

|My stomach hurts when I eat |

|My stomach feels heavy when I eat |

|I feel full as soon as I start to eat |

| |

|Food and Drink Limits |

|I cannot eat some foods |

|I cannot drink some drinks |

|I am not able to eat what I want |

|I am not able to drink what I want |

|I cannot eat some foods because they make me sick |

|I cannot eat the foods that my friends eat |

| |

|Trouble Swallowing |

|It is hard for me to swallow food |

|It hurts when I swallow |

|Food gets stuck going down |

| |

|Heartburn and Reflux |

|I get a burning feeling in my throat |

|I have pain or hurt in my chest |

|I burp a lot |

|Food comes back up into my mouth after eating |

| |

|Nausea and Vomiting |

|I feel like throwing up |

|I feel like throwing up when I eat |

|I feel like throwing up after I eat |

|I throw up |

| |

|Gas and Bloating |

|My stomach feels full of gas |

|My stomach feels very full |

|My stomach gets big and hard |

|I have a lot of gas |

|I pass a lot of gas |

|My stomach feels gassy |

|My stomach makes noises |

| |

|Constipation |

|I still feel full after I poop |

|I feel like I am not done after I poop |

|I feel like I cannot get all the poop to come out |

|It hurts when I go poop |

|My poop is hard |

|My poop is lumpy |

|I have to push hard to poop |

|My poop gets stuck when I poop |

|My bottom hurts after I go poop |

|It takes a long time for poop to come out |

|I have to work hard to make poop come out |

|I do not want to poop because it hurts |

|I spend a lot of time on the toilet going poop |

|My stomach hurts when I go poop |

| |

|Blood in Poop |

|There is blood on my toilet paper after I go poop |

|There is blood in my poop |

| |

|Diarrhea |

|I need to be near the bathroom a lot |

|I have to rush to the bathroom to poop |

|I feel like I am always in the bathroom going poop |

|I wake up at night to go poop |

|My poop is watery |

|I have poop accidents in my underwear |

|I have to go poop a lot |

| |

|Worry About Going Poop |

|I worry about going poop in my pants |

|I worry that I will not make it to the bathroom in time |

|I worry that it will hurt when I go poop |

|I worry that I will have to use the bathroom at school |

|I worry that I will poop in my pants at school |

| |

|Worry About Stomach Aches |

|I worry about my stomach aches |

|I worry that my stomach will hurt in school |

| |

|Medicines |

|It is hard for me to take my medicines |

|I forget to take my medicines |

|It is hard for me to swallow my medicines |

|I do not like having to take my medicines all the time |

| |

|Communication |

|It is hard for me to tell the doctors and nurses how I feel |

|It is hard for me to ask the doctors and nurses questions |

|It is hard for me to explain my illness to other people |

|It is hard for me to explain my illness to my friends |

|It is hard for me to talk to my parents about my illness |

Reproduced with permission from J.W. Varni, Ph.D. Copyright © 1998.

The PedsQL™ is available at .

Appendix Table 2. Pearson’s Product Moment Correlations between PedsQL™ Gastrointestinal Symptoms Module Scales and PedsQL™ 4.0 Generic Core Scales for Child Self-Report and Parent Proxy-Report

| |Child Self-Report |Parent Proxy-Report |

PedsQL™ Scales1 |GCT |PH |PsyH |EF |SF |SchF |GCT |PH |PsyH |EF |SF |SchF | |GI Module Total Score |0.684 |0.548 |0.673 |0.592 |0.491 |0.565 |0.604 |0.511 |0.583 |0.542 |0.449 |0.497 | |GI Symptoms Total Score |0.647 |0.524 |0.634 |0.556 |0.452 |0.540 |0.566 |0.489 |0.540 |0.497 |0.412 |0.472 | |Stomach Pain and Hurt |0.555 |0.502 |0.514 |0.487 |0.293 |0.462 |0.485 |0.459 |0.439 |0.428 |0.285 |0.393 | |Stomach Discomfort When Eating |0.530 |0.499 |0.479 |0.427 |0.258 |0.471 |0.496 |0.455 |0.457 |0.416 |0.333 |0.402 | |Food and Drink Limits |0.430 |0.384 |0.400 |0.363 |0.265 |0.349 |0.446 |0.392 |0.422 |0.377 |0.349 |0.361 | |Trouble Swallowing |0.355 |0.293 |0.344 |0.251 |0.339 |0.267 |0.313 |0.265 |0.300 |0.228 |0.272 |0.276 | |Heart Burn and Reflux |0.427 |0.286 |0.454 |0.383 |0.332 |0.395 |0.336 |0.280 |0.327 |0.290 |0.203 |0.336 | |Nausea and Vomiting |0.412 |0.331 |0.404 |0.392 |0.242 |0.344 |0.383 |0.318 |0.373 |0.338 |0.249 |0.358 | |Gas and Bloating |0.442 |0.308 |0.463 |0.419 |0.325 |0.384 |0.376 |0.332 |0.354 |0.343 |0.250 |0.310 | |Constipation |0.511 |0.377 |0.523 |0.460 |0.426 |0.399 |0.344 |0.285 |0.335 |0.303 |0.287 |0.288 | |Blood in Poop |0.251 |0.227 |0.232 |0.162 |0.150 |0.255 |0.249 |0.218 |0.235 |0.196 |0.188 |0.200 | |Diarrhea |0.441 |0.364 |0.428 |0.328 |0.359 |0.369 |0.368 |0.285 |0.371 |0.360 |0.291 |0.292 | |Worry About Going Poop |0.492 |0.390 |0.487 |0.404 |0.460 |0.345 |0.421 |0.353 |0.409 |0.386 |0.350 |0.305 | |Worry About Stomach Aches |0.548 |0.450 |0.534 |0.526 |0.323 |0.447 |0.495 |0.385 |0.499 |0.510 |0.304 |0.427 | |Medicines |0.343 |0.266 |0.342 |0.309 |0.255 |0.277 |0.278 |0.218 |0.281 |0.252 |0.246 |0.213 | |Communication |0.510 |0.377 |0.522 |0.458 |0.376 |0.441 |0.376 |0.276 |0.390 |0.377 |0.312 |0.314 | |

Note: All Pearson’s product moment correlations are statistically significant at p ................
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