Children and Adolsecent Psychiatric Program (CAPP)



Acute Mental Health Care Services for

Children in Pinellas County

Annette Christy, Ph.D.

John Petrila, J.D., LL.M.

Kristen Hudacek, Psy.D.

Diane Haynes, M.A.

Community Partner: Personal Enrichment Through Mental Health Services

Thomas Wedekind, ACSW

Anne Pulley, B.S.

This project was made possible due to the cooperation of the Pinellas County Data Collaborative and benefited from the support of the Pinellas County Mental Health and Substance Abuse Task Force

A project funded by the USF Collaborative for Children Families and Communities with funds provided by the Pinellas County Juvenile Welfare Board

Department of Mental Health Law & Policy

Louis de la Parte Florida Mental Health Institute

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September 2003

(Revised 10/9/2003)

Table of Contents

|Description |Page |

|Executive Summary |3 |

|Section 1: Introduction |4 |

|Section 2: Volume of Baker Act Data |6 |

|Section 3: System Description |7 |

|Section 4: Archival Data Analyses |10 |

| Pinellas County Specific Analyses |10 |

| Statewide Analyses |18 |

|Section 5: Case Studies |23 |

|Section 6: Discussion |33 |

|Section 7: Future Directions |35 |

|Section 8: References |36 |

|Appendix A: Program Descriptions |37 |

|Appendix B: CatCaid Description – for Medicaid Data |46 |

Executive Summary

This study was made possible by a grant from the Collaborative for Children Families and Communities, with funds provided by the Pinellas County Juvenile Welfare Board. Our community partner, Personal Enrichment Through Mental Health Services (PEMHS) was instrumental in the success of this project. In this study we used quantitative and qualitative methods to learn about acute mental healthcare for children, with an emphasis on short-term, involuntary (Baker Act) examinations. The study included collection of qualitative data to develop a description of services for children as they relate to acute mental healthcare, archival database analyses, and case studies. The focus was on children with Baker Act examinations in Pinellas County and/or with a residence in Pinellas County, except for some statewide archival database analyses.

We have drawn seven Key Findings from this study as follows:

1. System Findings: Multiple programs are accessed by children at PEMHS. The type and timing of the services are based on factors such as whether children are in the dependency system, their legal status (voluntary vs. involuntary), their needed level and type of care, and availability of services. Interaction of staff from PEMHS and from the Family Continuity Program (FCP) is key to the access and continuity of care for some children. (see pp. 7-8)

2. Certificate and Evidence Type: The Baker Act examinations of children were more likely to be initiated by law enforcement officials and to be based on evidence of harm than examinations for adults, suggesting that a focus on factors related to law enforcement initiated Baker Act examinations would help us to better understand the initiation of involuntary care for children. (see pp 11 and 32)

3. Seasonality: There were fewer Baker Act examinations for children in the summer, both statewide and for Pinellas County. Although cause and effect cannot be determined from this correlational finding, they suggest some seasonality in Baker Act examinations for children and may suggest that the relationship between school and the Baker Act requires further exploration. (see p. 6)

4. Repeated Examinations: Thirty-three percent of the children with a Baker Act examination over a three-year period in Pinellas County experienced more than one examination during this time period. Focused attention on this subset of children with multiple involuntary examinations is warranted, given that the purpose of crisis stabilization units is to offer emergent care – not the longer term care that may be needed by many of these children. Multiple examinations may suggest discontinuity of care. Additional focus on this subpopulation could yield information about the causes of repeated examinations and ways to intervene to reduce or prevent them. (see pp. 11 and 32)

5. History of Trauma: The finding that 40% of the children from the case studies had experienced sexual, physical and/or emotional abuse suggests that trauma is an important factor to address when planning and implementing care for some children who receive acute mental health care. (see p. 25)

6. Therapeutic Foster Care: The 41 children who experienced at least one Baker Act examination over a three-year period in Pinellas County who also had Medicaid reimbursed therapeutic foster care accounted for 6% of the children with Medicaid reimbursed services, but their reimbursed therapeutic foster care of over $1.5 million accounted for almost 16% of the cost of Medicaid reimbursed services. Almost 5% of children statewide with at least one Baker Act examination over a three-year period had Medicaid reimbursed therapeutic foster care services, at a cost of over $22 million representing almost 11% of Medicaid reimbursed services. The high cost of these services for a relatively small number of children, particularly in Pinellas County compared to statewide, suggests that a focus on healthcare needs for children in this group may be warranted. This may be particularly important within the current context of privatization of foster care across Florida and the focus on integration of the foster care and behavioral health care systems. (see p. 22, Table 9)

7. Intensive Case Management: The use of case management and intensive case management as indicated by the IDS data may be lower than we expected for the population of children who had contact with the involuntary, acute-care system, especially in Pinellas County. Levels of targeted case management as reported in the Medicaid data were higher, in contrast to the findings from the IDS data. An exploration of the reasons for these differences could help us to learn more about case management for these children. (see page 20, Table 7)

The findings of this study are helpful not only for their substantive content, but because of their heuristic value towards conducting additional, larger scale studies on acute mental health care and children. These findings are descriptive, so do not give us information about the causes and possible solutions for what has been described. Studies designed, implemented and interpreted with involvement of key stakeholders – such as providers like PEMHS and the Department of Children and Families – are essential to furthering the initial knowledge this study has provided.

Section 1: Introduction

|The burden of suffering experienced by children with mental health needs and their families has created a health crisis in this country. |

|Growing numbers of children are suffering needlessly because their emotional, behavioral, and developmental needs are not being met by those |

|very institutions which were explicitly created to take care of them. It is time that we as a Nation we took seriously the task of preventing|

|mental health problems and treating mental illness in youth. |

|The Report of the Surgeon General’s Conference on Children’s Mental Health, Satcher, 2001, p. 3 |

The focus of this study was on the acute mental health care system for children in Pinellas County, with particular emphasis on the Baker Act. The Baker Act is the term applied to Florida’s civil commitment law. An individual who is thought to be a person with mental illness and a harm to self, harm to others, or so neglectful of self that it could lead to harm can be involuntarily detained in one of approximately 115 Florida Department of Children and Families designated Baker Act Receiving Facilities for a “Baker Act Examination” (an involuntary examination that can last up to 72 hours). Mental health professionals, law enforcement officials and judges can initiate the examinations. As a result of legislative reforms in 1996 in response to elder abuse, a standardized form must be completed to document Baker Act examinations, which must be sent within one business day to the Agency for Health Care Administration (AHCA). The Baker Act Reporting Center within the Policy and Services Research Data Center (PSRDC) at the Florida Mental Health Institute (FMHI) has been receiving, inputting, quality checking, and analyzing statewide Baker Act data since 1997, via an agreement with AHCA (McGaha & Stiles, 2001). Florida is the only state to have such a centralized repository of client level data on short-term involuntary examinations, creating a unique opportunity to study this issue. Approximately a half a million Baker Act examination forms have been received from 1997 through the end of 2002. In general, approximately 16% of forms received are for examinations of children.

The specific aims of the proposed study were to apply both qualitative and quantitative methodologies to develop:

1. A System Profile: Develop a flow chart of the acute mental health care and social service systems as they relate to children in Pinellas County who have experienced a Baker Act examination;

2. A System Description: Describe the agencies or other entities identified in this flow chart;

3. Client Level Profiles: Develop profiles of children who have a Baker Act initiation in Pinellas County and statewide. This was accomplished with database analyses and case studies of children.

Significance

An estimated 80,000 forms documenting Baker Act examinations for children have been received at FMHI from 1997 through 2002. However, there is a surprising dearth of literature on emergency examinations or longer term commitment for children. In 2002 the first author of this report served as a member of an ad-hoc committee, created at the request of the Pinellas County Mental Health and Substance Abuse Leadership Group, to gather information relevant to the issue of acute mental health care in Pinellas County. Acute mental health care services for children, including Baker Act examinations, were of great interest to the multiple stakeholders in this group. This study has allowed us to address the request of multiple stakeholders of this group to more fully understand acute mental health care services for children.

The analysis of data in multiple systems for children with a Baker Act experience is important because children often encounter multiple systems, which may or may not be well equipped to assist them or their families with mental health issues. For example, Cocozza and Skowyra (2000) stressed the recent interest in and need for attention to the mental health issues of children in the juvenile justice system. The Report of the Surgeon General’s Conference on Children’s Mental Health (Satcher, 2001) stressed the need to collect data not just at the national or state levels, but also at the community level. The proposed study addresses both, with a focus not just on statewide Baker Act data, but also on information specific to Pinellas County.

Detailed Plan and Project Implementation

The use of multiple methods to triangulate data on a topic has long been advocated for in the research methodology literature (Cook, 1995). While quantitative analyses of the Baker Act data and other data sources can tell us much about acute care mental health services for children, the collection of qualitative information is essential to the understanding of the system. The following were used to learn more about acute mental health care services for children in Pinellas County.

❖ Qualitative data collection to create system descriptions and flow charts

❖ Archival database analyses

❖ Case studies

Section 2: Volume of Baker Act Data

The number of Baker Act forms received from 1997 through 2002 increased by approximately fifty percent, from 69,235 forms received in 1997 to 105,046 forms in 2002 (see Figure 1). The volume of data received in the first six months of 2003 suggests that approximately 109,000 forms will be received in 2003. Approximately 4 to 5 percent of forms received each year are identified as duplicate forms and are removed from most analyses.

Figure 2 shows the percentage of data that is represented by forms received for children and adults statewide.[1] Baker Act examinations for children represented between 15 and 17 percent of forms received statewide. The figure looks quite similar for Pinellas County specific Baker Act data, with between 16 and 18 percent of the data for children.

The count of examination forms received statewide for children in Calendar Year 2002, by month, is presented in Figure 3. What is notable about this figure is the decrease in examinations during the summer months of June and July, when children are not in school. The figure for Pinellas County data looks quite similar in pattern.

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Section 3: System Description

An understanding of acute care services for children requires more than knowledge about children’s crisis units. Children may interact with multiple systems. These systems may be involved with the circumstances surrounding the initiation of the involuntary examination and/or may also be involved with the child after release. Understanding the system is a first step to identifying what is working, what is not working, and gaps in services.

This system description focuses on programs for children offered by Personal Enrichment Through Mental Health Services (PEMHS). It was developed by attending multiple meetings of various groups and by interviewing key staff in numerous programs. Appendix A contains descriptions of eight programs relevant to children as follows:

❖ Children’s Crisis Stabilization Unit (CCSU)

❖ Children and Adolescent Psychiatric Program (CAPP), known as SIPP statewide

❖ Emergency Response Team (ERT)

❖ Alternatives for Children in Crisis (A-Team)

❖ Families First

❖ Life Enhancement for Adolescent Females (LEAF)

❖ PACES

❖ Therapeutic Foster Care

One interpretation of the relationship of PEMHS children’s services is presented in Figure 4. As demonstrated in the program descriptions, PEMHS offers children and their families many different types of services to address their mental health needs. Often, children utilize services from several of the programs offered by PEMHS. As displayed in the flow chart (see figure 4), a child may be referred to Alternatives for Children in Crisis (A-Team) in order to provide on-site crisis intervention while in the classroom. If that intervention proves unsuccessful or the child requires more intensive intervention, the child may receive an involuntary examination under the Baker Act, be transported to the Children’s Crisis Stabilization Unit (CCSU) and remain there for up to 72 hours. Once the child has been examined, planning for return to the community will occur. If a child is chronically mentally ill, he or she may be referred to the Children and Adolescent Psychiatric Program (CAPP; known statewide SIPP).

Figure 4: Relationship of PEMHS Children’s Services

If a child is in the dependency system, he or she may be referred to a therapeutic group home (PACES) or to Therapeutic Foster Care to continue receiving services in a less structured setting. Particularly relevant to children in the dependency system is the constant involvement of the Family Continuity Program (FCP) caseworker throughout all stages of mental health placement and service utilization. FCP is an integral part of the system. As such, many of the PEMHS programs rely on the assistance of FCP workers to aid in the process of gaining consent for treatment, providing historical background information, and assistance in placement when needed.

Because most children attend school, it is often here that children are initially identified as having difficulties that may need to be addressed by mental health professionals. If a child is identified in the early stages of a mental illness, interventions to assist them in gaining services and treatment may be successful and they may never need the treatment more intensive services provide. However, as will be demonstrated by data in a latter portion of this report, some children cycle through the mental health system and utilize multiple systems within the state.

Section 4: Archival Data Analyses

The purpose of the archival data analysis was to determine the extent to which children with a Baker Act examination interfaced with various systems and to describe this interaction. Statewide and Pinellas County specific data analyses were conducted by creating a data file from the Baker Act data collected from Fiscal Years 1999, 2000 and 2001 (July 1999 through June 2002). This Baker Act data file was then used to identify data in multiple databases for these children. The Medicaid Claims and Eligibility data set and Integrated Data System (IDS: Department of Children and Families for services offered by state funded providers) were included in the study. Both the Medicaid and IDS datasets allowed us to look at mental health services received by children with a Baker Act examination who had care reimbursed in these systems. Descriptive analyses were conducted on the Baker Act data specific to individuals under 18 and then for data specific to these individuals in these multiple other databases. The subset of children who had an examination in a Pinellas County Baker Act Receiving Facility and/or whose county of residence was Pinellas County were identified from this statewide data set of Baker Act data. In addition to analyses identical to those conducted on the statewide data, analyses with several other Pinellas County specific data sets were conducted.

2.A. Pinellas County Specific Analyses

Information specific to children with a Baker Act examination in Pinellas County and/or who resided in Pinellas County at the time of the examination was identified in the larger, statewide file of children with a Baker Act examination during the three fiscal years. Additional data sets were available specific to Pinellas County because of the existence of the Pinellas County Data Collaborative, which was established in 1999 as a means to study multiple social service issues in Pinellas County from a multi-system perspective. Specific language in the Florida Statutes (F.S. 163.1 to 163.5) allows for this data sharing, with multiple agencies providing data to the Policy and Services Research Data Center (PSRDC) at FMHI. The Data Collaborative approves proposals, with the analyses conducted by PSRDC faculty and staff. The infrastructure of this Data Collaborative was utilized to create analyses to describe the extent and nature of involvement of children.

Data from Fiscal Years 1999, 2000 and 2001 (July 1, 1999 through June 30, 2002) from five data sets were used in these analyses. Baker Act (BA) data for children examined in Baker Act Receiving Facilities in Pinellas County or who were residents of Pinellas County at the time of the examination were identified. After children who received a Baker Act initiation were identified, data were identified in four other data sets that are part of the Pinellas County Data Collaborative as follows: Child Welfare (CW), Emergency Management System (EMS), Department of Children and Families Integrated Data System (IDS), and Medicaid claims data (MDC) (see Table 1). While the EMS, IDS and MDC data were available from July 1, 1999 through June 30, 2002, CW data were only available from July 1, 1999 through Nov 1, 2000 because of a change in the form of the data system and the unavailability of data from the new system for these analyses.

Table 1: Systems from Which Data Utilized for Pinellas County Specific Analyses

|Data Set |Abbreviation |General Description of Data |

|Baker Act |BA |A statewide database containing information about short-term, involuntary psychiatric |

| | |examinations |

|Child Welfare |CW |A statewide databases containing child (only) information on abuse allegations and demographics |

| | |(founded/unfounded investigation, type of abuse and results or actions taken) |

|Emergency Management System |EMS |Pinellas County-wide emergency medical service information system containing demographic and |

| | |situational information on 911 calls where ambulance was sent out, whether or not someone was |

| | |transported via ambulance. |

|Department of Children and Families Integrated|IDS |An automated data system of the Florida Department of Children and Families containing |

|Data System | |information about alcohol, drug abuse & mental health services at state funded providers. |

|Medicaid Claims Data |MDC |A statewide database containing Medicaid physical and Mental health claims data |

Results

Baker Act Examinations – Pinellas County

There were 1,559 youth with 2,696 Baker Act examinations during the three fiscal year period who resided in Pinellas County at the time of their examination and/or were examined in a Pinellas County Baker Act Receiving Facility. The majority of children (n = 1,049; 67.29%) had one examination in the three-year time period, with 18.35% (n = 286) had two, 6.41% (n = 100) had three, 2.95% (n = 46 with four) and 5.08% (n = 78) had five or more (range 5 to 22 examinations). Children with more than one Baker Act examination were slightly more likely to be male (51.96%) than those with one examination (49.19%). The mean age for those with more than one examination (M = 13.60; SD = 2.86; 5 to 17) and for those with one examination (M = 13.82; SD = 2.75; 5 to 17) were similar. Differences in race/ethnicity could not be determined due to the large amount of missing race/ethnicity data.

Half (n = 781; 50.10%) of the children were males. The average age at the first examination during the time period was 13.60 years (SD = 2.86; range 5 to 17 years). The majority of examinations was initiated by law enforcement officials (n = 1,678; 62.24%). Approximately a third of examinations (n = 900; 33.38%) was initiated by mental health professionals, with a small percentage (n = 118; 4.38%) initiated by judges.

Baker Act examination forms are required to indicate evidence of harm to self, harm to others, and/or self neglect as the basis for the examination. “Harm only” (n = 2,395; 88.84%) was the most common evidence type, with few forms indicating “Neglect only” (n = 144; 5.34%), and “Both Harm and Neglect” (n = 115; 4.27%). Evidence type was missing on 42 forms (1.56%). Evidence type did not significantly differ for boys and girls.

System Interaction Findings

The percentage of youth with a Baker Act Examination in Fiscal Years 1999, 2000 or 2001 with data in the four other data systems is presented in Table 2. The majority of children with a Baker Act examination also had data in at least one of the four other data systems, while 286 children (18.35%) had data only in the Baker Act data set. Over a quarter (n = 481; 30.85) had data in only one of the four systems, 28.93% (n = 451) in two systems, 7.95% (n = 124) in three systems and 13.92% (n = 217) in four systems.

Table 2: System Overlap of Children with a Baker Act Examination

|Data Set |N |% |

|Child Welfare (CW) |208 |27.33 |

|Integrated Data System (IDS) |1,132 |72.61 |

|Medicaid Claims (MDC) |681 |40.99 |

|Emergency Management System (EMS) |680 |27.33 |

*The percentage of interaction with the child welfare system is very likely underestimated relative to IDS, MDC and EMS data because the CW data were only available for a 16 month period.

Child Welfare (CW) Data

Slightly more than a quarter of the children with a Baker Act examination (n = 208; 27.33%) were represented by at least one record in the Child Welfare (CW) data, for a total of 762 CW records. Of these CW investigations, 194 investigations for 171 children were founded. A founded investigation is one in which there was at least some evidence to support the allegation made to child welfare. These founded investigations resulted in 26 Foster Care Placements. Two thirds of these placements (n = 17; 65.38%) were in traditional foster care, with the remaining third in relational foster care placement (n = 9; 34.62%). It is important to remember that because the CW data was available for a shorter period of time than the other data sets (16 months as compared to 36 months), the interaction of children with Baker Act examinations with child welfare is underestimated relative to interaction with services related to IDS, MDC, and EMS.

Emergency Management System (EMS) Data

A quarter (n = 680; 27.33%) of youth with a Baker Act examination were represented in EMS data. Almost three quarters of these EMS calls (n = 483; 71.03%) were categorized as due to Mental Health/Substance Abuse problems (483, 71.03%). It is possible that some of these claims represent transportation to the crisis unit, which could explain part of this system overlap.

Integrated Data System (IDS) Data for Pinellas County Specific Analyses

Of the 1559 youths in the study, a high proportion of them, 1,132 (72.61%), were found to have received mental health and/or substance abuse service activity with claims appearing in the IDS system. Information about services with claims represented in the IDS data are presented in Table 3. Services are listed from those received by the most children to those received by the least. The fact that over a quarter of the children, (427 or 27.39%) with a Baker Act examination had no data in the IDS system should not be interpreted to mean that they received no services. It does mean that the claims for any services these children received were not contained in the IDS data. For example, these children may have received services from a provider who did not have a contract with the Florida Department of Children and Families; these facilities are not required to submit data into the IDS system. Some of these children may not have qualified for services provided by the Department of Children and Families. Some children could have relocated out of state. This is one of the inherent limitations of utilizing archival data sources, such as IDS and Medicaid claims data that do not capture claims for the entire universe of services received.

Within IDS services are paid by one of four funding sources 1) Adult Mental Health, 2) Adult Substance Abuse, 3) Child Mental Health, or 4) Child Substance Abuse). The majority of claims were paid for by the Child Mental Health Program (n = 128,981; 90.71%), with many fewer claims paid for by the Child Substance Abuse program (n = 10,145; 7.13%), Adult Mental Health (n = 2,572; 1.81%) and Adult Substance Abuse Programs (n = 500; 0.35%).

As noted above information about the types of service claims in IDS for these children is presented in Table 3. Costs cannot be accurately estimated for claims within the IDS system due to variability of cost of services across the state and variable methods for reporting the numbers of units associated with services. However, services that are considered to be at higher levels of cost are marked in Table 3 with an asterisk.

Given that the cohort of interest in this study is children with a short-term, involuntary examination, it comes as no surprise that the most frequently received services were crisis support/emergency (n = 463, 40.90%) and crisis stabilization (n = 460; 40.64%). Some of these claims may represent reimbursement for the very Baker Act examination used to identify children for this sample. Medical services are the next most frequent service (n = 215; 18.37%), suggesting that some children in need of involuntary examination also have physical health issues.[2] It is encouraging that the next five most frequently reimbursed services are those typically received on an outpatient basis, given the desire for children to be treated in the least restrictive environment. These include outpatient/individual care (n = 208; 18.37%), TASC[3] (n = 202; 17.84), in home and on-site services (n = 188; 16.61%), case management (n = 183; 16.17%) and assessment (n = 71; 6.27%). The importance of considering substance abuse in the treatment of children in this cohort is highlighted by the use of substance abuse detoxification services by 66 (5.8%) children, in combination with the children who receive TASC services that are also designed for children with substance abuse difficulties. Some children received a variety of inpatient services, although they were smaller in number than those receiving services on an outpatient basis.

Table 3: Service Types for IDS Data (Mental Health or Substance Use Treatment) for 1,559

Children with Baker Act Examinations in Pinellas County

|COST CENTER |Children |Events |

| |N |% |N |% |

|Crisis Support/Emergency* |463 |40.90 |2,079 |1.46% |

|Crisis Stabilization* |460 |40.64 |7,246 |5.10% |

|Medical Services |215 |18.37 |3,878 |2.73% |

|Outpatient - Individual |208 |18.37 |6,927 |4.87% |

|TASC - Treatment Alternatives for Safer Communities |202 |17.84 |2,324 |1.63% |

|In-Home and On-Site Services |188 |16.61 |25,548 |17.97% |

|Case Management |183 |16.17 |26,756 |18.82% |

|Assessment |71 |6.27 |468 |0.33% |

|Substance Abuse Detoxification |66 |5.83 |684 |0.48% |

|Intervention |53 |4.68 |924 |0.65% |

|Intensive Case Management* |52 |4.59 |10,066 |7.08% |

|Residential Level 3* |38 |3.36 |17,430 |12.26% |

|Residential Level 2* |25 |2.21 |10,670 |7.50% |

|Behavioral Health Overlay Services |25 |2.21 |9,095 |6.40% |

|(Department of Juvenile Justice Involvement) | | | | |

|Day/Night Care |23 |2.03 |2,773 |1.95% |

|Residential Level 1* |16 |1.41 |3,508 |2.47% |

|Methadone Maintenance |4 |0.03 |81 |0.06% |

|Prevention/Intervention Day |4 |0.03 |499 |0.35% |

|Inpatient* |2 |0.01 |693 |0.49% |

|COST CENTER |Children |Events |

| |N |% |N |% |

|Prevention |1 | ................
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