Down Syndrome and Dementia: a resource for carers and ...



Associations and organizations Alzheimer’s Society of BC : List and links to resources, including groups and workshops in BC. Find phone numbers and access to your local resource centre here. Alzheimer’s Association: : US - based association. Website includes up-to-date message board, access to e-newsletter, and helpful information about research and treatment in AD and dementia. “provides an overview of possible communication challenges among people with the disease and tips that will help caregivers improve communication.”Dementia Advocacy and Support Network International (DASNI) : Some parts of the website haven’t been updated since 2012, but there is lots of great information about living with dementia, care and support, communication advice, safety tips, and resources for planning ahead. : US - based website with some videos, The Family Caregiver Alliance -tips for communicating with a person with dementia, and understanding behaviour associated with dementia. BC Association for Audiologists and Speech Language Pathologists (BCASLPA) Where to find an SLP in your area: ?→ Public→ Find a professional → Speech Language Pathologist + PrivateAphasia InstituteResources for Supported Communication and using visuals to improve communication with adults with limited reading and language abilities.aphasia.caEmail: aphasia@aphasia.caTel: (416) 226-3636Fax: (416) 226-3706NTG: The National Task Group on Intellectual Disabilities and Dementia Practices (U.S based extensive training material)Down Syndrome Research Foundation resource libraryDownloadable and Printable Free Information ResourcesThe National Down Syndrome Society (NDSS) offers a free print or online version of their guidebook on Aging and Down Syndrome (type aging into the search bar)or Model - Guidelines on supporting people with dementia and their care givers in health and social careThese guidelines are based on a social model for caring for people with dementia. The social model says that people are impaired by their dementia, but are disabled by the way they are treated by or excluded from society. The onus is on caregivers to structure care in such a way to improve or maintain the quality of life of people with dementia. ’s Disease International’s fact sheet on dementia and intellectual disabilitiesRisk factors, numbers of people affected, signs, diagnosis, principles of care, and resources are covered in this fact sheet. Versions are available in English, Spanish, German, Chinese, Japanese, and Hebrew. London, UK. 's Association Communication pamphlet. Tips and advice for supporting communication in people with Alzheimer's and dementia. Discusses characteristics of communication at different stages. Not specific to people with intellectual disabilities, so strategies need to be adapted.Available in PDF to print for free from: ResourcesDown Syndrome and Dementia: a resource for carers and support staffBy: Karen Dodd, Vicky Turk and Michelle ChristmasThis is an excellent practical resource for family, staff, and caregivers who are beginning to support an individual with Down syndrome and dementia. Available online: Dementia SeriesBy Karen Dodd, Vicky Turk and Michelle ChristmasThis series of booklets is aimed at people with intellectual disabilities to aid in discussions about aging and dementiaAvailable online: ’s disease and dementia in Down syndrome and intellectual disabilitiesBy Prasher, V.This reference book aims to help caregivers and professionals living or working with adults with intellectual disability to further understand Alzheimer's disease and other forms of dementia. The author attempts to put research is put into clinical practice.Available at Amazon.ca and for KindleDementia, Aging, and Intellectual Disabilities: A handbook (1999)By Matthew P. Janicki?Arthur J. Dalton?(Eds)This reference book covers topics related to dementia in persons with intellectual disabilities. The areas examined include biology and physiology, neurological and medical complications, assessment, the parent’s perspective, the care provider’s perspective, best practices, policy issues, and more. Available at Amazon.ca and for KindleAdults with Down syndrome and Alzheimer’s disease: a practical guide for caregivers. Chicago, IL; Terra Nova Films, 2006 1 DVD (48 min.) Green-Field Library Call No.: WM 300 DVD no. 1 2006DVD available to order for $159 or rent for $60’s disease and intellectual disabilities (Down syndrome): tool kit. Albany, NY; Chicago, IL: Center for Excellence in Aging Services at the University of Albany; RRTC in Aging and Developmental Disabilities at the University of Illinois at Chicago, 2003. 1 videocassette (24 min.) and CD-ROM A computer-based course with supplemental resources for working with persons with developmental disabilities and Alzheimer's disease.DVDs and Computer SoftwareVisuals, memory books, and picture symbols: Online resourcesMemory booksTemplate made by an SLP student working with adults with dementia available for $4.00 on Teachers Pay Teachers website instructions are on her blog here Alzheimer's society's downloadable guide for making a memory book: for making a memory book with a loved one video on making a memory book: for making a memory book and tips for using with people with dementia: video on making a memory ‘box’ or display shelf SymbolsThis site has information about Boardmaker and other resources to assist children with communication difficulties.Google Images: Type in what you're looking for into the search bar and find many different pictures and images you can get for free by using 'Copy' and 'Paste' on your computerimages.How to video on using 'Copy and Paste' from Google images Visual Strategies: This site has information for using visual supports solve behaviour problems and improve communication in people with a range of disabilities - aimed primarily at children and youth but can be adapted Getting Started Using Visual Systems: An excellent beginners guide for making effective visuals ................
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