‘Brain, meningeal and other primary CNS tumours’ cohort



Get Data Out: Brain, meningeal and other primary CNS tumours26th April 2021 Sally Vernon sally.vernon@.ukThe Get Data Out programme routinely publishes cancer statistics produced by PHE in a consistent table, called the Get Data Out (GDO) table. This table collects patients into groups with common characteristics, and then publishes information such as incidence, treatment rates, survival and routes to diagnosis for these groups. This document sets out the definitions of the cohort and groups for the Get Data Out tables for the 2021 release of data on brain, meningeal and other primary CNS tumours between 2013 and 2018.‘Brain, meningeal and other primary CNS tumours’ cohortThe cohort of brain, meningeal and other primary CNS tumours used for Get Data Out is all tumours with an ICD 10 code in the list in the Appendix. These ICD 10 codes cover all primary tumours of brain and meninges, all primary tumours of the endocrine glands within the brain (the pituitary gland, the craniopharyngeal gland, and the pineal gland), and all primary tumours of the Central Nervous System. The cohort does not include lymphomas of the brain or bone tumours of the skull. It only includes primary tumours and does not include secondary brain tumours that have metastasised from elsewhere in the body.YearThe cohort is first split by the year of diagnosis. Tumour TypeTumours were classified as Malignant Brain, Non-malignant Brain, Benign Endocrine and Non-benign Endocrine as documented in the Appendix. The behaviour of the tumour was determined by its behaviour as coded in ICD-O-2.AgeAge splits are provided forMalignant brain tumours0-45-910-1920-2930-4950-6970+Non malignant brain tumours0 -1920-2930-4950-6970+Benign endocrine tumours:0-3940-4950-5960-6970+RegionWhere numbers allow (i.e. in patients aged over 30 in malignant and non-malignant brain tumours) the cohort is partitioned into 4 regions, North of England, South of England, Midlands and East of England, and London. Patients are assigned to a cohort by their postcode at diagnosis and the National Statistics Postcode Lookup. Regions are defined based on the NHS regions in 2017, which were current when this partition was devised, and have been kept steady to provide a timeseries.GenderWhere numbers allow the data is then split into Male and Female.AppendixICD 10 codes included in this cohort and their subgroupsICD 10 site codeSite nameGroupingC700Cerebral MeningesMalignant brainC701Spinal MeningesMalignant brainC709Meninges, UnspecifiedMalignant brainC710Brain, Cerebrum, Except Lobes And VentriclesMalignant brainC711Brain, Frontal LobeMalignant brainC712Brain, Temporal LobeMalignant brainC713Brain, Parietal LobeMalignant brainC714Brain, Occipital LobeMalignant brainC715Brain, Cerebral VentricleMalignant brainC716Brain, CerebellumMalignant brainC717Brain StemMalignant brainC718Overlapping Lesion Of BrainMalignant brainC719Brain, UnspecifiedMalignant brainC720Spinal CordMalignant brainC721Cauda EquinaMalignant brainC722Olfactory NerveMalignant brainC723Optic NerveMalignant brainC724Acoustic NerveMalignant brainC725Other And Unspecified Cranial NervesMalignant brainC728Overlapping Lesion Of Brain And Other Parts Of Central Nervous SMalignant brainC729Central Nervous System, UnspecifiedMalignant brainC751Pituitary GlandNon-benign endocrineC752Craniopharyngeal DuctNon-benign endocrineC753Pineal GlandNon-benign endocrineD320Cerebral MeningesNon-malignant brainD321Spinal MeningesNon-malignant brainD329Meninges, UnspecifiedNon-malignant brainD330Brain, SupratentorialNon-malignant brainD331Brain, InfratentorialNon-malignant brainD332Brain, UnspecifiedNon-malignant brainD333Cranial NervesNon-malignant brainD334Spinal CordNon-malignant brainD337Other Specified Parts Of Central Nervous SystemNon-malignant brainD339Central Nervous System, UnspecifiedNon-malignant brainD352Pituitary GlandBenign endocrineD353Craniopharyngeal DuctBenign endocrineD354Pineal GlandBenign endocrineD420Cerebral MeningesNon-malignant brainD421Spinal MeningesNon-malignant brainD429Meninges, UnspecifiedNon-malignant brainD430Brain, SupratentorialNon-malignant brainD431Brain, InfratentorialNon-malignant brainD432Brain, UnspecifiedNon-malignant brainD433Cranial NervesNon-malignant brainD434Spinal CordNon-malignant brainD437Other Parts Of Central Nervous SystemNon-malignant brainD439Central Nervous System, UnspecifiedNon-malignant brainD443Pituitary GlandNon-benign endocrineD444Craniopharyngeal DuctNon-benign endocrineD445Pineal GlandNon-benign endocrine ................
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