Community Supports Committee



GOAL 1. COMMUNITY SUPPORTS

To increase the number of adults with intellectual and developmental disabilities

to love where they live by promoting and enhancing community-based supports

and services.

Objective 1. Identify the residential needs of at least 3,000 adults with intellectual and developmental disabilities by September 30, 2018.

Activity A: Obtain baseline data of the adults with intellectual and developmental disabilities who are served by the Department of Health Developmental Disabilities Division regarding where they currently live and where they would want to live within the next two years by September 30, 2017.

Activity B. Facilitate discussions with the Department of Health Developmental Disabilities Division, Hawaii Disability Rights Center, and University of Hawaii Center on Disability Studies to get data on why individuals with intellectual and developmental disabilities are not satisfied where they live by September 30, 2017.

Activity C. Convene quarterly meetings with self-advocates, family members, providers, case managers, and advocates to provide information on issues and concerns individuals with intellectual and developmental disabilities have with their residential placements and discuss ways to address the issues and concerns so they love where they live by September 30, 2018.

Activity D. Complete an annual satisfaction survey or other evaluation tool for adults with intellectual and developmental disabilities regarding their satisfaction of their residential arrangement and daily activities by September 30, 2018.

Objective 2. Collaborate with the Department of Health and Department of Human Services to implement Hawaii’s My Choice My Way Transition Plan that addresses the requirements of the Centers for Medicare and Medicaid Services Final Rule regarding home and community-based settings by September 30, 2019.

Activity A. Participate in a work group or task force to amend any current administrative rules, regulations, and/or policies that impact individuals with intellectual and developmental disabilities to receive services in home and community settings that are aligned with the Centers for Medicare and Medicaid Services Final Rule regarding home and community-based settings by September 30, 2017.

Activity B. Initiate and advocate for legislation that supports individuals with intellectual and developmental disabilities to love the community they live in and to live in community settings that are aligned with the Centers for Medicare and Medicaid Services Final Rule regarding home and community-based settings by September 30, 2017.

Activity C: Promote the practice of assuring that individuals with intellectual and developmental disabilities are in their home or residential facility when the recertifying or relicensing agency representative is visiting their home or residential facility as part of the recertifying or relicensing process by

September 30, 2018.

Objective 3. Individuals with intellectual and developmental disabilities who reside in certified or licensed homes or facilities will have their personal allowance increased and will have control over their personal allowance by September 30, 2021.

Activity A. Provide information to educate policy makers (such as legislators, State department directors, and County Council members) by islands in Hawaii on the current statutes of the amount of the personal allowance and the date it was implemented by September 30, 2017.

Activity B. Initiate legislation and advocate for a $25.00 a month increase for a total of $75.00 a month for personal allowance by September 30, 2019.

Activity C. Advocate to allow individuals with intellectual and developmental disabilities who reside in certified or licensed homes or facilities, and have shared bedrooms, to pay $200.00 per month less for room and board than those individuals who have their own bedroom by September 30, 2020.

Objective 4. Advocate to increase transportation options on all islands in Hawaii by September 30, 2021.

Activity A. Participate in 12 meetings a year pertaining to transportation by September 30, 2017.

Activity B. Convene meetings with County Council members in all Counties in Hawaii to explore new strategies for providing discounted bus fares for individuals with intellectual and developmental disabilities by September 30, 2018.

Activity C. Collaborate with the Department of Health and State and Counties Department of Transportation to explore and identify strategies for promoting share rides, car pools, and use of a ferry system for individuals with intellectual and developmental disabilities by September 30, 2018.

Activity D. Collaborate with Public Transit agencies on all islands in Hawaii to identify all transportation options for persons with intellectual and developmental disabilities including UBER, LYFT, LYFT, Limo, or taxi company by September 30, 2019.

Objective 5. Individuals with intellectual and developmental disabilities, family members, providers, case managers, and advocates will have increased access to information about legislation, policies, and services that impacts individuals with intellectual and developmental disabilities by September 30, 2019.

Activity A. Coordinate with public and private agencies to use social media to disseminate information to interested parties that impacts individuals with intellectual and developmental disabilities by September 30, 2018.

Activity B. Monitor and disseminate information on legislative measures from the Federal, State, and County levels of government that impacts individuals with intellectual and developmental disabilities by September 30, 2018.

Activity C. Inform and educate policy makers (such as legislators, State department directors, and County Council members), and the public on issues affecting individuals with intellectual and developmental disabilities by September 30, 2018.

Objective 6. Individuals with intellectual and developmental disabilities, and parents and family members of individuals with intellectual and developmental disabilities have access to information about services and supports that cut across the lifespan of the individual with intellectual and developmental disabilities by September 30, 2021.

Activity A. In collaboration with the Developmental Disabilities Network

(Hawaii Disability Rights Center, University of Hawaii Center on Disability Studies), and other entities, support parent engagement trainings by September 30, 2020.

Activity B. In partnership with the Department of Health Developmental Disabilities Division, implement the National Community of Practice: Supporting Families throughout the Lifespan initiative to create policies, practices, and systems to better assist and support families by September 30, 2017.

Activity C. Collaborate with the Department of Health Child and Adolescent Mental Health Division to provide training to families through the “Team Up for Families Road Map” Empowering Families to Navigate Service Systems through Peer-Driven Learning curriculum by September 30, 2017.

Activity D. For each year of the State Plan, co-sponsor the annual Day at the Capitol event on Oahu for individuals with intellectual and developmental disabilities and their families to participate in the legislative process by meeting with legislators about intellectual and developmental disabilities-related issues and concerns, legislative measures, attend public hearings, etc., by September 30, 2017.

Activity E. For each year of the State Plan, co-sponsor the annual Maui Disability Alliance Legislative Forum on Maui in collaboration with the Maui Disability Alliance that consists of over 35 public and private agencies and organizations by September 30, 2017.

Activity F. For each year of the State Plan, co-sponsor the annual East Hawaii Disability Legislative Forum in East Hawaii in collaboration with the East Hawaii Developmental Disabilities Committee and public and private agencies and organizations on Hawaii Island by September 30, 2017.

Activity G. For each year of the State Plan, co-sponsor the annual West Hawaii Disability Legislative Forum in West Hawaii in collaboration with the West Hawaii Developmental Disabilities Committee and public and private agencies and organizations on Hawaii Island by September 30, 2017.

Activity H. For each year of the State Plan, co-sponsor the annual Kauai Legislative Forum in Kauai in collaboration with the Kauai Developmental Disabilities Committee and public and private agencies and organizations on Kauai by September 30, 2017.

GOAL 2. PUBLIC AWARENESS, EDUCATION AND TRAINING

Individuals with intellectual and developmental disabilities and their families

educate their communities about intellectual and developmental disabilities.

Objective 1. There will be 1,000 self-advocates, family members, service providers, and advocates engaging in advocacy and organizing Developmental Disabilities Awareness Month on each Island (Hawaii, Kauai, Lanai, Maui, Molokai, and Oahu) in the State of Hawaii by September 30, 2021.

Activity A. For each year of the State Plan, there will be three additional organizations of self-advocates, family members, service providers, and advocates to promote Developmental Disabilities Awareness Month by September 30, 2017.

Activity B. For each year of the State Plan, convene meetings to identify legislative issues with three additional provider agencies who provide services and supports to individuals with intellectual and developmental disabilities by September 30, 2017.

Activity C. For each year of the State Plan, organize visits with three additional provider agencies who provide services and supports to individuals with intellectual and developmental disabilities to the State Capitol to educate and familiarize them with the offices of the Governor, Lt. Governor, legislators, and legislative offices and conference rooms by September 30, 2017.

Activity D. For each year of the State Plan, create a Developmental Disabilities Awareness slogan and picture theme for the month of March by March 31, 2017.

Activity E. For each year of the State Plan, create a proclamation and news release promoting Developmental Disabilities Awareness Month by March 31, 2017.

Activity F. For each year of the State Plan, set up displays promoting Developmental Disabilities Awareness Month throughout the communities of self-advocates, family members, service providers, and advocates by March 31, 2017.

Activity G. Co-sponsor transition events that address milestone transitions (early childhood, elementary, middle and high school, post high school, and adulthood) in collaboration with public and private agencies and organizations (such as Maui Big MAC (Moving Across Community) and M&M (Moving to Middle) on Maui, and Malama Da Mind on Hawaii Island by September 30, 2017.

Activity H. Collaborate with Department of Health Developmental Disabilities Division, Department of Human Services Division of Vocational Rehabilitation, and Department of Education to conduct public awareness activities during the month of October to address Employment of Individuals with Disabilities Awareness Month by September 30, 2017.

Objective 2. Individuals with intellectual and developmental disabilities who are not served by the Department of Health Developmental Disabilities Division will be identified by September 30, 2021.

Activity A. Identify organizations and places to provide outreach to individuals with intellectual and developmental disabilities and their family members and friends by September 30, 2018.

Activity B. Identify various media sources to provide information to individuals with intellectual and developmental disabilities, their family members and friends by September 30, 2018.

Activity C. For each year of the State Plan, identify the number of individuals with intellectual and developmental disabilities exiting high school by age and disability by September 30, 2017.

Activity D. For each year of the State Plan, identify the three most frequently identified goals from the Individualized Educational Plans (IEPs) of individuals with intellectual and developmental disabilities exiting high school by September 30, 2017.

Activity E. For each year of the State Plan, obtain a copy of the Post-Secondary Outcomes Survey and data from the Department of Education by September 30, 2017.

Activity F. For each year of the State Plan, create a “Did You Know….” Fact Sheet to provide information and outreach to self-advocates and family members who do not receive services and supports from the Department of Health Developmental Disabilities Division by September 30, 2017.

GOAL 3. TRANSITION AND EMPLOYMENT

Individuals with intellectual and developmental disabilities have increased access

to and opportunities for the education, training, and support services that they

need to succeed in the labor market.

Objective 1. In compliance with State law, advocate for the high school transition process to begin at age 14 years or earlier, as determined in order to transition students to adult life by September 30, 2019.

Activity A. Collaborate with the Department of Education, Department of Health Developmental Disabilities Division, and Department of Human Services Division of Vocational Rehabilitation to ensure that beginning at age 14, students with intellectual and developmental disabilities, and family members, have access to the “Tri-Agency Map to Employment for Students with DD Transitioning from High School” by September 30, 2018.

Activity B. Promote “Nothing About Us, Without Us” by providing information that students must be invited to and participate in their IEP meetings beginning with their first IEP, and meetings must address their goal(s) that may include post-secondary education or employment by September 30, 2019.

Objective 2. Students (age 14 years to 22 years) with intellectual and developmental disabilities have access to Pre-Employment Transition Services (PETS) by September 30, 2019.

Activity A. Collaborate with and encourage the Department of Education to report to the Council, annually, the number of students with a disability (age 14 years to 22 years) attending each high school by September 30, 2017.

Activity B. Collaborate with the Department of Education and Department of Human Services Division of Vocational Rehabilitation to provide students with a disability (age 14 years to 22 years) information about PETS during the high school transition process by September 30, 2018.

Objective 3. Students (age 14 years to 22 years) with intellectual and developmental disabilities, families, and case managers have increased access to information on transition services and supports needed to prepare students for transition to adult life by September 30, 2021.

Activity A. Distribute a one-page informational sheet on available resources for students with intellectual and developmental disabilities to live independently, participate in post-secondary education and training, employment or self-employment to students and families by September 30, 2019.

Activity B. Collaborate with the Department of Education, Department of Health Developmental Disabilities Division, and Department of Human Services Division of Vocational Rehabilitation to ensure that students with intellectual and developmental disabilities are provided information on opportunities for enrollment in comprehensive transition or post-secondary education programs at institutions of higher learning by September 30, 2019.

Activity C. Collaborate with the Department of Budget and Finance in the development of the Hawaii Achieve a Better Life Experience (ABLE) Account program to increase knowledge of the program that allows eligible individuals to establish an ABLE tax-free account for disability-related expenses, and enrollment by dissemination of reliable, user-friendly information to persons with intellectual and developmental disabilities and their families by September 30, 2018.

Activity D. Collaborate with the Department of Education Adult Education, Department of Health Developmental Disabilities Division, Department of Human Services Division of Vocational Rehabilitation, and the University of Hawaii Center on Disability Studies to promote awareness of disability-related barriers and solutions to continued employment for persons with intellectual and developmental disabilities by September 30, 2020.

Activity E. For each year of the State Plan, co-sponsor the annual Footsteps to Transition Fair in collaboration with public and private agencies and organizations on Oahu by September 30, 2017.

Objective 4. Adults with intellectual and developmental disabilities have increased access to information on employment, education, training, and support services needed to prepare them for the transition to employment by September 30, 2020.

Activity A. Collaborate with the University of Hawaii Center on Disability Studies, Department of Health Developmental Disabilities Division, and Department of Human Services Division of Vocational Rehabilitation to ensure that information on employment supports are provided by September 30, 2018.

Activity B. Collaborate with the Department of Health Developmental

Disabilities Division to ensure that Medicaid Home and Community-Based Services Waiver providers deliver employment supports that meet the requirements of the Centers for Medicare and Medicaid Services Final Rule on home and community-based settings by September 30, 2019.

Activity C. Collaborate with the Department of Health Developmental

Disabilities Division and Department of Human Services Division of Vocational Rehabilitation to ensure that any assigned case manager and vocational counselor are invited to attend the individualized support plan meeting for persons with intellectual and developmental disabilities receiving Division of Vocational Rehabilitation services by September 30, 2020.

Activity D. Advocate to increase employment options for adults with intellectual and developmental disabilities by them having their own transportation business, such as UBER, LYFT, LYFT, Limo, or taxi company, by September 30, 2020.

GOAL 4. HEALTH AND CHILDREN AND YOUTH

Parents and family members with children, 3-5 years of age, who are at risk for

developmental delays or who have intellectual and developmental disabilities will

have timely access to standardized developmental screening, appropriate

services, and supports.

Objective 1. Promote the use of standardized developmental screening tools, through asset and resource mapping, in each County in the State of Hawaii serving children at risk for developmental delays or who have intellectual and developmental disabilities, 3-5 years of age, by September 30, 2021.

Activity A. Partner with the Department of Health Family Health Services Division and University of Hawaii Center on Disability Studies to develop an asset and resource mapping template by September 30, 2019.

Activity B: Identify and involve agencies and organizations to assist with the needs assessment and resources of each County in the State of Hawaii by September 30, 2018.

Activity C. Organize resources and assets based on the results of the needs assessment by September 30, 2020.

Activity D. Promote the utilization of standardized screening tools across the State of Hawaii by September 30, 2020.

Activity E. Facilitate the drafting of a concurrent resolution to be introduced to the State Legislature encouraging the use of standardized developmental screening tools by September 30, 2020.

Objective 2. Parents of children with special health care needs under the age of 21 years will have increased awareness, understanding, and knowledge regarding services, supports, and rights within the health and education systems by September 30, 2021.

Activity A. Identify and compile information about issues or concerns regarding services within the health and education systems that are reported to agencies and organizations (such as Department of Health Children with Special Health Needs Branch, Hilopa’a Family to Family Health Information Center Ombudsman, Hawaii Disability Rights Center, Learning

Disabilities Association of Hawaii, Special Parent Information Network, and Community Children’s Councils) by September 30, 2018.

Activity B. Convene meetings with agencies and organizations (such as Department of Health Children with Special Health Needs Branch, Hilopa’a Family to Family Health Information Center Ombudsman, Hawaii Disability Rights Center, Learning Disabilities Association of Hawaii, Special Parent Information Network, and Community Children’s Councils) who receive complaints regarding gaps in health and education systems for individuals with special health care needs under the age of 21 by September 30, 2018.

Activity C. Create an information sheet for parents, family members, and their children on the importance of having the child’s special health care needs identified within their IEPs to assure that they are addressed to obtain optimal learning environment by September 30, 2019.

Activity D. Create an information sheet for parents, family members, and their children on the importance of transitioning from medical professionals who serve children to medical professionals who serve adults by September 30, 2019.

Objective 3. Advocate for a higher reimbursement rate to increase the percentage of primary care providers in a health plan who serve individuals with intellectual and developmental disabilities under the age of 18 by September 30, 2019.

Activity A. Obtain the number and percentage of primary care providers by each County in the State of Hawaii who serve individuals with intellectual and developmental disabilities under the age of 18 by September 30, 2018.

Activity B. Identify the U.S. Administration on Intellectual and Developmental Disabilities and Department of Health Developmental Disabilities Division’s recommended number of primary care providers by September 30, 2018.

Activity C. In collaboration with the University of Hawaii Center on Disability Studies, conduct a needs assessment to determine communities of greatest shortage of primary care providers by September 30, 2019.

Objective 4. Parents and family members with children, 3-5 years of age, who are at risk for developmental delays or who have intellectual and developmental disabilities will have increased access to assistive technology by September 30, 2021.

Activity A. Develop an informational sheet with providers of assistive technology about the Assistive Technology Act by September 30, 2017.

Activity B. Coordinate with the Aging and Disability Resource Center, Community Children’s Council office, and Assistive Technology Resource Center to assist with the dissemination of information on assistive technology resources by September 30, 2018.

Activity C. Identify at least one agency or person on each island in Hawaii that will be the contact person to disseminate information about the Assistive Technology Act and assistive technology resources by September 30, 2018.

Activity D. Increase the number of organizations that disseminate information on assistive technology resources by ten organizations a year by September 30, 2020.

Activity E. The Assistive Technology Resource Center will have an increase of referrals for assistive technology resources and supports for children ages 3-5 years by an additional 25 referrals a year by September 30, 2021.

GOAL 5. SELF-ADVOCACY AND SELF-DETERMINATION

Self-advocates have the supports needed to build a statewide self-advocacy

network that helps individuals have the life they want through leadership,

education, and full participation in the community.

Objective 1. Establish a self-advocacy network by September 30, 2021.

Activity A. The Developmental Disabilities Council will provide available funds and staff resources to support the Hawaii Self-Advocacy Advisory Council in its meetings and for activities and events by September 30, 2017.

Activity B. The Hawaii Self-Advocacy Advisory Council will hold regular monthly Hawaii Self-Advocacy Advisory Council meetings by September 30, 2017.

Activity C. The Developmental Disabilities Council and Hawaii Self-Advocacy Advisory Council will provide materials for the Hawaii Self-Advocacy Advisory Council meetings and events by September 30, 2018.

Activity D. The Hawaii Self-Advocacy Advisory Council will create one fundraising event a year to support advocacy activities by September 30, 2017.

Activity E. The Developmental Disabilities Council will assist the Hawaii Self-Advocacy Advisory Council in establishing and supporting self-advocacy groups in Oahu, Hilo, Kona, Kauai, Lanai, Maui, and Molokai by September 30, 2017.

Activity F. The Hawaii Self-Advocacy Advisory Council will contact other self-advocacy organizations and businesses to build network ties for education, resources, and community connections by September 30, 2019.

Activity G. The Hawaii Self-Advocacy Advisory Council will participate in agency committees and task forces by September 30, 2018.

Activity H. The Developmental Disabilities Council will assist Self-Advocacy Advisory Council to secure a non-profit status by September 30, 2020.

Objective 2. In collaboration with the Developmental Disabilities Network Partners (Developmental Disabilities Council, University of Hawaii Center on Disability Studies, and Hawaii Disability Rights Center), the Hawaii Self-Advocacy Advisory Council will work to provide leadership training, education, skill building, and assistance in helping self-advocates to develop partnerships with other organizations and advocacy groups that represent a range of diverse cultures and disabilities by September 30, 2021.

Activity A. The Hawaii Self-Advocacy Advisory Council will provide six trainings on organizational development, business management, leadership, and skill building by September 30, 2018.

Activity B. The Hawaii Self-Advocacy Advisory Council will host a minimum of two Feeling Safe Being Safe Emergency Preparedness trainings by September 30, 2017.

Activity C. The Hawaii Self-Advocacy Advisory Council will complete an advocacy booklet on How to Run Your Own Individual Service Plan and provide a minimum of two peer trainings to the Hawaii Self-Advocacy Advisory Council members by September 30, 2019.

Activity D. The Hawaii Self-Advocacy Advisory Council chapters on each island in Hawaii will choose one “Advocacy in Action” goal and coordinate one activity or event by September 30, 2020.

Objective 3. Provide community participation activities for the Hawaii Self-Advocacy Advisory Council members by September 30, 2019.

Activity A. Host a minimum of two Hawaii Self-Advocacy Advisory

Council Friendship Lunches by September 30, 2017.

Activity B. Host a minimum of two Hawaii Self-Advocacy Advisory Council Career and Business Club visits by September 30, 2018.

Activity C. Hawaii Self-Advocacy Advisory Council members to host and/or participate in a community event by September 30, 2019.

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