Inaugural Conference Report Children & Young People with a ...

Working Together to Support Children & Young People with a Disability and their Families

Inaugural Conference Report

Working Together to Support Children & Young People with a Disability and their Families

National Conference Report

Conference Date: 1st December 2017

Date of Publication: 2018

? Health Service Executive (HSE) and Mary Immaculate College, Limerick. ? Illustrations: Fintan Taite

Editor:

Dr Brendan O'Keeffe, The Institute for Action Research. ActionResearchEurope@

Conference Organising Committee: Ann Bourke, (Chair), National Disability Specialist, HSE Community Operations ? Disabilities; Anne O'Byrne, Department of Educational Psychology, Inclusive and Special Education, Mary Immaculate College; Angie O'Brien, Client Director, HSE Communications; Bernie Nyhan, Progressing Disability Services (PDS), CHO 7, HSE; Brendan O'Keeffe, Mary Immaculate College (PRISEM - Policy Research Institute for Social and Education Matters); Caroline Cantan, National Programme Coordinator, PDS, HSE; Lorraine Dempsey, Parent Representative, National Children's Programme Oversight Group Denise Keoghan, HR Leadership, Education and Talent Development Specialist, HSE; Geraldine Cosgrove, PDS Project Lead, CHO 1, HSE; Geraldine Prunty, Head of Children's Clinical Services, Central Remedial Clinic; Gillian Darrer, Regional Services Manager, Brothers of Charity South East; Lorna Gough, PA to Caroline Cantan; Patsy Nealon, Coordinator of Children's Disability Services, HSE Waterford.

Table of Contents

Editor's Note.......................................................................................................................................... i

Foreword by Minister Finian McGrath T.D. .............................................................................1

1. Introduction and Overview - Working Together to Support Children and Young People with a Disability and their Families - Conference, 2017..................................................2

Children's Disability Services Reform Programme.............................................................4

3. Plenary Papers....................................................................................................................5 3.1 Progressing Disability Services in Action ? Kerry Intervention and Disability Services (KIDS) .........................................................................................................................................5 3.2 On the PDSCYP Road of Change: Our Journey in Kildare West Wicklow ............................ 11 3.3 Working in Partnership with Families .................................................................................... 15 3.4 Autism Spectrum Disorder Assessment Pathway................................................................. 18 3.5 Promoting Inclusion and Participation in Preschool: Collaborative working - Families, Preschools, Early Intervention Teams, Access and Inclusion Model (AIM) and Early Years Specialists ............................................................................................................................... 19 3.6 Joint Working Practices - Supporting the Student with Complex Special Needs................ 22 3.7 Managing Referrals and Waitlist for a Children's Disability Network Team ....................... 25 3.8 Working with Families from a Mother's Perspective ............................................................ 28 3.9 Managing Sleep Problems in Children attending the Early Intervention Team .................. 31 3.10 Standardised Assessment for Children with Physical and Neurodisability to Enable Collaboration between Network Teams and Specialist Supports ....................................... 35

4. Good Practices and Practitioner Insights ........................................................................ 36 4.1 Cygnet Parent Support Programme - An Evaluation as Facilitators .................................... 36 4.2 Supporting Grandparents in Understanding their Autistic Grandchildren .......................... 37 4.3 Assessing and Diagnosing Children and Adolescents for Autism Spectrum Disorder (ASD) the Dynamic Team Approach................................................................................................. 39 4.4 Training Programme for Parents of Children with ASD - A Way to Empower Parents and Target Goals in the Natural Learning Environment .............................................................. 41 4.5 Cultural Competency: Responding to the Needs of Migrant Parents.................................. 43 4.6 Translating the Principles of Parental and Infant Mental Health into Real-World Practice within a Children's Disability Network Team (CDNT)............................................................ 44 4.7 Siblings and Young Carers Support Groups.......................................................................... 46 4.8 Working Together: An integrated Multi-agency Approach to Psychology Services to schools for all children ......................................................................................................................... 48 4.9 Cultivating a Learning Environment for Children with Special Educational Needs (SEN): Multidisciplinary Strategies.................................................................................................... 49 4.10 Working together for Better Outcomes ? An Overview of a Barnardos ? HSE Integrated Service Model ......................................................................................................................... 51 4.11 Strengths-based Report Writing - It's all in the language you use....................................... 52

5. Delegates' Experiences, Observations, Feedback and Recommendations.................... 53

6. Poster Presentation Catalogue........................................................................................ 62 6.1 Rethinking Intervention Services in Line with Best Practice Guidelines North Kildare NDT (Network Disability Team) ...................................................................................................... 62 6.2 Autistic Spectrum Disorder (ASD) Care Pathway ................................................................. 62 6.3 Autism Support Group ............................................................................................................ 63 6.4 Exploring the effects of a Parent-delivered Intervention for Young Children with a Query of Autism: A Waitlist Initiative..................................................................................................... 63 6.5 Together Everyone Achieves More: A partnership model to promote inclusion in preschools............................................................................................................................... 64 6.6 Access and Inclusion Model (AIM) Supporting children with additional needs to access mainstream preschool: frontline experiences and reflections on collaborative working .. 64 6.7 Lego Therapy........................................................................................................................... 64 6.8. `F' Words in Action - Clare DCD Sports Group....................................................................... 65 6.9 Domain Youth Club................................................................................................................. 65 6.10 The Establishment of Waterford SportsAbility Forum .......................................................... 66 6.11 Independent Gym Group for Children with Physical Disabilities ......................................... 66 6.12 Community Dance Intervention Programme......................................................................... 67 6.13 School Leavers' Programme: A team-based approach to supporting adolescents with a disability to prepare for leaving secondary school ............................................................... 67 6.14 Supporting the journey to School! ......................................................................................... 67 6.15 Transition to Secondary School ............................................................................................. 68 6.16 Ready Set Cycle ...................................................................................................................... 68 6.17 Developing a Vocabulary Skills Pathway for School Aged Children ? Treasure Hunters ... 69 6.18 Communication Is Core .......................................................................................................... 69 6.19 Supporting Functional Hand Use of Children with Cerebral Palsy....................................... 70 6.20 Social Communication Pathway@ Treetops.......................................................................... 70 6.21 Making Inclusion and Empowerment the Core..................................................................... 71 6.22 Autism and me, Autism and my Child ................................................................................... 71 6.23 Group-based Parent Training to reduce the Risk of Problem Behaviour for Children with Developmental Disorders and to support Family Wellbeing and Parent Mental Health ... 72 6.24 Circle of Security Parenting Tool............................................................................................ 72 6.25 Using Parents' Experience in Designing Service Changes ? listening sessions for parents of children in early intervention speech & language therapy services ............................... 73 6.26 Working Together: Learning from Teachers' Experiences of Teaching Children with Sensory Processing Difficulties (SPD) ................................................................................... 73 6.27 `Snax, Popcorn, Ketchup & Bread Rolls'? Diet of a Child on the Autism Spectrum........... 73 6.28 Examining Staff Perspectives on the Nature of Family-Centred Practice in an School Aged Disability Team ....................................................................................................................... 74 6.29 National Council for the Blind of Ireland (NCBI) - Working for People with Sight Loss ...... 74 6.30 The Role of Community Facilitators for Disability Sligo ? Leitrim - West Cavan................. 75 6.31 The Role of the Early Educator in the Multi-disciplinary Team ............................................ 76 6.32 Developing Team Culture....................................................................................................... 76 6.33 Motor Management................................................................................................................ 77

7. Experiences in Northern Ireland...................................................................................... 78 7.1 Enhancing Services for Children with Disabilities and their Families - A Northern Ireland Perspective ............................................................................................................................. 78 7.2 Progressing Disability Services in Northern Ireland ............................................................. 81

8. International Perspectives............................................................................................... 86 8.1 Inclusion and Beyond ............................................................................................................. 86 8.2 Inclusive Education and Specific Educational Support Needs in Spain: Foci, Experiences and Progress ........................................................................................................................... 92 8.3 Service Delivery and Collaboration When Serving Children with Disabilities in the United States ...................................................................................................................................... 98

9. Current Academic Research in the Field....................................................................... 101 9.1 A review of the effectiveness of Cognitive Behaviour Therapy (CBT) interventions in reducing anxiety levels of children with Autistic Spectrum Disorders aged 4-7 years..... 101 9.2 Hear my Voice: Developing strategies for anxiety through self-advocacy in the Williams Syndrome Association of Ireland ......................................................................................... 111 9.3 Trans-disciplinary Dissemination of Good Practice: Applying `Strengths-Based Report Writing' to the Training of Educational Psychologists at Mary Immaculate College ........ 115

10. Conclusions and Recommendations .......................................................................... 121

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