ANNOTATED RESOURCES - ECTA Center



ANNOTATED RESOURCES

• Compilation of Selected Federal Programs for Children and Families developed by the Women’s and Children’s Health Policy Center at

Johns Hopkins University (2006) provides detail on each program by statute and administrative agency, including Web links.

• Federal Financial Resources to Support Part C Systems is an IDEA Infant & Toddler Coordinators Assocation (ITCA) paper that was written by Don Kates in 2002. The paper was developed to assist Part C Coordinators in their awareness and understanding of potential federal fiscal resources. A total of 24 different federal resources are highlighted that are frequently or occationally used to support and build state early intervetnion systems.

• Web Resources is a comprehensive listing of Web-based resources in including publications and organizations/agencies having content on the financial aspect of serving children and families. The document also provides links to potential funding sources, state specific guidance and forms related to finance and sources of national as well as state level data on children and families.

Additional Resources on Part C Finance:

• Part C System of Payments: Family Cost Participation (October 2003)

This package of papers includes an Executive Summary, the Full Report, and Appendix B

—the survey used to collect information for the paper. The report includes the following:

­ Summary of federal statutory and regulatory requirements related to family cost participation;

­ Models currently in use by states;

­ Policy implications that states must consider in developing a system of family cost participation;

­ Implementation considerations at the state and local level related to data gathering, revenue collection and cost/benefits.

The report is based on survey responses from 34 individual states, 1 territory and the Department of Defense to total 36 respondents. The Executive Summary provides a short overview of state responses and implications, and the full report provides the detail. There are “decision trees” to help guide readers in making decisions about using private insurance and/or family fees to help support Part C services on pages 44 – 46 of the full report.

• The Deficit Reduction Act: A Review of Key Medicaid Provisions Affecting Children and Families (March 2006)

This issue brief from the Center for Children and Families out of the Georgetown University Health Policy Institute summarizes Medicaid provisions in the Deficit Reduction Act (DRA) signed by President Bush on February 8, 2006 that affect children and families. A number of these changes weaken the minimum federal standards for care that families receive through Medicaid. Since states can choose whether or not to rely on the weaker federal standards and face many choices if they do decide to make program changes, the ultimate effect of the DRA on children and families will depend largely on state response to the new program options. The options include changes in the Medicaid benefit standards, changes to federal cost sharing and premium/family cost standards, and new citizenship documentation requirement. There will be opportunities for up to ten states to experiment with high deductible Medicaid coverage that is couple with personal spending accounts under “Health Opportunity Account” demonstration projects.

• ITCA Medicaid Resource and Technical Assistance Paper (August 2005)

This paper has a lot of useful information for Part C Coordinators who are interested in utilizing Medicaid funds to help pay for Part C (and Part B) services under the Individuals with Disabilities Education Act (IDEA)—do not be intimidated by its length!

­ Pages 1 – 39 of the paper provide basic background information

about relevant federal initiatives.

­ The sections on pages 40 – 70 provide practical information about

the Medicaid state plan process and Medicaid program components.

­ Pages 71 -- 73 include structured guidance to help begin to

explore state level information about Medicaid.

­ Section B, on pages 74 – 143, provides information relating

Medicaid opportunities to Part C programs and services, and various options available for states with state examples. This section is ordered by specific Medicaid opportunities so the reader may select specific sections of interest or applicable to a state.

­ Pages 144 -- 148 provide structured guidance to help states apply

information in the previous section to their state circumstances.

­ Section C, pages 149 – 203, provides a “comprehensive discussion of the factors to be considered and weighed as states explore fund expansion or reorganization of Part C systems under Medicaid” including several state examples and website resources. Figure 28 beginning on page 158 is a useful crosswalk among Part C, EPSDT and Medicaid services. Page 180 includes a brief description of HIPPA rules as they apply to Part C.

­ Pages 204 – 220 outline a series of steps to guide Part C planners

in strategic planning and implementing systems change, such as utilizing a new funding sources to pay for services.

The Appendices are another rich source of information. The titles of the appendices describe the content well, although sometimes the acronyms are unfamiliar. Of special interest:

­ Appendix C includes the 2005 Federal Poverty Guidelines.

­ Appendix I includes websites relevant to Medicaid.

The paper also includes data from 35 states on their current and planned Medicaid activities, detailed in individual state folders.

• ITCA Part C System – A Resource and Technical Assistance Paper for Reimbursement Methods in IDEA Part C (October 2004)

The purpose of this technical assistance paper is:

a) To help the reader understand the context of a given reimbursement system;

b) To assist in shaping the preparatory work for any Part C Coordinator responsible for facilitating decisions regarding a reimbursement structure; and

c) To provide specific approaches reflecting a number of different methods.

This paper provides Part C Coordinators with broad general guidance about the process of modifying an existing reimbursement system or introducing a new manner in which early intervention services are purchased. The paper is divided into two sections. Section I lays out a conceptual framework designed to look at options, consider systemic values and identify possible constraints. Section II is designed to help develop the selected methodology into a reimbursement system. This paper is not intended to be a specific roadmap for any given system. Part C systems vary greatly across the country; therefore, each state embarking on the road to a more in depth study and application of various reimbursement methodologies must examine the political, programmatic and funding context in order to proceed—which this paper will help states do.

• A Structure for Developing and Sustaining a Part C Finance System DRAFT (April 2006)

Part C legislation was designed to establish an interagency, coordinated system of resources (including finance), supports and services. Part C funds were uniquely designated to support the development and maintenance of a coordinated infrastructure, and “to facilitate the coordination of payment for early intervention services from Federal, State, local and private sources (including public and private insurance coverage)” (PL 108-446, Section 631(b)(2)). The financial crisis that faces state lead agencies today is the gap between Congressional intent and current reality. This paper summarizes the fiscal challenges that this legislation presents, and proposes a framework for analyzing, adjusting, and maintaining a flexible and self regulating finance system to support Part C early intervention services for young children and their families.

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