Rhode Island Early Intervention
Rhode Island Early Intervention
ICD-9 and ICD-10 CODES ESTABLISHED CONDITIONS LIST AND SIGNIFICANT DEVELOPMENTAL DELAY
All children diagnosed with established conditions that have a high probability of resulting in developmental delay, are eligible for early intervention services until the child's third birthday, unless a change in the status of a diagnosis or condition resolves with medical/surgical treatment. Diagnosis must be made by a physician or other appropriately licensed professional and documentation of medical diagnosis is required. If a medical diagnosis or condition is not included in the RI Early Intervention Established Conditions List and it is a condition associated with developmental delay, approval for its use as Single Established Condition by the Lead Agency is required. Conditions listed with an asterisk * may be used only in determining initiial eligibility and require eligibilty to be re-determined in 1 year. These children must meet the criteria for Significant Developmental Delay at that time or be diagnosed with another qualifying condition. Conditions include but are not limited to the following listing. ICD-9 codes with an x indicate that the condition has several types. Additional digits for the specific type are required.
SENSORY CONDITIONS
CENTRAL NERVOUS SYSTEM DISORDERS (Continued)
BLINDNESS
742.2 Q04.3 Lissencephaly
369.00 H54.0 Blindness, both eyes
322.9 G03.9 Meningitis with negative long-term effects
369.60 H54.40 Blindness, one eye
742.1 Q02
Microcephaly
377.75 H47.619 Cortical Blindness/Cortical Vision Impairment
292.0 *P96.1 Neonatal Abstinence Syndrome
377.10 H47.20 Optic Nerve Atrophy
742.2 Q04.3 Polymicrogyria
362.21 *H35.109 Retinopathy of Prematurity
780.39 R56.9 Seizure disorder (repetitive, recurrent)
LOW VISION
345.60 G40.xxx Spasms, infantile
369.20 H54.2 Low vision, both eyes
741.00 Q05.4 Spina bifida with hydrocephalus
(20/70 best acuity with correction)
741.90 Q05.8 Spina bifida without mention of hydrocephalus
369.70 *H54.50 Low vision, one eye
767.4 P11.5 Spinal Cord Injury at birth
HEARING LOSS (permanent)
952.9 S14.109A Spinal Cord Injury not at birth
389.9 H91.93 Hearing impairment, bilateral
741.90 Q05.8 Spinal Lipomeningocele
389.9 H91.90 Hearing impairment, unilateral
759.6 Q85.8 Sturge-Weber disease
389.12 H90.5 Neural hearing loss/auditory neuropathy
CHROMOSOMAL DISORDERS
CANCERS
429.3 Q93.4 Cat Cry Syndrome (Cri-du-Chat)
199.1 C80.1 Cancer, Other (not included on this list)
758.x Q90.xx Chromosomal Anomaly (including Trisomies,
208.90 C91-95x Leukemia
Deletions, Duplications, Translocations,
202.80 C83.7x Lymphoma
Inversions, Rings and Isochromosome)
191.9 C71.9 Malignant neoplasm of brain
Exceptions: Klinfelter's Syndrome, Turner Syndrome)
189.0 C64.9 Malignant neoplasm of kidney
759.8 Q87.1 Cornelia De Lange Syndrome
170.9 C41.9 Osteosarcoma
758.0 Q90.9 Down Syndrome
171.4 C49.3 Rhabdomyosarcoma
759.83 Q99.2 Fragile X Syndrome
CARDIAC CONDITIONS
759.81 Q87.1 Prader-Willi Syndrome
745.69 Q21.2 Atrioventricular canal defect
758.33 Q93.88 Smith-Magenis Syndrome
425.x
Cardiomyopathy
METABOLIC DISORDERS
747.1 Q25.1 Coarctation of the aorta
270.6 E72.20 Disorders of urea cycle metabolism
416.0 I27.0 Hypertension, pulmonary
270.9 E72.9 Amino acid metabolism disorder
746.7 Q23.4 Hypoplastic left heart syndrome
272.6 E88.1 Congenital lipodystrophy
746.9 Q24.9 Major cardiac anomaly, other (not included on this list) 271.1 *E74.21 Galactosemia
745.2 Q21.3 Tetralogy of Fallot
330.1 E75.19 Gangliosidosis
745.10 Q20.3 Transposition of great vessels
271.0 E74.00 Glycogen storage disease
CENTRAL NERVOUS SYSTEM DISORDERS
277.5 E76.01 Hurler Syndrome
759.89 Q04.0 Aicardi syndrome
275.3 E83.39 Hypophosphatasia
740.0 Q00.0 Anencephaly
277.85 E71.310 LCHAD (Long Chain Acyl CoA Dehydrogenase Deficiency)
334.8 G11.3 Ataxia-Telangiectasia
270.3 *E71.0 Maple syrup urine disease/Methylmalonic acidemia
742.4 Q04.8 Brain Sclerosis
759.8 E83.09 Menkes Syndrome
335.22 G12.22 Bulbar palsy
277.5 E76.3 Mucopolysaccharidosis
742.4 Q04.8 Cerebral atrophy, congenital
271.8 E74.8 Other specified disorders of carbohydrate transport
343.9 G80.x Cerebral palsy
and metabolism
436.9 I61.9 Cerebrovascular accident (CVA)
270.7 E72.3 Propionic acidemia
742.4 Q04.6 Congenital Schizencephaly
757.1 Q87.1 Sjogren-Larsson Syndrome
742.3 Q03.1 Dandy-Walker malformation
330.1 E75.02 Tay-Sachs disease
343.0 G80.1 Diplegia
SKELETAL DISORDERS
323.9 G04.90 Encephalitis
714.30 M08.00 Arthritis, juvenile rheumatoid
742.0 Q01.9 Encephalocele
754.89 Q74.3 Arthrogryposis
348.30 G93.4 Encephalopathy
757.39 Q82.8 Beals Syndrome
345.90 G40.9xx Epilepsy
755.59 Q74.0 Cleidocranial Dysostosis
342.90 G81.90 Hemiparesis/Hemiplegia
756.0 Q75.0 Craniostenosis
742.2 Q04.02 Holoprosencephaly/Hypoplasia of the brain
756.0 Q75.9 Crouzon's Syndrome
742.3 Q04.3 Hydranencephaly
352.6 Q87.0 Mobius sequence
345.60 G40.8xx Hypsarrhythmia
756.0 Q75.0 Nager-de Reynier Syndrome
772.13 P52.21 Intraventricular hemorrhage (grade 3 )
756.51 Q78.0 Osteogenesis imperfecta
772.14 P52.22 Intraventricular hemorrhage (grade 4)
755.30 Q68.8 Proximal Focal Femoral Deficiency (PFFD w/fibula hemimelia)
330.0 E75.25 Leukodystrophy/Canavan disease
754.89 *Q68.1 Radial Club Hand
October 2015 ICD-9/ICD10 Codes Established Conditions List and Developmental Delay
Rev Feb 2016
ICD-9 and ICD-10 CODES ESTABLISHED CONDITIONS LIST
OTHER DISORDERS
OTHER DISORDERS (Continued)
755.4 Q73.0 Absence of limb
771.0 P35.00 Rubella, congenital
756.4 Q77.4 Achondroplasia
754.2 M41.00 Scoliosis (congenital, severe)
658.8 *P02.8 ADAM Complex
754.1 *Q68.0 Torticollis, congenital
042 B20
AIDS
771.2 P37.1 Toxoplasmosis, congenital
284.9 D61.9 Aplastic anemia
854.00 S09.8XXS Traumatic Head Injury
299.00 F84.0 Autism
759.5 Q85.1 Tuberous Sclerosis
749.20 *Q37.9 Cleft lip and palate
749.00 *Q35.9 Cleft palate
OTHER SYNDROMES
771.1 P35.1 Congenital CMV - Cytomegalovirus
759.89 Q44.7 Alagille Syndrome
759.4 Q89.4 Conjoined twin
759.89 Q93.5 Angelman Syndrome
277.0x E84.x Cystic fibrosis
755.55 Q87.0 Apert Syndrome
259.4 E34.3 Dwarfism
299.80 F84.5 Asperger Syndrome
757.39 Q81.9 Epidermolysis Bullosa
759.89 Q87.3 Beckwith-Wiedemann Syndrome
767.6 P14.0 Erb's palsy (Brachial Plexis injury)
284.01 D61.0 Blackfan-Diamond Syndrome
783.41 *R62.51 Failure to Thrive
757.33 Q82.3 Bloch-Sulzberger Syndrome
284.09 D61.09 Fanconi Anemia
758.3 Q92.8 Cat Eye Syndrome
307.59 F98.29 Feeding Disorder
759.89 Q89.8 CHARGE Syndrome
756.79 Q79.3 Gastroschisis
759.89 Q87.1 Cockayne Syndrome
754.0 Q67.4 Hemifacial Microsomia
279.11 D82.1 DiGeorge Syndrome
771.2 *P35.2 Herpes, congenital
756.83 Q79.6 Ehlers-Danlos Syndrome
G91.xx Hydrocephalus
448.1 I78.1 Epidermal Nevus Syndrome
778.0 P83.2 Hydrops-Fetalis
581.9 N04.9 Epstein's Syndrome
243 E00.9 Hypothyroidism, congenital
760.71 P04.3 Fetal Alcohol Syndrome
774.7 P57.8 Kernicterus
756.0 Q87.0 Goldenhar Syndrome
984.9 *T56.OX1A Lead Poisoning (15 mg/dl venous lead level or greater) 756.16 Q76.1 Klippel-Feil Syndrome
330.8 G31.82 Leigh's Disease
755.8 Q74.8 Larsen Syndrome
573.9 K76.9 Liver disease and/or dysfunction
759.89 Q87.1 Noonan Syndrome
765.01 *P07.01 Very Low Birth Weight ................
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