The Power 100 2019

[Pages:25]Power 100

The Power 100 2019

#disabilitypower100

The Power 100 2019

Britain's most influential disabled people

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Welcome

Power 100

Welcome to the 2019 Shaw Trust Power List, a celebration of the 100 most influential disabled people in Britain.

Our sincere congratulations to our top 100 influential people who have been nominated and judged by their peers to be role models, advocates, campaigners, activists and social changers. Reading each person's story, it is clear that there is still a huge way to go to achieve equality and inclusion, but that incredible progress is being made ? in the public arena and in private spaces, digitally and in real life, to many lives and to individuals ? and that these changes will benefit society as a whole.

Thank you to everyone who nominated someone who they felt was influential this year. Year on year the number of nominations we receive is astounding as the level of awareness and inclusion increases. But we still have much to do to create a fully inclusive and fairer society. As last year's winner, Alex Brooker says in his interview with us (page 128): "Soaps and comedies need more disabled people in roles where it's not all about their disability because we live normal lives too. You don't get a lot of that in programmes. But the more you get, the more normalising it is."

This year's nominees have come from a diverse range of sectors and have been nominated by members of the public, colleagues and those inspired by their stories. I am very grateful to the chair of our judging panel, Kate Nash and to our panel of excellent judges who volunteered their time to read and qualify every entry.

And while choosing the top 100 has been a huge task for our judges, I hope in the coming years this task becomes harder as more powerful, influential and everyday role models are nominated for the Shaw Trust Power List of Britain's most influential disabled people.

Our work with the Power List aims to change perceptions of and normalise disability, tackle social exclusion and, as importantly, provide role models for the young and talented leaders of tomorrow. Since 1982, Shaw Trust has been supporting disabled people, creating opportunities for employment, independence and social inclusion. We have now grown to be one of the top 25 charities in the UK supporting people from all backgrounds and abilities across the country and internationally. Our purpose is to help to deliver a fairer more inclusive world, in which accessibility is the norm and not the exception. We work closely with government, employers and local authorities to challenge the status quo, opinions and crucially close the disability employment gap by creating opportunities for all.

Chris Luck Chief Executive, Shaw Trust

The Power 100 2019

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Power 100

Pages

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Arts, Fashion and Design

51

Entertainment

Inside

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Business, Finance and IT

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Media and Publishing

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Education Public and Third Sector

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Politics and Law

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Sport

103

Judges Choice

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The Top 10

Features

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Feature Caroline Casey

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Hall of Fame Alex Brooker

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In memory Mike Oliver

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Arts, Fashion and Design

Arts, Fashion and Design

The Power 100 2019

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Arts, Fashion and Design

Andrew Miller

Arts Consultant, Campaigner & Broadcaster

For 30 years Andrew Miller has been blazing a trail across arts and broadcasting. He began in children's television presenting Channel 4's Boom! in 1989, a groundbreaking series that integrated disabled children with their non-disabled peers at a time when education was largely segregated. As one of the first generation of disabled presenters on mainstream British television, Andrew became known for pushing his limits parascending and crashing hot air balloons.

Later moving behind the camera, Andrew made BAFTA nominated documentaries on leading artists such as Antony Gormley and Gerry Rafferty. He then switched careers again and established a new arts centre at the Royal Welsh College of Music and Drama in Cardiff, becoming the first wheelchair user to run a major entertainment venue.

Uniquely, Andrew is a member of the National Councils of both Arts Council England and The Arts Council of Wales. He is a trustee of Welsh National Opera and UK digital arts agency The Space, chairs the British Film Institute's Disability

Advisory Forum and is Disability Advisor to the Paul Hamlyn Foundation. Andrew is also the UK Government's first Disability Champion for Arts & Culture, establishing the role as a powerful platform to campaign for greater inclusion across the arts, museum and film sectors.

In all these roles, Andrew advocates for disabled people as artists, employees and audiences aiming to improve training and employment opportunities alongside promoting equality of experience.

Andrew says: "I want to use my influence to further democratise our national culture, to ensure it is accessible to everyone." He is currently developing a free national arts access card for disabled audiences and exploring how an Inclusive Cultural Strategy could make the UK's arts sector the most accessible in the world. In 2019 Andrew was shortlisted for Lifetime Achievement at the National Diversity Awards.

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Arts, Fashion and Design

Kat Pemberton

Activist model & vlogger

Kat is a 22-year-old disability activist, model and vlogger from Yorkshire. She began vlogging on YouTube to share, and demystify, her day-to-day life as a young woman with Spinal Muscular Atrophy type two (SMA2). Aware that many people cannot get past the wheelchair, Kat uses online platforms to educate others. She shares her interests, experience and creativity along with what her life is like as a young disabled gay woman: including very ordinary things like shopping, going to college and spending time with friends.

She says: "Something that I try to live by is `People will stare, give them something to look at!' Just as I've grown up with strangers staring or asking invasive questions. I feel strongly motivated to challenge people's perceptions, whilst having fun and embracing my individuality!"

Kat loves fashion and beauty, with a personal style she describes as: "80s Barbie and mermaid." She joined modelling agency Zebedee Management and has modelled for the BooHoo `All Girls' campaign. Kat also took part in a BBC 5 Live discussion

about how disability can be represented better in the fashion and beauty industries.

In 2017 Kat made a short, snappy film with Fixers UK about disability stereotypes and the awkward comments she is fed up of hearing, and spoke on ITV news about it.

Kat adds her disability perspective to conversations in the LGBTQ+ community (such as about physical access at Pride parades) and adds her LGBTQ+ experience to conversations about disability. Kat took part in HSBC's Portraits of Pride campaign, as one of four LGBTQ+ campaigners who had their portraits painted and displayed throughout the UK during Pride month.

Recently Kat has been appointed as Yorkshire regional champion for national disability organisation AccessAble. She promotes AccessAble's accessibility information through videos and media appearances. She has also run workshops in schools and colleges (with students and tutors) and given talks at events including the Women of the World Festival.

The Power 100 2019

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Arts, Fashion and Design

Natasha Trotman

Inclusive designer, maker, researcher

Natasha is an artist, inclusive designer, maker and researcher whose work focuses on mental difference and neurodiversity as a way to foster new conversations and new approaches to the world around us. Her work examines different ways of experiencing and processing the world - from people with hidden disabilities and neurodivergent communities such as people with dyspraxia and autism, through to people living with dementia; she also works with neurotypical people.

Natasha studied Information Experience Design (IED) at the Royal College of Art and has a Masters degree in IED, with a background in Graphic Design, Inclusive Design and Data and Systems analysis from Oxford. She is also a special educational needs/disability (SEN/D) practitioner working with children and young people with disabilities. Combining these various strands that she calls transcendence, Natasha is able to hover over her varying skill set; creating interactive, playful provocations, objects and creative dialogues which invite audiences to sense and explore the world

differently, building empathy, growing sensory repertoires and expanding sensory lexicons. She has exhibited widely, creating sensory workshops and exhibits at huge cultural institutions and organisations including The Victoria and Albert Museum, The London Design Biennale at Somerset House, the National Portrait Gallery and Tate Britain. This year Natasha has been working as a Research Associate at The Royal College of Art's Helen Hamlyn Centre for Inclusive Design as well as at The Wellcome Collection Hub on their Design and The Mind Research project. She recently co-authored a universal design and higher education in transformation (UDHEIT) paper on cocreating with neurodiverse communities.

Natasha is a Fellow of the Royal Society of the Arts and a Member of the Chartered Society of Designers and has been honoured at 10 and 11 Downing Street. Natasha is currently an artist in residence at Somerset House's Studio 48 and has been selected as a 10x10 emerging Artist by the British Council and will be featured in this year's London Design Festival.

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