Publicly Available Large Data Sets for Health Outcomes ...
[Pages:44]Publicly Available Large Data Sets for Health Outcomes Research: Pearls,
Pitfalls, Prices & More
LAKSHIKA TENNAKOON-MD, MSC, MPHIL, DTM&H RESEARCH SCIENTIST
TRAUMA, ACUTE CARE AND CRITICAL CARE SURGERY STANFORD UNIVERSITY
October, 2018
Aims
? To encourage use of public data for Research
? To characterize existing large clinical databases
Best Currently Available Databases
Databases Nationwide Inpatient Sample (NIS) Nationwide Emergency Department Sample (NEDS) Nationwide Readmissions Database (NRD) KID Inpatient Data (KID)
National Trauma Databank (NTDB) National Surgical Quality Improvement program (NSQIP)
Dates
1988- 2016 2006-2016 2010-2016 1997,2000, 2003,2006, 2009, 2012, 2016 2002-2016 2005-2016
Source
HCUP
HCUP HCUP HCUP
ACS ACS
National Ambulatory Medical Care Survey (NAMCS)
1993-2015
CDC
Databases..........
Databases
National Health and Nutrition Examination Survey (NHANES) National Hospital Ambulatory Medical Care Survey (NHAMCS) Medicare/SEER MarketScan Hospital based Registry data
Dates 1999-2015
1992-2015
1991-2015 2002-2011
Source CDC
CDC
Government Private Hospital Based
Nationwide Inpatient Sample (NIS)
? The largest publicly available all-payer inpatient care database in the United States
? Samples include all discharges from 20% stratified sample of US hospitals
? NIS data can be weighted to generate national estimates
? Years available: 1988 to 2016 ? Has 8 million hospital stays a year ? NIS_2015_CORE data file has: 7,153,989 Records
Cost & Data Load Software
? Cost of 2016 NIS : $625 ? Original Data comes as CSV or ASCII files ? Load programs are available in:
STATA SAS SPSS ? Data storage : Large databases need a server or BOX
NIS-Requirements
Citing HCUP Databases
? Citing HCUP Databases in Abstract and Manuscript: As specified in the HCUP DUAs, include the database name, HCUP, and AHRQ as demonstrated below for each HCUP database:
? HCUP Nationwide Inpatient Sample (NIS). Healthcare Cost and Utilization Project (HCUP). 2007-2009. Agency for Healthcare Research and Quality, Rockville, MD. hcupus.nisoverview.jsp
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