GetMyHealthData
[Pages:67]GetMyHealthData
Results and Lessons
InCtlhicisk Rtoepaodrdt...title
? About GetMyHealthData
? Core strategies
o Tracers o Tech o Communications o Policy
? Tracer findings
o Cultural growing pains o Outdated format & delivery o Absurd fees o Clunky usability o Bright spots
? What's next?
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June 2, 2015
Idea for GetMyHealthData is born
Data Independence Day
July 4, 2015
GetMyHealthData launches
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?
individual donors A consumer-led, national campaign to help patients request their
electronic health data and report on experiences in the real world
? Advocates for changes that enable consumer health data download
and use to become the norm
? Coordinated by the National Partnership for Women & Families
o In collaboration with health, consumer and technology groups and individual advocates and experts
? First year funded by the Robert Wood Johnson Foundation and
individual donors
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Theory of change: Consumer demand will unlock health data and change the culture of health care
Cloicrek tSotratdedgiteitsle
? Help consumers ask for their data and showcase their
experiences: #Tracers
? Guide consumers in keeping their data safe and
making it useful: #Tech
? Improve the policy environment: #Policy
? Raise awareness about how and why to get health
data: #Comms
#Tracers
Building a Movement
Click to add title Tracers (/trsrs/) noun
Individuals who want their health data in
electronic format, and work with us to
document the process of requesting and receiving it
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