Be sure that your submission is clearly identified as to ...



FRC Handbook Table of Contents Instructions

As a part of the Administration on Developmental Disabilities Family Support Planning Grant, we began work on a Family Resource Center Handbook. The following Table of Contents (TOC) was developed and we are now moving forward with the process of collecting the resources to fill out the TOC topics. If you have already provided an entry for the Draft TOC , please review it and provide any additional information that may be needed. Under each of the Chapters (the numbered topics) there are five sub-headings: Trainings, Resources, Technical Assistance, Templates, and Strategies.

Trainings: This can be 1) a training that you know about that fits the topic (include title of training, trainer’s name, contact information or 2) a training that your FRC is be able to offer to other FRCs – or that you are willing to place on the website so that other FRCs can download them (include agency name, title of training, trainer’s name, contact information). Resources: Books, articles, websites, etc that fit the topics (see #2 & 3 for more information)

Technical Assistance: Your FRC, or agency, has a person who is available to provide technical assistance to a FRC (see # 4) or you know of a source of technical assistance.

Templates: Your FRC has sample forms, documents, guidelines, etc that you can share with other FRCs. We will be able to post these so that they can be downloaded from (Please attach to response)

Strategies: This is the place to share ideas, successful strategies that you have used at your FRC.

Guidelines for Submissions

1. Be sure that your submission is clearly identified as to which section, which chapter and which category within the chapter it belongs. (i.e. Part 1, Chapter 1, Trainings or Administration, Finances & Budget, Trainings). Please see page two of this document to view the way in which the Table of Contents has been organized.

2. For written resources please provide the full title, author, ISBN (usually on the same page as the copyright), publishing date, if available. If there is an on-line link please provide the full URL (Uniform Resource Locator).

3. For websites and internet sources, please provide the full URL (Uniform Resource Locator) such as lookhere.

4. If you are suggesting a person as a technical assistance resource, please provide their name, title, agency, address, phone, fax, email, etc.

5. For templates or trainings that are to be posted on the website, please double check to be sure any documents that you are emailing have actually attached themselves to the email.

At the end of this document you will find two pages entitled FRC Handbook Submission Tables which include sample entries for each Chapter sub-heading. These have been provided in the hope that they will make it simpler for you to make submissions for the Handbook.

Please send all questions and submissions to debrasarmento@ by June 30, 2005.

FRC Handbook TABLE OF CONTENTS

Part I: Administration

|1. Finances/Budget |7.Board Development |13. Laws and Regulations |19. Choosing Hardware and Software |

|2. Bookkeeping Systems |8. Succession Planning |14. Should you be a 501(c)(3)? |20. MIS -Management Information Systems |

|3. Taxes |9. Non-Profit Guidelines |15. Developing By-Laws |21. Grant Writing |

|4. Financial Statements |10. Human Resources |16. Fund Development |22. Assessing Your Readiness to Start a FRC |

|5. Program Management |11. Benefits |17. Technology |  |

|6. Program Evaluation |12. Employee Evaluation |18. Developing Collaborative Partners |  |

Part II: Public Awareness and Outreach

|1. Image and Branding |5. Promoting your FRC |9. Website Development |16. Video Conferencing |

|2. Developing brochure/flyers |6. Developing Educational Materials |10. Public Speaking |17. Web Conferencing |

|3. Printing-Professional or with Printer |7. Video Production |11. Conference Calls |18. List servs/Sub- list servs |

|4. Knowing/Visitors your Legislators |8. Photo Release forms |12. Bulletin Boards |19. Other |

Part III: Program

|1. Parent to Parent |6. Confidentiality |11. NICU Visiting |16. Expand Capacity |

|2. Training & Workshops |7. Skill Building/Minimum Competencies-ASK |12. Resources and Information |17. Engage Collaborative Partners |

|3. Conference Planning |8. Library |13. Support Groups - Starting and Maintaining |18. Emphasize Data Gathering Importance |

|4. Documentation |9. Home Visiting |14. Essential Resource Materials for FRCS |19. Increase Awareness of FRCs in Community |

|5. Scholarships |10. Parent Liaisons |15. Evaluation of Program/Services |20. Increase Staff Compensation |

ADMINISTRATION

|TOPIC |Trainings |Resources |Technical Assistance |Templates |Strategies |

|Finances / Budget | |Surviving a Crisis” from Alliance |Paul Schultz – CFO @ PHP |Template for contracts/ in kind|Zero based budgeting – Mary Ellen-PHP |

| | |of Nonprofits – Ann FRN – Stockton| |/ multiple funding tracks. | |

| | | | |EFRC |Make sure you have knowledge or knowledgeable staff |

|Bookkeeping Systems |Training on finances, |QuickBooks for Accounting – PHP | | |Hire CPA - PP |

| |taxes, bookkeeping – SFCD| | | | |

| | |Excel | | | |

|Taxes | | |Non profit auditors – | | |

| | | |Brach/Neal/Dancy & Spence | | |

| | | |PHP | | |

|Financial Statements | | | | |Use a CPA but also find out what your funders want/need|

| | | | | |– Cindy SCPN |

| | | | | | |

| | | | | |Hired local accounting firm for audit & they give great|

| | | | | |financial advise consultation throughout the year – Ann|

| | | | | |FRN |

| | | | | | |

| | | | | |Board developed /implemented by staff – PHP Mary Ellen |

|Program Management | |The Tipping Point – ESFRN Marcia |UCEDD TA – Fran – UCEDD |Template for meeting agendas – |Partner with RCOC – In Kind: HR support, MIS support, |

| | | | |EFRC |space for library – Jacqui Kerze |

| | | | | | |

| | | | | |Follow staff work plan &agency strategic direction – |

| | | | | |PHP |

|Program Evaluation | | |UCEDD TA Support – Fran – | |Program evaluation – phone questionnaire – EFRC |

| | | |UCEDD | | |

| | | | | |Yearly employee evaluations – Marcia Moore |

| | | | | | |

| | | | | |Board Program Committee - PHP |

|Board Development | | |UCEDD TA support – UCEDD –|Board Notebook – EFRC |Continue to recruit by opening Board meetings to public|

| | | |Fran | |– Kat – RFEBC |

| | | | | | |

| | | |PACER Center | |Have trainer on Board Development at annual meeting |

| | | | | | |

| | | |Compass Point non-profit | | |

| | | |management center | | |

|Succession Planning | | | | |Keep in mind who is ‘on the bench’ for all positions in|

| | | | | |the agency – Kat RFECNC |

| | | | | | |

| | | | | |‘Shadow’ mentoring for positions – EFRC |

| | | | | | |

| | | | | |Board chair, CEO and Director – PHP |

|Non Profit Guidelines | | | |Board policy Guidelines – Staff|Joined non profit coalition – Ann FRN |

| | | | |Handbook – PHP | |

| | | | | |Co-ops – Fran UCEDD |

| | | | | | |

| | | | | |Provide Board training with a trainer – Cindy SCPN |

|Human Resource | | | |Time sheets – leave |Designated staff to deal with personnel issues at work |

| | | | |policies-personnel guidelines –|– PHP |

| | | | |Kate FRN | |

| | | | | |Develop agency policies – use examples of other family |

| | | | |Employee Handbook – Jacqui |oriented non-profits Kat – RFECNE |

| | | | |Kerze | |

| | | | | |Contact EDD or local university for employment law |

| | | | |Have volunteer manual but needs|guidelines – Cindy Kozlawski |

| | | | |to be simplified – Parents |FRCs that have a full time HR person do trainings or |

| | | | |Place |consult with smaller FRCs |

| | | | | | |

| | | | | |Use HR dept of parent agency |

|Benefits | |Exhaustive list of potential |Specific Health, vacation | | |

| | |benefits – EFRC |and 401K benefits – PHP | | |

| | | |Paul, Helen | | |

|Employee Evaluation | | |Best Practices Guidelines |Employee evaluation – written | |

| | | |– Linda Brault |process –EFRC | |

| | | | | | |

| | | | |Sample Employee evaluations – | |

| | | | |ASK aligned | |

|Laws and Regulations |Attend SLI Conference- M |Marty Omoto’s website – Ann |PAI trainings & | |Consult websites on IDEA, parent’s rights, etc |

| |Rosenberg workshops – | |consultants – Kat RFENC | | |

| |Cindy SCPN |Website link | | |Visit the Capitol on legislative days |

| | | | | | |

| |PAI trainings & | | | |Legislative action / input with PAI |

| |consultants – Kat RFENC | | | | |

| | | | | |Visit legislators |

| |Attend trainings offered | | | | |

| |through SELPAs | | | |Protocol for legislative review / action |

|Should you be a 501 (c | |Pros / cons listing of yes/no EFRC| | | |

|) (3)? | | | | | |

|Developing Bylaws | | |Non profit Resource Center|Board bylaws – Parent’s Place |Talk to non-profit boards about examples of bylaws – |

| | | |has samples | |Kat RFENC |

| | | | |Non profit Resource Center has |Study the bylaws of organizations you want to be like. |

| | | | |samples | |

|Fund Development | |Junior Aid | |Template / Fund Development |Develop strategic plan with goals so you can seek |

| | |Ronald McDonald House | |continuum – EFRC |funding accordingly – Kat |

| | |March of Dimes | | |Made master list of local possibilities and continually|

| | | | | |add it to ASK – Toni Heart to Hand |

| | |United Way agency - SCPN | | |Watch newspaper for grant funding opportunities |

| | |Prop 10 - SCPN | | | |

| | |Safe and Stable Families – SCPN | | |Sublet space and make a good deal for FRC – Cindy SCPN |

| | |CAIT / CBFRS – Cindy SCPN | | | |

|Technology | | |Wally Rubio – ESFRN | |Library |

| | | | | |Touch screens, internet for consumers to use – |

| | | | | |Partnership with TASK & house specialist – Juanita |

|Developing | | |Co-op TA – Fran UCEDD | | |

|Collaborative Partners | | | | | |

| | | | | |Interagency Committee – 0-3 ES leaders from RC, LEA and|

| | | | | |ESFRN meet monthly to collaborate – Linda ESFRN |

| | | | | |CA Newborn Hearing Screening Program – Linda ESFRN |

| | | | | |Local ICC meetings monthly – core group, others always |

| | | | | |invited and welcome to attend – Toni Heart to Hand |

| | | | | |Attend local SELPA meetings & superintendents meetings |

| | | | | |– open to public – Kat |

|Choosing Hardware and | | | | |Talk to other FRCs, FECs, PTIs, etc Kat – RFENC |

|Software | | | | | |

|MIS | | | |Customized client data base | |

|Grant writing |Local community colleges | |Jan Watson – trainer / |Grant template – Sona Parent’s | |

| |or adult ed have ½ day | |grant writing – SFCD |Place | |

| |workshops – Ann RFN | | | | |

| | | |Trudy Holmes – Chief | | |

| | | |Developmental Officer – | | |

| | | |PHP | | |

| | | | | | |

| | | |UCEDD TA support – UCEDD | | |

|Assessing your | | | |Self assessment tools for |Contact parents/directors at existing FRC – ask them |

|readiness to start a | | | |program readiness |how they started – Cindy SCPN |

|FRC | | | | | |

PUBLIC AWARENESS AND OUTREACH

|TOPIC |Trainings |Resources |Technical Assistance |Templates |Strategies |

|Image & Branding | | | | |Hire a logo designer (thru web designer) Had staff input to |

| | | | | |select from samples – Kat |

| | | | | | |

| | | | | |Put call out to parents who are professional graphic designer|

| | | | | |to volunteer |

| | | | | | |

| | | | | |Staff member who develops a consistent branding across |

| | | | | |components – EFRC |

| | | | | | |

| | | | | |Use advertising agency |

| | | | | | |

| | | | | |Had printer put logo in format so can now put on all |

| | | | | |documents using computer – no more cut & paste! Ann FRN |

|Developing brochures | | | | |Focus groups of target parents to make sure info provided is|

|and flyers | | | | |relevant& provided in a relevant manner – Lisa CCS |

| | | | | | |

| | | | | |Use Macintosh photo shop illustrator / other graphic programs|

| | | | | | |

| | | | | |Get or find someone with Adobe Acrobat that translates |

| | | | | |Publisher docs into easy-to-email docs in pdf – Lisa CCS |

|Printing- | |Microsoft Publisher | |Giveaway calendars – |Find service club or small grant to fund printing |

|Professional/Own | | | |Juanita | |

|Printer | | | | |Used local publishing company and our own printer for flyers |

| | | | | |– Wendy RFENC |

| | | | | | |

| | | | | |Shop around for bids – who does your LEA use? They are |

| | | | | |thrifty folks – SCPN |

| | | | | | |

| | | | | |Went to Office Max and got a great deal – significantly less |

| | | | | |than other quotes – FRN |

|Knowing and visiting | | | | |We work with legislators – they have visited – build |

|your legislators | | | | |relationships – Ps Place Nancy |

| | | | | | |

| | | | | |Strong connections with other ‘advocates’ could list – Kate |

| | | | | | |

| | | | | |Visits 2x per year or more – Alpha – Patty |

| | | | | | |

| | | | | |Appoint legislative staff with ongoing trainings from that |

| | | | | |staff member |

| | | | | |“Google” legislators websites |

| | | | | | |

| | | | | |Put list of local legislators on parent board @ center – Kat |

| | | | | | |

| | | | | |Went to open house at local legislators. |

| | | | | |(announced in paper) US Congress person has called to learn |

| | | | | |about local resources – Ann FRN |

|Promoting your FRC | | | |Developing case studies of|Have yearly open house – CKFRC |

| | | | |families in writing – |Display tables at workshops – ESFRN |

| | | | |Nicole ELFRC |Presentation at local elementary school staff meetings – FFRC|

| | | | | |– Cindy |

| | | | | |Serve on 500 committees – Laurie |

| | | | | |Presentation to school district nursing staffs – Cindy FFRC |

| | | | | |Links on other organizations website to drive traffic and |

| | | | | |increase awareness |

| | | | | |City’s website – Cindy FFRC |

| | | | | |Radio broadcasts – Hispanic network – FFRC |

| | | | | |PSAs to local newspapers – ESFRN |

| | | | | |Look for local early childhood newspaper, etc – Kat RFENC |

| | | | | |Local service groups (Lions, Elks, Kiwanis) are always |

| | | | | |looking for speakers and sometimes they make a donation! Ann|

| | | | | |– FRN |

| | | | | |Contact different agencies – CCS, First 5, Head Start, |

| | | | | |Private therapists, Foster care community, SELPA, RC, Child |

| | | | | |care councils, Mail, newsletter – |

|Developing Educational| |Transition at 3, Autism Powerpack,|UCEDD TA support – FRAN | | |

|Materials | |Child Care Resources – Jacqui – |UCEDD | | |

| | |CCRF | | | |

| | | |PTI can help with | | |

| | |Special Quest, Early HS (Hilton |resources (thanks, PHP!!) | | |

| | |Foundation materials) Kat |Ann – FRN | | |

| | | | | | |

| | |Lisa’s stuff | | | |

|Video Production | | |Video / CD production | |Made a video of what we can do – plays on local cable – Nancy|

| | | |know how - Fran – UCEDD | |Parent’s Place |

| | | | | |All presentations at RCOC in CCFRC library – Jacqui CCFRC |

| | | | | | |

| | | | | |ES commercial at all ped / ob gyn offices as well as at TV |

| | | | | |stations – LaShonna – FFRC |

|Photo Release forms | | | |Sample Forms – Fran UCEDD |Looked at others in community and then created our own – |

| | | | | |Wendy RFENC |

| | | | |Support for Families, |Request photo release along with other releases – Cindy SCPN |

| | | | |Alpha Resource Center | |

| | | | |Have developed forms- | |

| | | | |ELAFRC | |

| | | | |Have release form – Sona | |

| | | | |Parent’s Place | |

|Website Development | | | | |Family Support link on RCOC website – Jacqui – CCFRC |

| | | | | |Find someone who is a ‘natural IT’ and keeps it updated often|

| | | | | |– Cindy SCPN |

| | | | | |For RC people go through RC IT department – Jacqui – CCFRC |

|Public Speaking |Speaker’s training – UCEDD| | | |Write into grant – Juno SFCD |

| |Fran | | | |Schedule presentations at local early childhood providers – |

| | | | | |i.e. EHS, Parent groups |

| |Toastmasters | | | | |

| | | | | | |

| |Local community college | | | | |

| |and Adult Ed have great | | | | |

| |workshops – Ann FRN | | | | |

|Conference calls | |Free teleconferencing services via| |Conference calling | |

| | |a company on the website – cost is| |etiquette – Linda | |

| | |the caller’s long distance rate – | | | |

| | |Lisa CCS | | | |

|Bulletin Boards | | | | |Email PSAs to community bulletin boards on cable TV Linda |

| | | | | |ESFRN |

| | | | | |Do bulletin board at local agencies such as CCS, hospitals. |

| | | | | |Have current events, flyers and brochures available – Wendy |

| | | | | |RFENC |

| | | | | |Post FRC info at school site – Cindy FFRC |

|Video Conferencing | | |PAI – LJL | |Use RC video equipment – EFRC |

| | | | | | |

| | | |Video / teleconferencing | |Collaborate with agencies that have these capabilities |

| | | |support – Fran UCEDD | | |

|Web Conferencing | | |PAI – Linda | | |

|List serves – Sub list| |FV of CA | |List serve / Email | |

|serves | |Autism list serve Ann FRN | |etiquette Lisa CCS | |

| | |Marty Omoto’s list serve – Ann FRN| | | |

| | |SibShop-sibling support site Ann | | | |

| | |FRN | | | |

PROGRAM

|TOPIC |Trainings |Resources |Technical Assistance |Templates |Strategies |

|Parent to Parent |Parent Steps – Linda & |P2P curriculum by module Torok | |MTU / P 2 P process – EFRC|Parent activities that promote informal parent to parent |

| |Fran |EFRC | | |Cindy SCPN |

| | | | |P 2 P confidentiality | |

| |Parent mentor training | | |agreement – code of ethics|IFSP / IEP clinics – Cindy FFRC |

| |manual or Nutshell series| | |– Ann FRN | |

| |2 and 8 hours Mary Ellen | | | |P 2 P phone tree support – have parents sign up and refer new|

| |PHP | | | |parents to them – Wendy RFENC |

| | | | | | |

| | | | | |Focus Groups |

| | | | | |Parent Connection program managed by UCP / OC & CCFRC funded |

| | | | | |by RCOC – Jacqui – CCFRC |

|Training & Workshops |Grand Rounds curriculum | | |Sample workshop evaluation|Hire training coordinator |

| |EFRC | | |forms |Connecting to culturally specific entities to partner – |

| | | | |Sample participant sign in|Harambee, Congresso, etc |

| |Moving on at 3, Welcome | | |sheets to add needed info | |

| |orientation – Jacqui – | | |to data base – Kat |Collaborative trainings with CAC, migrant ed, state |

| |CCFRC | | | |preschool, infant program – Cindy SCPN |

| |IEP Curriculum –EFRC | | |FRC Staff training manual | |

| | | | |– Juanita |Training to pics Kat |

| |Wide variety of trainings| | | |Outreach in Spanish – Kat |

| |- Fran UCEDD | | | | |

| | | | | |Work with TASK and PAI |

| |Nutshell series on lots | | | | |

| |of PHP programs – Mary | | | | |

| |Ellen – PHP | | | | |

| | | | | | |

| |Area Board, financial | | | | |

| |planners and others to do| | | | |

| |joint workshops . Get | | | | |

| |multiple perspectives – | | | | |

| |Ann FRN | | | | |

| | | | | | |

| |P & I Training – IEP / | | | | |

| |IPP | | | | |

| |Medical Rights – UCEDD | | | | |

| | | | | | |

| |Evaluations & Surveys | | | | |

| |Transition planning (self| | | | |

| |developed) Kat | | | | |

| | | | | | |

| |IFSP, IEP, Natural | | | | |

| |supports, Right Question,| | | | |

| |Get Organized – SFCD | | | | |

| |trainings | | | | |

|Conference Planning | | |Prudy Stevens EFRC |Planning checklist EFRC |Utilize expertise of staff and families – Kat |

| | | | | | |

| | | |Conference planning team –| |Annual early Start Conference – collaborate with RC, vendors,|

| | | |Fran UCEDD | |FRCN, parents, SELPA Ann FRN |

|Documentation |Parent Portfolio Notebook| |Employee Handbook – Paul |Employee Handbook |Virtual Chart – time documented contact – no contact or |

| |training – Fran UCEDD | |Schultz – Mary Ellen – PHP|Accounting Manual – Sona –|details Jacqui – CCFRC |

| | | | |PP | |

| | | | |Contact Log – EFRC |Work with grant evaluations to make sure documentation |

| | | | | |fulfills outcome requirements Cindy SCPN |

| | | | |EFRC Organization Manual –| |

| | | | |Torok EFRC | |

| | | | | | |

| | | | |Office policies and | |

| | | | |procedures – use of | |

| | | | |equipment, use of | |

| | | | |facilities, family | |

| | | | |support, publications, | |

| | | | |library use, AT lab use. | |

| | | | |Juanita | |

|Scholarships | |DD Council Koch Young | | |Local contract for parent training with RC – Kat |

| | |Regional Center Foundation – EFRC | | | |

| | | | | |$500 scholarships for adult consumers to attend self advocacy|

| | |Parent Leadership $ (FEC) | | |conference Juanita |

| | |West Ed / CEPI | | | |

| | |Trainings free to parents | | |Provide $100 per year scholarships for parent to attend a |

| | | | | |conference Marcia - ESFRN |

| | |FEC $ for underserved populations | | | |

| | |in our area (Jane) Mary Ellen PHP| | | |

|Confidentiality | | | |Have Confidentiality |If you provide counseling or exchange medical info have HIPPA|

| | | | |Statement / forms (or |forms available online – Cindy SCPN |

| | | | |samples) for | |

| | | | |staff/volunteers to sign | |

| | | | |(EFRC, Juanita, Mary | |

| | | | |Ellen, Koch Young, Alpha | |

| | | | |FRC, Fran UCEDD) | |

| | | | | | |

| | | | |Samples of consent forms | |

| | | | |and letters of referral | |

| | | | |used county-wide Kate FRN| |

| | | | | | |

| | | | |Developed Code of Ethics | |

| | | | |and Confidentiality | |

| | | | |agreement and workshops on| |

| | | | |confidentiality Ann FRN | |

|Skill Building / |Mentor Parent training – |RIPIN in Rhode Island is the |TA Support Fran UCEDD |Certificate of Training |On going process – don’t ever think you are done Laurie |

|Minimum Competencies – |Kat, EFRC |employment agency for informed | |Sherry EFRC |Rainbow |

|ASK | |“office-competent” parent | | | |

| |Parent Stepps Fran UCEDD|consultants Lisa CCS | |Skill building tool for | |

| | | | |career advancement – EFRC | |

|Library | |“Beginnings Guides” “Pregnancy | |Must have list of books |Bibliography of books online – EFRC, PHP |

| | |Guides” developmental guides in 3 | |available and have | |

| | |month increments ordered out of WA| |checkout system – Wendy |Computer link with public library – both ways – EFRC |

| | |Toni – Heart to Hand | |RFENC | |

| | | | | |Toy / software / books and video library Sona – Parent’s |

| | | | |OCR organization program –|Place |

| | | | |Juanita | |

| | | | | |Parent resource library with 4000 items, 9 computers with |

| | | | | |internet access, touch screens, wheelchair accessible tables |

| | | | | |ESFRN |

| | | | | | |

| | | | | |Library patron application / library cards on specialized |

| | | | | |system – Juanita |

| | | | | | |

| | | | | |Parents, vendors, professionals donate books they no longer |

| | | | | |need or have duplicates of Ann FRN |

| | | | | | |

| | | | | |Order every free resource that is available – Ann FRN |

| | | | | | |

| | | | | |8000 resources cataloged in Library of Congress, 3 languages,|

| | | | | |OPRC librarian consultant – Juanita |

|Home visiting | | | | |Home visit with early start county office – Wendy RFENC |

| | | | | | |

| | | | | |PHP visiting with First 5 partners Chelo Lund PHP |

| | | | | | |

| | | | | |Home visit with health dept – especially if you have |

| | | | | |bilingual resources – Cindy SCPN |

| | | | | | |

| | | | | |Santa Barbara Co Welcome Every Baby at home visits – Patty |

| | | | | |Alpha |

| | | | | | |

| | | | | |Parent reps home visit with ES teachers – ESFRN |

|Parent Liaisons | |Family Voices PHL notebook EFRC | |Hospital / community | |

| | | | |liaisons – Nancy PHP | |

| | |FV of CA Health Care Connections –| | | |

| | |SFCD | |13 parent reps located | |

| | | | |throughout 2 counties at | |

| | | | |LEAs and infant programs –| |

| | | | |Linda ESFRN | |

|NICU Visiting |Welcome Baby NICU cards, | | |MOUs with hospitals – EFRC|Project ‘We can Help’ medical outreach – LaShonna FFRC |

| |1 month birthday – Laurie| | | | |

| |Rainbow | | |Spina bifida clinic based |Have meeting area near babies so parent feels comfortable |

| | | | |parent program – Fran |leaving baby for a bit – Ann FRN |

| |Sibling coloring book – | | |UCEDD | |

| |Debbie S | | | | |

| | | | |Touchstone hospital | |

| | | | |visiting – Carmen & Leslie| |

| | | | |@ PHP | |

|Resources and | |PACER – Minnesota parent training |Web Director – John Logan |Resource Directory Welcome|Unitary File – EFRC |

|information | |info – Kat |@ PHP |Packet – Kate FRN | |

| | | | | |‘Traveling’ Resource Kit and laptop with wireless access – |

| | | | |Packets for families and |EFRC |

| | | | |professionals – topic | |

| | | | |specific – EFRC | |

| | | | | | |

| | | | |Website, guide and info | |

| | | | |packets – SFCD | |

|Support Groups – | |In a Nutshell series on |28 support groups, |spina bifida – Fran – |Westside – Liz |

|starting & maintaining | |facilitating support groups – Ann |language & disability |UCEDD |Collaborate with local NAMI – Liz |

| | |– FRN |specific Denny DeHare @ |Asperger syndrome – |Mail out flyers to parents and professionals, offer food & |

| | | |PHP |parents of children with |childcare Wendy RFENC |

| | | | |emotional & psychiatric |Reminder calls the day before Wendy RFENC |

| | | | |disabilities Fran UCEDD |Email reminders to families – Linda ESFRN |

| | | | | | |

| | | | |Could provide speakers, | |

| | | | |models of successful | |

| | | | |support groups for | |

| | | | |fathers, Spanish speaking,| |

| | | | |etc Kate FRN | |

|Essential resource | |PDR Drug interaction manual – EFRC|TA Support Fran – UCEDD | | |

|materials for FRCs | | | | | |

| | |Early Start Resources – West Ed | | | |

| | |LJL | | | |

| | | | | | |

| | |Early Intervention Dictionary Ann| | | |

| | |FRN | | | |

| | | | | | |

| | |Exceptional Parent Resource Guide | | | |

| | | | | | |

| | |Physician’s Guide to Rare | | | |

| | |Disorders Ann FRN | | | |

| | | | | | |

| | |NICHY – LJL Koch Young | | | |

| | |NORD – LJL Koch Young | | | |

| | |Family Village - Laurie Rainbow | | | |

|Evaluation of program /| | | |Program satisfaction |Surveys sent out in newsletter every January – Linda ESFRN |

|services | | | |surveys – Patty – Alpha | |

| | | | | | |

| | | | |Needs Assessments Ann - | |

| | | | |FRN | |

STRATEGIES TO:

|TOPIC |Trainings |Resources |Technical Assistance |Templates |Strategies |

|Expand Capacity | |Family Voices Leadership Handbook |UCEDD TA Fran |MOUs with other agencies |Respond quickly to new community needs – give parents |

| | |Family Voices PHL Guide | | |programs they want / need – Cindy SCPN |

| | | | | | |

| | | | | |Recruit parents who have lost a child, the Trisomy 18 Support|

| | | | | |Group says 20% will say yes – Lisa CCS |

| | | | | | |

| | | | | |Develop partnership with sister agencies then MOUs – Juanita |

| | | | | | |

| | | | | |Parent Leadership – train parents to present to and serve on |

| | | | | |decision making committees |

|Engage Collaborative | |Do you hear what I hear” Parents | | |Co-sponsoring conferences with SELPAs or other agencies |

|Partners | |and Professionals working together| | |Westside |

| | |– Ann FRN | | | |

| | | | | |Attend monthly meeting of SELPA low incidence program – Cindy|

| | | | | |FF |

| | | | | | |

| | | | | |Fresno Early Start Coalition meets monthly, with general |

| | | | | |meeting every other month with a local speaker to present new|

| | | | | |programs |

| | | | | |Look outside our ‘special’ circle – gym , church – Laurie, |

| | | | | |Rainbow |

| | | | | | |

| | | | | |Advisory committees – Kat |

| | | | | | |

| | | | | |“Offer training with LEA< SELPA, RC, vendors- Ann FRN |

| | | | | | |

| | | | | |Develop recognition in community for core competency / |

| | | | | |identify collaborative partners – Mary Ellen PHP |

| | | | | | |

| | | | | |Interagency committee monthly meetings, quarterly workshops, |

| | | | | |on committees Linda ESFRN |

| | | | | | |

| | | | | |Attend other agencies meetings- get contact person’s name & |

| | | | | |email – keep in touch at least monthly – Wendy RFENC |

| | | | | | |

| | | | | |Serve on their boards, committees, strategic plannings, |

| | | | | |advisory committees, etc – Cindy SCPN |

| | | | | | |

| | | | | |Weekly meetings of RC, SELPAs – Ann FRN |

|Emphasize Data | |Ongoing training on what data is |Tech Soup, on line IT / |Family Voices templates / |Run reports to show staffs their numbers. This helps make |

|Gathering Importance | |used for – Westside |Data support Kate |training for data |data more meaningful. |

| | | | |collection Kate |Staff discussions on trends that families are experiencing |

| | |Family Voices Solutions | | |Intake clipboard – each family that comes in when information|

| | | | |First 5 data collection |is captured at the time |

| | | | |system – patty Alpha | |

| | | | | |Show, share customized database, client demographics – Kate |

| | | | | |Offer incentives – time off / treats / etc |

| | | | | | |

| | | | | |Back up all computers at least weekly – Ann FRN |

| | | | | |Data collected internally monthly & reports run for CEO & |

| | | | | |Board in specific areas / programs Mary Ellen PHP |

| | | | | |Allow 30 minutes of staff time per day for documentation – |

| | | | | |Have forms that parent reps fill out and turn on monthly with|

| | | | | |data that is entered into computer – Linda ESFRN |

| | | | | | |

| | | | | |LA Co Collaborative effort to raise funds to create a |

| | | | | |______________system – Juanita |

|Increase awareness of | |Lists of sample local and state | | |newspapers English & Spanish – Westside |

|FRCs in community | |planning bodies on which FRCs | | |Outreach to local mom’s clubs & MOT clubs – Cindy SCPN |

| | |might participate – Kate FRN | | |Outreach and training sessions to local ES providers 3 x per |

| | | | | |year – Juanita |

| | | | | |PSAs on cable channel through community bulletin board – |

| | | | | |Linda ESFRN |

| | | | | |Set up booths at community events – Cindy SCPN , Wendy RFENC |

| | | | | |Form lots of partnerships to increase $$ plus visibility – |

| | | | | |Mary Ellen PHP |

| | | | | |Info fair |

| | | | | |Program to visit hospitals – NICUs – PP |

| | | | | | |

| | | | | |Folders with ES and ESFRN information to NICUs, childcare, |

| | | | | |doctors, ESFRN |

| | | | | |Recruit key folks in your community to your Board – Cindy |

| | | | | |SCPN |

| | | | | |On First 5 and ECE committee – Marcia ESFRN |

| | | | | |First 5 Commission member – Patty Alpha |

|Increase staff | | | |Examples of non-cash |Write for grants to subsidize $ for benefits. Place staff on|

|compensation | | | |compensation via |fiscal agency staff Westside |

| | | | |family-friendly workplace | |

| | | | |– Kate |Compensation tied to yearly evaluation – not always $ Mary |

| | | | | |Ellen – PHP |

| | | | | | |

| | | | | |Liberal work / vacation schedule / time off for school breaks|

| | | | | |– Cindy SCPN |

| | | | | | |

| | | | | |Remain flexible to the needs of staff (parents of children |

| | | | | |with special needs) Kat |

| | | | | | |

| | | | | |MOUs with other agencies |

| | | | | | |

| | | | | |Contract with hearing coordination center 10 hours per week –|

| | | | | |Linda ESFRN |

| | | | | | |

| | | | | |With each grant salaries go at a higher rate than basic |

| | | | | |Laurie – Rainbow |

| | | | | | |

| | | | | |Job share with other agencies EFRC |

| | | | | | |

| | | | | |Flexible work hours – work around child’s schedule – Ann FRN |

FRC Handbook Submission Tables

Please use the following tables to submit FRC Handbook Resources. A sample entry has been provided in each table. You may add additional rows to any of the tables by placing your cursor in a row, left click on Table, left click on Insert and left click on Rows Above or Rows Below or by placing your cursor in the furthest cell to the right and hitting the Tab key . You may return the tables via email to debrasarmento@ or via fax to 916-962-0493 by June 30, 2005.

TRAINING:

|Part |Chapter |Training Name |Trainer’s Name |Trainer’s Address |Trainer’s Phone & Fax |Trainer’s Email |

| | | |& Agency | | | |

|3 (Program) |13 (Support |“Starting a Hospital-Based |Mary Smith |123 Main Street |800-123-4567 |mary@ |

| |Groups) |Support Group” |NICU FRC |City, Zip |800-123-4568 fax | |

| | | | | | | |

| | | | | | | |

| | | | | | | |

WRITTEN RESOURCE:

|Part |Chapter |Book / Article Title |ISBN |Publisher / Magazine |Author |Web link, if applicable |

|3 (Program) |13 (Support |The Parent to Parent Handbook – |1-55766-497-8 |Paul Brookes |Betsy Santelli, Florene Poyadue,| |

| |Groups) |Connecting Families of Children | |2001 |Jane Leora Young | |

| | |with Special Needs | | | | |

| | | | | | | |

| | | | | | | |

| | | | | | | |

WEBSITE:

|Part |Chapter |Web Address (URL) |

|3 (Program) |13 (Support Groups) |starting/hospital |

| | | |

| | | |

TECHNICAL ASSISTANCE:

|Part |Chapter |Name of person who can provide |Title & Agency |Address |Phone & fax |Email |

| | |technical assistance | | | | |

|3 (Program) |13 (Support |Mary Smith |Support Group Coordinator, NICU |123 Main Street |800-123-4567 |mary@ |

| |Groups) | |FRC |City, Zip |800-123-4568 fax | |

| | | | | | | |

| | | | | | | |

| | | | | | | |

| | | | | | | |

TEMPLATE:

|Part |Chapter |Template Name |Contact Name & Agency |Contact Address |Contact Phone |Contact Phone |

|3 (Program) |13 (Support |Support Group Agenda |Mary Smith |123 Main Street |800-123-4567 |mary@ |

| |Groups) | |NICU FRC |City, Zip |800-123-4568 fax | |

| | | | | | | |

| | | | | | | |

| | | | | | | |

| | | | | | | |

STRATEGY:

|Part |Chapter |Strategy / Idea |Name |Address |Phone |Email |

|3 (Program) |13 (Support |Meet with NICU staff once a |Mary Smith |123 Main Street |800-123-4567 |mary@ |

| |Groups) |quarter to encourage referrals|NICU FRC |City, Zip | | |

| | |to support group | | |800-123-4568 fax | |

| | | | | | | |

| | | | | | | |

| | | | | | | |

| | | | | | | |

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