Genomics and Health Information Technology Systems ...

National Human Genome Research Institute

National Institutes of Health

U.S. Department of Health and Human Services

Genomics and Health Information Technology Systems: Exploring the Issues

April 27-28, 2011

Bethesda North Marriott Hotel & Conference Center

Bethesda, Maryland

PARTICIPANT LIST

Goncalo Abecasis, D.Phil.

Felix Moore Collegiate Professor of Biostatistics

Center for Statistical Genetics

University of Michigan

Aneel Advani, M.D., M.P.H.

Associated Director for Informatics

Office of Information Technology

Indian Health Service

U.S. Department of Health and Human

Services

Joanne Armstrong, M.D., M.P.H.

Head, Women¡¯s Health

Aetna Inc.

Jonathan S. Berg, M.D., Ph.D.

Assistant Professor

Department of Genetics

Division of Hematology/Oncology

Department of Medicine

School of Medicine

The University of North Carolina at Chapel Hill

Leslie Biesecker, M.D.

Chief

Genetic Disease Research Branch

National Human Genome Research Institute

National Institutes of Health

Vence L. Bonham, J.D.

Associate Investigator

Social and Behavioral Research Branch

National Human Genome Research Institute

National Institutes of Health

Joy Boyer

Senior Program Analyst

Ethical, Legal, and Social Implications

Research Program

Human Genome Project

National Human Genome Research Institute

National Institutes of Health

Lawrence Brody, Ph.D.

Senior Investigator and Chief

Genome Technology Branch

Chief Scientific Officer

Center for Inherited Disease Research

National Human Genome Research Institute

National Institutes of Health

Steven Holloway Brown, M.D., M.S.

Director, Health and Medical Informatics

Veterans Health Administration

U.S. Department of Veterans Affairs

Kenneth H. Buetow, Ph.D.

Associate Director of Biomedical Informatics

and Director

Center for Biomedical Informatics and

Information Technology

National Cancer Institute

National Institutes of Health

Ellen Wright Clayton, J.D., M.D.

Craig-Weaver Chair of Pediatrics

Director

Center for Biomedical Ethics and Society

Professor of Pediatrics

School of Medicine

Professor of Law

Vanderbilt Law School

Vanderbilt University

Marilyn J. Bull, M.D.

Morris Green Professor of Pediatrics

Medical Co-Director

Automotive Safety Program

Pediatric Consultant

Cleft Palate Clinic and Craniofacial Anomalies

Team

Medical Co-Director

Ann Whitehill Down Syndrome Clinic

Indiana University School of Medicine and

James Whitcomb Riley Hospital for Children

Indiana University Health

Indiana University

William Gilmore Coleman, Jr., Ph.D., M.S.

Scientific Director

Intramural Research Program

National Institute on Minority Health and Health

Disparities

National Institutes of Health

Doug Campos-Outcalt, M.D., M.P.A.

Clinical Sciences Analyst

Scientific Activities Division

American Academy of Family Physicians

David P. Dimmock, M.D., M.S.

Assistant Professor

Medical College of Wisconsin and Children's

Hospital of Wisconsin

Genetics Center

Alexis Carter, M.D.

Director of Pathology Informatics

Department of Pathology and Laboratory

Medicine

School of Medicine

Emory University

Corina Din-Lovinescu

National Human Genome Research Institute

National Institutes of Health

Hemin R. Chin, Ph.D.

Associate Director for Ophthalmic Genetics

National Eye Institute

National Institutes of Health

Gregory Downing, D.O., Ph.D.

Executive Director for Innovation

Immediate Office of the Secretary

U.S. Department of Health and Human

Services

Rex L. Chisholm, Ph.D.

Adam and Richard T. Lind Professor of Medical

Genetics

Vice Dean for Scientific Affairs and Graduate

Studies

Feinberg School of Medicine

Northwestern University

Greg Feero, M.D., Ph.D.

Special Advisor to the Director

Office of the Director

National Human Genome Research Institute

National Institutes of Health

Suzanne Feetham, Ph.D., R.N.

American Academy of Nursing

Christopher G. Chute, Dr.P.H., M.D.

Professor of Biomedical Informatics

Division of Biomedical Statistics and Informatics

Department of Health Sciences Research

Mayo Clinic

Charles P. Friedman, Ph.D.

Chief Scientific Officer

Office of the National Coordinator for Health

Information Technology

U.S. Department of Health and Human

Services

James J. Cimino, M.D.

Chief

Laboratory for Informatics Development

Clinical Center

National Institutes of Health

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Heather Halvorson, M.D., M.P.H.

Director

Patient-Centered Precision Care Program

Office of the Air Force Surgeon General

Barbara Fuller, J.D.

Office of Ethics

Office of the Director

National Human Genome Research Institute

National Institutes of Health

Emily Harris, Ph.D., M.P.H.

Chief, Translational Genomic Research Branch

Division of Extramural Research

National Institute of Dental and Craniofacial

Research

National Institutes of Health

Cita M. Furlani, M.S.

Director

Information Technology Laboratory

National Institute of Standards and Technology

U.S. Department of Commerce

Lucia Hindorff, Ph.D., M.P.H.

Epidemiologist

National Human Genome Research Institute

National Institutes of Health

Maria Y. Giovanni, Ph.D.

Assistant Director for Microbial Genomics

National Institute of Allergy and Infectious

Diseases

National Institutes of Health

Mark Hoffman, Ph.D.

Vice President, Research Solutions

Cerner Corporation

Peter Good, Ph.D.

Program Director

Division of Extramural Research

National Human Genome Research Institute

National Institutes of Health

Kevin Hughes, M.D.

Co-Director

Avon Foundation Comprehensive Breast

Evaluation Center

Medical Director

Bermuda Cancer Genetics and Risk

Assessment Clinic

Cancer Center

Massachusetts General Hospital

Associate Professor of Surgery

Harvard Medical School

Harvard University

Gail L. Graham

Deputy Chief Health Information Officer

Veterans Health Administration

U.S. Department of Veterans Affairs

Eric D. Green, M.D., Ph.D.

Director

National Human Genome Research Institute

National Institutes of Health

Betsy L. Humphreys, M.L.S.

Deputy Director

National Library of Medicine

National Institutes of Health

Alan E. Guttmacher, M.D.

Director

Eunice Kennedy Shriver National Institute of

Child Health and Human Development

National Institutes of Health

Lin Gyi

Program Analyst

National Human Genome Research Institute

National Institutes of Health

Jean F. Jenkins, Ph.D., R.N., M.S.

Senior Clinical Advisor

Genomic Healthcare Branch

National Human Genome Research Institute

National Institutes of Health

Hakon Hakonarson, M.D., Ph.D.

Associate Professor of Pediatrics and Director

Center for Applied Genomics

The Children's Hospital of Philadelphia

Scott Kahn, Ph.D.

Vice President and Chief Information Officer,

Bioinformatics

Illumina, Inc.

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Debra G.B. Leonard, M.D., Ph.D.

Professor of Pathology and Laboratory

Medicine

Vice Chair for Laboratory Medicine

Director of Clinical Laboratories

Director, Pathology Residency Training

New York-Presbyterian Hospital

Weill Cornell Medical Center

Weill Cornell Medical College

Robert W. Karp, Ph.D.

Program Director

Genetics and Genomics Research Program

Division of Digestive Diseases and Nutrition

National Institute of Diabetes and Digestive and

Kidney Diseases

National Institutes of Health

Richard C. Kellner

General Manager, Advanced Diagnostic

Technologies

Pathology-Genomic Medicine Group

Beth Israel Deaconess Medical Center and

Harvard Medical School

Rongling Li, M.D., Ph.D.

Epidemiologist

National Human Genome Research Institute

National Institutes of Health

Kevin D. Mandl, M.D., M.P.H.

Associate Professor

Harvard Medical School

Children¡¯s Hospital Boston

Susan Koester, Ph.D.

Deputy Director

Division of Neuroscience and Basic Behavioral

Science

National Institute of Mental Health

National Institutes of Health

Teri Manolio, M.D., Ph.D.

Director

Office of Population Genomics

Senior Advisor to the Director for Population

Genomics

National Human Genome Research Institute

National Institutes of Health

Isaac Samuel Kohane, M.D., Ph.D.

Henderson Professor of Health Sciences and

Technology

Director

Countway Library of Medicine

Director

i2b2 National Center for Biomedical Computing

Co-Director

Center for Biomedical Informatics

Children¡¯s Hospital Boston

Harvard Medical School

Harvard University

Elizabeth Mansfield, Ph.D.

Director

Personalized Medicine Staff

Office of In Vitro Diagnostics

U.S. Food and Drug Administration

Scott Megill, M.B.A.

Chief Information Officer

Executive Management, Information

Technology

Coriell Institute for Medical Research

Lars V. Kristiansen, Ph.D., M.S.

Science Officer

Medical Sciences Unit

European Medical Research Councils

European Science Foundation

Cathy K. Ng

Scientific Program Analyst

National Human Genome Research Institute

National Institutes of Health

David Ledbetter, Ph.D.

Executive Vice President and Chief Scientific

Officer

Geisinger Health System

James O'Leary

Chief Innovation Officer

Genetic Alliance, Inc.

Thomas Lehner, Ph.D.

National Institute of Mental Health

National Institutes of Health

P. Pearl O'Rourke, M.D.

Director, Human Research Affairs

Partners HealthCare System, Inc.

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Laura Lyman Rodriguez, Ph.D.

Senior Advisor to the Director for Research

Policy

Office of Policy, Communications and

Education

National Human Genome Research Institute

National Institutes of Health

J. Marc Overhage, M.D., Ph.D.

Chief Medical Officer

Siemens Healthcare

Brad Ozenberger, Ph.D.

Program Director

The Cancer Genome Atlas

National Human Genome Research Institute

National Institutes of Health

Karen Rothenberg, J.D., M.P.A.

Marjorie Cook Professor of Law

University of Maryland

Roderic Pettigrew, M.D., Ph.D.

Director

National Institute of Biomedical Imaging and

Bioengineering

National Institutes of Health

Daniel Russ, Ph.D.

Staff Scientist

Division of Computational Bioscience

Center for Information Technology

National Institutes of Health

Victoria Pratt, Ph.D.

Chief Director, Molecular Genetics

Nichols Institute

Quest Diagnostics

Debi Sarkar, M.P.H.

Public Health Analyst

Health Resources and Services Administration

Rebekah S. Rasooly, Ph.D.

Program Director

Genetics and Genomics Research Program

Division of Kidney, Urologic, and Hematologic

Diseases

National Institute of Diabetes and Digestive and

Kidney Diseases

National Institutes of Health

Maren T. Scheuner, M.D., M.P.H.

Attending Physician

VA Greater Los Angeles Healthcare System

Department of Medicine

David Geffen School of Medicine

University of California, Los Angeles

RAND Corporation

Jeffery A. Schloss, Ph.D.

Program Director

Technology Development Coordination

Program

Division of Extramural Research

National Human Genome Research Institute

National Institutes of Health

Cliff Reid, Ph.D., M.B.A.

CEO and President

Complete Genomics, Inc.

Jeff Roche, M.D., M.P.H.

Medical Officer

Coverage and Analysis Group

Division of Items and Devices

Office of Clinical Standards and Quality

Centers for Medicare & Medicaid Services

Belinda Seto, Ph.D.

Deputy Director

National Institute of Biomedical Imaging and

Bioengineering

National Institutes of Health

Dan Rode, M.B.A.

Vice President, Policy and Government

Relations

American Health Information Management

Association

William Sharrock, Ph.D.

Program Director

Integrated Physiology and Genetics of Bone

Program

Division of Musculoskeletal Diseases

National Institute of Arthritis and

Musculoskeletal and Skin Diseases

National Institutes of Health

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