Bladder Cancer

Bladder Cancer PATIENT GUIDEBOOK

Endorsements

Australian and New Zealand Urology Nurses Society

DISCLAIMER

Every case and every patient is different. The information in this publication is of a general, non-specific nature. It is not intended, and should not be used as a subsitute for the advice of qualified medical professionals.

While we have made every effort to ensure that the information in this publication is accurate, we cannot guarantee there are no errors or omissions. We cannot accept responsibility for any loss resulting from any act, or failure to act based on the information in this publication.

Contents

FOREWORD

3

1. THE BLADDER

4

2. DIAGNOSIS

7

3. WHAT IS BLADDER CANCER?

9

4. TREATMENT OPTIONS

14

4.1 Csytoscopy & TURBT

15

4.2 BCG (Bacillus Calmette-Guerin)

16

4.3 Intravesical Chemotherapy

16

4.4 Bladder Removal with Urinary Diversion (Cystectomy)

17

4.5 Urinary Diversion

18

a. Ileal Conduit

20

b. Continent Catheterisable Pouch

21

c. Neobladder

22

4.6 Systemic Chemotherapy

23

4.7 Radiation Therapy

24

4.8 Immunotherapy

25

5. RECOVERY AND REHABILITATION

26

6. LIFE AFTER TREATMENT

29

7. FOR FAMILIES & FRIENDS

35

8. THE SUPPORT TEAM

39

9. STAGING TERMINOLOGY

42

10. GLOSSARY

46

11. ABOUT BCACF

48

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Technical Editor Assoc. Prof. Nathan Lawrentschuk PhD MBBS FRACS (Urology)

Content Development Anthony Moore Belinda Barro Colin Bridges Gioele Cardilli Kath Schubach Simon Moore

Edition 1 & 2 Designed by Leap Marketing Edition 3 re-designed by Rita Ferreira (Gigante ? Edi??o e Design)

Image Credits Page 2 3, 4, 5, 9, 10,11 18, 44 6, 7, 13 24 11

Copyright Holder ? Respective organisations ? Gioele Cardilli ? Leap Marketing Solutions ? N Lawrentschuk

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FOREWORD

Bladder cancer is the fifth most common cancer in men, but is only half as common in women. While it can occur at any age, it is rare under the age of 50 years and usually presents in older people. As with many cancers, there is a strong, but not exclusive link to cigarette smoking. The consequences of bladder cancer may be devastating, yet it represents a malignancy that is rarely talked about, or considered by most people. Consequently, there is a lack of community awareness, resources and research for this cancer. Bladder Cancer Australia Charity Foundation was formed to help address those issues. Our objectives are to increase awareness of the disease in both the general and political communities, and to provide information resources for patients, doctors and health care professionals. This booklet, and our web site ? .au ? are just the beginning. Over coming months we aim to provide further resources, but this will only be possible with community support, and that of the sponsors who made this publication possible. Please join these organisations in support of our foundation.

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