Plain About Lupus and Key Words - Harvard University

Plain Talk About Lupus and Key Words

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Brigham and Women's Hospital Arthritis and Musculoskeletal Clinical Research Center Health and Literacy Studies

Harvard School of Public Health National Center for the Study of

Adult Learning and Literacy

This booklet was made possible by an educational grant from:

Rheuminations, Inc.

Plain Talk About Lupus and

Key Words

Rima E. Rudd, ScD Emily K. Zobel, ScM Victoria Gall, PT, MEd Simha Ravven, AB Lawren H. Daltroy, DrPH (1948?2003)

This booklet was written so that we can begin to use the same words when we talk about lupus. Please share it with friends.

CONTRIBUTORS: Lynn Rasmussen, EdM, MSc Iftekhar Ahmad, BS Jennie B. Epstein, BA

REVIEWERS: Matthew H. Liang, MD, MPH Karen Costenbader, MD, MPH Victoria Purcell-Gates, PhD

RESOURCES: Do I have Lupus?, NIH publication no. 03-531, March 2003 Lupus, Arthritis Foundation, 2002

DESIGNER: Suzi Wojdyslawski

LAYOUT and PRINTING: Puritan Press, Inc.

Table of Contents

Plain Talk About Lupus . . . . . . . . . . . . . . . . .1 Common Questions . . . . . . . . . . . . . . . . . . . .2 Take Care and Take Action . . . . . . . . . . . . . .3 Lupus Words from A to Z . . . . . . . . . . . . . . .9 Key Words . . . . . . . . . . . . . . . . . . . . . . . . .11 Abbreviations . . . . . . . . . . . . . . . . . . . . . . .40 Common Tests . . . . . . . . . . . . . . . . . . . . . . .42 Places to Go for Care or Testing . . . . . . . . .44 Words to Ask About . . . . . . . . . . . . . . . . . .46 Places to Call for More Information . . . . . . .47

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