SAMPLE LIST OF AVAILABLE DATASETS

SAMPLE LIST OF AVAILABLE DATASETS

If you would like to add a dataset that is not listed below, please e-mail Dr. Tanya Mathew, CCTS Pilot Administrator. Please ensure that the dataset is publicly accessible or can be generally available for use by OSU or NCH researchers. Please identify the appropriate category (or propose a new category) and submit the name of the dataset along with a public URL (if available) where investigators can access the data. We will update the listing on our website on a regular basis.

1. Population data

a. Women's Health Initiative (WHI, )

b. National Health and Nutrition Examination Survey (NHANES, )

c. Framingham Heart Study ( )

d. Pregnancy Risk Assessment )

Monitoring

System

(PRAMS,

e. Multi-ethnic Study of Atherosclerosis (MESA, )

f. Cardiovascular Health Study (CHS, )

g. Jackson Heart Study ( )

h. Behavioral

Risk

Factor

Surveillance

)

System

(BRFSS,

i. Black women's health study (BWHS, )

j. Nurses health study ( )

k. Vital records data (birth records, death records)

l. The United States Census

m. General Social Survey

n. American Community Survey

2. Oncology clinical / population

a. Surveillance, Epidemiology, and End Results (SEER) Program ( )

b. National Cancer Database programs/cancer/ncdb )

(NCDB,



c. Women's Health Initiative (WHI, )

3. Publicly available genomic and genetic data

a. The Cancer Genome Atlas (TCGA, )

b. International Cancer Genome Consortium (ICGC, )

c. Gene Expression Omnibus (GEO, )

d. The database of Genotypes and Phenotypes (dbGaP, )

e. Genotype-Tissue Expression (GTEx) project (genomic data,

)

4. Approved access studies with genetic data

a. UK Biobank ( )

b. Framingham Heart Study ( )

c. Women's Health Initiative (WHI, )

d. GTEx (genetic data, )

5. Electronic Medical Records (EMR) data

a. OSU Medical Center Electronic Medical Records (EMR)

b. National Patient-Centered Clinical Research Network (PCORNet, )

6. Surgical and transplant outcomes

a. National Surgical Quality Improvement )

Program

(NSQIP,

b. United Network for Organ Sharing (UNOS, )

c. Healthcare Cost and Utilization Project (HCUP, )

d. Center for International Blood and Marrow Transplant Research (CIBMTR, )

7. Health services data

a. Healthcare Cost and Utilization Project (HCUP, )

b. Truven Marketscan (national claims data, )

8. NIH repositories

a. NIDDK Central Repository ( )

b. National Cancer Institute (

c. National Institute of Environmental Health Sciences Superfund datasets

9. Maternal and child's health data

a. Pediatric

Health

Information

)

System

(PHIS,

b. Ohio

Perinatal

Research

Network

(OPRN,



perinatal-research/ohio-perinatal-research-network)

c. Pregnancy Risk Assessment )

Monitoring

System

(PRAMS,

d. Avon Longitudinal Study of Parents and Children ()

e. PEDSNet (A Pediatric Learning Health System, )

f. Youth

Risk

Behavior

Surveillance

System

)

(YRBSS,

g. Partners for Kids ()

10. Neurological

a. Alzheimer's Disease Neuroimaging Initiative (ADNI, )

b. Pediatric Imaging, Neurocognition, and Genetics (PING, )

11. Veterinary translational disease models

a. Veterinary trauma registry

b. Canine spinal cord injury consortium (CANSORT-SCI) patient registry

c. The Veterinary Medical Databases (VMDB)

d. KSU 1Data initiative

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