MINAP Data Application Form - NELA



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NELA PATIENT LEVEL DATA ENQUIRY FORM (Form A)

Please submit a HQIP Data Access Request Form (DARF) and NELA Patient audit dataset form (Form B) along with this form to NELA TEAM using ‘Data Request’ as the subject line. Contact us early in the process if you require support and guidance or if you wish to work collaboratively with the project team on your project.

You should provide sufficient detail in your HQIP DARF to enable the NELA team to review and make recommendations for data access requests. Form A was designed to complement the DARF to this end.

Notes on completing a DARF when applying to access NELA data:

S1 HQIP requires an organisation to be specified

S2 A new application will be required for analyses not specified in this application

S5 Indicate level of granularity for all publications

S8 NELA collects data for England and Wales

Select Unlinked audit data. (If you wish to pursue linkage, complete Section 18)

S9 If you plan to request a large number of fields (S10) or dates there is the potential to identify individual patients, so you should select de-identified or personal data. Note that this has consequences for required evidence (S13-19 & S22)

S10 Identify required data fields in Form B and include justification for each field

(Note some fields are unavailable and some available only for defined years)

Please specify required time intervals e.g. days from admission to arrival in theatre

Outcomes: please specify e.g. inpatient 30-day mortality / days from admission to death, postop length of stay

S11 Identify data flows for which you will be responsible, i.e. subsequent to the transfer of a dataset to you from NELA. A diagram is helpful

S17 Please complete for all applications

S22 Ensure you include consideration of ethics

1. RESEARCH PROPOSAL

|Project title: |

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|Principal investigator: |

|Institution: |

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|Is this an extension/ renewal request?: |

|PLAIN ENGLISH SUMMARY (To be published on the NELA website. Max 250 words) |

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|SCIENTIFIC SUMMARY (supporting HQIP DARF: additional details for NELA to consider) |

|Research question: |

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|Study population (please define in detail so NELA can identify your dataset): |

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|Methods (including endpoint(s) and handling of fields that are not available in all years of the dataset - see Form B): |

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2. FUNDING

|If you require funding to carry out this project, what is the status of your funding application? |

3. SUPPORT

|Are you requesting statistical/ methodological support from NELA? Please provide full details |

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4. Data fields: Use the following tables to inform us if you require aggregated data and conditions you want applied to the data before you receive it. (Form B should be used to identify the required fields)

|DATA FIELD |Aggregation (population subgroup/ by hospital/ |

|(Name and NELA code) |entire dataset…) |

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|4.1 Use this space to explain any other conditions you want NELA to apply to the dataset before you receive it (e.g. timescale, patient |

|subgroups…) |

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5. Any other information you wish NELA to consider

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MEETING DATE (Office use):

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