Lessons Learned from Current Implementations
Lessons Learned from Current Implementations
11th February 2014
GSK: Andrew Freeman, Peter McMeekin Roche: Rebecca Sudlow, Martin Sauer BI: Andy Lawton
Session Structure
High level overview of experience of setting up a patient level data
request website
? Detailed overview of activities ? What was involved / resources needed ? What could we have done better? ? Pain points and pitfalls to avoid
Key messages
Sharing and collaboration is key We're all still learning There is no right answer as to how to plan and resource this
work
Benefits of greater access to patient level data
Enables the identification of trends and associations that may
provide greater insight or help develop hypotheses and theories for further research
Enables the review of results from clinical trials to validate the
results
Helps ensure the data provided by research participants are
used to maximum effect in the creation of knowledge and understanding
Strengthens trust in clinical research through enhanced
openness and transparency
The goal
The aim is to help realise a broad solution to allow access to data from clinical trials conducted by multiple companies and organisations
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